My brother has had 2 vaccines and caught covid and now he is fighting for his life in intensive care with pneumonia. So people need to be aware of the risks, even after 2 vaccines. he is 57 and very sick.
As someone who has struggled with fibromyalgia most of my life, I sympathise with everyone battling chronic health problems. Sending all suffers hugs and warm wishes.
Same here. Chronic pain too after breaking my back but the NHS not recognising it for 10 years - then failed surgery followed! I lost my Nursing Career and it broke my world! Daily struggles still control my life. Learning to live with pain and fatigue is tough. I feel for all sufferers. Key is not to feel guilty, but to aleays strive to do your best within your limits. All the best to everyone. Thank you Dr. John Campbell for your hard work and dedication. You are a star! Xxxxx Xxxxx
I think they may discover that fibromyalgia and ME are both caused by a virus. It’s so hard when you know or can tell that some people think it’s “all in your head” (or just want attention). Yes, it’s likely a virus in the brain and nervous system. I have tried everything I can try with diet and exercise and supplements and still have many bad days of serious fatigue and pain. I had to give up a career I worked hard for and loved. I’m so sorry for the long Covid sufferers and I hope you receive more support and compassion than many other people have received when they have a poorly understood illness.
Before I watched this I was convinced that the medical profession honestly does not understand this virus and in reality has no clue as to implications for the future. After listening to these brave women speaking out, I am even more convinced. I HATE it that some just think they are having mental issues.
Sadly, it’s got a long history in UK. Women were ‘hysterical’ because of their ‘wandering wombs’ according to the ancient Greeks (Wiki has a page on it). The idea persists even today, although the reasoning is different.
I think outside of very specific issues, like a broken leg or cancers.. the general doctors, simply don't have the remotest clue about anything else. Even the consultants and Specialists seem abit vague, it's always do this test, get blood taken, get xrays, ultrasounds, mri's.. People think an Mri is an amazing thing, but it really isn't.. I had 4 Mri's on my left knee.. not one of them showed any cartiledge loose, yet the surgeon who did the keyhole surgery.. removed 4 bits, one of which was as big as one of my teeth. Then there's the cost of everything.. millions for a machine.. that cost a few thousand to make.. the uk Nhs has to take cost into account everytime, which is one of the reasons we always get the cheapest medicines that don't help or when realisation occurs of a fact.. it's too late and you're as good as dead.
I never comment on UA-cam, but I have been suffering for the past 10 months after covid. I am 29 and can barely walk 20m without feeling like I am going to have a heart attack. Almost every healthcare professional I have seen tells me its a mental health issue. I have been dismissed over and over again, so it is very nice to hear other people share the same experience. We are not alone.
How are you doing now any better? I'm 29 as well and have a really hard time walking can only get 250 steps in without having to lay day and rest for hrs . While laying down shortness of breathe nervous system is out of wack I can barely move around and dizzy and confused. I have to be pushed in a wheel chair if I go out of my house this shit sucks . Hope you start seeing progress soon
@@kylechavez7961 hope you are better also, I'm two years in, was where you are, I have no medical training but the only thing that's helped me are OTC Claritin ( store brand) and saline nasal spray, it's horrible, and no one listens
I have symptoms of POTS, where my heartrate jumps 30+ bps from sitting to standing. Its the second time it's happening to me so I feel confident it goes away for me but when it creeps up it increases my anxiety. Time to see alternative medicine doctors.
An Old adage - what they don’t know won’t harm them - human responses cover many starters* Age, other medicines already combined, ones stress levels, prior existing conditions-- diabetic , epilepsy etc. Others should Look before leaping -as DOCTORS ARE ON STEEP LEARNING CURVE TOO !
I want to know what Covid toes are. I keep hearing about that. Is this what I’m experiencing? I have no circulation going down to my hands or feet and I’m freezing all the time. It sucks.
While I empathise with people suffering from long covid, they at least have been recognised in a matter of months. For people with M.E and fibromyalgia, we have been dismissed, ridiculed forgotten for decades.
Absolutely, same for Lyme disease and toxic mold exposure. Dr's continue to be clueless and can't tell you how many times I heard its "all in your head."
@@esecallum And I'm not suffering anymore but many people continue to. I've seen many of your comments on this channel and all you seem to want to do is troll and be spiteful. Go and enjoy being that person. You're obviously not happy.
@@twelvesmylimit if you bothered to read my original post PROPERLY i never said it was magical. i said based on recent scientific advances. even in this post you attacked me by using the word 'magic' in a prerogative way.instead you could have said please tell me as i am willing to learn and try new things and have an open mind
To everyone suffering any effects from this dreadful virus (enduring or otherwise), I sincerely hope you regain your health as quickly as possible. Very best wishes and please do take care.
@David Fallaha Think I'd rather trust the wisdom and advice of qualified and experienced people like Dr. Campbell over the rantings of anonymous internet posters peddling conspiracy garbage.
My wife having longer symptoms from long covid. She has from February2021 when she suffered badly by a rare pains in her left shoulder. She had all the symptons that these courageous ladies are talking about. Bodily aches and pains , panic attacks, anxieties .She even asked her GP for medication to stop the anxieties but the reply she got is, " what are you anxious about? " It's now 12 months since she suffers from long covid. GPS are not clearly understanding these sufferers long covid symptoms and some people are judging them thinking they are taking too many naps.My wife is a very strong person and works with the NHS as a frontline staff and she caught covid looking after one of her patients. She asked her GP for a MRI scan but she refused to refer her.Her GP was unsupportive dismissive and lacked knowledge about this covid conditions until she complained to 111 and then the surgery started to pay heed to her .My wife has underlying symptoms such as asthma and she is complaining of headaches which she had before covid but it's more prevalent now. She is as optimistic as these two ladies. But now it has affected her finance .She is probably going to change her career but she must get some very good advises from her employer to support her and not to strip her .She said she felt like a burden to the system but has been working and paying her taxes . I would love for everyone to recover completely and are able to continue with their normal lives.....Thank you everyone on this panel for your inputs in your suggestions and supports for the sufferers.
@@michellerm2104 I agree!! I experienced very similar symptoms, The left arm pain is still here. I was vaxed in my left arm!! I have felt neurological instances where I thought my arm would go numb several times. Up until two weeks ago my arms would vibrate when I sneezed literally!!
Thank you to both these very courageous women. As long covid sufferers, we so appreciate this conversation. There is some healing to be found in just knowing we arent alone. 🌷
My husband cured his long hauler symptom after 1o weeks, Dr Drew recommended for my husband to take Fluvoxamine (he was prescribed 100mg twice a day for 2 weeks). IT WORKED! within 30 minutes of the 1st dose he was completely cured. Dr. Drew said it somehow resets your brains/immune system. His long hauler symptoms were Fatigue, ears ringing, headache, body aches, brain fog etc. flu like symptoms. This is also how Dr. Drew got rid of his loan hauler symptoms, its hard to find on the internet probably bcuz they are censuring it. pass it on
@@colleenpagano8738 I recently started Reishi & Lion's Mane medicinal mushrooms. They may help you with no Rx needed. Peer reviewed studies are published showing Fluvoxamine is an effective cytokine storm blocker, but it still isn't main stream... No $ in a 40 year old safe drug that can help with depression and long-covid at the same time. Such a shame.
Here read this long covid treatment protocol, what your Nurse wont even mention so his not interested in helping the sick; covid19criticalcare.com/covid-19-protocols/i-recover-protocol/
The heart issues sound what I experienced about a week after my vaccine for 3 months after. Ive noticed that some of the rare serious side effects of vaccines are similar to common complications of civid. Unfortunately I was only able to get a full cardiac workup at the tail end and echo showed nothing but 48 hr holster monitor did! It happened less and less though so the dr said too much time had passed to be definitive but seemed like myocarditis with J&J vaccine. It went away for me but it was a frightening time and only when it was basically over did I get proper care. The ER said it was all in my head... they asked my why I was anxious I told them I wasn't and that when they measured my heart rate I wasn't anxious or angry but that I was now angry because they're trying to tell ME how I (a very self aware person) how I felt! I'm so sorry you ladies had to go through that psychological abuse from people who are supposed to be helping you!
Interesting how there are no support groups and no publicity given to all these harmed or worse by the vaccines, its a huge number too Worse than that is people are being encouraged or inspired to mix these experimental vaccines there appears no thought given to safety www.kidspot.com.au/news/im-booking-a-pfizer-jab-after-almost-dying-from-reacting-to-astrazeneca/news-story/17b8ec0fc72e29fc59a0568fc8899850
@@blissboat2543 I did but they didn't take me seriously at first. That is why the delay before getting referral to cardiologist. By that time it was winding down but he said he personally saw several myocarditis cases. Noone had permanent damage, but it's still important for the patient to know what's going on. I'm better now but I had to endure a frightening experience, initially being told it was all in my head, and I missed some work.
@@stefs3460 I had really bad reactions after my 2nd Moderna. Walk-ins refused me care saying I had symptoms of Covid. I had not been anywhere since my 2nd vaccine. I stood there crying when I had been denied care when I knew there was something wrong with my brain! My brain felt swollen, I had memory loss, memory problems, I couldn't think or concentrate. I coined the term that day "loss of algorithm thought process." I had loss of balance and falling, loss of taste and smell etc. I get tested every week at work, and I never go anywhere, so I knew I didn't have Covid. I took 3 tests that week to prove I was negative. Eventually I went to my PCP MD I hadn't seen in 25 years. I was eventually diagnosed with autoimmune encephalitis. But after my 2nd round of prednisone it kept attacking my body systems one at a time, including my heart sensation of feeling swollen along with palpitations and tachycardia with a resting pulse of 135. I want to add I took the vaccine because it was mandated, and I haven't worked ANYWAY for months because of my adverse reactions!
@@daverok1113 you are correct. I have had so many symptoms of Covid after my 2nd Moderna and many mock insult name call call me a conspiracy theorist. Two walk ins denied me care
I have been suffering for long COVID for 3months now and was told by my doctor that he didn’t no what else to do he prescribed me anxiety meds which didn’t help I’m having bad palpitations also a lot of memory loss very fatigue I really don’t know what to do
I rarely comment here but I have to acknowledge John's commitment and compassion in his interviews and presentations. This one was particularly poignant. As his subscribers, we can show our gratitude by ensuring that the sufferers of Long Covid are supported in every way, as best we can. Thank you John for your hard work. We can at least do our bit by keeping ourselves and others safe from contracting this disease.
You can do better by offering to do errands for someone affected, carrying something, cutting the grass, shoveling their snow or car out of a street bank, etc. Step up with no cost to you. Not just for long covid but for the disabled in general.
With how much actual information is coming from outside the established authorities, really makes you think how lucky we are to have the Internet and have them be able to share this info widely to those who would listen. Imagine how screwed we would be if the only voice we heard were the mainstream-media-approved voices from High Above.
The internet has been a source of misinformation as well, but I would concur that it is possibly the best way to communicate worldwide especially in these moments of crisis.
In the caseof Long Covid the internet is a glass half full, but in the case of vaccination it's half empty. I studied the pandemic from home since January of 2020. I contracted SARS Cov-2 at the end of February 2020 and had a cytokine storm the first 2 weeks of March, leading to long covid. Dr. Campbell, Medcram, TWiv and Grand Rounds from the worlds leading research academic hospitals have taught me about how the scientific community endeavored to understand this novel virus. Oddly the most helpful recommendations in my recovery came from of citizen scientists; who formed self help group. Looking for existing syndromes with similar symptoms and experimenting with their protocols. To date there is no one size fits all answer. For me the Low Histamine Diet and anti-inflammatory combination has been helpful.
Wow, Ondine and Vicky, what a lot you have been through. What a lot you have accomplished, too, despite the handicaps. Thank you for contributing your time and energy to this program. My best to you.
My doctors solution to my long COVID symptoms (in April 2020) was to set me up with counseling. She diagnosed me with a mood adjustment disorder. The feeling of absolute defeat, as I sat through my first tele-therapy session absolutely drained from the fatigue of long COVID, explaining that I am still sick, and having to go through the whole counseling process as if IT WAS ALL IN MY HEAD infuriates me.
I'm 16 months dealing with Long haulers. I had coronavirus 2 times in 2020. It got way worse and much more noticeable after the 2nd time. This is horrible. It changes people's lives and not for the good. Praying for all of us long hauler warriors 🙏 ❤
I’ll bet an awful lot of money you actually had the flu the first time you thought you had COVID. It would be extraordinary for you to be worse from a 2nd infection from the same virus twice in a year. It’s frankly extraordinary that you caught it twice in a year let alone be worse the second time.
Sounds like you need ArtemiC and some vitamins. Both me and a coworker used ArtemiC Rescue when we had COVID-19, we were both well again within 3 days. And recently someone in the house tested positive. I started using the ArtemiC Support covid defense drops and I never developed any symptoms despite having somebody who was tested positive in the house. Of key importance was of course having the ArtemiC bottle already in my refrigerator and being able to use it immediately. ArtemiC Support also is used for Long. ua-cam.com/video/hnQxWyDF_44/v-deo.html
@@MrHappyBats have you tried changing your diet? You probably looked into everything but maybe try carnivore, I’m not trolling but this has helped some people with other diseases
Some years ago I had Reactive Arthritis following a mild stomach virus. It followed a similar pattern - starting to slowly improve after six months with relapses - but took 18 months to finally get better. I had disabling arthritic pains in wrists, ankles, knees and even my back. I was unable to move my wrists for months and could not even lift a pen without pain. It was a living nightmare - so ladies and to everyone who suffers from Long Covid - my thoughts are with you and I wish you a full recovery to health.
Avoid sugar whilst in recovery and eat licquorice and mash mellow root. Garlic oil if you can and ivermectin rebuilds the nerve endings. But see your doctor asking for dosage.
@@TheBushRanger. Yes Ryan - I certainly remember a lot of cracking in my joints at the time - but the excruciating pain and swelling was the disabling part of the condition. If you can associate with the pain too - if it was me, I would ask my Dr to check for Reactive Arthritis. It is quite a rare condition - so often one of the last conditions your average Dr would test for! Good luck!
The Yellow Card Scheme data isn't taken seriously enough by some of the public either. They would soon change their minds if it happened to them. What's your thoughts? Do you think these people should be remembered?
Mis Dangered - that's the problem.... Campbell has NEVER covered it. Very suspicious! He covers everything else..... but IGNORES all the injuries and deaths on these two government sanctioned data sets
I am a Clinical Psychologist with long covid. I was fortunate to recognize early on the anxiety attacks that I was having were mimicking post-traumatic stress disorder. I do think that many of us have some form of dysautonomia, a syndrome where the sympathetic nervous system is kicked into action by even normal activities. I have an anxiety attack every night when I need to fall asleep. This is normally when the parasympathetic nervous system would kick in. I am constantly working with people suffering from true anxiety and the difference between their thought processes and my own are worlds apart. I am able to unpack my thoughts and recognize when I am going into 'disaster thinking. People with anxiety disorders are often not aware of the link between thought and symptoms.
What stuck out for me from this interview was the parallel between ME/CFS Chronic Fatigue Syndrome and the ability to be recognised by the established health systems.😷
Though some good news for sufferers of those, as there is a Facebook group of doctors with long Covid, some who've had to give up work. There now seems to be some understanding of chronic fatigue
If the response to long Covid, from established medical systems, is anything similar to the response to chronic autoimmune diseases, God help long Covid sufferers. Current medical systems are not designed to deal with these chronic illnesses, and patients are basically left without proper diagnoses, or treatment, in many cases.
Wait till they get the psychiatrist involved, like they do with ME, then the epistemic injustice really begins. eg. Forced exercise, capacity taken, ignored complications and even accusing family members of Munchausen by proxy for having to become carers. They simply don't believe it exists and undermine every attempt to get better by pushing us to do more.
I thank those women for speaking out because a lot of people do not know about this in Australia and New Zealand. So good to hear from people that have been through this and still battling systems. Thank you to all for work being done on this.
I’m a “Borrelia/Lyme -survivor”, and so traumatized by just the same history and symptoms. I feel with you so much, there are so any of us fighting these symptoms, and worst is the lack of help from doctors- they don’t know what to do or they say they can lose job if treating Borrelia more than initial four weeks period. For those with long hauling symptoms, so many weird symptoms, an often no test show a specific illness, it’s a nightmare. In Norway there are no place they transfer you to if you are hard to diagnose/treat, and ordinary doctors don’t have time to be a detective and find out of your illness. We are not popular patients. It comes in flares. Ow my body cannot cope with blood pressure over 130/80, which is nothing really, but I get really sick. And it effects circulation and neurological also. It’s so important to get these information out, so thank you for sharing your stories. God bless you, hope you will recover soon. Be careful out there folks, vaccinated or not.
Do you have access to naturopaths? My husband & I have Lyme & coinfections, that are of course ongoing & unpredictable. We have had some success in management with our symptoms. A listening & sympathizing ear as well. As many of these providers also have Lyme themselves. I will pray for you to find help.
Fatigue!!!! They need to come up with a new word because that just doesn’t cover it. I slept 20 hours a day for 4-1/2 weeks. I’m a year in and hardly improving.
How old are you. I am 57 and my job keeps me in shape. If I had a month off I would also be sleepy. It is hard to get motivated about anything at the mo for fear of planning things getting cancelled. Do viruses have heat beats?
Fatigue is a perfectly adequate medical term. I used to work with people with multiple sclerosis and they can suffer from debilitating fatigue for very long periods of time. It's called 'fatigue' because 'tired' doesn't cover it. You may not have suffered this kind of symptom before but many other people have and the standard term for it is fatigue.
Lots of talk about medications and supplements but there is a lot of research indicating that ditching sugar, starches, grains, legumes , vegetable oils and processed foods containg these is benefical if not miraculous. Replace them with a diet rich in meat, fish, eggs leafy green vegatables and saturated or monosaturated fats. Liver is the super food that contains almost all of the nutrients the body needs in the proper ratios.
