The Inheritance Documentary
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- Опубліковано 31 жов 2018
- Discovering that she has not escaped the family inheritance, Bridget embarks on a journey to honour her mother and find hope for her child.
"Truly one of the most moving and inspirational stories I have ever witnessed on the big screen." - The Dominion Post
"Absolutely an incredible documentary - the type of which, once you see it, you never forget it." - ABC Radio - Фільми й анімація
"Who would ever deny she isn't worth looking after for the rest of her life? Such a stunning person." That is true love.
What a beautiful family. What a gorgeous relationship her parents have. This bastard of a disease is so horrible, so pernicious.
What a wonderful husband not to abandon his wife…
Have you seen the documentary 'Huntington's Dance'? One of her sons has filmed it, but he got a ton of criticism for "using her" and "abandoning" her. But she had a husband and 2 other kids! I couldn't understand their emotions. Anyways, this husband didn't abandon his wife, good for that!
@@krmccarrellYeah, I saw that and the comment section was horrific. Truly just despicable. The doc itself was horribly fantastic in that it was well done but such a sad, tragic disease. I’m so sorry people are, well, just plain mean.
My late uncle passed away when I was a young teen. He had Huntingtons and I had no idea what he endured, my aunt as well. Thank you for shining a bright light on this subject.
Sadly, Huntington's cannot hear her bold words at the end of the video and the strength of her family is going to be tested down the line for all affected. Her father was so wonderful to her mother. The candle-blowing part with the birthday cake was just so sweet. He was so kind to and patient with her. Now, he will have to watch all of his children suffer with this disease and probably some grandchildren.
It teaches you what love really is. 💝
I remember a nursing colleague stating to me in the 1970's that she had this disease and was hoping for a cure before she presented symptoms. God bless her I don't know what became of her. She was a wonderful nurse.
Well, in the 70s they didn’t have the genetic test to confirm a person had it, so perhaps she was in the 50% who never got it.
Thank you Bridget and all the family. You're all so brave to share your lives with us.
Thank you dear people. God bless you all.
The love in the grandchildren’s voices when they are urging their grandmother to blow out the candles on her birthday cake. How bittersweet.
Bridget, you did such a marvelous job with your film. You are so brave. Thank you for this education and window into HD.
This is a fabulous personal documentary. Moving history of a family and an inherited disease, Huntington’s. Incredibly moving.
You all are such an example of a strong, loving and brave family. Thank you, Bridget, for sharing your journey with us… 🙏
This film is quite old, I'd love an update on this family 💜
Thanks so much for sharing your story. My husband and I adopted 2 daughters who's birth mom died of Huntington's. This has been very educational for me! God Bless You!
Hopefully you get them tested
Brave and selfless.
That's not a very good idea unless they show symptoms as there is no medication yet to stop it and maybe they don't want to know, when they're 18 they can decide for themselves.
It’s good that you know..and even better that you’ve been able to offer them a loving home. I sincerely hope that you never need an in-depth understanding of HD x
Thank you for making us aware of Huntington’s disease & your whole family & network for teaching us so much about the meaning of true love, intention & dedication in action in getting this message across, this is a very special, important & meaningful documentary, thank you & all the best to you & your family
This is an amazing doc…thank u to all doing research, Dr’s/nurses/caregivers. This family is very brave and appreciate so much your honesty and courage.
Pu pl0il lol l lol ii😊 no
Thank you so much for doing this. My best pal Tina is briefly in this and seeing her there walking was hard (she is in a home now) but made me smile. HD is a hard, horrible thing to watch people you love go through. Probably the best explanations I have seen so far on Huntingtons and what to expect. I love the way your family has come together and really enjoyed each moment and the love and respect you have shown your mum. I truly hope that the clinical trials they are doing atm will help you and your family.
its so sad i can understand it never leaves your mind scared for life
As well as courageous honesty, this film is based on brilliant research…tracking your ancestors’ lives back into the 1850s is pretty impressive!
Genealogy is really interesting to do just in general. Have you worked on your family tree?
@@celesteerman703 oh yes! Discovered that my grandmother’s “step father” was likely her biological father…but still haven’t worked out why my oh so English mum’s DNA (wherever it’s tested) comes up as 4% West African :-) I’m guessing that ancestor is back to the late 18c and, as you know, the further you go, the harder it is!
@@celesteerman703I’ve also had the privilege of working with families with HD so I’ve got more understanding than I might have of the devastating impact of this on generations within families - and of course on family members who don’t have the gene, as well as those that do. I profoundly hope that the new developments, coupled perhaps by IVF (although I appreciate this is complicated), lead to a better future for affected families like yours.
