Doctors trying to gaslight you and explain your very real symptoms as simply stress is the worst thing ever. I can't count how many times I've been through it, to the point I can't trust doctors anymore.
Instead of gaslighting, a good doctor would break down the reasons they think it could be stress or anxiety. That way the patient could have a chance to go "wait, thats not right."
This is a bit like when I went to the doctor at the end of spring (in Finland) because of constant fatigue/exhaustion, dizziness, nausea and headache and the doctor just concluded that I was working too much and recommended that I take time off from work and rest. But the problem is that I'm unemployed, so I can't take time off from work, which the doctor said they couldn't help and recommended private healthcare if I could afford it. Unfortunately, it is still not clear what it is about and what causes those symptoms. But in any case, it is wrong that you can no longer get any kind of treatment from the public health care, even though you have to wait almost a month before you get an appointment to see a nurse and a doctor.
That "my pain was at a zero" sounded soooooooooo goddam good i cant express. Thank God Raphael!!!!!! Love this. U got through sooo much. U are super strong! And your COTTON CANDY hair is so cute💛💛💛
Are you talking about fibromyalgia? Sure sounds like it. If it is god love your soul because it is hell to live with and doctors deny that is a real thing. I’m glad you were able to find something to heal you.
@@janeanderson1799I have fibromyalgia and I was thinking the same thing. It took me years to get a diagnosis of fibromyalgia and other chronic illnesses & chronic pain syndromes. I’m so glad he finally got the answers he truly needed and it actually helped. I still am suffering from chronic pain and other symptoms to this day, but I’m relieved he’s doing better and finally got some real answers. I’m in the 🇺🇸 so idk if I’ll ever get that kind of relief!?
As someone who has chronic illnesses and is disabled and neurodivergent, I feel that, and am happy you had a doc finally listen and you're feeling better! I just keep getting ailments and my docs don't listen, I'm always happy to see others actually get help.
Remember, for those of us whose pain isn’t yet resolved: improvement is possible, a wonderful life can still be. I’m not cured and my symptoms still hit me hard daily but I’ve watched myself get stronger & stronger. I used to cry myself to sleep because I’d never be able to work in my profession again…now I’m back, kicking ass AND also get to be a professional historian, a dream that I thought had no chance to happen anymore. Life still sucks A LOT but we’re all going to get better in some way! ❤❤❤❤❤
I got misdiagnosed with acute anxiety attacks that nothing could alleviate and suffered 5 years with in agony night after night and nothing I took helped with the pain …. Eventually I was hospitalised I was so ill, and it was discovered I had 2 golfball size gall stones and one was stuck in the bile duct…. Eeerrrrr geeee thanks 😳👊🏼 glad you stuck with it and didn’t let them convince you it was “all in your head “ you are a lovely young man and your videos make me smile 💕💕💕
I have dysautonomia, (Which is becoming more common because covid) but the base of the syndrome is dysfunction of the Autonomic nervous system because of a disconnect in the vagus nerve (base of the skull). There is no cure (currently) "just treat the symptoms" but unfortunately doctors don't want to diagnose this, and say it is just stress. Regardless I'm glad you found a doctor to believe you! Everyone deserves this level of care! Believing a chronic pain sufferer is the first step!
Sorry to hear you have this. Came here to comment that if he has autoimmune issues (which is sounds like) if only the pain is treated, it doesnt mean the problem is solved. But of course I dont know which meds he takes. In my opinion, pain is always a symptom of something. He mentioned he had inflammation. Its dangerous to mask the pain for a long time. People are sharing online about supplements to take for auto immune response after covid or after covid jab. They seem to lessen the inflammation.
I am so happy you got answers. I know exactly how you feel that is the way I felt before I was diagnosed with fibromyalgia. Constant pain throughout my body I struggled ever since I was a child. Being told it was in my head. That I was imagining or I was trying to get attention. When I ended up seeing a dr for a check up he ended up being a specialist in fibromyalgia and I finally got my answers I was so happy. I'm still getting help with other health issues. It took me until I was in my mid 30s to get answers. I'm glad you got yours so quickly
The brain is a fickle thing and is the cause of many ailments. This video just tells me that we need more doctors that really specialize in the needs of the brain and not just the body. Anyway, I’m glad you’re feeling better.
@@nomanejane5766perhaps he means that primary care physicians need more knowledge on neurology. So they can at least consider a neuro consult before telling someone it’s all in their head.
@@_letstartariothonestly not gonna happen, there are so many conditions that primary care doctors / GPs can't begin to know everything, but they also refuse to refer to specialists, or if they do you often get denied anyway😩
@@Jade-fs9khwhat primary care doctors are you going to?? I’ve never been denied a referral…ever and I’ve had many doctors. Please switch doctors until you find someone who will give you better treatment. The insurance denying the referral would be the more likely problem but most doctors know how to get around that pretty easily. Or even change insurance companies if you can next time you’re due
I have lived with chest pain that I was finally told was basically what you explained with the pain receptors in my brain not connecting with true pain. I have yet to be told there is a medicine to help. I really wish I knew what you were given. I am, and have been disabled my this for over 10 years. it affects every part of my life. I am so so sorry someone as charismatic and young as yourself went through this!!! I am EXTREMELY happy you finally have relief. Your content brings so many smiles. I'm just thrilled you not only got answers but a fix!!.
What kind of chest pain? I hope you were checked for any heart related problem. Did you know acid reflux can cause chest pain which feels severe, it's very common and easily treatable. Or do you have breathing issues? Like hurts to breathe or breathe deeply. Can also be caused by muscular-skeletal issues. And finally can in some cases be emotional. The chest is a central area so worth doing more analysis to determine the type of pain you're having and other conditions that may factor in.
I believe he is referring to Central Pain Amplification Syndrome , abbreviated as CPS or AMPS. The most common meds for it are: painkillers, SNRIs, and nerve pills. Painkillers don’t often work because it’s not pain from a real physical cause, it’s a messaging problem. sNRIs don’t usually work well as they are for depression and anxiety, nerve disorder can be exacerbated by anxiety but it’s not the most effective way to treat this. What I think Raphael is taking are nerve pills, like Lamictal and gabapentin. Because of the dosage, I believe he is on nortryptyline, as it’s the only nerve pain pill that is regularly prescribed in 10mg I could be wrong, and I’m not a doctor, but this makes the most sense to me.
I believe he is referring to Central Pain Amplification Syndrome , abbreviated as CPS or AMPS. The most common meds for it are: painkillers, SNRIs, and nerve pills. Painkillers don’t often work because it’s not pain from a real physical cause, it’s a messaging problem. sNRIs don’t usually work well as they are for depression and anxiety, nerve disorder can be exacerbated by anxiety but it’s not the most effective way to treat this. What I think Raphael is taking are nerve pills, like Lamictal and gabapentin. Because of the dosage, I believe he is on nortryptyline, as it’s the only nerve pain pill that is regularly prescribed in 10mg I could be wrong, and I’m not a doctor, but this makes the most sense to me.
It took me over a year to get diagnosed with Functional Neurological Disorder, so I can relate to this pain. I went through many tests just for it to be blamed on stress/anxiety. I’m sorry you had to go through this and am happy to hear things are going better🩷
I’m the same I was diagnosed back in 22 with FND, prior to that I was misdiagnosed and miss medicated as what they thought I had. You both not alone with this
Keep fighting, I am American but have lived near oosterPart for 40 years (I am 70 next week). My husband was told this for years. He found a doctor in Cologne Germany who suggested a "simple operation " . He has been fine since, Hopefully your meds help - congrats!!!!!
You aren’t feeling sad, you are feeling emotional because it’s finally over and you have an answer. I wish there was a cure for IBS cos I’m in pain everyday, I’m fed up. Sendings hugs and your hair is absolutely gorgeous, that colour🩷
My IBS was really bad until I listened to my body. Probiotics doctors gave me did not help. I feel your pain. It took me sacrificing things I loved to eat like fried foods, soda, coffee, alcohol, orange juice and nuts. Gluten is a big one too. I still enjoy them from time to time but when I do it wrecks my body. That’s the only solution I’ve found.
the only thing that actually “cured” my ibs was to LITERALLY move to another country. even eating organic, USA food had chemicals that i can’t digest. even the smallest thing would ruin my digestion for DAYS. the medicine they gave me (bentyl?) made me super high throughout the day and it was impossible to function.