I would agree if he did a video about the people trying to get attention for the death and illness from the vaccines to them and their loved ones. Problem is .... John wouldn't do it and it would be removed by Google/UA-cam anyways. Odd isn't it. Also why not do an interview with many of the leading virologist and biological evolutionists? The man who made up mrna vaccines am sure would love to chat. Bret weinstein also? I mean actually the amount of people talking out and being ignored for a year and a half all alot more educated in these fields. If you watched John's early videos on covid19 you will see him say he wouldn't expect a vaccine that works and safe for at least 3 years and that was trial and errors . A few would fail the testing. Now he believes every vaccine that made for covid19 works (made in west ) and they are soo effective within 9 months and then safe to use on kids.... oh yeah a real thinker this one. Even though he knows the roll out is the 3 year testing replacing the animal testing. In 2022 and 2023 they are up for review to use off the emergency laws. Now imagine and the odds are not to be ignored .... there is a long term health issue with jabs and a world terrified. 150 millon plus people put in poverty and most starvation from the second lock down and we are only feeling the beginning ripples. Deaths recorded without testing or autopsy for first year. Deaths as admitted by the phe that 8 per cent was from and not with covid19 and 6 per cent by cdc . An average age of death is higher then the natural life expectancy. Usa a lower then the 7 year average deaths per 100000 per people. Small buisness closed but mega cooperation gaining billions. Testing and track trace costing billions and for nothing. Uk tests 100 k more then the whole of e.u per day and gets 99.9 false. Pcr testing never made for testing for virus and diagnostic. Bigger usa pharmaceutical company stopping a vaccine midway as said was unethical as always changing and natural immunity the answer. Censorship and protesting now illegal. Want making recording police violate human rights as unlawful . Made it so any agent working undercover for government can break any law legally. Uncovering government scandal they want same punishment as foreign spies. Open airports whilst healthy people locked down. S.a.g.e full of human behaviour experts who one admitting to using psychology propaganda and fear mongering to make you believe covid19 is a greater risk personally. And of course a nation debt so huge and with more sustained closures and lock downs .... a future where starvation could easy hit our shores on a mass scale . Now imagine that wasn't purely down to stupidity and human error. Whats our future for our kids when daikey our rights are taken away and nobody cares . I mean I could go on for hours how this is nonsense. But I guess most are blind and don't read alot.
Well done John, Ondine and Vicky. A much needed report on this worrying condition. One which our UK government seems intent on ignoring. And so easy to do when so many of those affected are female. Back to the well worn dismissal of women's health concerns as hysteria / anxiety / all in the mind so dismiss.
In my early 20s, I went to a series of doctors for a rough rash on my breast. For 10 YEARS which was dismissed as self harm, allergy to my bra strap (which couldn't reach it), or hated my gender. No one did a biopsy until 10 years later: basil cell carcinoma. In that time it grew from 1/4" to 1.5". After it was removed, it did not return.
For goodness sake!, Can any one realise that P.M is Only a personality.He is paid to superficially keep us UP,! Why has he never mentioned Vit. D .!!! WE NEED 1000 international units a day.. I.U.s daily.WE NEED UV.F. not baffling buffoon personalities whom may or may not get rewards in kind for BAFFLING US..Wakey wakey!
Well ..we live in northern hemisphere. We have big nose to breathe more.We lack SUN or UVFy We are light skinned we need Sun .Tell us to get more Sun.Tell us how vaccines do not work wIthout VI.D. SUN IS VITAMIN D. UVF is ultraviolet light. Boris if u care Tell your people PLEASE. broadcast this please.
Emotion is Commotion..That’s why personality is not what is wanted Now ,We need cures and information on what vaccines contain and where Virus comes from and why.? China started all this commotion so ASK THEM?
The dismissals and difficulty getting effective treatment for long Covid sounds very similar to ME/CFS and of course this is often thought to be a post-viral fatigue syndrome.
And that's what it is, post viral syndrome caused by a combination of the virus and stress. Nothing new at all, just called long covid to keep the fear going.
@@cilandialane3084 just get an auto immune disease and see how much fear you have the statement you made was very ignorant know the reality is many people are dying nobody knows the death rate in all honesty but look at the basic numbers compared to the flu and how many kills yearly in the world and our numbers are scary!!!
Kudos to Vicky and Ondine for being proactive about your ongoing prolonged symptoms. I hope your symptoms become more manageable and that you can get appropriate medical attention when you need it.
Thank you for having this discussion. I'm coming on 9 months of LHing since my infection in October 2020. Everything these women said from experience of the onset of infection and following symptoms to the experience with MDs is 100% my experience here as a male here in states. Ondine succinctly voiced my own frustrations with being believed. Innumerable symptoms: Tinnitus, seizure episodes, small fiber neuropathy, gastroparesis, fatigue...so many symptoms that you can and do forget some. I just hope we will have answers and treatments soon. Hang in there everyone.
Get your doctor to refer you to a specialist who understands how to test for and treat Mast Cell Activation Syndrome as they are now seeing covid is sometimes causing this in long covid patients. Your symptoms are common MCAS symptoms which are pretty complex. TmYou may too much inflammatory histamine being released by your mast cells which are found throughout the body affecting several body systems.
@@TheBushRanger. Some of the cognitive issues (anhedonia and memory) seemed to have lifted alittle but about 3 months ago I started getting nerve issues in my hands. I still have tinnitus, mildly affected GI issues, random visual issues that aren’t as frequent. I also still deal with some temperature regulation issues and palpitations. The neuropathy pain in my feet is gone. I feel like I’m recovering just as a painfully slow pace that I’m not used to. Thanks for asking, hope all is well your way.
Thank you to you both for sharing, and to Dr.John for offering a platform to do this. Long covid has proven to be a journey in the dark for many of us, and the 4-5 day flare ups have become commonplace. My way through was anti-inflammatories for 3 months (I took a natural BDMC50) and then identifying the stressors or triggers if you like. Mine turned out to be cardio exercise longer than 20 minutes, gluten, soy, peanuts, dairy, and dehydration. Now I have less chest pain, breathing is better, heart flutters are less, still get lower left back pain if I don’t drink double the amount of water, and can get major flare up with all symptoms if I just have a very busy day, usually as a result of feeling great in the morning with bags of energy! My thoughts and prayers go to everyone struggling through this last 18 months, you are not alone, keep strong, keep up the great work 🙏 Dr. John you have been the lighthouse for all of us, blessings to you 🙏❤️
Wow. I have suffered from chronic Lyme and viral infections from my kindergarten students. I had to stop teaching and feel just like you all are explaining long Covid. I did consciously think that other people now feel like me…hurting with brain fog and disease.
Do you feel terrible for a few days and then feel better for awhile? It is like getting the flu every week!! Ugh! I'm wiped! Been fighting cancer, fibromyalsia, lymes and long covid now!! Weigh 104-my immune system is destroyed from chemo, so I got it twice!! Don't know how much more I can take!! Taking VitD, probiotic, and mushroom tincture- it's helping! I think vit d is a MUST!!! HANG IN THERE AND PRAYERS UP🙏💕 edit- do you have really BAD brain fog?? I can't remember shit! It's terrible! Can't handle my own financial stuff!!🙄
I had some of the same symptoms as you for 6-months.I had long and heart check and a 24-hour heart monitor. Get it done, I recommend always. Better to know then not. And I so sad to hear about her father's death my sympathies to herself and her family
@@ninsemor I live in Ireland. I'm under there. health system. It's not that but talking total 6 to 7 months to get everything checked out. You should have been seen, that horrible.
@@joe41040 wow yes thats a long time to get answers. I had my heard running amok when i was in hospital so they gave me a electrical shock in my left arm , that steadid my heart , in the same time i got tons of antibiotics as i had pneumonia. and skin issues. so now they test me every 3 months and I feel better hardly any musclepain after over a year
I had what I am certain was COVID around New Years 2020. The person I got it from was sick enough she ended up in the hospital with pneumonia, but of course nobody was even looking at COVID then. I have had heart issues, but after that my irregular heartbeats became worse. I just had pacemaker surgery last week. I had hoped I could avoid it altogether or at least delay pacemaker surgery for another decade. I had wanted to delay the maintenance needed for upkeep of the devices for longer. Then there is the exhaustion. Before the pacemaker I could get so tired I was afraid I might fall asleep at the wheel of my car. The pacemaker has made that better, but I am still tired. I am hoping when I recover more for surgery that gets better.
Good luck and best wishes. I think a lot of us had similar experiences with a mystery illness in Jan/Feb 2020 Certainly something similar ripped through my family, fortunately none of us got too ill although my wife went to bed for three days and that is very unusual for her. Was it Covid? I guess now we will never know.
My weirdest covid story is how it ended. I went to sleep about 10 pm on a Tuesday. I woke up at 6 am and remember wiggling my toes. I felt no pain, no aches, my stomach was now relaxed, and I had no fever. I'm thinking when my immune system finally decided it had enough info it attacked. I believe it destroyed the enemy perhaps in as little as a few hours. I'm both in a state of awe and melancholy about how wonderful our immune system is yet how vulnerable we all are to this dangerous creation.
I believe this,a few months after I believed I had covid at the beginning of 2020,by October last year I awoke to a weird sensation my body just seemed to throw out fluid from my skin,sweat poured out i was dizzy and violently sick the next day i felt like crap,one day after i felt so so much better I beleive my body kicked my long covid out 98%
Steve - thats an amazing story unlike any I've ever heard, tho I'm so very happy for you! If anything, it shows we have much more to learn and gives hope for further treatments and healing.
@@chrisstevens4764 Are you serious?!?! My sister and I was just talking about this. Why isn't the US giving coverage about the people who are dead to the vax shot??? @chrisstevens where did you get this info?
Finally I am learning more about what actually happened with me. I had mild covid symptoms followed by a long period of loss of smell back in July 2020. I was very energetic and eating healthy but after a month or so I started feeling like I am getting older every week. I had to work ever since to be able to pay the bills, and that made everything a bit harder. Recently I started taking high dosage of B vitamins and along with journaling, healthy diet and removing stress through stretching and mediation it seems to help in my case. I had pain in lower legs and neck area ever since along with fatigue, brain fog, migraines and others. Finally after almost 20 months it looks like I am becoming myself again. Hopefully it's not just a relapse this time and maybe it's going to be at least a lasting improvement. For anyone reading this don't give up!
@@Toolsmanufacturer Hi Gary, I am a lot better if you are asking about the Long Covid. I had to stop everything I was doing as I was getting more tired. I came back to my home country (from UK to Romania) and I gave up on following a plant-based diet as I think because of Covid I became allergic/sensitive to almost any vegetable and fruit I used to eat. I have followed a diet based on animal products since I came back home a few months ago and I am kind of 70-80% back to my old self now. I think getting rid of the UK stress along with eating foods that I was not allergic to played a big part. And also maybe the fact that coming back home I ate the foods with bacteria that my body had grown with maybe was a benefit to help with gut symptoms and food sensitivities. How about you, are you having long-term issues as well because of Covid?
@@andreiturca Hi Andrei,thanks for your reply.I am suffering from the COVID-19. I have been there for 2 months. I am easily tired, memory loss, and inexplicable panic. But I am the opposite of you in diet. I'm eating healthy vegetables, fish oil and vitamin B. And I'm trying acupuncture and moxibustion, which makes me relaxed. I can feel that I'm getting better slowly, but I haven't fully recovered. what about you? Are you fully recovered? I wish you a happy life.🤝
@@Toolsmanufacturer Thanks Gary! glad you are seeing improvements Gary. Getting relaxed in any way is definitely a must and it's good you are doing it. I am started to lean into more vegetables as well lately. I also did some acupuncture a few months ago and it helped me too. Don't know about moxibustion but I just checked and it looks like something beneficial. Can't say I fully recovered. Just recently I started having some classic leg pains that I didn't have for 1-2 months but I think it's nothing serious. I recommend also trying meditation if you think it's worth it. Overall, I still feel like there are some traces from all this prolonged stress so I will have to be careful with my overall stress levels for a while. I also think that my brain took a toll overall as I am just not feeling as capable mentally as I was before. In the beginning I have experienced improvements with Alpha Lipoic Acid and I am also taking B vitamins as well as Benfotiamine (b1). I also have Magnessium Glycenate and D3 5000 ui + K2 (MK7). I have fish oil as well which I take along with Evening Primrose oil capsules as I think they mix well together (Omega 3 with good healthy Omega 6). I am happy that I can go out and run and I am also going to the gym. But everything feels like a reset and like stepping into a new territory. But that is also because I had to adapt and change a lot of what I was doing and I need to replan stuff now. Wish you quick recovery and good health! I think rest and destress is the most important and it's good you are doing steps in that direction.
Impressive determination, commitment and results from both guests; also a masterclass by Dr Campbell on how to effectively mediate/facilitate a discussion. Kudos and thanks to all three.
stress can make things worse. I had my best friend die of Covid and week thereafter I got Long Covids SO BAD that I thought that I had Covid again but it was the stress.
@@shiningoutlight same. I've recovered but when my mom was fighting for her life in the hospital I felt like I couldn't breathe all the time, I was also constantly tachycardic. I thought it was a relapse but it was the stress. when she's finally stabile enough to be discharged I felt like a heavy rock was lifted off my chest
Thank you Dr. Campbell for leading these discussions. I feel you are a trustworthy source of enlightment and trustworthy information in a time when it is very hard to know just where to turn. I also want to thank both of these young women for sharing their stories and for the tremendous physical efforts they are putting out to help themselves and others at a time when their own health is not the best and their energy levels are low. God bless you all. I offer my prayers for everyone.
A heart-felt thank you to both of your guest for providing such high-value information and putting in so much effort into helping others and spreading the information about long COVID, though it certainly costs them many hours of extra napping. @John, thank you for organizing this wonderful call!
I see a lot of parallels with chronic Lyme and chronic Lyme still not being taken seriously in America, the medical establishment still insists on calling it the post-Lyme syndrome when it is obviously a chronic persister infection much like syphilis.
yes, also other chronic diseases. I have celiac disease, undiagnosed for 14 years. Eventually I couldn't walk any more... I also had to self-diagnose, fight to be tested and only then got a confirmation of diagnosis. I was always diagnosed with "depression". That went away once I got a diagnosis and started getting better... I really understand what they're going through
@@chrisstevens4764 For the millionth time, get your information from CREDIBLE sources. People can write any crap on the internet. I can write a credible looking page tomorrow stating that the moon in blue. Not everything you read is factual. Just because someone wrote it, doesn't mean it's true.
This whole video reminds me very much of the experiences of people, like myself, here in the US who suffer from Persistent Lyme Disease.My heart goes out to these young women! Thank you Dr. Campbell for all the informative videos.
Having had Covid and Copd in the Doctors defense although they should be more clear, when they say you are having anxiety. They are not saying you are imagiing your sickness/breathing issues etc. What they are saying is the anxiety (like in my case) is making my breathing worse. Wish doctors would be more clear to their patients about this. It makes the patient feel like their complaints are invalid.
Many Drs do brush off patients. No excuse. Happened to me multiple times before they would test me for what I suspected it was, and it turned out I was right all along. Years were wasted in the meantime as they told me it was just high cholesterol, that it was psychological etc.
I get that happens too. But I am just saying at least as far as breathing goes, it will be worse if you are tense with anxiety. Which if you have had bad episodes of exasperated breathing, it is only natural for it to cause anxiety. And those two things work against each other. Oh I have been brushed off before. No doubt, that happens too.
Have to say the COPD Examination they do here in Scotland is so superficial.. they give you an asthma inhalation then they make you breathe into a tube for as long as you can, then declare you're fine and it's "all in your head" The claim being if you can empty 80% of your lungs you don't have copd. Which isn't really helpful when it feels like 50% of your lungs aren't even working.
I believe covid was in Ireland as early as mid November 2019 because I was infected at that time when a young lad of about ten got a violent fit of coughing right beside me in my GP's waiting room, ironically as I was waiting to get my annual anti flu injection. I spent two weeks in bed, just coughing, and my head completely blocked unable to hear properly. Once I recovered I had a high temperature for months. A CT scan has now indicated chronic lung disease and pulmonary hypertension. I had none of these before. I'm 74. That photo is fifty years old. So, I'm anxious as I know my life has been cut short. It really pissed me off by Irish drunks and publicans trying to diminish this damned disease in order to open the pubs again. Like your videos as they make sense!
Peter,the rest of the world should not stop because you got sick. 80% of infected HAVE NO SYMPTOMS,and the faster the unvaccinated get infected the faster will we reach herd immunity. The feeling that drives you is your envy.
Many ME/CFS charities are supporting patients with Long Covid- for example the ME Association in the UK. Worth having a look at what support they have to offer.
One of the silver linings of this whole Covid pandemic is that a lot of research has been done on the immune system to figure out where chronic illnesses come from. The chronic illness in the case of Covid has very similar mechanisms as chronic Lyme, or chronic Candida, or Epstein-Barr virus that keeps on coming up chronically over and over again. We’re beginning to realize that this is a dysregulation of certain elements of the immune system that just go crazy and won’t shut down.
As per a study of the university hospital in Ulm 20% of people with Long Covid are having organ damages. If other sources backup this information we are looking forward to a overwhelmed healthcare system for a complete generation.
Hope those people who have had already COVID-19 won’t get it again. Hope you all who have suffered from COVID-19 will get well soon. Wish you all much health and stay safe.
i acquired natural immunity with no symptoms what so ever ,i am free from the coronavirus and its mutations,the interferon immune system is primed i cant get the coronavirus or any of its mutations,and i cant infect anyone
This isn’t new, there is a thing called “Post Viral Fatigue Syndrome” that can have a host of Symptoms that you can get from a lot of Viral infections.
