My Amputation Is Having Serious Issues AGAIN! 😢
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- Опубліковано 13 лют 2020
- My residual limb (stump) has developed issues for the past few weeks...and nothing seems to be helping. I headed up to Denver to try to find answers.
#amputee #amputation #prostheticleg
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MY STORY //
Fourteen years of pain and failed ankle surgeries brought me to 2018, when I made the difficult decision to become a twenty-seven-year-old below-the-knee elective amputee. This channel is to document my journey of amputation surgery, recovery, and reclaiming my life.
MY PROSTHETIC LEG:
I use the Ossur ProFlex XC Torsion foot/ankle with a direct socket with passive vaccum suction.
MY AMPUTATION STORY - IN VIDEO:
Why Did I Lose My Leg? • HOW I BECAME AN AMPUTE...
How I Said Goodbye To My Leg: • COME WITH ME ON A GOOD...
Seeing My Amputated Leg for the First Time: • Seeing my amputated le...
Day in the Life of an Amputee: • A Day in the Life of a...
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![Walking into a hospital & leaving as an amputee: my amputation story [CC]](/img/n.gif)
Even tho you like your doctor, I feel like it's worth getting a second opinion about that growth spur. I mean if its right in the area that hurts, makes sense there would be a connection, especially since its gotten progressively worse... as in the longer these spikes grow, the worse the pain?
This. My father had a btk. We moved and he got a new doctor and ended up needing a revision. The second surgery was so much better than the original one. Even the best doctors can make mistakes.
Bone spur is a huge possibility and it could also be a neuroma, which also sucks.
Allister Trudel my work accident was in 13, I got post surgery infections. Mrsa, psudemonas and 2 stapes....my original orthopedic surgeon did 7 surgeries on it...finally being in incredible pain I sought out a new orthopedic surgeon after reviewing both new X-ray and my records he recommended a immediate bka the bones were brittle and no blood flow...3 days later it was amputated, I now have a excellent prosthetic leg and little or no pain
i agree with Allister, I think a second opinion is not a bad idea. Sometimes a fresh look is good. i have complex sleep apnea. I went to 3 neurologists before we got an answer., and a Dr who could explain why. Then on to 3#5 who I liked and really wanted to work with me. That was 16 years ago. I want to share with you my HS track coach motto." When the going gets tough ,the tough get going." you in so many ways bring that motto to life.
Completely agree. Even good doctors aren't perfect and most of them have God complexes. The fact that the pain isn't in the exact right spot makes sense because they do their best to put nerves back where they should go during amputation but they are often an inch or two off. Sometimes instincts are wrong but I trust my gut more than most doctors and it hasn't steered me horribly wrong yet.
Here’s another vote for: Get a second opinion or even a third. You know your body. No amount of schooling is going to make a practitioner know your body better than you. I’m sure he’s a great doctor, and I’m glad you like him. But it’s nothing personal if you see someone else for a professional opinion. Happens all the time.
Good luck. Hope you find an answer with an easy, effective treatment!
Actually doctors know more about your body than you. All you know is how it feels.
Definitely get a second opinion. ❤️ yourself.
@cowpokeone I agree with you 100%. I know I’m really late to the party here, Jo, but definitely get another opinion. It wouldn’t hurt (pun not intended!)
I have had the exact same issue. There were no visible marks or sores on my stump, not so much as irritated skin. In my case it was a nerve that was being pinched between the residual tibia and fibula so it hurt even when I wasn't wearing my prosthetic.
The way it was described to me is the severed end of the nerve tries to reconnect and ties itself up like a ball of string. This is what causes that fuzzy feeling and burning sensation as your brain is trying to interpret the signal which is short circuiting itself.
I had a series of steroid injections into the end of my stump (three if memory is correct) that cleared it up. They do it under a local anaesthetic guided by ultra-sound now so it doesn't hurt. It's been twenty odd years and I haven't had any problems since.
Cramaine that’s really interesting, sounds super painful and, as a chronic pain patient, I’m so sorry you had to deal with that! I’m curious if this is still a possibility with Jo since she had the Reinnervation done with her re amputation since technically they’re supposed to have taken the severed nerves and reattach them to other intact nerves making it less likely to have phantom pain that I’m sure you know a hell of a lot more about than me lol ♥️ I hope you’re doing better now and that it’s an easy fix for Jo as well!!! Happy Valentine’s Day!!!
