A dermatologist was able to diagnose my brother with circulation issues in his legs after one appointment. What the a$$ is wrong with these doctors. How can you discharge a patient who has blue feet.
my dad also have the same condition, also took forever to diagnose. The interesting fact - my dad was also heavily smoker, and worked as truck driver. I don't know why it takes so long to diagnose, it looks crystal clear that something wrong with circulation. I don't know how those doctors who are just discharging patients from hospitals with just pain killers, sleeping over night. I believe, if you don't know what's wrong with patient, find him specialist who might know. But they just keep prescribing steroids or narcotics.
I felt more sorry for the husband than the wife who's actually ill. At least she doesn't remember, he remembers everything and he sounds so sad and scared even now .
It made me so frustrated that no one checked the pulse in his feet for 4 years! Cant believe he put up with it for that long without going to a specialist in another state or even suggesting someone check the pulse!
@@ingridakerblom7577 lol. I realize that your comment was ironic because of the first one. It's easy to say things now after someone already found out and we see what it actually is.
As an RN, checking pedal pulses is part of a general assessment. This has nothing to do with rarity, incompetent medical staff is solely to blame. I would check pedal pulses if he came in with back pain, a headache, vomiting, doesn’t matter, let alone an actual problem with his feet
My brother had encephalitis at age 6, not the same as what is shown here though. One afternoon he started acting like he was drunk and doing strange things. I was looking after him (I was 16 at the time) while my mom was at work and I thought he must have got into the alcohol cabinet somehow. So I put him to bed, he had stopped talking and while in bed he wouldn't stop jiggling. I was very worried about him so I called my mom and she came home late in the afternoon. Not understanding what was going on, we didn't take him to the hospital that day, we just thought he had a virus and we planned to take him to the doc the next morning. He vomited all night. By morning he was paralysed on his right side and although he was awake, he was non responsive, just empty eyes staring out at nothing. We rushed him to the doc first thing in the morning, the doc sent us straight to a specialist and he sent us straight to the hospital where docs were waiting for us. We were told that if he was going to survive and not have any brain damage, we couldn't waste any time, every minute mattered. They didn't even do a diagnostic spinal tap as they said he was too ill to undergo something like that. We were told that it was 50/50 that he would survive that night and as per the rules of the hospital, we couldn't stay with him overnight. They said we could only see him again at 5am the next day or if he died during the night we would be called but as we didn't have a phone (it was the '90s and we lived in a rural area) we would only find out, when we went back to the hospital the next day, if he had survived or not. Next day at 5am we rushed back to the hospital, when we got to his bed it was empty and had been stripped. Our hearts fell and everything went into slow motion. My mom stoodd hand to mouth staring at the empty bed while I rushed off to find a nurse, it was shift change time so the ward seemed to have been deserted. While I rushed around, checking everywhere for nurses but only finding orderlies, I spotted by brother in another room, sitting in a chair staring blankly at some other children playing with toys. He had wet his bed overnight so they needed to change the bed and clean him up. The relief was an incredible feeling, he had survived the night. Over the next few days, my brother slowly reemerged, his paralysis fading more each day and the light in his eyes becoming brighter and stronger. He was in hospital for 6 days and actually had his 6th birthday in there. On the 5th day, I took him for a little walk. It was the first time he attempted walking since becoming paralysed. He shuffled slowly down a corridor, the achievement felt monumental! It would take years for his brain to fully recover from the encephalitis. His memory was particularly bad, he would frequently forget our names and the names of his friends. His school work really suffered and would impact the rest of his school years. He had to repeat a year. He would get tired quickly when needing to use more than basic brainpower, for years after the encephalitis. But still, he did recover without permanent brain damage so we were grateful. He's now a thriving adult with a good head on his shoulders!
So glad he made it. Must have been devastating. Did he also have a terracoma? (I believe it's in the testes and not ovaries for boys). Anyway, thanks for sharing. :)
@@aliceedmunds4377 thanks, yes it was very traumatic. My mom was a single parent and with me being 10 years older than my brother, I was his second parent basically. All this happened during Easter school break and going back to school after going through that was very strange. Other kids talking about normal teenage meaningless things and I was just glad my brother was alive. I left out an important fact, just cos it would've taken more time to type... We are from Zimbabwe Africa and at that time there was basically just 1 private hospital in Harare - capital city. That private hospital was your best bet especially with really dangerous illnesses, they had better everything. But the pediatric ward in that hospital was full so we were sent to the government run hospital. That hospital is/was a place of nightmares. Dead bodies on the floor in the ER, no usable toilets for visitors to use. They provided no food, we had to bring our own. Everything just looked dirty and decrepit. To get to the peds ward we had to walk past the morgue, which was full and dead bodies lined the corridor - waiting to get in the morgue. So every time we left the peds ward we were faced with that horror! In the peds ward there was always this low wind like sound, it could be heard intermittently throughout the day. We realise on the 5th day of our stay that the noise was the weeping of mothers who's babies had died. In Africa the different tribes have different ways of crying and mourning, in Zim the Shona tribe the way they cry is like a low wailing sound - it's a haunting sound that rang in my ears for weeks after leaving that hospital. All that being said though, the staff were excellent! Amazing nurses and doctors. We were one of maybe 2-3 other white people in the hospital at that time and definitely the only whites in the peds ward so we stuck out like a sore thumb. However I know that that fact didn't change how we were treated there and we were treated very well! It was quite an eye opening experience, one that left my mom and I with some PTSD symptoms. Wow I can't believe I shared all of this on the internet! It was strangely cathartic though!
@@gretahunt4401 That is quite a testimony - thank you. Btw, I am from South Africa. Any chance you immigrated here? Though it looks like SA is going the same way as Zim. You are blessed that the hospitals took care of you. I've lost a couple of friends to hospitals here in SA, even privatised ones.
@@aliceedmunds4377 hey its a small world after all huh?! Durban was my second home when I was growing up as that was where my dad was. I immigrated to UK in 2001, I've floated around looking for alternatives after years of unhappiness in UK and went to USA but thought Canada would be a better bet. But at that time my health was declining and have now got a few chronic illnesses that leave me debilitated , so I have to stay in UK, it's the only place I can get health care and support. Where did you immigrate? USA? Yes SA has been slowly going the way of Zim for some time. It's so sad. I love southern Africa but it's in ruins now.
I'm a physical therapist from Germany and I'm im total shock. In 5 years no one had test the pulse in the feet?!?! That's something I would do immediately when I have a patient with feet problems.
Same..I am a doctor in Gemany and I imediatly knew what it was afrer they said he is a heavy smoker and truck driver! How can you miss this?! Its a classik texbook case.
Here in Austria (I would guess it is the same in Germany) foot pulses are even checked routinely when a patient is admitted to hospital. Can’t say how many pulses I checked during med school
I work in healthcare in the UK, and I’m also shocked at the seemingly awful state of the US health system, if indeed it can be called a system! There seems to be no pathways!
I don't understand the second case tbh. I had pain in my left foot and my family doc sent me to a specialist for the veins and arteries. there they did a routine check, wich means they put a bunch of electrodes on my legs and feet and took several readings. they could pinpoint weakness in my veins without problems. I have a normal insurance, and I was 35 at the time. And what doctor looks at blue feet and does not think it is a circulation problem? This cannot be real.
