Multiple Sclerosis Muscle Cramps: What is Spasticity?
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- Опубліковано 5 жов 2024
- What is spasticity? What's up with Multiple Sclerosis muscle cramps, legs spasms and stiff limbs? I answer these questions in this short focus video.
The footage for this quick Multiple Sclerosis educational video is cut from a longer video on spasticity I recorded a while back. This focus video concept is new, and I'd love feedback on if you like this "just the facts" quick video style or not? Please let me know in the comments!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
This quick (under 2 minutes) focus video is cut from older footage I recorded on spasticity. I'm trying this new format, what do you think? Are focused videos like this one something you'd like to see more of? Please let me know in the comments section!
Thanks Dr. Boster for the video. Longer videos tend to be more informative, but I learn from focus videos, too.
Right on Cementra! Longer vid on spasticity (and intrathecal baclofen!) coming at you this friday! #WeHaveMS
I have to say, I’ve watched a LOT of videos and done a lot of research on my own, but you’ve explained this so clearly and simply. THANK YOU!
This is one of my worst problems. It affects everything that I do every moment of everyday and night. Have to keep potassium up, temperature about 70 degrees. Can't get too hot or cold. Take baclofen as well. Love your example.
#WeHaveMS
It doesn’t let me sleep sadly 😔
I think the short format would work for some subjects, but I personally like the longer, more in depth ones. Thanks for making these videos. Your passion for MS shines through in every single one!
YW Megan! #WeHaveMS
Actually Dr Boster I like longer videos. I like as much of your knowledge as I can get! Thanks❤️
Great feedback. I'm thinking of making a longer spasticity related video focused on intrathecal baclofen pumps. Would that be of interest to folks, do you think? #WeHaveMS
Hi Aaron, I know this is an older video so I don't expect you to see it or respond but it's my hope that you do. Where I'm being treated for MS does not offer baclofen pumps. I'm now taking it orally three times a day and that doesn't seem to be enough sometimes. I had another MRI last week and it showed an enhancing lesion on my thoracic spine, So the plan is for me to be treated with steroids for a week and then go to another medication. I'm now taking gilenya which doesn't seem to be doing the job. My practitioner and I are both leading towards tysabri. Thank you for your time buddy and I'm always watching for your next video
This is the best explanation ever. Thanks
Thank you for this short video. It’s a perfect explanation.
Awesome video as always Dr. B! Round 2 Lemtrada completed Wednesday. Ty for all you do and have a great day and weekend. MZ
NICE Matt! Enjoy your weekend! #WeHaveMS
Thank you Dr. very good information.
YW Harrah! #WeHaveMS
Hi Aaron.
Just for better audio quality purposes, would you consider getting a microphone or change your recording machine so that there is no background noise. Would be really great for us subscribers! Take no offense. Thanks in advance for great video content :) You help so much with this channel. Appreciate your hard work.
Have a great day!
Thank you for the great suggestion springfield. I use a Canon G7Xii, which is a groovy little camera, but it doesn't have a mic jack. The built in mic leaves a bit to be desired (as you've noticed!). I did some UA-cam research and it looks like one solution is to record on a separate device and sync up the audio and visual later in my video editor. I'll have to come up with something, or get a better camera. Any suggestions would be welcome!
Hi,Dr.B! I've always found your bedside manner to channel was friendly and warm. Very good example!!! I can type better than talking in person sometimes because it allows me to sit and think when words sometimes escape me when talking to someone. Would enjoy hearing your theory on this. Great information as always!!
Howdy AJ's HR! Thank you for the kind comments on this one! Please be on the lookout this weekend when I publish a longer discussion on spasticity and baclofen pumps! Please let me know what you think!
Regarding your question, sometimes folks perform less well under pressure (like when someone is staring at your face waiting for you to finish your sentence) as compared to doing the same task without any pressure (like composing your thoughts on a computer where you can stop, reflect, edit, etc). I think that folks with MS are sometimes more subject to this, at least that is my observation.
@@AaronBosterMD Looking forward to hearing your thoughts on the baclofen pump and other solutions for quality of life!
#WeHaveMS
Howdy Dr Boster
With your spasticity example, I think this very concise explanatory format used...to get across a complex point simply is most useful
I further add thank you!
The suggestion of an ataxia video interests me... that is the most weird symptom and one which I found most distressing… The one good thing about being a wheelchair user is not having to feel self-conscious about the way I walk.
Thank you for sharing that Mr. Knowles. Ataxia is a great topic for a video!
