Thank you for sharing your story. I just got diagnosed today and I’m scared to start my journey but this is inspiring and gives me hope. I appreciate you ❤
You’re so welcome. It’s normal to feel fear - sending you a big hug and good vibes. As long as you have a doctor whom you feel safe and well taken care of, and do whatever you can to be healthy in mind, body, and spirit, you’re on the right track. ❤️ 💪💫
I was actually diagnosed just today that I have Endometrial Hyperplesia and I am hopeful. Thank you for sharing. I have been so emotional all through out the day.
Thank you so much for revealing your story. I’m so glad I found you and look forward to seeing more of your insightful videos. We share similar concerns related to PCOS and endometrial hyperplasia 💓
It’s been 5 years for me on this exact same thing. I finally got cleared after Megace this month. I now am on birth control to prevent growth. Megace was fine for me too. I only had hot flashes. Congratulations on your success! It’s such a relief after getting that “all clear” results.
I have been searching for you for years. In 2015 I was diagnosed with PCOS only because I had a 9 month flow. I had a period book and logged in 258 days of being on a cycle. 4 D&C’s, 2 endo biopsy’s, prescribed both Medroxyprogesterone and tranexamic acid to possibly stop the bleeding but nothing helped until it finally stopped on its own. But my periods do come often and very irregularly. But just recently 11-29-23 I started a long flow again and 1-10-24 still going. After watching you talk about your symptoms; I brought it up to my gyny and she is confident that we can reverse this and bring my husband and I on a pregnancy journey. I am so happy to have found you, hearing your story gave me hope! Thank you so much! ❤
Im diagnose with endometrial. Hyperlasia. Myperiod is continues. Ihad 2 dnc already. After one year of having regular period. . Im. Nowon my 4.months of nonstop bleeding now.. 2 days ago i got a birthcontrol shot . Ihope it works.. Soootired of bleeding😢😢😢😢😢.already 4 years of fighting this disease.. So fed up. Too young to have this😢
I hear you. Big hugs. Four years is a long time, and based on my own experience, I’m guessing it affects the overall quality of your life. Have you seen another doctor to get a 2nd opinion?
Thank you for sharing. My journey has been similar with 3 DNC and many biopsys. After my last DNC and a couple of biopsy, i was found clear of the Complex Hyperplasia w/Atypia. Because I yet today continue to spot bleed and am now 64 yoa (situation ongoing sincelate 20s) , I am still take Mag 80 mg twice daily. My primary side effect is excessive hunger. My doc has refused to give me a hysterectomy because testing never shows any cancerous concerns. I've been on Megestrol for over 8 years. I'm very short and my weight has increased well over 200 lbs. My second concern is my very thin hair. I have decided to stop taking it on my own. This is my first week taking only the morning 80 mgs. If my bleeding doesn't return to its prior extreme status, i will stop taking it completely!
I was diagnosed today with EH and scheduled for my first biopsy next week I’m very nervous about it and praying for good results So happy for you !! Stay well !
@@junewee I went to another Dr for a second opinion and he put me on Norethindrone and decided to wait on the biopsy, but I’m still having some issues, but the bleeding is much better, he wants me to stay on this medication for another month or so to see how it helps, thanks so much for checking on me 😊
@@dustus..5684 yes I have had that since I’ve been taking it but the nurse told me that eventually it should pass and it has gotten better ! Thanks so much for checking on me ❤️
Diagnosed with endometrial hyperplasia(complex& atypical) by may end and now I'm currently on hormone therapy for six months! Fingers crossed. Your video gives me immense hope. Thank you!!
I'm currently dealing with the same thing. Going to see a gynecologist specialist in a couple weeks to see if I can get the IUD or if I'll sadly need a hysterectomy... Praying for you all 🙏🙏
I was diagnosed at age 37 with simple endometrial hyperplasia with atypia. It’s an ordeal treatment which consists of several biopsies done in the OR. I’ve finally done after taking megace for 6 months. But I was still being monitored closely since it’s not a guarantee it won’t return. My very good doctor really took good care of me and told me now she’ll monitor my breast. True enough after 2 years, I was diagnosed with stage 0 breast cancer. It’s like my worst fear of going through another round of treatment which involves surgery, radiation.
Hi, Catherine here from New Zealand. Thank you for sharing your story. I am recently diagnosed with EH w/ atypia. The fact of hearing that it is pre-cancer is already worrying me. I also have PCOS since I was 25, had all my polyps removed last April and now on progesterone hormones to help out in preventing uterine lining to be thick. Plus they can not implant my embryos because of this. I am on Progynova, hope this works after 6 months and progress to embryo transfer then. It feels good to see videos like this, I find hope. All the best for your IVF journey as well! 🙏
I'm crying and happy I came across your video. I am 65 and all this is new to me. I go in for ultra sound next and biopsy to see what my options are and doctor is advising the DNC. The other is advice in hysterectomy. Thanks for sharing your experience. It gives me hope❤🌹🙏🏽
Thanks for sharing your experience. Please keep uploading your progress as my wife is also diagnosed with this problem and we are going to start the treatment soon.
First of all I want to thank you for this video. For me I was diagnosed back on November 2018 Hyperplasia Complex with Aytepia. Then in January 2019 Uterine/Cancer however every I've been on Megace since summer of 2019 and we are not sure how much it's help. My last biopsies keep coming back as Cancer not see but my doctor still wants to preform a Hysterectomy and remove my lymph nodes. Yesterday I had a Hysteroscopy with d&c hopefully with that we get a better understanding of what's really going on. I subscribed and I've been recording my journey just need to edit and upload lol. Once again amazing video thank you. Good Luck with everything.
Alyssa. I am shocked to hear that you are Not sure what to do? if you have biopsies indicating cancer you need to make am educated decision..I know many women go on medication or Medical Iud however at some point you will need to remove your uterus. Age is key so I sense you are young so you want to preserve the options of pregnancy. I wish you the best.
@@annalore5513 I’m sorry to hear about your diagnosis … but if you have been diagnosed with cancer …shouldn’t you have a hysterectomy to stop it from spreading … may be go and speak to your friends and family friends ❤
This is so inspiring. I was diagnosed with EH with atypia. I am going 4/11 for my 3 month check, and I'm praying for a clear biopsy. I was having a lot of anxiety when I started Megace, however, I don't know if it was the medication or just the shock of the diagnosis. I am 37 years old. In the past 3 months, I lost 60 pounds and am just doing everything I can to improve my health. I'm hoping to avoid a hysterectomy, but if I need one, I want to be as healthy as possible. Thanks for sharing!
You got this! I was diagnosed in February after my d&c with Complex EH with atypia I see my specialist the 21st I know there gonna want to remove it but I want a baby first so I’m just praying I can have a baby first! We got this we are strong!!
@@MR-hk1lj I had a clear biopsy when I went for my second D&C. The doctor said he likes to see two clear biopsies. So I had a third, and they detected some hyperplasia, but no atypia. So I’m still on Megace and will have another D&C biopsy some time in January. If any hyperplasia is detected, with or without atypia, the doctor wants to do a hysterectomy.
You gave me hope, I just got told I have complex atypical hyperplasia. And I am praying that all goes well with me too. Congrats and blessings on your IVF journey.
Thank you. I completed my IVF journey, and decided to no longer continue with it even though we have not started a family. My husband and I came to a point that our life as it is is enough for us, and we do not need or want kids enough to continue the IVF. So, 3 days ago, I had a hysterectomy and I am glad to say bye to the risk of cancer. I wish you the best in your journey!
I believe it is important to also note that Endometrial Hyperplasia can occur at any age. I was diagnosed in August 2023 at age 70. Presently taking Megace 2X day. Thank you!
Hello Today I diagnosed with EH and I got so vulnerable when I heard of this.. I feel hope when I listen to your story.. Thank you for sharing your testimony..
Actually I'm completely healthy. The doctor who diagnosed this has falsely told me that I have endometrial hyperplasia cos she wanted to do some heavy procedures on me and get money.. however I checked with the other doctor and my reports came healthy and sound. So I'm completely healthy but I had the issue of endometrial thickness out of the blue which I did not get the reason for..
Hi! I am so glad to see this video. I was diagnosed yesterday and will have my fist D and C anytime soon. I am having a long period for the first time after having very light periods for 2 months so I went to see my doctor and had ultrasound. My lining is 10.6mm. I hope that it goes well for me too.
Thank you for this video. I experience heavy bleeding last month. My uterus lining is still thick and this video is very comforting to know that somehow have overcome this case.
@@MR-hk1lj hi. Its been a year. I have experienced 2 episodes of heavy bleeding this year. The first one last July, and just recently. But Im doing ok now, recovering from anemia due to the recent heavy bleeding. How about you? Hope you're doing ok. Anyway thanks for asking.
@@jekazuniega2974 I have been diagnosed with EH with atypia on Oct and was on aygestin for a month and changed to Megestrol last week. Have a follow up in March. I have a question on periods while under Megestrol. Are you also on Megestrol?
Hey braveheart thanks for sharing your story...have exact issue here from India. You gave me hope...thanks thanks 🙏 a gazillion ! Alll the best wishes for being a mom!
