Recovering after Pulmonary Embolism (first 4 weeks)....
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- Опубліковано 5 тра 2019
- I'm uploading my journey so it can hopefully help others who might have suffered the same....hope it helps!
If you have suffered a Pulmonary Embolism and love Running or Cycling then there's a really cool group "Running After a Pulmonary Embolism", here's the link! / 81164797980 - Спорт
23 F diagnosed with bilateral PEs. Thank you for sharing your journey. I’m only a week in and still a bit scared.
II just got out of hospital after 5 days, I had submissive PEs in both lungs with heart strain and dilation on my CT :( on thinners now but I'm shattered and still short of breath:( I'm 22 and normally run 4 miles every day so I'm crushed :( I hope I can get back to being me with no long term heart issues I'm so scared
been told i wont get anything until the 3 months point where they do echo heart scan so no running till then i guess :(
Hello, how are you feeling now since it’s been 2 years. Hope all is well.
Hope you guys are improving.. it's a physical and mental recovery
This is good. Thanks gor documenting your recovery. All of us are here for the same reason... When will "THIS" get BETTER!!
Im 4 days out of the hospital, 6 days post op leg thromb surgery. Have p.e. in each lung. On injections 2 times a day in the stomach. Supposed to be best. Take it if its offered, im reading it increases survival rate at 30, 60 and 6 months!.
Started as pneumonia, then extreme exhaustion and quick shortness of breath with minimal walking ( to bathroom and back to bed). After 10 days and round of antibiotics, Exhaustion worsened and my left leg swelled. Obviously i was in trouble. Straight to e.r. and was quickly diagnosed via a CT scan. Please note doc stated blood clots do not show up in x-rays. Ill note had severe back pain. Lung dic stated that is classic p.e. symptom. As i read in comments this battle is both physical and mental!! I was asked 3 times randomly if i had thoughts of taking my own life. Now i understand why. The Exhaustion frim this is the worst! Its going to be a fight to get our lives back!
Im focusing on very small daily goals to indiacte I'm progressing. Bought a cheap pulse / oximeter off Amazon. Noticed very high heart rate with shortness of breath coming back from bathroom, however my blood oxygen was normal at 97 - 98. Very strange. Another thing i came across is resting heart rate during this healing. If we can get our resting heart rate under 80 before the 30 day mark, we are in a better recovery demographic than those over 90, then those over 110.
Im guessing exercise and walking as soon as doc approved... But definitely ask them. Long road back i have accepted that as reality!
Stay closevto your loved ones, appreciate all that is being done for you. Make your peace with your Creator just in case we become a statistic!
I wish you all well on this journey and that we all can make it back to a normal life again!!
Peace!!
I'm Years post PE and all good - still taking meds on a daily basis but other than that, my life is back to normal really. Will post another video update soon! All the best on your recovery. Best regards Paul
Hi, I was unable to open your comment but thanks for the sub. Glad you're feeling better. I hope you do an update soon. There are not many videos of real people that have suffered from this condition. Stay blessed!
Thanks for the video ...helped a lot ...cheers
Thanks for doing this video. I just got diagnosed and wanted information
Thanks some great information and very inspiring
Thanks for sharing. I've just been diagnosed with PE this morning, I've got a long road ahead of me.
Be strong l have pulmonary embolism as well and ls tough coping 😞
@@jessicaperezares9422 Thanks. After taking Eliquis even after a few days I feel much much better - no pain and I can run again. Also my energy levels are back to where they used to be, and my legs aren't extremely bloated anymore.
Took me 12 Months to fully recover - everybody is different. Good luck with your journey and hope you recover quickly. Best regards Paul
@@chillitechnology Thanks Paul -- turns out my recovery was much faster, on Thursday I was discharged from the ER, on Monday (4 days later) I was back to running with no pain or issues. Still on Eliquin, not sure how much longer.
Diagnosed a week ago after CT Scan - following covid. Been taking blood thinners and exercising as much as I can cope with - breathing exercises - going to get rid of this !!
I suffering PE due to covid. Hope you've recovered well.
🙏 Hope you are doing well and fully recovered.
