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day in my life with chronic illness: pots and gastroparesis
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- Опубліковано 24 кві 2021
- Today's video is a day in my life with chronic illness: living with POTS and Gastroparesis! #Chronicillness #POTSawareness #Gastroparesis #PICCline
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I was just diagnosed with POTS two weeks. I’m alittle worried because it’s still new to me though my doctors suspected this for at least a year
Zofran is my best friend these days. For whatever reason nausea has been one of my more troublesome POTS symptoms lately, and it's super annoying lol. Brain fog has been pretty intense as well; the other day I couldn't remember the term 'seahorse' and kept saying sea fish😂. I was embarrassed but my sister got a good laugh from it so all's well that ends well I suppose😆😆.
Nausea and brain fog + fatigue and fainting are my worst pots symptoms for sure! Zofran is my bestie too haha ❤️
I know you mentioned that you had SMAS (superior mesenteric artery syndrome), has anything changes since you made the video. I’m asking because I also have it and was curious on how you managed with it
Awesome your graduation you've done so well considering the hell you've been through. I'm so pleased for you. So you have a break from education then what's next for your future?
Wow that is lot for you to do. You are so awesome!! Congratulations on graduating. Do you every get so angry about all your health issues? I know I do.
Thank you so much!! ❤️ I definitely get angry about all my health issues on occasion, I try to talk it out in therapy to avoid anger blow outs but they definitely happen when living w chronic illness! It’s totally understandable to be angry when you have to live how we do haha.
@@ChronicallyLindsay I agree my mom has fibromayloga so we often talk about things we used to do but can't anymore. One example couple weeks I went the grocery store since my husband was super busy. I was so tired once I got home. I could barely funcation the rest of the day. It took another whole day for me to recover. I was so mad that I could'nt do a simple thing like grocery shopping. If you ever need to talk you can message me anytime Instragram jestitch03. Yes I am 50 and two teenagers but I get what you are going through. Hugs
I saw your pills and I take Dilantin too. I have Epilepsy and its turn my life upside down. I have major brain fog.
Seizures and brain fog are no fun I feel you, hang in there ❤️❤️✨ lots of love and good vibes
@@ChronicallyLindsay Thank you 😊 I owner trained my service dog 🐕🦺 She is my seizure response, PTSD response and mobility service dog. She is amazing and I love her. I also take Lamictal 100mg and I'm having less seizures
You deserve more views this is just sad
you should put the pots, gastroparesis, etc. awareness ribbons on your cap
I wanted to get special pots and gastroparesis awareness stickers from Etsy but they would have taken too long to get here so it ended up being very girly and chronic illness themed!! Can’t wait for you to see it!
@@ChronicallyLindsay Yeah, i have some of the cute stickers for EDS, POTS, MCAS, and gastroparesis from sister spoonie shop. you could just use like ribbon from hobby lobby or somethingand make it that shape like fold it if you know what i mean, but you do you lol. im excited to see it!
@@ChronicallyLindsay I also meant to comment this, but have you looked into MALS, because i know you have SMAS, and that's compression syndrome, so compression syndromes usually come in pairs, so a lot of people have MALS and SMAS. so if you have one compression you usually have to bc they come in pairs. you can just have one but that's not a common thing that happens. and with MALS, there isn't enough blood flow to your stomach so it causes delayed gastric emptying.
I'm always impressed that you can swallow all this pills at once while I am already struggling with one sometimes 😂 nice video ❤️ and it's so cute how excited you got as your cap and gown came😍
Haha it’s a skill I pride myself on I used to be so bad at taking medication haha ❤️ thank youuu