You are welcome! I decided to bring a mom to a dog instead, as well as a mom in a non-traditional sense (Eg with my clients and mentees), and I know I made the right decision for myself. 😊
You are brave for being patient, see your issues in a positive way, and strong faith in a sincere call for motherhood. Wish you the best. We hope that we will see again with your second baby and more children. 🤲🌹🌹🌹🤲
Wow your story is very inspiring. I wish you much success with continued healing and having your family. I was diagnosed with Endometriosis when I was 20 and I still go through challenges but I am using more natural products that allow me to be so much better from day to day. I was wondering if we can collaborate in the future. I will subscribe to your channel for updates.
I'm 39 and been bleeding heavily for the last year. Also been having difficulty with bowel and blader. So an NHS gynecologist on 10th Nov 2023, she prescribed provera and ordered ultrasound and MRI. I had been bleeding for 14 days when I had my ultrasound and endometrial thickness was 18.2mm. MRI results suggests mild adenomyosis as my uterus lining is 14mm thick and endometrium was 17mm. NHS gynecologist wrote a letter to say that she will see me in a couple of months. In the main time I went privately to sick a second opinion, had an urgent hysteroscopy a polyp was found and uterus is atroverteted retroflexed. Haven't had my biopsy results yet and thinking could I also have hyperplasia in top od adenomyosis and PCOS as well as endometriosis that I've always suspected.
Thanks for the video and for sharing your experience. My situation is quite similar to yours. I was in the process of IVF but the ultrasound showed polyps which turned out of the same sort as yours. My doctor chose for me to try hormonal IUD during the period of 6 months. Unfortunately it didn't help. The first biopsy, 3 months after the start, was clear but the second biopsy showed new EIN. So now my doctor changed the therapy and I'm on a Swedish analogue of Megace, 400mg. So it'll be another 6 months of waiting but I really want to be free from the complex hyperplasia with atypia and to be able to continue my IVF journey. Good luck to you too and to everyone who's struggling.
Thank you so much for this video, I received the same diagnosis today. And your story is identical to mine. I’m 40, and was planning on having at least 1 child, but this diagnosis made me question if it was possible. I’m seeing a specialist next month and the wait is killing me, but I’m encouraged by your story. Please update, I would really appreciate it.
am filled with joy and happiness with my family today, because of fibroids my tubes was block for 5years after using Dr Omo herbal medicine I just give birth to a boy🤱🏿last month here*❤️
@kam j I’m just seeing your comment now - thanks so much for sharing as well. I know the feeling of disappointment and hopefulness all too well. It’s an emotional rollercoaster. 🤣 How did your visit to the specialist go?
Thank you for sharing your news. Firstly, here’s a big hug. I was scared and overwhelmed at one stage as well. It is okay to feel the way you do. Let your feelings come. Listen to it, don’t fight it, don’t suppress it, don’t feed it, just let it come and let it go. Happy to share some things I’ve learnt from my journey: Take care of my mental, emotional, spiritual and physical health. They are all connected. When they are all in at least a neutral state, it can help with overall well-ness. What this looks like: - Consume healthy food and everything in moderation - Cut back on fatty food, sugar, and anything that feels excessive - Start being more physical; move your body. I did HIIT 15 mins everyday also started yoga again, and started taking the stairs instead of the elevator, and walked as often as I could. It’s a lifestyle change - Also consumed positive information for my brain and heart. Stayed positive and realistic, read up on things that were helpful, and stayed away from unhelpful, toxic people, news, situations, cut down social media. - Religiously took the medication prescribed by my doctor - meditated daily, or at least tried to - cut down on exposure to stress, and put my well-being FIRST As a result, I lost weight, felt better and stronger, more at ease, which I believe allowed my body to re-focus its energy towards healing and allowing the medication to do its job. Let me know if you have any questions. Big hug.
I had d&c last niv 2023 then was put under injectable for monitoring. 3 months later i had bleeding again and my lining was thick again ,and undergone d&c again this month. 3 days after, i bleed again. We're just waiting for the histopath result to see what type of EH i have
It was a pill (Megace) that I took a couple of times daily, and that was it! Easy. 😊 I was fortunate that I did not experience any side effects. My doctor warned me about weight gain and discomfort, but I did not experience any. ♥️♥️
Congratulations 👏 I know the pain that you might have gone through. I have been with this from past 3yrs and on progesterone treatment with IUD. All the best for your IVF journey.
I have heavy and long bleeding and diagnosed endometrium thickness is 11mm.doctor given deviry 10mg.within two days bleeding stopped.20 days tablet given.now again started bleeding with severe pain.doctor said dnc and biopsy. I am very depressed. 37 year old with two small kids.please share your experience.
I usually have a 36-37 days cycle and today was the 30th day of it and since we’re planning to start a family I went in for a TVS scan and was told by the doctor that my Endometrial lining reads 24.5 mm which she stated to be totally abnormal for my age of 33 years.She mentioned it could be a case of cystic endo hyperplasia and has asked me to wait for my next period to see how much the lining sheds. This could be a case of hormonal imbalance she said and also mentioned could lead to biopsy. She has now suggested a TVS scan on my 5th day followed by HSG test on 7th 8th and 9th day.I AM PETRIFIED OF THIS WHOLE EPISODE.
Hi. How are you you doing ? I was diagnosed with 2.0 cm uterine thickness too. Make an appointment for biopsy. My estrogens levels are high and I have cyst and fibroids .
Congrats! I have it too and I always go through terrible periods... I was wondering if you stopped the medication after those 3 months or you have to keep taking it?
Hello ma’am! Thanks for sharing your experience, so inspiring. My sister’s age is 25, two yrs back she got married, she’s been facing same difficulty since 1.5 yrs, she had diagnosed with hysteroscopy for removing polyps in uterus, since then she’s not getting periods naturally, if she take OC pills will get periods that’s it, since six months she haven’t got periods her ET is 21mm, doctor saying that you’ve to loss weight then you’ll get periods, they’re planning for children, but this issue there,
@@MR-hk1lj Hello there! Been 4 months since my operation, underwent TAHBSO at age 27. Initial biopsy i jave ENDOCA 2. after the operation, turns out it is grade1 CA.
Hi, so happy to hear your successful healing. Could you let me know the name of the medication, hormone treatment you had? I've recently been diagnosed the atypical endometriosis hyperplasia, and I don't want to remove my uterus, etc. Thank you for your help
I was diagnosed with EH in November I have to do a DNC today hence why I found your video.. about the same thing she said if it wasn’t for me wanting to have kids she would of recommend a hysterectomy instead. But we are doing the DNC putting an IUD in and every so many months have to go get a biopsy. But very nervous for my procedure today. But I’m happy it is going good for you. 🙏🏻😁
Hi Amber, thanks for sharing. All the best for your D&C today. I hope it will go smoothly and successfully. Have faith and try to keep positive. You’ve got this! 🙏❤️
Thank you for this video!! Its very encouraging to know i have other options!! I was put on IUD ..and i want to remove it and talk to my Gyno about this! I do have Hypothyroidism and Hashimotos disease 😲
@@MR-hk1lj Not good .. I did remove my IUD. Everything was OK for a few months . Up until end of last month. I Began to bleed severely and ended up in the ER for low hemoglobin and needed a transfusion. I am awaiting to see Oncologist which will be this Wednesday. Thank you for asking . HAVE A HAPPY HOLIDAY AND Happy New Year ..!!!
Im 61 post menopausal my endothial lining is at 2 cm....way too thick ....stopped my menses over 8 years ago...had a polyp on my cervix when she did pap....have bleeding some and once had the old blood clots bright red blood this past May....going fir a hysteroscopy and dnc to find out more that dr will not check my hormone levels either which i see as ludicrous...it is out of balance estrogen to progesterone that makes a woman have a thick endometrium lining
How are you doing ? I was diagnosed with 2cm uterine thickness too. My estrogen levels are high and have fibroids . Going for biopsy in the next days .
Thank you for sharing your story its inspired evryone whose having this kind of sick..ahm me also i have hyperplasia with atypia and im currently taking megestrol its my 2nd month ..it so teribble bcoz in my second month i experienced a heavy period 😢.but thanks God is stops but im scared bcoz it was almost 3 weeks befre stops😥
My pleasure. Thank you for sharing your experience as well. I’m glad that the medication is working for you. Together, our stories help to support others going through what we did. 🫶
Thank you for sharing. May i know which Gynae did you went to seek second opinion? I am thinking of seeking second opinion as the person seeing me in a trainee at the Gynaecology. Just want to gather a more experienced doctor's opinion.
Dr Arthur Tseng. His clinic is at Gleneagles Medical Centre. He is AMAZING, thorough, and has a great bedside manner. I feel very reassured under his care.
Your video is very motivating for me, I am also going through EH , I am currently on Nostra cr 15 ( prestogen ) medicine. You story made me believe that there's a cure for this. I just had one question i would be really happy if you can answer it. If a person get EH can she get pregnant normally or IVF is required?
Thank you for letting me know that my video is very motivating for you, I appreciate knowing it as it keeps me motivated to keep sharing. As for your question, I believe that every possibility is available. It all depends on your own factors and motivations, such as your body’s unique physical and energetic conditions, your age, medical history, etc. Your personal beliefs, resources, and access to healthcare specialists also play a part. I know this isn’t a straight Yes or No answer that you’re hoping for, sorry. But in summary, either way there is no guarantee. If you can, try all possible means available to you. That’s what I’m doing. Big love to you.