Me too. Being so careful what you eat. Being sick alot until finding foods that agree with you. Its so exhausting. Sending huge huge hugs to my ibs sufferers, and everyone living with contant pain.
I have a friend who had the same but it was a pain to her teeth. She explained wanting to not live as well till she finally got help in Texas. So happy you got answers to!
I have chronic pain to the point you mentioned (touching your hand, sitting in a chair) and I am on a pretty strong medication to maintain a low level of functioning. I'm so relieved for you that you found someone to help you with your pain and I hope with all my heart that it stays this good for you 😊❤
As someone who lives with chronic pain from fibromyalgia for over 25yrs. I know how u feel. I've never found Drs who will help me. I live thru it everyday with no help. It's a struggle for real I'm extremely excited you have help and are feeling great. Sending prayers ur way
I am SO happy to hear you are pain free!!!!!! Chronic pain is so bad, physically and emotionally and many of us live with it in different degrees...how wonderful you found a doctor who knew what the problem actually was!! I wish there were more doctors like that all around the world. I LOVE the pink hair!!! Simone xo
I don't think people realize how difficult it is to live with constant pain. It not only takes a toll on your physical health but your mental health really takes a hit. I hope things continue to get better for you and you continue to feel relief.
It sounds like you’ve been through absolute hell. I’m so, so happy you finally found a doctor who understood your symptoms and what they were. It is so easy to be gaslit by doctors and told it’s stress when that doesn’t help the root cause. I hope your story will resonate to others in chronic pain and help them. I know that chronic physical pain can result in very bad mental health if left without relief. Big hug and kiss to you, Raphael, you are such a sweet person and didn’t deserve this 🌺
Just don’t ever give up… I had pain in my rib area for 5 years… and could never find relief or explanation…. Mine finally was fixed with a surgical procedure. I get what it’s like to wake up daily in pain… to lose hope that you will ever be you again. I’m so glad you are feeling better.
Ive had constant rib pain for years and was told by a doctor that “I couldn’t hurt there” even though he was unable to touch my side without causing extreme pain.
Happy to hear you're painfree again ♥ Had several similar issues with doctors not taking my symptoms/issues for something real... One is my asthma. Had some close calls as an infant and nearly suffocated due to it. Was treated all my childhood, but when I was a teen and left the childrens doctor for a "normal" one, they told me I don't have asthma. I'm just overweight.... several doctors denied it until I was fed up 8 years later and demanded to be sent to a pneumologist. And surprise, surprise: I have asthma. My medication is 4 times the amount of the one my brother takes. So much for not having it... (actually struggling with an exacerbation right now) Second were my knees... They always hurt, gave way under me, made me fall down stairs due to instability and such. Heard everything from: "It's youth... Sometimes a bone grows faster than the others. It will regulate itself", "You just need to make more sport to train it" and a flatout: "If you weren't so fat, your knees wouldn't hurt" (and yes, ,he really did say it like that...) Got treated with high amount of painkillers, I shouldn't even be using with my asthma, as they can caus asthma attacks. (Didn't know at that time) Only resultet in an inflamed stomach lining over months... end of 2019 someone finally found it... I was born with a deformation in both knee joints. Easily visible on scans, but no one saw it... I'm in my thirties, but I already need to walk on a rollator due to it. Hate it when doctors don't believe and/or belittle you... Probably have fybromyalgia as well. (same as my mother) but the rheumatic doctor took me serieous. Suggested a doctor specialized in pain management and perscribed me some pain meds. Need to take a pain killer pill each morning, but like 70% of my pain is gone on most days. Sometimes only 50%, but all is better than before Edit =spelling & wording
That's awesome that you found the key!! Congrats!! As someone with chronic pain, I have so many questions! What's the medication? Do you have to take it forever? Are there side effects? So so happy for you!!!
I am so very happy for you Raphael. You're a LIGHT that shines so bright and ur energy is so infectious. I'm so glad your health is on the mend, and I wish you the very best of it in the future.
Holy heck. As soon as you started talking about pain, the brain etc. I knew what was coming. I even commented on your last video about FND, as I have been going through the living nightmare that is FND since 2018ish (my memory fails me), so I can sympathise whole heartedly. I know its different for everyone, so I am so glad whenever I hear that people have found effective treatments for their particular nightmare. FND is so difficult to get a diagnosis of (I didn't get diagnosed until I legitimately woke up paralysed one morning) and even more difficult to treat. Your doctor deserves the world! Still keeping my fingers crossed that one day we might manage to get mine under decent control so don't have to continue being mostly housebound or I can get together enough money for a decent electric wheelchair/adaptability equipment.
I missed your other video, so I'm going there next. I'm so glad you found someone that stopped, listened, and decided not to just treat the symptoms. As a medical professional, and having my own recent health issues, I know its hard to find. Sending you all the best vibes on your recovery and new breath of life! ❤
U are stronger than u know friend!! LOVE your pink hair. And u got through all this. Have faith ❤❤ also, TOUCH WOOD. NO PAIN NOW !!!! Great that u didn't give up and kept looking for answers
I’m so relieved to hear this Rapha! Not that you are ill but that you finally have answers! I live with chronic pain and it’s no joke! Sending good vibes from Canada! 🇨🇦
You are a living testimony and your pain and feelings are ABSOLUTELY valid. How could you not wish to wake up when you don’t have the most IMPORTANT thing in life: health?! So glad you have been able to grow, learn, and heal!!!!
I am SO happy for you! I do relate to your story because I suffered from Trigeminal Neuralgia and many doctors failed to diagnose me until I went to this Neurologist who prescribed the medication that saves me, literally saved me, because I absolutely understand how living in constant pain can cause you to feel like you just don't wanna be here anymore. I have been a subscriber for YEARS and have seen you move many times and become more and more successful but I'm a silent watcher who barely comments... I wish you the absolute best ❤ you deserve the world
I need to know what you were given for your neuralgia I also have trigeminal neuralgia and it's the most debilitating pain I've ever been through in my life
@@aAngel93 I'm so sorry 😔 I was given Carbamazepine I take 200 mg in the morning and another 200 mg at night, I've been on it for a year now and it still works, thank God. But please don't take it without a prescription from a doctor, it is a dangerous drug with bad side effects and it has to be given gradually while being monitored, you also need to have some test to know whether you can take it or not and how high of a dosage you can take. It works great, but that doesn't mean that the pain disappears. It can still be bad at times but mostly it works great. I hope you heal from this truly exhausting condition 🥺
I too have trigeminal neuralgia and was misdiagnosed for about 8 months (while having full blown flare up attacks). It was my dentist who told me to refer to a neurologist bc his sister happened to have TN also so I am so grateful that at least one doctor pointed me in the right direction. I hope yours is managing ok.
@@aAngel93 Gabapentin has kept me virtually pain-free from trigeminal neuralgia attacks for well over twenty years. You'll need a doctor who will work with you since the dosage and frequency can vary quite a bit from person to person with this medication.
As a doctor I’m so sorry you had to go through all of this, and also I’m thankful you’ve found a doctor that listened to you and YES this happens a lot and I HATE when colleagues of mine complain about a patient that doesn’t have physical symptoms but complain about pain i mean there aren’t that many doctor that do it nowadays but still it angers me sooo much … sending love and prayers 🙏🏻
I’m so glad you got an answer. I had the same issue 20 years ago and after 7 months of doctor’s telling me I was depressed I was diagnosed with fibromyalgia and given medication and I felt immediately better once I took medication. I’m still taking the nerve medication to this day and have quality of life . I’ve had flare ups but nothing like when I was undiagnosed. I’m glad you persisted and advocated for yourself. You know your body❤
Can you please tell me the medication you are currently taking? I have fibromyalgia and hurt all the time. There are some days I am unable to barely move. I am currently taking gabapentin. It doesn’t seem to be helping. It makes me feel extremely tired.
I've got complex regional pain syndrome in my foot. My brain receives heightened pain signals from my foot. Burning, tingling to horrendous pain. I can't wear shoes, can't touch my foot or have bed sheets etc touch it.. I take medication for it now. It took 2 years to diagnose. Went to top doctors etc etc but it was a good ol NHS doctor who knew straight away. I'm so glad you're pain free xxxx
Hey, I was diagnosed with CRPS in 2009. Mine was just in my right hand and wrist and within 2 years I became full body with it affecting all organs and systems. I am now deaf in one ear last my teeth because the nerves died. I was a case study for over a decade and now just try to live life as much as possible. I just wanted to say you got this, and keep on keeping on!