@@MandieZangora Compared to the pain you endure in the first two weeks after amputation the pain was pretty mild. It was somewhere between a really bad toothache and hitting your thumb with a hammer but almost constant. It's been about 23 years since I had the steroid injections and I haven't needed to have them again.
My advise to anyone, amputee or not, is always get a second opinion before letting surgeons cut into you. Surgery is the likely outcome sometimes but limbs don't grow back no matter how much you water them! So it's always a good idea to try the less invasive options first.
Hey Jo! I just saw this video. To remind you, I'm a below the knee amputee since last May and had received my prosthesis on Halloween (cool anniversary, no?!) of this past year. So it's been about 3.5 months that I've had my prosthesis. I had pain pretty similar to what you described and in more or less the same area. The pain is hard to describe but for me it was almost like someone was taking sandpaper to my nerve endings. The pain would only happen to me while my liner and prosthesis were on. At times, it would happen right away after donning my prosthesis and at other times it would take an hour or three. My wife and I go to an amputee support group every month and so at one of the meetings, I told a peer about this pain. He told me he had the same problem and to remedy it, he wound up putting Gold Bond Friction Defense on the affected area. This Friction Defense is like an underarm stick and leaves a thin film that reduces friction on the skin. It's for times when you have pieces of clothing that rub on sensitive areas. Anyway, this helped tremendously to reduce and practically eliminate that pain. My guess is that when one's residual leg starts changing shape inevitably, the silicone liner rubs in ways that it may not have used to. The area at the end of our residual legs are very sensitive and so it might be that your liner is now rubbing on it if you position it in certain ways. This would explain why the pain happens when your leg is in certain positions and why it doesn't get better even if you don't use the prosthesis for a while. The Friction Defense is only $5 a stick. BTW, I use the same brand liner you use, an Ossur Icecross brand liner. I hope this is the source of your pain and that this hack works for you. Let me know how it goes! Best of luck! -Avelino
Avelino i feel like this definitely needs to be a top comment. Hope it helps her!!
Jessica thanks! I was really thankful to the peer who suggested this to me!
hi :) i am a prosthetist from Germany. when you put on your liner do you extend your knee all the way before pulling it up or do you roll it over your knee at a slight angle? i had similar porblems in the past like this because when you put the liner on with a bend knee and then strech it, it creates kind of a pull on you calf muscle which can cause agitation at the tip of your tibia. just an idea, maybe it helps :D excuse my terible english ^^'
That is very interesting I am going to try that!
and your English is great
Thank you :)
Your English is better than most of who Yahoo pays to write articles! Lol's.
@@crapgrabcrab5573 Seriously you're english is fine. You just have a few spelling mistakes which everyone makes
Just leave it up save yourself some time in December. The tree ain’t going no where and no judgement here love your positivity energy and the channel is great.
My daughter just took mine down for me. I take comfort knowing that the Queen of England leaves her family tree up until February too.
if your tree makes you happy leave it up all year
Mike Ritchie I buy cheap ornaments online and just change out a few of them depending on time of the year! I have depression and decided a couple of years ago that my tree makes me happy so why not leave it up! Why not leave something that brings me at least a little joy? :)
Desirae Bedgood absolutely what ever makes you happy is what you should do good for you and if it brings you joy then thats amazing 😉
Just throw eggs on it and its an Easter tree
You are a blessing in disguise for me, me husband just had a below the knee amputation and YOU have helped me so much! I can’t thank you enough for everything you do! God bless you
Ya seriously, just put decorations on it for the current season. It's just a glorified potted plant. I really hope that your leg issue can be resolved. Im sorry you keep having hard times 💕
Jo, Im dying 😂😂 our xmas tree has been up for 14 months. We never took it down last year and it looks like it'll stay up this year too. It makes decorating very quick in December
XD how do you keep that thing clean XD
Welp-
Oh my! 🤣🤣 Our tree has been up for a good while. With being sick etc, why bother putting it away? I know it sounds lazy, but it's where I'm at right now. And being a caregiver to my husband, I get it big time!