Yup, there was Long-Spanish Flu, Long Russian Flu, CFS, ME etc. etc... the difference now is that with the Internet and so many cases at once the Doctors can't fob it off so easily - it's not new, it's just another example.
all post viral conditions have a single cause,dead viral debris in the system what their weak immune system cant expel,low atp levels coming from low glutathione levels is directly responsable,the miracle mineral solution ends all post viral conditions in hours the cost of the miracle 7.59 uk pounds
@@bluelibradorite9566 yes you can,all post viral conditions have a single cause ,dead viral debris in the system what their weak immune system cant expel,low atp levels coming from low glutathione levels is the root cause ,the miracle mineral solution ends all post viral conditions in hours and chronic fatigue conditions too,all caused by the same thing,
Long covid can be really awful, I'm so sorry for your mum having to go through it, and it eventually taking her life. ...and very sad to hear of your loss x
The word fatigue can't come close to the tiredness that one goes through ... Good going ladies ... Thanks to you Dr Campbell ... By the way my original place of birth and residents was Scotland .. perhaps this is important because I just lost 3 male friends over the last 2 weeks they where all around late 50s but born in South Africa Caucasian male .. most of my African black friends have been ok .... I have tried to tell people about the long haul symptoms but even the Doctors here won't listen ... I'm an old military background so I just got on with what I could research and take local meds available from chemist ... Doctors really don't know what to prescribe... Thank God for ivermectin that is all I can say ..... The news here is spreading fast so there will be a major problem with availability soon as it really is a miracle drug to use against long haul covid symptoms ....
Tommy I live in Australia and can only get Ivermectin by perscription but not for Covid. I have not had Covid thank god but it was easy to order online from India. Obviously do your homework regarding the supplier but I have ordered 2 batches and are very happy. Brand names arrived. I will keep them handy if my family or I get infected. My wife and I got ME many years ago after a severe bout of Influenza, so know what people are going through. Hope things improve soon!
First of all thanks to John Campbell for including the important topic of long covid on several recent episodes! Like many others here I was very impressed by these two women and all they have accomplished while battling this illness. I have been sick myself for 15 months now and I can't imagine doing all the advocacy work they have been doing, and I am very thankful for their hard work which Im sure must have led to relapses! One major problem I feel is that there is a shocking level of ignorance about Post-Exertional Malaise (PEM) and the gravity of it, in both the medical community and the media. There is often a misconception that PEM is simply fatigue after exercise, which it is not. It is the triggering of a whole constellation of symptoms after mild activity which could be as minor as talking, showering, reading or combing your hair, so we are not even talking about exercise, just basic use of energy. PEM is often delayed, so if you have a long conversation on Monday the effects may not hit you until 12-72 hours later. The effects can be totally debilitating rendering you housebound or needing a wheelchair. PEM is also the cardinal symptom of ME/CFS. If you have PEM that has been going on for 6 months (ie. chronic) then you have ME/CFS, regardless of the initial trigger, whether it is covid, EBV or any pathogen. ME/CFS at its most basic criteria is the clinical presentation of PEM. Also just because you have ME/CFS due to covid doesn't mean you can't have other covid-induced problems. Covid could trigger ME/CFS + Postural Orthostatic Tachychardia (POTS) + MCAS+ Organ damage or any combination of these or just one of them. Long Covid seems to be an umbrella term for many different syndromes and pathologies, some of which may be unique to covid but many are not. Hopefully now scientists will finally get the funding required to get to the root of these long-neglected illnesses that are triggered by all kinds of pathogens. I really hope funding doesn't just go to the development of "recovery" apps and physical rehab programs!
Same. It’s hard for me not to feel emotional when I’ve been suffering since I was 15 years old. (I’m 36 now) ….and have been completely dismissed by doctors and my healthcare system. Invisible. My heart goes out to those suffering from long covid. But it’s also very hard to hear when literally nobody cares that people have already been suffering on a daily basis for decades. 😔
So many of the varied symptoms all seem to be part of a histamine overload, especially the skin issues. The histamine overload was not mentioned in this discussion, but seems to be a significant overlying issue connecting the dots of many of the symptoms . Once I made the connection and found out how to deal with that with anti histamines a couple of times a day for at least a few days, I had more relief and the fatigue has now lifted. I also added some suggestions for vit C and for the lungs vitamin E. This is starting to make a huge difference. The big one is the scarring on the lungs and shortness of breath.
@BPJ we should be avoiding sugar all the time, it serves no purpose but to provoke insulin response which puts the body under stress and causes inflammation. All chronic conditions - allergies/asthma/autoimmune etc etc are linked with inflammation and poor gut microbiome. Sugar feeds the bad bacteria, the by-products screw with all our systems. Dr Mark Hyman, a functional medicine doctor, talks about this a lot, amazing podcast/YT channel. He’s making the link between all these diseases and C19, which FLCCC is not, they seem to be very focused on treatments of symptoms, which are obviously very important, but functional medicine addresses the underlying cause, which will still be there after whatever treatment has been given.
@@helendennis7662 If that’s how you think about it, you would remove everything that becomes sugar in the body in totality. That means bread, beers/alcohol, fruits, berries etc. it’s a lot to remove instantly and for some also be a reason for depression and general loss to thrive and disengagement in life. It’s a hard route to take.
@@requited2568 I do think they help and give relief at times, they have with my longcovid but I wouldn’t recommend taking them all the time. At one point I was having quite bad nose bleeds, and other times really bad GI issues, I wouldn’t be taking aspirin then.
This is the most in depth discussion of Long Covid that I have seen to date. The current wave of the pandemic is going to lead to a massive legacy of people suffering Long Covid 😭
You may find RUN-DMC Covid interesting. It is a UA-cam channel by a long distant runner who developed Long Covid. His community participates in studies and he interviews doctors treating similar syndromes looking for treatments.
Katie Hettinger Many long-distance runners report developing colds and other upper-respiratory infections (a.k.a. the "marathon sniffles") in the two weeks following a race, according to various surveys and studies. But isn't running supposed to make you healthy? While 30 to 45 minutes of moderate daily exercise does stimulate the immune system, the rigors of running longer distances temporarily weakens it. During the strain of a hard run, the body churns out the stress hormone cortisol, which suppresses immune function in large amounts. "The more intense the run, the higher the cortisol level," says Amesh A. Adalja, M.D., an infectious disease-specialist. "We know it can be high enough to impair the immune system for up to three days following a race or a strenuous workout." Perhaps this is the real reason .
POTS is postural orthostatic tachycardia syndrome, a form of dysautonomia... The Bateman Horne Centre in the US has lots of useful tips on diagnosis and treatment of dysautonomia in post-viral syndromes
I developed pots in 2014, from a bad chest infection, my chest pain was so intense I thought is was my heart, it was my lungs coughing bloody phlegm. My heart would race when I would stand up, blood pooling in my legs, my pulpils would be different sizes, I had hot flashes with skin flushing, bad insomia, chest pain, stomach pain, vomiting, my stomach would take so long to empty, if I eat too much at once, my heart would race especially in the morning. I have developed severe anxiety from the symptoms at first, I still have anxiety because my body dumps adrenaline. I developed severe depression from the isolated well before covid, since 2014 I was only 17 years old, now 23 I been so depressed lately, I've been having suicidal thoughts, mostly because I'm a young man, I never been in a relationship, I have no car, no job, and no money coming in, however I'm currently working on getting my driver's license, hopefully soon. I feel like I'm at a fork in the road in life, I have no idea what to do.
@@8XxFlameThrowerxX8 I’m sorry to hear about your difficulties. Congratulations on your drivers license!!! There are a lot of people like you with POTS or EDS-perhaps try to connect with others online. Please hang on. 💟
Thank you for putting this informative video on and bringing together for us all, Vicky and Ondine. They are an inspiration. It is so good to have so much relevant information on this syndrome in one place. I am 16 months in with my battle with Long Covid.
Thank you John again for your amazing work in educating me. Long covid sounds very much the same as Fibromyalgia. I hope that a cure can be found. I can only hope. Have an awesome day from a big fan in Oz.
@@chrisstevens4764 Out of ~200 million? There's probably no (and certainly no statistically significant) correlation there. If you looked at how many out of 200 million people (randomly chosen from the general population) you would expect to die within three days of watching the movie Love Actually, it would work out at around 20,000 based on current death rates. Combine that with the fact that the vaccine campaign started with the oldest and most vulnerable (i.e. most likely to die), and that figure sounds like what one would expect if the vaccine was perfectly safe.
@@chrisstevens4764 I know little about those people. I assume they're the ones making people concerned about the vaccine (I had a quick look at their websites). Why they are doing this, whether they are sincere or not, is pretty irrelevant from my perspective. There are always going to be people who are wrong, or any given issue.
@@luke-alex The high numbers of vax deaths and serious injuries, within the first few days, suggest they would have been pulled, had there been an legal liability. C19 vax deaths and serious injuries over less than a year, have been greater than those related to ALL other vax over a period of 16 years.
These interviews are so close to my experience and yet my GP still won’t acknowledge I’ve had COVID. All investigations have come back as there’s nothing wrong with me and they’ve basically told me there’s nothing they can do for me. It was a difficult watch as it’s so close to home but I’m so thankful that these videos are getting out there, sadly though I suspect it’s mainly the people affected by this that will watch it to find other nuggets of information in a bid to get fully better.
My partner still suffering from long covid syndrome and she called 111 UK help line and also made a complaint about her GP'S dismissive attitudes .She was able to be heard...
Dear Ondine , Wishing you a speedy recovery and every good luck with the work you’re doing connecting and helping people and families who are having long Covid . Be Blessed....
Three point: 1) John, you are a saint and a genius. You took 2 women, both with impaired energy, and pulled information from them for an hour and a half. It was too much for me; I had to take breaks and come back. It's because I'm about 80, not long Covid. My lack of energy has come on little cat feet, not the camel stomp of long Covid. My other symptoms of cruel age, I shan't describe; you'll know soon enough if we are lucky. Thank you and the women for an incredibly fine contribution. 2) Brain fog. Oh I'll fumble and mumble, but I do have more on my mind than ... words fail me. I don't got the foggies. BUT, with fifty years of experience as a medical doctor, I do notice people. I have run into more brain fogged people than I used to: a receptionist who absolutely could not get her stuff together, a waiter who didn't realize he'd rather we liked him until it was tip time, a sandwich maker who took four times as long to make a sandwich as his elbow man, a chocolate store manager who could not shut up about an organizational change she was making and so forth. It used to take me a month to run into just one dodo, but all those were in a single week. Then there are those odious doctors who blow off the long Covids. In all my years I never treated a patient like that. It's the patient who has the complaint, who gives the history and who deserves a monopoly on the story. As you say, ignore chest pain for a week? That's imbecilic. I really do suspect those doctors had the virus and are left with a rather subtle brain fog. 3) Ivermectin. AHA. The vaccine has a significant chance of improving symptoms even in long Covid. That means that the virus, like the zoster virus in shingles, is still alive and doing its dastardly, even if you can't find it directly. You have presented evidence in the past that ivermectin actually helps. Has anybody tried giving it for long Covid? All the best, Linton Herbert MD
Yes, Dr's Kory, Marik, and Been to name a few, actually have a protocol for Long Covid that Dr. Campbell didn't mention. covid19criticalcare.com/covid-19-protocols/i-recover-protocol/
My bf did ivermecten when he first felt covid coming on and he has everything they say is bad to get covid. A fib, diabetic, obese , etc but I have to say.. he went in hospital n came out 4 days later, I was in 2 weeks. I only have one thing bad for covid so I think it works. Neither of us on respirator both same treatment, we got iv , steroids, and oxygen. 🤷🏼♀️
@@seekingeagles I would think it was google who took it down, just as they took down Dr. Kory’s testimony to the US Congress. Dr. Marek lost his ability to treat his critical care patients, Dr. Kory likewise has lost 3 employment positions. These doctors were not permitted to treat their, who otherwise would be classified as terminal patients, with a protocol that has been proven successful in getting these patients off of ventilators. They, like most doctors in the US are now employees of hospitals, not private practicing & have to follow the rules of non medically trained administrators. The incentive for these administrators - they are receiving financial funding from big Pharma & the government. If early symptoms were allowed to be treated by FDA approved meds - off label - meaning the medication initially was approved for one purpose, but it was found was also affective in treating something else, there would be less hospitalizations, less fatalities & less adverse reactions. But, many of these medication happen to be past patent - which means it can now be made generically, is less expensive to produce & for patients to buy. This also means Big Pharma can’t continue to make BIG $$ off these meds. So they are using everything in their powers - lobbyist approaching politicians, NIH, CDC & the like to block the use of these medications. What they succeeded in doing is getting an Emergency Use Authorization, with side benefits - if you suffer any reaction to jab you can’t sue & test results & adverse reactions to the jab will not be available for review for FIFTY FIVE YEARS. So what are they - Big Pharma - hiding? They have the vast majority of main stream media, the US government, WHO all covering what they are doing. Social media companies are violating our freedom of speech, search engines are blocking the info you can find or are making it very difficult to find info & those found are often flagged with some warning. For more info search flccc.net, there is really good info there.
Thank you for this! Wonderful to have people talking about what I’ve been going through since March 16, 2020. I have contracted a lot of illnesses after getting covid I never had before. I think it’s true what Ondine said about it “attacking” anything that’s “weak.” That seems to have been my experience. Also, I have had ME/CFS for 30 years now. Believe me there are parallels! I got no help for the covid when I was in Somerset, England and was completely isolated. Sent back twice from the hospital and told to “rest.” So, I “doubled” my herb and vitamin regime that I have been doing for CFS for the past 30 years, and I am convinced that is what helped me recover on my own. I have long covid, but not as bad as a lot of people, and again, I think because of the herb and vitamin regime I do daily. That has helped me a lot. I hope more research will be done on the parallels between CFS/ME and long covid. Both are virus-based. But having had both, I have to say that long covid feels like CFS x 10. Much more severe. I am at 50% capacity, if that. And that's with all the preventive care I do for the CFS. Sorry this got long..but had to say it. :)
I got COVID last November but wasn't aware of it for a week. I have a congenital heart disease and I can say that my heart is quite sensitive to anything and everything. Whenever I get down with the sickness, it's always the heart that alerts me to it first. I get this discomfort in my chest and palpitations, and then a couple of hours later, I get sore muscles all over my body and other symptoms. So, whenever I feel that way, I know that a viral infection is coming on and I take a large dose of vitamin C to try to ward it off. It usually helps. Thank God, I'm not a person who gets sick often. And when I do, it doesn't last more than a day or two, really. With COVID, everything was way different. It felt so weird. It started one night. I remember waking up to a tachycardia and my heart was skipping beats. It's like it was out of control. I thought it was due to weather changes or magnetic storms, you name it. So, I went back to sleep. On the next day, I felt a little tired because I hadn't slept through the night but my heart seemed to be fine. A day later, it started acting weird again. I wasn't in the mood to do anything, all I wanted to do was rest. One day I was fine, the next I felt horrible. Fast forward to the seventh day, later that evening I started getting sore muscles. I didn't think it was related. I thought I must have gotten a cold. Truth is, I hadn't been around many people. The only person that I'd seen in the past weeks was my GP. So, in my head, it was not COVID. It just didn't make any sense. So, I went to bed that evening, trying to shrug it off. Alas, I woke up in the middle of the night and the same scenario happened - palpitations, skipped beats - but this time I thought I was going to die. The intensity was unreal. It's like my heart had moved up my throat and was going to suffocate me. I panicked. A lot. I took a pill I usually take for my heart in an attempt to slow down my heart rate but I was so scared that I couldn't wait to see if it was going to do its thing. And so I called ER. Unfortunately, at that point, hospitals were overhwelmed with patients and it was next to impossible to get someone's attention. The woman I spoke to on the phone told me to try to relax and to call back in 40 minutes should the problem persist. I had no choice but to sit and wait. After a while, things got a little better and I fell asleep. On the next day, I called my GP and explained what had happened. She advised me to test for COVID and prescribed some medication. My body aches lingered on for 6 days straight and no medication could make them go away. My heart was racing, some days I would get high blood pressure, others my blood presure was as low as 80/60. It was tough. At some point, I thought it was never going to end. On the 14th day, I started feeling slightly better. I would still get weird sensations in my chest on and off for another week. 4 weeks into it, I was finally able to chill out. I felt like I was getting back on track. At last, I had my appointment with my cardiologist lined up and thank God, the medical check-up showed my heart was okay. I was so relieved. I will never forget this experience. When I think it could have been much, much worse than that... it's terrifying.
the heart symptoms are very common. I'd had some, mild, for 30 years that got way worse after covid buy diagnosed as anxiety. After I began LC treatment of histamine intolerance, all my heart symptoms are gone! See RUN-DMC YT channel and the facebook pages for Long Covid Support Group and Histamine Intolerance. God bless ❤🙏❤
So glad you recovered. That must have been a harrowing experience. Thank you for sharing. At least you won't need to be vaccinated, although the authorities so far don't seem to recognise natural immunity trumps vaccines, so to get around, you may have no choice. In your shoes, I'd try to avoid them. Best wishes.
I am so sorry about you're experience and that the ER wasn't really there for you. My husband had a viral pneumonia and the ER didn't help much either just because it was covid they are driving me crazy and I had a similar problem too. We had to get through it all at home. I hope the best for you and I am glad you got better and that you're heart is doing okay, stay away from the vaccine because it effects the heart and it may be more harmful. Thanks for sharing and many blessings this year take care!
I had and I am still having similar things as u and today it's 4 weeks from my positive covid test. So terrible experience,I don't wish that experience to anyone on this world!!!
Dear Vicky , I'm very sorry for your loss ...... Praying that soon you will be completely free from all this unpleasantness !!! Wishing you every speedy recovery .... Be Blesed ....
BTW, in the Netherlands English is basically spoken as a second language. Well, at least it was in the areas in and around where my Dad was working (Brielle) and my Mom and I visited (esp in Delft) when we went to stay with my Dad during the 3 weeks we were there for the Ein April celebrations. As a side note, BEST DESSERTS I HAVE EVER HAD were in the Netherlands.
@@teun9380 I sort of thought so. My Dad learned Dutch before he went over there, knowing he'd be on that job for at least 2 years, but he said that it was almost not necessary once he got there. It was useful, just not needed. I found it fun how close Dutch is to German, and I used my knowledge of German to kind of translate when Mom and I went to museums and stuff on the days Dad had to work. And no, I'm not from Germany, I took conversational German in college =). I do have a German heritage though!
