Thank you for your videos and research! Whenever i have a relapse and am feeling depressed I find coming to see if you have posted any new content always helps me a little. Even if you haven't posted any new content, just coming to the comment section and reading peoples stories and reading replies helps me cope. You are helping so many people it's amazing! Just knowing there are others out there also searching for answers gives me hope. I've tried so many things at this point. I'm coming up on a year with long covid. Another thing that is hopeful is that, even though I've had this issue for so long, I am still finding new things to try and still learning new potential ways to treat it. I hope nobody else gives up either. All of our minds together can find the answer. Good luck everyone! And to anyone suffering from depression from all of this, just know that it will pass. No matter how bad things appear to be, just know it is only temporary and it WILL get better.
There’s going to be lots more content going up very soon - do keep coming back! I’ve got interviews lined up with some of the leading specialists in different connected fields
@@RUNDMC1 Great ! Looking forward to your videos. The population is not aware, I think, of how massively important this subject is and will become. Take me for example: totally unable to go back to work.... after 3 months ! Thank you.
I've treated the whole long-haul COVID-19 experience as an adventure, and I'm blessed to have the financial resources, insurance, and an excellent physician who is willing to go the distance with me. Medically speaking, I've thrown everything at my long haul COVID-19. The setbacks have have humbled me and taught me not to celebrate any victories over long COVID-19 symptoms. It takes what it takes.
@@CustomerBloom I think many of us have - but yes you are very blessed to have good resources to access as most dont it seems, sadly - as yet anyway in the UK. Yes do share your adventure and humblings!
I have been taking niacin for a few days. I am extremely impressed !!! Less breathlessness and more energy. You are on to something important, at least for some people.
Hi, I've been suffering a low fever, dry skin, palpitations, pulsating all over my body, visible veins, body aches, stomach aches.. all those in 2 months post covid now. Im only 20, all tests done. No inflammation. No heart problems. No lung or breathing problems. Are yoh doing better now? What were your symptoms?
@@haidarbadran2634 I am also 20 and am having sinus tachycardia issues as well. Did that start for you as soon as the other symtoms did or was it delayed? Its hard for me to figure out if its just stress/anxiety or an actual issue. I have had 3 EKGs done with it coming back as sinus tachycardia, doctors just gave me anti anxiety meds which I am hesitant to take.
@@haidarbadran2634 Hi, sorry to hear of your experience. It is definitely common and part of what us doctors term "dysautonomia"... where your "fight and flight" part of your nervous system goes a bit crazy. We don't know why this happens in some and not others but it does ease. I would ask your doctor to prescribe the anti-histamine regime and see if it helps. Specifically fexofenadine 180mg once or twice a day and Famotidine 40mg daily. Often tests come back normal. Try also a good probiotic like Optibac Everyday and Quercetin phytosome. (thorne) to support your natural defences. A Low Histamine Dietary approach helps some also. Best.
@@calebd.2014 It is part of the "dysautonomia" which is common post covid. Distressing - i understand. You may learn from watching Gez's previous video with Ashok Gupta and myself discussing this. In my experience anti-histamine really helped this aspect, as well as learning to breath better - to slow the outbreath. You may find this helpful - ua-cam.com/video/AiwrtgWQeDc/v-deo.html with Oxygen Advantage Author - Patrick McKeown
Thankyou so much for this . I like thousands of others have been totally floored by covid . I caught covid thirteen weeks ago and although I wasn't hospitalised I had covid pneumonia and had a pretty severe case of covid . Week six and the debilitating neurological symptoms started and are still ongoing thirteen weeks in . My brain throbs all the time ,I have pins and needles and numbness and fatigue all the time . The brain fog is so debilitating . I'm taking niacin , Ala , Q10, magnesium, carnatine , vitamin D , c and Udos omega oil . Everything you've said makes complete sense . Thankyou for ending the conversation on a positive . I am trying so hard to stay positive but this feels like such an endurance test . Stay strong everyone
the cure for covid is 18mg ivermectin and 50mg zinc taken daily for 4 days in a row ,the main reason you have a weak immune system you have low glutathione levels ,low vit a levels and low vit d levels thats the dreadful trio the main cause of sickness,disease and cancers in the body,you have a low oxygen environment in the cell thats why the immune system isnot working properly,the stuff you are taking isnot addressing the weak immune system,take 2 x 600mg caps n.a.c.morn/eve to safely raise the critical glutathione levels so theres enough atp to fuel the immune system,its impossable to be healthy with low glutathione levels - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve -1 x 1500mg caps quercetin/bromelain morn/eve - 2 cloves not the garlic type morn/eve this combination is the worlds most powerful superfoods,you take it with food and it wont take long for your immune system to start working properly
you are not addressing the critical glutathione levels,that caused low atp levels thats why your macrophages and tcells used cytokine storms,not enough atp to work properly ,please take whats in my message and you will regain your health in a bout a week,its great you just get better and better the cure for covid is 18mg ivermectin and 50mg zinc taken once a day for 4 days ina row then take the stuff to make sure your immune system works properly,theres no need for anyone to be sick,i shared knowledge on the immune system with you that no doctor has,i shared it so you can take charge of your own health ,low glutathione is what is the root cause of all your problems,the protocl i put up is the safest fastest method on earth to heal a weak immune system
@@Beekind799 thankyou so much for your advice . I have just bought some liquid glutathione and wil start that . With regards to ivermectin I don't be prescribed that my my doctor . I have now been referred to s long covid clinic . Thanks again
Thank you from Connecticut USA. I’m so sorry you’re still suffering with Long Haul Covid, I’m at 6 months. Sooo many effects. Exhaustion & SIBO worst side effects now. USA has begun Covid Recovery Groups, Doctors who treat Covid related lung, heart, GI, etc. with Covid in mind. It’s so much better than regular medicine.
i wish i had seen this video 20 years ago. I have ME/CFS and i have ALL the symptoms you discuss and MORE. The understanding of what was going on in my body after having a severe cold that burst my eardrum would have been sooo helpful to my mental health. As it is i have discovered and treated all these symptoms by myself. I am surprised to hear you say about resting after the infection was not known, it is now known in ME/CFS if you completely rest after the first acute phase you have a much better chance of recovering. Unfortunately i did not know that 20 years ago but i am surprised its not known now. Go to bed for 6 months as they would have done back in the day and you may beat it!!! ( not usually possible in todays life but the alternative is life devastating) i should know I've been living with the same thing for 20 years and i still crash. I am hoping with all my heart a new treatment will be around the corner. Although interestingly i have recently been treated with steroids for nasal polyps and i have a much better exercise tolerance and i can be mush more active ( i dont work anymore) so not as active as a healthy person but i feel loads better. I know its Immune related and always have and suggested it to my GP 15 years ago. I was told there was nothing wrong with my immune system and it still makes me insanely angry! Maybe if The ME/CFS community had been taken seriously by the medical profession decades ago then long Covid patients wouldn't now be joining us. The post viral syndromes would have a treatment plan be caught in the bud and all those millions of Long Covid lives wouldn't be changed FOREVER!
Great conversation. I have been dealing with all the symptoms you have described for the past 14 months. Five days ago I had my firs Pfizer shot. I was scared and expected the worst. To my surprise I started to feel better within the first 4 hours after the shot. Ended up having some mild symptoms for a few days, but over all I feel like it turned off the virus that has been actively attacking me for the past year. My whole family noticed how much better I am doing. I think viral persistence theory is true for a lot of people at least it seems to be for me.
Thank you Dr.Lewis and Dr. Greenland.....still fighting after 14/15 months. You give me hope. ...and I need hope. Love and respect to you both, from North Carolina, USA. WELL DONE. I had first vaccine...9 days til 2nd dose...can't wait!!!😉
Thank you for the feedback Kelly, will continue to shine the light of hope as we learn. Let us know if vaccine 2 helps. I"ve switched my self-talk from fighting to healing and giving it space. With Best.
Niacin helped me a little bit. B12 also helped. Zinc helped. Tumeric (curcuma) helped. Magnesium helped. They all do just a little, but many little things will help quite a lot overall! After 4 months, I can finally see that I have more good days, while still having to be reasonnable.
the cure for all post viral conditions is 18mg ivermectin and 50mg zinc taken daily for 4 days in a row ,let me share some real science on the immune system so you can take charge of your own health,you have low glutathione levels,this fuels the cell mitochondria that makes glucose and oxygen in the cell which causes a chemical reaction which makes atp ,its atp which fuels all the bodies systems including the immune systems macrophages and tcells ,if the atp level is low the macrophages and tcells wont work,the dredentic cells will sound the alarm the macrophages and tcells will turn up,with low atp levels they cant gobble up the virus,they start to shake like a car without shock absorbers and start to spit out cytokine storms,they can kill you ,the low atp levels decrease the mobilization and transportation of all amino acids,minerals and vitamins,this is your weak immune system low glutathione levels,low vit a and low vit d ,thats the dreadful trio the weak immune system the main cause of sickness,disease and cancers ,its the low glutathione levels whats causing all the problems,low oxygen levels in the cell,thats cancer ,you have got to raise the oxygen levels in the cells by safely raising the bodies critical glutathione levels or you wont regain your health,this covid long haul is killing people take this to safely address your weak immune system 2 x 600mg caps n.a.c.morn/eve this safely raises the critical glutathione levels,its impossable to be healthy with low glutathione levels because cell mitochondria cant make enough oxygen in the cell - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve 2 cloves not the garlic type morn/eve that combination is the worlds most powerful superfoods,the beef liver is packed with selenium which mixes with the n.a.c. and makes glutathione ,you take that with food ,your weak immune system cant expel dead virus particles from your system,that swhy you are struggleing
@Dermot Fitzpatrick heres a trial that shows 20000mg of iv vit c by drip every 12 hours , that saved every coronavirus patient and they had no long haulers you tube dr richard cheng - shanghai trial you tube dr shiva ayyadurai - vit c the power to save lives start the video 13 minutes in why are you sending me nonsense,its long since esatblished the life saving power of high dose iv vit c in the trial they dont use a high enough dose 8000mg isnot a high enough dose for iv vit c thats why the trial failed,lets see what real science you know,tell me why the immune system uses cytokine storms,its a very simple answer but to answer that question you have to know what the immune system uses for fuel,you wont be able to google that,nurse campbell and none of his colleagues can answer a simple question on the immune system,tell me whats the reason the immune system uses cytokine storms,
@@Beekind799 I'll hazard a crack at this, humbly . . . cytokine are SIGNALLING to killer T-cells and macrophages to 'come and attack'. ??? How did I do?