@@Treespiritofficial we dont😂😂 theres spider webs that we have to clear put every day and the cat loooves to chew on it. Its seen better days but you know oh well
@@lizzieturbeville4089 yeah! My dad has health issues so he doesnt feel well enough to do it plus he works full time and my brother and I both have hw so its hard to fit it in along with having a 4 year old brother who is suuuuper not helpful 😂 it works. It adds light and cheer and doesnt take up any extra space
Jo, get they to another doctor, I had the same type of bone spurs in my residual limb and my doc smoothed them out and they never came back and yes it takes another operation. I my case it worked just fine. Mine was a stabbing pain and was just terrible.
lol my family kept our christmas tree up for 9 years straight. it was a great lamp
I always keep the Christmas decorations up until, at least, mid January, I just took down the outside lights yesterday, and my mini tree is still on the table!
I feel so bad that this is happening while you're getting off meds. That must be extra difficult. Sending you lots of love and if you need to talk to someone my Facebook is the same name as my UA-cam. ❤️❤️
I hope everything resolves quickly!! I'm sending you positive vibes, love your videos and your energy!
Okay, I just found your channel and I am very inspired by your energy and positivity. With that said I came across this video and felt inspired to tell you two different stories about my brother and experiences we have had with doctors. When my younger brother was 11 he was on his bike and ran into the back of a truck while on his bike. He fell behind the back of the truck and was then ran over. This injury confined him to a wheelchair for the rest of his life with multiple issues including a sever brain injury. When he was first in the hospital he had an amazing surgeon that worked with us over the months and years whenever my brother had issues or needed another surgery for rods/implants. (we joked with my brother that he was a cyborg because of all the implants and metal in his body). I tell you this to give context to the two stories I am about to tell.
First.. fast forward years later and we generally worked with the local physicians to alleviate issues that arose with my brother. One day my brother started complaining about pain in his knee (the brain injury slowed his cognitive abilities and he was non-vocal) so we had to play a lot of charades to find out what he was trying to tell us. We knew that he had pain in his knee because he kept grabbing at it and cried in pain. We immediately took him to our local physician and upon examination we were told to go to a pain clinic because they could find nothing wrong with the knee. They felt that he was just having pain from being in one position too long.. or just cramping up. The pain clinic was helpful, but it ultimately did not fix the issue and we found ourselves back in the physicians office. This time they referred us to the local hospital to take x-rays of the knee, and upon examination of the x-rays NOTHING was found! This just dumbfounded us and we were given some other meds/solutions to try and ease the pain he was feeling. Another week would go by and the pain seemed to be getting worse ...((have you noticed the similarities already))... We once again went back to the physician and my brother was examined again. They laid him on the table and tried to do some range of motion exercises and he just screamed in agony and he grabbed the knee the whole time.
By this time we and the doctor was perplexed! It was at this time that my mom said enough is enough and we made and appointment and long drive to the city to see his original surgeon that has seen over his many more complicated surgeries. Now first off let me tell you about this doctor.... he would be what you call the doctor of doctors and just simply KNEW HIS S**T!! Upon first consultation we explained the long road we had been on for the past month and a half and could not find out what was going on. THIS doctor KNOWS what has already been done and decided to ignore the basic assessments made by THREE OTHER DOCTORS.... He sent my brother up to get x-rays and did not take one of the leg OR knee. A few hours later this doctor found out the issue!! Turns out the first x-ray he wanted was of the hip area and low and behold he had femoral neck fracture!! This doctor explained to us about "radiating" pain and how the body can do weird things because of how we are wired. We were dumbfounded and needless to say we switched primary care physician. We had no idea how it happened, but my brother had to endure yet another surgery to put a screw into the ball through the femur.
The second story is very familiar but instead of multiple practicing doctors it had to do with a bunch of interns AT THE SAME TIME!! There was another instance where we were back in the city with this SAME doctor who at the time was training a group on interns. My brother had been throwing up and having a hard time breathing, but his NEW local physician immediately recommended us to visit the hospital for x-rays. We simply decided that we wanted to just go to the city again so we could see the surgeon that knows him best ;) As you can imagine we have a good relationship with this surgeon at this point as he has done most of my brothers major surgeries and literally saved his life when he was first injured. With that relationship we converse with him like a good family member. He told us a funny story after examining the x-rays.. He said that he took this visit as an advantage to test his new interns, and allowed them to view his x-ray of the chest. While in the room he asked the interns what they noticed about the x-ray and give some diagnosis. There were 5 interns and they all gave different/same diagnosis based on what they saw. Some said they noticed clouding in one area while others noticed past scar tissue/white clouding in other areas. Whats funny is that his Surgeon took a sharpie marker and circled a very bright oval spot on the x-ray and asked them what they thought what it was. They all THOUGHT/ASSUMED it was a monitor patch hooked up to monitor his vitals.. LOL turns out... my brother had accidentally swallowed a quarter and that's what was causing the weak breathing/vomit. Again.. something simple missed by multiple interns. It does not mean they will be bad doctors it just shows that we cannot and should not just accept what "seems" to be the problem. I am sure those interns walked out of that room with a completely different way of thinking and hopefully realized that its easy to "overthink" the situation. Sometimes the simplest explanation tends to be the right one!! YA KNOW... like sharp bone spurs possibly digging into soft tissue....!!!