@@DragynGirl very interesting story! Funny enough Germans are less good at English. The Netherlands is a very export and hub focused country and so speaking the English language is a must. Other European countries are more focused on the European market. Besides that countries like Germany and France also have some sort of nationalism to defend their own language. For example on the television in France there are rarely subtitles. Its common there to synchronize the conversations. This limits the learning capabilities. For me personally watching English vids with subtitles in de beginning was a very crucial part of learning English. Communication via language is very interesting :)
I am Dutch. It is a myth the Dutch all speak English well. Most are OK at it but not fluent. The oldest generation cannot speak it as a rule. My observations are the higher a persons income in Nederland is the more likely it is they can speak English fluently.
I’ve had long COVID symptoms since getting Hong Kong flu as a child in 1969 (England). I still get flare ups after 50 years. I hope the scientists manage to find a cure as I wouldn’t want anyone else to live with symptoms for this long.
I got it in 93 after Epstein Barr and like you am still trying to manage it. This is why getting even mild COVID terrifies me. Indeed it would be interesting to see if there is a correlation between long COVID and people who have previous had Epstein Barr or similar viruses?
I am so thankful to see this video. I believe I had covid in end of February last year, I had been to North Italy. I got ill 14 days after my trip. Of course at that point they weren't testing. And they wouldn't test me because I didn't have breathing issues. But I had chest tightness and a feeling of burning or soreness through my sternum which almost felt like acid reflux. In addition to a low grade fever and chills. Since then I continued with pain in my chest felt like costochondritus and eventually back pain that has continued to this day. I saw chiripracters, physical therapists...Noone could get rid of it. The doctors believe it is stress and anxiety related as they find nothing in my blood. But it started all at once. And me being sick caused anxiety. Anyways point is..I hope that with more attention they figure out and approve treatments for long covid. I've had to fight too to get to see ortho specialist and finally I got an appointment. It's ridiculous that rather than doctors step up and figure out what's going rather than saying it's in my head. I feel like reading these comments I'm not alone! Thank you for sharing your covid story with us.
Doctors say, "it's in your head," when the test come back normal, and they don't know what you have or how to help you. I got lucky my ER doctor didn't do that, said she didn't know and kept running tests, so I eventually got a Long Covid diagnoses. In my HMO (US) I could ask to have her as my primary Physician. I have had improvement on the Low Histamine Diet and Anti-histamine regime and after my vaccination. Hopefully you will find some as helpful.
check out RUN-DMC YT Channel and facebook Long Covid Support Group. I achieved recovery through treating Histamine Intolerance. May God bless you with a path to total healing. ❤🙏❤
@@marialakshmi2330 be careful believing and repeating hearsay about vaccines bringing improvements to long covid sufferers. at the very least include the parts about people being harmed, some severely, some permanently, and some fatally.
@@katiehettinger7857 thanks I hadn’t heard of this being a possible treatment that works. I will certainly look into it. Thanks for the suggestion, and glad you found something that is working …gives me hope that I will too.
Thanks John for including the voices of these very impressive women. They are great representatives and the medical and government decision makers need to hear what they have to say.
By contrast where are the support groups for all those injured or worse by the vaccines www.kidspot.com.au/news/im-booking-a-pfizer-jab-after-almost-dying-from-reacting-to-astrazeneca/news-story/17b8ec0fc72e29fc59a0568fc8899850
Thank you for this informative discussion Dr. Campbell, Ondine and Vicky! You are inspiring. You help put some pieces of the covid puzzle together by your collaborative, international effort. This is truly what is required at present.
Fantastic presentation. Thank you Dr Campbell for inviting Odine & Vicky to voice our plight. I’ve been suffering with LC for 16months with no answers / treatments for over 34 different symptoms that come & go. Everything they said resonated with me. Thank you both for ‘fighting the fight’ & for all you have achieved to date. And all whilst suffering with this hideous syndrome yourselves. Thank you.
They are equating covid infection with causing Mast Cell Activation Syndrome in about 20% of covid patients. MCAS is complex as the mast cells are throughout the body and the histamine they release causes when they recognize what they see as foreign and toxic to the body causes chronic inflammation in many body systems. They are the cause of the cytokine storm in some of the most severe covid cases. Treatments for too much histamine in the body such as antihistamines and mast cell stabilizers are being used to treat long covid patients. Worth talking to your doctor about this and do some of your own research on covid and mast cells.
Check out Dr Afrins on UA-cam concerning the connection between covid and Mast Cell Activation Syndrome. He is an expert in this field. MCAS sufferers have similar symptoms to long covid. Covid seems to be causing MCAS in some people.
I hope that you two and all people make faster progress with their covid problems. Thank you for sharing this information. You are providing lots of hope for those that are suffering from long covid. You very brave . God bless and speedy recovery. ❤👏👏🇨🇦
I hope Vicky has been able to get a full cardiac workup by now 😐 I'm terribly sorry for young people who've got long Covid, and for those who will get it due to restrictions being lifted in the UK.
In terms of the anxiety in long Covid, it’s already been researched in ME/CFS that anxiety can be elevated because the endoindocrine system has essentially malfunctioned under burn out from an overactivated immune system, and there is consequently a lack of appropriate response and resistance to stress and release of stress hormones.
Still watching through, but if you get the time John please do a focus on the small island of Fiji, Delta is devastating & while vaccination is getting higher the situation is bad. Two pregnant women died last night from COVID but luckily they managed to save the babies through emergency C-sections. Families are literally going hungry & have no choice but to go out into the community/work. The country's main income stream (tourism) is completely closed down, things are bad.
The Govt has failed the people! Should have had the Lockdown from the get go to prevent the spread of COVID! Virus spreading like wildfire! Very frustrating!
You are my most valued covid/pandemic resource. Reliable and straight forward. Thank you for providing some comfort in the form of knowledge and regularity(consistency). Best to you and your's Dr. John. 😷😷😷
You want knowledge here this is it; Here read this long covid treatment protocol, what your Nurse wont even mention so his not interested in helping the sick; covid19criticalcare.com/covid-19-protocols/i-recover-protocol/
So impressed by these two wonderful women. With people like this in the world, and Dr John, we have hope for the future. If it's worth anything, I bless all three
An amazing discussion - thank you John, and Ondine and Vicky for spreading the word. Official figures should be published along with the other data. The young people who have been ambivalent about the vaccine should all watch this video. It is very worrying.
I have been declared with Diastolic Dsyfunction - stiff heart after getting Covid-19 in March. So effects of long Covid for me were, muscle pain, cramps, chest pains, shortness of breath, heart palpitations, high BP, dizziness ongoing and now stiffness of the heart, anxiety and depression! Sad enough am in Kenya where no one talks or supports patients like me!
@@elingrome5853 I have no access to vaccination since am in Kenya due to no stocks. So not had one and got Covid-19 in March 2021 and suffering long Covid. Am self diagnosing and healing by telling doctor of tests that I want done. Only taking ivermectin for now!
Here read this long covid treatment protocol, what your Nurse wont even mention so his not interested in helping the sick; covid19criticalcare.com/covid-19-protocols/i-recover-protocol/
If you havent been tested yet for POTS (postural orthostatic tachycardia syndrome) please look it up (if you can take your pulse it's possible to test yourself or test can be done in a doctors clinic but you will have to educate most doctors in the disorder). Its a type of dysautonomia (autonomic disfunction) which can be cased by viruses and often there can be coexisting other BP issues too. I have diastolic dysfunction and this.
I had long covid and I'm 30 and overweight, but I know people younger and terrific shape getting this. It got better and eventually resolved after a few months medication and vax. For those of you watching this in pain have hope you will recover!
Much gratitude as always. Thank you, all three of you, for raising awareness of this issue. The implications are profound on many levels in addition to the economic and health aspects mentioned.
Oh my Goodness!!! Am I lucky that I finally found this interview, not only that I’ve been to ER’s 3 times sent back home with weird looks from medical staff telling me that this is anxiety and that I needed Xanax to knock me out while I wasn’t able to walk straight! I must have been an academy award winner for acting up a severe headache, chills, fatigue, vomiting, diarrhea, difficulty breathing, neurological disorders, red eye and dry eye, a stroke like symptoms where I lost the use of my arm and foot for 3-4 hours, thirst like a camel waking acres in deserts… my veins in my legs were branching by the day! The world map now can be seen on the back of my thigh(have to make a joke about it) Feeling feverish, difficulty breathing, swallowing. The outbreak in rashes, hives like pattern on my back along with burns mimicking a shingles patient complaint. I’m still struggling from heart issues that many visits to cardiologist up to 4 of them that kept telling stay on colchicine, and that my pericarditis two days after the vaccine was lingering for 6 months. Constant sleepless night with tachycardia and blood pressure fluctuations, palpitations along with irregular heartbeat. My bloated stomach and difficulty keeping up with indigestion and tenderness… The MRI of my spine findings inflammation of many discs. My speech is going in and out, my memory had been affected, not surprisingly after headaches that caused me to scream from the top of my lungs!!! My bladder was out of control and still having leftlower back pain not sure which organ got affected… Nurses and physicians telling me why I didn’t get admitted to the psychiatric hospital, really!!! All these symptoms it was caused anxiety and not the other way around!!! You all out there if you can’t diagnosed something just because your ego is huge and can’t admit it don’t drug patients just because of your incompetence! My joints are swollen, painful along my lymph nodes… I am a mess and need answers!!! please can anyone lead me to which recovery route that would be of help that will get me on the mend! Thank you in advance!
Thank you so much for this information! I looked after my Mom who had COVID in November of 2020 to keep her from going to hospital. I never tested positive, but began having chest pain in December, saw Dr. 's multiple times, been to the ER once, saw a Cardiologist, only to find out everything is WNL. We did not do an MRI, but EKG, labs and Echo. The conclusion was that I had anxiety. I still have chest pain to this day, but glad to know that my symptoms can be explained.
Excellent interview, very sorry to hear about Vicky's loss. It's good to share these experiences to get the message out that illness is illness...nothing is just "in your head". Doctors, of all people, need to get with the times and act more professionally in how they interact with their patients.
My situation is very similar. I think I contracted in late February when I travelled in NYC, and it was the worst fever I ever had in my life. Of course no testing was available back in February, 2020. Since then I feel tired and feel like aged by 10-15 years.
Here read this long covid treatment protocol, what your Nurse wont even mention so his not interested in helping the sick; covid19criticalcare.com/covid-19-protocols/i-recover-protocol/
First, let me say thank you for all your work John, and for your contributors in this video. I listened to this with mixed feelings. Sympathy, for Ondine and Vicky, anger that they must convince and reconvince the medical fraternity to take them seriously, and the debilitating fight to find the wherewithal to deal with the problem> My feelings were mixed, because I have encountered all of this and more, in the problems suffered by my eldest daughter. At the age of 18 she became ill, and steadily got worse. Her symptoms these days would have provoked a potential diagnosis of Long-Covid. There were so many familiar words. My daughter suffers from many, if not all, of the same symptoms. Eventually she was diagnosed, by a consultant, with ME/CFS. Her doctor wouldn't refer her on the NHS but would if I paid. I paid. 14 years ago. I recognised the problems Ondine and Vicky had. Every time the GP changes, she must go through the same series of explanations again. Fortunately, the whole GP practice has the hang of it now, and she simply goes through regular tests to make sure that her symptoms are not caused by something else that has sneaked in while everyone was looking the other way. For interest this is the NICE page showing the guidance for Diagnosis of CFS: cks.nice.org.uk/topics/tiredness-fatigue-in-adults/diagnosis/diagnosis-of-cfs/#:~:text=The%20National%20Institute%20for%20Health%20and%20Care%20Excellence,had%20a%20specific%20onset%20%28that%20is%2C%20not%20lifelong%29. Your contributors will recognise most, if not all. So, for 14 years my daughter has suffered all of the woes mentioned by Vicky and Ondine. Her doctors only started believing her when either myself or her boyfriend with her. The scientific community needs to get its head around this, both for the sake of those suffering with Long Covid and those who have had ME/CFS for much longer, You, and your audience, may have exactly the reach needed to help with this. Please help them all.
My brother has had 2 vaccines and caught covid and now he is fighting for his life in intensive care with pneumonia. So people need to be aware of the risks, even after 2 vaccines. he is 57 and very sick.
🙏🏽❤️
I hope he makes it through.
try a third shot
May I ask if he has pre-existing medical condition?
@@jamessmith1652 He does take a pill for diabetes. So yes.
As someone who has struggled with fibromyalgia most of my life, I sympathise with everyone battling chronic health problems. Sending all suffers hugs and warm wishes.
I hope the research being funded to look at Long Covid is helpful in addressing Fibromyalgia, my sister's best friend is also living with it.🙂💪👍
Same here. Chronic pain too after breaking my back but the NHS not recognising it for 10 years - then failed surgery followed! I lost my Nursing Career and it broke my world! Daily struggles still control my life. Learning to live with pain and fatigue is tough. I feel for all sufferers. Key is not to feel guilty, but to aleays strive to do your best within your limits. All the best to everyone.
Thank you Dr. John Campbell for your hard work and dedication.
You are a star! Xxxxx Xxxxx
@@michellefranklin201 Easily self treatable but most people regard their illness as a friend and a source of fake sympathy from the gentle vultures.
I'll take the warm wishes but let's make hugs a thing of the past please (they actually hurt some of us)
I think they may discover that fibromyalgia and ME are both caused by a virus. It’s so hard when you know or can tell that some people think it’s “all in your head” (or just want attention). Yes, it’s likely a virus in the brain and nervous system. I have tried everything I can try with diet and exercise and supplements and still have many bad days of serious fatigue and pain. I had to give up a career I worked hard for and loved. I’m so sorry for the long Covid sufferers and I hope you receive more support and compassion than many other people have received when they have a poorly understood illness.
Before I watched this I was convinced that the medical profession honestly does not understand this virus and in reality has no clue as to implications for the future. After listening to these brave women speaking out, I am even more convinced. I HATE it that some just think they are having mental issues.
Absolutely.
Sadly, it’s got a long history in UK. Women were ‘hysterical’ because of their ‘wandering wombs’ according to the ancient Greeks (Wiki has a page on it). The idea persists even today, although the reasoning is different.
The medical profession is still learning about this novel disease.
I think outside of very specific issues, like a broken leg or cancers.. the general doctors, simply don't have the remotest clue about anything else. Even the consultants and Specialists seem abit vague, it's always do this test, get blood taken, get xrays, ultrasounds, mri's.. People think an Mri is an amazing thing, but it really isn't.. I had 4 Mri's on my left knee.. not one of them showed any cartiledge loose, yet the surgeon who did the keyhole surgery.. removed 4 bits, one of which was as big as one of my teeth. Then there's the cost of everything.. millions for a machine.. that cost a few thousand to make.. the uk Nhs has to take cost into account everytime, which is one of the reasons we always get the cheapest medicines that don't help or when realisation occurs of a fact.. it's too late and you're as good as dead.
You quickly learn how incompetent and uncaring doctors are when admitted into a hospital.
I never comment on UA-cam, but I have been suffering for the past 10 months after covid. I am 29 and can barely walk 20m without feeling like I am going to have a heart attack. Almost every healthcare professional I have seen tells me its a mental health issue. I have been dismissed over and over again, so it is very nice to hear other people share the same experience. We are not alone.
How are you doing now any better? I'm 29 as well and have a really hard time walking can only get 250 steps in without having to lay day and rest for hrs . While laying down shortness of breathe nervous system is out of wack I can barely move around and dizzy and confused. I have to be pushed in a wheel chair if I go out of my house this shit sucks . Hope you start seeing progress soon
@@kylechavez7961 hope you are better also, I'm two years in, was where you are, I have no medical training but the only thing that's helped me are OTC Claritin ( store brand) and saline nasal spray, it's horrible, and no one listens
Have you been vaccinated? Have you heard of post vac symdrom???
@@carlabruni5223im not vaccinated
I have symptoms of POTS, where my heartrate jumps 30+ bps from sitting to standing. Its the second time it's happening to me so I feel confident it goes away for me but when it creeps up it increases my anxiety. Time to see alternative medicine doctors.
What an amazing job these two ladies are doing giving people a voice and access to information that's so desperately needed.
There's no science behind most of it
An Old adage - what they don’t know won’t harm them - human responses cover many starters* Age, other medicines already combined, ones stress levels, prior existing conditions-- diabetic , epilepsy etc. Others should Look before leaping -as DOCTORS ARE ON STEEP LEARNING CURVE TOO !
I want to know what Covid toes are. I keep hearing about that. Is this what I’m experiencing? I have no circulation going down to my hands or feet and I’m freezing all the time. It sucks.
@@HH-gv8mxGoogle Raynauds, same as covid toes
While I empathise with people suffering from long covid, they at least have been recognised in a matter of months. For people with M.E and fibromyalgia, we have been dismissed, ridiculed forgotten for decades.
Absolutely, same for Lyme disease and toxic mold exposure. Dr's continue to be clueless and can't tell you how many times I heard its "all in your head."
i told you the easy treatment and got attacked. so go in a corner and suffer quietly..
I didn't attack you and asked you what your magic cure was and you never answered me@@esecallum
@@esecallum And I'm not suffering anymore but many people continue to. I've seen many of your comments on this channel and all you seem to want to do is troll and be spiteful. Go and enjoy being that person. You're obviously not happy.
@@twelvesmylimit if you bothered to read my original post PROPERLY i never said it was magical. i said based on recent scientific advances. even in this post you attacked me by using the word 'magic' in a prerogative way.instead you could have said please tell me as i am willing to learn and try new things and have an open mind
To everyone suffering any effects from this dreadful virus (enduring or otherwise), I sincerely hope you regain your health as quickly as possible. Very best wishes and please do take care.
Yo to sir
@David Fallaha Think I'd rather trust the wisdom and advice of qualified and experienced people like Dr. Campbell over the rantings of anonymous internet posters peddling conspiracy garbage.
Thank you for your lovely comment. Lots of love to you.
I agree!!
The real pandemic is the rise in T2D and other conditions caused by the modern diet.
My wife having longer symptoms from long covid. She has from February2021 when she suffered badly by a rare pains in her left shoulder. She had all the symptons that these courageous ladies are talking about. Bodily aches and pains , panic attacks, anxieties .She even asked her GP for medication to stop the anxieties but the reply she got is, " what are you anxious about? " It's now 12 months since she suffers from long covid.