It was excruciating to watch the ineptitude of the second family. The first thing I noticed was the wife saying how she was thnking steroid injections were gonna be the cure for him. Then he just gave up and resigned himself to living with pain instead of understanding that pain is the body's way of telling you there's an injury of some kind. But what got me the most was that the wife already done graduated from college before she ever starts researching her husband's case. Unbelievable. In the time of Internet she didn't look into it earlier? Strange.
@@TessaRoloson No she's saying she thinks it's weird that a doctor would see blue feet and not immediately look into a circulation problem right away. She's shocked that the patient didn't get a simple test that she's been getting routinely.
Big ups to the spouses. The first spouse was so happy that she had no memory of her situation and dropped everything for her and the second spouse went to nursing and used her knowledge and research to find a diagnosis.
@@DutchMelon nope bcs they are electronic today.. not much papers that can go into the wrong hands more easily.. and it's easier to share the medical history between different facillities.. and it's cheaper, and it's more sustainable aand it's faster etc etc.. times change
The first case makes me wonder how many "mental illnesses" are actually triggered by a physical/contagious illness & the resulting immune response. My psych thinks I have PANDAS but isn't sure. So this is quite interesting to me. My friend had an ovarian tumor that caused her to become belligerent, depressed & spaced out as her only symptoms for months before the pain started. It was truly terrifying. It was one of those teratomas with hair & teeth :\
The difference between autoimune diseses like the one above and real mental illness is that it is rapidly progressive and ends in death, because the tissue death is continuous due to the attack of the immune system. She would have died if they did not find the issue. Mental illness is usually a steady state with periods of better and worse, without physiological impairments on your other systems.
Some mental illnesses can cause direct and indirect physiological problems. Depression can make the serotonin producing parts of your brain to shrink, that's why antidepressants can be used to sort of kickstart it back and get it going again. The indirect effects can be obvious so i don't have to list them. Also some "mental illness" (quote unquote here) is due to an actual deficiency in the brain. I for example have ADHD and various stimuli tests and scans have concluded that my brain is unable to produce dopamine, hence the need to take amphetamines to get it to meet societies expectations of me to function in it. I think the bigger point is that there may be a link to physical ailments that affects your mental health but isn't necessarily *lethal* and can be misdiagnosed as such.
@@ZoeF.OObviously it wasn't that obvious to OP!!! Or else she would not have asked how many mental patients exist who really have an autoimmune disorder or something else instead! So the first response was perfect. Yours wasn't.
Seeing Mark feet and hearing symptoms it was for sure his blod circulation not right... i have studied podology and can tell stright away he had problems with arteries. Doctors should know the pulse is first thing to check in that kind of condition.
IKR!!! I'm in school to be a nurse (halfway trough) my first thought was, that it's quite clear that it was a circulatory problem in his feet.. how could it take 4 years for someone to think about a common problem!?
I don't smoke and I have smoke about 2 cigarettes in my entire life. My big toes often look blue, my feet hurt and they're either on fire or my feet are freezing along with tingling in my feet, top and bottom. My entire body severely hurts from head to feet. But my feet are still on a different level of pain. I'm on disability, because I cannot stay awake, pain is exhausting, I have had to walk with a cane since having a Blood Clot in my legs almost 20 years ago. I wish someone could give me a diagnosis, other than Fibromyalgia.
As for the second one, my older sister is going through the same thing and had to quit smoking immediately. She was a heavy smoker since she was like 14 (shes in her late 40s now). Its a scary thing
I have a friend who had this type of encephalitis. She was admitted to a psych ward for a time. Once she recovered, she was diagnosed with MS, and it's thought that the encephalitis masked the MS symptoms and could have been diagnosed earlier, had it not been for the anti-NMDA receptor encephalitis. I think they also found a tumour on her thyroid, so I think that was perhaps the trigger for it.. interesting to see another case, as I'd never heard of another before now.
I have basically no medical training beyond some rudimentary first aid and yet I still think that I’d know to check blood flow to someone’s feet if they literally had blue feet 🙄
i dont understand how any of the other doctors couldnt figure this out, none of them seemed to ask about his smoking? even i knew as soon as he said he smokes a pack a day.
It sounds like Mark has peripheral artery disease. My mom had it. It can end up killing you. The circulation in her digestive tract had also gotten so bad, her intestines started to die. She died at the age of 62. Wow! Burger's disease, similar, yet different. The body is a fascinating and complicated thing.
Blessed are you that you have a husband roger, always in your side griefly stricken and helpless becoz he didn't know how to help his wife, he never leave you. May you stay strong and whole as family. Idem to the second couple, i admire her positive effort to discover her husband's ailment. Thumbs up to all of you!!!
Don't know what it is, tests mostly negative but they tell him wife is going to be in a permanent vegetative state, if she survives at all, good grief! As for Mark when he presented with blue feet and pain why did no one check his pulses there, wouldn't that have been the first natural thing anyone would do? 5 years of suffering, no one telling him to stop smoking as a logical step regardless of not knowing exactly what he had other than an obvious, visible, peripheral circulatory collapse.
I called the teratoma in the first patient within the first seven minutes. Typically the extreme mood changes are very common and the menagisits. I'm glad she is okay, they are very difficult to diagnose off the bat. I dont understand why they didnt do a spinal tap after everything came back negative, tho.
One thing that I find really frustrating about this show is that they end every story with "they can't help but wonder, why it took so long for someone to make the right diagnosis", and the answer always boils down to one of 2 things: Obvious malpractice or what they had was really rare. You can't expect every doctor to be aware of every strange and rare condition that exists, they're human. And I'd rather have a general practicioner that can treat the regular illnesses than one that is hyperspecialized but struggles with the easy things because of that. Edit: Going to the wrong type of specialist is the third option for an answer, actually.
The first story, within a few minutes, I thought it was a teratoma. Idk why, but it just seemed like it was due to the emotional issues she was having. I feel so bad for her. I wish I could hug her.
Mark’s condition really proves just how much people should never ever touch cigarettes or any nicotine containing items. The fact that he was a smoker already had me feeling very angry at the doctors who were completely overlooking the fact that his habit of smoking cigarettes was the root cause of his medical issues.
I agree 100% but interestingly tobacco is used in some rare cases to manage (but not cure!) some auto immune disorders. Because it is so toxic the body fights the tobacco before fighting itself which can give patients a few months of respite from their symptoms before continuing with infusions :)
I'm a smoker and I second this. Mostly because (and now I'm just guessing) at one smoker, ten others get unwanted smoke at them. They might have asthma, allergies or migraine. What I decide to do to my own body and life is mine to deal with. Other people should never get affected by my life choices. Passive smoking could be just as dangerous as active smoking. Where I live, you can now get a fee at around $150-200 for smoking in public, and I absolutely love that! Also, if you throw the butts on the ground, you could be charged for littering.
I know no one cares, but I'm 99,% sure that dr. Dalmau is from Catalonia, a small region of Spain were we speak Catalan. I'm Catalan myself and listening to him speaking English with this thick accent was mindblowing.