All recoved now, well I say that but I dont think ill ever be the same again
@Jocelyn Ojeda hi mam..how's your condition now and what are your medicines?
@@abdullahmuhammed4549 how are you doing now?
I have Pulmonary Embolism. They performed blood test came back positive for Lupus Anticoagulant. But what causes this?
Hi, my dad coughed up his PE. I was about 9yo, what helped him use his lungs better was singing exercises. You may also find changes in altitude will affect you. But keep exercising, use all your lungs down to your waistband and you will heal better. Keep at it.......
Thank you! I love my Snowboarding so hoping I can cope with altitude this next Winter Season. My lungs are slowly improving, I've knocked 5 minutes from my 1st to 3rd Park Run already and I came 8th overall this weekend followed by a few games of football with the local team. I get out of breath quicker but recover quickly also....as you say, I'm just keeping at it and exercising the lungs as much as I can! Hope your dad fully recovered :)
MrChilliTech he certainly did, sadly I lost him three yrs ago to prostate cancer ( get that checked! ) at the tender age of 84. I’d like to see you on horseback next, you can keep your tin tray antics in snow,lolol
you cannot cough up a PE. PEs are in the pulmonary arterial vessels, and coughing only expectorates material from your airways. Bloody cough is a common occurrence, but it is not the embolus/emboli
@@sjpeckham1 I’ve heard and seen a news article of a person who coughed up some sought of clot, which was huge, and in the shape of the entire lungs blood vessel.
Wonder if you monitor your videos, if so any update on how you're getting on now? I got covid about 2 months back, they think that's what caused my pe's, they say i had two large pe one in each lung with multiple other small pe's lower down. I've been having breathing problems for years, but feel a 1000x better now, that said, only 2 weeks out of a&e and I walked uphill for about a third of a mile and was completely unable to breathe properly, took about 20 minutes to get my breath back and not feel like I was about to faint.
Anyhow, would be good to hear how you got on after 6 months, a year.. etc..
Hi bud thank you for this just wanted to no I’m fives days in with blood thinners and still getting breathing problems?? Randomly Is this normal it came today suddenly? did you have any special diets or anything?? Please let me no thanks god willing I get better
Mr Chilli tech, just wanted to see how your doing on the 10mg xarelto? I'm supposed to change to that dose in Feb God willing. Any advice? Do you ever have a glass of wine?
It’s been 13 weeks now on blood thinners. I have to be on these till Xmas because hospital is full of people with blood clots . I’m not happy about this obviously. I’m flying soon and very nervous Been told to inform insurance , get flight socks and no alcohol or coffee before flight . Wish me luck
I had bi lateral PE three weeks ago and I feel suprisingly well..out walking the dog regularly and doing some light weights..good luck
andrew hurd glad you’re doing well Andrew! It’s taken me a full 12 months to feel “normal”. I was back running mid last year, was hitting 21mins Park Run but was exhausted afterwards and my lungs were struggling. I’m now hitting personal best times I didn’t before, marked my 12 month clot anniversary by tacking the 10 mile fell run where it all began last year (did ok!) and finally, I’m no longer exhausted at the end of the day. It’s taken me 12 months to get there but everybody is different. Good luck on your journey, sounds like you’re doing fantastic - keep it up and hope your recovery is a quick one 😁👍
@@chillitechnology that's brilliant there is life after PE
@@chillitechnology daft thing is I'm a charge nurse at a busy hospital I managed not to get covid than had this.. bloody typical..how long did you have off work?
andrew hurd 😂 typical! I was diagnosed the Friday afternoon and back to work Monday, however, for a few weeks after, I was desperate for afternoon naps...tiredness got me. I really do feel better than ever now though, it’s amazing how quick you’re body can recover. I do think my personal best running times is down to Xeralto blood thinners! 😂😂😂
@@chillitechnology I'm on apixaban very similar drug
2 weeks today since my PE caused me to faint away while walking to store. Been on Eliquis. Continuing dosage 5mg twice/day after first 7 days of 10mg twice/day. Kind of afraid to walk to the store now, tho.
How r u doing now
I was just released from the hospital for PE which started apparently in my left calf (rvt) now im losing functionality in my left foot, unable to bend foot. Will this get better when blood clots clear from blood thinners I’m on?