GPS are not clearly understanding these sufferers long covid symptoms and some people are judging them thinking they are taking too many naps.My wife is a very strong person and works with the NHS as a frontline staff and she caught covid looking after one of her patients. She asked her GP for a MRI scan but she refused to refer her.Her GP was unsupportive dismissive and lacked knowledge about this covid conditions until she complained to 111 and then the surgery started to pay heed to her .My wife has underlying symptoms such as asthma and she is complaining of headaches which she had before covid but it's more prevalent now. She is as optimistic as these two ladies. But now it has affected her finance .She is probably going to change her career but she must get some very good advises from her employer to support her and not to strip her .She said she felt like a burden to the system but has been working and paying her taxes .
I would love for everyone to recover completely and are able to continue with their normal lives.....Thank you everyone on this panel for your inputs in your suggestions and supports for the sufferers.
Was she vxd because many of these symptoms sound like it's related to that than this Virus. Hmm Prayers 🙏
did she get the jab?they tring to blame or make up story of long covid but it is the jab side effects
try lightning process
Omg!!! This was me last 2 months!!! I pray your wife is better🙏
@@michellerm2104 I agree!! I experienced very similar symptoms, The left arm pain is still here. I was vaxed in my left arm!! I have felt neurological instances where I thought my arm would go numb several times. Up until two weeks ago my arms would vibrate when I sneezed literally!!
@Life Force One I have read that as well!!!
Thank you to both these very courageous women. As long covid sufferers, we so appreciate this conversation. There is some healing to be found in just knowing we arent alone. 🌷
My husband cured his long hauler symptom after 1o weeks, Dr Drew recommended for my husband to take Fluvoxamine (he was prescribed 100mg twice a day for 2 weeks). IT WORKED! within 30 minutes of the 1st dose he was completely cured. Dr. Drew said it somehow resets your brains/immune system. His long hauler symptoms were Fatigue, ears ringing, headache, body aches, brain fog etc. flu like symptoms. This is also how Dr. Drew got rid of his loan hauler symptoms, its hard to find on the internet probably bcuz they are censuring it. pass it on
Great to know this too That long covid syndrom is now being recognised by the Government, Health care organizations. Great to know we are not alone...
@@dianemetcalf5204 Yes makes sense they would censor it. I'm surprised they haven't shut Dr. Campbell down!
I am suffering myself everyday it cause a lot of effects. I have Fibromyalgia and nerve disorders enhanced
@@colleenpagano8738 I recently started Reishi & Lion's Mane medicinal mushrooms. They may help you with no Rx needed. Peer reviewed studies are published showing Fluvoxamine is an effective cytokine storm blocker, but it still isn't main stream... No $ in a 40 year old safe drug that can help with depression and long-covid at the same time. Such a shame.
So impressed by these two women. Thank you so much, Ondine and Vicky, and of course, John! All your efforts are greatly appreciated.
Here read this long covid treatment protocol, what your Nurse wont even mention so his not interested in helping the sick;
covid19criticalcare.com/covid-19-protocols/i-recover-protocol/
@@esecallum you are on the wrong channel
@@deva8347 WRONG CHANNEL? IS THIS NOT RHE DATING CHANNEL FOR HOTTIES
@@deva8347 ????
The heart issues sound what I experienced about a week after my vaccine for 3 months after. Ive noticed that some of the rare serious side effects of vaccines are similar to common complications of civid. Unfortunately I was only able to get a full cardiac workup at the tail end and echo showed nothing but 48 hr holster monitor did! It happened less and less though so the dr said too much time had passed to be definitive but seemed like myocarditis with J&J vaccine. It went away for me but it was a frightening time and only when it was basically over did I get proper care. The ER said it was all in my head... they asked my why I was anxious I told them I wasn't and that when they measured my heart rate I wasn't anxious or angry but that I was now angry because they're trying to tell ME how I (a very self aware person) how I felt! I'm so sorry you ladies had to go through that psychological abuse from people who are supposed to be helping you!
Interesting how there are no support groups and no publicity given to all these harmed or worse by the vaccines, its a huge number too
Worse than that is people are being encouraged or inspired to mix these experimental vaccines there appears no thought given to safety www.kidspot.com.au/news/im-booking-a-pfizer-jab-after-almost-dying-from-reacting-to-astrazeneca/news-story/17b8ec0fc72e29fc59a0568fc8899850
May I ask have you reported this to your doctor?
@@blissboat2543 I did but they didn't take me seriously at first. That is why the delay before getting referral to cardiologist. By that time it was winding down but he said he personally saw several myocarditis cases. Noone had permanent damage, but it's still important for the patient to know what's going on. I'm better now but I had to endure a frightening experience, initially being told it was all in my head, and I missed some work.
@@stefs3460 I had really bad reactions after my 2nd Moderna. Walk-ins refused me care saying I had symptoms of Covid. I had not been anywhere since my 2nd vaccine. I stood there crying when I had been denied care when I knew there was something wrong with my brain! My brain felt swollen, I had memory loss, memory problems, I couldn't think or concentrate. I coined the term that day "loss of algorithm thought process." I had loss of balance and falling, loss of taste and smell etc. I get tested every week at work, and I never go anywhere, so I knew I didn't have Covid. I took 3 tests that week to prove I was negative. Eventually I went to my PCP MD I hadn't seen in 25 years. I was eventually diagnosed with autoimmune encephalitis. But after my 2nd round of prednisone it kept attacking my body systems one at a time, including my heart sensation of feeling swollen along with palpitations and tachycardia with a resting pulse of 135. I want to add I took the vaccine because it was mandated, and I haven't worked ANYWAY for months because of my adverse reactions!
@@daverok1113 you are correct. I have had so many symptoms of Covid after my 2nd Moderna and many mock insult name call call me a conspiracy theorist. Two walk ins denied me care
Ladies, Dr. John, Thank you for taking the time to share your experiences and bringing awareness. 🙏🏾
I have been suffering for long COVID for 3months now and was told by my doctor that he didn’t no what else to do he prescribed me anxiety meds which didn’t help I’m having bad palpitations also a lot of memory loss very fatigue I really don’t know what to do
I rarely comment here but I have to acknowledge John's commitment and compassion in his interviews and presentations. This one was particularly poignant. As his subscribers, we can show our gratitude by ensuring that the sufferers of Long Covid are supported in every way, as best we can. Thank you John for your hard work. We can at least do our bit by keeping ourselves and others safe from contracting this disease.
You can do better by offering to do errands for someone affected, carrying something, cutting the grass, shoveling their snow or car out of a street bank, etc. Step up with no cost to you. Not just for long covid but for the disabled in general.
It’s being sprayed in the skies
It’s not us spreading it
With how much actual information is coming from outside the established authorities, really makes you think how lucky we are to have the Internet and have them be able to share this info widely to those who would listen. Imagine how screwed we would be if the only voice we heard were the mainstream-media-approved voices from High Above.
ua-cam.com/video/sJXCG3tXwj4/v-deo.html
Agrrec
The internet has been a source of misinformation as well, but I would concur that it is possibly the best way to communicate worldwide especially in these moments of crisis.
In the caseof Long Covid the internet is a glass half full, but in the case of vaccination it's half empty. I studied the pandemic from home since January of 2020. I contracted SARS Cov-2 at the end of February 2020 and had a cytokine storm the first 2 weeks of March, leading to long covid. Dr. Campbell, Medcram, TWiv and Grand Rounds from the worlds leading research academic hospitals have taught me about how the scientific community endeavored to understand this novel virus. Oddly the most helpful recommendations in my recovery came from of citizen scientists; who formed self help group. Looking for existing syndromes with similar symptoms and experimenting with their protocols. To date there is no one size fits all answer. For me the Low Histamine Diet and anti-inflammatory combination has been helpful.
Its not grass roots most of it is funded by pharma
Wow, Ondine and Vicky, what a lot you have been through. What a lot you have accomplished, too, despite the handicaps. Thank you for contributing your time and energy to this program. My best to you.
My doctors solution to my long COVID symptoms (in April 2020) was to set me up with counseling. She diagnosed me with a mood adjustment disorder. The feeling of absolute defeat, as I sat through my first tele-therapy session absolutely drained from the fatigue of long COVID, explaining that I am still sick, and having to go through the whole counseling process as if IT WAS ALL IN MY HEAD infuriates me.
I can sympathize. The fault for what the doctors don't know is always in the head of the patients.
It is absolutely maddening. What I get is docs will say "You dont have the same symptoms as ALL her other longhaulers". Yeah? So listen!
How are you now?
@@shaft657 much better!
@@Blue8embers-2012 glad to hear that ;)
I'm 16 months dealing with Long haulers. I had coronavirus 2 times in 2020. It got way worse and much more noticeable after the 2nd time. This is horrible. It changes people's lives and not for the good. Praying for all of us long hauler warriors 🙏 ❤
I’ll bet an awful lot of money you actually had the flu the first time you thought you had COVID. It would be extraordinary for you to be worse from a 2nd infection from the same virus twice in a year. It’s frankly extraordinary that you caught it twice in a year let alone be worse the second time.
@Life Force One c.f.
Sounds like you need ArtemiC and some vitamins.
Both me and a coworker used ArtemiC Rescue when we had COVID-19, we were both well again within 3 days. And recently someone in the house tested positive. I started using the ArtemiC Support covid defense drops and I never developed any symptoms despite having somebody who was tested positive in the house. Of key importance was of course having the ArtemiC bottle already in my refrigerator and being able to use it immediately. ArtemiC Support also is used for Long.
ua-cam.com/video/hnQxWyDF_44/v-deo.html
How are you today?
@@shaft657 Hi shaft Im good / excellent. and you
I've had long covid for 17 months. It is absolutely life destroying. Everyone take care.
How are you now?
How old are you?
Eighteen months here. Still pretty bad off. It sucks
I was 35 when I got sick and now I'm 37. Still very ill unfortunately. Tried luvox, IVM, and many other things.
@@MrHappyBats have you tried changing your diet? You probably looked into everything but maybe try carnivore, I’m not trolling but this has helped some people with other diseases
Thank. You for this it has made me feel better. Why same issues an more. Please Doctors listen to your patients...
Some years ago I had Reactive Arthritis following a mild stomach virus. It followed a similar pattern - starting to slowly improve after six months with relapses - but took 18 months to finally get better. I had disabling arthritic pains in wrists, ankles, knees and even my back. I was unable to move my wrists for months and could not even lift a pen without pain. It was a living nightmare - so ladies and to everyone who suffers from Long Covid - my thoughts are with you and I wish you a full recovery to health.
I noticed similar but have difficulties articulating it as I have other info to corraborate that is simply ignored. prob cause its so heinous
Avoid sugar whilst in recovery and eat licquorice and mash mellow root. Garlic oil if you can and ivermectin rebuilds the nerve endings. But see your doctor asking for dosage.
Did your joints click and crack and crunch as well? I have this post covid
@@TheBushRanger. Yes Ryan - I certainly remember a lot of cracking in my joints at the time - but the excruciating pain and swelling was the disabling part of the condition. If you can associate with the pain too - if it was me, I would ask my Dr to check for Reactive Arthritis. It is quite a rare condition - so often one of the last conditions your average Dr would test for! Good luck!
@@jillwilson8246 yeh ok I’ll have a look I got covid and clicking and cracking joints
Long covid isn’t taken seriously enough by some of the public. They would soon change their minds if it happened to them
The Yellow Card Scheme data isn't taken seriously enough by some of the public either. They would soon change their minds if it happened to them.
What's your thoughts? Do you think these people should be remembered?
Still not getting the vaxx, vaxxy boi
@@chrish9164 Isn’t that for vaccine side effects only? I only heard about it a week or so ago, months after I had my vaccine.
Mis Dangered - that's the problem.... Campbell has NEVER covered it. Very suspicious! He covers everything else..... but IGNORES all the injuries and deaths on these two government sanctioned data sets
@@ghwk-phd2784 So it's an intentional slaughter.
I am a Clinical Psychologist with long covid. I was fortunate to recognize early on the anxiety attacks that I was having were mimicking post-traumatic stress disorder. I do think that many of us have some form of dysautonomia, a syndrome where the sympathetic nervous system is kicked into action by even normal activities. I have an anxiety attack every night when I need to fall asleep. This is normally when the parasympathetic nervous system would kick in.
I am constantly working with people suffering from true anxiety and the difference between their thought processes and my own are worlds apart. I am able to unpack my thoughts and recognize when I am going into 'disaster thinking. People with anxiety disorders are often not aware of the link between thought and symptoms.
What stuck out for me from this interview was the parallel between ME/CFS Chronic Fatigue Syndrome and the ability to be recognised by the established health systems.😷
Though some good news for sufferers of those, as there is a Facebook group of doctors with long Covid, some who've had to give up work.
There now seems to be some understanding of chronic fatigue
If the response to long Covid, from established medical systems, is anything similar to the response to chronic autoimmune diseases, God help long Covid sufferers. Current medical systems are not designed to deal with these chronic illnesses, and patients are basically left without proper diagnoses, or treatment, in many cases.
@@mbd6054 wish I could like your post multiple times 👏
@@beckster6116 Thank you. It's a sad state of affairs for many people, who suffer every day, without help.
Wait till they get the psychiatrist involved, like they do with ME, then the epistemic injustice really begins. eg. Forced exercise, capacity taken, ignored complications and even accusing family members of Munchausen by proxy for having to become carers. They simply don't believe it exists and undermine every attempt to get better by pushing us to do more.
I thank those women for speaking out because a lot of people do not know about this in Australia and New Zealand. So good to hear from people that have been through this and still battling systems. Thank you to all for work being done on this.
I’m a “Borrelia/Lyme -survivor”, and so traumatized by just the same history and symptoms. I feel with you so much, there are so any of us fighting these symptoms, and worst is the lack of help from doctors- they don’t know what to do or they say they can lose job if treating Borrelia more than initial four weeks period. For those with long hauling symptoms, so many weird symptoms, an often no test show a specific illness, it’s a nightmare. In Norway there are no place they transfer you to if you are hard to diagnose/treat, and ordinary doctors don’t have time to be a detective and find out of your illness. We are not popular patients. It comes in flares. Ow my body cannot cope with blood pressure over 130/80, which is nothing really, but I get really sick. And it effects circulation and neurological also. It’s so important to get these information out, so thank you for sharing your stories. God bless you, hope you will recover soon. Be careful out there folks, vaccinated or not.
Do not pay attention to michael buddah, he's just a charlatan pushing snake oil...
🙏🙏❤️
Do you have access to naturopaths? My husband & I have Lyme & coinfections, that are of course ongoing & unpredictable. We have had some success in management with our symptoms. A listening & sympathizing ear as well. As many of these providers also have Lyme themselves. I will pray for you to find help.
@@pamelabecker8290 Thank you for advice, I’ll try that.
Fatigue!!!!
They need to come up with a new word because that just doesn’t cover it. I slept 20 hours a day for 4-1/2 weeks. I’m a year in and hardly improving.
How old are you. I am 57 and my job keeps me in shape. If I had a month off I would also be sleepy. It is hard to get motivated about anything at the mo for fear of planning things getting cancelled. Do viruses have heat beats?
What remedies are you using? You might need to try different things. Zinc, vit c, black cumin oil, Ivermectin 12 mg per day. It has helped a lot.
❤
Fatigue is a perfectly adequate medical term. I used to work with people with multiple sclerosis and they can suffer from debilitating fatigue for very long periods of time. It's called 'fatigue' because 'tired' doesn't cover it. You may not have suffered this kind of symptom before but many other people have and the standard term for it is fatigue.
Lots of talk about medications and supplements but there is a lot of research indicating that ditching sugar, starches, grains, legumes , vegetable oils and processed foods containg these is benefical if not miraculous. Replace them with a diet rich in meat, fish, eggs leafy green vegatables and saturated or monosaturated fats. Liver is the super food that contains almost all of the nutrients the body needs in the proper ratios.
Admire you so much for letting people tell their stories and the respect you have for them
I would agree if he did a video about the people trying to get attention for the death and illness from the vaccines to them and their loved ones.
Problem is .... John wouldn't do it and it would be removed by Google/UA-cam anyways.
Odd isn't it.
Also why not do an interview with many of the leading virologist and biological evolutionists?
The man who made up mrna vaccines am sure would love to chat. Bret weinstein also? I mean actually the amount of people talking out and being ignored for a year and a half all alot more educated in these fields.
If you watched John's early videos on covid19 you will see him say he wouldn't expect a vaccine that works and safe for at least 3 years and that was trial and errors . A few would fail the testing.
Now he believes every vaccine that made for covid19 works (made in west ) and they are soo effective within 9 months and then safe to use on kids.... oh yeah a real thinker this one.
Even though he knows the roll out is the 3 year testing replacing the animal testing. In 2022 and 2023 they are up for review to use off the emergency laws.
Now imagine and the odds are not to be ignored .... there is a long term health issue with jabs and a world terrified.
150 millon plus people put in poverty and most starvation from the second lock down and we are only feeling the beginning ripples.
Deaths recorded without testing or autopsy for first year.
Deaths as admitted by the phe that 8 per cent was from and not with covid19 and 6 per cent by cdc .
An average age of death is higher then the natural life expectancy.
Usa a lower then the 7 year average deaths per 100000 per people.
Small buisness closed but mega cooperation gaining billions.
Testing and track trace costing billions and for nothing.
Uk tests 100 k more then the whole of e.u per day and gets 99.9 false.
Pcr testing never made for testing for virus and diagnostic.
Bigger usa pharmaceutical company stopping a vaccine midway as said was unethical as always changing and natural immunity the answer.
Censorship and protesting now illegal. Want making recording police violate human rights as unlawful . Made it so any agent working undercover for government can break any law legally.
Uncovering government scandal they want same punishment as foreign spies.
Open airports whilst healthy people locked down.
S.a.g.e full of human behaviour experts who one admitting to using psychology propaganda and fear mongering to make you believe covid19 is a greater risk personally.
And of course a nation debt so huge and with more sustained closures and lock downs .... a future where starvation could easy hit our shores on a mass scale .