@@eugeniebreida the dredentic cells send a cytokine mesage to the macrophages and tcells , theres a virus ,the macrophages and tcells turn up,with low atp levels they cant contract and expand , ,they will try , become exhausted and start spitting out cytokine storms in a desperate attempt to kill the virus the problem with cytokine storms is they can kill the host low glutathione levels causes an awful domino effect ,its impossable to be healthy with low glutathione levels ,it indirectly decreases the atp levels which fuel every system in the body ,cancer patients all have low atp levels
@@Beekind799 Thanks! So . . . you must take NAC for your glutathione levels, eh? What else makes sense to you under current conditions? Also more specifically, you wrote "become exhausted and start spitting out cytokine storms in a desperate attempt to kill the virus the problem with cytokine storms is they can kill the host" . . . are there names to these different cytokines? I know that 'storms' is just a nickname for something by far more
I had my first dose of pfizer and can't say I'm worse, only some arm pain for 3 days and felt pretty good, I could actually finally sleep kinda normal. Yesterday I stayed a bit too late and I was unable to sleep until 6 am and at 9 I had to work so now I'm a bit fcked but still nowhere near I was 2 months ago. After 4 months I think time is the only thing that helped me the most, vitamins probably did very little. I can say in my good days I'm 85%-90% and in bad days like today I'm at 70% which is a big improvement compared to 4 months ago when 70% was a good day. Still not perfect but going on the right direction. Sleep is still my biggest issues but now I actually get good sleep in some days which I never had like 2-3 months ago.
The constant pressure of stress on our bodies and minds caused by 1.5 year of health uncertanty and BS by the government's has a big influence on how we are doing. Many of us never had this amount of stress for such a long time in our lives. It's not surprising we feel bad as long haulers... Many things are spot on in this talk! We would feel so much better with normal social contacts and the press shut up for 300 years. Eat/live as healthy as you can, hug your friends, and talk as little as possible about covid..... Free your brain if you can!
It takes time and endurance to beat long covid. It took me 7 months to fully recover. Sometimes I was afraid I never would recover fully. It's a bumpy road!
Thank you this is good rehashing of this topic and some helpful ideas for us. I have one question no one has answered for me yet. Since Covid I have lower body temps. It varies throughout the day sometimes. They range from 96.2F to 98.5, rarely does it go over that. Have you had this reported by your patients?
I have this, too! I range from 95.0-97.7⁰F - and I'm actually a little worried because if you drop down into the 94⁰ range then your body can go into hypothermia.
I've had low body temp for the first time in my life during my initial illness and for 12 months afterwards, my temperature turn to normal only in the last month and a half.
@@maybemaybenot44 I feel the same way. I've tried so many things and they all seem to just be temporary or small fixes. I think I will try the vaccine next. Hoping it doesn't make my long covid symptoms worse. Hope you get better really soon. I worry that this is permanent as well but there is some evidence out there that shows people are recovering. Either way, as time goes on, we will learn more about this and how to treat it. Just need to see the horizon I think. I just hope in all my self experimenting I don't make things worse lol.
My chest pain/soreness turned out to be severe Right heart dilation (new, per MRI), but resolved on its own. Function was only "mild dysfunction" 30 day EKG normal. Lasted 6 months. Im 9 months out. No prescriptions. Paced incremental daily walks.
It's so interesting that Dr. Lewis talks about a high-salt diet and lots of fluids as helpful with dysautonomia in long Covid. I have been suffering from that (or something very like it, as my dizziness, chest pain, and tachycardia worsen when I lie down, not when I stand up) for over a year now, and I have found through trial and error that exactly that kind of diet, plus eliminating sugar and alcohol, does indeed help.
Hi Brad, I mentioned the video i recorded with Gez prior to this one with Dr Ashok Gupta surrounding dysautonomia which you can view on his channel. There are also a series of videos on the wellgevity.com website for subscriber access. best
Thank you kindly for the reply. I do appreciate it. I am a big follower of both your channel and Gez. Was really curious as to what supplements you suggest.
Three things helped, low histamine diet, the vaccine, and my doctor saying "it must be Epstein Bar retuning!😊". This cheered me up and I felt good physically upon hearing that. It turned out that it wasn't Epstein Barr. But I still felt better. Must have been the placebo effect. Than I went on a big hike and it came back. So now I'm going to see about getting a second vaccine of the different type. I had J&J already, and I just read they recommend in Germany to get a mRNA as well. So covered in both ways.
Also, even if you feel great and fully recovered still don't do any serious excersize. I went on a fairly strenuous hike - oops! Now gettting back to recovering again. Thank you Katie, for the reply 😘
@@alipainting I'm learning that topping off with an mRNa or vice versa is the way to go in general, Best for good results w/lower side effects. no doubt soon we will learn more. best!
After having COVID a blood test revealed that I had low thyroid hormone. I wonder if this is the cause of my chronic fatigue!?!?. I have my first appointment with an Endocrinologist next week.
Following Grand rounds from Stanford University they brought up the fact that thyroid issues might be an indicator of developing Long Covid. My daughter-in-law and her mother both have hereditary thyroid problems so I was extremely relieved when they received their vaccinations. My mother had low thyroid and took medication for years which improved her vitality, if she missed her medication she felt sluggish.
Low thyroid . . . the first thing to do is to calm down, and be SURE that you are ingesting daily iodine. Ideas: 1) use iodized salt. OR 2) take yer seaweed w/a meal 3) iodine supplement drops (just ONE per day, I'm forgetting the mcg - quite tiny). That should take care of you. Re measure your levels in three months. My Endo NEVER ever suggested I be sure my intake was adequate. Neither of them did, and both are respected MD's. JUST a tiny oversight on their part, however!
Hyperthermic conditioning, via infra red, for example, boosts the immune system ( presumably recalibration of an out if balance immune system that has gone into inflammatory overdrive as result of covid) . Heat shock proteins are released from muscles that can cross the blood brain barrier and ultimately result in improved mood, etc. See UA-cam clips by Dr Rhondda Patrick.
My tinnitus flared up to a loud volume, three months after my first Covid symptoms, before that 3 month point it was at it's baseline volume. I'm not sure but it was even Covid related but hard to deny it had at least a minor role to do with the drastic change with the tinnitus.
I too had tinnitus so severe it kept me awake .. it now 14months later is ok, but flares with stress and other infections. Inflammation again is one of the drivers. Cranio-Osteo has helped some with this symptom as predominant.Take care
After the 2nd Pfizer vaccine dose, some of my Long Covid symphtoms returned worsened: Fatigue, brain fog, tachycardia. Is it a reaction of my immune system? Should I treat them as LC symphtoms? 2 neurologist already said there's nothing to help them. What can I do to help them?
Have you considered eliminating high histamine producing foods? The low histamine diet isn't particularly restrictive and I've had a definite improvement in my long covid symptoms.
I have Fibromyalgia and now have long COVID. Two hospitalisations and loads of supplements but am getting increasingly worse and am virtually bed bound. Mostly mialgia and nerve inflammation. Any suggestions on how to mitigate my symptoms are welcome 🙏
I hear working out causes you to feel worse the next day. Thats what happened to me. But I did hardly any of my workout, but I guess it was enough to start that inflammation going. I heard the question about heart racing, and I'm glad it was asked. That is one of my symptoms. You said antihistamines? What kind? I'm taking Metopropol 50mg for my heart beats, can you take that also! I do have fatigue, and when my heart races I get dizzy flushed and feel like my legs and arms get weak. Its horrible.
Hi I am from India. I really appreciate your efforts for long haulers like me. It has been three months that my body temperature post covid has not become steady. It is normal in morning and increases with the progression of the day and shoots upto 99.5°F in the evening. At night automatically it becomes normal. I feel very feverish when it goes around 99. No anti pyretic drug responds to it. I am far from normal life for this temperature dysregulation. If possible, please make a video regarding this temperature dysregulation.
Mild Covid. 7 weeks since it presented. I walked 20 miles per week. Once instance of tachycardia... thankfully.👀 Unbelievable fatigue....I am at the point where I can do light housework now. Not vaccinated .....my journey calls for patience. Lots of veggies and fruit. I'm getting there!🦋🌺🦋🌺🦋 Chose not to vax as I have concerns of cytokine storm. Mild lupus.
Medication brought me back 90% and I got the vaccine and I think that made it even better, but not sure. I'm off meds now and able to work out again. I'm not an athlete in fact quite the opposite, but I'm able to do the same workout if not much harder before covid. Hopefully there is no relapse from here I just feel back to normal now hard to explain, but long haulers know what I mean.
Do we know if bulging visible or full neck veins / arteries are associated as Doctors don’t seem concern my my Carotid artery is visible at rest of late
Currently trying Ivermectin. Doctor says it won't work so won't prescribe it, so had to resort to my wife's horse paste. Going off of the FLCCC recommendation I am took 200mcg/kg on day one and day three, which happens to be the same level as horses. Today is my second dose, and I will say I am doing better. My perpetual headache has gone away as well as brain fog. I can actually concentrate. Fatigue is still there and at this point too scared to try any level of physical excursion. I will probably do a third dose in a couple of days and then stop to see if the effect stays. if this does not work, my next try is fluvoxamine. My doctor says it has promise but says I should wait till studies are complete. What for? If it helps one person it is worth a try as doing nothing gives me no chance.
As clinicians we must abide by "First do no harm" and weigh up pros and cons but are always looking for evidence based guidelines, which take time. Ivermectin appears to be a very safe medication.
Following up on my experience with Ivermectin. After three doses I was feeling better with clearer mind and no headaches, however after about 4 day from last dose I fully reverted back to where I was. Conclusion: temporary benefit and did not solve fatigue.
@@kapaul1584 Exactly what I have heard - temporary benefit for most long haulers. I think IF you had active covid virus, THEN it might make a more permanent change. I think this 'test' might prove you have no virus for ivermectin to 'kill kill kill!!' : ). Thus IF you took a vaccine (not saying to do so) I would think you'd be one who would NOT see an immune reset benefit.
@@eugeniebreida I did get the vaccine and while I had a reaction to both shots, it did not change my long covid symptoms. Has anyone had success with Fluvoxamine for long covid?
Hello, I just want to thank you for all your research on LC. I was wondering i you’ve done or plan to do a vax survey like before but with data about the month in which they received the vaccine.
@@juliegill9322 Hi, DAO can help symptoms related to histamine intolerance - like throat swelling, running nose, stomach bloating, skin blotchiness which can occur after eating/drinking histamine rich or histamine-releasing foods. Best to take 30min pre food. If histamine symptoms are improved, generally fatigue can be improved
Not sure if this will be picked up but how long are you supposed to take antihistamines...I was put on ppis due to my gastritis which seems to be from covid never had it before ( caught covid march 2020) the ppis made me feel odd and lowered my neutrophiles ( think H2 blockers can do the same so am bit anxious to take more GI drugs) ...help
I've had the same experience that you describe. Only in the last month as my bladder problems cleared I was sick with covid the last week of February 2020
Thank you both very much for this. Thanks too to Gez. I have just had the results of my head and spine MRI. I had fully expected the scan to be clear as my neurologist in Exeter had referred me for potential blood clots and I hadn't heard back for ages. The results were a goitre, lesions suggesting two mini strokes and narrowing of spinal canal. I have been referred to a thyroid surgeon. Is my baby asprin (75mg Tesco gut friendly) sufficient to protect from any further mini strokes? Is there evidence that the thyroid recovers if caused by LC? Thank you!
