What is Postural Orthostatic Tachycardia Syndrome (POTS)?

▶ Check out my POTS Management Toolkit on Kit: kit.com/Chroni...
In this video I talk about what Postural Orthostatic Tachycardia Syndrome or POTS is and what it is like to live with this condition. I also show you how to perform a poor man's tilt table test (TTT).
POTS is a condition which affects the autonomic nervous system causing high heart rates, dizziness, nausea & forms of syncope and faints as well as affecting blood pressure, digestion, sweating, bladder and stress response.
For more information on POTS please go to: www.potsuk.org/
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Music Credit: Don Perez Freire performed by Edson Lopes creativecommon...

[@awinkie12]

thanks for your video I have POTS as well as other chronic illnesses and just started a vlog too

[@ChronicallyJenni]

Awesome I'll check out your channel! Nice to meet another fellow spoonie! Sending you lots of love & spoons. Im going to be doing a POTS collab video if you'd like to/are well enoughy to get involved.

[@awinkie12]

cool! would love to hear the details!

[@ChronicallyJenni]

chronicles of a chronically ill girl drop me an email at [e-mail] and I'll send you the info x

[@eleenmurphy7706]

Thanks for this video, I'm undergoing the process of diagnosing it now myself and wanted to learn more! This helped so much. I have a question that maybe you can't answer but - have you any experience or knowledge about POTS and hormonal birth control? Or EDS and hormonal birth control? I have heard it can cause problems with EDS especially. I'm looking for info on it but there isn't much out there! Lots of hugs! x

[@ChronicallyJenni]

Hey Eleen, I'm really glad you found this useful! Yes I have been on the mini pill for a few years and was on the combined pill for several years before that, not that I should've been with my migraine history. I was advised by my specialist physio that it wasn't a great idea and was best to go for the coil as gives the smallest amount of progesterone to a targeted area rather than a large amount throughout the body which causes things to be more stretchy and hypermobile but I've not yet tried coming off mine mainly because my periods were awful before I was off it and couldn't deal with them on top of everyone else but I think it's worth discussing with your doctor. Obviously I'm not a doctor at all but if you have any questions feel free to ask and I'll do my best to answer from my experience :) Sending you lots of spoons and love xxx

[@eleenmurphy7706]

Thank you for your reply! It's super helpful, as I'm trying to gather as much info as possible. Yes, I've heard as well that it can make things more stretchy and hypermobile, that's my worry with it as well. Although some other people with POTS that I've talked to says the levelling or their hormones helps reduce symptoms (hope this happens for me!). It sucks to hear you were put on the pill when you shouldn't have, I hope you can get the same relief with the coil or whatever other method you decide to go with. Anyway thank you again for the info - I'll be trying some hormones to treat endometriosis and want to know everything before I jump in. Sorry to hear you get terrible cramps as well. Lots of spoons and love back atchya! x

[@ChronicallyJenni]

That's okay. Sticking with the mini pill for now but we will see. My POTS came on a long time after I started anything so I don't know any different but hope you find whats right for me :D Hope you find something to help xxx

[@paddybrady5874]

Any advice for the blood pooling it's awful can you walk on your feet along with it

[@TropicalLady888]

Which doctor did you go to?

[@ChronicallyJenni]

I went to a specialist autonomic unit which usually comes under neurology. x

[@oliverlikescats4736]

I want to get tested for POTS. I've had symptoms since middle school that were mostly triggered by heat/exercise. I was diagnosed with asthma at age 16, but I don't think that's the whole story. (I'm currently 18 btw) My heart rate is usually 80-100 while sitting/laying down, and it can go to 120 when standing. Heat makes it so much worse; my pulse can go up to 160 in the shower. I become out of breath, shaky, and weak. My heart rate doesnt always consistently increase, but it's still odd that my pulse can get so high without explaination. I don't know if I have really finicky POTS, inappropriate sinus tachycardia, or what.

[@ChronicallyJenni]

My resting on average sits in the 60s and always goes up to about 90 when I get up. Showers are awful right! You can have what they call 'a tendancy to POTS' which means the symptoms don't happen every time there's a postural change x Hope you find some answers. x

[@bellarose5343]

Check out gapsdiet.com - it healed mine! You have to stick with it for 2-3 years. Practicing mindfulness and releasing repressed emotions also helped. Hang in there and do NOT give up hope! Much love!!