Now imagine that wasn't purely down to stupidity and human error. Whats our future for our kids when daikey our rights are taken away and nobody cares .
I mean I could go on for hours how this is nonsense.
But I guess most are blind and don't read alot.
@@mikebobbings9601 Hope you feel better. Since you are so sure about everything, you don't need to learn anything new.
this is just one big shared misery hugfest.... feigned with well wishes and illusory support. Madness!
Dear Dovetown, you took the words outta my mouth. It’s these live chats from all over keep me coming back. So sry your thread got so many trolls.
Cilandia Lane - what do you think of the Yellow Card Data though? Do you think these people should be forgotten?
Well done John, Ondine and Vicky. A much needed report on this worrying condition. One which our UK government seems intent on ignoring. And so easy to do when so many of those affected are female. Back to the well worn dismissal of women's health concerns as hysteria / anxiety / all in the mind so dismiss.
In my early 20s, I went to a series of doctors for a rough rash on my breast. For 10 YEARS which was dismissed as self harm, allergy to my bra strap (which couldn't reach it), or hated my gender. No one did a biopsy until 10 years later: basil cell carcinoma. In that time it grew from 1/4" to 1.5". After it was removed, it did not return.
For goodness sake!, Can any one realise that P.M is Only a personality.He is paid to superficially keep us UP,!
Why has he never mentioned Vit. D .!!! WE NEED 1000 international units a day.. I.U.s daily.WE NEED UV.F.
not baffling buffoon personalities whom may or may not get rewards in kind for BAFFLING US..Wakey wakey!
Well ..we live in northern hemisphere. We have big nose to breathe more.We lack SUN or UVFy
We are light skinned we need Sun .Tell us to get more Sun.Tell us how vaccines do not work wIthout VI.D.
SUN IS VITAMIN D. UVF is ultraviolet light. Boris if u care Tell your people PLEASE. broadcast this please.
Emotion is Commotion..That’s why personality is not what is wanted Now ,We need cures and information on what vaccines contain and where Virus comes from and why.? China started all this commotion so ASK THEM?
The dismissals and difficulty getting effective treatment for long Covid sounds very similar to ME/CFS and of course this is often thought to be a post-viral fatigue syndrome.
And that's what it is, post viral syndrome caused by a combination of the virus and stress. Nothing new at all, just called long covid to keep the fear going.
@@robertmckinnon6564 You get any long term virus left overs, then you will have fear. It is horrendous to live with.
Me too!!’
@@robertmckinnon6564 eQ is needed dude!!
@@cilandialane3084 just get an auto immune disease and see how much fear you have the statement you made was very ignorant know the reality is many people are dying nobody knows the death rate in all honesty but look at the basic numbers compared to the flu and how many kills yearly in the world and our numbers are scary!!!
Kudos to Vicky and Ondine for being proactive about your ongoing prolonged symptoms. I hope your symptoms become more manageable and that you can get appropriate medical attention when you need it.
Thank you for having this discussion. I'm coming on 9 months of LHing since my infection in October 2020. Everything these women said from experience of the onset of infection and following symptoms to the experience with MDs is 100% my experience here as a male here in states. Ondine succinctly voiced my own frustrations with being believed. Innumerable symptoms: Tinnitus, seizure episodes, small fiber neuropathy, gastroparesis, fatigue...so many symptoms that you can and do forget some. I just hope we will have answers and treatments soon. Hang in there everyone.
Get your doctor to refer you to a specialist who understands how to test for and treat Mast Cell Activation Syndrome as they are now seeing covid is sometimes causing this in long covid patients. Your symptoms are common MCAS symptoms which are pretty complex. TmYou may too much inflammatory histamine being released by your mast cells which are found throughout the body affecting several body systems.
please tell me more about the seizures because doctors are not believing is a long Covid symptom
Update on your condition mate?
@@TheBushRanger. Some of the cognitive issues (anhedonia and memory) seemed to have lifted alittle but about 3 months ago I started getting nerve issues in my hands. I still have tinnitus, mildly affected GI issues, random visual issues that aren’t as frequent. I also still deal with some temperature regulation issues and palpitations. The neuropathy pain in my feet is gone. I feel like I’m recovering just as a painfully slow pace that I’m not used to. Thanks for asking, hope all is well your way.
@@chump203 going through the same thing. Hope you get there soon thanks
Thank you to you both for sharing, and to Dr.John for offering a platform to do this. Long covid has proven to be a journey in the dark for many of us, and the 4-5 day flare ups have become commonplace. My way through was anti-inflammatories for 3 months (I took a natural BDMC50) and then identifying the stressors or triggers if you like. Mine turned out to be cardio exercise longer than 20 minutes, gluten, soy, peanuts, dairy, and dehydration. Now I have less chest pain, breathing is better, heart flutters are less, still get lower left back pain if I don’t drink double the amount of water, and can get major flare up with all symptoms if I just have a very busy day, usually as a result of feeling great in the morning with bags of energy! My thoughts and prayers go to everyone struggling through this last 18 months, you are not alone, keep strong, keep up the great work 🙏
Dr. John you have been the lighthouse for all of us, blessings to you 🙏❤️
Wow. I have suffered from chronic Lyme and viral infections from my kindergarten students. I had to stop teaching and feel just like you all are explaining long Covid. I did consciously think that other people now feel like me…hurting with brain fog and disease.
How are you now?
Do you feel terrible for a few days and then feel better for awhile? It is like getting the flu every week!! Ugh!
I'm wiped! Been fighting cancer, fibromyalsia, lymes and long covid now!! Weigh 104-my immune system is destroyed from chemo, so I got it twice!!
Don't know how much more I can take!!
Taking VitD, probiotic, and mushroom tincture- it's helping!
I think vit d is a MUST!!!
HANG IN THERE AND PRAYERS UP🙏💕 edit- do you have really BAD brain fog?? I can't remember shit! It's terrible! Can't handle my own financial stuff!!🙄
@@kerirae4777 How are you now?
I had some of the same symptoms as you for 6-months.I had long and heart check and a 24-hour heart monitor. Get it done, I recommend always. Better to know then not. And I so sad to hear about her father's death my sympathies to herself and her family
I have a call every 3rd month from heart doc and doing bllod tests too after i came home from hospital. over a year ago
@@ninsemor I live in Ireland. I'm under there. health system. It's not that but talking total 6 to 7 months to get everything checked out. You should have been seen, that horrible.
@@joe41040 wow yes thats a long time to get answers. I had my heard running amok when i was in hospital so they gave me a electrical shock in my left arm , that steadid my heart , in the same time i got tons of antibiotics as i had pneumonia. and skin issues. so now they test me every 3 months and I feel better hardly any musclepain after over a year
What showed on the 24 hour monitor I have one for 2 days basically next month ??
I had what I am certain was COVID around New Years 2020. The person I got it from was sick enough she ended up in the hospital with pneumonia, but of course nobody was even looking at COVID then. I have had heart issues, but after that my irregular heartbeats became worse. I just had pacemaker surgery last week. I had hoped I could avoid it altogether or at least delay pacemaker surgery for another decade. I had wanted to delay the maintenance needed for upkeep of the devices for longer. Then there is the exhaustion. Before the pacemaker I could get so tired I was afraid I might fall asleep at the wheel of my car. The pacemaker has made that better, but I am still tired. I am hoping when I recover more for surgery that gets better.
I hope you will to. Be safe and solidarity your way!
you are aware wearing a mask can cause pneumonia
Good luck and best wishes.
I think a lot of us had similar experiences with a mystery illness in Jan/Feb 2020
Certainly something similar ripped through my family, fortunately none of us got too ill although my wife went to bed for three days and that is very unusual for her. Was it Covid? I guess now we will never know.
@@jimgraham6722 i promise you it wasnt covid, that is just the flu rebranded , she was suffering from toxicity of the body
It was definitely covid. Several variants circulated the globe in 2019.
My weirdest covid story is how it ended. I went to sleep about 10 pm on a Tuesday. I woke up at 6 am and remember wiggling my toes. I felt no pain, no aches, my stomach was now relaxed, and I had no fever. I'm thinking when my immune system finally decided it had enough info it attacked. I believe it destroyed the enemy perhaps in as little as a few hours. I'm both in a state of awe and melancholy about how wonderful our immune system is yet how vulnerable we all are to this dangerous creation.
I believe this,a few months after I believed I had covid at the beginning of 2020,by October last year I awoke to a weird sensation my body just seemed to throw out fluid from my skin,sweat poured out i was dizzy and violently sick the next day i felt like crap,one day after i felt so so much better I beleive my body kicked my long covid out 98%
Steve - thats an amazing story unlike any I've ever heard, tho I'm so very happy for you! If anything, it shows we have much more to learn and gives hope for further treatments and healing.
I wonder why the fact that 45.000 people in the US died within 3 days of vax is getting zero coverage?
@@chrisstevens4764 Are you serious?!?! My sister and I was just talking about this. Why isn't the US giving coverage about the people who are dead to the vax shot??? @chrisstevens where did you get this info?
@@chrisstevens4764 I found the website where this info is listed. Thanks for sharing!
Finally I am learning more about what actually happened with me. I had mild covid symptoms followed by a long period of loss of smell back in July 2020. I was very energetic and eating healthy but after a month or so I started feeling like I am getting older every week. I had to work ever since to be able to pay the bills, and that made everything a bit harder. Recently I started taking high dosage of B vitamins and along with journaling, healthy diet and removing stress through stretching and mediation it seems to help in my case. I had pain in lower legs and neck area ever since along with fatigue, brain fog, migraines and others. Finally after almost 20 months it looks like I am becoming myself again. Hopefully it's not just a relapse this time and maybe it's going to be at least a lasting improvement. For anyone reading this don't give up!
How are you now?
Hi Andrei,how are you now?
@@Toolsmanufacturer Hi Gary, I am a lot better if you are asking about the Long Covid. I had to stop everything I was doing as I was getting more tired. I came back to my home country (from UK to Romania) and I gave up on following a plant-based diet as I think because of Covid I became allergic/sensitive to almost any vegetable and fruit I used to eat. I have followed a diet based on animal products since I came back home a few months ago and I am kind of 70-80% back to my old self now. I think getting rid of the UK stress along with eating foods that I was not allergic to played a big part. And also maybe the fact that coming back home I ate the foods with bacteria that my body had grown with maybe was a benefit to help with gut symptoms and food sensitivities. How about you, are you having long-term issues as well because of Covid?
@@andreiturca Hi Andrei,thanks for your reply.I am suffering from the COVID-19. I have been there for 2 months. I am easily tired, memory loss, and inexplicable panic. But I am the opposite of you in diet. I'm eating healthy vegetables, fish oil and vitamin B. And I'm trying acupuncture and moxibustion, which makes me relaxed. I can feel that I'm getting better slowly, but I haven't fully recovered. what about you? Are you fully recovered? I wish you a happy life.🤝
@@Toolsmanufacturer Thanks Gary! glad you are seeing improvements Gary. Getting relaxed in any way is definitely a must and it's good you are doing it. I am started to lean into more vegetables as well lately. I also did some acupuncture a few months ago and it helped me too. Don't know about moxibustion but I just checked and it looks like something beneficial. Can't say I fully recovered. Just recently I started having some classic leg pains that I didn't have for 1-2 months but I think it's nothing serious. I recommend also trying meditation if you think it's worth it. Overall, I still feel like there are some traces from all this prolonged stress so I will have to be careful with my overall stress levels for a while. I also think that my brain took a toll overall as I am just not feeling as capable mentally as I was before. In the beginning I have experienced improvements with Alpha Lipoic Acid and I am also taking B vitamins as well as Benfotiamine (b1). I also have Magnessium Glycenate and D3 5000 ui + K2 (MK7). I have fish oil as well which I take along with Evening Primrose oil capsules as I think they mix well together (Omega 3 with good healthy Omega 6). I am happy that I can go out and run and I am also going to the gym. But everything feels like a reset and like stepping into a new territory. But that is also because I had to adapt and change a lot of what I was doing and I need to replan stuff now. Wish you quick recovery and good health! I think rest and destress is the most important and it's good you are doing steps in that direction.
Impressive determination, commitment and results from both guests; also a masterclass by Dr Campbell on how to effectively mediate/facilitate a discussion. Kudos and thanks to all three.
How insulting to have a medical doctor suggest your pneumonia or palpitations were do to grieving for your father, Vicky.
stress can make things worse. I had my best friend die of Covid and week thereafter I got Long Covids SO BAD that I thought that I had Covid again but it was the stress.
Palpitations are totally psychosomatic.
@@shiningoutlight same. I've recovered but when my mom was fighting for her life in the hospital I felt like I couldn't breathe all the time, I was also constantly tachycardic. I thought it was a relapse but it was the stress. when she's finally stabile enough to be discharged I felt like a heavy rock was lifted off my chest
Errrrr. No they aren’t. PVC’s and PAC’s are caused by many many intrinsic and extrinsic factors.
Thanks Dr Campbell much appreciated 👍
Thank you Dr. Campbell for leading these discussions. I feel you are a trustworthy source of enlightment and trustworthy information in a time when it is very hard to know just where to turn. I also want to thank both of these young women for sharing their stories and for the tremendous physical efforts they are putting out to help themselves and others at a time when their own health is not the best and their energy levels are low. God bless you all. I offer my prayers for everyone.
A heart-felt thank you to both of your guest for providing such high-value information and putting in so much effort into helping others and spreading the information about long COVID, though it certainly costs them many hours of extra napping.
@John, thank you for organizing this wonderful call!
I see a lot of parallels with chronic Lyme and chronic Lyme still not being taken seriously in America, the medical establishment still insists on calling it the post-Lyme syndrome when it is obviously a chronic persister infection much like syphilis.
yes, also other chronic diseases. I have celiac disease, undiagnosed for 14 years. Eventually I couldn't walk any more... I also had to self-diagnose, fight to be tested and only then got a confirmation of diagnosis. I was always diagnosed with "depression". That went away once I got a diagnosis and started getting better... I really understand what they're going through
Yes I agree with you on that it is a horrible disease
Bingo
Ivermectin with help with the first two problems
It has a paralell with autoimmune disorders' long list of symptoms.
Vicky's English is so good one could be forgiven for thinking that it's her first language. She speaks it better than many native speakers...
I wonder why the fact that 45.000 people in the US died within 3 days of vax is getting zero coverage?
Indeed!
@@chrisstevens4764 For the millionth time, get your information from CREDIBLE sources. People can write any crap on the internet. I can write a credible looking page tomorrow stating that the moon in blue. Not everything you read is factual. Just because someone wrote it, doesn't mean it's true.
The Dutch never cease to impress with their English language proficiency. Veel succes to Vicky and her efforts!
@@fransmith3255 I think Mr. 45.000 has been reading the 'Conspiracy Theory Gazette' again.
This whole video reminds me very much of the experiences of people, like myself, here in the US who suffer from Persistent Lyme Disease.My heart goes out to these young women! Thank you Dr. Campbell for all the informative videos.
Thank You to both of You for Your input and insight. We are appreciating, greatful and full of admiration. All the best to both of You.
Having had Covid and Copd in the Doctors defense although they should be more clear, when they say you are having anxiety. They are not saying you are imagiing your sickness/breathing issues etc. What they are saying is the anxiety (like in my case) is making my breathing worse. Wish doctors would be more clear to their patients about this. It makes the patient feel like their complaints are invalid.
Many Drs do brush off patients. No excuse. Happened to me multiple times before they would test me for what I suspected it was, and it turned out I was right all along. Years were wasted in the meantime as they told me it was just high cholesterol, that it was psychological etc.
Also diminished O2 will also cause anxiety.
I get that happens too. But I am just saying at least as far as breathing goes, it will be worse if you are tense with anxiety. Which if you have had bad episodes of exasperated breathing, it is only natural for it to cause anxiety. And those two things work against each other. Oh I have been brushed off before. No doubt, that happens too.
@@carolhewett3756 exactly and one just makes the other worse.
Have to say the COPD Examination they do here in Scotland is so superficial.. they give you an asthma inhalation then they make you breathe into a tube for as long as you can, then declare you're fine and it's "all in your head" The claim being if you can empty 80% of your lungs you don't have copd. Which isn't really helpful when it feels like 50% of your lungs aren't even working.
I believe covid was in Ireland as early as mid November 2019 because I was infected at that time when a young lad of about ten got a violent fit of coughing right beside me in my GP's waiting room, ironically as I was waiting to get my annual anti flu injection. I spent two weeks in bed, just coughing, and my head completely blocked unable to hear properly. Once I recovered I had a high temperature for months. A CT scan has now indicated chronic lung disease and pulmonary hypertension. I had none of these before. I'm 74. That photo is fifty years old. So, I'm anxious as I know my life has been cut short. It really pissed me off by Irish drunks and publicans trying to diminish this damned disease in order to open the pubs again. Like your videos as they make sense!
Peter,the rest of the world should not stop because you got sick. 80% of infected HAVE NO SYMPTOMS,and the faster the unvaccinated get infected the faster will we reach herd immunity.
The feeling that drives you is your envy.
Many ME/CFS charities are supporting patients with Long Covid- for example the ME Association in the UK. Worth having a look at what support they have to offer.
Very similar to Chronic fatigue syndrome... hope these people have the attention from the medical field to research these debilitating symptoms 😔
It’s not similar, it’s the same syndrome
@@moheebsaad1918 pretty much
One of the silver linings of this whole Covid pandemic is that a lot of research has been done on the immune system to figure out where chronic illnesses come from. The chronic illness in the case of Covid has very similar mechanisms as chronic Lyme, or chronic Candida, or Epstein-Barr virus that keeps on coming up chronically over and over again. We’re beginning to realize that this is a dysregulation of certain elements of the immune system that just go crazy and won’t shut down.
As per a study of the university hospital in Ulm 20% of people with Long Covid are having organ damages. If other sources backup this information we are looking forward to a overwhelmed healthcare system for a complete generation.
@cha la la
Really... please elaborate.... !
Clownworld.....
Ignore those commenters, just causing trouble.
@@Rik77 keep playing ya flute bro 👍
@@Rik77 you’re right sometimes I forget that the internet is full of Trolls.
