What Is Endometriosis?
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- Опубліковано 16 кві 2020
- In this video, Justin from the Institute of Human Anatomy, discusses the anatomy, pathology, and various theories behind endometriosis.
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Research Articles on Endometriosis
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Thank you for this video! As an endo sufferer, people either tend to not believe you or think you're faking the pain to get attention.
THis is very common for women to be told this.
My late husband used to tell me I was just wanting attention, I finally found a doctor that took me serious, he did a laparoscopy, my insides were covered with cysts and endometerosis, it was so bad that the doctor said if I had waited any longer it was ready to turn into cancer. I would get so sick I would throw up, and couldn't get out of bed. I had a full hysterectomy.
people really dont understand how serious this disease can be, it also can take a toll on your mental wellbeing or at least thats the case for me sometimes. If my symptoms persist longer than a week I can get very distraught and fall into self hatred patterns. I just wish more people could understand how difficult this disease can be to live with.
I went to 2 doctors and both told me to shut down because having your period is painful for every woman so I suffered a very long time but stayed silent because I was so ashamed I always fainted and got fever because of the cramps. Sometimes I had to hide in the lavatory when I went to school because I couldn't stop screaming and my former BF didn't give a fuck because it was "just my period". Endometriosis was diagnosed a few months ago and I'm so happy that I'm not just weaker than other women but I have a reason to suffer so hard and luckily my new boyfriend is so caring when I'm on my period.
Or doctors shrug it off and refuse to listen to a damn thing you say because very few doctors will even do the test to confirm an official diagnosis
I love how he honestly just admits he lacks the expertise to diagnose what's wrong with the ovary. No one really has all the answers and I appreciate his humility 👏
I still think it's weird that they are making a video about endometriosis using a cadaver without knowing whether the cadaver has endometriosis.
OPERATIVE WORD IS "HE" WHEN HAS HE EVER BLED FROM HIS ABSDOMEN?
@@lindanorris2455 I’m pretty sure this channel has already addressed whether if men should teach female anatomy. The general consensus was if they’re respectful, and never try to degrade female bodies, and if they do have the knowledge, then why not teach about anatomy regardless whether if it’s male or female anatomy? They’re very aware of how women’s bodies have been devalued, and degraded throughout the centuries, so they’re actively trying to be respectful to all bodies they come across to teach the living about ours.
@@lindanorris2455 🙄🙄🙄🙄🙄
So true I hate people who pretend to know everything etc
I just want to thank all the women in the comments for sharing their experience with endo here. As someone who was treated like a crazy person for 13 years before getting diagnosed, reading your stories truly made me feel way less alone. Thank you & stay strong.
I found that too. Until I stumbled across a brilliant OBGYN and got diagnosed laparascopically. I'm so thankful for that diagnosis. I remember telling him "I'm NOT crazy?" It made a huge difference just knowing it's a REAL thing; and not some pseudo manifestation of a mental illness. That was the first victory!
@@GinxHorne lol. I went undiagnosed over 9yrs, had 3 diag. laparoscopic procedures. I was told it was in my head & wasn't allowed any actual pain meds. Pain would disappear 1 day b4 my period, then resume following the end, for close to 3 weeks again, Doc thought at 1 point it was endometriosis but they believed the spots they were looking for would be "dark spots". In docs office 1x a month, every month. Surgery was finally on the table for a hysterectomy, "no cycle, no pain" they said, at pre-op, doc joyfully informed me I was I pregnant with my first child... excruciating, painful, pregnancy bc of the "stretching", but worth it!!! So glad there's so much knowledge about it now!!!!
O Lord, so sorry to hear that! That must have been very frustrating. I hope you are well now and wish you all the best!
@@TheOpy83 Thank you Ioana! I am not well yet because unfortunately there is no cure for it but i'm trying a few things. Right now I've just started doing acupuncture after months of contraceptive pills because the pills did not work for me at all sadly.
@@NathalieOfficial while reading your reply, I was just about to suggest accupuncture. I hope it will give you some pain relief. I think that some day, hopefully soon, they will find a teatment for enometriosys.
I’m 64. At 27 I had my first endometrial surgery where they removed a lemon sized cyst off my right ovary, fortunately I didn’t have a lot of pain from that but my periods had always been very painful since I began at 12 1/2. Very grateful in those days we married early and had my first child at 22 and second at 25. Then had first surgery. Had 6 years to determine if we wanted to add to our family. I could literally feel the cysts from palpating my abdomen. Had no pain but knew something was wrong. Indeed it was. Endometriosis was everywhere inside. I told my dr to get rid of it all. I was done having kids and wasn’t coming in for surgery every few years. I asked him to try to save an ovary. He took everything out but a piece of ovary and it was the best decision I ever made. I got my life back. No more pain, etc. I never needed hormones either. Very best decision!
Glad you are doing better!
I am in an Endo group on fb and some of those women are so discouraging when it comes to complete or partial hysterectomies for Endo. They refuse to acknowledge that it helps some women. When I brought that up on another page, I was attacked. They seem to prefer the mantra of "there is no cure for Endo" and to wallow in self pity.
Endometriosis is one of the most painful diseases, it’s awful.
Syd Lauren,
I know. I had it for years.
Yes it is,
I’m 34 had it since I was 18 or so. I’ve Always wondered if it was auto immune. I had a laparoscopic operation and had it removed ages ago. It’s back now bad.
Ive had it all my life and i ended up having a hysterectomy at 46 it really affected my life😣
Marley Nero people don’t realise how serious that operation is either do they or what happens to our body after a hysterectomy. How are things now after your operation?
I literally can’t work cause of my endometriosis, that’s how bad the pain is. And the pain comes anytime. I’m glad you guys made a video on it
Have you had surgery?
Relate , it's horrible :(
That use to be me Advil 200mg i would take 3 or 4 for the pain for now that works i don't want to be admitted to the to get morphine side effects low blood pressure. I gave up red meat, eggs and soy for me it lessened my symptoms .
@@justcece9082 if you're only taking Advil, and your pain is controlled, it seems you don't have much of a problem. Obviously i don't know you or your case, but people really suffer. Some cannot physically move, some are hospitalised, lose their jobs, require surgery and often removal of diseased parts. Any medication, morphine and advil included, have side effects and a toxic dose. Which is why doctors prescribe meds on the basis, that the benefits of using them, should outweigh the negatives. You also have a loooooooooooooooooooooong list of meds to go through before anyone offers you morphine.
@@sainjawoof3506 i also gave up red meat, eggs and soy . I use be in so much pain would i vomit the pain i use break out into cool sweats that use to happen on the 3rd day of my menstrual cycle. I've missed work and I was admitted to the hospital that when I was told that had endometriosis and she suggested I have a hysterectomy. So it was extremely bad don't just take me taking Advil now to help management the pain 3 or 4 that's 600 mg - 800 mg of Advil.
Stage 4 endo sufferer here! I required a bowel resection due to endo lesions pushing into my bowels nearly blocking 75% of my colon. They also removed endo from my diaphragm, bladder, and my appendix. I wouldn’t be surprised if there’s endo throughout the rest of my body as well.