In the meantime films like yours can make a difference in understanding and compassion for those affected.
@@celesteerman703I’ve also had the privilege of working with families with HD so I’ve got more understanding than I might have of the devastating impact of this on generations within families - and of course on family members who don’t have the gene, as well as those that do. I profoundly hope that the new developments, coupled perhaps by IVF (although I appreciate this is complicated), lead to a better future for affected families like yours.
In the meantime films like yours can make a difference in understanding and compassion for those affected.
What a truly captivating documentary . So sensitive to such a challenging disease. I can't thank you enough for putting it together. Wishing you all the very best .
My family has been stricken with this horrible disease . The worse ever . My father in law , 2 brother in laws , now my 28 year old niece 😢😢😢 . We need to educate the world on this disease. When I talk to friends or family members, I’ve never heard of this , the unspoken disease, the uneducated disease, the disease attacks, the mind, body and soul.
Thank you so much for doing and airing this documentary. ❤
I worked in a one year pilot program as a social worker to provide regional country areas with increased support in1999 for Huntington's disease persons.Very little is any different today,I never ever believed that a real outright cure would happen for either those with the active disease, nor the youth with positive tests nor any forthcoming births back then nor even yet now.Too complex a genetic disease. I do believe in the value of funding and research for the disease.
I respected those avoiding or delaying testing, perhaps daring to have children status unknown, who were of the opinion that the disease still allowed a worthwhile life of worthwhile people, even if cruelly shortened and difficult ending phases.
I've always been frustrated by non -testers counting on cure and unavailable to provide data for research.For the research to be useful(as it will get more so) it will be in modifying the expression, the rate of progress before damage has become substantial plus for late stages ameliorating symptoms.Since 1994 the disease prevalence in children getting this ideally ought to have been becoming rare, yet it isn't changing much due to testing phobia.
In Australia it's still a vey secretive disease.There are many devastated persons through this disease, but there are the loveliest persons and families being as constructive as possible, like in this family video.
It's also important to grasp that despite the debility of later stages of huntington's disease there seem many of them in no hurry to die, which needs to be respected in their care.I've never forgotten the revelation of a mother who asked a daughter suffering much in very severe stages of JHD if she'd rather die soon and was told very certainly she wanted to live as long as possible, not die yet.
I’m sorry, but I have no respect for people who would knowingly and blindly risk passing on this horrible disease to their children. HD is considered one of the WORST ways to go. It is described as having ALS, Parkinson’s and Alzheimer’s at the same time and has some of the HIGHEST suicide rates of any neurodegenerative disease. Sufferers end up bedridden, unable to communicate, wash or use the toilet independently, who would want that for their children?
There are so many options available now. Pre- implantation genetic testing (PGT) to make sure your children won’t have the gene and can live full lives. To say you have respect for people who would blindly pass this on to their children is wild to me.
It sort of annoyed me when they seemed so positive about a cure and that she will get help before she shows symptoms, this documentary is about 10 years old and I haven't heard anything about a cure but hopefully they are working on it and getting closer, I don't think it sounds impossible, hopefully if they could in a way close this gene expression.
@@misskay8131 one of my friends dad has Lewy Body Dementia which is similar to Huntington's Disease.
These neuro degenerative disorders are so devastating- I can't imagine overlooking the genetic component.
My dad was a Neurologist, he had a few Huntington's patients, one of whom was Woody Guthrie.
Thank You, for your educational documentary. I knew nothing about this disease. Your family, your father really knows what the word, "love" means. I wish you all to stay happy, healthy. and full of life. mostly hope. XXX ooo
This sounds cruel to say but a fatal diagnosis of cancer with this hellish disease is in many ways a blessing.
Such a deeply moving and personal documentary. ❤ I only vaguely knew of Huntingtons until I read a book called Inside the O’Briens by Lisa Genova, an American neuroscientist who writes fictional books about people with neurological conditions and how it affects them and the people around them and I learned a lot from that. It might be fiction but it’s very informative and so well written, the characters stay with you. This documentary reinforced what I learned from that and seeing a family going through this and reading the comments as well is heartbreaking. Nobody should have to go through this, I hope a drug to halt it if not cure it isn’t too far away.
This was heartbreaking. You’re a beautiful family and I hope science will find a cure very soon. Your family is fighting this horrendous disease with great courage, love and dignity. I wish you and your family all the best.
