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I've had epilepsy (partial seizures) since age 22. I also am a retired Internal Medicine physician.....I retired at age 46 because of my memory decreasing, and seizures got worse due to long hours at work and anxiety. Now I am 64. I've always exercised my entire life, and my epilepsy specialist said that helps me a ton. Most people, even doctors, don't understand the side effects of the meds, how memory is severely impaired, etc. Dr. Danoun, you are an amazing teacher.....this is a great learning article!!! ALL SEIZURE PATIENTS SHOULD READ THIS!!!! Thanks again!!
I'm 28 now my seizures began a few years ago at age 24, it's been very difficult keeping work in my life, I go above and beyond my bosses expectations and I've always put all of my care into my work, but my seizures that happen every month make it impossible to keep a solid job to keep my life comfortable and in this economy eventually I get let go from my jobs because of my epilepsy it's getting difficult but I'm staying strong, I'm doing everything I can to put a stop to my seizures, I've gotten sober, I take care of my health a lot more, the seizures stopped for a year while working a construction job but returned, I was feeling hope of being free of my seizures but now I'm back to believing this is a life long challenge I must deal with. Take care, thank you for sharing. God bless.
@@Greencloud8 Mine began after my first neck surgery I had to get half of my thyroid removed because of cancer, then it got fully removed from my neck a second surgery 2 years later, I quit drinking alcohol because I noticed it made the seizures much more frequent and I became hospitalized a few times, I'm now taking Levetiracetam and have started taking Lamotrigine this week because the last seizure I had on the 7th put me in a weird mental state so I'm hoping I can continue to work thru this my doctor has told me he has hopes for me to be seizure free but he told me to be patient, so now I'm staying strong and patient and researching in my spare time
Thank you for expressing this. I have the same issue and I’m 37, it’s hard to get promoted at work even though I’m well qualified but my memory is declining.
I agree.! I put all of the things that I am going to do on my iPhone. I check it every morning and during the day, and night before I fall asleep. That acts as my journal and my calendar! Because I carry it in my pocket at all times I put all important issues at the time they happen. Basically, my iPhone is my brain!!
I've had seizures for almost 20 years. I've forgotten my Spanish, math, and I need to use auto correct because I forgot how to spell a lot of words. My speech is getting worse and when I talk I have to stop sometimes and think of how to put my words together. I have to use alarms for my meds and write a lot down so I won't forget. I wouldn't wish this on anyone 😔
@@Launicachulita well i am sort of in your bracket i fumble with words ,i forget memories i hold dear to me , i forget family and alot of other things .....so i can relate on so many things issues....but i get by....take care keep well...
I got diagnosed 3 weeks ago have had 7 seizures in a month, put on keppra for medication. My mind feels like I'm going crazy, there's times where I can't speak for 30 minutes (other than cursing lol) it's very frustrating. I'm wordy I am developing aphasia, I hope to god I'm wrong tho. Its weird I have adhd so when I take my adderall I have perfect speach and memory but when it runs out I'm lost for words at time. This sucks.
@@forgottenmorethanyoulleverknow my dear friend talk to your neurologist about xcopri. It’s a fairly new drug and it’s helped me. I was able to go off of topamax and thank god I’ve been seizure free. Keepra and topamax are the worst medications to take they make your brain worse. I hope you are able to control your seizures. Took me 20 years but I’m so thankful to god.
Thanks for the video. I've had epilepsy nearly my whole life. After getting diagnosed and put on seizure medication at age 11, I developed a learning disability. My parents and siblings are all brilliant people, so I've always felt like the black sheep of the family. My condition isn't as bad as others, and its under control. Before I moved to Japan, I was taking 500mgs of Lamicatal, but my new neurologist told me that I don't need to take that much. First, he lowered it to 400mgs. Then after a year, he lowered it to 300mgs. Much of my brain fog cleared, and my memory felt stronger than ever. However, I still struggle with remembering daily tasks and responsibilities. Learning to speak Japanese has been a challenge.
Same here. I also take 500mg Lamicatal and have problem with studying. I think the med made my condition worse. Please please tell me, which medication you use now. 🙏🏼 I could speak with my neurologist about that.
I feel basically like i'm a 10 yrs old. I forget everything after 15 minutes. I feel very very sensible and whiny. I sound like i'm 10 yrs old. At least i look young then is it not so bad.
Thanks for sharing Dr. Omar. After I had back to back seizures (tonic clonic) I started suffering from memory loss (at least what I thought it was). I discussed it with my doctor as it started to impact my job (data analyst) and we decided to go through neurophysiological test. The result was attention deficit disorder and not memory loss. Now I wright everything down and I try to create a routine (for where to put stuff like car keys, wallet,….). I always find myself asking people for their names twice or even three times within the same conversation, this is who I am and it doesn’t bother me anymore 😁.
Abdullah, I'm in the same memory boat as you. I just wanted to suggest something that has helped me. It might help you, too. I repeat people's names and things I'm trying to remember . In other words. When they say something important to remember, I try to incorporate it back into the conversation. Whenever it's a new person,introducing themselves, I might say. It's very nice to meet you, Abdullah. I'm Effie. Not just it's nice to meet you, too. Before I reply back. I find that it's very helpful. The act of saying it helps my brain. At least regarding this topic.
Thank you so much Dr. Omar. My Temporal Lobe Epilepsy is the result of an infection that went from my left inner ear to my Temporal Lobe. It was a large abbess that was inoperable and required two months of IV antibiotics at home. It left me with a large infarction and Epilepsy. Like you, my Neurologist deals only with Epilepsy and other seizure disorders, and he has been a Godsend. My memory disorders mimic early Dementia, and I was scared to death that I had Dementia along with the Epilepsy. My Dr. assured me that my difficulties were Epilepsy and nothing else. It was the most important Dr.,s appointment I ever had. This video confirmed beautifully the things that I experience and exactly why. I look forward to every video! My Dr. told me early on that before long, I would know more about Epilepsy than most physicians. I’m thinking he’s right. Thanks again, Dr. Omar!👍
I was abused badly as an adult while seriously ill from other illnesses and the beatings took its toll on my body, my seizures are from multiple head trauma that has wrecked my life but recently I was given a way to finally get control of my seizures by surgery at vanderbilt this has changed my life by giving me hope and finally control over this disability
I'm 26 and I have had generalized epilepsy since I was 10. In my 20s I started to develop memory loss and difficulty speaking. I thought I was having dementia but my doctor told me memory loss is normal for people with epilepsy. Normal or not it's still super annoying though. e Especially considering as a kid I had a great memory.
I had a meningioma tumor for years but didn’t know- temporal and frontal lobe. My memory was a problem before I knew about the tumor. It’s an issue. Didn’t have seizures until after the surgery- months after radiation. It’s a problem but I am thankful to be alive.
Me too! It was a few months after the surgery, and they had done radiation to lessen the chances of any regrowth. The seizures are aware but they are really starting to reek havoc on my memory and thought process for a couple of weeks after. They are also so exhausting.
I’ve had epilepsy since 1988. So many others with seizures often blame it only on the medication! Thank you for sharing this. I will let people know about this video to help clarify their memory problems.
Dear Dr Danoun, thank you so much for all the very helpful videos. This video specifically reminded me of all the memory disturbances that my grandma was experiencing/her epilepsy started after her stroke. Your step by step explanations help tremendously with understanding all the different aspects of “what/why/how “ for one living with epilepsy. Thank you 🙏
Yes the info is stored in my brain except I cannot access it right away. I must be reminded. This confirms my thoughts after my seizure. Temporal Lobe client. I know it's my hippocampus being effected. Also having issue with speech. I want to say it. Except I'm studdering. It's effecting my whole day. Depression, PTSD ugh. dont get me started. Thank you.
Dear Dr Omar,, I as a dutchy with epileptic have epilepsy since 4 year old,, I left ndl myself with 10 dollar when 18 year old and said lets go to NZ and take on a life challenge and from NZ use the bicycle and take my entire life to cycle around the world and show myself that I can be a great example of the endless opportunities we can take on and show not to spend a second of time on fear,or negativity or hate or all pointless thoughts ,, and guess what now I'm in HK running a international educational platform business, aswell inart, wood work and biology after achieved a PhD in Sydney university in biology and financial law,,. Yes and I left with 10$,,. So everyone please please please endure epilepsy and take on challenge and be happy as it will be of great importance
Had my first seizure when I was 18. Took medication for about 10 yrs then completely stopped taking any meds. I am 43 yo now and have not had any epileptic seizure for more than a decade. However, I still struggle with memory loss and could not remember most of my memories growing up, in school, and even while I was working. Will start to write on my journal starting now, this is just one way to at least recall some of the events happening now that I might not remember at all in the future.
Thanks for the video. I was diagnosed with epilepsy back when I was 18. Been wanting to understand better how seizures mess with my memory and why. Last seizure was last Tuesday then before that, last may then April of last year. 🙁
Thank you so much for doing this video. I have epilepsy with memory issues. I am good when doing certain things but when I walk out of the room I forget it.