Looking at his red and somewhat swollen feet, my first thought would have been circulation issues. That's the first thing my mind goes to with redness and swelling of the feet and lower legs. Either that or inflammation.
Kristen's story is the only one of these I've seen so far that doesn't start with weeks or months of "and the doctors didn't believe me, and sent me home", or similar.
The second case was like watching my own life (with the exception of the blue feet). I saw specialists in 14 different medical fields and a year before finally getting a diagnosis of small fiber neuropathy. I don’t have much feeling in my feet anymore. 🙁
the first case is really freaky. because of brain cells in the dermoid cyst, the body fought against her actual brain where those particular cysts are found! a lady i know had one of them in her stomach(perhaps overies, she never ekaborated) and the docs told her it is caused by a would be twin but never developed. How freaky is that? in this episode the said they don't know! They can be found in 3 other pa=s of the body too. Mad. And that poor lady's immune system got it wrong and started attacking itself. .
Do you know how hard it is to quit? None of the aids on the market have helped me at all. I have tried cold turkey, I've tried prayer, meditation, all that stuff and I still have the nasty habit. I don't smoke as much as I used too, but still can't quit. Some say it is easier to quit drugs and alcohol than to quit smoking.
@@rachelmartin3631 Just keep trying, you can do it if you decide to! Stop buying them so you can't smoke. You don't want to die of lung cancer or other pulmonary disease... Some people have been able to stop smoking after a psychedelic trip. Liberty cap mushrooms are a great and natural option.
Why do people always say “I thought they were possessed”. Why not dissociating, delusional, or something that are actual something that exist. People aren’t possessed.
Ingrid Åkerblom apparently they think that, yes.. I’m glad they have their faith, even though I don’t have any faith other than trying to have faith in people, but it’s kinda going insane when people think possession is real.
@@Surdeigt yes! Same here, sometimes i can be jelaus of people who have deep faith & can find comfort in that. But I have difficulty to accept/understand that that same deep faith, often is more harm than not & when innocent children are the ones getting hurt, noo I just can't accept that.. in this case it's not a child, but still.. People have a psycological need to bealive in something bigger/grater than ourself & our position on the food scale, some bealive in god, some in faith & others in science.. non spiritual people can still think that they had had an paranormal experience when it's "just" the barin playing tricks.. It's kind of natural to blame the supernatural, when we don't understand & science is falling short..
The effects of tobacco smoke on the circulatory system include: raised blood pressure and heart rate. constriction (tightening) of blood vessels in the skin, resulting in a drop in skin temperature. less oxygen carried by the blood during exercise. - Cigarette smoking greatly increases your risk of Buerger's disease. But Buerger's disease can occur in people who use any form of tobacco, including cigars and chewing tobacco.
But not everyone who smokes develops Buergers Disease. There is a genetic predisposition involved, ( most common in Askenazi Jews), that i did not inherit ( i've been tested)
I’m just few minutes into the 2nd story of the guy who’s a smoker having feet (circulation) problems. Is it Buerger’s disease? That’s what I’d be thinking & testing for, but I’m just a nurse. I’ll have to keep watching to see, but I guess it must be something much rarer & harder to diagnose than that because this it Mystery diagnosis, it must have taken awhile to diagnose & Buerger’s disease is so obvious when you have a young male smoker with circulation problems in his feet.
It's waaaayyyy more commom than you think.. I almost died bcs they didn't find out at first that I had sepsis.. they thought i had something with my kidneys or urethra (unsure of the spelling, sorry enlish is not my first language), so I ate the wrong medication for days, didn't got better & I was rushed back to hospital, going into septic chock, I was only a few hours from death (it was about 6pm when i arrived at the ER & I wouldn't have survived the night) and in undiscribable pain I couldn't do anything but scream & cry bcs of the pain, when I got worse I didn't have the energy to scream anymore.. many of my internal organs where about to shut down.. my liver, kidnes among others, was swollen.. But I got a new doctor at the ER, and she saved my life..
the first half of this video puts things heavily in perspective,,, all four of my teratomas were benign, if i could manage those odds, then what if i had managed that? it's incredibly scary
After seeing few of those programs I doubt that they can be real stories. Even I, with no education in health issues, could tell from the first minute what was wrong with Mark. Also I could tell from some other programs what was most likely wrong, like the woman with the endometriosis. What doctor could not figure that out? Everything about her screamed endometriosis!
Anti nmdh receptor encephalitis is like being on drugs without drugs... I am living alone and nobody was there to help me... I felt like I was flying and seeing my city from above but I was lying on my bed the entire time... I gladly collapsed on the hallway before I died from it
My dad also had Buergers Disease, its onset was below his 20's very unknown at that time, and he was a heavy smoker until he died at age 81, dispite to all advises to quit smoking. He also developed diabetis after his 50's, had several heart attacs and heart infarct, and did not comply to any dietary advices or advice to move more around the house for his blood circulation Two of his heart arteries were replaced, and also the artery that splits above the upper legs ( i dont know how to name it, in Dutch they call it "broekoperatie, translated as "pants surgery". He evenually died of vasculair demention, after having 3 strokes and 2 epileptic convulsiond in 1 year
Im seeing docs about my issue. Basically for years ive had 24/7 intense migraines, all the meds i tried only made it worst or my body badly reacted. I also feel constant brain pressure and often dizziness. Im going for more bloodwork and mri soon 🙄
QcMaggie look up “pseudotumor cerebri” and ask for a lumbar puncture if the MRI is normal. And please find a neurologist that specializes in...whatever, if you’ve not already!
@@lindsaysheffield I agree!! I had that 2 weeks after my daughter was born...if you end up with that as a diagnosis, do not let them put in a shunt!! Find a Neurosurgeon who will preform a cranial decompression!!! You'll be in remission in no time.
Cyndi Sherry yep - and don’t wait either - my vision got really damaged - find a neuro-ophthalmologist to follow up with too. They’re few and far between but worth it
I honestly thought with the symptoms of the man it would be diagnosed as RSD/CRPS. A disease that presents the exact way. Excruciating pain, swelling, burning, cold, temperature fluctuations, colour changes. As I have CRPS/RSD and it's the exact same symptoms. Every symptom that was mentioned was also a classic symptom of crps. Happy it wasn't as it's absolutely HORRIBLE to live with. No cure what so ever. I'm 24 years old and now in a wheelchair due to my CRPS being throughout the entire left side of my body and in my back after having spinal cord stimulator surgery. I have leads in my epically cord & a battery implanted in my right lower back which I have to charge every few days and I'm on over 50 tablets a day including very strong pain medication which is stronger than morphine but still in so much pain daily, unable to even live a normal life. My mum became my full time carer in 2016 and literally does everything for me. I love watching these because it teaches me about diseases I've never heard of before. I have 4 diseases that before I was diagnosed with them I'd never heard of them. The crps I've now had almost 7 years. I'm unable to work and won't ever work again because of the severity of my health now and how much it's deteriorated. I am a fully qualified nursery nurse/teaching assistant. I actually started making awareness artwork a couple of years ago and make over 80 different illnesses and disease artwork, if anyone here is interested it's Fighting for Awareness By Tara Jane on instagram & Facebook. To name a few I make Crohn's & Colitis Interstitial Cystitis Endometriosis Vascularitis Cystic Fibrosis Fibromyalgia Celiac disease And many more plus others that are not well know such as CRPS, Postural Orthostatic Tachycardia Syndrome, Inappropriate Sinus Tachycardia, Urethral Pain Syndrome (all of which I have along with Arthirits).