But the main plot to this story and why I wanted to tell you is that this type of stuff happens WAYYYYY more than anyone thinks and much of it is a product of lacking the ability to think outside the box AND fear. Fear because of needless malpractice lawsuits. I believe there are many who would rather just pass the problem off to someone else instead of make a bad diagnosis and risk rebuttal from the patient or their peers. I am not trying to paint doctors in a bad light, because there are many good ones out there with very good intent to help their patients. BUT IN THE END... its YOUR BODY and nobody knows their OWN body but themselves. When you go see a doctor you should both be trying to diagnose. You should both be trying to figure out the best diagnosis and think outside the box. In closing..the best way to think outside the box is get MULTIPLE opinions and never be content with the decision of one person if you know something does not feel right. It can lead to bigger problems down the road ((my brother is lucky he did not have to have a hip replacement)).
My brother has since passed on.. This last year he was involved in another accident when he was hit by yet another drunk driver and ejected from the van and his wheelchair and killed instantly. My parents and another brother we injured as well. I tell you this because he was a special kind of brother.. he loved to help and teach people how to overcome adversity and heaven forbid... with the use of some dark humor here and there... I am always amazed at what some people endure and post about their progress on UA-cam, and I feel you do it in a very good way and with a special light. Keep that up and realize that in the end.. take it one day at a time AND things will work out with combined thinking!
Happy Valentines Day.. from your new subscriber!
Doctors are great, highly intelligent, and human! Sometimes they forget that. Trust your gut because it's usually correct......
I've been binging your videos. It's incredible all you've been through. I haven't gotten to recent videos, but I hope you are doing well now 🤞🏼!
Thank you for sharing! I appreciate you taking us along and truly wish you relief soon! 🙌🏼🐰
Hi there! I only found you recently, as one of those random UA-cam recommendations that have absolutely no connections with what I usually watch. First off I’d like to say that you’re a really amazing person! I can’t quite put my finger on what it is, but you always come across as articulate and calming no matter what gets thrown at you, and I find that really admirable. I’ve recently been coming to terms with some stuff in my life and your mindset has been really helpful, even though the issues themselves are nothing like what you’re going through. I guess this is my really roundabout, rambling way of saying thank you for what you do, it really does good in the world!
I knew so little about amputation until I came across your videos. You have given me so much knowledge and the ability to help others I know with amputation
Xray just shows bone, there might be a nerve that gets affected by the new bone growth. I guess that after the amputation the nerves might have been moved around a bit. Or even grown new "extentions".
I feel your pain, Jo. It’s not easy when you have 1 good leg. You just stay safe and stay surviving.♥️❤️🙏🏾🙏🏾love and support to you.
Sorry to hear that you are having trouble and pain again. I am praying for you. God bless you and I pray that you heal quickly. Stay strong and please be encouraged. We will keep praying and pulling for you!
I had a bone spur in my left-heel once. It felt like stepping on a nail when I walked. It went away after a few weeks on its own, and hasn’t reoccurred. I lost my left-leg below the knee, and am currently getting the money together for a leg. My dad lost his right-leg below the knee
So I know that there’s days you simply can’t wear your leg. I’ll keep watching to see how you do.
Sending Love and Prayers.
Hope you find a solution very
very soon. And that you are pain free again.
I keep my tree up through February. It goes up Thanksgiving after dinner, stays up as a Christmas tree until the day after Christmas, then it becomes a new years tree! With hats, tinsel etc on it and a couple small plastic champagne flutes, and plastic champagne bottled and a couple of small disco balls, and then at the end of January it becomes a Valentine's day tree with heart lights, the kids heart art from school etc. And it's about to go down tomorrow 😊😊 It's a really easy way to decorate and the kids enjoy the tree and seeing their art stuff on it throughout the holidays.