My goodness Dr. Danoun - this video has so many similarities to what I am going through. I have had focal epilepsy (left temporal lobe) since I was 10 years old and I am now 61. I have been prescribed numerous seizure medications over the years and I have occasional seizures, but not tonic-clinic. I just had the L.I.T.T. Surgery at the Mayo Clinic in Jacksonville, FL in November 2022. I am very concerned because I am having difficulty with memory, but the Epileptologist team have told me (even prior to the Sx) that it will take any where from 6 months to 1 year for the brain function to fully heal and for things to be back to “normal”. I have not had a seizure in the past 4 months, but I did have a strong aura last month which is typical for me. I just hope that doesn’t reduce my chances of being seizure free. I am actually having an 8 hour Neuropsychological Assessment in a few weeks for post Sx testing, which is the same test I had prior to the Sx. I will also have a post test Brain Imaging MRI. I am writing because this particular video (I learn from all your videos) is so much like what I am going through, and I am presently concerned about my faulty memory (and heightened anxiety after the Sx) and I want to hear as much as possible about every single thing I can do to strengthen my memory which includes forgetting advanced words when I am talking and forgetting the advanced words I used to know (prior to Sx) when I am reading. I look things up on a regular basis and write them down as that seems to help. Thank You so much for your helpful and extensive information about epilepsy ❤
I also had the brain surgery for my partial seizures, (at age 26), and it stopped the seizures for 9 months, and they slowly came back. Don't give up!! Dr. Omar D. has written a great article here, and I am doing everything his article included. Even at age 64 now, the seizures are still there every 3 weeks, but it seems that my memory loss is somewhat more slowing down, but don't give up!! Best of luck. I hope that new artificial intelligence might be developed with brain implants .....you never know. Good luck again!
I have epilepsy and I struggle with retaining information. I can remember peoples faces but, I struggle with remembering previous conversation/tasks. :/ for other people out there, you are not alone
Thank you for this, before my diagnosis last month, I did not realize why my memory was getting bad, I told a doctor, who prescribed magnesium glycinate supplements, which I found out I am severely allergic to. This video has made me realize how I've been working around this unconsciously through making to do lists and ticking off what I have accomplished as well as printing out a calendar where I write down activities, bdays or even other upcoming things and deadlines.😅
My neurologist always likes to bring this up Last time he hurt my feelings saying I have brain fog I’ve only seen him about 4 times in my life he has no idea nothing to compare me to before the medications
All of what ur explaining, they"re happening to me, with my memories, oh, they're so embarrasing, it make me cry at times, i went to a friend funeral, then few months, am asking my husband for him, saying i av'nt seen him in a while, this epilepsy is really serious.
I love and appreciate all the content you put out there. I am doing my best to understand my epilepsy. I really need a good epileptologist and am looking for one. I found irony in the fact that I saw this video and said "Wow, that would be great to watch." When I clicked on it I had already liked the video and I only got through about half of the video. This time I'll finish it. 🙏🙏🙏 Thank you again for everything!!!
Since I had my first seizure 3 years ago, I have memory loss, sometimes I struggle to find words (it was really bad, but a bit better now, but I'm still struggling at times). I forget people's names, people who died, places, etc. I have cried over people who died, which I forgot, so many times the last few years. My biggest shock was some of my favourite musicians and the most recent celebrity I grieved was Heath Ledger. When we go to town and I see people, I'd ask about their family members (who I forgot passed away) and then they're upset and I'm very upset (to hear the news plus the embarrassment I caused). It's very frustrating. I'm still undiagnosed, the doctors don't think it's epilepsy, but they still don't know what it is.
I'm wondering if I could ask you a question? You mentioned your first seizure 3 years ago....have you had others since? May I ask what kind of seizure you had? My husband had a Grand Mal out of nowhere and we don't know why. The neurologist put him on Keppra 1000mg a day while we wait for the MRI and EEG. Doctor thinks my husband has been having focal seizures for some time and didn't know it until it became a Grand Mal. We both don't agree with him but we want to wait until we get the testing done. He's only had one seizure that we know of and after that Grand Mal his memory is very affected. It's very scary. I hope you're doing well and they've figured out what's causing yours🙏🩵🩷
Of course you can ask. I had 2 Grand Mal seizures in one day. First around 4pm (16h00) and the next one that same night at around 3am (03h00) - sort of the next day, but within 11 hours apart. I've had absent seizures a lot, had a few yesterday (afterwards I pass out and sleep). I've had about 8 Grand Mal seizures in the last 3 years (after the first 2). So about 10 in total. I've had my MRI done in December, so am diagnosed now. I'm seeing another neurologist in May (first available opening) in another city. She's renowned, so I hope we can get me on the right medication and help. I've been to soooo many doctors and neurologists in this almost 4 years, I can't keep track. The last neurologist treated me for neuralgia with Lyrica (Pregambelin) and that made it worse. 3 days I have no memory of. I'm on Epitec now (Lamotrogine) and it has had the Grand Mal's under control for the past 4 months or so, but the absent seizures are daily.
I've had meningitis as a child (6 years old) and we think it is related in some way perhaps. My parents and sister was looking back and talking about it 2 weeks ago and they say I may have had epilepsy longer than we originally thought. We only thought it started with the Grand Mal in 2020. I think that just made us aware of my condition. I had a car accident in 2012 in town, which has upset me a lot as I'm a racer and been driving since I could look over the steering wheel (I was 5 when I was taught to drive). Anyway, looking back now, I can't remember what initially happened, I can recall when the vehicle started spinning around and then rolling on it's roof. They suspect I had at least a type of absent seizure there, because it was a straight road, in the speed limit of the city (luckily no other cars or people involved). So it's really weird. Plus throughout the years I had moments where I fell, for no reason, a lot of stuff I just can't remember. One time when we lived in New Zealand (for a couple years) my Sister and I was travelling on the highway, I was driving. Next what I remember is that we were standing in front of KFC, I asked her "what are we doing here, are we hungry". She said I was feeling unwell and I turned off the highway to the nearest place (KFC) and stopped the car. I had no memory of it. It was very weird at the time. Luckily I didn't lose consciousness on the highway!! But there's a lot of these small "incidents" that we just said oh it must be stress, low sugar, etc. In actuality, we think they were absent seizures...
My memory is severely affected. Also I struggled to learn in school. I just couldn't study. I paid attention in class and went on "general knowledge" through school. I was great at math, economics, auditing, etc, because I understood it, but things like history I had trouble with remembering and other subjects where you have to go on information, repetition, etc. I can write a sentence a 100 times over and still not know what I've just written!!
I'm so sorry to hear about your husband. It's a very scary thing and A LOT of fear (for the next one and when is it going to be), a lot of changes you have to make, no driving 😢 , family and friends who must adjust their roles and expectations of you. Your bad days... etc etc. Hope you're getting results soon. Keep me updated please 🤗🌸✨️
Ty for this video, this helps a lot Now I know to keep a journal with me at all times I’m epileptic as well and I struggle with my memory a lot I will easily forget what I was talking about in a conversation or what I was going to do I have to be reminded constantly
i know this is an older video now but i have tonic clonics every 6 weeks roughly. I wake from a seizure and usually only know i had one due to my surroundings or someone telling me. The seizures wipe alot of memories that are close in time with it. To help my memory i play sudoku and other brain games that require using memory. Meditation and clearing my mind is the best healer for me. Recalling words and memories is for sure the hardest part for me. I have noticed though since my epilpesy started (in 2020) I have more ability to recall childhood memories and much more vividly than before. My mom use to be baffled when i told her i hardly remembered elementary school before i ever had a seizure, but now i can remember the whole school layout, the play ground, recall specific memories that felt like huge impacts in the moment but faded away fast in adulthood
Thanks for this video. Unfortunately my night frontal partial epilepsy changed yesterday. Kinda feel like lost three whole days of my life. So thank you for pointing it out.
After learning about the neuro- chemical mechanics of how simply running out all reserves of Vitamin B is what causes an alcoholic episode to result in a total "black out" (all bodily functioning continues yet no memories are recorded) i tried to supplement up my own vit B (especially B¹) stores. & THIS HELPS ALOT. Idk what my 'seziures' are technically called bc they are the result of a left frontal lobe centered TBI- & therefore my sexiures don't outwardly LOOK to anyone observing like a seizure meanwhile im completely arrested by whatever is happening inside my brain when they are going on. I could be in a meeting, appearing to all to be listening to everything that is happening in front of me, yet i couldn't recall WTH went on, at all even if offered a million dollars for that data. Thanks for the info.