I’m so sorry to hear this - but thromboembolic events are not unheard of post COVID. I’m afraid I’m not qualified to comment on the aspirin dosage - you’ll have to ask your doc. As for evidence of thyroid recovery - as with all things LC, it’s too early to say :(
Hi there. . . as one who's had multiple thyroid/goitre issues, among other 'things' that show up on MRI's when one actually does them, I would like to chime in. Have you been taking iodine regularly for most of your life (seaweed of proper sort, iodized salt, iodine drop daily?) or most of your adult, goitered life? If not, unless you feel your goiter is outragrageous I would make an attempt to 'feed your thyroid' with proper nourishment (daily value of iodine is all you need, nothing more) for a few months and see if that does not come down, and if your thyroid readings are 'off' now, if they do not improve. I had a partial thyroidectomy back ten years, and have been limping along very easily on a pretty ragged looking other half . . .just being sure to get my iodine (had never done previously). I don't need synthetic thyroid med, only iodine. Some MD's fail to notify that may be ALL you need. I pipe in here as I could have avoided a lot of manufactured health 'issues' (surgeries) by taking a look at nutrition/hormones (iodine/estrogen/testost) rather than digging in on fibroids and thyroids. MUCH can be corrected if measured IN THE BLOOD, no cutting and dicing necessary! Having been round the horn long enough (and quite enough MRI's) I can promise they will ALWAYS find something 'of concern' - that will scare you. Don't let it. Life is happening inside you. If you've got an aggressive cancer - by all means, let the doc grab his scalpel! Blessings
Hi Gez, have a question for Dr Tamsin. Hope she takes note of it. In one of her interviews with you she talked about Infra red sauna therapy having the potential to help Long Haulers, I have a Sauna set up at home, but the steam one. Will it do?
It will have a very different effect on your body as it’s not just the heat that it’s for - by all means use it if it makes you feel better. If you’re dizzy or uncomfortable afterwards do be careful though!
@@RUNDMC1 thanks Gez. How will the Infra red sauna have a beneficial effect? To the best of my understanding both of the saunas rely on heat as a medium for healing. Your take Gez
During my year of tests for Long Covid, nodules have shown up in my lungs and my thyroid is said to be enlarged. It is suggested that I have Cancer. You almost said that Covid can inflame lungs and the thyroid. Have you heard a relationship between Long Covid and cancer diagnosis ?
@@RUNDMC1 Various doctors and consultants say that's what the scan indicates. i have put on loads of weight ! They say it is very early - probably. I'm not so sure !
@@xx4312 If it Is something you can do, losing the weight will be beneficial re cancer growth. best wishes. (easy for me to talk, I have difficulty gaining. but I think my various cancer cells are not fed the extra inflammation/fire that fat cells produce). I hope this is an inspiring note, and I really can't imagine it is easier for you to lose than for me to gain. (I can only eat 'not fun' foods, so no jealousy warranted)
Check for POTS, go to a cardiologist, check your heart rate laying down, then stand up and if the difference in heart rate is a continuous 30 beats higher from standing to laying down, you likely have POTS. Use a pulse-ox to do this.
During the first 8 months of my long covid I would have bouts of insomnia. It felt like my body just didn't turn off and trying to go to sleep was a waste of time and frustrating. My solution was to just say okay I'm staying up I'll sleep tomorrow. It finally disappeared thankfully. Good luck to you. 👍😉
I would try a sedative antihistamine at night and a low histamine diet. Sinus thickening can respond to saline inhalation and regular steam or may need steroid nasal spray. Agree re POTS also - increase salt and fluid intake. Best
Covid, poorly, then better but no sense of smell for a year. Had the jab, sense of smell coming back 10 weeks after. Getting second jab this week. You cannot tell me that the covid does not hide somewhere in us long haulers. The jab worked for me. Get the jab and get better😀
I am suffering with breathing problem for 6 months post Covid does this get bet over time. Is anyone suffering with these symptoms any advice from anyone.
You should try breathing exercises.. Take a deep breath in for around 4 seconds, hold for 2 - 4 seconds, then breathe out for around 6 seconds. you can keep your lips close together when breathing out can help. Try this 2 - 4 times a day for 5 - 10 minutes each session.
@@RUNDMC1 What about via private medicine, functional medicine and so on? My functional med doctor did a barrage of tests and still all normal incl. blood sedimentation speed, CRP, and basically everything
Thanks for everything you are doing for us Gez! I think after 15 months (and a vaccine) I mostly recovered from long covid. However, now that the sun begins to shine here again, I seem to quickly get red patches on my arms and hands that disappear quite fast again when I go inside again. This combined with a burning sensation around my pharynx and epigastrium (these are the only symptoms apart from PEM that haven't really resolved yet) kind of sounds like dr. Wentzel's proposed NAD+ deficiency and COVID-19 Induced Secondary Pellagra right? Curious on your thoughts on this! I might need to up the niacin dose.. Good luck on your own recovery man!
I’ve just bought an infrared sauna and thinking I need to replace my electrolytes if I’m using it regularly. But the drink/tablets in finding seem too have non low histamine things in. What drinks do other people use to replace the electrolytes? I’m thinking coconut water but not sure if that will be enough
Pretty reasonable answers from the information I have been picking up, however I'm surprised you have been so accepting of the Lightening Process which NICE has recently outright rejected as a treatment for ME in the draft revision of it's guidelines. Furthermore, like the NICE rejected graded exercise therapy, large scale patient surveys have found harms from this (expensive) approach. My personal experience from post viral ME is that no approach helps if you don't pace adequately and while you keep pushing through and re-triggering your symptoms you are harming your capacity to improve. Also, there's no point talking about exercise if you are crashing from trying to carry out the basic tasks of daily living like washing, cooking and getting to the loo. There is some really relevant information from Workwell and Physios for ME, with lots of tips on how to pace successfully including using a heart rate monitor. Resting (whilst maintaining what strength and mobility you can ) is really critical, especially in early stages of a post viral illness. Half an hour rest during the day is no where near enough for those who are more severely ill. If you mislead them with these kinds of comments about exercise, you risk giving advice that could make patients worse. I agree, meditative and breathing practices are free and helpful and can be combined to improve quality of rest but trying to run before you can walk consistently without a relapse, or walk before you can do the basics of self care is just counterproductive.
Do you have any advice for people losing their hair? I was in the hospital for a month starting Feb 11 2021. I had trouble keeping my oxygen level up, and still on oxygen.
Antioxidant foods seem to help - broccoli sprouts (see Rhonda Patrick's videos), purple foods like blueberries, lemon balm tea, procini and shitaki mushrooms (if you can tolerate mushrooms; they have a lot of ergothioneine). Another thing is prostaglandins - google 'swiss temples prostaglandin' for an explanation. Mast cells make prostaglandins as well as histamine (and a bunch of other stuff). Topical castor oil - put in shot glass, apply with q-tip before bed, use a towel to protect pillow. Wash hair as usual - conditioner is what really gets it out. Patch test a couple of days in advance to make sure you don't react to it.
Hi Pamela, I would have your haemoglobin and more specifically iron levels (ferritin) checked as if you are iron deficient or anaemic then you will not be able to transport oxygen around the body but also low iron stores impact hair loss. You really want your ferritin to be >50. The virus is good at scavenging for iron and uses it to replicate so you may have taken a hit.
@@Hannah-dr1rl i see, my symtomps are fatigue, little of brain fog, and my histamine. Tomorow i will get AZ vaccine, please wish me luck. I also hope you get better.
Another way to illiminate blue light in Windows 10: "Right-click on Dsktop" - "Click Display Settings"- "Click Color (Night Light settings)" - You can set the time that Windows will change the color temperature to the warmer end of the spectrum (orange)... Sweet dreams. :)
I'm 13+ months in. fatigue, post exertional malaise, SOB/breathing disfunction being the main symptoms. Also had myocarditis as a result of Covid19. Was starting to feel better until first Astrazeneca vaccine 3 weeks ago. Feel like I'm back to square one now. Anyone else experience this?
Sorry you're still struggling. Had my first Pfizer almost 4 weeks ago and it's completely knocked me back :( exactly 7 months in today and feel pretty much at my worst, before the vaccine was doing much better. Hopefully we have more luck with the second dose.
@@Hannah-dr1rl sorry to hear you're struggling too, Its very disappointing isn't it. Had hoped the vaccine might have improved things. A friend of mine had similar setback after Pfizer, took her a few weeks to get back to baseline. Best of luck with the second jab.. I don't get mine until July.
@@auggie1790 thanks! Yeah it has but cardiac mri showed some fibrosis on the heart muscle. It wasn't detected til 6 months post virus. Was eventually put on low dose beta blocker as HR was high and was feeling very poorly. Really did help and have made big improvement since. Hope you continue to do well.
For exercise intolerance, has anyone tried beta alanine or carnosine? I recently purchased a topical carnosine product, LactiGo. I have patch tested and it did not cause me a rash, but I have not yet given it a real try. I have histamine intolerance / MCAS symptoms, not post-covid, probably some other post-infection syndrome. I don't have too much trouble exercising; my daughter also suffers from something similar and has extreme fatigue and exercise intolerance - she has also just patch tested it. I have tried beta alanine in the past and had the pins and needles side effect - quite unpleasant.
The things that have helped me alot are quercetin the b vitamins low histamine diet electrolytes and magnesium salt baths. That also helps with sulfur which we need so we don't become sensitive to other things passing through the gut. Herbs. Fresh not dried. Sticking to plant milks mainly oat and coconut no sugar versions. No aged cheeses but soft cheese full fat less additives for calcium gluten free wraps not bread avoiding yeast and inflammation. Rice noodles and brown rice. Sweet potatoes only in small amounts. Low dose tumeric with curcumin and beef kidney 6 times a day 15 minutes before meals for b12 and dao enzymes that help block histamine. No caffeine. Only camomile tea or peppermint tea with added zinc and magnesium.
I was long haul. After first jab had massive reaction for 48 hours then got better. Really better because I believe that the jab was required to kill the covid that was hiding still, although discrete , in my body. Even got smell back after 11 weeks. Just had second astra jab at 12 weeks, no reaction whatsoever, felt fine. Making me believe that the first jab had finally got rid of the covid doing what my body failed completely to do.
Great to hear it!! Were you on niacin when you took it or did you discontinue it before you got the shot? And which jab was it, if you don’t mind me asking?
I do have anxiety and sleep is very poor i feel just like to be constant awake. Took mirtazapin 30mg that improoves sleep a bit. Did anyone try ivermecting for long covid ? What dosage ?
@@RUNDMC1 Thanks i have seen your video about ivermectin and it was not a cure. I want to use that amount of ivermecting which i was able to get as effective as possible. Ashwaganda capsules helped me to get rid of benzos and hopefully also get rid of mirtazapin somehow. Thanks for your videos and effort
I tried Ivermectin to treat my long covid. I took 15mg (one dose for my bodyweight) twice a day, for 3 days. so 6 doses over 3 days. After that, I've been taking one dose once per week as a 'maintenance' dose. I felt pretty good, almost like my old self again for almost a couple weeks. It was very encouraging! The past 3-4 days, however, I have been slowly regressing back to my old long covid state. I'll take another maintenance dose in a couple days. I'm hoping if i clean up my diet I can get back to the way I was feeling. I am a little discouraged right now as I thought maybe the ivermectin worked completely in getting rid of my long covid. I was working out today and it took almost 2 hours for my heartrate to recover and go back to my resting heart rate. My main symptoms are increased heartrate, headaches, brain fog, depression, chest pain, and difficulty sleeping. If this flare up/relapse is as bad/long as the ones I've had in the past, then I will likely get the vaccine and see what that does to me. If it's a short lived relapse then I'll take that as a win and contribute it to potentially the ivermectin treatment. I would be interested in upping my 'maintenance' dose of ivermectin to see if that staves off the relapses because it felt so amazing to be myself again for a couple weeks. All my relationships seemed to go back to normal (my parents and my girlfriend) and I got a lot done with school. My only concern is I'm not sure the efficacy of taking ivermectin long term. It did seem to help initially though. Hope this info helps. Have you had any luck with anything recently? Another thing to consider is acupuncture. I went to an acupuncturist and told her I had long covid and she pinned me for what she thought would help. That seemed to help for a few days. Had a good nights sleep and an amazing poop the next morning. Thats kinda a side note but I think with covid it's important to appreciate the little things lol. Good luck and God bless.