That's amazing news!!! I'm really surprised no one thought of that because I've heard about this before and also the opposite affects when people don't feel pain when they should. I'm so glad you are good so happy for you 💗
I’m so so so happy to hear you feeling better!!! Lovely to hear you’re back to feeling yourself, relaxed and relieved. You are so strong and I’m sure your story will help many others struggling with same problem find answers too! Sending you so much love 🫶🏼 And love the pink hair 💗
I’m so happy that you were finally able to get a control over your pain. I have had chronic pain for over 3 years! Your words give me hope not to give up with my doctors ❤
I’m going through similar. I’m so sick, my body is reactive to everything, and I’m sore all of the time. I needed this motivation to keep working toward a solution. Thank you
Same here. And my fiance left me bc he couldn't cope with my issues. So life's going terribly rn, I'm in the dark, nobody knows what's wrong with me and I'm alone 😔 🙁
So happy and thankful that you are pain-free! You are a joy to listen to, and I appreciate you sharing your entire story with all of us. Now you can get back to enjoying every day on this earth!
Welcome to The Netherlands! Happy to have you in our city. You don't know us but we are your adopted internet grandmothers ❤ We don't usually comment, also because we watch your videos on the television, but this video feels so important that we had to. It's so good to hear that you're doing well and that you finally have an answer that actually helps you. If you're still in Amsterdam and would like to grab a coffee, we'd love to say hi.
I'M SOOO HAPPY FOR YOU !!! I've been chronically ill for years & was diagnosed with Fibromyalgia & for YEARS I was told it was all in my head & that my pain wasn't Real & Yet NOW Fibromyalgia is FINALLY recognised as a Valid Illness ! But because of the years of misdiagnosis I haven't been able to walk in years & need to use a wheelchair among other things. GOD BLESSED YOU with finding these RIGHT Doctor who was Finally able to help you & I wish you all the Pain Free Happiness in the world !!! - Cheers From 🇨🇦
I feel you when your body is in pain it’s the worst i’m happy it you found the solution, i have sever pains at night in my legs , i just want them away i did everything told by doctors to do for being better but it just worst and worst , and the mental process of physical pain is a whole another level. I hope for anyone feeling pain and don’t know how to deal you will found your medicine just don’t give up. Search an other doctor always !
I am so happy that you got a Dr that could help you and to feel validation in the pain your experienced. Finally getting a diagnosis and then being pain free is truly freeing and give you such a new appreciation for life! Sending you so much love ❤
I have lived with chest pain that I was finally told was basically what you explained with the pain receptors in my brain not connecting with true pain. I have yet to be told there is a medicine to help. I really wish I knew what you were given. I am, and have been disabled my this for over 10 years. it affects every part of my life. I am so so sorry someone as charismatic and young as yourself went through this!!! I am EXTREMELY happy you finally have relief. Your content brings so many smiles. I'm just thrilled you not only got answers but a fix!!
Yes, I wish he would have shared his medication name. But I understand why maybe he can’t. I’m desperate for pain relief from 2 separate nerve conditions.
If they can identify a specific nerve that is causing false pain, and it's not a nerve keeping you alive, they can sever it with microsurgery. My best friend's mom had this surgery, though hers wasn't specifically for pain, it was because the malfunctioning nerve was triggering her heart to race when she was just sitting still.
I could remember several years ago l suffered severe depression and mental disorder. Was actually addicted to cigarettes and alcohol. Not until my wife recommended me to psilocybin mushrooms treatment. Psilocybin treatment saved my life honestly. 11 years totally clean. Shrooms are God- sents
Psychedelics are just an exceptional mental health breakthrough. It's quite fascinating how effective they are against depression and anxiety. Saved my life.
Can you help with the reliable source I would really appreciate it many people talk about mushrooms and psychedelics but nobody talks about where to get them. Very hard to get a reliable source here in UK. Really need
never been this early. i'll leave a comment first then watch. i hope everything is fine in thee end just finished watching and i'm crying happy tears! i am sooo happy that you are pain free now. God bless you Raph
I’ve been where you are and still am, in many ways. What keeps me going is knowing I’m not alone. Thanks for sharing your story. I’m so glad you found a cure.
I am so glad you finally found your answer. I am still trying to find answers for my conditions (and I have done the crazy swallow-the-camera test, too!). I’m so glad you’re feeling great!
This made me tear up as im going thru something similar!! Thank you so much for sharing, it gave me alot of inspiration 💕💕💕 so happy you kept going for yourself and found answers!
So glad you found someone to help and believes you and something that helps and the same thing happened to Me when I got sick my empathy increased my compassion for others increased
often even if they do care about their patients they are severely overworked and develop a lack of empathy (combined with pressure from the government in places with publicly funded medical care, to send less and less people for expensive medical tests and procedures)
When I'm having a bad day, everything hurts. What should feel "normal" feels like pain. They've given me so many diagnoses, including depression/anxiety. Eventually they diagnosed me with fibromyalgia.
I have fibromyalgia, I have tried a lot of the medications for it, they made me feel worse. The only medication I agreed to go back on was gabapentin. I also have anxiety and panic disorder.
Doctors will never know your body better than you know your body. I'm so glad you got answers and a great doctor who listened to you and didn't gaslight you. It's so hard when you try to advocate for yourself, when doctors think of your appointment as a block in their schedule, not as a real person. I'm so so glad you're feeling better, and i'm so glad you're still here. We love you ❤
I am so happy for you - I hope this is continuing forever for you to be pain-free. My husband lives in pain everyday and no one seems to be able to help him. No one has ever mentioned trying to check maybe its coming from somewhere else, like brain receptors. You have given me a new angle to speak with doctors about and try to get answers! Thank you so much and I am so happy for you. Can't wait to see your next videos! :)
I just got a new diagnosis after 15 years they were wrong also and it's autoimmune and could have been treated. 15 years I been suffering in debilitating pain told its fibromyalgia when it is rheumatoid arthritis. I am now on biologics taking injections. Praying they work soon. Always advocate for yourself because you are the only person that knows your body. P.s. you should go do that $3000 mri that tells you everything about your body.
I had the same exact thing, told it was fibro and I have RA. Only thing with me was I had an RA diagnosis already when I was 20....I moved and all the sudden I didn't have RA, its fibro. For years I went to 11 different rheumatologists, numerous other specialist and they all gaslit me when I KNEW I had RA. Finally I went to UCLA and saw the head of rheumatology and she diagnosed me on the spot. I've been on treatment now for years and I'm so thankful. I really hope your meds work for you. You might have to do some trial and error, there are different types of biologics I tried almost all of them, orencia IV (not shot) works for me and most others didn't. Rinvoq(a pill) worked too but it made me gain 30lbs. I wish you all the pain free days to come!
@@nolaray1062 I think I'm finally starting to notice a difference. I am so excited. In the morning has got a little easier but I'm still turning to concrete at night.
Hi Raphael, your videos have been a source of comfort and positivity to me throughout medical school including during COVID. I am so grateful that you have shared your experience. As a doctor now, I want to make sure to listen to the experience of people like you and I don't ever want to make my patients feel like they are not heard or cared about. I am sorry that you have had negative experiences and I hope that with the comfort from this diagnosis to explain what you are feeling, things will be looking up from now. Lots of love from the UK
I an pretty concerned regarding your health but I couldn't do anything for you except my prayers.. I always send you my prayers for your well being, I pray that my prayers become the necklace on your neck so that my prayers always shield you and stay with you wherever you are and wherever you go Raphael. Amen
I am very happy to hear you are doing more than great. My thoughts have been with you for the 7 months. Your brain controls everything in your body, even your nervous system, and some times the signals go haywire.
So glad you found relief, and are fortunate enough to afford to find it! I’m in agonizing nerve pain 24/7 from pudendal neuralgia and thoracic radiculopathy. I’ve gone to numerous doctors, physical therapy, spinal injections etc. no relief and doctors in my area don’t know how to treat it. I did get one RX that may have helped, but my insurance won’t cover it and it’s beyond my budget. 😢
I'm assuming you've already tried this, but if not, Carbamazepine helps for neuralgia pain. I take it during flair ups and my mom takes it everyday for her pudendal neuralgia.