Hope those people who have had already COVID-19 won’t get it again. Hope you all who have suffered from COVID-19 will get well soon. Wish you all much health and stay safe.
i acquired natural immunity with no symptoms what so ever ,i am free from the coronavirus and its mutations,the interferon immune system is primed i cant get the coronavirus or any of its mutations,and i cant infect anyone
Thank you very much...
This isn’t new, there is a thing called “Post Viral Fatigue Syndrome” that can have a host of Symptoms that you can get from a lot of Viral infections.
You can't reduce it with a simple diagnosis or guess. It's so more than this and different for everyone !
My wife and I got it from a bad bout of influenza 30 years ago
Yup, there was Long-Spanish Flu, Long Russian Flu, CFS, ME etc. etc... the difference now is that with the Internet and so many cases at once the Doctors can't fob it off so easily - it's not new, it's just another example.
all post viral conditions have a single cause,dead viral debris in the system what their weak immune system cant expel,low atp levels coming from low glutathione levels is directly responsable,the miracle mineral solution ends all post viral conditions in hours the cost of the miracle 7.59 uk pounds
@@bluelibradorite9566 yes you can,all post viral conditions have a single cause ,dead viral debris in the system what their weak immune system cant expel,low atp levels coming from low glutathione levels is the root cause ,the miracle mineral solution ends all post viral conditions in hours and chronic fatigue conditions too,all caused by the same thing,
Happened to my mum this, after covid she was so ill and eventually she couldn’t go on anymore and sadly passed away, miss her so much 😢😢
Long covid can be really awful, I'm so sorry for your mum having to go through it, and it eventually taking her life. ...and very sad to hear of your loss x
I'm so sorry
Aw bless you xx big hug 🤗
Sorry for your loss
My condolences.
Thank you Ondine and Vicki for your glimpse into long Covid. I hope you both will recover your health.
The word fatigue can't come close to the tiredness that one goes through ... Good going ladies ... Thanks to you Dr Campbell ... By the way my original place of birth and residents was Scotland .. perhaps this is important because I just lost 3 male friends over the last 2 weeks they where all around late 50s but born in South Africa Caucasian male .. most of my African black friends have been ok .... I have tried to tell people about the long haul symptoms but even the Doctors here won't listen ... I'm an old military background so I just got on with what I could research and take local meds available from chemist ... Doctors really don't know what to prescribe... Thank God for ivermectin that is all I can say ..... The news here is spreading fast so there will be a major problem with availability soon as it really is a miracle drug to use against long haul covid symptoms ....
Tommy I live in Australia and can only get Ivermectin by perscription but not for Covid. I have
not had Covid thank god but it was easy to order online from India. Obviously do your homework
regarding the supplier but I have ordered 2 batches and are very happy. Brand names arrived.
I will keep them handy if my family or I get infected. My wife and I got ME many years ago
after a severe bout of Influenza, so know what people are going through. Hope things improve soon!
Where can I get some??? Any trusted sources??
First of all thanks to John Campbell for including the important topic of long covid on several recent episodes! Like many others here I was very impressed by these two women and all they have accomplished while battling this illness. I have been sick myself for 15 months now and I can't imagine doing all the advocacy work they have been doing, and I am very thankful for their hard work which Im sure must have led to relapses!
One major problem I feel is that there is a shocking level of ignorance about Post-Exertional Malaise (PEM) and the gravity of it, in both the medical community and the media. There is often a misconception that PEM is simply fatigue after exercise, which it is not. It is the triggering of a whole constellation of symptoms after mild activity which could be as minor as talking, showering, reading or combing your hair, so we are not even talking about exercise, just basic use of energy. PEM is often delayed, so if you have a long conversation on Monday the effects may not hit you until 12-72 hours later. The effects can be totally debilitating rendering you housebound or needing a wheelchair. PEM is also the cardinal symptom of ME/CFS. If you have PEM that has been going on for 6 months (ie. chronic) then you have ME/CFS, regardless of the initial trigger, whether it is covid, EBV or any pathogen.
ME/CFS at its most basic criteria is the clinical presentation of PEM.
Also just because you have ME/CFS due to covid doesn't mean you can't have other covid-induced problems. Covid could trigger ME/CFS + Postural Orthostatic Tachychardia (POTS) + MCAS+ Organ damage or any combination of these or just one of them. Long Covid seems to be an umbrella term for many different syndromes and pathologies, some of which may be unique to covid but many are not. Hopefully now scientists will finally get the funding required to get to the root of these long-neglected illnesses that are triggered by all kinds of pathogens. I really hope funding doesn't just go to the development of "recovery" apps and physical rehab programs!
Sorry John I just can't watch this. I've had ME/CFS and or fibromyalgia for 25 years from Lyme disease. I hope everyone feels better.
Me too- also from Lyme and Bartonella
Same. It’s hard for me not to feel emotional when I’ve been suffering since I was 15 years old. (I’m 36 now)
….and have been completely dismissed by doctors and my healthcare system.
Invisible.
My heart goes out to those suffering from long covid.
But it’s also very hard to hear when literally nobody cares that people have already been suffering on a daily basis for decades. 😔
@@Pari_Pixie I feel your pain.
Ivermectin will help you !
Yep I feel the same, this one was hard to watch (parent of a child with severe ME for 5.5 years).
So many of the varied symptoms all seem to be part of a histamine overload, especially the skin issues. The histamine overload was not mentioned in this discussion, but seems to be a significant overlying issue connecting the dots of many of the symptoms . Once I made the connection and found out how to deal with that with anti histamines a couple of times a day for at least a few days, I had more relief and the fatigue has now lifted. I also added some suggestions for vit C and for the lungs vitamin E. This is starting to make a huge difference. The big one is the scarring on the lungs and shortness of breath.
@BPJ we should be avoiding sugar all the time, it serves no purpose but to provoke insulin response which puts the body under stress and causes inflammation. All chronic conditions - allergies/asthma/autoimmune etc etc are linked with inflammation and poor gut microbiome. Sugar feeds the bad bacteria, the by-products screw with all our systems. Dr Mark Hyman, a functional medicine doctor, talks about this a lot, amazing podcast/YT channel. He’s making the link between all these diseases and C19, which FLCCC is not, they seem to be very focused on treatments of symptoms, which are obviously very important, but functional medicine addresses the underlying cause, which will still be there after whatever treatment has been given.
Yes, antihistamines and aspirin are part of the very basic care routine for covid. Too bad Doctors are playing politics instead of saving lives.
@@helendennis7662 If that’s how you think about it, you would remove everything that becomes sugar in the body in totality. That means bread, beers/alcohol, fruits, berries etc. it’s a lot to remove instantly and for some also be a reason for depression and general loss to thrive and disengagement in life. It’s a hard route to take.
@BPJ You DO realize fruits contain simple sugars, right?
@@requited2568 I do think they help and give relief at times, they have with my longcovid but I wouldn’t recommend taking them all the time. At one point I was having quite bad nose bleeds, and other times really bad GI issues, I wouldn’t be taking aspirin then.
Thank you for this video, maybe they would both be prepare to come back in 6 months or a year with info on what progress has been made.... please x
When there are triple the 45,000 deaths from mRNA inoculation in 3 days in the USA
Thank you Dr and ladies for telling us your story,,I pray 🙏you both get better day by day,thank you so much!❤
Thank you 3 for all your time and care.
This is the most in depth discussion of Long Covid that I have seen to date. The current wave of the pandemic is going to lead to a massive legacy of people suffering Long Covid 😭
It’s going to lead to a massive legacy of people looking for law suits
You may find RUN-DMC Covid interesting. It is a UA-cam channel by a long distant runner who developed Long Covid. His community participates in studies and he interviews doctors treating similar syndromes looking for treatments.
Katie Hettinger Many long-distance runners report developing colds and other upper-respiratory infections (a.k.a. the "marathon sniffles") in the two weeks following a race, according to various surveys and studies. But isn't running supposed to make you healthy? While 30 to 45 minutes of moderate daily exercise does stimulate the immune system, the rigors of running longer distances temporarily weakens it. During the strain of a hard run, the body churns out the stress hormone cortisol, which suppresses immune function in large amounts. "The more intense the run, the higher the cortisol level," says Amesh A. Adalja, M.D., an infectious disease-specialist. "We know it can be high enough to impair the immune system for up to three days following a race or a strenuous workout."
Perhaps this is the real reason .
@@dennispickard7743 you're American aren't you.
Hello good morning American Lol 😂 I’m about the third of the size of your average dude from Aly- Bamy
No I’m Scottish -ye Ken fit like !
POTS is postural orthostatic tachycardia syndrome, a form of dysautonomia... The Bateman Horne Centre in the US has lots of useful tips on diagnosis and treatment of dysautonomia in post-viral syndromes
I developed pots in 2014, from a bad chest infection, my chest pain was so intense I thought is was my heart, it was my lungs coughing bloody phlegm. My heart would race when I would stand up, blood pooling in my legs, my pulpils would be different sizes, I had hot flashes with skin flushing, bad insomia, chest pain, stomach pain, vomiting, my stomach would take so long to empty, if I eat too much at once, my heart would race especially in the morning. I have developed severe anxiety from the symptoms at first, I still have anxiety because my body dumps adrenaline. I developed severe depression from the isolated well before covid, since 2014 I was only 17 years old, now 23 I been so depressed lately, I've been having suicidal thoughts, mostly because I'm a young man, I never been in a relationship, I have no car, no job, and no money coming in, however I'm currently working on getting my driver's license, hopefully soon. I feel like I'm at a fork in the road in life, I have no idea what to do.
Pots is also a common feature related to collagen disorders like marfans and ehlers danlos.
Had a POTS flare with my J&J injection for 1 day. Trouble walking and dizziness and 99.9F.
@@8XxFlameThrowerxX8 I’m sorry to hear about your difficulties. Congratulations on your drivers license!!! There are a lot of people like you with POTS or EDS-perhaps try to connect with others online. Please hang on. 💟
@@byzantineladybug9471 Thanks for your kindness
Thank you for putting this informative video on and bringing together for us all, Vicky and Ondine. They are an inspiration. It is so good to have so much relevant information on this syndrome in one place. I am 16 months in with my battle with Long Covid.
All the very best for the recovery of both of you. Thank you so much.
Thank you John again for your amazing work in educating me.
Long covid sounds very much the same as Fibromyalgia. I hope that a cure can be found. I can only hope.
Have an awesome day from a big fan in Oz.
I wonder why the fact that 45.000 people in the US died within 3 days of vax is getting zero coverage?
@@chrisstevens4764 Out of ~200 million? There's probably no (and certainly no statistically significant) correlation there. If you looked at how many out of 200 million people (randomly chosen from the general population) you would expect to die within three days of watching the movie Love Actually, it would work out at around 20,000 based on current death rates. Combine that with the fact that the vaccine campaign started with the oldest and most vulnerable (i.e. most likely to die), and that figure sounds like what one would expect if the vaccine was perfectly safe.
@@luke-alex Do you feel that Rob Malone and Geert Vandon Bossche are making money out of telling lies?
@@chrisstevens4764 I know little about those people. I assume they're the ones making people concerned about the vaccine (I had a quick look at their websites). Why they are doing this, whether they are sincere or not, is pretty irrelevant from my perspective. There are always going to be people who are wrong, or any given issue.
@@luke-alex The high numbers of vax deaths and serious injuries, within the first few days, suggest they would have been pulled, had there been an legal liability. C19 vax deaths and serious injuries over less than a year, have been greater than those related to ALL other vax over a period of 16 years.
These interviews are so close to my experience and yet my GP still won’t acknowledge I’ve had COVID. All investigations have come back as there’s nothing wrong with me and they’ve basically told me there’s nothing they can do for me. It was a difficult watch as it’s so close to home but I’m so thankful that these videos are getting out there, sadly though I suspect it’s mainly the people affected by this that will watch it to find other nuggets of information in a bid to get fully better.
My partner still suffering from long covid syndrome and she called 111 UK help line and also made a complaint about her GP'S dismissive attitudes .She was able to be heard...
And people getting side effects from the vaccine are told they have anxiety. I think long covid is probably vaccine damage
How are you now?
Dear Ondine , Wishing you a speedy recovery and every good luck with the work you’re doing connecting and helping people and families who are having long Covid .
Be Blessed....
Three point:
1) John, you are a saint and a genius. You took 2 women, both with impaired energy, and pulled information from them for an hour and a half. It was too much for me; I had to take breaks and come back. It's because I'm about 80, not long Covid. My lack of energy has come on little cat feet, not the camel stomp of long Covid. My other symptoms of cruel age, I shan't describe; you'll know soon enough if we are lucky. Thank you and the women for an incredibly fine contribution.
2) Brain fog. Oh I'll fumble and mumble, but I do have more on my mind than ... words fail me. I don't got the foggies. BUT, with fifty years of experience as a medical doctor, I do notice people. I have run into more brain fogged people than I used to: a receptionist who absolutely could not get her stuff together, a waiter who didn't realize he'd rather we liked him until it was tip time, a sandwich maker who took four times as long to make a sandwich as his elbow man, a chocolate store manager who could not shut up about an organizational change she was making and so forth. It used to take me a month to run into just one dodo, but all those were in a single week.
Then there are those odious doctors who blow off the long Covids. In all my years I never treated a patient like that. It's the patient who has the complaint, who gives the history and who deserves a monopoly on the story. As you say, ignore chest pain for a week? That's imbecilic. I really do suspect those doctors had the virus and are left with a rather subtle brain fog.
3) Ivermectin. AHA. The vaccine has a significant chance of improving symptoms even in long Covid. That means that the virus, like the zoster virus in shingles, is still alive and doing its dastardly, even if you can't find it directly. You have presented evidence in the past that ivermectin actually helps. Has anybody tried giving it for long Covid?
All the best,
Linton Herbert MD
Yes, Dr's Kory, Marik, and Been to name a few, actually have a protocol for Long Covid that Dr. Campbell didn't mention. covid19criticalcare.com/covid-19-protocols/i-recover-protocol/
@@lkturner319 Dr Campbell had an interview with Dr Kory about ivermectin and then he later decided to take it down. What does that say?!?!?
My bf did ivermecten when he first felt covid coming on and he has everything they say is bad to get covid. A fib, diabetic, obese , etc but I have to say.. he went in hospital n came out 4 days later, I was in 2 weeks. I only have one thing bad for covid so I think it works. Neither of us on respirator both same treatment, we got iv , steroids, and oxygen. 🤷🏼♀️
@@seekingeagles I would think it was google who took it down, just as they took down Dr. Kory’s testimony to the US Congress. Dr. Marek lost his ability to treat his critical care patients, Dr. Kory likewise has lost 3 employment positions. These doctors were not permitted to treat their, who otherwise would be classified as terminal patients, with a protocol that has been proven successful in getting these patients off of ventilators. They, like most doctors in the US are now employees of hospitals, not private practicing & have to follow the rules of non medically trained administrators. The incentive for these administrators - they are receiving financial funding from big Pharma & the government. If early symptoms were allowed to be treated by FDA approved meds - off label - meaning the medication initially was approved for one purpose, but it was found was also affective in treating something else, there would be less hospitalizations, less fatalities & less adverse reactions. But, many of these medication happen to be past patent - which means it can now be made generically, is less expensive to produce & for patients to buy. This also means Big Pharma can’t continue to make BIG $$ off these meds. So they are using everything in their powers - lobbyist approaching politicians, NIH, CDC & the like to block the use of these medications. What they succeeded in doing is getting an Emergency Use Authorization, with side benefits - if you suffer any reaction to jab you can’t sue & test results & adverse reactions to the jab will not be available for review for FIFTY FIVE YEARS. So what are they - Big Pharma - hiding? They have the vast majority of main stream media, the US government, WHO all covering what they are doing. Social media companies are violating our freedom of speech, search engines are blocking the info you can find or are making it very difficult to find info & those found are often flagged with some warning. For more info search flccc.net, there is really good info there.
Thank you for this! Wonderful to have people talking about what I’ve been going through since March 16, 2020. I have contracted a lot of illnesses after getting covid I never had before. I think it’s true what Ondine said about it “attacking” anything that’s “weak.” That seems to have been my experience. Also, I have had ME/CFS for 30 years now. Believe me there are parallels! I got no help for the covid when I was in Somerset, England and was completely isolated. Sent back twice from the hospital and told to “rest.” So, I “doubled” my herb and vitamin regime that I have been doing for CFS for the past 30 years, and I am convinced that is what helped me recover on my own. I have long covid, but not as bad as a lot of people, and again, I think because of the herb and vitamin regime I do daily. That has helped me a lot. I hope more research will be done on the parallels between CFS/ME and long covid. Both are virus-based. But having had both, I have to say that long covid feels like CFS x 10. Much more severe. I am at 50% capacity, if that. And that's with all the preventive care I do for the CFS. Sorry this got long..but had to say it. :)
CFS and long covid are being associated with Mast Cell Activation Syndrome. Worth looking this up to possibly help you.
How are you now?
I too have this for 30 years now. Like the worst flu that never left me. ME/CFS. I have had ups and downs but never recover with anything tried.
Wow chowter 30 years. That’s a long time to deal with this stuff. Hey Monica could you tell your herb and vitamin CFS routine?
I got COVID last November but wasn't aware of it for a week. I have a congenital heart disease and I can say that my heart is quite sensitive to anything and everything. Whenever I get down with the sickness, it's always the heart that alerts me to it first. I get this discomfort in my chest and palpitations, and then a couple of hours later, I get sore muscles all over my body and other symptoms. So, whenever I feel that way, I know that a viral infection is coming on and I take a large dose of vitamin C to try to ward it off. It usually helps. Thank God, I'm not a person who gets sick often. And when I do, it doesn't last more than a day or two, really. With COVID, everything was way different. It felt so weird. It started one night. I remember waking up to a tachycardia and my heart was skipping beats. It's like it was out of control. I thought it was due to weather changes or magnetic storms, you name it. So, I went back to sleep. On the next day, I felt a little tired because I hadn't slept through the night but my heart seemed to be fine. A day later, it started acting weird again. I wasn't in the mood to do anything, all I wanted to do was rest. One day I was fine, the next I felt horrible.