What a beautiful documentary. 😭💖💖💖
There is a very powerful documentary about Huntington's, The Huntington's Dance" by Chris Furbee. It is a hard to watch, but it is the reality of the disease and the familial impact.
I just got done watching the one with Chris and his mother...what an awful condition.
This one is better, but that one is also affecting.
Thank you for sharing your family story. HD has affected my Moms family and having researched my own family’s history and struggle I am thankful to your story which helps me answer questions and understand more the tragic stories of loved ones I have known. I also am grateful for hearing of the efforts to study this family “inheritance” and the developing treatments that could benefit those who deal with these disease. Your courage and hard work to bring this to light is not in vain! God bless!
Thankyou for your courage on sharing this nightmare I know other and I would love to know how you are and your family I will pray for everything you need and more deep scientific positive results ..Many Blessings ❤
Thank you for sharing your family and your story and the courage to share your story. It will undoubtedly help many people.
God bless you’re family
I've been scared of this disease for half my life, due to my grandfathers family, he lost most of his siblings and mum.
Beautifully made documentary. Amazing family.
Did one of your parents inherit the gene?
Bless you Janette. You are a gem of a person ❤❤❤
I cried watching this I’m a retired nurse and took care of patients that had Huntington disease and what is so sad a fellow nurse told me her mom had hd and she had extreme fear that she also would have it and all her sisters and their children also . By knowing her and working with her for years it helped me understand and have greater love for my patients. I lost contact with her over the years and I have often wondered how she is doing and how she is coping with it . She did not get tested when I knew her fear stopped her but some of her sisters did and some of them tested positive and actually because they found out ahead they went into deep depression. I wish somehow someway there could be a cure found . I pray for this .
My heart aches for such devotion and love - blessings to each of you beautiful souls ❤️❤️❤️❤️❤️
Thank God today we have the technology to offer these families ways to insure their children will not have to suffer with this disease. Hopefully, there will soon be effective treatments as well.
This was fantastic. Thank you for sharing your family. Good luck. I only wish you had "Huntington's" in the title or description, so I or anyone searching Huntingtons would have found it sooner. 💙
Why oh why is the music louder than the narrative? This is a serious subject, please keep the music lower and in the background, for goodness sake!
So deeply moving! So much courage, love and determination.
Thank you for this priceless documentary! 🙏
there is some hope::: December 13, 2022. Branaplam (LMI070), an experimental oral therapy for Huntington’s disease that’s currently in early clinical trials, reduces levels of the mutant huntingtin protein by interfering with a process called mRNA splicing, a new study reveals.
MRNA= the stuff thats in the vax ?
Here's hoping there is real hope here.
Sending love and prayers from Canada
Sending good vibes to you and your family. god bless you and I wish you nothing but the best through your journey.
Thank you to all involved in this very personal documentary and for sharing such intimate details and facts. It allows for people like myself who did not even know this existed, let alone any further details of it, to learn and absorb and share the message to others. You have created something which teaches, gives details from many areas such as biological social and emotional, brings people together, allows room for further personal research and points viewers in the right direction for good sources, and perhaps most importantly, it shares the message of this cruel disease to both those affected in some way and also to those whose life it hasn’t touched (in some instances, perhaps not yet). With information comes power, and I pray and hope for a cure or a way to cope with this easier, and all those with Huntington’s including family, friends, caregivers, healthcare professionals etc, you have my upmost respect and love, I pray for this disease to cease alongside the other cruel and horrific diseases that exist amongst humans and animals at present. Thank you again for your willingness to share such a personal and intimate documentary in order to spread knowledge.
I have a dear friend who is my age (37) and was tested and was positive at the age of 21 . What a tender young age to see the future of your life …. Just disappear . All his dreams , hopes and desires just poof, gone . He tried to kill himself twice . Once with pills and another time with another substance . The first time he was really trying . Luckily his mom found him . The second time he didn’t mean to . It was his disease taking hold of his brain . He was almost unconscious when he took a bunch of medicine …. Started crawling on his floor to find his mom …. She found him again just in time . They pumped his stomach . Never again did he try that again . Today he’s very much symptomatic . He stays home, indoors, Locked away out of sight , and out of mind . His poor mother is his care taker . He’s never married. Never had a girl friend . In fact his mom set us “up” before he knew his fate . She ironically married my Uncle . After her husband passed from this tragic
Disease . Randy learned of his demise and faced it head on after that . He told me he would not marry. And would never bring a child into this world knowing it had a chance of getting this disease . He said it stopped with him . I commend him for his bravery . Facing each day . While seeing the world around him live their lives . My heart always will carry a small space for him . As he was someone who deserved the world . He still does . He lost a lot of years being angry and defiant over his diagnosis. I guess that’s easy for an average person to say …. But seeing how long he was non- symptomatic …. How long he carried on with his mental stability . He could have led a very full life . He even could have married . Had kids . Just with a little tweaking . It’s just such a loss to see someone just want to be defiant and refuse to take life by the balls and just live . I hope one day he may see the light and have a few good years before he is completely mentally and physically incapable.