In having the exact same troubles. I out something down, then ,, 30 seconds to 5minuts later I forgot where. Then spend hours looking for it,also. You made me hungry 😊
I have had three Seizures over the past year and a half. I am 72yrs old. Two were night time and one daytime. I was put on Levetiracetam which seems to have helped. Since then I have some memory problems. I have also been told I have had a heart attack in the past which was many years ago from an accident that caused a left arterial thrombosis in my mid 20's. I do suffer from occasional near blindness and numbness in my left eye and head which became very noticeable in the early to mid 80's and continues to this day. I was recommended for heart valve replacement back around 2013 but the surgeon told me I was not ready for one at that time. Since having the Seizures I have been studying up on them. I may have had a Seizure shortly after the thrombosis because as I recall their was a time for several minutes I was aware of everything around me but I could not move or talk. And over the years I have woke up in the morning realizing I had bitten my tongue or cheek and have blood on my pillow. My wife tells me I snore at night because I lay on back.
To date, I have undergone 7 neurological procedures due to a very large posterior fossa cyst and I have a VP Shunt in place. I have always had a dire memory. My short term memory is in a poor state, yet my long term memory is pretty good, ie I can’t remember what I did an hour ago and, yet, I have a pretty clear memory of things that happened when I was a child.
After my 4th seizure over a year ago it took a long time to recover and to remember otherwise simple things. Very scary and discerning for a while to say the least
Yes, my doctor is ordering some therapy and baseline assessment for me. It’s the scariest part of my seizures. I forget lots of my memories around them
God yes. I have to have no sound when I am trying to learn anything. Sometimes it takes me awhile to recall. I have been an epileptic for a year and a half from TBI. I have been trying to finish my masters and am frustrated beyond your imagination. From your videos I have learned a lot more than the specialist and gp have taught me. Thank you
Hello Doctor, thanks for your videos. I had my first tonic clonic seizure last year at 25 years old. It is apparently because of an insular section of my temporal lobe. Thankfully after a few months of medication trials, I manage to get some control over it and I haven't had a seizure for 5 months (unless I forgot some). Unfortunately I do feel like I lost a lot of memory of time (pretty much my entire 25th year). Overtime, something That I found helps with my focus was playing a videogame that requires a lot of focus. Overtime I feel like i've managed to regain some memory and focus capabilities. Another trick that I've found helpful is listening to audiobooks as it requires a lot of focus on semantics, syntax, grammatical structures, and so on. Again thank you for your videos, I have found them very helpful in my situation
I would like to thank you Dr bringing light on this subject.I am on multiple AED since more than 20 years. Though I completed my graduation and masters in Accounting and Auditing. It was very difficult for me to remember theory subjects.
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My wife was diagnosed with epilepsy 2 months ago and has had memory loss every week (sometimes every day) for 4 months. Her brain goes back in time. When she loses her memory she believes she is in a date in the past and all she remembers are just things she experienced up to that date. She goes back in time to 2, 3, 5, 10 years ago, forgetting everything she has experienced since then (daughter, friends, work, marriage, etc.). I am recording everything in as much detail as possible and I cannot find similar cases on the internet or in scientific studies. After a good sleep (night sleep or a sleep of about 1 hour during the day) her memory returns 100%.
My first siezure, at 26. I think this is the correct medical terminology, it was what is called a doozy. It happened 1987, 4 weeks post Lumbar Laminectomy, very successful. Prior to the surgery I was put on Prozac, the shiny new med that could cure everything. Over 6 months and despite my saying I'm not depressed, just fix me, I was on 4 meds after the prozac, the last being Ludiomil. They all caused some type of CNS type problem from tremor to shaking, mid speech my throat would just lock. My gut told me to just stop taking it, lie. But I was trying to be compliant. I have epilepsy because the makers of Prozac wanted more money and despite the fact Ludiomil was known for seizures, an antidepressant was part of the popular regimen. That first seizure took 3 years of memory. I have problems with seizure meds. I prefer having white bloods cells always to having a bitch of a seizure every 6 to 8 years.
Absolutely have short and medium term memory loss. Everyone around me tells me I'm just getting old (41!) mostly just joking, but it's really dejecting.
I have tonic clonic seizures. I try and write everything down and keep to a schedule. I have difficulty with faces names etc and making connections to information.
I find that since I'm on the keto diet, my memory has improved, but still on some occasions I forget words. I'm on no medication for epilepsy, side effects bad.
I’m finding that I have to write myself notes for important events or necessities and tape them to my bedroom door. I leave my medication bottle in a certain place and then remove it after being reminded to take my med. Do things while they’re on my mind.
Some times I’m so frustrated because I can’t remember what I was talking about or words or I repeat things . I was diagnosed with epilepsy a year ago. I’m taking my meds but keep having seizures at mostly at night. It’s very frustrating because you don’t feel like you used to anymore and people don’t understand. Especially after a seizure how it takes a toll on me.
I am an epileptic and has a temporal lobectomy 7years ago,my memory with proper nouns are getting challenging. I am a programmer by profession but I don't forget my codes or variables during programming. Will love to get any memory boosting activity.
I’m 48 and I have frontal lobe epilepsy. All my seizures have been nocturnal. I’ve found no matter the medication I’ve been on, word recall has always been hard. Trokendi seemed to be worse medication when I was working in a high pace, on my feet environment where I needed to respond quickly. All of the medications have made me fatigued.
Hi! I am on the same ride as you are! What kind of medication are you on right now? How many seizures do you have on a monthly basis? Do you know when you are about to have one? It is frustrating but still glad it only happens at night. All the best!
@@zsoltferencz5407 Mine are controlled for the most part. I only have clonic-tonic seizures about once every 2-3 years now but we’ve found I must stay on medication. I do have small 10-20 second seizures where I space out right before my monthly now since I’m “aging”. I usually get a migraine the day before or day of. When I have the tonic-clonic, it’s almost always during a time of stress overload, time constraint where I haven’t taken my medication at the same times daily and working too much and/or I’ve taken something to lower my seizure threshold. It’s usually all in combination. Usually, I’ve got so much going on during that time in my life that I probably could see the signs but tend to ignore for everything going in my life at the moment. When I’m not overwhelmed with activities, work, life or whatever it may be I try to set an alarm on my phone to take my medication at the same time daily, I eat as clean as possible with at least one large leafy green salad a day, take way more vitamins than my husband likes ($$) and do my best to not overwhelm my schedule because I know what that does to me personally. Oh, I’m on zonisamide and keppa. Thank you and same to you.
@@k2reeves thank you for taking time to reply. Yeah, same for me. If I am stessed, or not being able to sleep at least 6 hours high chance I will be having a seizure shortly. I am on lamictal 100-100 and 200 before sleep but if I am really tired sometimes meds can't help me either. Also based on your experience do you have a problem remembering stuff. I am not saying it happens a lot but sometimes I want to go to the kitchen to grab an apple and until I get there, like 3 seconds I forget what I wanted to go to the kitchen for. Should I be worried about this? Is this a start of Alzheimer or just a simple side effect? Have a nice day 😊
I am 47 years old nd my epelipsy started when i was 20. it makes me depressed especially. when i made a mistake i feel like im being lost or something about emotional depression that leads me to give up.
@@zsoltferencz5407 do you have problems with short term memory ..ie forgetting what you just read , going back over what you have just read , and later not recalling whar you just read .or if your organizing things but immediately forgetting .what or where you have put them...I have nocturnal epilepsy, I'm on 400mg of lamictal (Logem a generic) and 10mg of Clobazan at nights...the short term memory thing is really hard work for me
I have seizure frequently but not fall down. Recently I forget lots of things. I also couldn't find the words to say. I am suffering a lot. Feeling helpless. Day by day getting so depressed.
My brother has epilepsy and he's been taking drugs from last 4 months but now he is facing memory problems. He suddenly lose consciousness and forgets everything happened earlier
Sir i have epilepsy problem whenever I got attack I lost almost 1 hr memories.. Example I'm living alone today I wokeup i felt some laziness then I look for my mobile suddenly I see it was kept in charging but sleeping time I didn't kept then I realized actually I was wokeup n kept in charging but I lost my memory
The anticonvulsants cause memory loss faster and more severe than the seizures do. In 2020 I increased the dosage of one of my meds and immediately it was as if I was suffering from dementia while experiencing the ticking that a drug addict coming down off an addiction would be experiencing. The ticks went from 1 per day to 4-5 per every 3-4 minutes. I've noticed that every 4 years I have to lower the dosage due to side-effects. Based on my understanding of how anticonvulsants are digested, I'd guess I'm suffering from fatty liver disease and every 4 years my liver detoxes to make room and improve liver function. I've tried to convince my practitioners of my concerns for my liver but, they all ignore me and without doing any reputable tests other than ALT, AST, BILIRUBIN. The bilirubin has been at concerning levels each time. Each practitioner says the same thing: Your liver is fine. That answer avoids answering the question. I've spoken with 4 practitioners over the past 2 years.
Yes I have memory issues at the moment they want me to talk to 3 physiatrist and take memory test. But this whole process really makes me think of my past and puts me in a negative mindset
I've Always Had Memory Loss For Going On 40 Years, I Always Tell Other Epileptics To Carry Notebook & Something To Write With So They Can Make Notes So They Don't Forget.