@@NoesKicker I am gonna try the new i recover protocol from FLCCC By Dr. Paul E. Marik, FLCCC Alliance (updated April 29, 2021)( on page 32-33) as soon as i have enough ivermectin. They have now added meds for mast cell activation syndrome. Until now Ivermectin only improves in my case for a couple of days than pretty much back to baseline as before. My main symptoms at the moment are chestpain and sleeping disturbance and exercise intollerance fatigue maybe from bad sleep i wake up ten times a night. Mirtazapine helped midterm with sleeping but once i lower the dose complete insomnia for days then i have to take a benzo to sleep. For me it feels like something triggers inflammation especially in chest area and then other symptoms pop up like dysautonomia etc. including bad sleep. I can definetly recommend ashwaganda for depression anxiety and stress and sleep. Also a microdose melatonin 0,2mg instead of 3 mg or 10 mg 3 hours before sleep is in my case way better then bigger doses. Due to the fact in our country Kratom is legal i will try that for sleep and chestpain and also help to get rid of Mirta. Keep you updated thanks for sharing your expirience. regards Georg
@@gesomm Thanks for the response! lots of good info there! It's interesting that you say you notice the chest pain first, and then the other symptoms start to come along. I didn't think about it, but that is how it goes for me as well. I'm going into another relapse it seems. I woke up today with extreme fatigue and heaviness along with chest tightness and headache. But the days leading up until now, I was slipping on my diet and I did notice that I had mild chest pain the past couple days prior to this. I appreciate you pointing that out because if I had taken that chest pain as a warning indicator that my inflammation (due to whatever, maybe my diet) was getting out of hand, maybe I could have cleaned things up and avoided a complete relapse. I've noticed that in the days I feel good, I slowly start adding things back into my life that may potentially be unhealthy and trigger long covid symptoms. Edit: Just read that protocol you mentioned covid19criticalcare.com/wp-content/uploads/2020/12/FLCCC-Protocols-%E2%80%93-A-Guide-to-the-Management-of-COVID-19.pdf Based off everything I have learned so far I think that definitely looks like it is worth a shot, as long as you can get the ivermectin. I think it is important to note that if you feel good on ivermectin, don't stop the protocol early. I think that is maybe what also causes relapses.
Can anyone help me ? My brain fog is so severe . I can only describe it as feeling drunk with a hazy disembodied feeling . I'm 17 weeks post covid . I can feel my brain throbbing and so does this mean I have brain imflammation ? . Will this be permanent ?
No it won’t be permanent. First and most important step - rest. Second - breathwork. Read this for why: www.theatlantic.com/magazine/archive/2021/04/unlocking-the-mysteries-of-long-covid/618076/ Third: diet and supplements. Watch my film on how to treat long covid. Take it easy and good luck.
Gez, on a previous video you talked about thirst. I am 6mo in and up until month 3 had extreme thirst that came and went all night long along with my chest pressure. I am finding now that that thirst is completely gone but I still have the tiredness coming and going. Is there any data that would say that this improvement will eventually lead to a complete recovery? Did your thirstyness go away? Thank you!
Hi there, I still have nocturnal thirst but it’s not as bad as it was. It’s a consequence of systemic inflammation and possible hypothalamus dysfunction. Don’t have any data about anything when it comes to likelihood of making a recovery, unfortunately! But I would say that a trend towards having fewer symptoms is a step in the right direction :)
I came across an article by Brian Beutler, an excellent political journalist and recreational runner, 38 years old, who likely had mild to moderate COVID (unverified) in March 2020 and developed post-exertional malaise following infection. Part or perhaps all of his problem stemmed from small blood clots found in his bronchi. Treatment with anticoagulants helped him heal completely, or nearly so. He feels much better now and currently can run two miles without stopping. Here is the link to his article: crooked.com/articles/my-life-after-covid/
@@RUNDMC1 bike exercise test to measure pulmonary, cardiac and muscle function. Bunch of blood work during peak to determine if metabolic, pulmonic or cardiac dysfunction. Same test performed during 2003 sars long haulers.
@@clairegarvey2365 erj.ersjournals.com/content/24/3/436 This exercise test, also done during 2003 sars long haulers. Looks something like this www.google.com/search?q=pulmonary+exercise+stress+test&safe=off&client=ms-android-samsung-gs-rev1&prmd=inv&sxsrf=ALeKk01Vrqb_AozGpYrVEa1ejLVgbQXEVg:1620143662454&source=lnms&tbm=isch&sa=X&ved=2ahUKEwjI6vC7sbDwAhVFnp4KHbnSCiYQ_AUoAXoECAIQAQ&biw=412&bih=724&dpr=2.63#imgrc=pA2pkW4YjrnsPM
@@RUNDMC1 Interesting. It’s actually a weird effect, I don’t feel better right after the workout, but I always make sure to eat a high protein/carb meal directly after my workouts, and that’s when I feel immediately two times better. Maybe eating alleviates the stress of the workout that would cause regression in other people who otherwise don’t eat right away?
I felt good until I overdone myself also with other sports, got injured and ill with flu atm which sucks… depend where you are at, do you feel good and energetic in general? If yes try but pace slowly! If not stick to stuff like Yoga Pilates swimming etc you get what I mean. You do need to move around just saying just don’t over do it
Well who or whatever created this monstrosity really outdone themselves. 😔 Been extremely ill for 2 years now, it's been here a lot longer then they've been telling us...
RUN-DMC my symptoms have been going on for 3 months straight. Had covid in january. Have your symptoms decreased where u can have a somewhat normal life??
@@maybemaybenot44 but it's super cheap and it has good data and clinical trials behind it yet it just gets put to the bottom of the pile... Why? That is why there are so many comments because we don't know why it's being sidelined??
Not trying is a shame. Remember it seems to be a difficult thing. It helped me a lot. Will it be gone forever? I hope! But no prove... I do feel a whole lot better though....
Thank you for your videos and research! Whenever i have a relapse and am feeling depressed I find coming to see if you have posted any new content always helps me a little. Even if you haven't posted any new content, just coming to the comment section and reading peoples stories and reading replies helps me cope. You are helping so many people it's amazing! Just knowing there are others out there also searching for answers gives me hope.
I've tried so many things at this point. I'm coming up on a year with long covid. Another thing that is hopeful is that, even though I've had this issue for so long, I am still finding new things to try and still learning new potential ways to treat it. I hope nobody else gives up either. All of our minds together can find the answer.
Good luck everyone! And to anyone suffering from depression from all of this, just know that it will pass. No matter how bad things appear to be, just know it is only temporary and it WILL get better.
There’s going to be lots more content going up very soon - do keep coming back! I’ve got interviews lined up with some of the leading specialists in different connected fields
You make great long-covid videos. Please don't stop.
Thanks Max - more coming along soon!
@@RUNDMC1 Great ! Looking forward to your videos. The population is not aware, I think, of how massively important this subject is and will become. Take me for example: totally unable to go back to work.... after 3 months ! Thank you.
I'd second that . Your videos have really helped me navigate my way through this tough disease thanks
I've treated the whole long-haul COVID-19 experience as an adventure, and I'm blessed to have the financial resources, insurance, and an excellent physician who is willing to go the distance with me. Medically speaking, I've thrown everything at my long haul COVID-19. The setbacks have have humbled me and taught me not to celebrate any victories over long COVID-19 symptoms. It takes what it takes.
Very good advice
BUT what were " I've thrown everything at my long haul " im sure we all would like a hint of help- thanks in advance!
@@CustomerBloom I think many of us have - but yes you are very blessed to have good resources to access as most dont it seems, sadly - as yet anyway in the UK. Yes do share your adventure and humblings!
Hello, curious if you are in Alaska. I am in Talkeetna Can't say I've found a good physician here! I just use this channel!
I have zero resources...what is your protocol?
Thank you for this talk. The more information shared on this the better. So much research to be done.
The first international ivermectin Covid conference
ua-cam.com/video/GGIWe5RegVU/v-deo.html
I have been taking niacin for a few days. I am extremely impressed !!! Less breathlessness and more energy. You are on to something important, at least for some people.
Great to hear that Max!
I’ve tried numerous things and supplements over 13.75 months. Time and the vaccine have been what’s helped me most.
Hi, I've been suffering a low fever, dry skin, palpitations, pulsating all over my body, visible veins, body aches, stomach aches.. all those in 2 months post covid now. Im only 20, all tests done. No inflammation. No heart problems. No lung or breathing problems. Are yoh doing better now?
What were your symptoms?
@@haidarbadran2634 I am also 20 and am having sinus tachycardia issues as well. Did that start for you as soon as the other symtoms did or was it delayed? Its hard for me to figure out if its just stress/anxiety or an actual issue. I have had 3 EKGs done with it coming back as sinus tachycardia, doctors just gave me anti anxiety meds which I am hesitant to take.
@@haidarbadran2634 Hi, sorry to hear of your experience. It is definitely common and part of what us doctors term "dysautonomia"... where your "fight and flight" part of your nervous system goes a bit crazy. We don't know why this happens in some and not others but it does ease. I would ask your doctor to prescribe the anti-histamine regime and see if it helps. Specifically fexofenadine 180mg once or twice a day and Famotidine 40mg daily. Often tests come back normal. Try also a good probiotic like Optibac Everyday and Quercetin phytosome. (thorne) to support your natural defences. A Low Histamine Dietary approach helps some also.
Best.
@@calebd.2014 It is part of the "dysautonomia" which is common post covid. Distressing - i understand. You may learn from watching Gez's previous video with Ashok Gupta and myself discussing this. In my experience anti-histamine really helped this aspect, as well as learning to breath better - to slow the outbreath. You may find this helpful - ua-cam.com/video/AiwrtgWQeDc/v-deo.html with Oxygen Advantage Author - Patrick McKeown
@@fabulousdoc hi thank you doctor tam, this suggestion is really brilliant. And yes im trying to follow a low histamine diet now. Ill take that note.
Thankyou so much for this . I like thousands of others have been totally floored by covid . I caught covid thirteen weeks ago and although I wasn't hospitalised I had covid pneumonia and had a pretty severe case of covid .
Week six and the debilitating neurological symptoms started and are still ongoing thirteen weeks in . My brain throbs all the time ,I have pins and needles and numbness and fatigue all the time . The brain fog is so debilitating .
I'm taking niacin , Ala , Q10, magnesium, carnatine , vitamin D , c and Udos omega oil .
