I was diagnosted severe MG 2020. Never accepted IV treatments. Oral meds only. Thymectomy 2021. And at this moment meds free. Walking three miles daily in the morning. Back to normal life. Thanks to my God Jehovah.
I have had general MG for 3 months as a 73 year old male. Gary gives me hope. I was on 50mg of steroids per day. Now I'm down to 30mg per day, and due to reduce 5mg every 14 days, plus mestinon (60mg 3 x a day), and Cellcept 500mg 3 x a day.. I am up and down like a yo yo even in the same day. But I am better than I was. Sometimes I despair. But if I do, I seek these inspirational videos and avoid all forms of STRESS. BTW, I find that exercise can hurt in that the collapse of he muscles after exercise can last for days. So exercise, but as Gary says, LISTEN to your body. Cheers.
So glad to hear about your experience, Garry, and that you are working hard to keep the exercise going... I like the IvIg treatment got you off the Mestinon! I'm wondering where you live, Garry, and who your doctors are/were. I'm not having much progress after 30+ years of dealing with this thing, and now I have other neuro things as well, so I'm feeling even more urgent.
I was diagnosted MG march 2020, finally i had a thymectomy april 2021in pandemic. Im Walking 3.5 miles every morning. Meds mestinon once a day if needed and 125 mg cellcept twice a day. Ver y son meds free. I Had vaccine three shuts. Covid asymptomatic january 2022.
That man’s a great ambassador for M G.
I was diagnosted severe MG 2020. Never accepted IV treatments. Oral meds only. Thymectomy 2021. And at this moment meds free. Walking three miles daily in the morning. Back to normal life. Thanks to my God Jehovah.
I have had general MG for 3 months as a 73 year old male. Gary gives me hope. I was on 50mg of steroids per day. Now I'm down to 30mg per day, and due to reduce 5mg every 14 days, plus mestinon (60mg 3 x a day), and Cellcept 500mg 3 x a day.. I am up and down like a yo yo even in the same day. But I am better than I was. Sometimes I despair. But if I do, I seek these inspirational videos and avoid all forms of STRESS.
BTW, I find that exercise can hurt in that the collapse of he muscles after exercise can last for days. So exercise, but as Gary says, LISTEN to your body. Cheers.
So glad to hear about your experience, Garry, and that you are working hard to keep the exercise going... I like the IvIg treatment got you off the Mestinon! I'm wondering where you live, Garry, and who your doctors are/were. I'm not having much progress after 30+ years of dealing with this thing, and now I have other neuro things as well, so I'm feeling even more urgent.
❤❤❤ I live with MG and I exercise daily with calisthenics within my own limits.. thank you for this information
I think exercise is wonderful therapy for MG. I’m at year 4 also. I exercise every day.
Can you tell me his name x
It's hard to exercise when your muscles aren't getting the message...
Are off all your medications
Gina, Garry has given us permission to share his email. If' you'd like to connect with him, let us know at info@myastheniagravis.org
I was diagnosted MG march 2020, finally i had a thymectomy april 2021in pandemic. Im Walking 3.5 miles every morning. Meds mestinon once a day if needed and 125 mg cellcept twice a day. Ver y son meds free. I Had vaccine three shuts. Covid asymptomatic january 2022.