Thank you for this video! It’s obvious you have done your homework on this condition when SO many people just consider it a “painful period”.
Same! I had my surgery in July and needed a full hysterectomy, adhesions removed from my bowels and all inside stomach cavity area, appendix taken out, a small bowel resection for the same reason as you, and lost my cervix. Dr said it looked like a tornado in there...
My uterus was ate up with lesions. There was endo lesions on my ovaries and my tubes. When they did my hysterectomy the Dr said if I had gotten pregnant my uterus would have split into. My uterus was attached to the ovaries. He said it looked like a baseball.
Wow. I was given a pelvic exploratory laparoscopy for a different issue when my extensive endo was discovered.
The OB/GYN was very surprised to learn I had a successful full-term pregnancy. But now that I read your three stories I wonder how bad it could have been if I didn't require surgery.
@Jennifer Sheets cheers doctor...a tornado...I'm sure that's not what u wanted to hear!
I’m stage 1 and I hope it’ll just be gone. I’m just seeing the doc every 3 months ❤️❤️ Hope all will be well with you!!!! ❤️❤️❤️
Being a skinny woman with PCOS and endo, I was ignored for years other than by the initial dr in the hospital that diagnosed me. She was able to see my insides, see the cyst that ruptured and bruised my kidney, SHOWED me the aftermath of the fluid via ultrasound. But after that, each new dr i went to bc of the pain, up to and including a dr just this past week, they take one look at me and give me the "just judging by your weight I dont think you have it". I told him im a runner and I sometimes collapse in pain and throw up and have to have my husband come pick me up in the car. The dr's response is "sometimes cysts will rupture when you run". Like no big deal it's normal right? What? I refuse to believe that all female runners just...have cysts rupture when they run and they just lalalala this is fine everything is fine. Well anyway, we get my bloodwork back, because I insisted on being treated just like an overweight woman who was diagnosed with PCOS would be treated and whaddaya know, FSH levels off the charts, my glucose is out of whack, my LDL high, calcium and potassium high, and now he's ordered further tests (prolactin and estradol) because it's looking like I may have developed some of those unfortunate side effects of having PCOS like diabetes and heart disease, which Im so frustrated by because Im exceptionally healthy but this monster was just wreaking havoc inside of me all this time because i was never taken seriously because "skinny"
It's interesting all the different biases women encounter in the medical world...
I think I suffer from bursting cysts too, the pain is unbelievable, literally drops me when it happens Doctors seem very interested though, much as with yourself. My last conversation ended with them telling me that unless I want to try for a baby it's nothing to worry about 🙄. Yes, because having a pain every month that literally stops me in my tracks and puts me on the floor is perfectly acceptable. And thats just one tiny part of my nightmare cycle 😂
Sadly I relate. Even when I was underweight due to various factors (the endometriosis effecting me in multiple ways at multiple angles at once), I've actually encountered doctors that said to lose weight anyway.
I haven't had my reproductive organs for several years but I only got to a healthy weight for the first time in my life fairly recently because of how long it took to recover and build up muscle.
I am grateful every day that I don't have to push to get treatment anymore, but I will forever be appalled, upset and sickened that I and millions of other women in this world have to push so hard and struggle so much to get help for something so serious!
@@D.J.F753Here's what helped me get a hysterectomy and maybe it'll help you (and others) too in no particular order:
1) tell them you're aware that you would need to sign an agreement that you cannot take them to court for sterilizing you and you're willing to sign it.
2) if they say something along the lines of "what if your husband wants kids", the retort is that you wouldn't want to date or marry someone who finds your infertility a deal-breaker and you two can always adopt or foster. A man is not Mr. Right if he cannot accept this part of me and I can always adopt or foster if I change my mind later.
3) have a gender perspective-- say you don't believe removing your reproductive organs would make you feel any less if a woman.
3.5/4) continue with the gender thing in agreeing to see a therapist to discuss how the removal effects your gender. Say you will see a therapist that specializes with gender to "mourn" the loss of the organs. Therapists that specialize with gender and transitioning in particular will "help with mourning the loss and coping" but also not actually do that if you two don't feel the need to. My therapist at the time said we would dedicate a minimum of 3 sessions "mourning the loss of my womanhood" and in truth we barely talked about it because my health was more important to me than whether or not I had a uterus and ovaries.
It worked for me and maybe it'll help someone else. It feels like doctors want to hear you say some secret passcode to get what you need to have quality of life or even live. I hate it, but I can't change that. I think a lot of the difficulty with getting treatment is the concern of lawsuits from women who change their minds and how society used to put emphasis on the validity of a woman's womanhood and femininity on her reproduction. Society isn't like that anymore and it's getting better about that, but we still have a long way to go if women have to battle to get surgeries that could save their quality of life or their actual life.
I’m within normal weight and often referred to as skinny. And I have pcos and endometriosis. I am so scared that I’ll develop heart disease.
Mine was so bad I begged my OB to take the works out, I also had fibroids so it was a package deal. Once all that sh*t was gone, it was a new life for me.
I also had all my works taken out and it was the best money I ever spent!
yes you can go swiming again . your clothes fit again. be sure to start hrt right away so you dont get heart dis
Glad your feeling better
Glad it worked well for you :)
Keep in mind, even with a full hysterectomy many people still suffer with endometrial cysts and pain, since the endometrial tissue can stay implanted in the pelvic cavity and elsewhere. It’s very difficult for surgeons to remove all endo tissue as some of it is very difficult to see.
Do you take hrt? I had a full historectomy and still had symptoms of endometriosis! Only when I stopped estrogen did the symptoms go away. I take estrogen-like foods, like flaxseed oil, but don't really know if it'll be enough to ward off heart disease and growing old fast.
This is interesting and well-explained. It's great to see endometriosis taken seriously by a male MD.
Lol 😂 he is a massage therapist by qualification. No medical degree.
@@MsJustice4ever That says it all!!!
a man that knows more about our insides than we do ourselves.. lol
@@MsJustice4ever what?! ... and he has access to cadaver parts.. lol
@@msprincesss115 Most experts in everything have been male historically so that is not even slightly surprising as the female body can be studied equally well by either male or female scientist.
I suffered from endometriosis since I hit puberty. What’s weird is that my pain came at ovulation. I was down for anywhere from 1-4 days. Finally, my dr. Agreed to surgery. Not only did I have endo, but my ovary was stuck to the wall of my uterus. I’ve had 8 scrapings and finally got my partial hysterectomy. I wish dr’s would take this disease more seriously. It truly is debilitating.
I to had similar experience. I have had endo since I hit puberty and was diagnosed via surgery when I was 16. I would have two episodes of pain once during my entire menstruation days and second during my ovulation days. They were slightly worried I also had PCOS but it was just endo lesions. I was fortunate that my doctor very much supported my pain and diagnosis since my mother did not and thought I was being “dramatic as always”
My irritation was during ovulation too. Left side had a 8cm cyst :/
If you are still siffering from it, Have you tried tumeric pills? They were and are a huge help during flareups.
I HAD THE SAME THING, the endo created an adhesion that caused the ovary to get stuck to the back of the uterus!