Hey thanx for the detailed video. My sister has TLE and recent MRI suggest MTS. I have seen that her memory is in general fine when there is no seizure, but with every seizure there is some memory loss. She is on 1. Brivaracetam 200mg 2. Lacosamide 400mg 3. Clobazam 15 mg Note that clobazam 15 mg helped stopping her seizure which in turn helped with memory. Can you give guideline how we can improve the memory by changing our life routine ?
Multiple tricks can be done to help memory like keep a journal and listing everything and keeping a routine... Seeing speech therapy helps with memory organization
I have focal epilepsy, and I guess I have an attention problem. It interferes with my work (I am a medical doctor), but also at home. I often mishear things, or remember them wrong. My daughters sometimes percieve this as me not being interested. And that really hurts, for that is definetely not the case
My dr upped my vimpat to 400mg twice a day it made me really sick dizziness and just sick to my stomach. I've had two seizures in 1 months .I'm thinking it not for my.
Epilepsy meds can cause memory loss especially over the long term. I read how Carbatrol can cause dementia, possibly others over the long term can too. All these meds must have side effects we are not told about.
Yes there are some limited articles about this but the reliable studies showed no association between antiseizure medications and dementia. Yes it can cause memory loss but not dementia
Hello Dr Omar. Am just 26 years of age, for years now I have been struggling with seizures that occur in different forms, my very first experience was nocturnal, then it moved down to absent seizures (here I completely loose consciousness). Presently I have more of nocturnal seizures, involving jerking and mouth injuries.On very rare occasions,I experience seizures during the day. Now I find it very difficult remembering things such as past events, people and names, movies have seen,and discussions. Getting standard medical care here in Nigeria is a problem. My life is really annoying, please any guide or help from you would really be appreciated, thanks.
Correct.. Seizures can affect memory. There are many videos on the channel to explain epilepsy and you can discuss these treatment options with your neurologist
Yes dear I'm also forgot certain time certain words.. When I want to call my niece nephew I forget his/her name 3-4 sec to remember In discussion with anyone I forget the common words to describe I'm 31 yrs old still unmarried I don't to lie with anyone n in the selfish world who will accept me with this fact
Thank you I struggle with memory I don't even read or write on the same level since I had a seziure June 12 of this year. I am waiting to get into a neurologist my appt is not until Nov I been thinking I was losing my mind. I'm only on keppra idk if it's helping or not. I've not had a pass out seziure since about 17 in one night June 12 2022. I was thinking maybe keppra was making me worse. I thought of stopping meds but I'm so afraid to have the grand Mal kind again. I choose to wait till I see neurologist. Thanks tho this video helped me so much thanks for your time on this. GOD BLESS YOU 🙌 🙏
I have memory issues like you said finding words, reading words which are not there, making linguisitic mistakes, not remembering places or people. I experienced lately that I went to visit my doctor and I knew that I have been to that places before but this time it felt like i have never been before. Even I didn't remember my doctors face. What I do in order to remember is to write notes on my phone and any behavioral change. For example I had seizures and my seizures which are mostly during sleep so this time when it happened people started to look similar to each other. I was unable to differentiate. It felt like I know them from somewhere and it was scary and emotional . I also had personality shift for example I somehow build a new interest in math and language. My epilepsy as its recently Discovered so I just started medication but there is another issue. I have osteoporosis and got spinal surgery due to multiple fractures that put me on usage of oxycodone for the past 3 years. I think that medication which I have stopped using couple of weeks ago influenced not my behavioral change but worsen my epileptic stage.
Speech pathology for a year. I write lists if I have a lot to remember. Keep my meds in my pocket and anywhere close by. I understand it is the result of severe trauma and accept I will be a rancho scale 6-7 now. They told me it would take time for my brain to rewire. Maybe never at all.
I have epilepsy seizures since 15 and I do forget alot of things mainly when I've had one the ambulance ask say where are you what have don't no where are you don't no then after afew more mins I speak answering questions so much the they do bits and bobs in ambulance
My 19 year old son started having seizures at the age of 7 due to mennanghits that occurred 3 months after his Liver transplantation. Currently, he is on keppra 500 mg BD . He is having cognitive disorders sometimes like greeting us the parent severally in the morning or afternoon. What can we do ? We have virtually exhausted our resources in keeping him. Chijioke Obiako Port Harcourt Nigeria
My family knows not to tell me when I am trying to find a word. It helps me if I describe it. I know what it means, how its used and talking about it helps. However, this is hard because I love my words, I've always been a storyteller, if after describing the word, and trying to remember it by going down different "tracks" my train of thought may have gone, I've taught myself to drop it and leave it alone. It may come or I'll read it or hear it but tearing my hair out only buries it deeper.
I am still struggling with my memory and it is getting worse, I even thought it is the medication and now my son is also having seizures. Could it be the medication that I'm on Valproate acid 800 cr twice a day Clonazepam 1mg at night and Lamotrigine 50mg twice a day.
Good day Doctor. Thanks for the epilepsy and seizures talks. I also started having seizures/epilepsy 15 years ago as a result of fatal motor accident and am also having the loss of memory and difficulty learning my language. I told my doctor he gave me Tegretol, Cognium, Folic acid and on my own am taking reload(women formula). Am also complaining of weakness and I was given Vitamin E. Are they okay for me Dr. ??? Thanks
If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: +1-313-916-8443 Email: InternationalPatientServices@hfhs.org In USA call the clinic www.henryford.com/physician-directory/d/danoun-omar
Dear dr omer, i hav my sister has had history of meningitis in choldhood and after 10 years she developed absence suezure on tegral after that her siezure change into generalised tonic clonic with aira now her aira increase day by day shevtaking tegral and epival but condition not improve, what to do now she is 55 years old.
Thanks Dr, I have this condition when I get seizures and eat sugar, it disappears I was advised to use valproate but I did not work for me, when seizures comes and I also use diazepam it clears it, Dr what can I do
I've been drinking Moringa Powder and it's been helping me, could you research Moringa Powder and let us know if this will help with treating memory retention and helping with finding words that are at the tip of my tongue but difficult to vocalize.
I've been dealing with epilepsy since I was about 12 years old. I'm 32 now. I have a hard time paying attention. Depending on the task. I tend to forget words.Also I have been on tomapax for years .
I am studying Mtech I am going programing at times I need to remember functions if I practice a lot of time they I may remember but in a short span of one month I find difficult to remember
✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment now (for age 16 years and older) appointment.dromardanoun.com/
In USA, please call the clinic
I've had epilepsy (partial seizures) since age 22. I also am a retired Internal Medicine physician.....I retired at age 46 because of my memory decreasing, and seizures got worse due to long hours at work and anxiety. Now I am 64. I've always exercised my entire life, and my epilepsy specialist said that helps me a ton. Most people, even doctors, don't understand the side effects of the meds, how memory is severely impaired, etc. Dr. Danoun, you are an amazing teacher.....this is a great learning article!!! ALL SEIZURE PATIENTS SHOULD READ THIS!!!! Thanks again!!
Glad you’re doing well.
I'm 28 now my seizures began a few years ago at age 24, it's been very difficult keeping work in my life, I go above and beyond my bosses expectations and I've always put all of my care into my work, but my seizures that happen every month make it impossible to keep a solid job to keep my life comfortable and in this economy eventually I get let go from my jobs because of my epilepsy it's getting difficult but I'm staying strong, I'm doing everything I can to put a stop to my seizures, I've gotten sober, I take care of my health a lot more, the seizures stopped for a year while working a construction job but returned, I was feeling hope of being free of my seizures but now I'm back to believing this is a life long challenge I must deal with. Take care, thank you for sharing. God bless.
@@Skoden710you know I got my first one at age 22
They seem to be from hormones and periods very predictable
@@Greencloud8 Mine began after my first neck surgery I had to get half of my thyroid removed because of cancer, then it got fully removed from my neck a second surgery 2 years later, I quit drinking alcohol because I noticed it made the seizures much more frequent and I became hospitalized a few times, I'm now taking Levetiracetam and have started taking Lamotrigine this week because the last seizure I had on the 7th put me in a weird mental state so I'm hoping I can continue to work thru this my doctor has told me he has hopes for me to be seizure free but he told me to be patient, so now I'm staying strong and patient and researching in my spare time
Thank you for expressing this. I have the same issue and I’m 37, it’s hard to get promoted at work even though I’m well qualified but my memory is declining.
Thank you for this video. Ppl don't realize how scary it can be to deal with this, understanding it makes it a little better 😄
You're so welcome!
I've had epilepsy since I was 17, I'm 44 now. The best advice is to keep a journal. Doing it daily is such a big help for me and also for my Dr.
I agree.! I put all of the things that I am going to do on my iPhone. I check it every morning and during the day, and night before I fall asleep. That acts as my journal and my calendar! Because I carry it in my pocket at all times I put all important issues at the time they happen. Basically, my iPhone is my brain!!