I am truly so happy that you feel better, it is definitely a life changing experience when you go through intense pain with no end in sight, thank goodness you found your doctor, I went through a similar experience while I was taking care of my very ill father so I pushed my pain to the side but at night when I laid down I was crumpled up in a ball of pain and after countless doctors and diagnoses I found my doctor who knew I was carrying a serious infection in my bowels. After 3 rounds of medication I began to feel better but while I was in it I questioned my mortality every night for 5 years. I am sorry for the TMI but I wanted you to know that I can relate to how you felt and I am rejoicing for your recovery.
Raphael, what you described is EXACTLY the life I have been living for almost 18 years! I started crying as you described what the doctor was explaining (the disconnect and that your brain was receiving pain signals, though there was no actual pain events). I beg of you, can you please tell me the doctors name or the medication? I have been TRYING to explain this to all of the dozens and dozens of doctors I've been seeing for all these years and they all look at me like I am crazy! I am thrilled you found, not only a cure, but someone who knew what you were suffering from! I hope, most sincerely, that you can disclose the doctor or medication so that I might be able to either see that doctor or suggest the medication to my doctor. (even if you can private message me) Because of my constant pain I have lost all ability to live normally and have now been "house bound" for over 8 years. I would so love to live again! Thank you for sharing your journey, I have hope again.
So excited for your life moving forward! I've been in pain for years and have jumped thru all the hoops. Finally, finally might be able to get the back surgery to help. Wish you could say what the medication is that helped you. I understand why you can't. You've given hope to so many by just sharing your story! Love your hair!
Am happy for you. Some doctors are just a great blessing and to find them is a bigger blessing. Health is wealth. Most important. May Allah grant us good health and happiness
You process your thoughts and deliver them with such articulation. Priority about loving stuff you cant buy far outweighs an endless bank accout for sure. I had learned to have more empathy for others, too, when I experienced real pain that I thought would never leave as well. Thankfully, It did, but it wasn't because of a doctor. I was just lucky. I prayed a lot and also tried holistic concoctions that I'd read about 'here n there'. Just wanna say I'm so happy for you. The sense of relief is 'real'...and is priceless.
That sounds like Long Covid. It is able to create a dysbalance in the nervous system and destroy the Vagus Nerve. This is happening to so many people, and they don´t get the help they need. I´m happy you found one of the good doctors. Glad you´re feeling better.
Yes!! I have some many family members who are having health issues and now my mom. She said herself she thinks it’s long COVID and I agree. She even mentioned that it has to do with the Vegas nerve! This comment is the first time I’ve seen someone really acknowledge that this is actually a thing and it is no joke! A lot of people are walking around with bad cases of ammonia and don’t even know it :/
@@briweiird4394 Yes unfortunately Long Covid has many faces. It can trigger various symptoms, but many of them seem to be autoimmune related. Since Covid is able to enter every organ, including the brain, our blood vessels, the heart, lungs, our immune system and cells it´s able to cause all kind of damages. Unfortunately many poeple are unaware, even thinking the pandemic is over, but if you start asking people you will get many answers from them, like: I am sick every other week, I can´t get rid of this cough anymore, I have pains all over my body, I get a racing heartbeat as soon as I get up, I have trouble breathing, I´m constantly forgetting stuff, I react allergic to food all the sudden.... And some of them will never know that they actually have Long Covid, because our health system is crap. Doctors will tell you 99% of the time, that it is psychological and that you have too much stress or anxiety.
This! Sometimes I feel that people underestimate the consequences of long Covid, in my case I'm taking many clinical studies due to suspicions that my doctors have about a possible lupus caused by an infection of covid I had the last year
So glad you’re getting better! I was diagnosed with fibromyalgia a few years back which is similar in that my body gets pain signals for no reason. And yeah it sucks because I’ve def felt where doctors think you’re faking and it sucks. I’m so glad you found someone that was able to help you. I am so so happy for you 🥹
I’m so happy for you. My chronic pain and fatigue began 1990 and has been progressively worse over the years. I finally got a diagnosis about 2011. I sympathize with your struggles. God bless
I can't help but wonder if it's a condition I myself have been battling for the past eight years. I knew what mine was the instant it kicked in because my sister had it before me and I got to see how it affected her before my own kicked in. If I am right, they wouldn't teach it to students in the medical side because it's so rare that it isn't affecting many people in the world. I have what is called Causalgia or another name for it is CRPS and used to be called RSD.
Doctors trying to gaslight you and explain your very real symptoms as simply stress is the worst thing ever. I can't count how many times I've been through it, to the point I can't trust doctors anymore.
Instead of gaslighting, a good doctor would break down the reasons they think it could be stress or anxiety. That way the patient could have a chance to go "wait, thats not right."
Yea sadly so many doctors say "it is just a stress, don't worry". There are good doctors, but so many bad ones too :/
@@Skenjinexactly it’s horrible
This is a bit like when I went to the doctor at the end of spring (in Finland) because of constant fatigue/exhaustion, dizziness, nausea and headache and the doctor just concluded that I was working too much and recommended that I take time off from work and rest. But the problem is that I'm unemployed, so I can't take time off from work, which the doctor said they couldn't help and recommended private healthcare if I could afford it. Unfortunately, it is still not clear what it is about and what causes those symptoms. But in any case, it is wrong that you can no longer get any kind of treatment from the public health care, even though you have to wait almost a month before you get an appointment to see a nurse and a doctor.
But you do realise that stress CAN cause very real symptoms right?
Chronic pain. The struggle is real. Only someone who has lived it can understand.
That "my pain was at a zero" sounded soooooooooo goddam good i cant express. Thank God Raphael!!!!!! Love this. U got through sooo much. U are super strong! And your COTTON CANDY hair is so cute💛💛💛
Was he Covid vax injured?
@@JimboJones99 no he was not covid vax injured. stop asking. not everything is covid
@@JimboJones99 go to hell seriously
Are you talking about fibromyalgia? Sure sounds like it. If it is god love your soul because it is hell to live with and doctors deny that is a real thing. I’m glad you were able to find something to heal you.
@@janeanderson1799I have fibromyalgia and I was thinking the same thing. It took me years to get a diagnosis of fibromyalgia and other chronic illnesses & chronic pain syndromes. I’m so glad he finally got the answers he truly needed and it actually helped. I still am suffering from chronic pain and other symptoms to this day, but I’m relieved he’s doing better and finally got some real answers. I’m in the 🇺🇸 so idk if I’ll ever get that kind of relief!?
As someone who has chronic illnesses and is disabled and neurodivergent, I feel that, and am happy you had a doc finally listen and you're feeling better! I just keep getting ailments and my docs don't listen, I'm always happy to see others actually get help.
why doesnn't he say the drug he took so others can try it?
Welcome to the Netherlands, Raphael! Happy to hear you're in good hands now. And glad that you're still with us!
Do you know the doctor that he implies?❤
@@esmerinaaa I'm sorry, no..
@@reginaphalange6081 it’s fine thank you for your reply!!
Remember, for those of us whose pain isn’t yet resolved: improvement is possible, a wonderful life can still be. I’m not cured and my symptoms still hit me hard daily but I’ve watched myself get stronger & stronger. I used to cry myself to sleep because I’d never be able to work in my profession again…now I’m back, kicking ass AND also get to be a professional historian, a dream that I thought had no chance to happen anymore. Life still sucks A LOT but we’re all going to get better in some way! ❤❤❤❤❤
I got misdiagnosed with acute anxiety attacks that nothing could alleviate and suffered 5 years with in agony night after night and nothing I took helped with the pain …. Eventually I was hospitalised I was so ill, and it was discovered I had 2 golfball size gall stones and one was stuck in the bile duct…. Eeerrrrr geeee thanks 😳👊🏼 glad you stuck with it and didn’t let them convince you it was “all in your head “ you are a lovely young man and your videos make me smile 💕💕💕
I have dysautonomia, (Which is becoming more common because covid) but the base of the syndrome is dysfunction of the Autonomic nervous system because of a disconnect in the vagus nerve (base of the skull). There is no cure (currently) "just treat the symptoms" but unfortunately doctors don't want to diagnose this, and say it is just stress. Regardless I'm glad you found a doctor to believe you! Everyone deserves this level of care! Believing a chronic pain sufferer is the first step!
So true!! You’re not alone!!
I'm sorry to hear that - was it caused by getting COVID, or the COVID vaccine?
Omgosh and what are you symptoms ?
Sorry to hear you have this. Came here to comment that if he has autoimmune issues (which is sounds like) if only the pain is treated, it doesnt mean the problem is solved. But of course I dont know which meds he takes.