It always amazes me how small the uterus actually is.
I found out today! Used to think it was sort of fist sized 🤣
Thurston It feels like it's the size of an angry badger some times, doesn't it. A badger with a severe charley horse.
Same here, it always looks HUGE on the pictures they would show us back in school. I always thought that it had to be the size of a football based on how wide the area that hurts during cramping is. Crazy to think how something so small can make me feel like I have piranhas eating me alive internally.
That and the ovaries 😂
Ikr? I'm flabbergasted at the amount of endometrium that flows out of that tiny area every month lol. I always thought the uterus was so much bigger.
Since you can't get "officially" diagnosed until they cut you open I don't have and official diagnosis but nearly every doctor has agreed my pain is endo. I went to the E.R thinking I had another ruptured ovarian cyst again the pain was so bad. After every scan and test came back negative the doctor tells me to point the pain. I point to where you normally get cramps and she goes "your bladder?" in a tone that treated me like a crazy person overreacting. boy, was I ready to walk out. But thank you for this video, it is more information my doctors ever gave me.
Hey Amanda, the same thing happened to me just yesterday. !!! It is really painful and people thing you're faking it cause the test and the ultrasounds don't show anything
I'm sorry you ladies have gone through this... I had horrible, debilitating pain during my period at 13 and went to the hospital. I looked pale, would twist in pain, cry and my body got very cold. This lasted for a few hours then everything slowly faded away.
The "doctor" didn't show up until two days after I was admitted... Saying that I had faked the pain to get attention and the lowered temperature happened because I ate a lot of ice.
He was a very old doctor that has hopefully retired and made way for more knowledgeable and less sexist doctors. I've had to go to the ER several times in my life for intense pain and often receive morphine to quell that.
Thankfully, I was made aware by an ER nurse around 17 that it was probably endometriosis. I still had to figure out how to deal with the pain over the years.
You can actually get diagnosed by and endo-pelvian scan (i dunno the exact term but in french its échographie endo-pelvienne). Its how I got my diagnosis
Similar issue here. I’m self diagnosing at this point because nearly every woman in my family was diagnosed so I’m assuming it’s genetic since I have all of their symptoms.
I absolutely hate the condescending attitude some doctors give you when you're in excruciating pain and they treat you like you're an idiot.
As someone who has endo this was so interesting to watch, the only thing I want to add is that it doesn’t just cause pain during your period, often it’s most days even when not on your period. (I appreciate you don’t have long enough to explain it all!) If it was just during the period I think most of us could cope, but when it’s daily it becomes life ruining 😓 honestly thank you so much for this video, seeing you explain it so visually was really helpful for my own diagnosis!
Hi hunn i onley feel the pain during menstuation.this sick s killing our women we sufer alot
Yep mine flares up even when I’m not on my period, all of a sudden :(
Exactly if I only had to deal with it during my period that would be heaven for me except for the 3 month periods 😭
@@annachet5496 wow you're lucky then you must have very mild Endo.. where all was it at in your body if you don't mind me asking
@@christinamarie3374 oh girl me too I have more flare-ups then not and it's horrible it's like do we ever get a break if I only had to deal with it during menstruation that would be like heaven..
OMG!!!! I FOUND IT!!! THANK YOU for talking about this. My girlfriend suffers from endometriosis for about 5 years now and I feel so useless because I can't find much information about it to help her. :( This needs more attention.
It's kind of you to try to find information to help her.
Same sentiment as Linda D.
It is most kind of you to show concern for your girl. This is so real and absurd that we women, are made to be crazy or just completely ignored. I mean could it be so far fetched that a women's absolute amazing body that births life could have complications? Answer is no. Seems aligned just right that we could have real complicated things happening inside of us..
When I was first diagnosed no one even knew what this was. I was 13 (1994) Had a surgery every year to burn it out till I finally had a hysterectomy at 30. My mother had it very bad as well. Endometriosis literally ruled my life for decades and most people thought I was faking the pain. Great video!
I suffer with severe stage 4 endometriosis and endometrioma cysts on my ovaries. Im waiting for 2 operations a full pelvic clean and a hysterectomy. Sometimes mentally i cant cope with the severe pain 😞 i think more people need to be educated on this!!
You must keep your ovaries if possible
@@franmellor9843 i did ask but the consultant said he would be doing me a much better favour getting rid of it all 😔 xx
More people need to be educated about this disease.
@@gwillis01 I said SAME over 20yrs ago ...nothing's changed!!
@@franmellor9843 That is something that only her doctor can decide based on her private medical history
Ladies, I wish to share a story that could possibly save your life. Endometriosis is nothing to play around with. My mom at the age of 79, very healthy, never been on any type of medication. she was diagnosed with state 4 Endometriosis. She had very mild pain in the lower area. Only when she had blood in her urine did she tell us. They tried removing as much as they could, unfortunately it had spread to other parts of her body and it was to late. Tried radiation and Chemotherapy for a while. The hardest thing to do is watch your mom suffer in excruciating pain or any family member. My mom passed June 2019. Please ask your mom, sister,Aunt, Cousin how are you doing. My mom was one to never complain about anything, if she had we might could have saver her. She was the most healthiest 79 year old woman I ever knew until Endometriosis. I only wrote this to maybe help saves some else’s life. I miss my mom! Now she watches over me.
Much love coming at you xxx
@@spontan3ously_me thank you so much!
Endometriosis and endometrial cancer is 2 different things. Endometriosis isnt treated with chemotherapy as its not cancerous. Sorry for your loss though, cancer is terrible
I'm so sorry for your loss. Thank you for sharing your experience. I put off surgery because I didn't have insurance and I didn't want to interrupt my life. Finally, my OBGyn said I had cysts and needed to have surgery. I was lucky enough to have gotten insurance through the state in time. After my surgery, I saw my family, and they said I looked so much better, that I was sitting up straight. I had no idea how much pain I was putting up with unnecessarily. I really encourage others out there to take the time and sacrifice needed to go forward with treatment.
Sincerest condolancies to your family, but especially to you. Thank you for sharing your sad story. Your generosity in doing so, might just help someone like your dear Mum. It is so painful to loose a parent. I lost my father at 19. There's no 'getting over it', you just learn to live with it. Its the good memories that get us through hey? All the best. X❤️🇬🇧
Thank you for this information. The stem cell theory was especially interesting. When I was 45, still having my normal cycle (after extremely painful cycles when I was younger and never having a diagnosis) my lung spontaneously collapsed. They discovered it was related to my cycle because every month, I'd have breathing problems & "feel" a collapse coming. It happened again just 6 months later to the day. This time I had to have a pleuradesis performed. They discovered my endometriosis had grown "tentacles" (for lack of a better word) and it was invading my organs. I was told if this collapsed hadn't happened af an "alert", I would have most likely passed away within a year.
Once the "tentacle" hit my lung, spontaneous pneumothorax was the result. Apparently it is extremely rare, but I was fortunate enough to have amazing emergency Dr's - my pulmonologist & my OB/GYN. My pulmonologist was the one to put it together (after 5 months of feeling it was collapsing again & timing it with my cycle). My OB was so educated, he knew what it was, and I had two more surgeries to remove the endometriosis. Then 6 injections at $2,000 each to make sure it wouldn't come back. It's been 11 years since that happened and am finally not terrified that I'll have more collapses.