Respectfully, I don’t get the logic of “the second time he didn’t mean to, it was the disease getting a hold of his brain” and then going on to describe the quality of life (or lack thereof) he has now. It is not mental illness or a disease “getting a hold” of someone’s brain when terminally ill people wish they could get a way out. It is a perfectly reasonable response to knowing that you will have no future and will be subjected to being “locked” inside your body. No one would want that for themselves.
Also, it’s very easy with hindsight to lament and say the things he could have/should have done with his life before he became symptomatic, but come on, he found out he had probably the worst neurodegenerative disease there is and didn’t know when the onset would be. We have no idea what that does to someone and their will to live going forward.
Wow …. Just wow …
Beautiful!!!
Often Huntington’s Korea in the early stages is misdiagnosed as schizophrenia. It’s a sad sad situation.
chorea*
chorea, not Korea!!
Korea. Thats cute ❤😊
Amazing family, good luck
thank you love. that was incredible. got the gene too
Wow, what a beautiful documentary!
amazing!!
JUST BEAUTIFUL 💓🙌🙏
Yeah if there is a test to confirm huntington's and the daughter had a baby anyway, it's extremely selfish. Horrible disease
They are close in finding a cure.?? They said that 10 years ago.
Is there the belief that everything can be cured if we just try hard enough? We still haven't cured the common cold.
The good news is that they have made a lot of progress in the treatment of MS, which also has that abnormal protein factor and degenerative effects.
But not a cure.
We’ve got to find a cure . This is horrendous
Beautiful film.
What a predicament one child had a option and the other no option
Science is improving but not fast enough
My father died from ALS another terrible fate I watched that disease steal him
i really loved the song The Gift.
The volume was very low.
This video is some what helpful. But still in 2023 there is no cure. I come from a family of huntingtons. It seems to run on the male side.My grandfather my father my brother all passed at 62 or 63 . I am 75 my sister 70. We both have children . I was caretaker of my father an brother. It is a monster of a thing to go through.
We have recently found out my husband family has Huntington's, I want a copy of this documentary to show family, where can I do that ?????? Thanks you your story has helped with so many questions.
Newer televisions allow you to cast from UA-cam. You can also use the share button here to send them the link. Best of luck.
❤
Is there a test u can get to see if your in the early stages? Bc I have all those symptoms. I've had them for years 👀
I’ve always wanted to be a scientist . Watching how things work. How they react to certain stimuli . I’m just too pre-occupied for that much school though
Wow what a lovely husband!
They should be able to fix this with CRISPR technology soon
You could easily fix it by not having children!
@@Woodman-Spare-that-tree
Yes, and EVERYTHING would be fixed if people stopped having them
Question: At what age can the test be done to find out if they can develop HD?
From birth
@@mmay6621 Thank you very much.
Do some couples have a higher likelihood (than 50%) between their reproductive cells in forming an embryo that is HD positive? I'm wondering this because there are families where all children turn out to be HD positive.
Johanna: I've noticed that too.
No. The thing is that EVERY pregnancy has a 50% chance of getting Huntingtons, not that 50% of all their kids. Some families gets so lucky that all their kids are born healthy while another family is getting the opposite...that all children is born with it.
Genetics is a crapshoot. You can roll sevens forever, then lose it all one roll. A game of chance.
@@1houndgal There could be an end to genetic diseases.
50% chance doesn't mean that every other child has it. you can flip a coin and get heads several times in a row, it's just how randomness works
How can I help?
Many are trapped in their bodies
Do you know there is something that I have noticed in watching several you tube videos about Huntington’s….. and that is that nearly all the people had very tight curley hair. Maybe this is something that is a trait? You never know?
🙈😢❣
A person with Huntingtons could be mistaken for someone on meth or fentanyl
maybe flakka
Someone commented about the music.. so inappropriate when dealing with a serious subject like this.