Great focus video Dr Aaron! Cold temps amp up my spasticity. Along with daily oral baclofen, stretching, movement, ambulating, and short walks in back yard help tune down spasticity for me. Heating pad on trunk & limbs. electric throw lap blanket on legs during daytime rest periods. Electric blanket in bed (even in air conditioned summer night's!! 😂😂) Extra layers of clothing on feet and legs helps too. Thanks for your channel.
Electric blanket = good to have! #WeHaveMS
I appreciate all of the information that you provide, but that being said I think I prefer the longer format. I think everyone who watches your channel was left feeling as though something was missing from the shorter format....hmm what could it be???? I hope we have not seen the last of your feathered friends!😀
Right on L Baker! Thank you for sharing, this is exactly what I wanted to learn. I've just wrapped up a 13 minute video on Combating Severe Spasticity with Intrathecal Baclofen! Please be on the lookout for that one, probably this coming weekend. Please let me know what you think!
my mother died with MS a few months ago after a failed suicide attempt by aspirin overdose. The aspirin overdose triggered an MS attack which bent her leg into a painful contracture. No amount of pain meds could stop the pain. She then had a stroke which stopped her eating ability completely and the contracture got worse. The stroke also stopped processing of saliva and her lungs filled up with saliva which killed her. I think if she had a peg tube earlier, we could have saved her
I'm sorry it must been tough
Good stuff. I recently was getting charlie horses often in the night. I thought maybe it was a symptom of my MS. I started taking magnesium because I was on the Keto diet and heard that Magnesium levels can get low. Cramping and tightness in legs went away after about a week!
NICE Matt! How are things going these days? How's the keto diet treating you? #WeHaveMS
Get well soon from that cold!
Thanks Cesar! I'm feeling better ;)
I like the information , however , once I do have time to sit and watch your presentations, I would prefer more info . So longer with more info is still good.
That's super helpful feedback Jeanne! TY. I have a favor to ask. This Friday I plan to publish a longer (13 min) video on spasticity. Would you mind checking it out and reporting back please?
Sure , I will!
TY Jeanne! #WeHaveMS
Thanks Aaron. I have a mean one in my left thigh.
ouch!
Thanks Dr.
YW Larry! #WeHaveMS
I like short and quick myself but don’t think it’d fit every subject
This subject/video worked in this short format if you’d ask me :)
great feedback kg0rz! Thanks!
I agree. I think it depends on the subject matter.
I'm thinking for definitions (e.g. this short video I defined spasticity in 1 minute 45 seconds). I envision doing doing something similar with some other term such as neurogenic bladder or dysarthria). I would produce these in addition to the normal 5-12 minute length videos...still thinking on it...
Great video but what causes tremors?? There are times my left leg shakes so hard it looks like a seizure.
Thanks for that video. I learned a lot again. But this time the audio wasn’t so good. Maybe you can fix it for the next video. For when it’s windy there are things you can put on the microphone of your camera. It filters out the sound of wind and will record the normal sound much more clearly.
I have trouble with my hearing when there are a lot of sounds around 🙈
I took your advice Hupfer and I created a wind muff for my vlogging camera! TY for the fantastic suggestion!
Aaron Boster MD awesome, thanks a lot :)
Used mic muff on 2 videos I recorded this week end. I plan to publish them over the next 2 weekends. Please let me know your thoughts on the audio!
Aaron Boster MD sure I will :)
TY #WeHaveMS
I am hypopara and I experience this all the time.
Spasticity is ruining me right now... I'm on baclofen it does nothing for these attacks... I've fought for diazepam again not doing much of anything... The nurses keep saying "it's just an exhaserbation"... Burn all I can think of is this isn't "just" anything... These are causing me choking, my tongue to be stuck or rattle, coughing. And of course rapid muscle movements elsewhere... something that causes me to be unable to breathe for periods of time can't "just" be anything surely...
sounds super yucky!
Thank you so much for this information there’s not much information on spasticity... you explained it perfect! Do you have a video on a new symptom I’m having where I wake up and my ankle and foot is feeling like it’s being crushed and being torn towards the inside to the other foot it’s so painful and I can’t find any information on it? Thank U again! 🧡MS AWARENESS🧡
#WeHaveMS That sounds like spasticity or dystonia to me. Ask your provider for sure.
Hey Doc what do they call it when only part of the muscle relaxes and part of it stays contracted forming a knot. I get them in my lower calf muscle(lowest part of the Gastrocnemius) and upper thigh where the muscle connects to the groin(highest part of the Adductor Longus) Left leg only they get as big as tennis balls and stay at least four hours and as long as four days. Very painful and the only thing that helps is a trip to the ER where they give me 10mg of IV Valium and a IV Morphine. That takes the pain away but the knot can hang around for days. I have had all the test they are not blood clots or anything else just muscle cramps. Sorry for being so specific and thank you so much for the work you are doing. You are helping more people than you truly know. God Bless You
You describe a cramp!! They are horrible and painful!! ouch!