I'm grateful to have some answers and wanted to thank you for your theories & explanations. 😊
i'm really curious to hear more about what these injections are?! i have not heard of anything like that before. also did you have any pains around your ribs or lung area??
Oh wow. This is absolutely shocking. Glad you’re ok. I’m also curious about the injections.
I have endo and as well spontaneous pneumothorax as well 3xs then they did the surgery to repair it.
Your pneumos have a name: catamenial pneumothorax, a very rare condition that afflicted me and "100 women in the English speaking world," according to medical literature in 1997, when I had thoracic surgery to repair a 75% collapse.
For the past three years I’ve had suspicions that I have endo. I’ve been so nervous about going to my gyno, but I was recently rushed to the ER with sever lower left abdominal pain. It was so bad I was vomiting, shaking, and lightheaded. After three hours of tests (ultrasound, CT scan, blood test, and urine test) I was told I have cyst on my left ovary. They asked me if I had endometriosis, I told them I wasn’t sure cause I’d never talked to anyone about it. After that I’ve now finally made an appointment with my gyno to discuss it with them. Hopefully I can get some answers…
My endo pain starts well before my period, & doesn’t stop until the last day in my cycle. I can’t wait until I’m able to get surgery.
I had surgery it was such a relief. Hope you get surgery soon!
I’ve had 2 surgeries, 2015 and 2018. Hopefully the one surgery helps you, try looking into a way to not get your period. I personally wouldn’t recommend something like Orilyssa, if that’s how you spell it lol it’s pits you into menopause which comes with a host of other side effects. I’ve personally been on a birth control and not take the placebo week so I haven’t had a period in almost 4 years. I did have 1 surgery during that time but the over all pain is very manageable. I hope you feel better soon!
Hope you get your surgery soon, I had endometriosis, a hysterectomy was the best thing I did. Doctors said my body was producing to much estrogens. I would stay away from wheat milk soy bottle water in plastic process food in the meantime as it does help. Wish you all the best, since this is trying times.
me too.. waiting to get my uterus remove.. soon this year
Good luck with your surgery! You got this girl!
I am now 47 years old. When i was 30 years old i had a complete hysterectomy due to how severe my ENDO was. It is still the worst pain i have ever experienced. Even having my son wasn't as painful. It completely interrupted my life. Also unless you are a woman you will never know how painful it is.
did you feel any different after having a hysterectomy at that age? did the pain decrease? I'm going to have my uterus remove soon. and I'm 31 and I'm a little scared. @binboh
@@colorfulchrista231 the pain is completely gone but because you go thru instant menopause, your body will go thru a lot. You will need to talk to your doctor about a safe and natural hormone replacement therapy. Make sure it is bioidentical and not the stuff they usually prescribe.
I am 34 I had a total hysterectomy 4 years ago also.
I had it in my early 30's..It was awful and pain full. I had to go on medicine for it to stop my periods. I wound up having a total hysterotomy and things became much better. I could never have children because of it. It cost my marriage , because my husband wanted children, but God knows best. The first OBGYN thought it was all in my head . A simple test proved otherwise.
I just responded to another, but I had to have a hysterectomy at 34. Endometriosis was the worst pain I ever had.
I’m a mother of two young ladies , one whom had suffered with extreme abdominal pain since just after her first period at nine years old and the other slightly less severely ..every time I would take them to the doctor about the serious pain they were experiencing during their period but also at other times of the month I was told over and over that girls that young do not experience severe pain and they were playing me for sympathy ! WTF !
Even the children’s hospital played down their complaints and just offered the contraceptive pill and ponstan tablets…to little girls well under 13 years old ..I couldn’t believe there was not other options for them .
As adults they now have diagnoses of pcos and endo …still only offered the pill and ponstan , panadeine and counseling.
I only realised how bad it was when my grown daughter told me she will be getting a hysterectomy as soon as she has a baby , if she doesn’t have one in five years she will do it anyway .
And I was stunned when she told me she can bleed through a full size super pad absolutely soaking every part of it in under an hour ! No wonder she is always needing iron infusions.
There's a big problems with doctors being arrogant as fuck and careless.
It's even worse than with car mechanics. Always remember that experts are there to give you advice, not orders.
My mom don’t have it . She never cramped in her youth . I’m 30 and was diagnosed at age 22 but since 11 years old I started having horrible pains . I have stage 4 . This has change my life 360o
endo is one of the most painful things I ever experienced. Like wow it literally feels like your body is giving up
Yes, you are right. I was diagnosed with it in 1979 - yah...like who knew what it was then. Fortunately I had an excellent specialist, who managed to save one of my ovaries and after six years I went on fertility drugs and got pregnant (my 3rd pregnancy) and gave birth to a wonderful healthy baby boy! My endo quit forming after that. 12 yrs ago I was diagnosed with Celiac Disease (it is an autoimmune disease) and guess what? it causes endometriosis.
Im having it now, sufferring it now, my period is happening now. And i just wanna say that I am dying.
It's worse than giving birth. Really. I can vouch for this personally. Giving birth doesn't last and repeate every month. Once the labour is over, there is massive relief. With endometriosis there is never much relief 😭😥
For those that don’t have it, I give you a mental picture of how awful it hurts. It feels like there is a octopus waving around knives in your uterus. Or like that one scene of Braveheart when they start taking his organs out.
My endo pain was in my bowels, while having my period when I had a bowel movement it hurt so bad, I did lamaze breathing to help with the pain, it hurt so bad almost passed out. I also ended up with an endometrial cyst that had to be removed. Luckily I was able to have 2 children, miscarried a third. When I turned 40 my periods were few, and blood test showed I was going through menopause. By age 42 it was all over, I know that's young, but it's good it happened, no more pain! I do believe I inherited that from my mother.
I also have Endo and I am pregnant with my first baby (yay) how would you compare the pain of Endo to childbirth?
@@Ashleyohmy11 Congratulations! Well child birth is worse, but for me I do feel like the endo pain helped me get through child birth pain better. Endo pain differs from person to person so not sure I can compare. Both of my labors were normal, actually quite fast, 5 hours for both, but very painful! If you have ever had a bad cramp just imagine that pain in your uterus, only 10 times worse! I'm not trying to scare you, I'm someone that feels people can better prepare themselves if they know something is going to hurt. I kept reminding myself labor won't last forever, it will end, I can get through this. With my first I had a shot of Nubane (I think that's what it was called) , to help with the pain. It helped slightly, made me fall asleep between contractions. No pain med with my second, it just went so fast! I'm not against pain meds, if you want it get it! I hope all is well with your baby, pregnancy and birth!
What test did you get done to find out? Transvaginal sono?
@@teewal4140 yes, although they had a hard time finding one of my ovaries
@@juliadillaman3632 it was covered?
I feel like ppl think I'm just making it all up. Then I feel ashamed that I have it. It really is hard to go through.