I've had seizures for almost 20 years. I've forgotten my Spanish, math, and I need to use auto correct because I forgot how to spell a lot of words. My speech is getting worse and when I talk I have to stop sometimes and think of how to put my words together. I have to use alarms for my meds and write a lot down so I won't forget. I wouldn't wish this on anyone 😔
I understand this feeling but you made it soo far just keep going forward...This is the best you can do ....Take care.
@@lilly-qh8el Thank you 💜
@@Launicachulita well i am sort of in your bracket i fumble with words ,i forget memories i hold dear to me , i forget family and alot of other things .....so i can relate on so many things issues....but i get by....take care keep well...
I got diagnosed 3 weeks ago have had 7 seizures in a month, put on keppra for medication. My mind feels like I'm going crazy, there's times where I can't speak for 30 minutes (other than cursing lol) it's very frustrating. I'm wordy I am developing aphasia, I hope to god I'm wrong tho. Its weird I have adhd so when I take my adderall I have perfect speach and memory but when it runs out I'm lost for words at time. This sucks.
@@forgottenmorethanyoulleverknow my dear friend talk to your neurologist about xcopri. It’s a fairly new drug and it’s helped me. I was able to go off of topamax and thank god I’ve been seizure free. Keepra and topamax are the worst medications to take they make your brain worse. I hope you are able to control your seizures. Took me 20 years but I’m so thankful to god.
Thanks for the video. I've had epilepsy nearly my whole life. After getting diagnosed and put on seizure medication at age 11, I developed a learning disability. My parents and siblings are all brilliant people, so I've always felt like the black sheep of the family. My condition isn't as bad as others, and its under control. Before I moved to Japan, I was taking 500mgs of Lamicatal, but my new neurologist told me that I don't need to take that much. First, he lowered it to 400mgs. Then after a year, he lowered it to 300mgs. Much of my brain fog cleared, and my memory felt stronger than ever. However, I still struggle with remembering daily tasks and responsibilities. Learning to speak Japanese has been a challenge.
the same hear but the difference it doctor only reduce my morning one not night also never gone to japan.
Same here. I also take 500mg Lamicatal and have problem with studying. I think the med made my condition worse. Please please tell me, which medication you use now. 🙏🏼
I could speak with my neurologist about that.
Topamax gave me the worst memory problesu
I take 500 lamictal a day and I really don’t have any side affects
I feel basically like i'm a 10 yrs old. I forget everything after 15 minutes. I feel very very sensible and whiny. I sound like i'm 10 yrs old. At least i look young then is it not so bad.
Thanks for sharing Dr. Omar. After I had back to back seizures (tonic clonic) I started suffering from memory loss (at least what I thought it was). I discussed it with my doctor as it started to impact my job (data analyst) and we decided to go through neurophysiological test. The result was attention deficit disorder and not memory loss. Now I wright everything down and I try to create a routine (for where to put stuff like car keys, wallet,….). I always find myself asking people for their names twice or even three times within the same conversation, this is who I am and it doesn’t bother me anymore 😁.
Yes.. Testing can reveal the cause then the treatment is easier... Thank you for sharing your experience Abdullah
Abdullah, I'm in the same memory boat as you. I just wanted to suggest something that has helped me. It might help you, too.
I repeat people's names and things I'm trying to remember . In other words. When they say something important to remember, I try to incorporate it back into the conversation.
Whenever it's a new person,introducing themselves, I might say. It's very nice to meet you, Abdullah. I'm Effie. Not just it's nice to meet you, too. Before I reply back. I find that it's very helpful.
The act of saying it helps my brain. At least regarding this topic.
Please tell me what I have need to do so that Epilepsy will not cause memory loss
Thank you so much Dr. Omar. My Temporal Lobe Epilepsy is the result of an infection that went from my left inner ear to my Temporal Lobe. It was a large abbess that was inoperable and required two months of IV antibiotics at home. It left me with a large infarction and Epilepsy. Like you, my Neurologist deals only with Epilepsy and other seizure disorders, and he has been a Godsend. My memory disorders mimic early Dementia, and I was scared to death that I had Dementia along with the Epilepsy. My Dr. assured me that my difficulties were Epilepsy and nothing else. It was the most important Dr.,s appointment I ever had. This video confirmed beautifully the things that I experience and exactly why. I look forward to every video! My Dr. told me early on that before long, I would know more about Epilepsy than most physicians. I’m thinking he’s right. Thanks again, Dr. Omar!👍
You are welcome!
I was abused badly as an adult while seriously ill from other illnesses and the beatings took its toll on my body, my seizures are from multiple head trauma that has wrecked my life but recently I was given a way to finally get control of my seizures by surgery at vanderbilt this has changed my life by giving me hope and finally control over this disability
I'm 26 and I have had generalized epilepsy since I was 10. In my 20s I started to develop memory loss and difficulty speaking. I thought I was having dementia but my doctor told me memory loss is normal for people with epilepsy. Normal or not it's still super annoying though. e
Especially considering as a kid I had a great memory.
It is not normal to have memory loss in Epilepsy.. It expected in some cases as we described in the video and how to treat them
Same. I hate talking now. I been epileptic for 19 years now.
Seizures and working it's so hard to remember new things.
I had a meningioma tumor for years but didn’t know- temporal and frontal lobe. My memory was a problem before I knew about the tumor. It’s an issue. Didn’t have seizures until after the surgery- months after radiation. It’s a problem but I am thankful to be alive.
Me too! It was a few months after the surgery, and they had done radiation to lessen the chances of any regrowth. The seizures are aware but they are really starting to reek havoc on my memory and thought process for a couple of weeks after. They are also so exhausting.
I’ve had epilepsy since 1988. So many others with seizures often blame it only on the medication! Thank you for sharing this. I will let people know about this video to help clarify their memory problems.
Dear Dr Danoun, thank you so much for all the very helpful videos. This video specifically reminded me of all the memory disturbances that my grandma was experiencing/her epilepsy started after her stroke.
Your step by step explanations help tremendously with understanding all the different aspects of “what/why/how “ for one living with epilepsy. Thank you 🙏
Yes the info is stored in my brain except I cannot access it right away. I must be reminded. This confirms my thoughts after my seizure. Temporal Lobe client. I know it's my hippocampus being effected. Also having issue with speech. I want to say it. Except I'm studdering. It's effecting my whole day. Depression, PTSD ugh. dont get me started. Thank you.
Same honey same
Stay strong❤
Dear Dr Omar,, I as a dutchy with epileptic have epilepsy since 4 year old,, I left ndl myself with 10 dollar when 18 year old and said lets go to NZ and take on a life challenge and from NZ use the bicycle and take my entire life to cycle around the world and show myself that I can be a great example of the endless opportunities we can take on and show not to spend a second of time on fear,or negativity or hate or all pointless thoughts ,, and guess what now I'm in HK running a international educational platform business, aswell inart, wood work and biology after achieved a PhD in Sydney university in biology and financial law,,. Yes and I left with 10$,,. So everyone please please please endure epilepsy and take on challenge and be happy as it will be of great importance
Does your epilepsy cause memory problems? If so, what do you find helps with the memory struggle?
Had my first seizure when I was 18. Took medication for about 10 yrs then completely stopped taking any meds. I am 43 yo now and have not had any epileptic seizure for more than a decade. However, I still struggle with memory loss and could not remember most of my memories growing up, in school, and even while I was working. Will start to write on my journal starting now, this is just one way to at least recall some of the events happening now that I might not remember at all in the future.
Thanks for the video. I was diagnosed with epilepsy back when I was 18. Been wanting to understand better how seizures mess with my memory and why. Last seizure was last Tuesday then before that, last may then April of last year. 🙁
I love the way he speaks 😊, so nice, sweet, and gentle❤
Thank you so much for doing this video. I have epilepsy with memory issues. I am good when doing certain things but when I walk out of the room I forget it.
Thank you.. I am glad it is helpful
My goodness Dr. Danoun - this video has so many similarities to what I am going through. I have had focal epilepsy (left temporal lobe) since I was 10 years old and I am now 61. I have been prescribed numerous seizure medications over the years and I have occasional seizures, but not tonic-clinic. I just had the L.I.T.T. Surgery at the Mayo Clinic in Jacksonville, FL in November 2022. I am very concerned because I am having difficulty with memory, but the Epileptologist team have told me (even prior to the Sx) that it will take any where from 6 months to 1 year for the brain function to fully heal and for things to be back to “normal”. I have not had a seizure in the past 4 months, but I did have a strong aura last month which is typical for me. I just hope that doesn’t reduce my chances of being seizure free. I am actually having an 8 hour Neuropsychological Assessment in a few weeks for post Sx testing, which is the same test I had prior to the Sx. I will also have a post test Brain Imaging MRI. I am writing because this particular video (I learn from all your videos) is so much like what I am going through, and I am presently concerned about my faulty memory (and heightened anxiety after the Sx) and I want to hear as much as possible about every single thing I can do to strengthen my memory which includes forgetting advanced words when I am talking and forgetting the advanced words I used to know (prior to Sx) when I am reading. I look things up on a regular basis and write them down as that seems to help. Thank You so much for your helpful and extensive information about epilepsy ❤
I’m eager to hear about your progress several months later with LITT. I am just now learning about it. Praying you have seen improvements
I also had the brain surgery for my partial seizures, (at age 26), and it stopped the seizures for 9 months, and they slowly came back. Don't give up!! Dr. Omar D. has written a great article here, and I am doing everything his article included. Even at age 64 now, the seizures are still there every 3 weeks, but it seems that my memory loss is somewhat more slowing down, but don't give up!! Best of luck. I hope that new artificial intelligence might be developed with brain implants .....you never know. Good luck again!