In my opinion, pain is always a symptom of something. He mentioned he had inflammation. Its dangerous to mask the pain for a long time. People are sharing online about supplements to take for auto immune response after covid or after covid jab. They seem to lessen the inflammation.
Actually a new pathogen has been found causing degeneration of nerve tissues, and it’s not being talked about.
I'm so glad that you didn't give up and kept searching for answers. I'm so happy for you!
I am so happy you got answers. I know exactly how you feel that is the way I felt before I was diagnosed with fibromyalgia. Constant pain throughout my body I struggled ever since I was a child. Being told it was in my head. That I was imagining or I was trying to get attention. When I ended up seeing a dr for a check up he ended up being a specialist in fibromyalgia and I finally got my answers I was so happy. I'm still getting help with other health issues. It took me until I was in my mid 30s to get answers. I'm glad you got yours so quickly
The brain is a fickle thing and is the cause of many ailments. This video just tells me that we need more doctors that really specialize in the needs of the brain and not just the body. Anyway, I’m glad you’re feeling better.
True 👍
Those already exist. They are called neurologists!
@@nomanejane5766perhaps he means that primary care physicians need more knowledge on neurology. So they can at least consider a neuro consult before telling someone it’s all in their head.
@@_letstartariothonestly not gonna happen, there are so many conditions that primary care doctors / GPs can't begin to know everything, but they also refuse to refer to specialists, or if they do you often get denied anyway😩
@@Jade-fs9khwhat primary care doctors are you going to?? I’ve never been denied a referral…ever and I’ve had many doctors. Please switch doctors until you find someone who will give you better treatment. The insurance denying the referral would be the more likely problem but most doctors know how to get around that pretty easily. Or even change insurance companies if you can next time you’re due
I have lived with chest pain that I was finally told was basically what you explained with the pain receptors in my brain not connecting with true pain. I have yet to be told there is a medicine to help. I really wish I knew what you were given. I am, and have been disabled my this for over 10 years. it affects every part of my life. I am so so sorry someone as charismatic and young as yourself went through this!!! I am EXTREMELY happy you finally have relief. Your content brings so many smiles. I'm just thrilled you not only got answers but a fix!!.
I wished he mentioned the name too. I have weird chronic pain too.
𝖨 𝗁𝖺𝗏𝖾 𝖾𝗑𝗉𝖾𝗋𝗂𝖾𝗇𝖼𝖾𝖽 𝗍𝗁𝖾 𝖤𝖷𝖠𝖢𝖳 𝗌𝖺𝗆𝖾 𝗍𝗁𝗂𝗇𝗀 𝖺𝗌 𝗐𝖾𝗅𝗅.
𝖳𝗁𝖾 𝖼𝗋𝖺𝗓𝗒 𝗍𝗁𝗂𝗇𝗀 𝗂𝗌, 𝖨 𝗐𝖺𝗌 𝖺𝖼𝗍𝗎𝖺𝗅𝗅𝗒 𝗂𝗇 𝗍𝗁𝖾 𝗆𝖾𝖽𝗂𝖼𝖺𝗅 𝖿𝗂𝖾𝗅𝖽. 𝖨𝗍 100% 𝖽𝗂𝖽 𝗇𝗈𝗍 𝗌𝗍𝗈𝗉 𝗍𝗁𝖾 𝗀𝖺𝗌𝗅𝗂𝗀𝗁𝗍𝗂𝗇𝗀 .
𝖨 𝗋𝖾𝖺𝗅𝗅𝗒 𝗐𝗂𝗌𝗁 𝗁𝖾 𝗐𝗈𝗎𝗅𝖽 𝗌𝗁𝖺𝗋𝖾 𝗍𝗁𝖾 𝗆𝖾𝖽𝗂𝖼𝖺𝗍𝗂𝗈𝗇 𝖺𝗌 𝗐𝖾𝗅𝗅, 𝗈𝗋 𝗍𝗁𝖾 𝖽𝗂𝖺𝗀𝗇𝗈𝗌𝗂𝗌.
What kind of chest pain?
I hope you were checked for any heart related problem.
Did you know acid reflux can cause chest pain which feels severe, it's very common and easily treatable. Or do you have breathing issues? Like hurts to breathe or breathe deeply. Can also be caused by muscular-skeletal issues. And finally can in some cases be emotional. The chest is a central area so worth doing more analysis to determine the type of pain you're having and other conditions that may factor in.
I believe he is referring to Central Pain Amplification Syndrome , abbreviated as CPS or AMPS.
The most common meds for it are: painkillers, SNRIs, and nerve pills.
Painkillers don’t often work because it’s not pain from a real physical cause, it’s a messaging problem.
sNRIs don’t usually work well as they are for depression and anxiety, nerve disorder can be exacerbated by anxiety but it’s not the most effective way to treat this.
What I think Raphael is taking are nerve pills, like Lamictal and gabapentin. Because of the dosage, I believe he is on nortryptyline, as it’s the only nerve pain pill that is regularly prescribed in 10mg
I could be wrong, and I’m not a doctor, but this makes the most sense to me.
I believe he is referring to Central Pain Amplification Syndrome , abbreviated as CPS or AMPS.
The most common meds for it are: painkillers, SNRIs, and nerve pills.
Painkillers don’t often work because it’s not pain from a real physical cause, it’s a messaging problem.
sNRIs don’t usually work well as they are for depression and anxiety, nerve disorder can be exacerbated by anxiety but it’s not the most effective way to treat this.
What I think Raphael is taking are nerve pills, like Lamictal and gabapentin. Because of the dosage, I believe he is on nortryptyline, as it’s the only nerve pain pill that is regularly prescribed in 10mg
I could be wrong, and I’m not a doctor, but this makes the most sense to me.
It took me over a year to get diagnosed with Functional Neurological Disorder, so I can relate to this pain. I went through many tests just for it to be blamed on stress/anxiety. I’m sorry you had to go through this and am happy to hear things are going better🩷
I have this conditions since Oct 2023. You’re not alone.
I’m the same I was diagnosed back in 22 with FND, prior to that I was misdiagnosed and miss medicated as what they thought I had. You both not alone with this
What is this please?
@@rhope0 🩷
@@nicoleegan6103 🩷
Keep fighting, I am American but have lived near oosterPart for 40 years (I am 70 next week). My husband was told this for years. He found a doctor in Cologne Germany who suggested a "simple operation " . He has been fine since, Hopefully your meds help - congrats!!!!!
You aren’t feeling sad, you are feeling emotional because it’s finally over and you have an answer. I wish there was a cure for IBS cos I’m in pain everyday, I’m fed up. Sendings hugs and your hair is absolutely gorgeous, that colour🩷
My IBS was really bad until I listened to my body. Probiotics doctors gave me did not help. I feel your pain. It took me sacrificing things I loved to eat like fried foods, soda, coffee, alcohol, orange juice and nuts. Gluten is a big one too. I still enjoy them from time to time but when I do it wrecks my body. That’s the only solution I’ve found.
Do some research on LDN (low dose naltrexone)
the only thing that actually “cured” my ibs was to LITERALLY move to another country. even eating organic, USA food had chemicals that i can’t digest. even the smallest thing would ruin my digestion for DAYS. the medicine they gave me (bentyl?) made me super high throughout the day and it was impossible to function.
I also have IBS and the cramps from just eating makes me never want to eat again 😢 I’m sorry you’re going through this
Me too. Being so careful what you eat. Being sick alot until finding foods that agree with you. Its so exhausting. Sending huge huge hugs to my ibs sufferers, and everyone living with contant pain.
His video hit home! I’ve been going through health issues and I would trade anything to be healthy. Heath is truly wealth!
We love you Raph just take care of yourself regardless of what it takes, we will always be here cheering you on! ❤🎉😊
I have a friend who had the same but it was a pain to her teeth. She explained wanting to not live as well till she finally got help in Texas. So happy you got answers to!
I have chronic pain to the point you mentioned (touching your hand, sitting in a chair) and I am on a pretty strong medication to maintain a low level of functioning. I'm so relieved for you that you found someone to help you with your pain and I hope with all my heart that it stays this good for you 😊❤
So glad you are feeling better God bless you 🙏🙏🙏🙏
I feel you. Fibromyalgia is kicking my butt. ☹️
I'm happy that Raphael is feeling better now and I hope you will soon be, as well. ❤️🩹
What do you call it?