I felt exactly the same and people treated me like I was crazy. Stay strong
@@NathalieOfficial Thankyou, you stay strong too xo
I know the feeling. My mom didn't believe me
Omg ... don't ever feel ashamed of how you are and how your body behaves you are who you are and we deal with life best we can.
The only ones who should be ashamed are the doctors who ignore our crises for help.
@@spontan3ously_me Thankyou ❤ , So true about Doctors. My wait list for surgery was declined so, Ive had to get a new referral thru private now to push me up the wait list. I'm very sure its endo and it def is rampant among the women in my family, my GP and Gyno believes its endo too, but still need proper diagnosis. Xo
I feel like a good video would be explaining what cracking your knuckles/ bones really does in detail, just to get rid of false rumors and such!
I never did crack my knuckles.
It just releases trapped gas from the joints
@@bigchungus2990 A middle school teacher of mine swore up and down that cracking your knuckles causes arthritis.
its just air pockets between your joints popping
I think there are enough videos explaining it on the internet already, you jusst have to look for it
I’ve had endometriosis since high school, the worst in my early twenties and finally went away for the most part once I had my daughter. When I would get my period it was by far the most excruciating pain. I couldn’t move or function besides laying in the bath for hours.
Was it hard for you to conceive
@@breyanavankline409 I was completely the same as @michelle it was very hard to conceive but once I did the pain WAS GONE OMG THANK GOD
My doc said best thing ever for someone with endo was to get preg. Think of it as a cleaning out after birth
💙💙💙
Same here. And after i had my first child same experience. Maybe having a kid helps.
@@breyanavankline409 sorry I never saw this comment, UA-cam is weird. I went off birth control with my ex, we never got pregnant (together 5 years). Got with my current fiancé and it was about two years after that I got pregnant. I actually just had my second daughter in October 2021, that was almost 6 years after my first. That was without using protection or being careful the whole time prior.
I had it way back before it was even talked about and my best advice is ... don't stop! Don't let your friends/family say "Oh yeah, I get cramps, too." they don't understand this isn't just cramps. This affects everything you do. I couldn't even stand up straight (am still slouched). If a doctor brushes you off, find another one (though it's a bit more understood now so hopefully you won't have to go through more than a dozen). Don't discount male doctors, they went to the same schools as a female doctor did. Men don't understand the feeling of period cramps but women don't understand the feeling of endometriosis so it's actually an even playing field. If you have health care - try everything they offer to you. If you don't want kids anyway, have a hyst. (I was 28 and it was amazing to be out of pain...for good!) Many cities even have support groups. (I was in them for awhile but it got to be people comparing pains so I left but at least you'll see you're not crazy.) Just don't stop!
As an endo sufferer (who had a hysterectomy and bi-lateral oophrectomy because everything was stuck together), THANK YOU so much for discussing a subject that everyone else seems to just ignore.
So happy I had a hysterectomy to get rid of the fibroids and endometriosis which was not found until I was opened up. It had spread to other organs. Very interesting to hear about it here.
I went through same painful, crippling thing. Everyone I saw pretty much treated me like I was crazy, I actually had an ob-gyn tell me yes I had systs, fibroids, etc but that wasn’t my problem (talking about the pain) when a major medical university finally went in they were shocked at how my organs were fused (the term they used) together. It took 8 hours and 3 different surgical teams. They had to separate and clear out all of that before the full hysterectomy but thank God they finally did. I keep telling doctor after doctor that I know my body and I was even accused of just wanting drugs.
It was horrible and towards the end, before they finally went in, I really thought I would die. Probably would have.
Hysterectomy doesn’t cure endo unfortunately. It cures adneomyosis but not endo. Endo can grow back even after a hysterectomy.
Watching whilst having a flare up! It’s so good to see more and more people talking about it! Getting more and more awareness 👍🏻 thank you
Flare up here too! 😭
me too.. flare up
Rip... Y'all take it easy, aight?
Laying here watching this during an endo flare is some kind of surreal
Have a dear friend who suffers from endometriosis. Thank for this level of detail in explaining what is occurring in the body.
Fascinating and really opened my eyes to this ailment.
Celiac disease would be super cool to see if possible!
Amber Klaire omg yes!
Amber Klaire I had two brothers who had that as babies. Fortunately, they both grew out of it.
@@amythomas1124 you don't grow out of Celiac Disease if it is true Celiac. The only way to keep it at bay after diagnosis is to be completely gluten free for life.
They might have had non celiac gluten intolerance or something, but they didn't have Celiac.
@@amythomas1124 you probably mean colic.
Amber Klaire No, it was definitely Celiac disease. My baby brother had it the worst. My Mom had both my brothers diagnosed, and everything went right through them she said. Gluten was removed from their diets. She was given a strict diet to give them.
This is awesome. I'd like to know if you guys can explain about PCOS.
Yes please! This would be amazing. I have both and boy oh boy the struggle is real.
Hope you're doing okay x.
Cristina Jones yes i’d love that pcos is kicking my arse atm
Please get yourselves on metformin, spironolactone, and low estrogen birth control. Preferably one like Lo-seasonique, that gives you 3 months of protection, and one week of menstruation. Metformin helps the insulin resistance, and weight gain. You won't lose weight, but will prevent more gain. Spironolactone helps with high levels of free testosterone. It helps with extra dark, thick, coarse hair growth as well. Birth control helps with cyst formation and bursting. Helps with painful periods, regulating periods, and often stops menstruation.(no pain woohoo)
SA Inja woof im on desogestrel atm and it helps but the only thing is it prolongs my periods, sometimes up to a month which is kind of annoying, and recently they’ve started getting a bit painful again as well
@@sainjawoof3506 I have the Mirena in and don't even get periods - so kinda yay.
It can actually travel to other areas of the body. It's called endometrial transplantation. A friend of my has lung lesions. She has had her lung to collapse two times and had to have chest tubes.
I’ve had 3 surgeries for endometriosis between the ages of 18-23, my first surgery being the worst; but I got to tell ya- I’ve learned more in this video about endometriosis then I have ever! Thank you!
Hello. Why did you have to have multiple surgeries? Did it come back? My wife is thinking about doing this soon, and I am learning more about it.
How was your recovery after the surgeries (especially since you had a few)?
Thanks
This is amazing. I suffered with endo for years back in a time where doctors knew nothing of it and were not empathetic
Sadly this is still a major issue ☹️. People have to go to like 10 different dr.s to get diagnosed
Same. It's why I'm not diagnosed. I bleed daily and can't do birth control or many medicines.
Same. How many times did you get told you were crazy? my new GYN Dr asked me. "Lots" I replied. She formally apologised, she seemed genuinely sorry I had had to go through all that.
This is so informative. I was diagnosed with endometriosis and when I tell u it is sooo painful! Omg! It brings me to my knees when i have that pain! I also have ovarian cyst but I can't take the normal birth control that the dr would normally prescribe to get rid of them due to the fact that I had breast cancer when I was 19 years old. I had a mastectomy and then reconstructive surgery. I can have no hormonal treatments because of. 😔 I am now 35 thank you god!🙏🏽❤
Thank you. I have had endometriosis since I was 16. Then diagnosed with adenomyosis as well and had an hysterectomy at age 40. I also have Multiple Sclerosis, so when you said it could be an autoimmune response, this is all starting to make sense especially since no one else in my family has experienced this. Thank you so much for sharing!!