Congratulations on overcoming this. And hope you’re able to start your family if you haven’t already. Just a quick question when they put you on megace did you take one pill a day or more? I’ve just been prescribed megace and right now I’m taking one a day but i might have to up my dosage to 4 pills a day 🥴
Thank you, and great question… let me try and recall.. I believe it was 2 a day. I’m really not happy about popping pills either, urghhh, but a girl’s gotta do what she’s gotta do! Lol Love to you!
@@MR-hk1lj Hello 👋🏾 I’m doing well now, thanks for asking. March of this year i was diagnosed with Endometrial Cancer and that sucked. Lucky it was stage one. My last biopsy in November showed no cancer and i have the mirena iud. So that seems to be helping me for now. I have an update on my channel.
hi reese, did the mirena help you? how are you feeling now? i also have the complex hyperplasia with atypia... on megace... it is scary and a very overwhelming situation...
Hi, what a nice video :) I was diagnosed with simple hyperplasia without atypia. I too was put on progesterone. However, I am very concerned as I have been bleeding on the progesterone the entire time. Before taking it my period was missing and my endometrium was very thick, perhaps this is why. It has now reduced by 6mm but no further biopsy yet. Just wondering if you experienced any bleeding on your treatment. xx
It sounds like you and I are in the same boat. (Simple EH w/o A, put on 3 months Provera) However, the 14 days when I do take the Provera pills I stop bleeding, but as soon as I stop taking them I bleed horrendously for the whole 14 days without the pills. Like so, so much. My doctor seems so quick to push hysterectomy though and I don’t know why since the risk of cancer is so low and I’ll be menopausal in the somewhat near future (I’m 43). She said If I can do the 3 month cycle of Provera, then have a biopsy that shows the EH has reversed, then I can get an IUD to hold me over until menopause (since they work for 6-7 years now). What I don’t get is why, if I can’t tolerate the cyclical Provera without bleeding half to death every month, why not give me an IUD now? Or try something else? She’s making me feel like since I can’t do the 3 month treatment without bleeding so much I should give up and just schedule the hysterectomy. I thought this plan was my only option because I can’t get biopsied in 3 months with an iud in and would just have to remove it anyway to do the biopsy, but I’m hearing from other women that they got a biopsy with an iud in with no problem. Some others were offered an iud as first line treatment and biopsied again in 6 months. I don’t get why my doc seems in such a rush to steal my uterus. Lol.
@@MK-Hogan I am sorry to hear you are going through such an hard time. I have recently cleared my hyperplasia and I too bled when not on the pills. The withdrawal bleed can be so heavy. I really hope you get some help asap and things dont go down the hysterectomy road unless you 100% want that. xx
@@dustus..5684 Hi .. im in same boat and on IUD at the moment.. its been 3months im bleeding every day.. will it remain the same after IUD taken out? My speacialist is not helpful at all.
Wow! Thank God. I found your video n i really appreciate you share your videos. I just got to know that i have hyperplasia complex with atypia. The gynae suggest for hysterectomy but both me n my husband trying to find another way. I was lost almost just like what you had gone through before. But after listening to you there still a hope. Crossed fingers. Can share which hospital do u go for the mages?
I remember the feeling when I found out about my condition as well. Big hug. I do know that hysterectomy is ultimately what needs to happen to ensure that it never comes back, but for now, delaying it so that we can try and have a family is the short term measure. I go to Gleneagles Hospital here in Singapore.
Megace makes me fat but my skin feels beautiful. After the megace, I experienced a painful withdrawal. It was horrible, I can’t even get out of bed. It was so painful that I couldn’t stop crying. I still have many biopsies from other scare like abnormal Pap smears results and whenever there’s sudden irregular bleeding. Very traumatized by those painful biopsies.
Thank you for sharing your experience. I have heard about the negative side effects of Megace. Interesting to hear what it does to your skin, though! I’m sorry to hear about the withdrawal and other negative experiences - it is upsetting whenever I hear stories of suffering. I don’t know why we have to go through such traumatic experiences, but I am glad that you are able to share your story, and help myself and others like us know that we are not alone in our suffering. It doesn’t take away the pain, and I certainly do not wish it upon our or anyone else. I hope that your journey brings you to somewhere where you’ll find peace and comfort. ♥️
I was just diagnosed yesterday. We are ttc and now my doctor recommended hysterectomy. I'm 40 and this is my last and only chance at starting a family. 💔
@Neaj She said she's scared for me and doesn't want me to delay the hysterectomy and end up with metastatic cancer. Met with a horrible oncologist and she said we could try four months of hormone pills and try to conceive but said we would have basically a zero percent chance of having a baby. Went back to my gynecologist and told that I wanted to do the iud for six months and if I have regression then try for baby she reluctantly agreed. Seeing another oncologist next week.
I hear you. This is a tough situation, when the odds seem stacked against you. It sounds like you are sticking to your desire in the face of resistance, and that is admirable to me. It shows how much you want to start a family this way. Keep doing what feels in alignment for you, your body and your family. Much love to you. Keep us posted.
I'm just 19 years old diagnosis with PCOS when i was 15 years old and i was told since it not a big cis it will be able to be clear up with medication but no my doctor prescribed me with one medicine and told me eat this for 30 days and you'll be fine but no the medication lead to excessive bleeding about month and went to other doctor and the doctor told me i was almost killed as i was prescribed with medication to release more blood flow but with no medication to stop it .. I'm literally terrified my new doctor cure my PCOS .. it's been many years I'm suffering again with a very long period and was asked to do ultrasound this week and the result come out with thickened endometrium at 20mm i haven shown my result to my doctor as my appointment was in next week I'm literally in stress right now what if of my doctor suggested uterus biopsy I've heard that it literally hurt so bad and as a virgin i cannot imagine something's get inside me😢
I am also suffering from benign cystic hyperplasia with chronic endometrites.... Now i am on medication for six months...... My 3rd month of medication is going on... Hopeful for better results...
@@junewee thank you dear... After taking medicine for 3 months I concieved and now 5th month pregnant ❤️ i m blessed and Thankful to Allah almighty and then my doctor...
I was told I have complex endometriosis hyperplasia with atypia and now I have to go to get a biopsy every 3 months and have me on megestrol because I'm only 34 they also put me in mirena iud hoping I to get clear on pre cancer fingers cross.
Thank you for sharing your story. May I know which gynecology in Gleneagles are you consulting to? I just had my D&C last month result come out as Complex Atypical Endometrial Hyperplasia. I’m looking for second opinion.
Dr Arthur Tseng. I fully trust him. I went to him for a second opinion at first. He is so thorough, patient, and caring. Now, he’s my one and only gynaecologist.
I want to thank you for sharing this video . Thanks so much .. Because you mentioned you seek medical helps, may I know if someone told you if there are herbal remedies for this disease …. Thank you . God bless us all … 🙏
Hi, thank you so much for sharing your experience. What dose of megastrol did you take? Did you gain weight while on medicine? Did you follow any particular diet? I am so anxious reading about the medicine and the condition I am diagnosed EH with atypia
You’re welcome. I don’t remember the dosage now, unfortunately. No, I did not gain weight while on the medication. Having said that, I watched what I ate and increased my exercise (but not a crazy lot 🤣). No particular diet, just tried to be healthier with what and how much I ate. Anxiety is normal - try meditating, and journaling your feelings. I’m sending you big hugs and good vibes! ❤️💪💫
@@eimee8015 Hi, thanks for asking. It’s been 2 years and I’m well! No more abnormal bleeding or cysts, and no more medication after that first 3-month dose of Megace.
Im. Diagnosewith endometrial hyperlasia. .. Ihad 2 surgey because of my contnues bleeding. Myperiod wont stop.. After one year of surgery.. Myperiod wont stop again. Im. Onmy 4month continies bleed..now 2 days ago my obgy put me in birrhcontrol. Shot... Ihope it will. Stop.. Im. Soontiredof this ilness😢😢😢😢😢this is. My 4 years battling this disease... Bleedingggggand bleeding
I have been going through really tough time. I have been having really heavy bleeding with clots bigger than golf balls. I went to ED without any ultrasound or diagnosis. I am currently on Primolut N and Tranexamic acid tablets for 4 days. I had a stroke in 2018 so can’t stay on these for long. Going for an ultrasound tomorrow. Keeping my fingers crossed😢😢. I am really scared!! Any insights to similar conditions pls let me know.
I was recently diagnosed with Atypical endometrial hyperplasia, I see a doctor about it on the 23 this month, I pray everything goes well for me that the doctors are willing to work with me. A small part of me is afraid they push Hysterectomy because even though I'm young and want a baby, I don't have a husband yet. But your video gave me hope.
I hope it works out for you. Do not accept a hysterectomy unless it’s something you want/need - it’s your body, your call; seek a 2nd opinion from another specialist if you can so you may make an informed decision. Sending you love.