This causes much difficulty walking
how are you doing 4 years later?
Are you checking you oxygen saturation? How it it while walking? resting?
Was anyone coughing alot of blood
me usuaully with mucus while on blood thinners, sometiems bright red few time dark red, was on heparin for 3 days now on elequis for about a month just started. got PE 5 months ago but thought is was infection, it sort of came and went until i had no resort to ER. CT scan proved the Embolism. Got it from Post Covid from being on a plane and the pressure difference caused lung to fail. it very common in post covid cases.....i am a triathlete.....recovery is taking small steps and increasing every month. depends on your heath history and if you drink and smoke....
Thank you for sharing your story, I was diagnosed five days ago with an PE and I am still exhausted and still have chest squeezing. I am out of breath all of the time and getting worried the blood thinners are not working. When will my breathing get better? Night pains are waking me up and stressing me out. Today I found myself getting very emotional as I am exhausted and frustrated.
Hope you're improving
@@brookiebiceps4743 Hi. Thanks for checking in. I have been in and out of specialist appointments now telling me I have a blood disorder and they found a second clot. I went from working out three times a week to twice a week ended up gaining weight for not apparent reason and now on another batch of blood thinners. This is going to be a long recovery. Oh boy.
@@DM-dj6ji they found a clot while you were on thinners? Was it a PE? What meds are/were you on? I'm sorry you're going through this. I'm on long term thinners 🤦♀️
@@brookiebiceps4743 yes another clot at the back of my leg where I had surgery and yes I was on blood thinners. I don’t know about you but my blood thinners are making me feel off. A bit down and my energy level has been really bad. Working out is a struggle and I am not liking the bruising that just forms out of nowhere.
@@DM-dj6ji it's such a struggle physically and mentally, 9 months later I still get short of breath and chest pain.. which obviously makes me worry! I started on xarelto but now in lovenox injections
Thank you for your open comments and public journey and struggles with your pulmonary embolism... I am right at 3 to 4 weeks post my PE. Really trying to find out how long it took you to get back in running shape and working out... Hope your doing well!
Jason Scott took me about 6 weeks to start running (slowly) post check-up for my heart etc, the first 3 months were tough, out of breath and super tired afterwards. 3-9 months after I was running better times than I did before - just wiped me out physically afterwards. 12 months after and I was fully over it all - back to my normal self, running, cycling, MTB physically and mentally. I'm still on Xeralto blood thinners but all the paranoia and stress has gone. Everyone is different, it normally takes 12-24 months. Just be patient....listen to your body, expect to be super tired post exercise coming back and ease back gently. I joined a FB group "Running after a Pulmonary Embolism " which helped massively. Good luck in your journey....you'll bounce back but be patient 😀 (I wasn't and it is frustrating!)
@@chillitechnology hi, I'm also on xarelto for PE, I started in August.. did u have side effects? I'm so nervous to clot again, every ache and pain makes me nervous
@@brookiebiceps4743 no side effects to Xeralto....took me a good 12 months to fully feel myself again, it can take up to 24 months, everybody is different. First 6 months was tough getting my lungs back to normal, took it easy and then started increasing my exercise. The next part was battling tiredness and the mental side (PTSD, I had a few panic attacks and just took time to put it all behind me). I’m now back to my 100% normal self...physically and mentally. Give it time and take it easy, you’ll get there 😁👍👍👍
@@chillitechnology are you off of meds completely?
@@brookiebiceps4743 no....still on 10mg of Xeralto daily and for the future
Did you end up doing any further update videos in regards to this?
Shooting a video this weekend and will upload next week!
Meg do u suffer from this condition? Mr Chili inspired me to do a video as well. You can check it out.
@@brookiebiceps4743 not me but my husband! I watched your video thanks 😊
Glad to came across your channel! Diagnosed with 2 small PE on left lobe 5 days now and feeling better compare to days before diagnosis.
Any update on your health stats, I’m assuming it’s a success recovery? Thanks for sharing us your video, definitely uplifting 🙏🙏💕💕
I’m all good & 4 years on , snowboarding , running & living as I did before 😀 will post a new video re blood clots soon