Sending lots of prayers love and positive thoughts your way ❤
im so sorry to hear you're having a struggle with your leg, i really hope things get better for you
Hi Jo I am so sorry you are still having so many problems. I too had my right lower leg amputated due to chronic pain and the more of your videos i watch the more that i see we have in common. I am older than you and my original accident was back in'83 and after multiple surgeries and using and old fashioned leg caliper and surgical boot i had the operation to fix it forever but as we know that can be disappointing and it just took everything to a much higher level. i had a symes amputation first in '96 but had constant issues with Achilles tendonitis and pain in the weight bearing end, skin breakdown if the tried to make it more like a patella bearing socket. long story short they did a below knee amputation but they cut the tibia way too short, i have a knee joint but the tib and fib were cut right under the knee joint. so it became a nightmare to get a prosthesis. eventually it had to be a cumbersome above knee type complete with metal waist harness and shoulder strap (around 2000) but it was heavy and not comfortable. most of the time i used lightweight wheelchair but was still working on getting more mobile. i used a knee scooter a lot too. Unfortunately 4 yrs later i was diagnosed with Multiple sclerosis, now i use an electric chair but i still have to deal with chronic pain. i have wrecked my shoulders, i became osteoporotic but only found out when i fell and fractured 3 lumbar vertebrae so i have more pain now than right back when i had the symes done! Strange thing is that i cope better with mow than back then, bad days at times but mostly i manage and still live independently with visiting carers. I see your prosthetic s and see how far things have come- we still used wool stump socks and bandaged our stumps every night! but i did have a plaster and can relate to the fact that phantom pain hit when it came off. i still get that nerve pain if i get pressure at a certain point on the end of my stump. they a way to come yet in solving these probs. stay strong you are a fighter and istill beleive both of us are better off than before the amputation- i could not have coped with all that has happened if i had not been able to ditch that original painful foot- the rest is tough but managable. you stay strong
Awh man I’m so so sorry girl ☹️ sending so much love your way, and your attitude is incredible 💪🏼
Hi there, I'm fairly new to your channel, but am glad that I found it. I'm a below the knew amputation as well. But mine was due to a disease I inherited from my mother that caused my blood to form many small blood clots, my experience with learning to walk again hasn't gone well. Most likely due to the disease and blood clot issue, but that's kind of off the topic of why I am posting here. My residual stump started hurting in one localized spot. I mean serious pain, in an area that equaled about the size of a quarter. They did all kinds of tests. MRI's etc. and couldn't find the reason. Finally my surgeon took me into a same day surgery procedure just to have a visual look at what was going on inside my body that was causing that. Turns out that it was the shape of the bone in that one area and some scare tissue that had formed in that spot. He reshaped the bone and removed the scare tissue, and that has almost completely fixed the issue. I'm not saying this is what is happening to you, but wow, it sure sounds the same. Hopefully you see this, as this is an older video. And just so you know, thank you for these videos. I am back in counseling and attempting to deal with my depression and suicidal thoughts. I can't say that it was a 100% because of you, but you did get me thinking and you did make me think about how I can do this again. So, thank you. More than you can understand, thank you.
My Christmas tree is still up to! Seeing yours up made me so happy!!🎄
I lost my leg a year ago and you have been really good for me cause every question I had you had a video on it. Thank you so very much .
I enjoy watching your videos. They are so informative. Thanks for sharing this part of your life with us.
Hi, I've recently discovered your channel and let me just say I'm so grateful for the insight you give us on how amputation has impacted your life. I'm a nurse working at a trauma center and we get to take care of people who have recently lost a limb. I'll be honest here and admit that oftentimes I'm insecure talking to them, because I never really know the right thing to say. Thank you so much for your honesty 💙
Sorry to hear about the pain, I hope you can find an answer to it. But pleased to hear that you have your art work to give you some thing you can control
Good luck, hope you find comfort really soon 🙏
❤I hope it gets sorted soon. Sorry you are going through that.