I have CRPS also with fibromyalgia and some other issues. It’s really difficult especially with my having two young children and a husband who is law enforcement all while running the farm too. You all rock in my opinion and are stronger than the world could even imagine! 💙
For my first ten years of smoking I got annoyed when doctors asked me about smoking and then blamed whatever symptoms I had on that. Now, I'm happy to tell that I smoke, in case they might find something odd that could be related to the smoking. I even go on general check-ups to detect possible issues related to the smoking, before it gets too serious. So, why didn't any doctor followed up his smoking?! There isn't warning labels on the packages for decoration...
The first story made me want to scream when I heard the hospital put a bite block in her mouth 😫😫😫 no, no, no! Please don’t ever do that, it’s so dangerous and archaic. Anyone having a seizure just needs reassurance and placing in the recovery position after their seizure.
I go through what she does nearly every day . . Been 10 plus years still no idea why I do have epilepsy ect but still mystery. I lose days unaware of my aggression. Days in hospital. And alot of sedative. Not mentally crazy trust me it was my first thought.. on the bright side luckily due to coming in to money I can finally go privet .
Have you been to the doctor yet? If it is cancer, I't is soooo important that you get treatment as soon as possible! So the cancer dosen't spread! Hope you are better!
@@Watashinomori Please tell me you've got the test done and stopped procrastinating? I wish you the best . Health is something we can't put on the back burner.
Weirdly I knew a woman with exactly the same thing, her last name was Gunther too,but we live on the other side of the planet to this case. It's just strange they had the same last name with the same condition. She was ok as well, recovered well.
It's stories like this (second one) that makes me want to be a doctor even more. I wouldn't have a patient come to see me with blue feet, having to quit his job, and just say oh heres some painkillers off you go! 🙄😠
It strange why she would put his feet in cold water! Didn't she know it was a sign of bad circulations. People turn blue from not getting blood in a heart attact. He wasn't getting blood to his feet.
Allison Shepard obviously just dramatization - peripheral pulses Are a standard in physical exam and even a year one medical student would have known that
This reminds me of my feet they burned felt like I was standing on a bed of pins on fire I couldn't even walk on them I crawled to the bathroom XD it took 5 years for the doctor to realise it my meds for my siezures
I need a man like Roger. He is so sweet and supportive. I'm so glad Kristen is better now ❤
how someone really is behind closed doors, is not how they are when around other people.
He’s a wonderful man. A true husband and father.
His a unbelievable person
Here I am M E
For real. 🤭
A dermatologist was able to diagnose my brother with circulation issues in his legs after one appointment. What the a$$ is wrong with these doctors. How can you discharge a patient who has blue feet.
I guess when you have Raynaud’s that’s completely normal
Cuz they don't know how to help smurf feet
my dad also have the same condition, also took forever to diagnose. The interesting fact - my dad was also heavily smoker, and worked as truck driver. I don't know why it takes so long to diagnose, it looks crystal clear that something wrong with circulation. I don't know how those doctors who are just discharging patients from hospitals with just pain killers, sleeping over night. I believe, if you don't know what's wrong with patient, find him specialist who might know. But they just keep prescribing steroids or narcotics.
i'm an uneducated fool and *i* can see that he has a major circulation issue
maybe he thought he was in the Blue Man Group
I felt more sorry for the husband than the wife who's actually ill. At least she doesn't remember, he remembers everything and he sounds so sad and scared even now .
What a loving man!
It made me so frustrated that no one checked the pulse in his feet for 4 years! Cant believe he put up with it for that long without going to a specialist in another state or even suggesting someone check the pulse!
Yes & in the first case, why they didn't do a spinal tap at their local hospital.. It sounds like they really should have done that..
@@ingridakerblom7577 lol. I realize that your comment was ironic because of the first one. It's easy to say things now after someone already found out and we see what it actually is.
As an RN, checking pedal pulses is part of a general assessment. This has nothing to do with rarity, incompetent medical staff is solely to blame. I would check pedal pulses if he came in with back pain, a headache, vomiting, doesn’t matter, let alone an actual problem with his feet
My brother had encephalitis at age 6, not the same as what is shown here though.
One afternoon he started acting like he was drunk and doing strange things. I was looking after him (I was 16 at the time) while my mom was at work and I thought he must have got into the alcohol cabinet somehow. So I put him to bed, he had stopped talking and while in bed he wouldn't stop jiggling. I was very worried about him so I called my mom and she came home late in the afternoon.
Not understanding what was going on, we didn't take him to the hospital that day, we just thought he had a virus and we planned to take him to the doc the next morning. He vomited all night. By morning he was paralysed on his right side and although he was awake, he was non responsive, just empty eyes staring out at nothing. We rushed him to the doc first thing in the morning, the doc sent us straight to a specialist and he sent us straight to the hospital where docs were waiting for us. We were told that if he was going to survive and not have any brain damage, we couldn't waste any time, every minute mattered. They didn't even do a diagnostic spinal tap as they said he was too ill to undergo something like that.
We were told that it was 50/50 that he would survive that night and as per the rules of the hospital, we couldn't stay with him overnight. They said we could only see him again at 5am the next day or if he died during the night we would be called but as we didn't have a phone (it was the '90s and we lived in a rural area) we would only find out, when we went back to the hospital the next day, if he had survived or not.
Next day at 5am we rushed back to the hospital, when we got to his bed it was empty and had been stripped. Our hearts fell and everything went into slow motion. My mom stoodd hand to mouth staring at the empty bed while I rushed off to find a nurse, it was shift change time so the ward seemed to have been deserted.
While I rushed around, checking everywhere for nurses but only finding orderlies, I spotted by brother in another room, sitting in a chair staring blankly at some other children playing with toys. He had wet his bed overnight so they needed to change the bed and clean him up. The relief was an incredible feeling, he had survived the night.
Over the next few days, my brother slowly reemerged, his paralysis fading more each day and the light in his eyes becoming brighter and stronger. He was in hospital for 6 days and actually had his 6th birthday in there. On the 5th day, I took him for a little walk. It was the first time he attempted walking since becoming paralysed. He shuffled slowly down a corridor, the achievement felt monumental!
It would take years for his brain to fully recover from the encephalitis. His memory was particularly bad, he would frequently forget our names and the names of his friends. His school work really suffered and would impact the rest of his school years. He had to repeat a year. He would get tired quickly when needing to use more than basic brainpower, for years after the encephalitis. But still, he did recover without permanent brain damage so we were grateful. He's now a thriving adult with a good head on his shoulders!