THANK YOU SO MUCH for this video. I have seen aprox 10+ neurologists. I have complained about my memory issues and they all say I am fine.
Glad it was helpful!
I have epilepsy and I struggle with retaining information. I can remember peoples faces but, I struggle with remembering previous conversation/tasks. :/ for other people out there, you are not alone
Thank you for this, before my diagnosis last month, I did not realize why my memory was getting bad, I told a doctor, who prescribed magnesium glycinate supplements, which I found out I am severely allergic to. This video has made me realize how I've been working around this unconsciously through making to do lists and ticking off what I have accomplished as well as printing out a calendar where I write down activities, bdays or even other upcoming things and deadlines.😅
My neurologist always likes to bring this up
Last time he hurt my feelings saying I have brain fog
I’ve only seen him about 4 times in my life he has no idea nothing to compare me to before the medications
Wow! You’re in Michigan! Super exciting learning so much from someone so close.
All of what ur explaining, they"re happening to me, with my memories, oh, they're so embarrasing, it make me cry at times, i went to a friend funeral, then few months, am asking my husband for him, saying i av'nt seen him in a while, this epilepsy is really serious.
I love and appreciate all the content you put out there. I am doing my best to understand my epilepsy. I really need a good epileptologist and am looking for one.
I found irony in the fact that I saw this video and said "Wow, that would be great to watch." When I clicked on it I had already liked the video and I only got through about half of the video. This time I'll finish it. 🙏🙏🙏 Thank you again for everything!!!
Since I had my first seizure 3 years ago, I have memory loss, sometimes I struggle to find words (it was really bad, but a bit better now, but I'm still struggling at times). I forget people's names, people who died, places, etc. I have cried over people who died, which I forgot, so many times the last few years. My biggest shock was some of my favourite musicians and the most recent celebrity I grieved was Heath Ledger. When we go to town and I see people, I'd ask about their family members (who I forgot passed away) and then they're upset and I'm very upset (to hear the news plus the embarrassment I caused). It's very frustrating.
I'm still undiagnosed, the doctors don't think it's epilepsy, but they still don't know what it is.
I'm wondering if I could ask you a question? You mentioned your first seizure 3 years ago....have you had others since? May I ask what kind of seizure you had? My husband had a Grand Mal out of nowhere and we don't know why. The neurologist put him on Keppra 1000mg a day while we wait for the MRI and EEG. Doctor thinks my husband has been having focal seizures for some time and didn't know it until it became a Grand Mal. We both don't agree with him but we want to wait until we get the testing done. He's only had one seizure that we know of and after that Grand Mal his memory is very affected. It's very scary. I hope you're doing well and they've figured out what's causing yours🙏🩵🩷
Of course you can ask. I had 2 Grand Mal seizures in one day. First around 4pm (16h00) and the next one that same night at around 3am (03h00) - sort of the next day, but within 11 hours apart. I've had absent seizures a lot, had a few yesterday (afterwards I pass out and sleep). I've had about 8 Grand Mal seizures in the last 3 years (after the first 2). So about 10 in total. I've had my MRI done in December, so am diagnosed now. I'm seeing another neurologist in May (first available opening) in another city. She's renowned, so I hope we can get me on the right medication and help.
I've been to soooo many doctors and neurologists in this almost 4 years, I can't keep track.
The last neurologist treated me for neuralgia with Lyrica (Pregambelin) and that made it worse. 3 days I have no memory of. I'm on Epitec now (Lamotrogine) and it has had the Grand Mal's under control for the past 4 months or so, but the absent seizures are daily.
I've had meningitis as a child (6 years old) and we think it is related in some way perhaps.
My parents and sister was looking back and talking about it 2 weeks ago and they say I may have had epilepsy longer than we originally thought. We only thought it started with the Grand Mal in 2020. I think that just made us aware of my condition.
I had a car accident in 2012 in town, which has upset me a lot as I'm a racer and been driving since I could look over the steering wheel (I was 5 when I was taught to drive). Anyway, looking back now, I can't remember what initially happened, I can recall when the vehicle started spinning around and then rolling on it's roof. They suspect I had at least a type of absent seizure there, because it was a straight road, in the speed limit of the city (luckily no other cars or people involved). So it's really weird.
Plus throughout the years I had moments where I fell, for no reason, a lot of stuff I just can't remember.
One time when we lived in New Zealand (for a couple years) my Sister and I was travelling on the highway, I was driving. Next what I remember is that we were standing in front of KFC, I asked her "what are we doing here, are we hungry". She said I was feeling unwell and I turned off the highway to the nearest place (KFC) and stopped the car. I had no memory of it. It was very weird at the time. Luckily I didn't lose consciousness on the highway!! But there's a lot of these small "incidents" that we just said oh it must be stress, low sugar, etc. In actuality, we think they were absent seizures...
My memory is severely affected. Also I struggled to learn in school. I just couldn't study. I paid attention in class and went on "general knowledge" through school. I was great at math, economics, auditing, etc, because I understood it, but things like history I had trouble with remembering and other subjects where you have to go on information, repetition, etc.
I can write a sentence a 100 times over and still not know what I've just written!!
I'm so sorry to hear about your husband. It's a very scary thing and A LOT of fear (for the next one and when is it going to be), a lot of changes you have to make, no driving 😢 , family and friends who must adjust their roles and expectations of you. Your bad days... etc etc. Hope you're getting results soon. Keep me updated please 🤗🌸✨️
Ty for this video, this helps a lot
Now I know to keep a journal with me at all times
I’m epileptic as well and I struggle with my memory a lot
I will easily forget what I was talking about in a conversation or what I was going to do
I have to be reminded constantly
i know this is an older video now but i have tonic clonics every 6 weeks roughly. I wake from a seizure and usually only know i had one due to my surroundings or someone telling me. The seizures wipe alot of memories that are close in time with it. To help my memory i play sudoku and other brain games that require using memory. Meditation and clearing my mind is the best healer for me. Recalling words and memories is for sure the hardest part for me. I have noticed though since my epilpesy started (in 2020) I have more ability to recall childhood memories and much more vividly than before. My mom use to be baffled when i told her i hardly remembered elementary school before i ever had a seizure, but now i can remember the whole school layout, the play ground, recall specific memories that felt like huge impacts in the moment but faded away fast in adulthood
Thanks for this video. Unfortunately my night frontal partial epilepsy changed yesterday. Kinda feel like lost three whole days of my life. So thank you for pointing it out.
I exactly have the accurate symptoms. Thanks for the advices
A Lot Of Times I Remember Being At Computer, & Waking Up In My Bed & Ask My Mother If I Had A Seizure , & She Says Yes.
After learning about the neuro- chemical mechanics of how simply running out all reserves of Vitamin B is what causes an alcoholic episode to result in a total "black out" (all bodily functioning continues yet no memories are recorded) i tried to supplement up my own vit B (especially B¹) stores. & THIS HELPS ALOT.
Idk what my 'seziures' are technically called bc they are the result of a left frontal lobe centered TBI- & therefore my sexiures don't outwardly LOOK to anyone observing like a seizure meanwhile im completely arrested by whatever is happening inside my brain when they are going on.
I could be in a meeting, appearing to all to be listening to everything that is happening in front of me, yet i couldn't recall WTH went on, at all even if offered a million dollars for that data.
Thanks for the info.
In having the exact same troubles. I out something down, then ,, 30 seconds to 5minuts later I forgot where. Then spend hours looking for it,also. You made me hungry 😊
i thaught i was getting early on set dementia i’m so forgetful , thanks for letting me know it’s my grand mall seizures🙂🙏🏽💯
I have had three Seizures over the past year and a half. I am 72yrs old. Two were night time and one daytime. I was put on Levetiracetam which seems to have helped. Since then I have some memory problems. I have also been told I have had a heart attack in the past which was many years ago from an accident that caused a left arterial thrombosis in my mid 20's. I do suffer from occasional near blindness and numbness in my left eye and head which became very noticeable in the early to mid 80's and continues to this day. I was recommended for heart valve replacement back around 2013 but the surgeon told me I was not ready for one at that time. Since having the Seizures I have been studying up on them. I may have had a Seizure shortly after the thrombosis because as I recall their was a time for several minutes I was aware of everything around me but I could not move or talk. And over the years I have woke up in the morning realizing I had bitten my tongue or cheek and have blood on my pillow. My wife tells me I snore at night because I lay on back.