Hello again Jo! Ok, I'm now pretty much convinced that it is your liner and how it rubs or pulls on the end of your leg that is the culprit. The reason I believe this is because the pain that you described returned to me today after my new socket that I received on Friday. I was pretty bummed because at the start of the day, I was walking nice and comfortably. But a few hours into our day, the slicing, sandpaper-on-nerve feeling returned. I was hoping that because I had a new, much better fitting socket and brand-new liners, that the pain was behind me. But unfortunately, no! It was agony walking the last quarter mile to the car. But when I did get back to the car, I took the prosthetic leg and liner off, and then wiped down all the gunk from inside the liner and off my residual leg. I then re-applied the Gold Bond Friction Defense and let my leg rest outside the liner for about a half hour. I then reassembled myself and the pain was 90% gone! So my standard operating procedure in the future is to take the liner off, clean it and my residual leg, and reapply Friction Defense when the pain acts up. The reason I think this may be your source of pain as well is because you have the exact same liner, the Icecross Dermo, as I do. The Dermo is supposed to have built-in moisturizers that keep the skin moisturized. But maybe in cases like yours and mine, those moisturizers cause the liner to pull and shear the ends of limbs in ways that inflame the nerves. I reviewed your description of the pain and you claimed that the pain only happens when the liner is on and that even with the prosthesis off and when your leg is in certain positions or angles the pain may hit you. So I'm pretty convinced that it is the liner that is to blame. I may ask my prosthetist to switch out my liner to another type of Icecross liner to see if that makes the difference. I hope this helps! Take care, Avelino
sending prayers and good vibes and thoughts your way!
Your painting is beautiful you are really talented
Jo I am so sorry you are going through this. I know it is hard. I am praying for you
The painting turned out great! I'm glad you are taking care of yourself, I have to wonder if nerves mixed with something else is going on. You will be able to walk that 5k in time.
I find the idea that the bone spurs are unrelated to just be silly. To this day, I do not understand why we don't insert a bio-neutral jell pad at the end of a amputated bone to allow for bone growth/repair to have something to grow into that won't add pressure to the remaining tissue. In a era where we are 3D printing parts to go inside the body, this just seems a natural step to help anyone that has a amputation.
Wrong. Use TITANIUM foil, borrowed from dentistry. Bones can HEAL to titanium, and then they stop trying to 'find' that missing part of the bone. This is why surgeons no longer use titanium plates & pins to repair severe fractures: THEY CAN'T GET THEM BACK OUT LATER.
@@milesarcher8502 That works too. I am not saying a jell is the solution. But that there should be a solution.
@@loganskiwyse7823 THERE IS.
Good luck Jo, hopefully you get it sorted 👍👍👍👍👍👍
The editing in this video is so good!
Keep pushing your current Dr and if you get shrugged off again please consider looking into a second opinion. Your well being is important.
15 year Veteran DBK here and this is my advice: new liner. Another big problem I found out lately is negative pressure built up in my suction leg pulling my leg into a bad spot. I was told to use a sock to whisk the air away. Another thing, make sure you don’t have ingrown hairs or something under your skin. I’ve gotten them directly on the spot you talk about and I can’t walk when it happens. In general, if it is a prosthetic issue, you will almost always see marks on your limb. Now another weird idea: shin splints. I’ve put too much weight on my stump where it felt like a shin split. This happened while sitting with my stumps crossed painting for 3 days straight. I would also say you could grind out a section in your prosthetic where you have issues and pad it. I found the hard fiberglass is terrible for my leg around your same spot. I found a softer surface more comfortable which helped. Lastly, check your callus at the bottom of your stump, I’ve had it disappear from bruising and it can take a while to fix. You may just need a new socket. I’ve had issues with a socket and no explanation as to why other than my problems went a way in a new one. If it’s a nerve thing than something is pressing where it shouldn’t and you can’t always tell where sometimes.
Doctor: *sees spikey things on end of bone where pain is most prominent*
Also doctor: Naaaahhhh girl that ain't it. THAT JUST AIN'T 👏 IT 👏 CHIEF.
😆😆😆
I'll be honest. Doctors are wrong most of the time. Treat them like any degree holding person.
I have a rare congenital condition the majority of the symptoms are secondary diagnosis and I swear this is what it feels like with most of my imaging results. 😂😂😂
You are soo strong and an inspiration not just for amputees but for anyone with a personal struggle x
I'm sorry your having issues again and I hope you get to the bottom of it soon.. sending you healing vibes!
Hope you get it figured out and feel better soon Jo!
Thank you so much Leon!
Gosh I hope this is an easy healing process for you. I have watched your videos for some time and just Tuesday a good friend of mine surrendered her foot as well. Hoping both of you the absolute best
I'm so sorry you are still struggling. Hopefully you'll get some answers sooner rather than later.