Everything you've said makes complete sense . Thankyou for ending the conversation on a positive . I am trying so hard to stay positive but this feels like such an endurance test .
Stay strong everyone
the cure for covid is 18mg ivermectin and 50mg zinc taken daily for 4 days in a row ,the main reason you have a weak immune system you have low glutathione levels ,low vit a levels and low vit d levels thats the dreadful trio the main cause of sickness,disease and cancers in the body,you have a low oxygen environment in the cell thats why the immune system isnot working properly,the stuff you are taking isnot addressing the weak immune system,take 2 x 600mg caps n.a.c.morn/eve to safely raise the critical glutathione levels so theres enough atp to fuel the immune system,its impossable to be healthy with low glutathione levels - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve -1 x 1500mg caps quercetin/bromelain morn/eve - 2 cloves not the garlic type morn/eve this combination is the worlds most powerful superfoods,you take it with food and it wont take long for your immune system to start working properly
you are not addressing the critical glutathione levels,that caused low atp levels thats why your macrophages and tcells used cytokine storms,not enough atp to work properly ,please take whats in my message and you will regain your health in a bout a week,its great you just get better and better the cure for covid is 18mg ivermectin and 50mg zinc taken once a day for 4 days ina row then take the stuff to make sure your immune system works properly,theres no need for anyone to be sick,i shared knowledge on the immune system with you that no doctor has,i shared it so you can take charge of your own health ,low glutathione is what is the root cause of all your problems,the protocl i put up is the safest fastest method on earth to heal a weak immune system
@@Beekind799 thankyou so much for your advice . I have just bought some liquid glutathione and wil start that . With regards to ivermectin I don't be prescribed that my my doctor .
I have now been referred to s long covid clinic .
Thanks again
And sorry about my mistakes in my message . I find it difficult to type due to the brain fog
25:15 In the evenings - use the Night Light function on devices, and turn up the strength. It can completely remove all the blue light.
Thank you from Connecticut USA. I’m so sorry you’re still suffering with Long Haul Covid, I’m at 6 months. Sooo many effects. Exhaustion & SIBO worst side effects now.
USA has begun Covid Recovery Groups, Doctors who treat Covid related lung, heart, GI, etc. with Covid in mind. It’s so much better than regular medicine.
i wish i had seen this video 20 years ago. I have ME/CFS and i have ALL the symptoms you discuss and MORE. The understanding of what was going on in my body after having a severe cold that burst my eardrum would have been sooo helpful to my mental health. As it is i have discovered and treated all these symptoms by myself. I am surprised to hear you say about resting after the infection was not known, it is now known in ME/CFS if you completely rest after the first acute phase you have a much better chance of recovering. Unfortunately i did not know that 20 years ago but i am surprised its not known now. Go to bed for 6 months as they would have done back in the day and you may beat it!!! ( not usually possible in todays life but the alternative is life devastating) i should know I've been living with the same thing for 20 years and i still crash. I am hoping with all my heart a new treatment will be around the corner. Although interestingly i have recently been treated with steroids for nasal polyps and i have a much better exercise tolerance and i can be mush more active ( i dont work anymore) so not as active as a healthy person but i feel loads better. I know its Immune related and always have and suggested it to my GP 15 years ago. I was told there was nothing wrong with my immune system and it still makes me insanely angry! Maybe if The ME/CFS community had been taken seriously by the medical profession decades ago then long Covid patients wouldn't now be joining us. The post viral syndromes would have a treatment plan be caught in the bud and all those millions of Long Covid lives wouldn't be changed FOREVER!
Great conversation. I have been dealing with all the symptoms you have described for the past 14 months. Five days ago I had my firs Pfizer shot. I was scared and expected the worst. To my surprise I started to feel better within the first 4 hours after the shot. Ended up having some mild symptoms for a few days, but over all I feel like it turned off the virus that has been actively attacking me for the past year. My whole family noticed how much better I am doing. I think viral persistence theory is true for a lot of people at least it seems to be for me.
That’s great news!
Thank you Dr.Lewis and Dr. Greenland.....still fighting after 14/15 months. You give me hope. ...and I need hope. Love and respect to you both, from North Carolina, USA. WELL DONE. I had first vaccine...9 days til 2nd dose...can't wait!!!😉
Thanks Kelly - hope second dose goes well!
Thank you for the feedback Kelly, will continue to shine the light of hope as we learn. Let us know if vaccine 2 helps. I"ve switched my self-talk from fighting to healing and giving it space. With Best.
Niacin helped me a little bit. B12 also helped. Zinc helped. Tumeric (curcuma) helped. Magnesium helped. They all do just a little, but many little things will help quite a lot overall! After 4 months, I can finally see that I have more good days, while still having to be reasonnable.
the cure for all post viral conditions is 18mg ivermectin and 50mg zinc taken daily for 4 days in a row ,let me share some real science on the immune system so you can take charge of your own health,you have low glutathione levels,this fuels the cell mitochondria that makes glucose and oxygen in the cell which causes a chemical reaction which makes atp ,its atp which fuels all the bodies systems including the immune systems macrophages and tcells ,if the atp level is low the macrophages and tcells wont work,the dredentic cells will sound the alarm the macrophages and tcells will turn up,with low atp levels they cant gobble up the virus,they start to shake like a car without shock absorbers and start to spit out cytokine storms,they can kill you ,the low atp levels decrease the mobilization and transportation of all amino acids,minerals and vitamins,this is your weak immune system low glutathione levels,low vit a and low vit d ,thats the dreadful trio the weak immune system the main cause of sickness,disease and cancers ,its the low glutathione levels whats causing all the problems,low oxygen levels in the cell,thats cancer ,you have got to raise the oxygen levels in the cells by safely raising the bodies critical glutathione levels or you wont regain your health,this covid long haul is killing people take this to safely address your weak immune system 2 x 600mg caps n.a.c.morn/eve this safely raises the critical glutathione levels,its impossable to be healthy with low glutathione levels because cell mitochondria cant make enough oxygen in the cell - 1 x 1000mg caps cod liver oil morn/eve - 2 x 750mg caps beef liver extract morn/eve 2 cloves not the garlic type morn/eve that combination is the worlds most powerful superfoods,the beef liver is packed with selenium which mixes with the n.a.c. and makes glutathione ,you take that with food ,your weak immune system cant expel dead virus particles from your system,that swhy you are struggleing
@Dermot Fitzpatrick heres a trial that shows 20000mg of iv vit c by drip every 12 hours , that saved every coronavirus patient and they had no long haulers you tube dr richard cheng - shanghai trial you tube dr shiva ayyadurai - vit c the power to save lives start the video 13 minutes in why are you sending me nonsense,its long since esatblished the life saving power of high dose iv vit c in the trial they dont use a high enough dose 8000mg isnot a high enough dose for iv vit c thats why the trial failed,lets see what real science you know,tell me why the immune system uses cytokine storms,its a very simple answer but to answer that question you have to know what the immune system uses for fuel,you wont be able to google that,nurse campbell and none of his colleagues can answer a simple question on the immune system,tell me whats the reason the immune system uses cytokine storms,
@@Beekind799 I'll hazard a crack at this, humbly . . . cytokine are SIGNALLING to killer T-cells and macrophages to 'come and attack'. ??? How did I do?
@@eugeniebreida the dredentic cells send a cytokine mesage to the macrophages and tcells , theres a virus ,the macrophages and tcells turn up,with low atp levels they cant contract and expand , ,they will try , become exhausted and start spitting out cytokine storms in a desperate attempt to kill the virus the problem with cytokine storms is they can kill the host low glutathione levels causes an awful domino effect ,its impossable to be healthy with low glutathione levels ,it indirectly decreases the atp levels which fuel every system in the body ,cancer patients all have low atp levels
@@Beekind799 Thanks! So . . . you must take NAC for your glutathione levels, eh? What else makes sense to you under current conditions?
Also more specifically, you wrote "become exhausted and start spitting out cytokine storms in a desperate attempt to kill the virus the problem with cytokine storms is they can kill the host" . . . are there names to these different cytokines? I know that 'storms' is just a nickname for something by far more
Thank you so much for spreading knowledge in our difficult situation. It makes life better.
I had my first dose of pfizer and can't say I'm worse, only some arm pain for 3 days and felt pretty good, I could actually finally sleep kinda normal. Yesterday I stayed a bit too late and I was unable to sleep until 6 am and at 9 I had to work so now I'm a bit fcked but still nowhere near I was 2 months ago. After 4 months I think time is the only thing that helped me the most, vitamins probably did very little. I can say in my good days I'm 85%-90% and in bad days like today I'm at 70% which is a big improvement compared to 4 months ago when 70% was a good day. Still not perfect but going on the right direction. Sleep is still my biggest issues but now I actually get good sleep in some days which I never had like 2-3 months ago.
The constant pressure of stress on our bodies and minds caused by 1.5 year of health uncertanty and BS by the government's has a big influence on how we are doing. Many of us never had this amount of stress for such a long time in our lives. It's not surprising we feel bad as long haulers... Many things are spot on in this talk! We would feel so much better with normal social contacts and the press shut up for 300 years. Eat/live as healthy as you can, hug your friends, and talk as little as possible about covid..... Free your brain if you can!
Thank you so much for this info.
It takes time and endurance to beat long covid. It took me 7 months to fully recover. Sometimes I was afraid I never would recover fully. It's a bumpy road!
Happy for you, hope I will recover soon me too I’m in my 4 month now!!!
Did you take the supplement stack?
What have you done?
@@aminagundes6234 I hope you will get a full recovery soon! Don't loose hope!
@@davihi1028 yes, magnesium 800 mg every day, vitamine D 75mg, bufferd vitamine C. And exercise a lot depending on the available energy every day.
For eye inflammation, ketotifen eye drops might help. They are available OTC in the US. They do sting a bit at first.
`Ketoifen syrup at night as massively helped my sleep and allergy symptoms. Thanks
Thank you this is good rehashing of this topic and some helpful ideas for us. I have one question no one has answered for me yet.
Since Covid I have lower body temps. It varies throughout the day sometimes. They range from 96.2F to 98.5, rarely does it go over that. Have you had this reported by your patients?
I have this, too! I range from 95.0-97.7⁰F - and I'm actually a little worried because if you drop down into the 94⁰ range then your body can go into hypothermia.
I have heard of this too - it’s part of the dysautonomia
I've had low body temp for the first time in my life during my initial illness and for 12 months afterwards, my temperature turn to normal only in the last month and a half.
@@katiehettinger7857 has your long haul improved a lot recently? It's been 16 months for me and I'm thinking it's permanent.
@@maybemaybenot44 I feel the same way. I've tried so many things and they all seem to just be temporary or small fixes. I think I will try the vaccine next. Hoping it doesn't make my long covid symptoms worse.
Hope you get better really soon. I worry that this is permanent as well but there is some evidence out there that shows people are recovering. Either way, as time goes on, we will learn more about this and how to treat it. Just need to see the horizon I think. I just hope in all my self experimenting I don't make things worse lol.