Oh boy where do I begin it been a long and hetic road. It to be noted I only kept going mainly because most doctors where not available during the "you know what time." I went to the doctor they had me do a DNC and said I had stage one uterus cancer and recommended I get surgery to remove my uterus asap. I said I rather not do that for varity of reasons and chose the hormone treatment to see if we can push it into remission that way. Which my doctor from the beginning low key breated me every visit, seemed very statue like when I tell her I felt better after the meds because it wasn't her standard go to procedure.(I also note I did see a second option doctor but he brushed me off and said get the surgery.) I had several bios each showing a diffrent degrees of the cancer. (One time she said it was gone only the next to suddenly back.) I had three MRIs sixish months apart from each other the first showed a small mass about 50% in the muscle (this was when I first started to take the meds) Now according to the MRI tech.the tumor in the second and thrid test was smaller and less in the muscle than previously which would assume means progress right? Well my doctor was very back and forth, "Oh it looks good." then "Oh well it could have been a miss read sometimes MRI arent 100% accurate we can't actually determine what going on inside you." There was also whole other slew of verbal mistreatment from some nurses, mistakes and even after fifteen months of treatment they asked who my doctor should they be sending my information to? Which has been on the paperwork I filled out countless times! They also pushed me about getting an IUD every visit which I wasn't sure about because I heard bad things about them, When she talked to me that it was my only other choice than surgery at the beginning of this year I caved and got it. Now I did my research it takes 6 months the IUD to show effects. It wasn't even three when with my last boi result she told me after 15 months she wasn't comfortable with treating me this way and get the surgery now. By this time the illness that should not be named had died down in my area and new doctors of her type opened up. I stopped going to her and am switching to another soon. Will update on the matter after that.
All the best for your biopsy. I’m sorry to hear you’re feeling terrified and I wish I could take that feeling away, but it is not my job to take away from your experience. Big hug. Know that your fears aren’t real. This too shall pass. Big hug, my dear.
Hello.. Can you please share the meds that you take and your daily routine? My wife was diagnosed with Simple Hyperplasia with Atypia and I want to help her recover from it. Thanks in advance and more blessings to you and your family.
I was on Megase 160mg x 3 per day. I am mindful with what I eat so that I don’t eat more than I need and make healthy choices (but I do give my treats now and then). I do some form of exercise everyday, be it a walk, yoga or floor exercises. I also went for acupuncture once a week. It’s great that you’re being such a supportive husband. It’s best you seek her doctor’s recommendation on medication that’s suitable for your wife’s condition as everyone is different - but you probably know that already. 😊 Your wife’s emotional well-being is also a vital part of the equation. Check in with her and how she feels, and ask her what she needs from you. I’m sure she’ll really appreciate that. All the best!
I am 23 years old, I have always had extremely heavy periods, I have many cysts on both ovaries but not huge cysts so doc isnt doing anything about it. I am on BC for my heavy periods.. I have a hysteroscopy D&C surgery coming up because in my last ultrasound my uterus lining is 11.84 and I am terrified... hoping for the best....
D&C is “A dilation and curettage procedure, also called a D&C, is a surgical procedure in which the cervix (lower, narrow part of the uterus) is dilated (expanded) so that the uterine lining (endometrium) can be scraped with a curette (spoon-shaped instrument) to remove abnormal tissues.” (Source: www.hopkinsmedicine.org/health/treatment-tests-and-therapies/dilation-and-curettage-d-and-c#:~:text=A%20dilation%20and%20curettage%20procedure,instrument)%20to%20remove%20abnormal%20tissues.) The biopsy is done after the D&C surgery, using the samples collected from the procedure. I am unable to recall the dosage of Megase, sorry.
Yes, it is possible for EH to come back. Hysterectomy is the surest way to prevent having it again. However, if one is trying to try for kids, the progesterone produced naturally or through drugs during the trying to conceive journey (eg IVF) would likely keep the EH away. This is what’s happening in my personal experience. I’ve been off Megace for 7 months and going through IVF, and it does not seem that EH has returned.
I’m glad I found your video. After my perlvic + transvaginal USS it turned out I have endometrial hyperplasia. I am waiting for biopsy schedule which was referred as urgent then DNC as I was told by my gyne. Just like you, we are trying to have a second baby but here I am going through this trial and doing a lot of research about this.
Thank you for sharing your story. I just got diagnosed today and I’m scared to start my journey but this is inspiring and gives me hope. I appreciate you ❤
You’re so welcome. It’s normal to feel fear - sending you a big hug and good vibes. As long as you have a doctor whom you feel safe and well taken care of, and do whatever you can to be healthy in mind, body, and spirit, you’re on the right track. ❤️ 💪💫
I was just diagnosed yesterday! I’m worried too! Glad to know I am not alone!
@@traciedwards7809We are here, alongside you. ❤
I was actually diagnosed just today that I have Endometrial Hyperplesia and I am hopeful. Thank you for sharing. I have been so emotional all through out the day.
It's very common but needs monitoring. Good luck!
Thank you for sharing, I just got diagnosed, I'm 24 and I am so scared, but your story gives me hope!
You’re welcome. It’s okay to feel the fear, it’s normal. And you’ve got what it takes to get through this!
Thank you so much for revealing your story. I’m so glad I found you and look forward to seeing more of your insightful videos. We share similar concerns related to PCOS and endometrial hyperplasia 💓
Omg I just cried seeing your video....happy to know that you are free from EH...I wish I can find the same light too and soon...
Thank you for taking the time to comment. My heart feels for you, and I wish that you will find that light as well soon. ❤️
It’s been 5 years for me on this exact same thing. I finally got cleared after Megace this month. I now am on birth control to prevent growth. Megace was fine for me too. I only had hot flashes. Congratulations on your success! It’s such a relief after getting that “all clear” results.
I have been searching for you for years. In 2015 I was diagnosed with PCOS only because I had a 9 month flow. I had a period book and logged in 258 days of being on a cycle. 4 D&C’s, 2 endo biopsy’s, prescribed both Medroxyprogesterone and tranexamic acid to possibly stop the bleeding but nothing helped until it finally stopped on its own. But my periods do come often and very irregularly. But just recently 11-29-23 I started a long flow again and 1-10-24 still going. After watching you talk about your symptoms; I brought it up to my gyny and she is confident that we can reverse this and bring my husband and I on a pregnancy journey.
I am so happy to have found you, hearing your story gave me hope! Thank you so much! ❤
You are so welcome. I wish you the best in your journey. ♥️
Im diagnose with endometrial. Hyperlasia. Myperiod is continues. Ihad 2 dnc already. After one year of having regular period. . Im. Nowon my 4.months of nonstop bleeding now.. 2 days ago i got a birthcontrol shot . Ihope it works.. Soootired of bleeding😢😢😢😢😢.already 4 years of fighting this disease.. So fed up. Too young to have this😢
I hear you. Big hugs. Four years is a long time, and based on my own experience, I’m guessing it affects the overall quality of your life. Have you seen another doctor to get a 2nd opinion?
Thank you for sharing. My journey has been similar with 3 DNC and many biopsys. After my last DNC and a couple of biopsy, i was found clear of the Complex Hyperplasia w/Atypia. Because I yet today continue to spot bleed and am now 64 yoa (situation ongoing sincelate 20s) , I am still take Mag 80 mg twice daily. My primary side effect is excessive hunger. My doc has refused to give me a hysterectomy because testing never shows any cancerous concerns. I've been on Megestrol for over 8 years. I'm very short and my weight has increased well over 200 lbs. My second concern is my very thin hair.
I have decided to stop taking it on my own. This is my first week taking only the morning 80 mgs. If my bleeding doesn't return to its prior extreme status, i will stop taking it completely!
I was diagnosed today with EH and scheduled for my first biopsy next week I’m very nervous about it and praying for good results
So happy for you !! Stay well !
Thanks for your kind wishes. All the best to you. You’ve got this! ❤️
Checking in with you, how did your biopsy go? How are you now?
@@junewee I went to another Dr for a second opinion and he put me on Norethindrone and decided to wait on the biopsy, but I’m still having some issues, but the bleeding is much better, he wants me to stay on this medication for another month or so to see how it helps, thanks so much for checking on me 😊
@@melissaLrand Hi, how are you since taking Northisterone? Did you notice any spotting that was a daily issue in the first 3 months? xx
@@dustus..5684 yes I have had that since I’ve been taking it but the nurse told me that eventually it should pass and it has gotten better !
Thanks so much for checking on me ❤️
Diagnosed with endometrial hyperplasia(complex& atypical) by may end and now I'm currently on hormone therapy for six months! Fingers crossed. Your video gives me immense hope. Thank you!!
My pleasure. Hope it works out for you too!
I'm currently dealing with the same thing. Going to see a gynecologist specialist in a couple weeks to see if I can get the IUD or if I'll sadly need a hysterectomy... Praying for you all 🙏🙏
Hi, how is hormone theraphy done?
@@nyes8 Progesterone Tablets for suc months
Progesterone tab needs a doctors prescription?
I was diagnosed at age 37 with simple endometrial hyperplasia with atypia. It’s an ordeal treatment which consists of several biopsies done in the OR. I’ve finally done after taking megace for 6 months. But I was still being monitored closely since it’s not a guarantee it won’t return. My very good doctor really took good care of me and told me now she’ll monitor my breast. True enough after 2 years, I was diagnosed with stage 0 breast cancer. It’s like my worst fear of going through another round of treatment which involves surgery, radiation.
That makes me sad, to know that you’ve had to go through these experiences over these years. How are you doing now, dear?
What could be the possible cause of your breast cancer? Megace?
