We love Marky just as much he is the bravest, kindest, inspirational person I have ever seen. He still inspires people with his legacy he has a special place in my heart for always 🤍
What a remarkable young man he was. Being in such pain, his limitations and knowing what his fate would be but yet such a strong smiling character. His mission in life was deffo to teach compassion and kindness to everyone.
when i see this video, marky is really someone incredible, there is this incredible feeling, this need to be his friend, even his brother or parents and that's what we call an aura, but also like something unfinished, marky left too top, too young. in front of marky we feel small, we can't complain when we know his life, his journey with his family and especially the mother, that's why we must be grateful with our mothers and of course the family, it's the pillar of our life, don't forget it and let's not forget marky
Mama has a heart of gold, and her boy is so precious. They are a light in a world that needs to see there is light. Regardless of this terminal disease he is the best kind of person there is. God bless them.
I took care of a 4th grader with epidermolysis bullosa when I was a pediatric office nurse. The local elementary school didn't understand why she was a DNR. CPR would have unalived her anyways so I didn't understand as her pediatricians nurse why it was so hard for the school district to understand. God bless you all in Jesus Name and give you His Peace that surpasses all understanding comfort you and your family in your grief. ❤️🙏🏻
@@randymcgee2603 yes. I don't know if UA-cam does it but on other platforms if you write those words: ⚰️💀, your comment is removed. I tried writing my comment at least 4 x here. It's 💯 due to censorship we coin new words. And because I wrote that word out, THIS comment could be deleted. If you want truth you're going to have to put up with some awkward sentences and words.
I ask the following questions with the utmost sincerity ... How was the older brother spared the disease? Different father? Are any future children conceived by the patents guaranteed to have the disease? I'm so glad to know Markey is no longer in pain.
If I had ONE CHILD wit this disease, as she DID, I'd literally never have another child again. I'd never make a second child suffer like hell 24/7 after the first one.
I see this and wonder if there is really a God, why he allow a human being to suffer like this? But- then I see how his parents care for him and how he loves his dogs… it’s all love. Imma say a prayer for you and your family night. You’re tough as nails my young dude.
Whoever told her that makeup was ok and let her be filmed looking like that needs to be fired. Id be pissed if someone let me go on tv looking like that
@@YoyolandoCR it’s awful. Every time they fly she bitches about the airlines and her child. She is gross. To expose him online while she changes his diaper.
Wow you two are disgusting saying such awful things about her. She advocates for her child and you see that as complaining?! You both should be ashamed of yourselves and your ignorance. Melissa spends every minute of everyday making sure Marky has the best life and you two birds sit here squawking. How disappointing - DO BETTER
We love Marky just as much he is the bravest, kindest, inspirational person I have ever seen. He still inspires people with his legacy he has a special place in my heart for always 🤍
What a remarkable young man he was. Being in such pain, his limitations and knowing what his fate would be but yet such a strong smiling character. His mission in life was deffo to teach compassion and kindness to everyone.
Such a special young man. 🙏🏼♥️🕊
Please , people watch this young man . I have learned so much from him and mum n dad , just the whole family are sospecial
when i see this video, marky is really someone incredible, there is this incredible feeling, this need to be his friend, even his brother or parents and that's what we call an aura, but also like something unfinished, marky left too top, too young. in front of marky we feel small, we can't complain when we know his life, his journey with his family and especially the mother, that's why we must be grateful with our mothers and of course the family, it's the pillar of our life, don't forget it and let's not forget marky
Un vrai petit ange, généreux, souriant, courageux, il respirait l amour 👍👍👍🙏🕯️♥️♥️♥️
Marky you truly are amazing, I am in total awe of you and you deserve the world. Your brother is looking down so proud of you. 💜💜💜
I can’t find the right words I think marky is the beautiful loving person I have seen so brave and such a inspiration god love you all xxx
Mama has a heart of gold, and her boy is so precious. They are a light in a world that needs to see there is light. Regardless of this terminal disease he is the best kind of person there is. God bless them.
How sweet Marky. Beautiful family
His parents took such good care of him ❤️
God Bless him
Grettings from Ecuador 🇪🇨❤️✨
You are amazing, Marky.
God bless you.
Blessings from Switzerland.
I took care of a 4th grader with epidermolysis bullosa when I was a pediatric office nurse. The local elementary school didn't understand why she was a DNR. CPR would have unalived her anyways so I didn't understand as her pediatricians nurse why it was so hard for the school district to understand. God bless you all in Jesus Name and give you His Peace that surpasses all understanding comfort you and your family in your grief. ❤️🙏🏻
I've never heard of the word unalived Do you mean it would kill her?
@@randymcgee2603 yes. I don't know if UA-cam does it but on other platforms if you write those words: ⚰️💀, your comment is removed. I tried writing my comment at least 4 x here. It's 💯 due to censorship we coin new words. And because I wrote that word out, THIS comment could be deleted.
If you want truth you're going to have to put up with some awkward sentences and words.
I ask the following questions with the utmost sincerity ...
How was the older brother spared the disease? Different father? Are any future children conceived by the patents guaranteed to have the disease?
I'm so glad to know Markey is no longer in pain.
God Bless you Marky and family 🙏
If I had ONE CHILD wit this disease, as she DID, I'd literally never have another child again. I'd never make a second child suffer like hell 24/7 after the first one.
Hi marky guy! We love you dude! 👍♥️♥️ You're the strongest person I know. Like seriously! Awesome 😎
You’re amazing Marky! Much love to you and your family from the uk! 🇬🇧 ☺️ Xxx
Beautiful family .❤❤❤
We love you Marky! You are AWESOME
The family is suffering just as much as this poor little boy.
You are strong and brave! Much stronger than me or anyone I know.
GOD Bless you all! 🙏
I see this and wonder if there is really a God, why he allow a human being to suffer like this? But- then I see how his parents care for him and how he loves his dogs… it’s all love. Imma say a prayer for you and your family night. You’re tough as nails my young dude.
Whoever told her that makeup was ok and let her be filmed looking like that needs to be fired. Id be pissed if someone let me go on tv looking like that
Did Marky have a feeding tube? My son did .
I had no idea he was 20
🙏💙🙏😊
💔🙏🏻💔
This poor child. He’s being exposed daily. I’m sorry but this woman is very attention seeking all day long every single day.
To have another child after knowing you and your spouse are carriers. After they already had a child with this terrible illness.
@@YoyolandoCR it’s awful. Every time they fly she bitches about the airlines and her child. She is gross. To expose him online while she changes his diaper.
Wow you two are disgusting saying such awful things about her. She advocates for her child and you see that as complaining?! You both should be ashamed of yourselves and your ignorance. Melissa spends every minute of everyday making sure Marky has the best life and you two birds sit here squawking. How disappointing - DO BETTER
You need Jesus, honey.
@@BigEKc0cwp Your momma needs Jesus