I have watched your channel before, noticed it then and again in this one ........you a great speaker. I was captivated, and just had to keep watching. I am faced with challenges and set backs in my life currently, but feel very inspired listening to you. Wish you well and am hoping you will resolve your pain issue. Thank you so much for the positive feelings.
I’m sorry that the pain is so bad again. Praying that you find some solutions to get you back to activities you love. ❤️🙏🏻❤️
Speak with your prosthetist and show him your scans as he maybe able to position a patch or padding so that the pressure is taken away on the bone spur. You nailed explaining the bone spur pain 👌🏻it really takes your breath away. The last thing you need is to have yet more surgery looming over you. Fingers and toes crossed🤞🏻🤞🏻🦶🏻for you jo. I have a neuroma on my residual limb along with the spur and my prosthetist casts my socket to make sure there’s no pressure on both. It took me and my prosthetist a LOT of finessing and tweaking alignments to get it right but we got there in the end. Hang in there and painting is THE best distraction therapy😉. I know it’s so disheartening and frustrating but you’re doing what’s right for you and that’s the most important thing. You will get to do your 5k it just may take a while longer and some creative thinking with you, your prosthetist and your doc. Try not to beat yourself up the first 18 months of wearing a prosthetic is always tricky but it will get easier, even though it feels like one step forward three steps back 😤 sending 🤗🤗check a comment from @crapgrabcrab this helped a friend of mine and it’s a super simple fix 🤞🏻🤞🏻🤗🤗
Oh geez. Bless you. Hope it gets fixed fast and easily!
I am an above knee amputee and have been suffering with the identical pains which you are going through. I have been having them for the past two months and they seem to get worse. I will be seeing my Orthotist and other specialists once this Corona virus lockdown has been lifted so we can determine what it is thats causing the constant pain. Every word you used to describe the pain i can relate to lol. And theres nothing that seems to help, not even schedule 6 painkillers. I look forward to hearing what your specialsts have to say and compare with what my guys here in South Africa have to say. Thank you for the videos, they are uplifting..
I'm sorry you're having more issues with your leg I hope they find a solution for you soon. I hope you have a good weekend despite the pain.
best wishes! hopefully they can sort it out quickly and you can get back to where you were!
So sorry you're having problems, Jo!
For me, is pretty clear that the pain you feel is associated with those cusps. Good luck in your journey and keep fithing for your well being and happyness.
So sorry you're residual limb is giving you trouble hopefully you won't have to need surgery again love you jo great video
I'm rooting and praying for u. U inspire me , u seem like such a bright and go getter person
Sending you love and light, keep going!❤️♥️
Hugs and love yr way from Australia, fingers crossed it gets better asap
I had my leg amputated back in November and have not got my leg yet do to complications I am so inspired by your videos they are helping me move forward thank you so much for what you do
You're a lovely person! I'm praying for you.
This makes me so sad, it was lovely to see you finally getting somewhere with your leg. This too shall pass though and you will do that 5k!
I’m a recent amputee below the knee on my left leg from a really bad car accident, my hips Down was all fractured on both legs and everything feels lost but your videos are motivating me in so many ways and helping me cope with this !
Wishing you all the luck and happiness in your journey! Love the art🙄❤
God Jo I’m so sorry....I just don’t even know what to say. I’m paralyzed in my own life right now. I really really hope it gets better somehow! I’m sending all my love and positive vibes. ❤️❤️❤️
I had cortisone injections in my bone spurs, and the pain resolved. Praying for you.
How frustrating. I hope you get some real answers soon.
I hope you get better soon.
Oh i really hope it goes well and you can start training again.
Thank you for all the intresting videos and informations
I’m so frustrated for you! Just watched your trying to get off some of your meds video and was so happy for your healing and now your being kinda knocked down sure it’s super hard emotionally an physically! Dear beautiful awesome lady I can’t wait for you to finally get complete relief so you can move on into the next journey! Lots love from a new fan!
Oh Jo. I'm so sorry and frustrated for you. I have everything crossed for the recovery you deserve. Thank you for sharing. I can see in your eyes how heartbreaking this must be and you deserve a huge break. I was feeling a bit sorry for myself that my ankle still hurts after 11 months, but I'm not any more. Recovery is not a straight line but I wish yours had fewer bumps.