So glad he made it. Must have been devastating. Did he also have a terracoma? (I believe it's in the testes and not ovaries for boys). Anyway, thanks for sharing. :)
@@aliceedmunds4377 thanks, yes it was very traumatic. My mom was a single parent and with me being 10 years older than my brother, I was his second parent basically. All this happened during Easter school break and going back to school after going through that was very strange. Other kids talking about normal teenage meaningless things and I was just glad my brother was alive.
I left out an important fact, just cos it would've taken more time to type... We are from Zimbabwe Africa and at that time there was basically just 1 private hospital in Harare - capital city. That private hospital was your best bet especially with really dangerous illnesses, they had better everything. But the pediatric ward in that hospital was full so we were sent to the government run hospital. That hospital is/was a place of nightmares. Dead bodies on the floor in the ER, no usable toilets for visitors to use. They provided no food, we had to bring our own. Everything just looked dirty and decrepit. To get to the peds ward we had to walk past the morgue, which was full and dead bodies lined the corridor - waiting to get in the morgue. So every time we left the peds ward we were faced with that horror! In the peds ward there was always this low wind like sound, it could be heard intermittently throughout the day. We realise on the 5th day of our stay that the noise was the weeping of mothers who's babies had died. In Africa the different tribes have different ways of crying and mourning, in Zim the Shona tribe the way they cry is like a low wailing sound - it's a haunting sound that rang in my ears for weeks after leaving that hospital.
All that being said though, the staff were excellent! Amazing nurses and doctors. We were one of maybe 2-3 other white people in the hospital at that time and definitely the only whites in the peds ward so we stuck out like a sore thumb. However I know that that fact didn't change how we were treated there and we were treated very well!
It was quite an eye opening experience, one that left my mom and I with some PTSD symptoms.
Wow I can't believe I shared all of this on the internet! It was strangely cathartic though!
@@gretahunt4401 That is quite a testimony - thank you. Btw, I am from South Africa. Any chance you immigrated here? Though it looks like SA is going the same way as Zim. You are blessed that the hospitals took care of you. I've lost a couple of friends to hospitals here in SA, even privatised ones.
@@aliceedmunds4377 hey its a small world after all huh?! Durban was my second home when I was growing up as that was where my dad was. I immigrated to UK in 2001, I've floated around looking for alternatives after years of unhappiness in UK and went to USA but thought Canada would be a better bet. But at that time my health was declining and have now got a few chronic illnesses that leave me debilitated , so I have to stay in UK, it's the only place I can get health care and support.
Where did you immigrate? USA? Yes SA has been slowly going the way of Zim for some time. It's so sad. I love southern Africa but it's in ruins now.
Crazy him being so young they didn't let you stay I would if freaked out!! So sorry you all went through that.:(
I'm a physical therapist from Germany and I'm im total shock. In 5 years no one had test the pulse in the feet?!?! That's something I would do immediately when I have a patient with feet problems.
Germans are much more advanced in medical technologies then many places in the world, but yeah something sooo simple!
Same..I am a doctor in Gemany and I imediatly knew what it was afrer they said he is a heavy smoker and truck driver! How can you miss this?! Its a classik texbook case.
@@andreabrava6899
Here in Austria (I would guess it is the same in Germany) foot pulses are even checked routinely when a patient is admitted to hospital. Can’t say how many pulses I checked during med school
I work in healthcare in the UK, and I’m also shocked at the seemingly awful state of the US health system, if indeed it can be called a system! There seems to be no pathways!
I don't understand the second case tbh. I had pain in my left foot and my family doc sent me to a specialist for the veins and arteries. there they did a routine check, wich means they put a bunch of electrodes on my legs and feet and took several readings. they could pinpoint weakness in my veins without problems. I have a normal insurance, and I was 35 at the time. And what doctor looks at blue feet and does not think it is a circulation problem? This cannot be real.
irasan77 The one dr did say circulation issue.
It was excruciating to watch the ineptitude of the second family. The first thing I noticed was the wife saying how she was thnking steroid injections were gonna be the cure for him. Then he just gave up and resigned himself to living with pain instead of understanding that pain is the body's way of telling you there's an injury of some kind. But what got me the most was that the wife already done graduated from college before she ever starts researching her husband's case. Unbelievable. In the time of Internet she didn't look into it earlier? Strange.
@@TessaRoloson No she's saying she thinks it's weird that a doctor would see blue feet and not immediately look into a circulation problem right away. She's shocked that the patient didn't get a simple test that she's been getting routinely.
@@monicascott2354 Except...the original poster is talking about the second case, not the first lol.
I mean it depends honestly- what should obvious for one doctor might not be for the next
Big ups to the spouses. The first spouse was so happy that she had no memory of her situation and dropped everything for her and the second spouse went to nursing and used her knowledge and research to find a diagnosis.
That sigh of relief when you see that one doctor walking down the corridor holding patient's medical history's files in his/her hands.
That almost never happens
@@DutchMelon nope bcs they are electronic today.. not much papers that can go into the wrong hands more easily.. and it's easier to share the medical history between different facillities.. and it's cheaper, and it's more sustainable aand it's faster etc etc.. times change
That husband truly loves his wife.
Suba Spoop Ik
He truly is.
My mum got told that but she still past away 10 years ago now.
Don’t give the answer to the mystery in the title!
And here I am hoping they have the money to pay for all these tests and hospital stay because man...USA has some terrible pricing...
A healthcare system is a blessing
Well I am super glad to live somewhere where that is not even a thought. And, yes, my healthcare system is awesome.
@@shieh.4743 mine, too.... I am really glad to live in Germany..... but I guess in some cases it helps to search the internet....
Yep, we're fortunate to have a great public Healthcare system in New Zealand.
Usa dont Care for people without money. So happy I live in Denmark with one of the best Healthcare in the world.
Kristen's story is horrifying.
But MAN her husband is a sweetie. What a babe.
The first case makes me wonder how many "mental illnesses" are actually triggered by a physical/contagious illness & the resulting immune response. My psych thinks I have PANDAS but isn't sure. So this is quite interesting to me. My friend had an ovarian tumor that caused her to become belligerent, depressed & spaced out as her only symptoms for months before the pain started. It was truly terrifying. It was one of those teratomas with hair & teeth :\
The difference between autoimune diseses like the one above and real mental illness is that it is rapidly progressive and ends in death, because the tissue death is continuous due to the attack of the immune system. She would have died if they did not find the issue. Mental illness is usually a steady state with periods of better and worse, without physiological impairments on your other systems.
@@andreabrava6899
Why pointing the obvious? I mean, it's not something that would be relief to OP.
Some mental illnesses can cause direct and indirect physiological problems. Depression can make the serotonin producing parts of your brain to shrink, that's why antidepressants can be used to sort of kickstart it back and get it going again. The indirect effects can be obvious so i don't have to list them. Also some "mental illness" (quote unquote here) is due to an actual deficiency in the brain. I for example have ADHD and various stimuli tests and scans have concluded that my brain is unable to produce dopamine, hence the need to take amphetamines to get it to meet societies expectations of me to function in it.
I think the bigger point is that there may be a link to physical ailments that affects your mental health but isn't necessarily *lethal* and can be misdiagnosed as such.