I just want to add I do not want to know how to treat my problem I only want to know the medical term for the condition. Thanks again
gotcha!
I have been getting what feel like Charlie horse cramps in my abdomen, but not only that I can’t bend my arms Sometimes they just feel like they’re stuck in a bent position like I’m the tin man and I need oil to loosen my joints and I been waking up with Charlie horses in my calves multiple times every night. I started to research my symptoms and I keep coming across MS information so I suppose it’s time I have a conversation with my primary care 🤦🏻♀️
I’m curious as to your thoughts on treating spasticity with Gabapentin.
I've seen it help.
How do you stop the cramping?
I think I have this on the inside of my inner thighs. Feels like my adductors and hamstrings are firing at the same time. Like wringing out a towel. Had it for years and no doctor can seem to figure it out
I'm just posting this on the off chance I can garner some aid from any input, but I seem to have trouble with this and cramping. I've been diagnosed with benign fasciculation syndrome and fibromyalgia. My major is is that I've gotten worse and worse over the 5 or so years since i was diagnosed. I have symptoms that don't fit. Everytime i wake up from sleep, I'm super stiff and in pain, every joint joint in my body pops when I get moving and sometimes i feel so heavy i can hardly get out of bed for days at a time. I cant exercise at all, anything i repeat with weight will start twitching and/or lock up after about 5 reps; even just flexing. Yes, I take electrolytes and stay hydrated (bloodwork agrees). I have trouble writing or typing bc its hard to control my hands and at times. Other issues i have are random stabbing pain and bee stings, a burning sensation all over and just getting poked wherever hurts way more than it should and takes awhile to go away. I also wake up out of sleep from cramps like charlie horses and find that I've pushed my mattress away from my wall. I have a bunch of other issues i can't even fit on here, but that covers main stuff. Ive tested negative for most autoimmune and my brain scan was clear. Im pushing for whatever spine test for ms. A lot of bfs people think they have ms when they dont, but i have a bunch of symptoms bfs patients dont seem to have. Any feedback is welcome! Fighting for my life at this point. Without my daughter I'd of called it quits by now. Thanks.
Thanks for the video Dr. B ! So I suppose this explains the fight the foot and leg can have when going from gas to break when driving? Or is this another issue? Can you do a video specific to dealing with this and things one can do to stay in the drivers seat.
If you have concerns with driving please talk to your provider about getting OT driving evaluation. Also please avoid driving if you're worried about controlling your feet on the pedals!
Dr. Boster, I broke my back in a couple of places in '03, and was diagnosed with MS about 6 years ago. I currently have 2 lesions active in my neck, but am suffering horrible lower back pain for no obvious reason near one of the break sites. Can MS interact with the old spinal injury to cause this agony, or is it likely unrelated?
I think that it could be true and true and not related....BUT more likely one condition exacerbates the other. As my mentor used to say, "sometimes nature is just a little too generous"
Then it might be spasticity what I feel in my legs, especially when I stand up. I guess exercising helps...
I've one question, and I don't think you've addressed it yet. Ataxia, how to deal with it. Why does it happen to some of us? Please, please, do a video...Thanks doc!
Great suggestion C Cabrera! I'll add "ataxia" to my list of topics. TY! #WeHaveMS
I've got Ataxia! Thank you for the recommendation!
I fell and hurt my arm a few days ago. Xrays apparently showed nothing wrong, but the pain has got significantly worse. And no the slightest movement causes severe pain and pressure in my elbow as it contracts my arm closed. Is this what im suffering from?
What term would characterize not being able to walk or use an arm at intermittent times. I use to get a weird feeling throughout my body and I knew it was coming and would only last a short time, but would do it multiple times a day for quite a while until it tapered off. Would this be possibly deemed as some sort os seizure? Yes I do currently have MS and thankfully it has not happen since, but always wondered.
it could be many things Traci. Motor fatigue, Todd's paralysis, lots of things.
Thank you for responding! This disease is definitely not cut and dry sometimes.
YW Traci
Hi I get spasticity in my right hand and left hand for years but the past month when it happens I gey dull pain in my head could this be MS? Thanks Colin
Solution?
i have spasm in my body i feel my muscles shaking when i try to move also when it’s not moving do this have any cure ? it comes and go sometimes
Spasticity is MS turning evil. I know this since my MS became evil a few years back... it started as a Mild possession but I'd say it's escalated...