Scientists expose the inheritance curse😮😮😮😮 now it will slow down til right person stop it😢😮😊😊😊😊😊😊 it fights 2 survive😢😢😢😢😢😢
Have to educate yourself , get tested if you plan to start a family , and ADOPT please stop the cycle
One of my favourite sayings “I’m ready to kill you now, come for me”
Que
Former President Kennedy had this disease😮😮😢😢😢😢😢
It seems that most of the time they get it, even though it's supposed to be 50/50. Why is this?
I was thinking same thing. 3 sons all are positive. Are there any families where there are 3 negatives, when there are only 3 children?
This illustrates why all newly pregnant women should get screened for genetic defects
How about before they get pregnant? On the one hand, they say it's a terrible fate. On the other, they're offended at the idea of not reproducing because of it. Kind of irrational. Eugenics isn't necessarily bad.
I understand the idea, but that is TOO LATE for people who believe human life begins at the moment of conception. PLEASE test PRIOR to doing what it takes to become pregnant 😢💙
Amazing family 💞 Just remember Jesus cares even if you do not acknowledge Him but oh the joy He can bring if you walk through the darkness of disease with Him… a peace without measure🙏
Horrible sound quality. Can hear you but no one else.
I think its just you
Yes, it's hard to hear in parts I use the subtitles.
It is very hard to hear.
It's not only unfair to pass on the gene, it's also awful to subject a child to the massive heartache of having a parent with Huntington's. Selfish.
Agree
I saw more love in this family than in many who have no disease.
You know you don't get to choose what genes you pass on, right? And that symptoms of HD often begin after many people are done having their family?
@@jessabidwell310 Yes agree. But if you know its in the family and a close relative has had it then i would say for me that i would not have children as it the most horrible illness. And no cure on the horizon.
@@pam164 I guess I would just challenge you to see it from the family's point of view...imagine if someone told you that you should never have children just based on something you have no control over. That doesn't seem fair, either. We can't discount the hope that a family might feel in finding a cure for their child, and we can't discount the many years of societal benefit that someone can have, even if they do have a genetic condition. Regardless of the joy and love involved in having a family, for example, any advances we have made in HD medicine have largely been influenced by family members and loved ones of those with HD (philanthropy, legislation, etc.). Where would be we be in medicine in this condition if we made eugenic recommendations that no one with a genetic condition like HD ever be allowed to procreate?
Reproductive responsibility
So the director had a child knowing they may die a horrific death. The absolute epitome of selfishness. Shameful.
I see where you’re coming from, but it was a bit more complicated than that. She got pregnant by accident like a lot of people do - and she didn’t know her status at that point and didn’t feel that she could have a termination. The context sucks and I think those of us who haven’t been there really shouldnt judge. If she’d had another child knowing her status, I too would succumb to judgement but she did pre implantation diagnosis instead.
I also think that we should appreciate that’s she’s shared some really personal history to help everyone with HD…and perhaps we should be kinder in this context.
Wouldn't it be ironic if her first son showed signs and she had to nurse him to his death (serving her right for willfully putting him at risk) and then she deteriorated before enjoying her other son.
Wow, so you hope that a child has this disease to punish his mother for becoming pregnant unexpectedly. Then you hope that the second child, who presumably at this stage has lost his older brother, would lose his mother also. I hope life always goes exactly as you plan and you never make a mistake because you are really tempting fate, or karma or whatever by being so judgemental and cruel. Shame on you.
That was one of the most inappropriate comments I have ever read. You have no idea how hurtful this is.
eutanasia
I'm sorry but Fatal Familial Insomnia is BY FAR the worst disease with Radium/Phosphorous poisoning coming a close second.
Depends how you look at it Fatal familial insomnia is quick , HD is slow .
Lots of horrible diseases. My dad died of frontal temporal dementia and alzheimers. My family has a lot of dementia in it. Possibly Familial Dutch Dementia. It was a nightmare. Now I wait to see if I or other relatives end up getting dementia also.
I say Alzheimer's but it's not a contest.
FfI certainly is horrible, but it’s definitely not a contest and there aren’t any winners :-(
@@1houndgal is that this please? I used to work in Yod, but never heard of FDD…pubmed.ncbi.nlm.nih.gov/33361604/
This doesn't really have much to do with inheritance.
sian cake 😑 it’s because the disease is... inherited
It's about inheriting a disease generation after generation...it has everything to do with inheritance.
Inheritance isn't just about money.
Huh?
@The Broken One. This is unnecessarily nasty comment!