Hi, Catherine here from New Zealand. Thank you for sharing your story. I am recently diagnosed with EH w/ atypia. The fact of hearing that it is pre-cancer is already worrying me. I also have PCOS since I was 25, had all my polyps removed last April and now on progesterone hormones to help out in preventing uterine lining to be thick. Plus they can not implant my embryos because of this. I am on Progynova, hope this works after 6 months and progress to embryo transfer then. It feels good to see videos like this, I find hope. All the best for your IVF journey as well! 🙏
I'm crying and happy I came across your video. I am 65 and all this is new to me. I go in for ultra sound next and biopsy to see what my options are and doctor is advising the DNC. The other is advice in hysterectomy.
Thanks for sharing your experience. It gives me hope❤🌹🙏🏽
You don't automatically have to have a hysterectomy. There are other options....blessings!
Do you have any symptoms like PMB or spotting?
@@mitchhills4747like what? Please share. I was also just told d&c or hysterectomy but still awaiting the results of endometrial biopsies
Thanks for sharing your experience. Please keep uploading your progress as my wife is also diagnosed with this problem and we are going to start the treatment soon.
My pleasure. All the best to you and your wife. I posted an update video recently. Check it out!
First of all I want to thank you for this video. For me I was diagnosed back on November 2018 Hyperplasia Complex with Aytepia. Then in January 2019 Uterine/Cancer however every I've been on Megace since summer of 2019 and we are not sure how much it's help. My last biopsies keep coming back as Cancer not see but my doctor still wants to preform a Hysterectomy and remove my lymph nodes. Yesterday I had a Hysteroscopy with d&c hopefully with that we get a better understanding of what's really going on. I subscribed and I've been recording my journey just need to edit and upload lol. Once again amazing video thank you. Good Luck with everything.
You’re so welcome! All the best in your journey.
Alyssa. I am shocked to hear that you are Not sure what to do? if you have biopsies indicating cancer you need to make am educated decision..I know many women go on medication or Medical Iud however at some point you will need to remove your uterus. Age is key so I sense you are young so you want to preserve the options of pregnancy. I wish you the best.
Alyssa Baches Thank you for sharing !!! May I please know how you are doing ?
@@annalore5513
I’m sorry to hear about your diagnosis … but if you have been diagnosed with cancer …shouldn’t you have a hysterectomy to stop it from spreading … may be go and speak to your friends and family friends ❤
This is so inspiring. I was diagnosed with EH with atypia. I am going 4/11 for my 3 month check, and I'm praying for a clear biopsy. I was having a lot of anxiety when I started Megace, however, I don't know if it was the medication or just the shock of the diagnosis. I am 37 years old. In the past 3 months, I lost 60 pounds and am just doing everything I can to improve my health. I'm hoping to avoid a hysterectomy, but if I need one, I want to be as healthy as possible. Thanks for sharing!
You got this! I was diagnosed in February after my d&c with Complex EH with atypia I see my specialist the 21st I know there gonna want to remove it but I want a baby first so I’m just praying I can have a baby first! We got this we are strong!!
My wife is experiencing that right now
Pls help us
What are going to do...
Hi how are you doing now?
@@3purpleskulls hi how are you doing now
@@MR-hk1lj I had a clear biopsy when I went for my second D&C. The doctor said he likes to see two clear biopsies. So I had a third, and they detected some hyperplasia, but no atypia. So I’m still on Megace and will have another D&C biopsy some time in January. If any hyperplasia is detected, with or without atypia, the doctor wants to do a hysterectomy.
You gave me hope, I just got told I have complex atypical hyperplasia. And I am praying that all goes well with me too. Congrats and blessings on your IVF journey.
Thank you. I completed my IVF journey, and decided to no longer continue with it even though we have not started a family. My husband and I came to a point that our life as it is is enough for us, and we do not need or want kids enough to continue the IVF. So, 3 days ago, I had a hysterectomy and I am glad to say bye to the risk of cancer. I wish you the best in your journey!
I believe it is important to also note that Endometrial Hyperplasia can occur at any age. I was diagnosed in August 2023 at age 70. Presently taking Megace 2X day. Thank you!
Did you have any symptoms like PMB or spotting?
@@Bujji0423 Yes, both.
@@bethmarkmorton8147 thank you for responding .. did you have D&C?
Hello
Today I diagnosed with EH and I got so vulnerable when I heard of this.. I feel hope when I listen to your story.. Thank you for sharing your testimony..
You’re welcome. Thank you for sharing. I wish you the best in your journey. ❤️
Actually I'm completely healthy.
The doctor who diagnosed this has falsely told me that I have endometrial hyperplasia cos she wanted to do some heavy procedures on me and get money.. however I checked with the other doctor and my reports came healthy and sound. So I'm completely healthy but I had the issue of endometrial thickness out of the blue which I did not get the reason for..
Sorry to hear that you had a false alarm, but do great to know that you’re okay! 😊
Hi! I am so glad to see this video. I was diagnosed yesterday and will have my fist D and C anytime soon. I am having a long period for the first time after having very light periods for 2 months so I went to see my doctor and had ultrasound. My lining is 10.6mm. I hope that it goes well for me too.
Thank you for this video. I experience heavy bleeding last month. My uterus lining is still thick and this video is very comforting to know that somehow have overcome this case.
My pleasure, happy to be able to help this way. Take care.
Hi how are you doing now?
@@MR-hk1lj hi. Its been a year. I have experienced 2 episodes of heavy bleeding this year. The first one last July, and just recently. But Im doing ok now, recovering from anemia due to the recent heavy bleeding. How about you? Hope you're doing ok. Anyway thanks for asking.
@@jekazuniega2974 I have been diagnosed with EH with atypia on Oct and was on aygestin for a month and changed to Megestrol last week. Have a follow up in March. I have a question on periods while under Megestrol. Are you also on Megestrol?
@@MR-hk1lj I take provera for 10days and hemostan for the suceeding days. This is what they prescribed.
Hey braveheart thanks for sharing your story...have exact issue here from India. You gave me hope...thanks thanks 🙏 a gazillion !
Alll the best wishes for being a mom!
You are welcome! I decided to bring a mom to a dog instead, as well as a mom in a non-traditional sense (Eg with my clients and mentees), and I know I made the right decision for myself. 😊
Waiting for the results of endometrial biopsy. Thank u very much. I feel encouraged.
My pleasure. Staying positive helps!
You are brave for being patient, see your issues in a positive way, and strong faith in a sincere call for motherhood. Wish you the best. We hope that we will see again with your second baby and more children. 🤲🌹🌹🌹🤲
Thank you so much for your kind words. ❤️
Wow your story is very inspiring. I wish you much success with continued healing and having your family. I was diagnosed with Endometriosis when I was 20 and I still go through challenges but I am using more natural products that allow me to be so much better from day to day. I was wondering if we can collaborate in the future. I will subscribe to your channel for updates.
Thank you! Perhaps we can collaborate one day. ☺️
I'm 39 and been bleeding heavily for the last year. Also been having difficulty with bowel and blader. So an NHS gynecologist on 10th Nov 2023, she prescribed provera and ordered ultrasound and MRI. I had been bleeding for 14 days when I had my ultrasound and endometrial thickness was 18.2mm. MRI results suggests mild adenomyosis as my uterus lining is 14mm thick and endometrium was 17mm. NHS gynecologist wrote a letter to say that she will see me in a couple of months. In the main time I went privately to sick a second opinion, had an urgent hysteroscopy a polyp was found and uterus is atroverteted retroflexed. Haven't had my biopsy results yet and thinking could I also have hyperplasia in top od adenomyosis and PCOS as well as endometriosis that I've always suspected.
How are you now?
Thanks for sharing your journey. It is worrying with all the symptoms and results. How are you now?
This video gives me courage.❤
Thanks for the video and for sharing your experience. My situation is quite similar to yours. I was in the process of IVF but the ultrasound showed polyps which turned out of the same sort as yours. My doctor chose for me to try hormonal IUD during the period of 6 months. Unfortunately it didn't help. The first biopsy, 3 months after the start, was clear but the second biopsy showed new EIN. So now my doctor changed the therapy and I'm on a Swedish analogue of Megace, 400mg. So it'll be another 6 months of waiting but I really want to be free from the complex hyperplasia with atypia and to be able to continue my IVF journey. Good luck to you too and to everyone who's struggling.
You’re welcome. Thanks for sharing your experience too. How’s it going for you now?
I do have this as well. And pcos. Do you think it’s possible to get pregnant naturally after endometrial hyperplasia is reversed ?
Thank you so much for this video, I received the same diagnosis today. And your story is identical to mine. I’m 40, and was planning on having at least 1 child, but this diagnosis made me question if it was possible. I’m seeing a specialist next month and the wait is killing me, but I’m encouraged by your story. Please update, I would really appreciate it.
am filled with joy and happiness with my family today, because of fibroids my tubes was block for 5years after using Dr Omo herbal medicine I just give birth to a boy🤱🏿last month here*❤️
@@rhondapagan5759 congratulations!!! Thank you for sharing.
@kam j I’m just seeing your comment now - thanks so much for sharing as well. I know the feeling of disappointment and hopefulness all too well. It’s an emotional rollercoaster. 🤣 How did your visit to the specialist go?
Same.
diagnosed with the same. it is scary and overwhelming.. hope you can share more things we can do to overcome it.