I have endometriosis, misdiagnosed for decades by male doctors who said the pain was normal when I was a teen. Then as years went by, it got worse, vomiting included. More years later, vomiting and passing out from the pain. Many years later, I also had endo pain in my intestines, which was double the intense pain for me.
But prior to learning I had endometriosis, I had to go gluten free because gluten really messes me up. When I was gluten free for a few months, I had no endometriosis pain at all. So, to test my theory, I ate gluten foods for a week, a few weeks later, next menstrual cycle I had the endo pain bad and passed out. I’ve been gluten free ever since. Haven’t had any pain at all.
Oh my god, I suggested this a while back and to see that you read the suggestions is just amazing. Thank you so much. My endometriosis was undiagnosed for four years, and in that time I was severely suicidal because nobody could help my pain and it was so bad that I just wanted to die. Thank you so so so much for posting this, you have no idea how appreciated your videos are. Thank you
Me too girl...they even put me in a mental institution because they said it was all in my head and they thght I was making it up and then I started getting anxiety and depression and it just went down hill from there
My daughter had severe endo & did take her own life at almost 26 yrs old. She started self medicating with Vicodin & got addicted. 5 yrs later she's shooting opiates & dieing inside from endo & the devastation that she couldn't have a baby. No rehab could fix that. She was a beautiful person inside & out. She will always be loved & missed. }¡{
@@nollysgrandma I am so sorry for your loss. I had endo on one ovary and my periods were awful. I finally told my doctor that if he wouldn't do a hysterectomy on me I would find some doctor who would. He finally did the surgery, pulled a hole in my bladder and was such a smart a** to me that I never went back to him. Two years later, an endometrial cyst ruptured and I thought I was dying. Had both ovaries removed and the pain went away.
Well done on getting help so early on in your life.
I understand you very well. I suffered for some years before having a laproscopic surgery, too.
As an endometriosis sufferer, thank you for doing this video!
There is so much misinformation about the condition and explaining the damage it can actually do can he difficult
Kudos to the people who donate their bodies to medical science. Keeping us informed and well.
Stage 4 endometriosis at 17, total hysterectomy at 26. I finally started living my life pain free with zero pain medications. Great explanations. I was told it could be environmental but your last explanation seems more likely.
Women with endometriosis never have the baby. In my country they have the herbs medicine to kill it
They guarantee , 6months ll go away
I have the problem as you are. I got surgery , but It came back only 2months. Many women did surgery 5 times n 7times. I found the herbs medicine in my country and the herbs helped me. I did ultrasound n it gone
7 years to find the herbs.and finally I found it only 500 dollars. No painful, no surgery.
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It really is too painful to live white I takes a lot all of pain pills 😖 no more pills for 5m no good SO MUCH PAIN 😰🌪🔥💥 4 all my life pain no thanks . No more work 😰😥😵😰😓no life
New to the channel, you explain beautifully!
I was wondering if you have a video on PCO or could you make one and while at it explain the difference between PCO and PCOS thanks in advance🤔☺
I'm so grateful for this in depth info it's so interesting 🤓 thanks again 😃
My heart goes out to all of you who suffer from this condition. I'm long past it since I'm a retired grandma. But 20+ years of torture, 2 surgeries in my 20s trying to get to the point I could have a baby, no luck, adopted my son, hysterectomy at 35. There's more but that is about it on this subject. I don't regret having a hysterectomy since this disease ruled my life for so many years. But I took hormone replacement therapy. DON'T do it!!
I was diagnosed with Endometriosis and it is around in my bowel . When I had my period the endometriosis acted just like the period . Horrific pain and bleeding. Nothing like anyone can imagine . Virtually impossible to get pregnant.
I had so many problems from this .. surgeries for scar tissue. Ended up with hysterectomy at 22 . Started with period at 8 years old and the periods were with large blood clots with excessive bleeding. Placed on meds for loss of blood. I'm wondering if the usage of fog spraying of Deet 3 times a day at the army base for 2 years . My son died from cancer .
Thank you for talking about Endometriosis and for taking the time to learn all you can! I was diagnosed Stage 2 in January so it means a lot.
I remember the first time I got my period it was excruciating. I was 16 at the time and it wasn't until i was 23 years old that i was diagnosed with endo. In the meantime, i went to countless GP's who just prescribed me painkillers and i even had a female doctor insinuate that it was all in my head. I'm now 44 years old and after countless surgeries and different approaches I am a now able to manage my symptoms and am pain free. I really wish any women out there who suffers from this disease the very best and to not give up on managing their flare ups💖
I had the same from a female OB/GYN. I had thought she might be more sympathetic! But no. Glad you are pain free now!
I had an operation a year ago to remove a big endo cyst on my right ovary and small lesions in surrounding area, after which I was put on hormonal therapy, and oh man, it was such a relief from pain and discomfort. I studied this issue for quite a while and now understand that it doesn't matter how my endo started. The thing is how to go about it NOW.
As a sufferer of endometriosis, I just want to thank you so much for this video. You were so well informed about this extremely painful condition. Thank you for talking about the retrograde menstruation theory and the issues with it. We have also found endometriosis in men! It's crazy.
Thank you! I have endometriosis, it's been a long and painful journey, sometimes i passed out because of the pain and doctors didn't know what it was. Now I can have a "normal" life and this video gives me a visual way to understand what is happening every single month.
Please how did you have a normal life. You did surgery?
I just got diagnosed with endo. Thank you so much for bringing more awareness!!
I'm so glad Endometriosis is being talked about more. I have been told I'm faking the pain because I'm young
The debilitating pain started day 1, 11 years old and continued every period thereafter. I hope the medical industry is becoming more aware and helping young women understand and address the horrible symptoms and side effects of this condition. To be faced with such pain as children trying to understand our changing bodies we need all the support we can get!
Interesting... yes, mine was so bad I had to have an hysterectomy at the age of 31. Never regretted that one! 🙌
Had hysterectomy at 32. Dr said he'd never seen it so bad.
Trying to do the exact same thing here. They keep saying I'm too young.
My mom was 28 when she had to have an emergency one. Her endo was so bad she almost bled to death. Ironically it wasn't even a dr that diagnosed her, it was an INTERN. The dr had never even considered it.
Same here Penny
Mine was so bad I had hysterectomy at age 33
I just found a channel, and as a student who just finished pre-med, this is so informative, even they way he explains, I don’t need captions, and understood every point, extra points for the enthusiasm, thank you so much for sharing ❤️
I had "difficult" periods for years, suffered with intense pain & terrible flow. Angel female GynOb correctly ID & removed my soccer ball sized uterus! Felt 100% better & continue to be thankful for her expertise! Thank you for this video!
;
Thank you for explaining. I always had painful menses. Nausea, vomit at times, severe cramps. Then other pain developed. Small town doc diagnosed rheumatoid. I even went to Mayo. I was 17 in 1975. Never heard the word endometriosis until I tried to conceive. Horrible adult years. Menstrual pain quit in menopause. RA still in me. Wishing you all a better life.