@@ZoeF.OObviously it wasn't that obvious to OP!!! Or else she would not have asked how many mental patients exist who really have an autoimmune disorder or something else instead! So the first response was perfect. Yours wasn't.
Seeing Mark feet and hearing symptoms it was for sure his blod circulation not right... i have studied podology and can tell stright away he had problems with arteries. Doctors should know the pulse is first thing to check in that kind of condition.
IKR!!! I'm in school to be a nurse (halfway trough) my first thought was, that it's quite clear that it was a circulatory problem in his feet.. how could it take 4 years for someone to think about a common problem!?
I don't smoke and I have smoke about 2 cigarettes in my entire life. My big toes often look blue, my feet hurt and they're either on fire or my feet are freezing along with tingling in my feet, top and bottom. My entire body severely hurts from head to feet. But my feet are still on a different level of pain. I'm on disability, because I cannot stay awake, pain is exhausting, I have had to walk with a cane since having a Blood Clot in my legs almost 20 years ago. I wish someone could give me a diagnosis, other than Fibromyalgia.
Netflix movie 'Brain on fire' is about the first disease :o
Thanks. It's quite interesting.
What is that?
The book is so much better
So many of these stories have very loving partners supporting their spouse. It really warms my heart to see. 😌
Huh?
Love this channel
As for the second one, my older sister is going through the same thing and had to quit smoking immediately. She was a heavy smoker since she was like 14 (shes in her late 40s now). Its a scary thing
NMDA receptor malfunction causes dissociation.
Also dissociative drugs like Ketamine Dextromethorphan pcp etc. All act on the NMDA receptor
I firstly thought it was a Peripheral artery disease - which is widely known to be caused by smoking. It was a textbook example, really.
I have a friend who had this type of encephalitis. She was admitted to a psych ward for a time. Once she recovered, she was diagnosed with MS, and it's thought that the encephalitis masked the MS symptoms and could have been diagnosed earlier, had it not been for the anti-NMDA receptor encephalitis. I think they also found a tumour on her thyroid, so I think that was perhaps the trigger for it.. interesting to see another case, as I'd never heard of another before now.
I have basically no medical training beyond some rudimentary first aid and yet I still think that I’d know to check blood flow to someone’s feet if they literally had blue feet 🙄
i dont understand how any of the other doctors couldnt figure this out, none of them seemed to ask about his smoking? even i knew as soon as he said he smokes a pack a day.
The husband in the first story 😭 my heart 💙
It sounds like Mark has peripheral artery disease. My mom had it. It can end up killing you. The circulation in her digestive tract had also gotten so bad, her intestines started to die. She died at the age of 62.
Wow! Burger's disease, similar, yet different. The body is a fascinating and complicated thing.
Blessed are you that you have a husband roger, always in your side griefly stricken and helpless becoz he didn't know how to help his wife, he never leave you. May you stay strong and whole as family. Idem to the second couple, i admire her positive effort to discover her husband's ailment. Thumbs up to all of you!!!
Don't know what it is, tests mostly negative but they tell him wife is going to be in a permanent vegetative state, if she survives at all, good grief!
As for Mark when he presented with blue feet and pain why did no one check his pulses there, wouldn't that have been the first natural thing anyone would do? 5 years of suffering, no one telling him to stop smoking as a logical step regardless of not knowing exactly what he had other than an obvious, visible, peripheral circulatory collapse.
I called the teratoma in the first patient within the first seven minutes. Typically the extreme mood changes are very common and the menagisits. I'm glad she is okay, they are very difficult to diagnose off the bat. I dont understand why they didnt do a spinal tap after everything came back negative, tho.
I am so happy for the wonderful couple of the first story! What an horrible experience they passed!❤❤❤
Kristin disease is so scary! I’m glad she recovered!
One thing that I find really frustrating about this show is that they end every story with "they can't help but wonder, why it took so long for someone to make the right diagnosis", and the answer always boils down to one of 2 things: Obvious malpractice or what they had was really rare. You can't expect every doctor to be aware of every strange and rare condition that exists, they're human. And I'd rather have a general practicioner that can treat the regular illnesses than one that is hyperspecialized but struggles with the easy things because of that.
Edit: Going to the wrong type of specialist is the third option for an answer, actually.
doctors should send to other specialists, not just prescribe narcotics.
Really rare diseases is the basis of the show. If not about that it wouldn't be called mystery diagnosis 😂
@@arsonfly Yes, but in one episode they dealt with endometriosis even though it is a common female disease today.
“They were on the brink of suicide”
same with one episode about MS, which I don't think is as rare as some diseases on this show@@mirnacudiczgela1963
The first story, within a few minutes, I thought it was a teratoma. Idk why, but it just seemed like it was due to the emotional issues she was having. I feel so bad for her. I wish I could hug her.
Mark’s condition really proves just how much people should never ever touch cigarettes or any nicotine containing items. The fact that he was a smoker already had me feeling very angry at the doctors who were completely overlooking the fact that his habit of smoking cigarettes was the root cause of his medical issues.
It proves to me that American hospitals and clinics are full of uneducated people
Second part: yet another reason to never take up smoking.
honestly when a smoker says theyre sick 95% of the time the smoking in the reason.
I agree 100% but interestingly tobacco is used in some rare cases to manage (but not cure!) some auto immune disorders. Because it is so toxic the body fights the tobacco before fighting itself which can give patients a few months of respite from their symptoms before continuing with infusions :)
Circulation, smoking, not rocket science....:)
I'm a smoker and I second this. Mostly because (and now I'm just guessing) at one smoker, ten others get unwanted smoke at them. They might have asthma, allergies or migraine. What I decide to do to my own body and life is mine to deal with. Other people should never get affected by my life choices. Passive smoking could be just as dangerous as active smoking.
Where I live, you can now get a fee at around $150-200 for smoking in public, and I absolutely love that! Also, if you throw the butts on the ground, you could be charged for littering.
Its amazing what science and doctors are able to do.
I know no one cares, but I'm 99,% sure that dr. Dalmau is from Catalonia, a small region of Spain were we speak Catalan. I'm Catalan myself and listening to him speaking English with this thick accent was mindblowing.
I tant si es catala!
Yeah it sounded Spanish b ut also not
How was Mark still smoking? Surely he should have thought to quit earlier.
One thing with the husband he loves ❤️ his wife very much that is real love ❤️
Looking at his red and somewhat swollen feet, my first thought would have been circulation issues. That's the first thing my mind goes to with redness and swelling of the feet and lower legs. Either that or inflammation.
Where can I get myself a Roger?!?!?!?! 😭😭😭😭😭 He really cares about his wife
Kristen's story is the only one of these I've seen so far that doesn't start with weeks or months of "and the doctors didn't believe me, and sent me home", or similar.
Could you guys please upload 'Diagnosis X'also. Thanks so much , I love Mystery Diagnosis
Kristen went sicko mode
The second case was like watching my own life (with the exception of the blue feet). I saw specialists in 14 different medical fields and a year before finally getting a diagnosis of small fiber neuropathy. I don’t have much feeling in my feet anymore. 🙁
Buerger’s disease is also called thromboangiitis obliterans btw
It is hard to imagine that this could happen. I am a registered nurse and with his very first symptoms I knew it was a blood circulation problem.