Hello, im also a bk amp, but mines the left leg. Mine is almost exactly same length as yours. Im now 20 years into my amp experiance. And my first year after i had to have six sockets made for my leg. I had all same problems you have now and got all the same answers from doctors and prosthetists. It just takes time hun. I wish i had more uplifting news and helpful info for you. But it took me a year of super strange pain and blisters and hot spots and trying everything just to make the pain stop. But it just takes time. You can get through it. You seem strong with good family support. Just try everything and remember its your leg so dont let anyone make you think it does or doesnt feel a certain way....i hope that makes sense. Well ill be praying for you hun. Gid bless! Mark
I had a similar problem. After six months of pointing fingers back and forth, the prosthesis used a volume kit to resolved it.
Keep your chin up Jo. I know it's hard, but you are so much stronger than you know. Praying for answers and healing for you
You're very inspiring. Keep up being you and being so awesome!!!! ❤😁
Yes my grandmother is amputee and sometimes she also suffers from this sort of pain.... but stay strong... u r amazing...God is very kind and u r the most beautiful kid of God....lots of love ya
So sorry u are dealing with this again. My thoughts are with u
I’m so proud of you!!!
Keep on keeping on footless jo
Good luck and be strong! 🥰🤗 I’m LBKA I’m wearing a Revo System because I couldn’t use the pin lock system or the suction system because my calf is so bulbous.
Oh no. I'm so sorry that you are dealing with this again. 💔😥 I would definitely suggest getting another opinion, especially if the doctor can't see the bone spurs.
I feel for you Jo. Yesterday I slipped and fell on the ice and my leg, hip and back were sore, thank goodness I am feeling better today, but not motivated to go to the gym and ride the stationary bike for 20 to 30 minutes to encourage the newly opened veins to regenerate. Not comparing my situation to yours, but sometimes try to go forward and get stuck in place or end going backwards. All I can say is keep up the positive thoughts and trying. A quitter never wins and a winner never quite.
I love your sense of humour haha
You put effort into decorating that Christmass tree and it's staying up 'til summer if needed be!
I'm so sorry you are going through this. I am not an amputee but what you describe sounds like when I had planter fasciitis. I hope you find out what it is soon. Like Cowpokeone said below, you know your body, don't let them tell you it's nothing if you feel like it is something.
You are such a sweetheart! I can tell you doing better emotionally. Really enjoy your videos....God Bless and all the best.🙏🏼🍀🧡🇨🇦
After my wife and I were married, our Christmas tree stayed up until April our first Christmas. Every time we started to work on it one thing lead to another. Yes we were newly weds. Those were the days 😎
Sorry to hear about problems. Consider creating journal -- what to are doing, and what you are experiencing both positive and negatives. Plus possible ideas. It's a very clinical and analytical approach but it can help. Make one change at a time. Analyze result. Make another change and repeat process. Has helped me deal with constant change to prosthetic (bka) and meds plus has given medical people knowledge of exactly what is being done and it's effects.
I think you are a totally awesome person. I'm sure I wouldn't have the wonderful attitude you do. Carry on, sister
Jo, I have and have had the same problem. My Dr. discovered that I have developed neuromas. I am a quadruple amputee and have them in my right arm stub, and both legs. I hope this helps. You now have a name to research.
Hey Jo I was wondering if it was a pinched nerve as well, I know for me times of trouble with my leg I was dealing with stress and frustration of life. Keep speaking up with your Dr he will start listening to you
I am successfully recovering from a quadruple fracture of my left femur. It is the most difficult thing I have ever done. The only thing that allowed me to recover was a positive attitude and a gang of wonderful physical therapists. All my best wishes to you. Steve Hofmann
So sorry to hear you are having problems with your stump. Is that an OK word? I know it is the traditional if not Victorian/Georgian term what can I say I enjoy historical fiction. In spite of what your surgeon has said I think it might well be related to the spurs. It might also be ligament related... I suffer from trigger finger and often when I focus on keeping it in the neutral position so soon as I try to move it the pain is very special. Nothing like what you are dealing with I'm sure but it might be worth investigating. I also had bursitis in both knees I could float my patella through 180 degrees all around the joint and the pain was all over the place her one day there next week you might have that as well. Just chucking out some ideas here.
On a more positive note that painting is beautiful I love the colour and light in it. You might want to consider selling some of your pieces I think there is a market for them.
I'm sending good vibes towards you. Hopefully this will resolve soon so you're not in so much pain. This is besides the point but that painting is beautiful and your pink eyeshadow looks amazing on you.