Thanks so much, both :)
My chest pain/soreness turned out to be severe Right heart dilation (new, per MRI), but resolved on its own. Function was only "mild dysfunction" 30 day EKG normal. Lasted 6 months. Im 9 months out. No prescriptions. Paced incremental daily walks.
so the dilation resolved on it own
@@susanhorton9492 Yes. No meds. Lasted about 6-7 months. Heart is back to normal. I still have Long Haul symptoms. 11 months out.
Thank you for including much other helpful information and pointers we can use to strengthen immune system and other gut related issues.
Thank you sooo much 🙏
It's so interesting that Dr. Lewis talks about a high-salt diet and lots of fluids as helpful with dysautonomia in long Covid. I have been suffering from that (or something very like it, as my dizziness, chest pain, and tachycardia worsen when I lie down, not when I stand up) for over a year now, and I have found through trial and error that exactly that kind of diet, plus eliminating sugar and alcohol, does indeed help.
Good to hear that - best of luck with your recovery!
Dr Tam mentions a few times that she has done other videos on a few topics. Do links to those exist?
I’ll ask!
Hi Brad, I mentioned the video i recorded with Gez prior to this one with Dr Ashok Gupta surrounding dysautonomia which you can view on his channel. There are also a series of videos on the wellgevity.com website for subscriber access. best
Thank you kindly for the reply. I do appreciate it. I am a big follower of both your channel and Gez. Was really curious as to what supplements you suggest.
Three things helped, low histamine diet, the vaccine, and my doctor saying "it must be Epstein Bar retuning!😊". This cheered me up and I felt good physically upon hearing that. It turned out that it wasn't Epstein Barr. But I still felt better. Must have been the placebo effect.
Than I went on a big hike and it came back. So now I'm going to see about getting a second vaccine of the different type. I had J&J already, and I just read they recommend in Germany to get a mRNA as well. So covered in both ways.
Reinfections are extremely rare I think you have a better chance of winning the lottery.
Also, even if you feel great and fully recovered still don't do any serious excersize. I went on a fairly strenuous hike - oops! Now gettting back to recovering again.
Thank you Katie, for the reply 😘
@@alipainting I'm learning that topping off with an mRNa or vice versa is the way to go in general, Best for good results w/lower side effects. no doubt soon we will learn more. best!
After having COVID a blood test revealed that I had low thyroid hormone. I wonder if this is the cause of my chronic fatigue!?!?. I have my first appointment with an Endocrinologist next week.
Keep us posted!
Following Grand rounds from Stanford University they brought up the fact that thyroid issues might be an indicator of developing Long Covid. My daughter-in-law and her mother both have hereditary thyroid problems so I was extremely relieved when they received their vaccinations. My mother had low thyroid and took medication for years which improved her vitality, if she missed her medication she felt sluggish.
Good Luck. Low Thyroid function can have a massive impact on energy levels. So treating should help.
Low thyroid . . . the first thing to do is to calm down, and be SURE that you are ingesting daily iodine. Ideas: 1) use iodized salt. OR 2) take yer seaweed w/a meal 3) iodine supplement drops (just ONE per day, I'm forgetting the mcg - quite tiny).
That should take care of you.
Re measure your levels in three months.
My Endo NEVER ever suggested I be sure my intake was adequate. Neither of them did, and both are respected MD's. JUST a tiny oversight on their part, however!
I don't need to add: Just get the daily requirement ; )
Thank you for this
Thank you for talking about magnesium and the different types!
Q: Could infrared sauna time help at all with this?
I know Dr Tam has one!
Hyperthermic conditioning, via infra red, for example, boosts the immune system ( presumably recalibration of an out if balance immune system that has gone into inflammatory overdrive as result of covid) . Heat shock proteins are released from muscles that can cross the blood brain barrier and ultimately result in improved mood, etc. See UA-cam clips by Dr Rhondda Patrick.
HI Khar, an infra-red sauna has really helped me. I had a cheap FirZone for a year and then upgraded to a Sunlighten.
@@fabulousdoc thank you soo much, I may look into that! One really helped me with migraines years ago.
@@fabulousdoc Do you think an infra red blanket would be as good?
My tinnitus flared up to a loud volume, three months after my first Covid symptoms, before that 3 month point it was at it's baseline volume. I'm not sure but it was even Covid related but hard to deny it had at least a minor role to do with the drastic change with the tinnitus.
I too had tinnitus so severe it kept me awake .. it now 14months later is ok, but flares with stress and other infections. Inflammation again is one of the drivers. Cranio-Osteo has helped some with this symptom as predominant.Take care
@@fabulousdoc thank you, I will try that for the symptoms.
After the 2nd Pfizer vaccine dose, some of my Long Covid symphtoms returned worsened: Fatigue, brain fog, tachycardia. Is it a reaction of my immune system? Should I treat them as LC symphtoms? 2 neurologist already said there's nothing to help them. What can I do to help them?
Have you considered eliminating high histamine producing foods? The low histamine diet isn't particularly restrictive and I've had a definite improvement in my long covid symptoms.
I would watch my recent film about dysautonomia - do whatever you can to calm your body’s autonomic system!
I got a lot worse after 1st & 2nd Pfizer...
I have Fibromyalgia and now have long COVID. Two hospitalisations and loads of supplements but am getting increasingly worse and am virtually bed bound. Mostly mialgia and nerve inflammation. Any suggestions on how to mitigate my symptoms are welcome 🙏
Thank you ever so much this was fantastic
Thanks Billy!
I hear working out causes you to feel worse the next day. Thats what happened to me. But I did hardly any of my workout, but I guess it was enough to start that inflammation going. I heard the question about heart racing, and I'm glad it was asked. That is one of my symptoms. You said antihistamines? What kind? I'm taking Metopropol 50mg for my heart beats, can you take that also! I do have fatigue, and when my heart races I get dizzy flushed and feel like my legs and arms get weak. Its horrible.
Hi I am from India. I really appreciate your efforts for long haulers like me. It has been three months that my body temperature post covid has not become steady. It is normal in morning and increases with the progression of the day and shoots upto 99.5°F in the evening. At night automatically it becomes normal. I feel very feverish when it goes around 99. No anti pyretic drug responds to it. I am far from normal life for this temperature dysregulation. If possible, please make a video regarding this temperature dysregulation.
Mild Covid. 7 weeks since it presented. I walked 20 miles per week. Once instance of tachycardia... thankfully.👀 Unbelievable fatigue....I am at the point where I can do light housework now. Not vaccinated .....my journey calls for patience. Lots of veggies and fruit. I'm getting there!🦋🌺🦋🌺🦋 Chose not to vax as I have concerns of cytokine storm. Mild lupus.
Medication brought me back 90% and I got the vaccine and I think that made it even better, but not sure. I'm off meds now and able to work out again. I'm not an athlete in fact quite the opposite, but I'm able to do the same workout if not much harder before covid. Hopefully there is no relapse from here I just feel back to normal now hard to explain, but long haulers know what I mean.
what medication if i may ask?
@@mohamedabdulwahed fluvoxamine
@@Brandon-nj5wy fluvoxamine is basically an anti depressant, how has it gotten you back to normality?
@@mohamedabdulwahed so???
Ivermectin is an antiparasitic and it also works.
@@adperez7 relax bruv, im trying to understand....
Do we know if bulging visible or full neck veins / arteries are associated as Doctors don’t seem concern my my Carotid artery is visible at rest of late
I have heard reports of this
Inflammation manifests diversely.
Currently trying Ivermectin. Doctor says it won't work so won't prescribe it, so had to resort to my wife's horse paste. Going off of the FLCCC recommendation I am took 200mcg/kg on day one and day three, which happens to be the same level as horses. Today is my second dose, and I will say I am doing better. My perpetual headache has gone away as well as brain fog. I can actually concentrate. Fatigue is still there and at this point too scared to try any level of physical excursion. I will probably do a third dose in a couple of days and then stop to see if the effect stays. if this does not work, my next try is fluvoxamine. My doctor says it has promise but says I should wait till studies are complete. What for? If it helps one person it is worth a try as doing nothing gives me no chance.
As clinicians we must abide by "First do no harm" and weigh up pros and cons but are always looking for evidence based guidelines, which take time. Ivermectin appears to be a very safe medication.
Following up on my experience with Ivermectin. After three doses I was feeling better with clearer mind and no headaches, however after about 4 day from last dose I fully reverted back to where I was. Conclusion: temporary benefit and did not solve fatigue.
@@kapaul1584 Exactly what I have heard - temporary benefit for most long haulers. I think IF you had active covid virus, THEN it might make a more permanent change. I think this 'test' might prove you have no virus for ivermectin to 'kill kill kill!!' : ).
Thus IF you took a vaccine (not saying to do so) I would think you'd be one who would NOT see an immune reset benefit.
@@eugeniebreida I did get the vaccine and while I had a reaction to both shots, it did not change my long covid symptoms. Has anyone had success with Fluvoxamine for long covid?
Hello, I just want to thank you for all your research on LC. I was wondering i you’ve done or plan to do a vax survey like before but with data about the month in which they received the vaccine.
The Patient Led vaccine study will have much more data and I’ll be presenting that once it’s published
RUN-DMC thank you. Just in case my wording was ambiguous, I meant the month since their onset of symptoms.
Low histamine diet is what has helped me most, then dao to try and add more foods back
Flowhistamine diet worked for me too. 🎉
Agree, it can really help the mast cell phenotype long covid'ers - those with histamine predominant symptoms
Which symptoms did DAO help?
@@fabulousdoc ,which symptoms would DAO help?
@@juliegill9322 Hi, DAO can help symptoms related to histamine intolerance - like throat swelling, running nose, stomach bloating, skin blotchiness which can occur after eating/drinking histamine rich or histamine-releasing foods. Best to take 30min pre food. If histamine symptoms are improved, generally fatigue can be improved
Not sure if this will be picked up but how long are you supposed to take antihistamines...I was put on ppis due to my gastritis which seems to be from covid never had it before ( caught covid march 2020) the ppis made me feel odd and lowered my neutrophiles ( think H2 blockers can do the same so am bit anxious to take more GI drugs) ...help
Just take them after a meal
@@RUNDMC1 thanks so much Gez ...I meant more in terms of how many days ,weeks, months are you supposed to keep taking them for in total ??
Jane worroll Totally dependent on how your symptoms behave! If they start to resolve then you can step down and come off them
@@RUNDMC1 🙏thanks again !
What about the bladder have IC and have issues still frequency some mid back pain. Had ct scan and everything is negative. Still have issues
I've had the same experience that you describe. Only in the last month as my bladder problems cleared I was sick with covid the last week of February 2020
@@katiehettinger7857 wow I got covid in February of this year. So I hope it doesn't last long time. thanks for your reply nice to hear from others.
Thank you both very much for this. Thanks too to Gez.
I have just had the results of my head and spine MRI. I had fully expected the scan to be clear as my neurologist in Exeter had referred me for potential blood clots and I hadn't heard back for ages. The results were a goitre, lesions suggesting two mini strokes and narrowing of spinal canal.
I have been referred to a thyroid surgeon.
Is my baby asprin (75mg Tesco gut friendly) sufficient to protect from any further mini strokes?
Is there evidence that the thyroid recovers if caused by LC?
Thank you!