Thank you for sharing your news. Firstly, here’s a big hug.
I was scared and overwhelmed at one stage as well. It is okay to feel the way you do. Let your feelings come. Listen to it, don’t fight it, don’t suppress it, don’t feed it, just let it come and let it go.
Happy to share some things I’ve learnt from my journey:
Take care of my mental, emotional, spiritual and physical health.
They are all connected. When they are all in at least a neutral state, it can help with overall well-ness.
What this looks like:
- Consume healthy food and everything in moderation
- Cut back on fatty food, sugar, and anything that feels excessive
- Start being more physical; move your body. I did HIIT 15 mins everyday also started yoga again, and started taking the stairs instead of the elevator, and walked as often as I could. It’s a lifestyle change
- Also consumed positive information for my brain and heart. Stayed positive and realistic, read up on things that were helpful, and stayed away from unhelpful, toxic people, news, situations, cut down social media.
- Religiously took the medication prescribed by my doctor
- meditated daily, or at least tried to
- cut down on exposure to stress, and put my well-being FIRST
As a result, I lost weight, felt better and stronger, more at ease, which I believe allowed my body to re-focus its energy towards healing and allowing the medication to do its job.
Let me know if you have any questions.
Big hug.
@@junewee thank you. do you have messenger? wanted to ask you a question. thank you
You may email me at hello@junewee.com
I had d&c last niv 2023 then was put under injectable for monitoring. 3 months later i had bleeding again and my lining was thick again ,and undergone d&c again this month. 3 days after, i bleed again. We're just waiting for the histopath result to see what type of EH i have
Yes thanks for sharing. Can you share a lil more about how was the hormone therapy each day??❤❤
It was a pill (Megace) that I took a couple of times daily, and that was it! Easy. 😊 I was fortunate that I did not experience any side effects. My doctor warned me about weight gain and discomfort, but I did not experience any. ♥️♥️
Congratulations 👏 I know the pain that you might have gone through. I have been with this from past 3yrs and on progesterone treatment with IUD. All the best for your IVF journey.
I have heavy and long bleeding and diagnosed endometrium thickness is 11mm.doctor given deviry 10mg.within two days bleeding stopped.20 days tablet given.now again started bleeding with severe pain.doctor said dnc and biopsy. I am very depressed. 37 year old with two small kids.please share your experience.
Thank you so much. I can always use the encouragement and reminder. ☺️
I usually have a 36-37 days cycle and today was the 30th day of it and since we’re planning to start a family I went in for a TVS scan and was told by the doctor that my Endometrial lining reads 24.5 mm which she stated to be totally abnormal for my age of 33 years.She mentioned it could be a case of cystic endo hyperplasia and has asked me to wait for my next period to see how much the lining sheds. This could be a case of hormonal imbalance she said and also mentioned could lead to biopsy. She has now suggested a TVS scan on my 5th day followed by HSG test on 7th 8th and 9th day.I AM PETRIFIED OF THIS WHOLE EPISODE.
It is absolutely normal to feel fear in the face of the unknown. But I know you will be able to handle it. Big hug. How are you now?
Hi. How are you you doing ?
I was diagnosed with 2.0 cm uterine thickness too. Make an appointment for biopsy.
My estrogens levels are high and I have cyst and fibroids .
Your story gives me hope ❤
Thank you for letting me know that. I send you healing vibes.
Congratulations!
Thank you!
Congrats! I have it too and I always go through terrible periods... I was wondering if you stopped the medication after those 3 months or you have to keep taking it?
Thank you! I stopped as I started IVF after that.
Yay!!!! So happy for you!!
Thank you!
Whats the medicine thanks and congrats 🙏🏻
Hello ma’am! Thanks for sharing your experience, so inspiring. My sister’s age is 25, two yrs back she got married, she’s been facing same difficulty since 1.5 yrs, she had diagnosed with hysteroscopy for removing polyps in uterus, since then she’s not getting periods naturally, if she take OC pills will get periods that’s it, since six months she haven’t got periods her ET is 21mm, doctor saying that you’ve to loss weight then you’ll get periods, they’re planning for children, but this issue there,
My pleasure. Thanks for reaching out. I hope your sister succeeds with what she wants.
I don't know if you can read this but I can relate. Im going in for my checkup up tomorrow. Your situation is what I am experiencing.
Hi how are you doing
@@MR-hk1lj Hello there! Been 4 months since my operation, underwent TAHBSO at age 27. Initial biopsy i jave ENDOCA 2. after the operation, turns out it is grade1 CA.
@@Justfloating919 I am so sorry you had to go through this!
@@MR-hk1lj Still grateful though. I dont have to undergo chemo and radiation.
Big hug to you.
Thank u for that encouraging message
You’re very welcome. 🫶
Thanks you for sharing your story. Along with medicines, did you make any diet or lifestyle changes which would have helped in your journey?
Thank you for sharing ma'am,now I know,and have a learn for me god bless you 🙏🙏
You’re welcome, Jenwill.
Hi, so happy to hear your successful healing. Could you let me know the name of the medication, hormone treatment you had? I've recently been diagnosed the atypical endometriosis hyperplasia, and I don't want to remove my uterus, etc. Thank you for your help
Megace
It may be necessary to remove as it can develop into cancer sooner or later.
@@juneweeI think megace is not available here in the Philippines..don’t know.. hope there is megace.. I really don’t want to remove my uterus
@@patreguyalkarlajunepatrici8903I hear you. Check with your doctor, and if it’s not available, perhaps there are other alternatives.
I was diagnosed with EH in November I have to do a DNC today hence why I found your video.. about the same thing she said if it wasn’t for me wanting to have kids she would of recommend a hysterectomy instead. But we are doing the DNC putting an IUD in and every so many months have to go get a biopsy. But very nervous for my procedure today. But I’m happy it is going good for you. 🙏🏻😁
Hi Amber, thanks for sharing. All the best for your D&C today. I hope it will go smoothly and successfully. Have faith and try to keep positive. You’ve got this! 🙏❤️
I’m in the same boat at you I hope everything went well !!
I crying every night because of this illness, mind you share what diet you eat and how you manage your lifestyle with this illness
This is exactly what I am going thru right now!
Sending you healing vibes.
I'm going through this now 😢😢😢 its terrible. Its life altering. My life is very difficult right now. I am so scared of the d&c.
Big hug. How are you now?
Waiting for your update girl. Hope you are doing great. Stay blessed
Thank you.
Thank you for this video!! Its very encouraging to know i have other options!! I was put on IUD ..and i want to remove it and talk to my Gyno about this! I do have Hypothyroidism and Hashimotos disease 😲
Hi how are you doing now?
@@MR-hk1lj Not good .. I did remove my IUD. Everything was OK for a few months . Up until end of last month. I Began to bleed severely and ended up in the ER for low hemoglobin and needed a transfusion. I am awaiting to see Oncologist which will be this Wednesday. Thank you for asking . HAVE A HAPPY HOLIDAY AND Happy New Year ..!!!
@@verlaamos9210 sorry to hear ! More energy to you. Hope things get better very soon🙏🏻
What is the mcgee that you were mentioning may i ask? It is a type of hormone medication? Also, did you actually lose weight to reverse this disorder?
Thank God!!!! For your bless story. Thank you Jesus
You’re very welcome!
Im 61 post menopausal my endothial lining is at 2 cm....way too thick ....stopped my menses over 8 years ago...had a polyp on my cervix when she did pap....have bleeding some and once had the old blood clots bright red blood this past May....going fir a hysteroscopy and dnc to find out more that dr will not check my hormone levels either which i see as ludicrous...it is out of balance estrogen to progesterone that makes a woman have a thick endometrium lining
How are you doing now?
How are you doing ?
I was diagnosed with 2cm uterine thickness too. My estrogen levels are high and have fibroids . Going for biopsy in the next days .
Thank you for sharing your story its inspired evryone whose having this kind of sick..ahm me also i have hyperplasia with atypia and im currently taking megestrol its my 2nd month ..it so teribble bcoz in my second month i experienced a heavy period 😢.but thanks God is stops but im scared bcoz it was almost 3 weeks befre stops😥
My pleasure. Thank you for sharing your experience as well. I’m glad that the medication is working for you. Together, our stories help to support others going through what we did. 🫶
thank you for sharing with us. I thought I was alone. This made me feel good to know it is not just me.
I also had same condition i took ayurved herbal medicines from India. Now im okk. If u want i wil share that dr details okk
Hi @amritha please share what ayurvedic medicine u took
Thank you for sharing. May i know which Gynae did you went to seek second opinion? I am thinking of seeking second opinion as the person seeing me in a trainee at the Gynaecology. Just want to gather a more experienced doctor's opinion.
Dr Arthur Tseng. His clinic is at Gleneagles Medical Centre. He is AMAZING, thorough, and has a great bedside manner. I feel very reassured under his care.
Your video is very motivating for me, I am also going through EH , I am currently on Nostra cr 15 ( prestogen ) medicine. You story made me believe that there's a cure for this. I just had one question i would be really happy if you can answer it. If a person get EH can she get pregnant normally or IVF is required?