To date, I have undergone 7 neurological procedures due to a very large posterior fossa cyst and I have a VP Shunt in place. I have always had a dire memory. My short term memory is in a poor state, yet my long term memory is pretty good, ie I can’t remember what I did an hour ago and, yet, I have a pretty clear memory of things that happened when I was a child.
After my 4th seizure over a year ago it took a long time to recover and to remember otherwise simple things. Very scary and discerning for a while to say the least
Yes, my doctor is ordering some therapy and baseline assessment for me. It’s the scariest part of my seizures. I forget lots of my memories around them
God yes. I have to have no sound when I am trying to learn anything. Sometimes it takes me awhile to recall. I have been an epileptic for a year and a half from TBI. I have been trying to finish my masters and am frustrated beyond your imagination. From your videos I have learned a lot more than the specialist and gp have taught me. Thank you
Thank you for sharing your experience
You are a megastar please keep your videos coming , they’re a. Pleasure to watch and learn xx
Thank you!
Hello Doctor, thanks for your videos.
I had my first tonic clonic seizure last year at 25 years old. It is apparently because of an insular section of my temporal lobe. Thankfully after a few months of medication trials, I manage to get some control over it and I haven't had a seizure for 5 months (unless I forgot some). Unfortunately I do feel like I lost a lot of memory of time (pretty much my entire 25th year). Overtime, something That I found helps with my focus was playing a videogame that requires a lot of focus. Overtime I feel like i've managed to regain some memory and focus capabilities. Another trick that I've found helpful is listening to audiobooks as it requires a lot of focus on semantics, syntax, grammatical structures, and so on.
Again thank you for your videos, I have found them very helpful in my situation
My experience with Bacopa monnieri not only helped short term memory but stopped seizures for nearly 6 months.
I would like to thank you Dr bringing light on this subject.I am on multiple AED since more than 20 years. Though I completed my graduation and masters in Accounting and Auditing. It was very difficult for me to remember theory subjects.
My wife was diagnosed with epilepsy 2 months ago and has had memory loss every week (sometimes every day) for 4 months.
Her brain goes back in time. When she loses her memory she believes she is in a date in the past and all she remembers are just things she experienced up to that date. She goes back in time to 2, 3, 5, 10 years ago, forgetting everything she has experienced since then (daughter, friends, work, marriage, etc.). I am recording everything in as much detail as possible and I cannot find similar cases on the internet or in scientific studies.
After a good sleep (night sleep or a sleep of about 1 hour during the day) her memory returns 100%.
My first siezure, at 26. I think this is the correct medical terminology, it was what is called a doozy. It happened 1987, 4 weeks post Lumbar Laminectomy, very successful. Prior to the surgery I was put on Prozac, the shiny new med that could cure everything. Over 6 months and despite my saying I'm not depressed, just fix me, I was on 4 meds after the prozac, the last being Ludiomil. They all caused some type of CNS type problem from tremor to shaking, mid speech my throat would just lock. My gut told me to just stop taking it, lie. But I was trying to be compliant. I have epilepsy because the makers of Prozac wanted more money and despite the fact Ludiomil was known for seizures, an antidepressant was part of the popular regimen. That first seizure took 3 years of memory. I have problems with seizure meds. I prefer having white bloods cells always to having a bitch of a seizure every 6 to 8 years.
Absolutely have short and medium term memory loss. Everyone around me tells me I'm just getting old (41!) mostly just joking, but it's really dejecting.
I have tonic clonic seizures. I try and write everything down and keep to a schedule. I have difficulty with faces names etc and making connections to information.
I find that since I'm on the keto diet, my memory has improved, but still on some occasions I forget words. I'm on no medication for epilepsy, side effects bad.
I’m finding that I have to write myself notes for important events or necessities and tape them to my bedroom door. I leave my medication bottle in a certain place and then remove it after being reminded to take my med. Do things while they’re on my mind.
Some times I’m so frustrated because I can’t remember what I was talking about or words or I repeat things . I was diagnosed with epilepsy a year ago. I’m taking my meds but keep having seizures at mostly at night. It’s very frustrating because you don’t feel like you used to anymore and people don’t understand. Especially after a seizure how it takes a toll on me.
I am an epileptic and has a temporal lobectomy 7years ago,my memory with proper nouns are getting challenging. I am a programmer by profession but I don't forget my codes or variables during programming. Will love to get any memory boosting activity.
Yes verbal memory is affected in temporal lobe epilepsy surgery... Treatment can be with speech therapy for alternative pathways to solve the problem
@@DrOmarDanoun Thanks for the guidance,can i get a bit details about source of such therapies?
This is the first time I'm hearing the same symptoms of my memory from my seizures WOW 😳
I’m 48 and I have frontal lobe epilepsy. All my seizures have been nocturnal. I’ve found no matter the medication I’ve been on, word recall has always been hard. Trokendi seemed to be worse medication when I was working in a high pace, on my feet environment where I needed to respond quickly. All of the medications have made me fatigued.
Hi! I am on the same ride as you are! What kind of medication are you on right now? How many seizures do you have on a monthly basis? Do you know when you are about to have one? It is frustrating but still glad it only happens at night. All the best!
@@zsoltferencz5407 Mine are controlled for the most part. I only have clonic-tonic seizures about once every 2-3 years now but we’ve found I must stay on medication. I do have small 10-20 second seizures where I space out right before my monthly now since I’m “aging”. I usually get a migraine the day before or day of. When I have the tonic-clonic, it’s almost always during a time of stress overload, time constraint where I haven’t taken my medication at the same times daily and working too much and/or I’ve taken something to lower my seizure threshold. It’s usually all in combination. Usually, I’ve got so much going on during that time in my life that I probably could see the signs but tend to ignore for everything going in my life at the moment. When I’m not overwhelmed with activities, work, life or whatever it may be I try to set an alarm on my phone to take my medication at the same time daily, I eat as clean as possible with at least one large leafy green salad a day, take way more vitamins than my husband likes ($$) and do my best to not overwhelm my schedule because I know what that does to me personally. Oh, I’m on zonisamide and keppa. Thank you and same to you.
@@k2reeves thank you for taking time to reply. Yeah, same for me. If I am stessed, or not being able to sleep at least 6 hours high chance I will be having a seizure shortly. I am on lamictal 100-100 and 200 before sleep but if I am really tired sometimes meds can't help me either. Also based on your experience do you have a problem remembering stuff. I am not saying it happens a lot but sometimes I want to go to the kitchen to grab an apple and until I get there, like 3 seconds I forget what I wanted to go to the kitchen for. Should I be worried about this? Is this a start of Alzheimer or just a simple side effect? Have a nice day 😊
I am 47 years old nd my epelipsy started when i was 20. it makes me depressed especially. when i made a mistake i feel like im being lost or something about emotional depression that leads me to give up.
@@zsoltferencz5407 do you have problems with short term memory ..ie forgetting what you just read , going back over what you have just read , and later not recalling whar you just read .or if your organizing things but immediately forgetting .what or where you have put them...I have nocturnal epilepsy, I'm on 400mg of lamictal (Logem a generic) and 10mg of Clobazan at nights...the short term memory thing is really hard work for me
Going to "build a second brain" (concept/book by Tiago Forte) basically a productivity system.
I have seizure frequently but not fall down. Recently I forget lots of things. I also couldn't find the words to say. I am suffering a lot. Feeling helpless. Day by day getting so depressed.
Let me know if you have memory problems with Epilepsy... You can ask me any questions about epilepsy and seizures
My brother has epilepsy and he's been taking drugs from last 4 months but now he is facing memory problems. He suddenly lose consciousness and forgets everything happened earlier
Sir i have epilepsy problem whenever I got attack I lost almost 1 hr memories..
Example I'm living alone today I wokeup i felt some laziness then I look for my mobile suddenly I see it was kept in charging but sleeping time I didn't kept then I realized actually I was wokeup n kept in charging but I lost my memory
The anticonvulsants cause memory loss faster and more severe than the seizures do. In 2020 I increased the dosage of one of my meds and immediately it was as if I was suffering from dementia while experiencing the ticking that a drug addict coming down off an addiction would be experiencing. The ticks went from 1 per day to 4-5 per every 3-4 minutes. I've noticed that every 4 years I have to lower the dosage due to side-effects. Based on my understanding of how anticonvulsants are digested, I'd guess I'm suffering from fatty liver disease and every 4 years my liver detoxes to make room and improve liver function. I've tried to convince my practitioners of my concerns for my liver but, they all ignore me and without doing any reputable tests other than ALT, AST, BILIRUBIN. The bilirubin has been at concerning levels each time. Each practitioner says the same thing: Your liver is fine. That answer avoids answering the question. I've spoken with 4 practitioners over the past 2 years.