I’m so sorry to hear this - but thromboembolic events are not unheard of post COVID. I’m afraid I’m not qualified to comment on the aspirin dosage - you’ll have to ask your doc.
As for evidence of thyroid recovery - as with all things LC, it’s too early to say :(
Hi there. . . as one who's had multiple thyroid/goitre issues, among other 'things' that show up on MRI's when one actually does them, I would like to chime in.
Have you been taking iodine regularly for most of your life (seaweed of proper sort, iodized salt, iodine drop daily?) or most of your adult, goitered life? If not, unless you feel your goiter is outragrageous I would make an attempt to 'feed your thyroid' with proper nourishment (daily value of iodine is all you need, nothing more) for a few months and see if that does not come down, and if your thyroid readings are 'off' now, if they do not improve.
I had a partial thyroidectomy back ten years, and have been limping along very easily on a pretty ragged looking other half . . .just being sure to get my iodine (had never done previously). I don't need synthetic thyroid med, only iodine. Some MD's fail to notify that may be ALL you need.
I pipe in here as I could have avoided a lot of manufactured health 'issues' (surgeries) by taking a look at nutrition/hormones (iodine/estrogen/testost) rather than digging in on fibroids and thyroids. MUCH can be corrected if measured IN THE BLOOD, no cutting and dicing necessary!
Having been round the horn long enough (and quite enough MRI's) I can promise they will ALWAYS find something 'of concern' - that will scare you. Don't let it. Life is happening inside you. If you've got an aggressive cancer - by all means, let the doc grab his scalpel!
Blessings
@@eugeniebreida Thank you SO much for your advice.
Hi Gez, have a question for Dr Tamsin. Hope she takes note of it. In one of her interviews with you she talked about Infra red sauna therapy having the potential to help Long Haulers, I have a Sauna set up at home, but the steam one. Will it do?
It will have a very different effect on your body as it’s not just the heat that it’s for - by all means use it if it makes you feel better. If you’re dizzy or uncomfortable afterwards do be careful though!
@@RUNDMC1 thanks Gez. How will the Infra red sauna have a beneficial effect? To the best of my understanding both of the saunas rely on heat as a medium for healing. Your take Gez
During my year of tests for Long Covid, nodules have shown up in my lungs and my thyroid is said to be enlarged. It is suggested that I have Cancer. You almost said that Covid can inflame lungs and the thyroid. Have you heard a relationship between Long Covid and cancer diagnosis ?
No, not specifically. Who’s suggesting you have cancer? Have you lost lots of weight?
@@RUNDMC1 Various doctors and consultants say that's what the scan indicates. i have put on loads of weight ! They say it is very early - probably. I'm not so sure !
@@xx4312 If it Is something you can do, losing the weight will be beneficial re cancer growth. best wishes. (easy for me to talk, I have difficulty gaining. but I think my various cancer cells are not fed the extra inflammation/fire that fat cells produce). I hope this is an inspiring note, and I really can't imagine it is easier for you to lose than for me to gain. (I can only eat 'not fun' foods, so no jealousy warranted)
My problem is I can't go to sleep at night and my dizziness is very difficult to handle..Mri show thickening of sinus what can I do
Check for POTS, go to a cardiologist, check your heart rate laying down, then stand up and if the difference in heart rate is a continuous 30 beats higher from standing to laying down, you likely have POTS. Use a pulse-ox to do this.
Talk to your GP about it - something that regulates your seratonin levels may well help
During the first 8 months of my long covid I would have bouts of insomnia. It felt like my body just didn't turn off and trying to go to sleep was a waste of time and frustrating. My solution was to just say okay I'm staying up I'll sleep tomorrow. It finally disappeared thankfully. Good luck to you. 👍😉
I would try a sedative antihistamine at night and a low histamine diet. Sinus thickening can respond to saline inhalation and regular steam or may need steroid nasal spray. Agree re POTS also - increase salt and fluid intake. Best
@@katiehettinger7857 what a fab mindset Katie!Bio-feedback to your body to say - its fine - you can sleep when you want - no pressure :)
Covid, poorly, then better but no sense of smell for a year. Had the jab, sense of smell coming back 10 weeks after. Getting second jab this week.
You cannot tell me that the covid does not hide somewhere in us long haulers. The jab worked for me. Get the jab and get better😀
Your point about covid remaining in the body and strikes a chord with me I would swear that it hung out in my gut for months.
seems to help some, but definitely not all sadly.
Got the jab and actually got worse...! Wasn't especially happy about that.. :(
Did you stop taking niacin before getting it? And did you get moderna?
@@davihi1028 kept up the niacin but was only able to have the AZ as am in the UK.
When is their next podcast?
Can you please make a video on post covid lung fibrosis.
Thoughts on Fluvoxamine for long haul?
People speak highly of it but haven’t seen any data yet
@@RUNDMC1thank you!
I think it's hard to get a prescription... I'm going to try tomorrow though.
@@RUNDMC1 hello gez, contact Dr. Been for an interview he has done a great job about long covid. His UA-cam channel is "dr. been medical lectures"
@@sherwoody14 please keep me posted.
I am suffering with breathing problem for 6 months post Covid does this get bet over time. Is anyone suffering with these symptoms any advice from anyone.
You should try breathing exercises..
Take a deep breath in for around 4 seconds, hold for 2 - 4 seconds, then breathe out for around 6 seconds. you can keep your lips close together when breathing out can help.
Try this 2 - 4 times a day for 5 - 10 minutes each session.
Yes it gets better! I recommend you to go to Body Politic support group. Don't go through this alone 💜
@@hadasama1 how can you join this group
@@manindermanku8667 www.wearebodypolitic.com/covid19 it's on an app called slack. It's an amazing group. I'm part of it and it helped me immensely!!!!
@@hadasama1 are you suffering with post Covid symptoms
Any blood tests besides the basics to showcase systemic inflammation?
Not any that your GP can do that I’m aware of
@@RUNDMC1 What about via private medicine, functional medicine and so on? My functional med doctor did a barrage of tests and still all normal incl. blood sedimentation speed, CRP, and basically everything
Thanks for everything you are doing for us Gez! I think after 15 months (and a vaccine) I mostly recovered from long covid. However, now that the sun begins to shine here again, I seem to quickly get red patches on my arms and hands that disappear quite fast again when I go inside again. This combined with a burning sensation around my pharynx and epigastrium (these are the only symptoms apart from PEM that haven't really resolved yet) kind of sounds like dr. Wentzel's proposed NAD+ deficiency and COVID-19 Induced Secondary Pellagra right? Curious on your thoughts on this! I might need to up the niacin dose.. Good luck on your own recovery man!
I’ve just bought an infrared sauna and thinking I need to replace my electrolytes if I’m using it regularly. But the drink/tablets in finding seem too have non low histamine things in. What drinks do other people use to replace the electrolytes? I’m thinking coconut water but not sure if that will be enough
I use SmartWater and/or Salt tabs aka(salt stick chews or electrolyte dissolve tabs for water bottles) great products
Pretty reasonable answers from the information I have been picking up, however I'm surprised you have been so accepting of the Lightening Process which NICE has recently outright rejected as a treatment for ME in the draft revision of it's guidelines. Furthermore, like the NICE rejected graded exercise therapy, large scale patient surveys have found harms from this (expensive) approach. My personal experience from post viral ME is that no approach helps if you don't pace adequately and while you keep pushing through and re-triggering your symptoms you are harming your capacity to improve.
Also, there's no point talking about exercise if you are crashing from trying to carry out the basic tasks of daily living like washing, cooking and getting to the loo. There is some really relevant information from Workwell and Physios for ME, with lots of tips on how to pace successfully including using a heart rate monitor. Resting (whilst maintaining what strength and mobility you can ) is really critical, especially in early stages of a post viral illness. Half an hour rest during the day is no where near enough for those who are more severely ill. If you mislead them with these kinds of comments about exercise, you risk giving advice that could make patients worse.
I agree, meditative and breathing practices are free and helpful and can be combined to improve quality of rest but trying to run before you can walk consistently without a relapse, or walk before you can do the basics of self care is just counterproductive.
Do you have any advice for people losing their hair? I was in the hospital for a month starting Feb 11 2021. I had trouble keeping my oxygen level up, and still on oxygen.
Not evidence, but lots of anecdotal accounts
Time and increased vitamin D helped my hair grow back and my nails are really beautiful for the first time in my life.
Antioxidant foods seem to help - broccoli sprouts (see Rhonda Patrick's videos), purple foods like blueberries, lemon balm tea, procini and shitaki mushrooms (if you can tolerate mushrooms; they have a lot of ergothioneine).
Another thing is prostaglandins - google 'swiss temples prostaglandin' for an explanation. Mast cells make prostaglandins as well as histamine (and a bunch of other stuff). Topical castor oil - put in shot glass, apply with q-tip before bed, use a towel to protect pillow. Wash hair as usual - conditioner is what really gets it out. Patch test a couple of days in advance to make sure you don't react to it.
Hi Pamela, I would have your haemoglobin and more specifically iron levels (ferritin) checked as if you are iron deficient or anaemic then you will not be able to transport oxygen around the body but also low iron stores impact hair loss. You really want your ferritin to be >50. The virus is good at scavenging for iron and uses it to replicate so you may have taken a hit.
@@fabulousdoc Thank you! I will do that.
I wonder people who got long covid and get vaccined but it make it worse, do you have mild symtomps while getting covid? Just curious.
Yes I did
@@Hannah-dr1rl hello Hannah, what vaccine did you take? Also what symtomps do you had and got worsen?
@@privateyohan9607 had Pfizer and it's worsened my fatigue, lack of concentration, eye strain, headaches and anxiety
@@Hannah-dr1rl i see, my symtomps are fatigue, little of brain fog, and my histamine. Tomorow i will get AZ vaccine, please wish me luck. I also hope you get better.
@@privateyohan9607 good luck, hope it improves your symptoms ! Thank you
Another way to illiminate blue light in Windows 10: "Right-click on Dsktop" - "Click Display Settings"- "Click Color (Night Light settings)" - You can set the time that Windows will change the color temperature to the warmer end of the spectrum (orange)... Sweet dreams. :)
thank you x
I'm 13+ months in. fatigue, post exertional malaise, SOB/breathing disfunction being the main symptoms. Also had myocarditis as a result of Covid19. Was starting to feel better until first Astrazeneca vaccine 3 weeks ago. Feel like I'm back to square one now. Anyone else experience this?
Sorry you're still struggling. Had my first Pfizer almost 4 weeks ago and it's completely knocked me back :( exactly 7 months in today and feel pretty much at my worst, before the vaccine was doing much better. Hopefully we have more luck with the second dose.
You’re in the minority but by no means alone
Did your myocarditis resolve? I had it 6 months, resolved on its own. No meds. No vaccine yet. Hope you're better.
@@Hannah-dr1rl sorry to hear you're struggling too, Its very disappointing isn't it. Had hoped the vaccine might have improved things. A friend of mine had similar setback after Pfizer, took her a few weeks to get back to baseline. Best of luck with the second jab.. I don't get mine until July.
@@auggie1790 thanks! Yeah it has but cardiac mri showed some fibrosis on the heart muscle. It wasn't detected til 6 months post virus. Was eventually put on low dose beta blocker as HR was high and was feeling very poorly. Really did help and have made big improvement since. Hope you continue to do well.