I am very happy for you Christine i wish happiness you and your family!!!!
don't smoke kids!
Why would I smoke kids?
:) (sorry I had to)
Smart Doctor 👨⚕️ ❤❤❤❤! My hat 🎩 off to him!
The one thing I have taken away from this show is don't bother with GPs go straight to a specialist.
What is it with the blinking
An advert every 4 minutes...thanx
the first case is really freaky. because of brain cells in the dermoid cyst, the body fought against her actual brain where those particular cysts are found! a lady i know had one of them in her stomach(perhaps overies, she never ekaborated) and the docs told her it is caused by a would be twin but never developed. How freaky is that? in this episode the said they don't know! They can be found in 3 other pa=s of the body too. Mad. And that poor lady's immune system got it wrong and started attacking itself. .
Mark can be proud of himself! I hope he is still doing well today and is painfree now 👍
so don't smoke guys
Do you know how hard it is to quit? None of the aids on the market have helped me at all. I have tried cold turkey, I've tried prayer, meditation, all that stuff and I still have the nasty habit. I don't smoke as much as I used too, but still can't quit. Some say it is easier to quit drugs and alcohol than to quit smoking.
@@rachelmartin3631 Just keep trying, you can do it if you decide to! Stop buying them so you can't smoke. You don't want to die of lung cancer or other pulmonary disease... Some people have been able to stop smoking after a psychedelic trip. Liberty cap mushrooms are a great and natural option.
Why do people always say “I thought they were possessed”. Why not dissociating, delusional, or something that are actual something that exist. People aren’t possessed.
It's the US.. there are many people in the US who thinks &/or says that they can cure people, preform miracles trough prayer..
Ingrid Åkerblom apparently they think that, yes.. I’m glad they have their faith, even though I don’t have any faith other than trying to have faith in people, but it’s kinda going insane when people think possession is real.
@@Surdeigt yes! Same here, sometimes i can be jelaus of people who have deep faith & can find comfort in that. But I have difficulty to accept/understand that that same deep faith, often is more harm than not & when innocent children are the ones getting hurt, noo I just can't accept that.. in this case it's not a child, but still..
People have a psycological need to bealive in something bigger/grater than ourself & our position on the food scale, some bealive in god, some in faith & others in science.. non spiritual people can still think that they had had an paranormal experience when it's "just" the barin playing tricks.. It's kind of natural to blame the supernatural, when we don't understand & science is falling short..
I think many of them mean it more metaphorically.
Sheila........to try to help my BEST FRIEND AND HUSBAND...... sooo sweet and beautiful said ❤❤❤
The effects of tobacco smoke on the circulatory system include: raised blood pressure and heart rate. constriction (tightening) of blood vessels in the skin, resulting in a drop in skin temperature. less oxygen carried by the blood during exercise.
- Cigarette smoking greatly increases your risk of Buerger's disease. But Buerger's disease can occur in people who use any form of tobacco, including cigars and chewing tobacco.
But not everyone who smokes develops Buergers Disease. There is a genetic predisposition involved, ( most common in Askenazi Jews), that i did not inherit ( i've been tested)
I’m just few minutes into the 2nd story of the guy who’s a smoker having feet (circulation) problems. Is it Buerger’s disease? That’s what I’d be thinking & testing for, but I’m just a nurse.
I’ll have to keep watching to see, but I guess it must be something much rarer & harder to diagnose than that because this it Mystery diagnosis, it must have taken awhile to diagnose & Buerger’s disease is so obvious when you have a young male smoker with circulation problems in his feet.
In every intro to these episodes when he says " We look to doctors to give us answers, but what if they cant". I always add "Or wont" in my head.
?
Why do you put subtitles for Dr. Dalmau? He sounds like he is catalan but he is perfectly understandable
harder to understand for someone who’s not fluent in english
Maybe for you.
Kristin I hope you get better
7:42 "just" having an anxiety attack???? I hear this all the time from people who have yet to experience anxiety themselves; and they will!
To be fair, an anxiety attack is generally not a medical emergency.
@@ash-is-napping Maybe you should consider looking up the definition of the word "fair" in this context...!
@@xelionizer you can’t die from an anxiety attack fam. I have them every day.
In these stories the doctor never gets to know the disease in first attempt
That's why it's called mystery diagnosis due to the fact that no doctors could identify the patients condition at the beginning
It's waaaayyyy more commom than you think.. I almost died bcs they didn't find out at first that I had sepsis.. they thought i had something with my kidneys or urethra (unsure of the spelling, sorry enlish is not my first language), so I ate the wrong medication for days, didn't got better & I was rushed back to hospital, going into septic chock, I was only a few hours from death (it was about 6pm when i arrived at the ER & I wouldn't have survived the night) and in undiscribable pain I couldn't do anything but scream & cry bcs of the pain, when I got worse I didn't have the energy to scream anymore.. many of my internal organs where about to shut down.. my liver, kidnes among others, was swollen.. But I got a new doctor at the ER, and she saved my life..
Honestly if it's something more rare or complicated usually it's not known on first attempt
@@ingridakerblom7577 right!!!!??? I have been waiting for a diagnosis for more than 13 years...🤕
Thankyou Jesus. For her healing. Continue blessing this family with peace of mind and health. Amen
Are you serious? Do you think this Jesus guy could’ve allowed people to get sick in the first place-or, perhaps, could have caused the illness?
Jesus did nothing. It was the doctors that assisted these people.
the first half of this video puts things heavily in perspective,,, all four of my teratomas were benign, if i could manage those odds, then what if i had managed that? it's incredibly scary
After seeing few of those programs I doubt that they can be real stories. Even I, with no education in health issues, could tell from the first minute what was wrong with Mark. Also I could tell from some other programs what was most likely wrong, like the woman with the endometriosis. What doctor could not figure that out? Everything about her screamed endometriosis!
????? there was no endometriosis
Anti nmdh receptor encephalitis is like being on drugs without drugs... I am living alone and nobody was there to help me... I felt like I was flying and seeing my city from above but I was lying on my bed the entire time... I gladly collapsed on the hallway before I died from it
I hate that the tumor made me laugh cause I thought of Will & Grace, “it had mini hair... and mini teeth”
My dad also had Buergers Disease, its onset was below his 20's very unknown at that time, and he was a heavy smoker until he died at age 81, dispite to all advises to quit smoking.
He also developed diabetis after his 50's,
had several heart attacs and heart infarct, and did not comply to any dietary advices or advice to move more around the house for his blood circulation
Two of his heart arteries were replaced, and also the artery that splits above the upper legs ( i dont know how to name it, in Dutch they call it "broekoperatie, translated as "pants surgery".
He evenually died of vasculair demention, after having 3 strokes and 2 epileptic convulsiond in 1 year
Im seeing docs about my issue. Basically for years ive had 24/7 intense migraines, all the meds i tried only made it worst or my body badly reacted. I also feel constant brain pressure and often dizziness. Im going for more bloodwork and mri soon 🙄
QcMaggie look up “pseudotumor cerebri” and ask for a lumbar puncture if the MRI is normal. And please find a neurologist that specializes in...whatever, if you’ve not already!