I'm epileptic and can't remember things happened back plz help
I'm epileptic and can't remember things
Yes I have memory issues at the moment they want me to talk to 3 physiatrist and take memory test. But this whole process really makes me think of my past and puts me in a negative mindset
I've Always Had Memory Loss For Going On 40 Years, I Always Tell Other Epileptics To Carry Notebook & Something To Write With So They Can Make Notes So They Don't Forget.
Hey thanx for the detailed video. My sister has TLE and recent MRI suggest MTS. I have seen that her memory is in general fine when there is no seizure, but with every seizure there is some memory loss. She is on
1. Brivaracetam 200mg
2. Lacosamide 400mg
3. Clobazam 15 mg
Note that clobazam 15 mg helped stopping her seizure which in turn helped with memory. Can you give guideline how we can improve the memory by changing our life routine ?
Multiple tricks can be done to help memory like keep a journal and listing everything and keeping a routine... Seeing speech therapy helps with memory organization
I have focal epilepsy, and I guess I have an attention problem. It interferes with my work (I am a medical doctor), but also at home. I often mishear things, or remember them wrong. My daughters sometimes percieve this as me not being interested. And that really hurts, for that is definetely not the case
My dr upped my vimpat to 400mg twice a day it made me really sick dizziness and just sick to my stomach. I've had two seizures in 1 months .I'm thinking it not for my.
Thanks for the video u.s army vet here Epilepsy
Epilepsy meds can cause memory loss especially over the long term. I read how Carbatrol can cause dementia, possibly others over the long term can too. All these meds must have side effects we are not told about.
Yes there are some limited articles about this but the reliable studies showed no association between antiseizure medications and dementia. Yes it can cause memory loss but not dementia
Hello Dr Omar. Am just 26 years of age, for years now I have been struggling with seizures that occur in different forms, my very first experience was nocturnal, then it moved down to absent seizures (here I completely loose consciousness). Presently I have more of nocturnal seizures, involving jerking and mouth injuries.On very rare occasions,I experience seizures during the day. Now I find it very difficult remembering things such as past events, people and names, movies have seen,and discussions. Getting standard medical care here in Nigeria is a problem. My life is really annoying, please any guide or help from you would really be appreciated, thanks.
Correct.. Seizures can affect memory. There are many videos on the channel to explain epilepsy and you can discuss these treatment options with your neurologist
I do. I am terrible. I forget words all of the time and forget so many other things. -_- I'm lucky you're my doctor!
Yes dear I'm also forgot certain time certain words.. When I want to call my niece nephew I forget his/her name 3-4 sec to remember
In discussion with anyone I forget the common words to describe
I'm 31 yrs old still unmarried I don't to lie with anyone n in the selfish world who will accept me with this fact
Snap 🙃
Thank you I struggle with memory I don't even read or write on the same level since I had a seziure June 12 of this year. I am waiting to get into a neurologist my appt is not until Nov I been thinking I was losing my mind. I'm only on keppra idk if it's helping or not. I've not had a pass out seziure since about 17 in one night June 12 2022. I was thinking maybe keppra was making me worse. I thought of stopping meds but I'm so afraid to have the grand Mal kind again. I choose to wait till I see neurologist. Thanks tho this video helped me so much thanks for your time on this. GOD BLESS YOU 🙌 🙏
Yes wait until you see the neurologist. Glad the videos are helpful. Feel better soon and have a great day
I have memory issues like you said finding words, reading words which are not there, making linguisitic mistakes, not remembering places or people. I experienced lately that I went to visit my doctor and I knew that I have been to that places before but this time it felt like i have never been before. Even I didn't remember my doctors face. What I do in order to remember is to write notes on my phone and any behavioral change. For example I had seizures and my seizures which are mostly during sleep so this time when it happened people started to look similar to each other. I was unable to differentiate. It felt like I know them from somewhere and it was scary and emotional . I also had personality shift for example I somehow build a new interest in math and language. My epilepsy as its recently Discovered so I just started medication but there is another issue. I have osteoporosis and got spinal surgery due to multiple fractures that put me on usage of oxycodone for the past 3 years. I think that medication which I have stopped using couple of weeks ago influenced not my behavioral change but worsen my epileptic stage.
I have a hard time and very foggy memories around the seizures as well. Oddly I feel stuck in my 1970 memories. Weird how the pop in so much.
I have epilepsy and I don’t remember anything after this last one. It has me really scared
Can you discuss Rituximab? How it works and the dangers? Thank you so much for all of your helpful videos.
Hello Doctor, I am currently taking Levetiracetam 1,000mg twice a day. Does this medication affect my memory loss? Thank you
Speech pathology for a year. I write lists if I have a lot to remember. Keep my meds in my pocket and anywhere close by. I understand it is the result of severe trauma and accept I will be a rancho scale 6-7 now. They told me it would take time for my brain to rewire. Maybe never at all.
I have expirienced some memory loss...I am in my early 50's, epileptic since about age 14, on 4 different meds...
I am 58.l have had epilepsy for 34 yes l had memory loss but this was corrected.
An old medication from many years ago for morning sickness called Bendictine. Did that cause epilepsy?
I have epilepsy seizures since 15 and I do forget alot of things mainly when I've had one the ambulance ask say where are you what have don't no where are you don't no then after afew more mins I speak answering questions so much the they do bits and bobs in ambulance
My 19 year old son started having seizures at the age of 7 due to mennanghits that occurred 3 months after his Liver transplantation.
Currently, he is on keppra 500 mg BD .
He is having cognitive disorders sometimes like greeting us the parent severally in the morning or afternoon.
What can we do ?
We have virtually exhausted our resources in keeping him.
Chijioke Obiako
Port Harcourt
Nigeria
I have partial aware seizures and I have annoying amount of trouble with my memory
Can you suggest some brain excercise to improve memory
Should I be inspecting trains with complex partial seizures?
My family knows not to tell me when I am trying to find a word. It helps me if I describe it. I know what it means, how its used and talking about it helps. However, this is hard because I love my words, I've always been a storyteller, if after describing the word, and trying to remember it by going down different "tracks" my train of thought may have gone, I've taught myself to drop it and leave it alone. It may come or I'll read it or hear it but tearing my hair out only buries it deeper.
I am still struggling with my memory and it is getting worse, I even thought it is the medication and now my son is also having seizures. Could it be the medication that I'm on Valproate acid 800 cr twice a day Clonazepam 1mg at night and Lamotrigine 50mg twice a day.
Dear Dr Omer.
Thanks a lot for these nice videos.
Would you please give me a name of a book to help me understand how to read EEG?
Yes.. There is a whole video on best books for EEG
Thank you Dr omar
Good day Doctor. Thanks for the epilepsy and seizures talks.
I also started having seizures/epilepsy 15 years ago as a result of fatal motor accident and am also having the loss of memory and difficulty learning my language. I told my doctor he gave me Tegretol, Cognium, Folic acid and on my own am taking reload(women formula).
Am also complaining of weakness and I was given Vitamin E. Are they okay for me Dr. ??? Thanks
I can't provide medical advice online without evaluating the patient in my clinic. Please discuss with your neurologist
If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays
Phone: +1-313-916-8443
Email: InternationalPatientServices@hfhs.org
In USA call the clinic
www.henryford.com/physician-directory/d/danoun-omar
This is very interesting.
I'm excited!
I have suffered from seizure 2 times, but I feel the aura almost everyday. What can I do to prevent the feeling of aura.
great info
Dear dr omer, i hav my sister has had history of meningitis in choldhood and after 10 years she developed absence suezure on tegral after that her siezure change into generalised tonic clonic with aira now her aira increase day by day shevtaking tegral and epival but condition not improve, what to do now she is 55 years old.
I definitely 4get things. I haven't done anything about it and I have had epilepsy ever since I was 2 yeas old
thank you.
Thanks Dr, I have this condition when I get seizures and eat sugar, it disappears I was advised to use valproate but I did not work for me, when seizures comes and I also use diazepam it clears it, Dr what can I do
I am actually afraid of my future memory loss 😢
I've been drinking Moringa Powder and it's been helping me, could you research Moringa Powder and let us know if this will help with treating memory retention and helping with finding words that are at the tip of my tongue but difficult to vocalize.
I've been dealing with epilepsy since I was about 12 years old. I'm 32 now. I have a hard time paying attention. Depending on the task. I tend to forget words.Also I have been on tomapax for years .
I had surgery on the hippocampus. It gave me short-term memory. What area could be storing the memory now? I remember things from many years ago.
Heloo dr Omar, wanted to inquire optifix tablets while on tegretol..thanx
I am studying Mtech I am going programing at times I need to remember functions if I practice a lot of time they I may remember but in a short span of one month I find difficult to remember