For exercise intolerance, has anyone tried beta alanine or carnosine? I recently purchased a topical carnosine product, LactiGo. I have patch tested and it did not cause me a rash, but I have not yet given it a real try. I have histamine intolerance / MCAS symptoms, not post-covid, probably some other post-infection syndrome. I don't have too much trouble exercising; my daughter also suffers from something similar and has extreme fatigue and exercise intolerance - she has also just patch tested it. I have tried beta alanine in the past and had the pins and needles side effect - quite unpleasant.
The things that have helped me alot are quercetin the b vitamins low histamine diet electrolytes and magnesium salt baths. That also helps with sulfur which we need so we don't become sensitive to other things passing through the gut. Herbs. Fresh not dried. Sticking to plant milks mainly oat and coconut no sugar versions. No aged cheeses but soft cheese full fat less additives for calcium gluten free wraps not bread avoiding yeast and inflammation. Rice noodles and brown rice. Sweet potatoes only in small amounts. Low dose tumeric with curcumin and beef kidney 6 times a day 15 minutes before meals for b12 and dao enzymes that help block histamine. No caffeine. Only camomile tea or peppermint tea with added zinc and magnesium.
I’ve been eating predominantly sweet potatoes. Is that not good?
I was long haul. After first jab had massive reaction for 48 hours then got better. Really better because I believe that the jab was required to kill the covid that was hiding still, although discrete , in my body. Even got smell back after 11 weeks. Just had second astra jab at 12 weeks, no reaction whatsoever, felt fine. Making me believe that the first jab had finally got rid of the covid doing what my body failed completely to do.
Good news Ken!
Great to hear it!! Were you on niacin when you took it or did you discontinue it before you got the shot? And which jab was it, if you don’t mind me asking?
@@davihi1028 not on niacin. Astra zen for both as im 65
I take vit D and vit e
And boots multivits to try and cover all bases
I believe little but every day
I do have anxiety and sleep is very poor i feel just like to be constant awake. Took mirtazapin 30mg that improoves sleep a bit. Did anyone try ivermecting for long covid ? What dosage ?
I made a film about ivermectin - have a look. I’m on mirtazapine too but only 7.5mg/night. Sleep disruption is very common
@@RUNDMC1
Thanks i have seen your video about ivermectin and it was not a cure. I want to use that amount of ivermecting which i was able to get as effective as possible. Ashwaganda capsules helped me to get rid of benzos and hopefully also get rid of mirtazapin somehow. Thanks for your videos and effort
I tried Ivermectin to treat my long covid. I took 15mg (one dose for my bodyweight) twice a day, for 3 days. so 6 doses over 3 days. After that, I've been taking one dose once per week as a 'maintenance' dose. I felt pretty good, almost like my old self again for almost a couple weeks. It was very encouraging! The past 3-4 days, however, I have been slowly regressing back to my old long covid state. I'll take another maintenance dose in a couple days. I'm hoping if i clean up my diet I can get back to the way I was feeling. I am a little discouraged right now as I thought maybe the ivermectin worked completely in getting rid of my long covid. I was working out today and it took almost 2 hours for my heartrate to recover and go back to my resting heart rate. My main symptoms are increased heartrate, headaches, brain fog, depression, chest pain, and difficulty sleeping.
If this flare up/relapse is as bad/long as the ones I've had in the past, then I will likely get the vaccine and see what that does to me. If it's a short lived relapse then I'll take that as a win and contribute it to potentially the ivermectin treatment.
I would be interested in upping my 'maintenance' dose of ivermectin to see if that staves off the relapses because it felt so amazing to be myself again for a couple weeks. All my relationships seemed to go back to normal (my parents and my girlfriend) and I got a lot done with school. My only concern is I'm not sure the efficacy of taking ivermectin long term. It did seem to help initially though.
Hope this info helps. Have you had any luck with anything recently? Another thing to consider is acupuncture. I went to an acupuncturist and told her I had long covid and she pinned me for what she thought would help. That seemed to help for a few days. Had a good nights sleep and an amazing poop the next morning. Thats kinda a side note but I think with covid it's important to appreciate the little things lol.
Good luck and God bless.
@@NoesKicker I am gonna try the new i recover protocol from FLCCC By Dr. Paul E. Marik, FLCCC Alliance (updated April 29, 2021)( on page 32-33) as soon as i have enough ivermectin. They have now added meds for mast cell activation syndrome. Until now Ivermectin only improves in my case for a couple of days than pretty much back to baseline as before. My main symptoms at the moment are chestpain and sleeping disturbance and exercise intollerance fatigue maybe from bad sleep i wake up ten times a night. Mirtazapine helped midterm with sleeping but once i lower the dose complete insomnia for days then i have to take a benzo to sleep. For me it feels like something triggers inflammation especially in chest area and then other symptoms pop up like dysautonomia etc. including bad sleep.
I can definetly recommend ashwaganda for depression anxiety and stress and sleep. Also a microdose melatonin 0,2mg instead of 3 mg or 10 mg 3 hours before sleep is in my case way better then bigger doses. Due to the fact in our country Kratom is legal i will try that for sleep and chestpain and also help to get rid of Mirta.
Keep you updated thanks for sharing your expirience. regards Georg
@@gesomm Thanks for the response! lots of good info there!
It's interesting that you say you notice the chest pain first, and then the other symptoms start to come along. I didn't think about it, but that is how it goes for me as well. I'm going into another relapse it seems. I woke up today with extreme fatigue and heaviness along with chest tightness and headache. But the days leading up until now, I was slipping on my diet and I did notice that I had mild chest pain the past couple days prior to this.
I appreciate you pointing that out because if I had taken that chest pain as a warning indicator that my inflammation (due to whatever, maybe my diet) was getting out of hand, maybe I could have cleaned things up and avoided a complete relapse.
I've noticed that in the days I feel good, I slowly start adding things back into my life that may potentially be unhealthy and trigger long covid symptoms.
Edit: Just read that protocol you mentioned
covid19criticalcare.com/wp-content/uploads/2020/12/FLCCC-Protocols-%E2%80%93-A-Guide-to-the-Management-of-COVID-19.pdf
Based off everything I have learned so far I think that definitely looks like it is worth a shot, as long as you can get the ivermectin.
I think it is important to note that if you feel good on ivermectin, don't stop the protocol early. I think that is maybe what also causes relapses.
Can anyone help me ? My brain fog is so severe . I can only describe it as feeling drunk with a hazy disembodied feeling . I'm 17 weeks post covid . I can feel my brain throbbing and so does this mean I have brain imflammation ? . Will this be permanent ?
No it won’t be permanent. First and most important step - rest. Second - breathwork. Read this for why: www.theatlantic.com/magazine/archive/2021/04/unlocking-the-mysteries-of-long-covid/618076/
Third: diet and supplements. Watch my film on how to treat long covid.
Take it easy and good luck.
Many thanks for your advice . This is such a tough disease to navigate isn't it !!
Ella Sloman it’s the worst!
Gez, on a previous video you talked about thirst. I am 6mo in and up until month 3 had extreme thirst that came and went all night long along with my chest pressure. I am finding now that that thirst is completely gone but I still have the tiredness coming and going. Is there any data that would say that this improvement will eventually lead to a complete recovery? Did your thirstyness go away? Thank you!
Hi there, I still have nocturnal thirst but it’s not as bad as it was. It’s a consequence of systemic inflammation and possible hypothalamus dysfunction. Don’t have any data about anything when it comes to likelihood of making a recovery, unfortunately! But I would say that a trend towards having fewer symptoms is a step in the right direction :)
I came across an article by Brian Beutler, an excellent political journalist and recreational runner, 38 years old, who likely had mild to moderate COVID (unverified) in March 2020 and developed post-exertional malaise following infection. Part or perhaps all of his problem stemmed from small blood clots found in his bronchi. Treatment with anticoagulants helped him heal completely, or nearly so. He feels much better now and currently can run two miles without stopping. Here is the link to his article: crooked.com/articles/my-life-after-covid/
Thank you Holly!
@@RUNDMC1 My pleasure!
Autoimmune illness and vacines don,t mix.
Anyone had a covid exercise test? Any benefit to it?
I would avoid exercise at all costs - wasn’t aware there was a test?!
@@RUNDMC1 Hi Gez, you say to avoid exercise, does this include walking?
@@RUNDMC1 bike exercise test to measure pulmonary, cardiac and muscle function. Bunch of blood work during peak to determine if metabolic, pulmonic or cardiac dysfunction. Same test performed during 2003 sars long haulers.
This maybe what Auggie is referring to ?
www.physiosforme.com/heart-rate-monitoring
@@clairegarvey2365 erj.ersjournals.com/content/24/3/436
This exercise test, also done during 2003 sars long haulers. Looks something like this www.google.com/search?q=pulmonary+exercise+stress+test&safe=off&client=ms-android-samsung-gs-rev1&prmd=inv&sxsrf=ALeKk01Vrqb_AozGpYrVEa1ejLVgbQXEVg:1620143662454&source=lnms&tbm=isch&sa=X&ved=2ahUKEwjI6vC7sbDwAhVFnp4KHbnSCiYQ_AUoAXoECAIQAQ&biw=412&bih=724&dpr=2.63#imgrc=pA2pkW4YjrnsPM
raise your hand if you have widespread twitches from this stupid virus .o/
Try adding in electrolytes (as a drink) and extra salt flakes on food and Magnesium as a blend (like Viridian high potency) x 3
Dors anyone else feel a lot better after lifting weights? I feel better practically immediately and the day after also
I think this is quite rare!
@@RUNDMC1 Interesting. It’s actually a weird effect, I don’t feel better right after the workout, but I always make sure to eat a high protein/carb meal directly after my workouts, and that’s when I feel immediately two times better. Maybe eating alleviates the stress of the workout that would cause regression in other people who otherwise don’t eat right away?
I felt good until I overdone myself also with other sports, got injured and ill with flu atm which sucks… depend where you are at, do you feel good and energetic in general? If yes try but pace slowly! If not stick to stuff like Yoga Pilates swimming etc you get what I mean. You do need to move around just saying just don’t over do it
Well who or whatever created this monstrosity really outdone themselves. 😔
Been extremely ill for 2 years now, it's been here a lot longer then they've been telling us...
Gez! Have you healed yet?
I’m trying :)
RUN-DMC my symptoms have been going on for 3 months straight. Had covid in january. Have your symptoms decreased where u can have a somewhat normal life??
The fact that people are spamming ivermectin comments on here just pushes me further from thinking about trying it.
Mentioning a potential covid treatment on a video about long covid does not really sound like spamming to me...
@@superlulu5994 maybe if over 1/3 of the initial comments weren't about the same thing it could just be a comment and not spam.
@@maybemaybenot44 but it's super cheap and it has good data and clinical trials behind it yet it just gets put to the bottom of the pile... Why? That is why there are so many comments because we don't know why it's being sidelined??
@@colinsaxton1059 I'm happy for you if all you've read is a pile of good things about it - I have not.
Not trying is a shame. Remember it seems to be a difficult thing. It helped me a lot. Will it be gone forever? I hope! But no prove... I do feel a whole lot better though....