Thank you for letting me know that my video is very motivating for you, I appreciate knowing it as it keeps me motivated to keep sharing. As for your question, I believe that every possibility is available. It all depends on your own factors and motivations, such as your body’s unique physical and energetic conditions, your age, medical history, etc. Your personal beliefs, resources, and access to healthcare specialists also play a part. I know this isn’t a straight Yes or No answer that you’re hoping for, sorry. But in summary, either way there is no guarantee. If you can, try all possible means available to you. That’s what I’m doing. Big love to you.
Congratulations on overcoming this. And hope you’re able to start your family if you haven’t already. Just a quick question when they put you on megace did you take one pill a day or more?
I’ve just been prescribed megace and right now I’m taking one a day but i might have to up my dosage to 4 pills a day 🥴
Thank you, and great question… let me try and recall.. I believe it was 2 a day. I’m really not happy about popping pills either, urghhh, but a girl’s gotta do what she’s gotta do! Lol Love to you!
Hi how are you doing now?
@@MR-hk1lj Hello 👋🏾 I’m doing well now, thanks for asking. March of this year i was diagnosed with Endometrial Cancer and that sucked. Lucky it was stage one. My last biopsy in November showed no cancer and i have the mirena iud. So that seems to be helping me for now. I have an update on my channel.
@@ReeseTv_ thanks for the update Reese I will follow your updates
hi reese, did the mirena help you? how are you feeling now? i also have the complex hyperplasia with atypia... on megace... it is scary and a very overwhelming situation...
Hi, what a nice video :) I was diagnosed with simple hyperplasia without atypia. I too was put on progesterone. However, I am very concerned as I have been bleeding on the progesterone the entire time. Before taking it my period was missing and my endometrium was very thick, perhaps this is why. It has now reduced by 6mm but no further biopsy yet. Just wondering if you experienced any bleeding on your treatment. xx
It sounds like you and I are in the same boat. (Simple EH w/o A, put on 3 months Provera) However, the 14 days when I do take the Provera pills I stop bleeding, but as soon as I stop taking them I bleed horrendously for the whole 14 days without the pills. Like so, so much. My doctor seems so quick to push hysterectomy though and I don’t know why since the risk of cancer is so low and I’ll be menopausal in the somewhat near future (I’m 43). She said If I can do the 3 month cycle of Provera, then have a biopsy that shows the EH has reversed, then I can get an IUD to hold me over until menopause (since they work for 6-7 years now). What I don’t get is why, if I can’t tolerate the cyclical Provera without bleeding half to death every month, why not give me an IUD now? Or try something else? She’s making me feel like since I can’t do the 3 month treatment without bleeding so much I should give up and just schedule the hysterectomy. I thought this plan was my only option because I can’t get biopsied in 3 months with an iud in and would just have to remove it anyway to do the biopsy, but I’m hearing from other women that they got a biopsy with an iud in with no problem. Some others were offered an iud as first line treatment and biopsied again in 6 months. I don’t get why my doc seems in such a rush to steal my uterus. Lol.
@@MK-Hogan I am sorry to hear you are going through such an hard time. I have recently cleared my hyperplasia and I too bled when not on the pills. The withdrawal bleed can be so heavy. I really hope you get some help asap and things dont go down the hysterectomy road unless you 100% want that. xx
@@dustus..5684 Hi .. im in same boat and on IUD at the moment.. its been 3months im bleeding every day.. will it remain the same after IUD taken out? My speacialist is not helpful at all.
@@bianoor8668 I didn't have IUD just the pills. I'm all clear now. Good luck.
@Dustus, thank you for your kind words and wisdom. I did not experience any bleeding during my treatment. Glad to hear you’re all clear now. xx
Wow! Thank God. I found your video n i really appreciate you share your videos. I just got to know that i have hyperplasia complex with atypia. The gynae suggest for hysterectomy but both me n my husband trying to find another way. I was lost almost just like what you had gone through before. But after listening to you there still a hope. Crossed fingers. Can share which hospital do u go for the mages?
I remember the feeling when I found out about my condition as well. Big hug. I do know that hysterectomy is ultimately what needs to happen to ensure that it never comes back, but for now, delaying it so that we can try and have a family is the short term measure. I go to Gleneagles Hospital here in Singapore.
@@junewee Hi June, big Thanks for your big hug n kind reply.
I hope for the best though.
Im going through the same thing right now. Just had a d&c a couple weeks ago
Thanks for sharing your story!
Did you do anything else with Megace, like take supplements or?
My pleasure. I took probiotic supplements that my gynaecologist prescribed as well.
Megace makes me fat but my skin feels beautiful. After the megace, I experienced a painful withdrawal. It was horrible, I can’t even get out of bed. It was so painful that I couldn’t stop crying. I still have many biopsies from other scare like abnormal Pap smears results and whenever there’s sudden irregular bleeding. Very traumatized by those painful biopsies.
Thank you for sharing your experience. I have heard about the negative side effects of Megace. Interesting to hear what it does to your skin, though! I’m sorry to hear about the withdrawal and other negative experiences - it is upsetting whenever I hear stories of suffering. I don’t know why we have to go through such traumatic experiences, but I am glad that you are able to share your story, and help myself and others like us know that we are not alone in our suffering. It doesn’t take away the pain, and I certainly do not wish it upon our or anyone else. I hope that your journey brings you to somewhere where you’ll find peace and comfort. ♥️
I was just diagnosed yesterday. We are ttc and now my doctor recommended hysterectomy. I'm 40 and this is my last and only chance at starting a family. 💔
@Neaj She said she's scared for me and doesn't want me to delay the hysterectomy and end up with metastatic cancer. Met with a horrible oncologist and she said we could try four months of hormone pills and try to conceive but said we would have basically a zero percent chance of having a baby. Went back to my gynecologist and told that I wanted to do the iud for six months and if I have regression then try for baby she reluctantly agreed. Seeing another oncologist next week.
I hear you. This is a tough situation, when the odds seem stacked against you. It sounds like you are sticking to your desire in the face of resistance, and that is admirable to me. It shows how much you want to start a family this way. Keep doing what feels in alignment for you, your body and your family. Much love to you. Keep us posted.
Is it possible to freeze your eggs and find a surrogate to carry your baby?
Thankyou for sharing ❤🙏🏽❤️
I'm just 19 years old diagnosis with PCOS when i was 15 years old and i was told since it not a big cis it will be able to be clear up with medication but no my doctor prescribed me with one medicine and told me eat this for 30 days and you'll be fine but no the medication lead to excessive bleeding about month and went to other doctor and the doctor told me i was almost killed as i was prescribed with medication to release more blood flow but with no medication to stop it .. I'm literally terrified my new doctor cure my PCOS .. it's been many years I'm suffering again with a very long period and was asked to do ultrasound this week and the result come out with thickened endometrium at 20mm i haven shown my result to my doctor as my appointment was in next week I'm literally in stress right now what if of my doctor suggested uterus biopsy I've heard that it literally hurt so bad and as a virgin i cannot imagine something's get inside me😢
Hi, I’m also same situation as you. How are you dealing with it now?
Hi, you are a courageous girl.
Hey, that’s so kind of you. Thanks!
Hi. How's your journey on D&C procedure? Is it painful?
I am also suffering from benign cystic hyperplasia with chronic endometrites.... Now i am on medication for six months...... My 3rd month of medication is going on... Hopeful for better results...
I hope you’re feeling better now. Big hug.
@@junewee thank you dear... After taking medicine for 3 months I concieved and now 5th month pregnant ❤️ i m blessed and Thankful to Allah almighty and then my doctor...
@@ishratfatima2015 that’s wonderful! Congratulations!!
@@junewee Thank u so much ❤️
@@ishratfatima2015🙏🙏🙏
Hi, thanks for this video. If i may ask, how thick was your lining in the initial biopsy/ultrasound?
It’s been quite a long time, so I can recall. Sorry. If I find my medical history results, I’ll let you know.
I was told I have complex endometriosis hyperplasia with atypia and now I have to go to get a biopsy every 3 months and have me on megestrol because I'm only 34 they also put me in mirena iud hoping I to get clear on pre cancer fingers cross.
All the best to you! 🤗
How have you neen doin?
Hai,dear.myself 39 year old female, mother of two, going through complex EH without atypical cells,worst phase of life.
Big hug. I hope you have medical support to help you through this. 🫶
Thank you 🙏
You are welcome.
Same 4 werks and i have slammy period. And i havehyper lasia without atypia. But my linen is thicker
Thank you for sharing your story. May I know which gynecology in Gleneagles are you consulting to? I just had my D&C last month result come out as Complex Atypical Endometrial Hyperplasia. I’m looking for second opinion.
Dr Arthur Tseng. I fully trust him. I went to him for a second opinion at first. He is so thorough, patient, and caring. Now, he’s my one and only gynaecologist.
@@junewee thank you for sharing. Wishing you all the best on your IVF, mine was postponed due to my hyperplasia condition.
I want to thank you for sharing this video . Thanks so much .. Because you mentioned you seek medical helps, may I know if someone told you if there are herbal remedies for this disease …. Thank you . God bless us all … 🙏
My pleasure. Yes, I did go for acupuncture and take traditional Chinese medicine herbal treatments as well to complement my Western medical protocol.