Mine spread after each c-section and I had 3 abdominal surgeries to remove adhesions that caused unbelievable pain. I knew what was happening on an intellectual level but never could visualize it before. Thank you for this video it is very useful.
another point for the stem cell theory!
What were the symptoms of your pain? I'm going through the same thing.
I was going to ask the thing. Based on the stem cell theory having c-sections would cause endometrial cells to leave the uterus and cause endometriosis. I had two c-sections and had awful pain. It wasn't until I finally had a partial hysterectomy that I got my life back.
Such a great and informative video! Thank you so much for taking the time to address Endo. Was recently diagnosed and had my first laparoscopy recently. It is great to be able to see it in this way (I'm also a Med Student but all of our cadavers had hysterectomies so we were missing this visual in our endocrine block).
Keep up the great work guys! Love your videos!
Thank you so much for making this video. I suffered so much from endometriosis and it made my life a living hell. I had a hysterectomy at 29 and it was the best decision of my life because I am no longer suffering. I was fortunate in that I had wonderful doctors who listened, but so many women don’t. It is great to see you talking about this and showing it for the serious and debilitating condition it is. Love you guys.
Thank you for the information for future Endo patients. I had Endometriosis on my appendix. I had lots of surgeries, loss of children, including an Eptopic pregnancy until eventually I had a hysterectomy. With that surgery found my uterus was attached to my intestines. Now all I have is hot flashed not pain.
I know of a woman that had endometrial tissue in her nose. Her nose bled when she had her period
Sharon Bowman w h a t
Wow I didn’t know that, I have endometriosis and lately I’ve been noticing that, that every time when I get my period my nose bleed.
Safia Ali you should talk to your doctor, you could have adenomyosis. It’s where the tissue grows onto the muscles basically & irs very painful. I really hope you don’t but get it checked out! Mine grew onto my urethra :(
wait WHAAAAAAAAAAAAAAATTTTTTT
julie rinaldo yes!! I was misdiagnosed at a very young age but once I was able to get a doctor who actually knew what he was talking about, I had a laparoscopy, a d+c to removing endometrial citings & removing the tissue that built up as much as he could & also a cystoscopy to check if my urethra was working because he saw random fluid in my abdomen but it turned out it was just endometrial fluid.
So much great information here!
I had it for years and never knew. I thought the incredibly long, painful periods were just normal. It wasn't until I had a partial hysterectomy that they found I was at stage 4. My doctor said it looked like an explosion and it was even wrapped around my bowels (which also explained that pain). I found that my late mother had it as well, so I would definitely agree with the genetic theory. Just crazy that it can go so long without being diagnosed.
Did it sometimes cause a painful pressure in your bottom? I just turned 50 and at age 38, I started having painful periods. They got progressively worse over the years. I never go to see doctors and just suffered. I’m going through menopause now thank god. I only had the unbearable pain while trying to menstruate. It felt like labor pains. I would almost vomit from the pain. It was like the blood was trapped and couldn’t pass through, but once a small bit would pass it was like a euphoric feeling. The cramps would stop, but then start back up. I’m so glad I’m almost over menopause!!! I don’t think I could have taken one more year of monthly painful periods like that.
I had this in 2017 but it was on my lower rectus muscle that grew 3 inches long and it was extremely painful I had to have it removed. I had so many complications after that caused 6 more surgeries. I love this video thank you so much!!
LOVE your channel! Takes me back to A&P classes at the university. I always enjoyed studying the human body using cadavers.
Thank you for making this video! I was diagnosed with endometriosis last year through a laparoscopic surgery. Around my junior year maybe earlier I would start developing these super painful cramps in my pelvic region to the point where I would fall to the floor from the pain, I would even start sweating like that’s how bad the pain was. I started seeing a gynecologist and was put in hormonal therapy, it helped for a while but as time went by they were not helping anymore- it was as if my body was defeating the pills if that makes sense. I started getting more symptoms as years went on and I started becoming afraid because I wasn’t being myself anymore then there was a point where my period stopped coming for 8 months! And I remember freakin out thinking the blood was going up somewhere it shouldn’t in my body. My gyno after that decided it was time for surgery and she took longer than usual because she said my endometriosis was really deep and hidden she almost didn’t see it. My life has definitely changed since the surgery, I can’t have periods anymore and every now and then get some ugly ugly cramping but I just gotta push through. Once again thank you for the video and explaining the possible theories they are eye opening!
Finally I can explain it to people from an anatomical perspective!!
I really appreciate this video. I just had a total hysto and bilateral oophorectomy/unilateral salpingo (I’d already had one tube removed in my first clean out surgery) and it was really nice to have it broken down. After surgery, I was diagnosed officially with Stage 4 DIE. They found tissue on my bladder, sigmoid colon, stomach and kidney. I was in excruciating pain for years and was dismissed by my ob/gyn for that entirety. I got a new obgyn just this year and he listened to every word I said. It had been great to feel some relief while I adjust to the “new me”
When they removed my uterus, I had endometriosis budding on the outside of my uterus. It’s was black. It literally looked terrible. I’m glad it was removed when it was and hope my doctor saved me from even more issues than I already have.
Glad you’re doing better
My doctor suspects that I have something similar, but we can't even schedule a surgery for the foreseeable future because of Covid. It's so frustrating.
Yes, does look terrible! Surgeon called them 'chocolate cysts' -- which can be small as a pinhead-- for others who don't know, that is old congealed blood, because the endometrial tissue bleeds anywhere it is, then causes pain and scar tissue which is dreadful, fusing organs together. Glad you're better.
I had Stage 4 Endo. It was imbedded into everything inside. I had a large endometrial cyst that blocked my ureter and killed my kidney. I never had any kidney pain or infections, my Dr. called it a silent obstruction. It was only the 2nd case of this in his career.
I presented with abdominal pain, and had a CT that showed the kidney in a horrible state. I had always had awful periods my whole life, but ovulation pain surpassed it about in my later 30’s. I was ignored by the first Dr. after several vaginal ultrasounds. 😠. Then it all exploded after the CT.
I found a WONDERFUL DR. who specializes in ENDO. I lost a kidney and ovary and have had my life turned upside down. I implore you to find DR. who listens and is willing to help you, and doesn’t act like its normal to take pain pills for periods or ovulation......
Love to all women suffering with this awful stuff. ❤️
The longer more this man informs me about my body the more attractive he becomes.
LMAO
morganmpb He seems like a really nice guy. ☺️
😯
write that down bois
Isn’t it crazy how that happens!?
I agree with you!
It is attractive!
I just found this channel. Very informative videos. I have endometriosis and been suffering with this condition my whole life. I had a total hysterectomy last year, I'm 38 years old. Currently in hormone therapy. I wish this disease will be taken seriously by doctors and have more research. Love your videos!
I love these videos so much. The instructors are amazing at explaining everything!
Thank you for this. I suffer Endometriosis stage 4, not too painful, I've had 5 surgerys and due thoracic surgery now as it's spread.