@@nodiggity8746 it's fibromyalgia
@@C.L.Hinton ❤️❤️
As someone who lives with chronic pain from fibromyalgia for over 25yrs. I know how u feel. I've never found Drs who will help me. I live thru it everyday with no help. It's a struggle for real
I'm extremely excited you have help and are feeling great. Sending prayers ur way
Same here. Twelve years now. 😔
I am SO happy to hear you are pain free!!!!!! Chronic pain is so bad, physically and emotionally and many of us live with it in different degrees...how wonderful you found a doctor who knew what the problem actually was!! I wish there were more doctors like that all around the world.
I LOVE the pink hair!!! Simone xo
I don't think people realize how difficult it is to live with constant pain. It not only takes a toll on your physical health but your mental health really takes a hit. I hope things continue to get better for you and you continue to feel relief.
It sounds like you’ve been through absolute hell. I’m so, so happy you finally found a doctor who understood your symptoms and what they were. It is so easy to be gaslit by doctors and told it’s stress when that doesn’t help the root cause. I hope your story will resonate to others in chronic pain and help them. I know that chronic physical pain can result in very bad mental health if left without relief. Big hug and kiss to you, Raphael, you are such a sweet person and didn’t deserve this 🌺
Just don’t ever give up… I had pain in my rib area for 5 years… and could never find relief or explanation…. Mine finally was fixed with a surgical procedure. I get what it’s like to wake up daily in pain… to lose hope that you will ever be you again. I’m so glad you are feeling better.
What surgical procedure did you have? I’ve had off and on rib pain.
F
Ive had constant rib pain for years and was told by a doctor that “I couldn’t hurt there” even though he was unable to touch my side without causing extreme pain.
Happy to hear you're painfree again ♥
Had several similar issues with doctors not taking my symptoms/issues for something real...
One is my asthma. Had some close calls as an infant and nearly suffocated due to it. Was treated all my childhood, but when I was a teen and left the childrens doctor for a "normal" one, they told me I don't have asthma. I'm just overweight.... several doctors denied it until I was fed up 8 years later and demanded to be sent to a pneumologist. And surprise, surprise: I have asthma. My medication is 4 times the amount of the one my brother takes. So much for not having it... (actually struggling with an exacerbation right now)
Second were my knees... They always hurt, gave way under me, made me fall down stairs due to instability and such. Heard everything from: "It's youth... Sometimes a bone grows faster than the others. It will regulate itself", "You just need to make more sport to train it" and a flatout: "If you weren't so fat, your knees wouldn't hurt" (and yes, ,he really did say it like that...) Got treated with high amount of painkillers, I shouldn't even be using with my asthma, as they can caus asthma attacks. (Didn't know at that time)
Only resultet in an inflamed stomach lining over months... end of 2019 someone finally found it... I was born with a deformation in both knee joints. Easily visible on scans, but no one saw it... I'm in my thirties, but I already need to walk on a rollator due to it.
Hate it when doctors don't believe and/or belittle you...
Probably have fybromyalgia as well. (same as my mother) but the rheumatic doctor took me serieous. Suggested a doctor specialized in pain management and perscribed me some pain meds. Need to take a pain killer pill each morning, but like 70% of my pain is gone on most days. Sometimes only 50%, but all is better than before
Edit =spelling & wording
That's awesome that you found the key!! Congrats!! As someone with chronic pain, I have so many questions! What's the medication? Do you have to take it forever? Are there side effects?
So so happy for you!!!
I am so very happy for you Raphael. You're a LIGHT that shines so bright and ur energy is so infectious. I'm so glad your health is on the mend, and I wish you the very best of it in the future.
Man!!! You are helping so many people!! Thank you for sharing!! Take care of yourself. It is great news!!!
Holy heck. As soon as you started talking about pain, the brain etc. I knew what was coming. I even commented on your last video about FND, as I have been going through the living nightmare that is FND since 2018ish (my memory fails me), so I can sympathise whole heartedly. I know its different for everyone, so I am so glad whenever I hear that people have found effective treatments for their particular nightmare. FND is so difficult to get a diagnosis of (I didn't get diagnosed until I legitimately woke up paralysed one morning) and even more difficult to treat. Your doctor deserves the world!
Still keeping my fingers crossed that one day we might manage to get mine under decent control so don't have to continue being mostly housebound or I can get together enough money for a decent electric wheelchair/adaptability equipment.
I missed your other video, so I'm going there next. I'm so glad you found someone that stopped, listened, and decided not to just treat the symptoms. As a medical professional, and having my own recent health issues, I know its hard to find. Sending you all the best vibes on your recovery and new breath of life! ❤
This makes me soooo happy to hear! Have been sooo worried about you since the first video, where you could see you were in so much pain
U are stronger than u know friend!! LOVE your pink hair. And u got through all this. Have faith ❤❤ also, TOUCH WOOD. NO PAIN NOW !!!! Great that u didn't give up and kept looking for answers
I’m so relieved to hear this Rapha! Not that you are ill but that you finally have answers! I live with chronic pain and it’s no joke! Sending good vibes from Canada! 🇨🇦
Im so glad you found a good doctor!💙
You are a living testimony and your pain and feelings are ABSOLUTELY valid. How could you not wish to wake up when you don’t have the most IMPORTANT thing in life: health?! So glad you have been able to grow, learn, and heal!!!!
Hope you're okay Raphael! Sending healing hugs 😊
Your relief is so palpable and I'm so happy for you! :)
I am SO happy for you! I do relate to your story because I suffered from Trigeminal Neuralgia and many doctors failed to diagnose me until I went to this Neurologist who prescribed the medication that saves me, literally saved me, because I absolutely understand how living in constant pain can cause you to feel like you just don't wanna be here anymore.
I have been a subscriber for YEARS and have seen you move many times and become more and more successful but I'm a silent watcher who barely comments... I wish you the absolute best ❤ you deserve the world
I need to know what you were given for your neuralgia I also have trigeminal neuralgia and it's the most debilitating pain I've ever been through in my life
@@aAngel93 I'm so sorry 😔 I was given Carbamazepine I take 200 mg in the morning and another 200 mg at night, I've been on it for a year now and it still works, thank God. But please don't take it without a prescription from a doctor, it is a dangerous drug with bad side effects and it has to be given gradually while being monitored, you also need to have some test to know whether you can take it or not and how high of a dosage you can take.
It works great, but that doesn't mean that the pain disappears. It can still be bad at times but mostly it works great.
I hope you heal from this truly exhausting condition 🥺
I too have trigeminal neuralgia and was misdiagnosed for about 8 months (while having full blown flare up attacks). It was my dentist who told me to refer to a neurologist bc his sister happened to have TN also so I am so grateful that at least one doctor pointed me in the right direction. I hope yours is managing ok.
@@aAngel93 Gabapentin has kept me virtually pain-free from trigeminal neuralgia attacks for well over twenty years. You'll need a doctor who will work with you since the dosage and frequency can vary quite a bit from person to person with this medication.
As a doctor I’m so sorry you had to go through all of this, and also I’m thankful you’ve found a doctor that listened to you and YES this happens a lot and I HATE when colleagues of mine complain about a patient that doesn’t have physical symptoms but complain about pain i mean there aren’t that many doctor that do it nowadays but still it angers me sooo much … sending love and prayers 🙏🏻
IBS?
I’m so glad you got an answer. I had the same issue 20 years ago and after 7 months of doctor’s telling me I was depressed I was diagnosed with fibromyalgia and given medication and I felt immediately better once I took medication. I’m still taking the nerve medication to this day and have quality of life . I’ve had flare ups but nothing like when I was undiagnosed. I’m glad you persisted and advocated for yourself. You know your body❤
Can you please tell me the medication you are currently taking? I have fibromyalgia and hurt all the time. There are some days I am unable to barely move. I am currently taking gabapentin. It doesn’t seem to be helping. It makes me feel extremely tired.
@@lindadebourbon931look at vitamin b12, magnesium, vitamin c, milk thistle and probiotics. Do yoga or Zumba to help massage upper body digestion
@@lindadebourbon931yes, I wish he would say the medication too. My fibromyalgia is getting worse.
@@lindadebourbon931 I take cymbalta for depression, sleep, and nerve pain . It has helped dial the pain down .
