I fell 2 years ago from a 2 and half story building and have been diagnoised w FMD but recent 6 months have been isolated especially w simple noise triggers and every 1 of your videos describe my symptoms i now know how to explain my complains THANK YOU
Glad I could help! I found treatment in 2019 that allowed the nerves relating to sound etc in the brain to settle and calm down. I can go to malls now and not feel like sound is attacking me everywhere I go! Take a look at my more recent videos, maybe there is a centre similar near where you live
It looks like you took the familiar looking LDL test among others I had in Rensselaer N.Y. It was indeed a very trying period in my life, with Hyperacusis. I had to keep my job in law enforcement .This included shooting firearms as my annual training mandated so,you can imagine me being fearful of losing my job. But ,with a doubling up amount of ear protection, I persevered. Stress is hand in hand with this as your mind goes into high alert .If you can calm the nervous system,things can improve. It's not an easy feat. Stay strong and rest as much as possible.😎
lastcall170 super great that you were able to persevere. During the test I just told him I needed a minute to compose myself and then we continued. Once I took that nap I was relatively alright but just more symptomatic with my other condition but I deal with that just fine. I’ve had to change portfolios at work and also open a counselling practice (which I’m trained for, I have my masters degree) so that’s super exciting. So I’m learning ways to move around my hearing and other symptoms so I’m looking forward to this year. Really glad that you’ve been able to succeed, it gives me hope!! 😎
@@TanyatasticTalks The human spirit is strong...the human body complex. I have issues that developed only a short time after Hyperacusis subsided, which forced me to retire. It's not serious but very annoying and painful at times when trying to rest. These neurological complexities just won't spell out answers for us. We are the strongest as the result but, people will seldom see the determined effort in us, just as we try to find ourselves some peace of mind ,that many take for granted. You hide your symptoms well and convey such determination. Thanks for helping others.Im glad you have been accomplished in your working goals and accommodations were available to you.
There is a related condition called misophonia. Ppl who have it often cannot tolerate chewing and/or smacking noises from the mouth. Maybe no gum in the vids? Thanks. You seem like a really kind person, and I'm sorry you're having all of this pain.
Hi I have fnd and struggle with facial droop but it’s now my eyes lids are affected they start to shut and my speech gets bad and my walking is worse when I try to walk. Does it change your behaviour . I also fall asleep for ages after the facial paralysis. . I also have cfs and have fibromyalgia....and now I’m waiting to go for a memory test. Also just prior to my facial paralysis I start to forget do you experience that ?
sonia dyne it sometimes goes to my eyes, I can understand what you’re saying it’s like they wanna stay shut but for me it usually doesn’t last long or it just really means I’m overloaded and I need to rest ASAP. I don’t have memory issues. My facial contortions/droop happens throughout the day and like ex: it just started acting up that no matter how hard I tried to control it, my face was completely crooked and I felt my hands go numb (this rarely ever happens). It rarely happens too that my face feels numb but if I do I attribute that to the neuralgia that I experience. The facial stuff comes out mostly when I’m overtired now but it used to be much worse and more intense. I’d say it’s completely normal that your body chooses to recharge with sleep. And I’ve been told by a therapist friend of mine that when we all sleep our bodies get into a mode where our nervous system can calm itself down because of the way we breathe in our sleep.
I fell 2 years ago from a 2 and half story building and have been diagnoised w FMD but recent 6 months have been isolated especially w simple noise triggers and every 1 of your videos describe my symptoms i now know how to explain my complains THANK YOU
Glad I could help! I found treatment in 2019 that allowed the nerves relating to sound etc in the brain to settle and calm down. I can go to malls now and not feel like sound is attacking me everywhere I go! Take a look at my more recent videos, maybe there is a centre similar near where you live
Do I have to visit neurologist for hyperacusis
It looks like you took the familiar looking LDL test among others I had in Rensselaer N.Y. It was indeed a very trying period in my life, with Hyperacusis. I had to keep my job in law enforcement .This included shooting firearms as my annual training mandated so,you can imagine me being fearful of losing my job. But ,with a doubling up amount of ear protection, I persevered. Stress is hand in hand with this as your mind goes into high alert .If you can calm the nervous system,things can improve. It's not an easy feat. Stay strong and rest as much as possible.😎
lastcall170 super great that you were able to persevere. During the test I just told him I needed a minute to compose myself and then we continued. Once I took that nap I was relatively alright but just more symptomatic with my other condition but I deal with that just fine. I’ve had to change portfolios at work and also open a counselling practice (which I’m trained for, I have my masters degree) so that’s super exciting. So I’m learning ways to move around my hearing and other symptoms so I’m looking forward to this year. Really glad that you’ve been able to succeed, it gives me hope!! 😎
@@TanyatasticTalks The human spirit is strong...the human body complex. I have issues that developed only a short time after Hyperacusis subsided, which forced me to retire. It's not serious but very annoying and painful at times when trying to rest. These neurological complexities just won't spell out answers for us. We are the strongest as the result but, people will seldom see the determined effort in us, just as we try to find ourselves some peace of mind ,that many take for granted.
You hide your symptoms well and convey such determination. Thanks for helping others.Im glad you have been accomplished in your working goals and accommodations were available to you.
Still helpful in 2022! Keep up the work. I have FND and am Sound Sensitive. Diagnosed in March.
Thank you for bringing me Strength and courage to carry on!! All the best wishes to you! You are so brave!!
Franz Cesar glad I could be of help!!
There is a related condition called misophonia. Ppl who have it often cannot tolerate chewing and/or smacking noises from the mouth. Maybe no gum in the vids? Thanks. You seem like a really kind person, and I'm sorry you're having all of this pain.
i like your vlogs very useful & helpful information!! thanks for share this....i'm here to support your journey!
Get well and inspire us ❤✌
Hi I have fnd and struggle with facial droop but it’s now my eyes lids are affected they start to shut and my speech gets bad and my walking is worse when I try to walk. Does it change your behaviour . I also fall asleep for ages after the facial paralysis. . I also have cfs and have fibromyalgia....and now I’m waiting to go for a memory test. Also just prior to my facial paralysis I start to forget do you experience that ?
sonia dyne it sometimes goes to my eyes, I can understand what you’re saying it’s like they wanna stay shut but for me it usually doesn’t last long or it just really means I’m overloaded and I need to rest ASAP. I don’t have memory issues. My facial contortions/droop happens throughout the day and like ex: it just started acting up that no matter how hard I tried to control it, my face was completely crooked and I felt my hands go numb (this rarely ever happens). It rarely happens too that my face feels numb but if I do I attribute that to the neuralgia that I experience. The facial stuff comes out mostly when I’m overtired now but it used to be much worse and more intense. I’d say it’s completely normal that your body chooses to recharge with sleep. And I’ve been told by a therapist friend of mine that when we all sleep our bodies get into a mode where our nervous system can calm itself down because of the way we breathe in our sleep.