Maureen, my mom died in 1982 from Cryptococcus neoformans, Lupus Erythematosus, and Pneumonia. She was only 22 years old, and I was only 2 years old. Is there any way to get more information into her condition and how she died within 3 weeks of getting Cryptococcus? It's like I've lived my whole life as a mystery behind why my mom passed away and I would love to be able to use her story to do something positive with it.
@@tonychan4601 Thank you so much for your feedback. My mom died before anything was actually diagnosed so she was not on any medications. Her death certificate said she had SLE for 1 year (undiagnosed with no treatment) and Cryptococcus for 3 weeks.
I was sick from the age 16-24 I went to the hospital 100s of times and they never tested me. I got so sick. My CD4 was at 12. I got down to 70lbs. They told my family I wasn’t gonna make it. I was in the hospital for 2 months had to learn to walk and everything again. I’m good now tho but I just hate the medical field don’t care about us like people want us to believe. You could see something was wrong and they always sent me home till I was like dead.
@@rosneilyurribarri7870 anyone can be infected, meningeal infections are inductive of immunosuppressive conditions. You might have an initial pulmonary infection and disseminated to other systems not necessarily your central nervous system.
Can cryptococcus be disseminated and cause a chronic meningitis and encephalopathy or does it always cause acute symptoms once it is able to evade the immune system?
My right ear is still kinda messed up from Cryptococcous neoformans if something is slightly loud right next to my ear it makes like a buzzing noise or something I'm terrible at explaining things sometimes but I am taking anti fungal medication I'm taking 800mg and no I don't have HIV or AIDS I'm a kidney transplant patient
Maureen, my mom died in 1982 from Cryptococcus neoformans, Lupus Erythematosus, and Pneumonia. She was only 22 years old, and I was only 2 years old. Is there any way to get more information into her condition and how she died within 3 weeks of getting Cryptococcus? It's like I've lived my whole life as a mystery behind why my mom passed away and I would love to be able to use her story to do something positive with it.
@@tonychan4601 Thank you so much for your feedback. My mom died before anything was actually diagnosed so she was not on any medications. Her death certificate said she had SLE for 1 year (undiagnosed with no treatment) and Cryptococcus for 3 weeks.
@@tonychan4601 .
I was sick from the age 16-24 I went to the hospital 100s of times and they never tested me. I got so sick. My CD4 was at 12. I got down to 70lbs. They told my family I wasn’t gonna make it. I was in the hospital for 2 months had to learn to walk and everything again. I’m good now tho but I just hate the medical field don’t care about us like people want us to believe. You could see something was wrong and they always sent me home till I was like dead.
Respect ✊
Joel Cardona 🙌🏼🙌🏼
was it a fungal infection? and how were you treated?
Did you have cryptococcus? If so, how did you find out?
Hi all, i was diagnosed with pulmonar cryptococcosis in 2017. and i dont have HIV. i have been treated with Fluconazol. 200mg/day.
La criptocococis puede ser gattii,es otra forma del criptococcus
@@rosneilyurribarri7870 anyone can be infected, meningeal infections are inductive of immunosuppressive conditions. You might have an initial pulmonary infection and disseminated to other systems not necessarily your central nervous system.
Alternatively it may have been a gattii infection, as the person above stated
During the treatment what are the side effects? How u recovered and how long
@jessica powers herbal products for fungal infection?
Amazing video well explained!
Very good,hello from Venezuela
do you create videos in everything in medicine?
If its found in stool what does that mean?
Can cryptococcus be disseminated and cause a chronic meningitis and encephalopathy or does it always cause acute symptoms once it is able to evade the immune system?
What does it mean if its found in stool culture? Is this normal or does it mean there might be an infection if pt has headache etc...
I would like to know this too
My right ear is still kinda messed up from Cryptococcous neoformans if something is slightly loud right next to my ear it makes like a buzzing noise or something I'm terrible at explaining things sometimes but I am taking anti fungal medication I'm taking 800mg and no I don't have HIV or AIDS I'm a kidney transplant patient
What is the opposite of talent at explaining, you have that. thanks for the presentation though.
Hi all, i have diagnosed through a Lung Needle Biopsy, but the blood test to detect the antigen it always comes negative.
do you have website sharing for your slides please
You can’t get rid of it
So what do you do take diflucan youre hole life
Joel Cardona Nah once they get it stable you get off meds
Thank you very much♥️♥️♥️♥️