@@lindsaysheffield I agree!! I had that 2 weeks after my daughter was born...if you end up with that as a diagnosis, do not let them put in a shunt!! Find a Neurosurgeon who will preform a cranial decompression!!! You'll be in remission in no time.
Cyndi Sherry yep - and don’t wait either - my vision got really damaged - find a neuro-ophthalmologist to follow up with too. They’re few and far between but worth it
@@lindsaysheffield Me too !! Agreed!!! 👍
I honestly thought with the symptoms of the man it would be diagnosed as RSD/CRPS. A disease that presents the exact way. Excruciating pain, swelling, burning, cold, temperature fluctuations, colour changes. As I have CRPS/RSD and it's the exact same symptoms. Every symptom that was mentioned was also a classic symptom of crps. Happy it wasn't as it's absolutely HORRIBLE to live with. No cure what so ever. I'm 24 years old and now in a wheelchair due to my CRPS being throughout the entire left side of my body and in my back after having spinal cord stimulator surgery. I have leads in my epically cord & a battery implanted in my right lower back which I have to charge every few days and I'm on over 50 tablets a day including very strong pain medication which is stronger than morphine but still in so much pain daily, unable to even live a normal life. My mum became my full time carer in 2016 and literally does everything for me. I love watching these because it teaches me about diseases I've never heard of before. I have 4 diseases that before I was diagnosed with them I'd never heard of them. The crps I've now had almost 7 years. I'm unable to work and won't ever work again because of the severity of my health now and how much it's deteriorated. I am a fully qualified nursery nurse/teaching assistant. I actually started making awareness artwork a couple of years ago and make over 80 different illnesses and disease artwork, if anyone here is interested it's Fighting for Awareness By Tara Jane on instagram & Facebook. To name a few I make
Crohn's & Colitis
Interstitial Cystitis
Endometriosis
Vascularitis
Cystic Fibrosis
Fibromyalgia
Celiac disease
And many more plus others that are not well know such as CRPS, Postural Orthostatic Tachycardia Syndrome, Inappropriate Sinus Tachycardia, Urethral Pain Syndrome (all of which I have along with Arthirits).
I have it too! I wondered if this was finally the episode that showed it! Somebody interview us!
I'm going to add your page on Facebook.
I have CRPS too (and juvenile RA and have had ADEM and was born with bacterial meningitis) :)
I have CRPS also with fibromyalgia and some other issues. It’s really difficult especially with my having two young children and a husband who is law enforcement all while running the farm too. You all rock in my opinion and are stronger than the world could even imagine! 💙
For my first ten years of smoking I got annoyed when doctors asked me about smoking and then blamed whatever symptoms I had on that. Now, I'm happy to tell that I smoke, in case they might find something odd that could be related to the smoking. I even go on general check-ups to detect possible issues related to the smoking, before it gets too serious.
So, why didn't any doctor followed up his smoking?! There isn't warning labels on the packages for decoration...
here’s an idea GIVE UP!
My father was diagnosed with buerger's disease but it was too late.. his foot became gangrenous until it was amputated...
7:57 yea I get you, I even feel my own heartbeat goes up just thinking about how this has to be
The first story made me want to scream when I heard the hospital put a bite block in her mouth 😫😫😫 no, no, no! Please don’t ever do that, it’s so dangerous and archaic.
Anyone having a seizure just needs reassurance and placing in the recovery position after their seizure.
Huh?
I thought the bite block was because she was trying to bite people and herself due to her mental state.
You shoud never trust an edited comment
I go through what she does nearly every day . . Been 10 plus years still no idea why I do have epilepsy ect but still mystery. I lose days unaware of my aggression. Days in hospital. And alot of sedative. Not mentally crazy trust me it was my first thought.. on the bright side luckily due to coming in to money I can finally go privet .
Those second story concerns me.... why on earth would you go to a general practitioner, a podiatrist etc. why didn't they go to an e,regency room?
Sorry but even I know that if a part of your body goes blue it’s because of a circulatory issue
My grandfather had the similar problems because of the smoking 😢
This is a great Educational Series, as it shows just how complex the Human Body really is. I am always amazed as to what it is capable of doing.
Wow. Extraordinary that they had to filter the plasma to get rid of the antibodies
The most difficult case I have watched
I probably have a teratoma... so... yeah... I'll stop delaying and will go get my confirmation exams ASAP.... I'm kinda worried now....
Have you been to the doctor yet? If it is cancer, I't is soooo important that you get treatment as soon as possible! So the cancer dosen't spread!
Hope you are better!
@@ingridakerblom7577 had made some exams, my md doesn't think it can cancerous. But still need more tests to be sure. Thanks for the kind words ^^
@@Watashinomori How are you doing?
@@Amy-yl6mt still fine... Hadn't done the exams yet... But still alive... One simply cannot stop procrastinating...
@@Watashinomori
Please tell me you've got the test done and stopped procrastinating? I wish you the best . Health is something we can't put on the back burner.
Weirdly I knew a woman with exactly the same thing, her last name was Gunther too,but we live on the other side of the planet to this case. It's just strange they had the same last name with the same condition. She was ok as well, recovered well.
She needs to see a real Dr. House.
so for the first case doctors at the first hospital suspected a tumour but looked in the wrong spot.
Love this chanel but I really dislike that they put subtitles to anyone with a foreigner accent even when they speak english fluently.
The doctor that's subtitled in this episode has a fairly strong accent, some people might have difficulty understanding him.
Where's the doctor from?
I am partially deaf and I personally struggle to understand those that have a very strong accent so it helps me a lot! 😬
His speech is perfectly clear. He sounds like his first language is Spanish
Katarina Mihajlovic Dr. Dalmau studied in Barcelona. So he is Spanish / Catalonian.
It's stories like this (second one) that makes me want to be a doctor even more. I wouldn't have a patient come to see me with blue feet, having to quit his job, and just say oh heres some painkillers off you go! 🙄😠
I love the phrase ‘defied the experts’ what experts? Clearly most medics are not. A total absence of lateral thinking from these supposed ‘experts’
It strange why she would put his feet in cold water! Didn't she know it was a sign of bad circulations. People turn blue from not getting blood in a heart attact. He wasn't getting blood to his feet.
Yeah idk, I am not a doctor but even I can see that
puts smoke away lol
I ve detected something in most mystery diagnosis episodes, most doctors got ther basic medical school outside of USA
What do you mean?
So his feet are blue and cold and this doctor towards the end of the story is the first to feel for pedal pulses? Is this a joke?
Allison Shepard obviously just dramatization - peripheral pulses Are a standard in physical exam and even a year one medical student would have known that
@@Dranamolous or me being a nurse haha.
i must say my grand grand mother was a chainsmoker and might have had that too because both her legs got amputated well
My grandmother also. And her son( my dad )also had Buergers Disease.
39:35 hes turning into thanos
This reminds me of my feet they burned felt like I was standing on a bed of pins on fire I couldn't even walk on them I crawled to the bathroom XD it took 5 years for the doctor to realise it my meds for my siezures
Seems like these doctors learned about medicine from ER series, unfortunately they are a majority
?