I am happy for you! 😃
I have lived in my nightmare for 9 years, soon 10 years. I understand the frustration and all the emotions. Glad you are back 😊
I've got complex regional pain syndrome in my foot. My brain receives heightened pain signals from my foot. Burning, tingling to horrendous pain. I can't wear shoes, can't touch my foot or have bed sheets etc touch it.. I take medication for it now. It took 2 years to diagnose. Went to top doctors etc etc but it was a good ol NHS doctor who knew straight away.
I'm so glad you're pain free xxxx
Hey, I was diagnosed with CRPS in 2009. Mine was just in my right hand and wrist and within 2 years I became full body with it affecting all organs and systems. I am now deaf in one ear last my teeth because the nerves died. I was a case study for over a decade and now just try to live life as much as possible. I just wanted to say you got this, and keep on keeping on!
I totally believe and hear you. I’m so sorry this happened and I am so glad you finally found the right doctor!!!!
I’m so glad that you didn’t give up and you have found some answers ❤ xx
This made me to happy I almost started crying. I'm so glad you finally found something that helped!
omg so happy for you! hopefully you will continue to feel fine and without any pain. sending you lots of love and support 💕
I am so incredibly happy for you that there was finally a doctor that listened and helped!!! 💗
That's amazing news!!! I'm really surprised no one thought of that because I've heard about this before and also the opposite affects when people don't feel pain when they should. I'm so glad you are good so happy for you 💗
I’m so so so happy to hear you feeling better!!! Lovely to hear you’re back to feeling yourself, relaxed and relieved. You are so strong and I’m sure your story will help many others struggling with same problem find answers too! Sending you so much love 🫶🏼 And love the pink hair 💗
I’m so happy that you were finally able to get a control over your pain. I have had chronic pain for over 3 years! Your words give me hope not to give up with my doctors ❤
I’m going through similar. I’m so sick, my body is reactive to everything, and I’m sore all of the time. I needed this motivation to keep working toward a solution. Thank you
Same here. And my fiance left me bc he couldn't cope with my issues. So life's going terribly rn, I'm in the dark, nobody knows what's wrong with me and I'm alone 😔 🙁
@@bonbonribbonssI’m so sorry. I’m in a similar sort of situation but even then I couldn’t imagine. I’m sure it’s devastating. ❤
I'm very happy to hear you were able to find a doctor to properly diagnose and treat you.
So happy and thankful that you are pain-free! You are a joy to listen to, and I appreciate you sharing your entire story with all of us. Now you can get back to enjoying every day on this earth!
Welcome to The Netherlands! Happy to have you in our city. You don't know us but we are your adopted internet grandmothers ❤
We don't usually comment, also because we watch your videos on the television, but this video feels so important that we had to.
It's so good to hear that you're doing well and that you finally have an answer that actually helps you.
If you're still in Amsterdam and would like to grab a coffee, we'd love to say hi.
I'M SOOO HAPPY FOR YOU !!! I've been chronically ill for years & was diagnosed with Fibromyalgia & for YEARS I was told it was all in my head & that my pain wasn't Real & Yet NOW Fibromyalgia is FINALLY recognised as a Valid Illness ! But because of the years of misdiagnosis I haven't been able to walk in years & need to use a wheelchair among other things. GOD BLESSED YOU with finding these RIGHT Doctor who was Finally able to help you & I wish you all the Pain Free Happiness in the world !!! - Cheers From 🇨🇦
I'm really happy that you have gotten better ! That doctor is a blessing
Hope you stay healthy !
Thank you for sharing your story. I've watched you for years. I hope things will continue to get better. You are loved.
I feel you when your body is in pain it’s the worst i’m happy it you found the solution, i have sever pains at night in my legs , i just want them away i did everything told by doctors to do for being better but it just worst and worst , and the mental process of physical pain is a whole another level. I hope for anyone feeling pain and don’t know how to deal you will found your medicine just don’t give up. Search an other doctor always !
I am so happy that you got a Dr that could help you and to feel validation in the pain your experienced. Finally getting a diagnosis and then being pain free is truly freeing and give you such a new appreciation for life! Sending you so much love ❤
I have lived with chest pain that I was finally told was basically what you explained with the pain receptors in my brain not connecting with true pain. I have yet to be told there is a medicine to help. I really wish I knew what you were given. I am, and have been disabled my this for over 10 years. it affects every part of my life. I am so so sorry someone as charismatic and young as yourself went through this!!! I am EXTREMELY happy you finally have relief. Your content brings so many smiles. I'm just thrilled you not only got answers but a fix!!
Yes, I wish he would have shared his medication name. But I understand why maybe he can’t. I’m desperate for pain relief from 2 separate nerve conditions.
I’m not a doctor but have they ever put u on prednisone?
@@Figurecharout yes. does nothing for it
@@Kris-gz1sv I feel like him saying 10mg is of prednisone it’s what a lot of doctors would prescribe
If they can identify a specific nerve that is causing false pain, and it's not a nerve keeping you alive, they can sever it with microsurgery. My best friend's mom had this surgery, though hers wasn't specifically for pain, it was because the malfunctioning nerve was triggering her heart to race when she was just sitting still.
I could remember several years ago l suffered severe depression and mental disorder. Was actually addicted to cigarettes and alcohol. Not until my wife recommended me to psilocybin mushrooms treatment. Psilocybin treatment saved my life honestly. 11 years totally clean. Shrooms are God- sents
Psychedelics are just an exceptional mental health breakthrough. It's quite fascinating how effective they are against depression and anxiety. Saved my life.
Can you help with the reliable source I would really appreciate it many people talk about mushrooms and psychedelics but nobody talks about where to get them. Very hard to get a reliable source here in UK. Really need
He's Shane.myco
He’s on insta?
Yes, he is shane.myco
Sending lots of love my friend. I hope you’re okay xx please stay strong!
Am so glad you finally have answers and a treatment plan. I hope your tomorrow is even better than today!
never been this early. i'll leave a comment first then watch. i hope everything is fine in thee end
just finished watching and i'm crying happy tears! i am sooo happy that you are pain free now. God bless you Raph
I’ve been where you are and still am, in many ways. What keeps me going is knowing I’m not alone. Thanks for sharing your story. I’m so glad you found a cure.
I'm happy u have gotten some improvement u looks so relieved and much happier I so happy for u oml love 2 u
I am so glad you finally found your answer. I am still trying to find answers for my conditions (and I have done the crazy swallow-the-camera test, too!). I’m so glad you’re feeling great!
So happy and relieved for your successful diagnosis.
This is such great news! I’m so happy for u Raphael. I hope you have continued success with being pain free. Much love to you.
This made me tear up as im going thru something similar!! Thank you so much for sharing, it gave me alot of inspiration 💕💕💕 so happy you kept going for yourself and found answers!
So glad you found someone to help and believes you and something that helps and the same thing happened to
Me when I got sick my empathy increased my compassion for others increased
If there is something I have learned in this life it is that most doctors don’t really care about their patients and they just want to collect checks
Was he Covid vax injured?
Here in the Netherlands its luckily pretty good
I agree and often say the same xx
often even if they do care about their patients they are severely overworked and develop a lack of empathy (combined with pressure from the government in places with publicly funded medical care, to send less and less people for expensive medical tests and procedures)
They do care, but they follow the protocol. If it doesn’t fit the protocol, they are lost and can’t diagnose atypical conditions.
I'm so happy for you! I'm so sorry you went through that, but congrats for making it through.
When I'm having a bad day, everything hurts. What should feel "normal" feels like pain. They've given me so many diagnoses, including depression/anxiety. Eventually they diagnosed me with fibromyalgia.
Are you in any medication ?
My mother has had that for a long time.
I have fibromyalgia, I have tried a lot of the medications for it, they made me feel worse. The only medication I agreed to go back on was gabapentin. I also have anxiety and panic disorder.
@@jjsmakeupobsession323 Same.