Fast forward to the seventh day, later that evening I started getting sore muscles. I didn't think it was related. I thought I must have gotten a cold. Truth is, I hadn't been around many people. The only person that I'd seen in the past weeks was my GP. So, in my head, it was not COVID. It just didn't make any sense. So, I went to bed that evening, trying to shrug it off. Alas, I woke up in the middle of the night and the same scenario happened - palpitations, skipped beats - but this time I thought I was going to die.
The intensity was unreal. It's like my heart had moved up my throat and was going to suffocate me. I panicked. A lot. I took a pill I usually take for my heart in an attempt to slow down my heart rate but I was so scared that I couldn't wait to see if it was going to do its thing. And so I called ER. Unfortunately, at that point, hospitals were overhwelmed with patients and it was next to impossible to get someone's attention. The woman I spoke to on the phone told me to try to relax and to call back in 40 minutes should the problem persist. I had no choice but to sit and wait. After a while, things got a little better and I fell asleep. On the next day, I called my GP and explained what had happened. She advised me to test for COVID and prescribed some medication. My body aches lingered on for 6 days straight and no medication could make them go away. My heart was racing, some days I would get high blood pressure, others my blood presure was as low as 80/60. It was tough. At some point, I thought it was never going to end.
On the 14th day, I started feeling slightly better. I would still get weird sensations in my chest on and off for another week. 4 weeks into it, I was finally able to chill out. I felt like I was getting back on track. At last, I had my appointment with my cardiologist lined up and thank God, the medical check-up showed my heart was okay. I was so relieved. I will never forget this experience. When I think it could have been much, much worse than that... it's terrifying.
Beware of the vaccines then
the heart symptoms are very common. I'd had some, mild, for 30 years that got way worse after covid buy diagnosed as anxiety. After I began LC treatment of histamine intolerance, all my heart symptoms are gone! See RUN-DMC YT channel and the facebook pages for Long Covid Support Group and Histamine Intolerance. God bless ❤🙏❤
So glad you recovered. That must have been a harrowing experience. Thank you for sharing. At least you won't need to be vaccinated, although the authorities so far don't seem to recognise natural immunity trumps vaccines, so to get around, you may have no choice. In your shoes, I'd try to avoid them. Best wishes.
I am so sorry about you're experience and that the ER wasn't really there for you. My husband had a viral pneumonia and the ER didn't help much either just because it was covid they are driving me crazy and I had a similar problem too. We had to get through it all at home. I hope the best for you and I am glad you got better and that you're heart is doing okay, stay away from the vaccine because it effects the heart and it may be more harmful. Thanks for sharing and many blessings this year take care!
I had and I am still having similar things as u and today it's 4 weeks from my positive covid test. So terrible experience,I don't wish that experience to anyone on this world!!!
Dear Vicky , I'm very sorry for your loss ......
Praying that soon you will be completely free from all this unpleasantness !!!
Wishing you every speedy recovery ....
Be Blesed ....
BTW, in the Netherlands English is basically spoken as a second language. Well, at least it was in the areas in and around where my Dad was working (Brielle) and my Mom and I visited (esp in Delft) when we went to stay with my Dad during the 3 weeks we were there for the Ein April celebrations. As a side note, BEST DESSERTS I HAVE EVER HAD were in the Netherlands.
@Goseth Jones Thanks ☺ Granted, this was all about 5 years ago, but the desserts could only have gotten better!
Yeah it’s true. All people learned English fully in the Netherlands.
@@teun9380 I sort of thought so. My Dad learned Dutch before he went over there, knowing he'd be on that job for at least 2 years, but he said that it was almost not necessary once he got there. It was useful, just not needed. I found it fun how close Dutch is to German, and I used my knowledge of German to kind of translate when Mom and I went to museums and stuff on the days Dad had to work.
And no, I'm not from Germany, I took conversational German in college =). I do have a German heritage though!
@@DragynGirl very interesting story! Funny enough Germans are less good at English. The Netherlands is a very export and hub focused country and so speaking the English language is a must. Other European countries are more focused on the European market. Besides that countries like Germany and France also have some sort of nationalism to defend their own language. For example on the television in France there are rarely subtitles. Its common there to synchronize the conversations. This limits the learning capabilities. For me personally watching English vids with subtitles in de beginning was a very crucial part of learning English. Communication via language is very interesting :)
I am Dutch. It is a myth the Dutch all speak English well. Most are OK at it but not fluent. The oldest generation cannot speak it as a rule. My observations are the higher a persons income in Nederland is the more likely it is they can speak English fluently.
I’ve had long COVID symptoms since getting Hong Kong flu as a child in 1969 (England). I still get flare ups after 50 years. I hope the scientists manage to find a cure as I wouldn’t want anyone else to live with symptoms for this long.
I got it in 93 after Epstein Barr and like you am still trying to manage it. This is why getting even mild COVID terrifies me. Indeed it would be interesting to see if there is a correlation between long COVID and people who have previous had Epstein Barr or similar viruses?
What remedy have taken?
I had Asian flu in about 1957/8 .I remember that for at least a year I felt in a fog .
@@moheebsaad1918 Really, please point me to the research confirming this?
I am so thankful to see this video. I believe I had covid in end of February last year, I had been to North Italy. I got ill 14 days after my trip. Of course at that point they weren't testing. And they wouldn't test me because I didn't have breathing issues. But I had chest tightness and a feeling of burning or soreness through my sternum which almost felt like acid reflux. In addition to a low grade fever and chills. Since then I continued with pain in my chest felt like costochondritus and eventually back pain that has continued to this day. I saw chiripracters, physical therapists...Noone could get rid of it. The doctors believe it is stress and anxiety related as they find nothing in my blood. But it started all at once. And me being sick caused anxiety. Anyways point is..I hope that with more attention they figure out and approve treatments for long covid. I've had to fight too to get to see ortho specialist and finally I got an appointment. It's ridiculous that rather than doctors step up and figure out what's going rather than saying it's in my head. I feel like reading these comments I'm not alone! Thank you for sharing your covid story with us.
Doctors say, "it's in your head," when the test come back normal, and they don't know what you have or how to help you. I got lucky my ER doctor didn't do that, said she didn't know and kept running tests, so I eventually got a Long Covid diagnoses. In my HMO (US) I could ask to have her as my primary Physician. I have had improvement on the Low Histamine Diet and Anti-histamine regime and after my vaccination. Hopefully you will find some as helpful.
check out RUN-DMC YT Channel and facebook Long Covid Support Group. I achieved recovery through treating Histamine Intolerance. May God bless you with a path to total healing. ❤🙏❤
Have you had a vaccine? At 43 minutes they said that the majority of Long Covid patients improved after a vaccine. That was my experience too.
@@marialakshmi2330 be careful believing and repeating hearsay about vaccines bringing improvements to long covid sufferers. at the very least include the parts about people being harmed, some severely, some permanently, and some fatally.
@@katiehettinger7857 thanks I hadn’t heard of this being a possible treatment that works. I will certainly look into it. Thanks for the suggestion, and glad you found something that is working …gives me hope that I will too.
Thanks John for including the voices of these very impressive women. They are great representatives and the medical and government decision makers need to hear what they have to say.
Hi people, 🙏 hope you all get better. Dreadful having Covid
My sympathy is with you 💐
Maureen. Lovely 🤗
thank you!
By contrast where are the support groups for all those injured or worse by the vaccines www.kidspot.com.au/news/im-booking-a-pfizer-jab-after-almost-dying-from-reacting-to-astrazeneca/news-story/17b8ec0fc72e29fc59a0568fc8899850
Thank you for this informative discussion Dr. Campbell, Ondine and Vicky!
You are inspiring. You help put some pieces of the covid puzzle together by your collaborative, international effort. This is truly what is required at present.
Fantastic presentation. Thank you Dr Campbell for inviting Odine & Vicky to voice our plight. I’ve been suffering with LC for 16months with no answers / treatments for over 34 different symptoms that come & go. Everything they said resonated with me. Thank you both for ‘fighting the fight’ & for all you have achieved to date. And all whilst suffering with this hideous syndrome yourselves. Thank you.
They are equating covid infection with causing Mast Cell Activation Syndrome in about 20% of covid patients. MCAS is complex as the mast cells are throughout the body and the histamine they release causes when they recognize what they see as foreign and toxic to the body causes chronic inflammation in many body systems. They are the cause of the cytokine storm in some of the most severe covid cases. Treatments for too much histamine in the body such as antihistamines and mast cell stabilizers are being used to treat long covid patients. Worth talking to your doctor about this and do some of your own research on covid and mast cells.
Check out Dr Afrins on UA-cam concerning the connection between covid and Mast Cell Activation Syndrome. He is an expert in this field. MCAS sufferers have similar symptoms to long covid. Covid seems to be causing MCAS in some people.
I hope that you two and all people make faster progress with their covid problems.
Thank you for sharing this information. You are providing lots of hope for those that are suffering from long covid.
You very brave .
God bless and speedy recovery. ❤👏👏🇨🇦
I hope Vicky has been able to get a full cardiac workup by now 😐 I'm terribly sorry for young people who've got long Covid, and for those who will get it due to restrictions being lifted in the UK.
There's no evidence swathes of young people are getting long Covid
In terms of the anxiety in long Covid, it’s already been researched in ME/CFS that anxiety can be elevated because the endoindocrine system has essentially malfunctioned under burn out from an overactivated immune system, and there is consequently a lack of appropriate response and resistance to stress and release of stress hormones.
Yes I can relate to that when I was sick for 4 months! Had to sit up, could not breathe, sometimes couldn't talk. No energy. Terrifying.
Tom johnson Tom , he is only interested in the jab and making coin from YT.
@@dennispickard7743 Yep that is for sure.......
My Kingdom For a Horse were you jabbed before you got ill?
me/cfs is very easy to self treat.
Very interesting. Many thanks to Ondine, Vicky and John for this illuminating chat.
Thank you Dr. John Campbell for sharing all of your found knowledge 🙏and that of others.
Thanks doctor Campbell
Still watching through, but if you get the time John please do a focus on the small island of Fiji, Delta is devastating & while vaccination is getting higher the situation is bad. Two pregnant women died last night from COVID but luckily they managed to save the babies through emergency C-sections. Families are literally going hungry & have no choice but to go out into the community/work. The country's main income stream (tourism) is completely closed down, things are bad.
just wait till the pregnant women get the vaccine, the mis carriage rate is really high
@@grahamatsea3575 that's false
The Govt has failed the people! Should have had the Lockdown from the get go to prevent the spread of COVID! Virus spreading like wildfire! Very frustrating!
lol the less deadly delta is some how super deadly in fiji? get out of her, big pharma shill
@@MamguSian lol "media matters". funded by big pharma of course.
You are my most valued covid/pandemic resource. Reliable and straight forward. Thank you for providing some comfort in the form of knowledge and regularity(consistency). Best to you and your's Dr. John. 😷😷😷
You want knowledge here this is it;
Here read this long covid treatment protocol, what your Nurse wont even mention so his not interested in helping the sick;
covid19criticalcare.com/covid-19-protocols/i-recover-protocol/
So impressed by these two wonderful women. With people like this in the world, and Dr John, we have hope for the future. If it's worth anything, I bless all three
An amazing discussion - thank you John, and Ondine and Vicky for spreading the word. Official figures should be published along with the other data. The young people who have been ambivalent about the vaccine should all watch this video. It is very worrying.
Really impressive work from both young ladies. They deserve the Nobel prize.
Agreed!!! Someone needs to check this out!!! 🥂. A massive autoimmune component for sure!! It does!!
Or Baftas
I have been declared with Diastolic Dsyfunction - stiff heart after getting Covid-19 in March. So effects of long Covid for me were, muscle pain, cramps, chest pains, shortness of breath, heart palpitations, high BP, dizziness ongoing and now stiffness of the heart, anxiety and depression! Sad enough am in Kenya where no one talks or supports patients like me!
where you diagnosed post or pre vaccine?
@@elingrome5853 I have no access to vaccination since am in Kenya due to no stocks. So not had one and got Covid-19 in March 2021 and suffering long Covid. Am self diagnosing and healing by telling doctor of tests that I want done. Only taking ivermectin for now!
Here read this long covid treatment protocol, what your Nurse wont even mention so his not interested in helping the sick;
covid19criticalcare.com/covid-19-protocols/i-recover-protocol/
@@neerarattan9775 look at Dr Mobeen... he has lots on long covid... hope ivermectin helps! good luck x
If you havent been tested yet for POTS (postural orthostatic tachycardia syndrome) please look it up (if you can take your pulse it's possible to test yourself or test can be done in a doctors clinic but you will have to educate most doctors in the disorder). Its a type of dysautonomia (autonomic disfunction) which can be cased by viruses and often there can be coexisting other BP issues too. I have diastolic dysfunction and this.
Thank you Dr.Campbell!!!
I had long covid and I'm 30 and overweight, but I know people younger and terrific shape getting this. It got better and eventually resolved after a few months medication and vax. For those of you watching this in pain have hope you will recover!
@Brandon- what medication did you take? And were you unvaxx before the covid? I'm unvax and I got long covid from a mild infection back in August
@@stivii5322 How are you now?
Much gratitude as always. Thank you, all three of you, for raising awareness of this issue. The implications are profound on many levels in addition to the economic and health aspects mentioned.
I wonder why the fact that 45.000 people in the US died within 3 days of vax is getting zero coverage?
@@chrisstevens4764 It's not a fact!
Oh my Goodness!!! Am I lucky that I finally found this interview, not only that I’ve been to ER’s 3 times sent back home with weird looks from medical staff telling me that this is anxiety and that I needed Xanax to knock me out while I wasn’t able to walk straight! I must have been an academy award winner for acting up a severe headache, chills, fatigue, vomiting, diarrhea, difficulty breathing, neurological disorders, red eye and dry eye, a stroke like symptoms where I lost the use of my arm and foot for 3-4 hours, thirst like a camel waking acres in deserts… my veins in my legs were branching by the day! The world map now can be seen on the back of my thigh(have to make a joke about it) Feeling feverish, difficulty breathing, swallowing. The outbreak in rashes, hives like pattern on my back along with burns mimicking a shingles patient complaint. I’m still struggling from heart issues that many visits to cardiologist up to 4 of them that kept telling stay on colchicine, and that my pericarditis two days after the vaccine was lingering for 6 months.
Constant sleepless night with tachycardia and blood pressure fluctuations, palpitations along with irregular heartbeat. My bloated stomach and difficulty keeping up with indigestion and tenderness…
The MRI of my spine findings inflammation of many discs.
My speech is going in and out, my memory had been affected, not surprisingly after headaches that caused me to scream from the top of my lungs!!! My bladder was out of control and still having leftlower back pain not sure which organ got affected…
Nurses and physicians telling me why I didn’t get admitted to the psychiatric hospital, really!!! All these symptoms it was caused anxiety and not the other way around!!! You all out there if you can’t diagnosed something just because your ego is huge and can’t admit it don’t drug patients just because of your incompetence!
My joints are swollen, painful along my lymph nodes… I am a mess and need answers!!! please can anyone lead me to which recovery route that would be of help that will get me on the mend!
Thank you in advance!
Dr Ben Patterson, IncellDX test for inflammation to target specific treatment.
How are you doing now? ❤️
Thank you so much for this information! I looked after my Mom who had COVID in November of 2020 to keep her from going to hospital. I never tested positive, but began having chest pain in December, saw Dr. 's multiple times, been to the ER once, saw a Cardiologist, only to find out everything is WNL. We did not do an MRI, but EKG, labs and Echo. The conclusion was that I had anxiety. I still have chest pain to this day, but glad to know that my symptoms can be explained.
Thank you for this conversation. Very important.
Excellent interview, very sorry to hear about Vicky's loss. It's good to share these experiences to get the message out that illness is illness...nothing is just "in your head". Doctors, of all people, need to get with the times and act more professionally in how they interact with their patients.
My situation is very similar. I think I contracted in late February when I travelled in NYC, and it was the worst fever I ever had in my life. Of course no testing was available back in February, 2020. Since then I feel tired and feel like aged by 10-15 years.
Here read this long covid treatment protocol, what your Nurse wont even mention so his not interested in helping the sick;
covid19criticalcare.com/covid-19-protocols/i-recover-protocol/
We have the same story- contracted it late Feb in NYC, while interviewing with a Dr from NY Langone (the major EPICENTER of the US' first wave).
moral of the story: NEVER go to nyc
First, let me say thank you for all your work John, and for your contributors in this video.
I listened to this with mixed feelings. Sympathy, for Ondine and Vicky, anger that they must convince and reconvince the medical fraternity to take them seriously, and the debilitating fight to find the wherewithal to deal with the problem>
My feelings were mixed, because I have encountered all of this and more, in the problems suffered by my eldest daughter. At the age of 18 she became ill, and steadily got worse. Her symptoms these days would have provoked a potential diagnosis of Long-Covid. There were so many familiar words. My daughter suffers from many, if not all, of the same symptoms.
Eventually she was diagnosed, by a consultant, with ME/CFS. Her doctor wouldn't refer her on the NHS but would if I paid. I paid.
14 years ago.
I recognised the problems Ondine and Vicky had. Every time the GP changes, she must go through the same series of explanations again. Fortunately, the whole GP practice has the hang of it now, and she simply goes through regular tests to make sure that her symptoms are not caused by something else that has sneaked in while everyone was looking the other way.
For interest this is the NICE page showing the guidance for Diagnosis of CFS: cks.nice.org.uk/topics/tiredness-fatigue-in-adults/diagnosis/diagnosis-of-cfs/#:~:text=The%20National%20Institute%20for%20Health%20and%20Care%20Excellence,had%20a%20specific%20onset%20%28that%20is%2C%20not%20lifelong%29.
Your contributors will recognise most, if not all.
So, for 14 years my daughter has suffered all of the woes mentioned by Vicky and Ondine. Her doctors only started believing her when either myself or her boyfriend with her.
The scientific community needs to get its head around this, both for the sake of those suffering with Long Covid and those who have had ME/CFS for much longer,
You, and your audience, may have exactly the reach needed to help with this.
Please help them all.