Lovisa Andrae I’ve just had my diagnostic laparoscopy and I hope I won’t need another surgery for a while. Wishing you the best with your health!
How were you able to get diagnosed if you dont mind me asking, considering it wasn't too painful?
@@pandapower5902 I mentioned it to my GP as back then my periods were extremely rough, now they're not so bad considering how widely spread it is.
as someone who recently had surgery for both deep infiltrating endo and multiple endometriomas - thank you! this explained what many doctors did not. i appreciate you sharing this information!
Very interesting. Love the explanation because he didn't talk above my head
This helps explain it to my family and friends, thank you!
i have endometriosis and its really no fun at all, thank you for uploading this video, far too many people don't understand how serious this disease really is
10 years ago I survived a fallopian tube rupture from an ectopic pregnancy. Very traumatic experience. Would be great if you could do a video on Ectopic Pregnancies to educate people about what happens and why it's life-threatening.
That would be good, yes.
Love, love, love watching your videos. They're great! My mom died from an infected appendix. It was enlightening to see the actual structure in the body.
I had endo and cysts before my excision surgery and hysterectomy two years ago. Things have improved SO MUCH. I still have other issues, but this change had a giant impact upon my life. Glad to see this disease getting attention.
I've been dealing with this since I was 15 years old - I'm now 46. I had seen so many doctors, specialists and surgeons with no one believing me - I knew what I had. It was a case of finding someone who did believe that was nearly 25 years of searching.It wasn't until a had a CT scan leading up to my periods and the GP could see the fluid caught in my pocket of douglas, when he said I can clinical say you have endometriosis - I actually broke down in tears in his office because it was so long before anyone would believe me. I was fortunate enough he could refer me to a gynaecologist immediately who specialised in this area and she happen to be his wife. Within 20 days I was booked into the hospital to have it removed. Turns out I had one of the worst cases she had seen in her 20 years of experience and an adhesion on my right ovary. That was nearly 10 years ago, unfortunately the surgery only gave me normal life for about a year, after that, it all grow back and all symptoms are worst than ever before.
This cause me to have a hysterectomy after 7 surgeries prior. And I still have adhesions as well had to have a nerve cut. And the side it’s on still hurts to this day. I was 20 when this happened I am now 48. Crazy!!! It will never go away for me. God Bless
Thank you. Your descriptions of the causes all make sense and it was great to hear them. Thank you
I had Endometriosis back in the early '70s and for some reason the doctors (I got more than one opinion) had no idea what was wrong with me. They told me I had a "fear of menstruating" and gave me Valium. They told me that I just had bad cramps. They told me that I had a "low pain threshold" for cramps. Soon I was given pain medication and sent on my way. This just got worse and worse and I soon was in constant pain. By the time I ended up in the hospital I was in terrible shape. After dealing with this for more than five years, I had surgery, which lasted four hours. The Endometriosis had fused together my uterus and bladder and, from what I was told, was "making its way" to my rectum. I ended up losing part of my bladder along with my uterus and ovaries.
But coming out of surgery, I was aware of the lack of pain immediately.
I so appreciate your video here. It gives me a much better idea of what the heck was going on inside me. I see now how all this connects. I was 20 years old when I got Endometriosis but not diagnosis until I was 25 ... surgery when I was 27. I'm so glad medical science has come such a long way since then.
I was diagnosed with endometriosis in 1997, at age 21, and doctor told me I wouldn't be able to have any more children and he treated me with Lupron injections for a good year. I also had ovarian cysts that would get so painful too and had surgery to remove them as they were very large & hemorrhagic. Fast forward to 2018, I was diagnosed with Adenomyosis and had so much pain. I had the surgery then in 2019 but my doctor left my right ovary so i wouldn't be put into medical menopause. Oh and the one doctor that told me I wouldn't be able to have any more kids, I had 2 more and I did suffer from miscarriages too (one before endo diagnosis & one after). I knew this was hereditary and worry about my daughters having it.
This is a great video! I was recently told by my Dr he suspects I have Adenomyosis. A video explaining the difference between endometriosis & Adenomyosis, also what Adenomyosis looks like in the body would be awesome!
Thank you. This is one of the most informative videos I’ve ever seen on endometriosis. I suffered with it throughout all of my fertile years and underwent laparoscopic surgery every 2 years for some time. It no doubt affected fertility as it invaded both ovaries. I was grateful to have access to a very experienced gynaecologist but feel for the millions of women who don’t.
I appreciate the weight you’ve given to the subject - highlighting just how many humans suffer from this condition & the need for further research until this crippling condition is understood & therapies are discovered.
I’m so glad to see you’re still working on this. When I was first diagnosed there was nothing my doctors could do except operate. I’ve had 8 operations to try to remove the cysts and webbing on my ovaries in an effort to save them. I still lost one to an Emmergency but they saved the other. After my son was born then naproxen sodium became available by prescription my life improved. Then again when hormones were used as a treatment. This didn’t happen during the time of opiate use so my doctors always believed me. But there was little they could do. Maybe younger women will finally have options I never had without experiencing debilitating, days long, abdominal migraines.
I never knew there were three types of endo. I'm so thankful to learn this. I've got stage 4 endometriosis and it's crippling, some days I cannot move my legs because the pain has numbed them or I've lost too much blood. More women need help with this, and apparently men have a similar disease or disorder where tissue builds up in their bladder and urethra.
Also, the stem cell theory would make a lot of sense, but it's so similar to cancer I'm wondering of its related in a funky way?
Great brain storming!
I would have loved to have him as my A&P professor when I was in college! He’s awesome!
Thank you for this simple explanation of this debilitating disease. One of my best friends missed several days a month of high school due to this malady. The different types of and stem cells theory sound so spot-on in the diagnosis and causes.
Thank-you for sharing this video! You did an excellent job and I am so happy that I have a great resource to help me explain what's going on with me and what I feel to the people closest to me. You have an excellent channel; keep up the awesome work! Big thanks from an Endo sufferer and Canadian Nursing student :)
Thank you for this video! We need more education and awareness out there about endo. The stem cell theory is one I actually haven’t heard yet, but makes the most sense! Amazing. Love your videos, and thanks again for sharing this info as it is so needed! Endo is a brutal disease, I have it myself.
Thank you so much. Upon my hysterectomy, i learned I had multiple organ adhesions and a nearly total perforated uterus. Pain was unbelievable. Still have extensive scarring on most of my internal organs
Wow, thank you for covering this. There isn’t enough Endo awareness out there. I’ve suffered from this pain since the 4th grade. My grandma had ovarian cancer and died at 51. Both of my aunts, her daughters had endometriosis. They had to fight to get full hysterectomies. They were the ones who pointed out to me that I had it. I’m now in the process of getting properly diagnosed and hopefully getting a Full hysterectomy. It’s frustrating when doctors who are ill informed about Endo give you a hard time. They tend to think that you’re exaggerating or that you’re pain is invalid. Thankfully after many years I found a very supportive doctor who is caring and doesn’t view me as a check.
Thank you so much for doing a video on this horrific condition AND for using an accurate definition.