@@jjsmakeupobsession323 I had the same experience with gabapentin. I'm sorry you're going through that. ❤️
Doctors will never know your body better than you know your body. I'm so glad you got answers and a great doctor who listened to you and didn't gaslight you. It's so hard when you try to advocate for yourself, when doctors think of your appointment as a block in their schedule, not as a real person. I'm so so glad you're feeling better, and i'm so glad you're still here. We love you ❤
OMG! I am so glad so many Doctors are finally have find what’s going on! So many and your finally reached him. Thanks! 🙏
God bless. So happy to hear your success story of a doctor who actually listened and cares about his patients very real symptoms.
so glad to hear you’re okay 🤍 you have been my comfort youtube for years and you deserve the same comfort you bring others 💫
I am so happy for you - I hope this is continuing forever for you to be pain-free. My husband lives in pain everyday and no one seems to be able to help him. No one has ever mentioned trying to check maybe its coming from somewhere else, like brain receptors. You have given me a new angle to speak with doctors about and try to get answers! Thank you so much and I am so happy for you. Can't wait to see your next videos! :)
I just got a new diagnosis after 15 years they were wrong also and it's autoimmune and could have been treated. 15 years I been suffering in debilitating pain told its fibromyalgia when it is rheumatoid arthritis. I am now on biologics taking injections. Praying they work soon. Always advocate for yourself because you are the only person that knows your body. P.s. you should go do that $3000 mri that tells you everything about your body.
I had the same exact thing, told it was fibro and I have RA. Only thing with me was I had an RA diagnosis already when I was 20....I moved and all the sudden I didn't have RA, its fibro. For years I went to 11 different rheumatologists, numerous other specialist and they all gaslit me when I KNEW I had RA. Finally I went to UCLA and saw the head of rheumatology and she diagnosed me on the spot. I've been on treatment now for years and I'm so thankful. I really hope your meds work for you. You might have to do some trial and error, there are different types of biologics I tried almost all of them, orencia IV (not shot) works for me and most others didn't. Rinvoq(a pill) worked too but it made me gain 30lbs. I wish you all the pain free days to come!
Biologics have been my life saver! Currently on Skyrizi and it’s been a miracle drug.
@@nolaray1062 I think I'm finally starting to notice a difference. I am so excited. In the morning has got a little easier but I'm still turning to concrete at night.
Hi Raphael, your videos have been a source of comfort and positivity to me throughout medical school including during COVID. I am so grateful that you have shared your experience. As a doctor now, I want to make sure to listen to the experience of people like you and I don't ever want to make my patients feel like they are not heard or cared about. I am sorry that you have had negative experiences and I hope that with the comfort from this diagnosis to explain what you are feeling, things will be looking up from now. Lots of love from the UK
I an pretty concerned regarding your health but I couldn't do anything for you except my prayers.. I always send you my prayers for your well being, I pray that my prayers become the necklace on your neck so that my prayers always shield you and stay with you wherever you are and wherever you go Raphael. Amen
I am very happy to hear you are doing more than great. My thoughts have been with you for the 7 months. Your brain controls everything in your body, even your nervous system, and some times the signals go haywire.
So glad you found relief, and are fortunate enough to afford to find it!
I’m in agonizing nerve pain 24/7 from pudendal neuralgia and thoracic radiculopathy.
I’ve gone to numerous doctors, physical therapy, spinal injections etc. no relief and doctors in my area don’t know how to treat it. I did get one RX that may have helped, but my insurance won’t cover it and it’s beyond my budget. 😢
I'm assuming you've already tried this, but if not, Carbamazepine helps for neuralgia pain. I take it during flair ups and my mom takes it everyday for her pudendal neuralgia.
@@CNMU I have not tried this particular medication, but I’m on Lyrica which is similar. Thanks for the advice, I can ask my doctor!
@@lizziebjl I think my mom takes it in combination with Lyrica!
How wonderful for you! Much love from Missouri, USA.
Hallelujah!! 🎉🙌🏻🙌🏻🙌🏻 I’m so happy you finally got the right doctor & right medication. ♥️
I am truly so happy that you feel better, it is definitely a life changing experience when you go through intense pain with no end in sight, thank goodness you found your doctor, I went through a similar experience while I was taking care of my very ill father so I pushed my pain to the side but at night when I laid down I was crumpled up in a ball of pain and after countless doctors and diagnoses I found my doctor who knew I was carrying a serious infection in my bowels. After 3 rounds of medication I began to feel better but while I was in it I questioned my mortality every night for 5 years. I am sorry for the TMI but I wanted you to know that I can relate to how you felt and I am rejoicing for your recovery.
Raphael, what you described is EXACTLY the life I have been living for almost 18 years! I started crying as you described what the doctor was explaining (the disconnect and that your brain was receiving pain signals, though there was no actual pain events). I beg of you, can you please tell me the doctors name or the medication? I have been TRYING to explain this to all of the dozens and dozens of doctors I've been seeing for all these years and they all look at me like I am crazy! I am thrilled you found, not only a cure, but someone who knew what you were suffering from! I hope, most sincerely, that you can disclose the doctor or medication so that I might be able to either see that doctor or suggest the medication to my doctor. (even if you can private message me) Because of my constant pain I have lost all ability to live normally and have now been "house bound" for over 8 years. I would so love to live again! Thank you for sharing your journey, I have hope again.
!!
So excited for your life moving forward!
I've been in pain for years and have jumped thru all the hoops. Finally, finally might be able to get the back surgery to help. Wish you could say what the medication is that helped you. I understand why you can't. You've given hope to so many by just sharing your story!
Love your hair!
I love Amsterdam!! that city was so fun to visit!! I hope you feel better soon ❤
Raphael, I am so happy for you. I hope that you are able to continue on and discover life’s joys once again!!
Am happy for you. Some doctors are just a great blessing and to find them is a bigger blessing.
Health is wealth. Most important. May Allah grant us good health and happiness
You process your thoughts and deliver them with such articulation. Priority about loving stuff you cant buy far outweighs an endless bank accout for sure. I had learned to have more empathy for others, too, when I experienced real pain that I thought would never leave as well. Thankfully, It did, but it wasn't because of a doctor. I was just lucky. I prayed a lot and also tried holistic concoctions that I'd read about 'here n there'. Just wanna say I'm so happy for you. The sense of relief is 'real'...and is priceless.
That sounds like Long Covid. It is able to create a dysbalance in the nervous system and destroy the Vagus Nerve. This is happening to so many people, and they don´t get the help they need. I´m happy you found one of the good doctors. Glad you´re feeling better.
Yes!! I have some many family members who are having health issues and now my mom. She said herself she thinks it’s long COVID and I agree. She even mentioned that it has to do with the Vegas nerve! This comment is the first time I’ve seen someone really acknowledge that this is actually a thing and it is no joke! A lot of people are walking around with bad cases of ammonia and don’t even know it :/
@@briweiird4394 Yes unfortunately Long Covid has many faces. It can trigger various symptoms, but many of them seem to be autoimmune related. Since Covid is able to enter every organ, including the brain, our blood vessels, the heart, lungs, our immune system and cells it´s able to cause all kind of damages. Unfortunately many poeple are unaware, even thinking the pandemic is over, but if you start asking people you will get many answers from them, like: I am sick every other week, I can´t get rid of this cough anymore, I have pains all over my body, I get a racing heartbeat as soon as I get up, I have trouble breathing, I´m constantly forgetting stuff, I react allergic to food all the sudden.... And some of them will never know that they actually have Long Covid, because our health system is crap. Doctors will tell you 99% of the time, that it is psychological and that you have too much stress or anxiety.
Possibly yes
Def sounds like long covid
This! Sometimes I feel that people underestimate the consequences of long Covid, in my case I'm taking many clinical studies due to suspicions that my doctors have about a possible lupus caused by an infection of covid I had the last year
So glad you’re getting better! I was diagnosed with fibromyalgia a few years back which is similar in that my body gets pain signals for no reason. And yeah it sucks because I’ve def felt where doctors think you’re faking and it sucks. I’m so glad you found someone that was able to help you. I am so so happy for you 🥹
Raph, I was thinking of you and wondering an update and thanks for letting us know. I know that feeling. Thanks for being open, we love you!
Yo bro I hope you feel better take a long break if you need it from UA-cam we will understand why you take your break 💯
I’m so happy for you. My chronic pain and fatigue began 1990 and has been progressively worse over the years. I finally got a diagnosis about 2011. I sympathize with your struggles. God bless
Can you share the name of the condition/ diagnosis. I'm a medical student and very curious to learn about it
I can't help but wonder if it's a condition I myself have been battling for the past eight years. I knew what mine was the instant it kicked in because my sister had it before me and I got to see how it affected her before my own kicked in. If I am right, they wouldn't teach it to students in the medical side because it's so rare that it isn't affecting many people in the world. I have what is called Causalgia or another name for it is CRPS and used to be called RSD.
As a chronic pain patient, I could feel the relief through the phone screen. I am so very happy for you!!