Hi, thank you so much for sharing your experience. What dose of megastrol did you take? Did you gain weight while on medicine? Did you follow any particular diet? I am so anxious reading about the medicine and the condition I am diagnosed EH with atypia
You’re welcome. I don’t remember the dosage now, unfortunately. No, I did not gain weight while on the medication. Having said that, I watched what I ate and increased my exercise (but not a crazy lot 🤣). No particular diet, just tried to be healthier with what and how much I ate. Anxiety is normal - try meditating, and journaling your feelings. I’m sending you big hugs and good vibes! ❤️💪💫
@@junewee thank you! Appreciate your reply. Hope you are doing well.
I have endometrial hyperplasia with atypia and my OB suggested TahBso.
.I feel fear and hoping to still save my uterus & get baby😢
I am diagnosed with EH and still waiting for my biopsy result. I’m scared and cant stop overthinking about what will be the result 😢
I feel you, dear. Big hug. How are you now?
Hi. How are you now? I was also diagnosed with Endometrial Hyperplasia without Atypia and going to start with Hormonal replacement therapy HRT.
@@eimee8015 Hi, thanks for asking. It’s been 2 years and I’m well! No more abnormal bleeding or cysts, and no more medication after that first 3-month dose of Megace.
It's 2024 and I'm about to go for a biopsy.
Im. Diagnosewith endometrial hyperlasia. .. Ihad 2 surgey because of my contnues bleeding. Myperiod wont stop.. After one year of surgery.. Myperiod wont stop again. Im. Onmy 4month continies bleed..now 2 days ago my obgy put me in birrhcontrol. Shot... Ihope it will. Stop.. Im. Soontiredof this ilness😢😢😢😢😢this is. My 4 years battling this disease... Bleedingggggand bleeding
I have been going through really tough time. I have been having really heavy bleeding with clots bigger than golf balls. I went to ED without any ultrasound or diagnosis. I am currently on Primolut N and Tranexamic acid tablets for 4 days. I had a stroke in 2018 so can’t stay on these for long. Going for an ultrasound tomorrow. Keeping my fingers crossed😢😢. I am really scared!! Any insights to similar conditions pls let me know.
I’m sorry to hear that you’re scared. I can relate to the fear of a health scare. Big hug. How are you doing now?
Thanks for sharing your journey. Cheers to all strong and wonderful women who go through the same situation. 🩷
You’re welcome. And yes! Cheers!
Hi..Can u plz tell How much potency of Megace we’re you taking?
I was recently diagnosed with Atypical endometrial hyperplasia, I see a doctor about it on the 23 this month, I pray everything goes well for me that the doctors are willing to work with me.
A small part of me is afraid they push Hysterectomy because even though I'm young and want a baby, I don't have a husband yet.
But your video gave me hope.
I hope it works out for you. Do not accept a hysterectomy unless it’s something you want/need - it’s your body, your call; seek a 2nd opinion from another specialist if you can so you may make an informed decision. Sending you love.
hi there . is there any improvement in your condition
Oh boy where do I begin it been a long and hetic road. It to be noted I only kept going mainly because most doctors where not available during the "you know what time."
I went to the doctor they had me do a DNC and said I had stage one uterus cancer and recommended I get surgery to remove my uterus asap.
I said I rather not do that for varity of reasons and chose the hormone treatment to see if we can push it into remission that way.
Which my doctor from the beginning low key breated me every visit, seemed very statue like when I tell her I felt better after the meds because it wasn't her standard go to procedure.(I also note I did see a second option doctor but he brushed me off and said get the surgery.)
I had several bios each showing a diffrent degrees of the cancer. (One time she said it was gone only the next to suddenly back.)
I had three MRIs sixish months apart from each other the first showed a small mass about 50% in the muscle (this was when I first started to take the meds) Now according to the MRI tech.the tumor in the second and thrid test was smaller and less in the muscle than previously which would assume means progress right?
Well my doctor was very back and forth, "Oh it looks good." then "Oh well it could have been a miss read sometimes MRI arent 100% accurate we can't actually determine what going on inside you."
There was also whole other slew of verbal mistreatment from some nurses, mistakes and even after fifteen months of treatment they asked who my doctor should they be sending my information to? Which has been on the paperwork I filled out countless times!
They also pushed me about getting an IUD every visit which I wasn't sure about because I heard bad things about them, When she talked to me that it was my only other choice than surgery at the beginning of this year I caved and got it.
Now I did my research it takes 6 months the IUD to show effects. It wasn't even three when with my last boi result she told me after 15 months she wasn't comfortable with treating me this way and get the surgery now.
By this time the illness that should not be named had died down in my area and new doctors of her type opened up. I stopped going to her and am switching to another soon.
Will update on the matter after that.
@@SkeleObsessionStudios Hi Amber, Thank you for your update! Please keep us updated, fingers crossed for you 🤞
I’m 27 and have to have a biopsy Thursday because my uterine lining is 20mm and I am terrified!
All the best for your biopsy. I’m sorry to hear you’re feeling terrified and I wish I could take that feeling away, but it is not my job to take away from your experience. Big hug. Know that your fears aren’t real. This too shall pass. Big hug, my dear.
How ate things Desirae?
Did you get it done ? I’m 17mm I’m getting a second opinion
Hello.. Can you please share the meds that you take and your daily routine? My wife was diagnosed with Simple Hyperplasia with Atypia and I want to help her recover from it. Thanks in advance and more blessings to you and your family.
I was on Megase 160mg x 3 per day. I am mindful with what I eat so that I don’t eat more than I need and make healthy choices (but I do give my treats now and then). I do some form of exercise everyday, be it a walk, yoga or floor exercises. I also went for acupuncture once a week.
It’s great that you’re being such a supportive husband. It’s best you seek her doctor’s recommendation on medication that’s suitable for your wife’s condition as everyone is different - but you probably know that already. 😊 Your wife’s emotional well-being is also a vital part of the equation. Check in with her and how she feels, and ask her what she needs from you. I’m sure she’ll really appreciate that. All the best!
@@junewee hi did u get periods while on megace?
This is so kind of you doing research to help your wife. This tells me you love her deeply and talks highly of you. H
Please share the medicine same problem with me
Please pray for me. I was diagnosed with hyperplasia however I do not have the funds to support my medications🙏
I pray that you receive the support you need to help you overcome this. 🙏
What was your lining measuring on days 1-5 of your cycle . Mine is too thick
I cannot remember the measurements, sorry.
🙏🏽 🙌🏽 😍 🙌🏽
🙏
Complex hyperplasia with atypia.right now my ob inject me progestin.hope it help my lining🙏
All the best!!
How did it go with the progestin?
I am 23 years old, I have always had extremely heavy periods, I have many cysts on both ovaries but not huge cysts so doc isnt doing anything about it. I am on BC for my heavy periods.. I have a hysteroscopy D&C surgery coming up because in my last ultrasound my uterus lining is 11.84 and I am terrified... hoping for the best....
Why not put on provera
Mine is 17mm 😢
Big hug. How are you now?
What is DNC please? Is it biopsy? What was your daily of Megastrol ?
D&C is “A dilation and curettage procedure, also called a D&C, is a surgical procedure in which the cervix (lower, narrow part of the uterus) is dilated (expanded) so that the uterine lining (endometrium) can be scraped with a curette (spoon-shaped instrument) to remove abnormal tissues.” (Source: www.hopkinsmedicine.org/health/treatment-tests-and-therapies/dilation-and-curettage-d-and-c#:~:text=A%20dilation%20and%20curettage%20procedure,instrument)%20to%20remove%20abnormal%20tissues.)
The biopsy is done after the D&C surgery, using the samples collected from the procedure.
I am unable to recall the dosage of Megase, sorry.
Megace is a temporary fix. As soon as you get off the EH returns.
Yes, it is possible for EH to come back. Hysterectomy is the surest way to prevent having it again. However, if one is trying to try for kids, the progesterone produced naturally or through drugs during the trying to conceive journey (eg IVF) would likely keep the EH away. This is what’s happening in my personal experience. I’ve been off Megace for 7 months and going through IVF, and it does not seem that EH has returned.
I was diagnosed this past Friday. I'm 44 btw.
I’m 43 and was diagnosed a month ago too.
How are you doing?
How’s it going for you, MK?
Please tell what you eat
I ate as healthy as I could. More fruits and vegetables, less fatty foods.
God bless you
Thank you. And to you too.
How are you now? I have just been diagnosed 20mm thick and am waiting to have a diagnostic hystercopy. I'm 40 and frightened I might have Cancer 😒
I’m still okay now, a few years after everything. My subsequent checkups and D&Cs showed that everything is in good order. Big hug to you.
I’m also 20mm thickness. I’m going in for the same diagnostic hysterescopy with d&c soon. How are you doing now?
@@lynnpoag8173thanks for sharing your news with me. I wish you all the best in your D&C. I have been well for the past 2 years. 😊
What is Mcgee? Someone explain please!!!
Megace
Thanku so glad that you are EH free. I was free also a year ago. Can it come back I’m starting to bleed between cycle.
Glad to hear you’re EH free too. According to my gynae, it can come back. Hysterectomy is the best bet to prevent it from coming back.
I’m glad I found your video. After my perlvic + transvaginal USS it turned out I have endometrial hyperplasia. I am waiting for biopsy schedule which was referred as urgent then DNC as I was told by my gyne. Just like you, we are trying to have a second baby but here I am going through this trial and doing a lot of research about this.
Please share your diet im also have hyperplasia with atibia..