Applying for Adult Social Care for PoTS : My Experience so far

Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥
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~ Links ~
www.nhs.uk/con....
www.potsuk.org/
www.youtube.co....
www.youtube.co....
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~ Where you can find me ~
My blog: thelifeoflorna.......
My previous blog: theonedayseeker...
Instagram: thelifeof_lorna
Twitter: @thelifeof_lorna
Tumblr: thelifeoflorna

[@anglosaxon361]

I watched your PIP videos with great interest, as other people said to get enhanced on both from a paper based assessment. I used to have WPW, which I have had surgery for. I know have HOCM, AF, VT, SVT, high blood pressure, orthostatic hypertension, as well as Asthma & Diabetes. I had a head injury a long time ago, which has left me with a right sided weakness.
I have to hand it to the local council, they gave me an Adult social care, occupational health assessment, they fitted for me free of charge, an additional stair rail, gave me a perching stool for the kitchen, and other kitchen devices to make life easier, a bed handle, rails in my bathroom, and a shower stool.
I have had three PIP assessments over around 10 years,
The first one I got standard daily only, after tribunal
The second one standard daily and mobility after a mandatory reconsideration
The last one enhanced daily and standard mobility after a mandatory reconsideration, this lasts until April 2025
My heart issues cannot improve, so why they only gave me a five year award? My medication (30+ pills a day) does not help.
I feel very fatigued most days, tried a college course, was doing ok, but missed most of this year due to a chest infection and a CV19 positive test, I wonder if I have long covid now?
I don't know if you still monitor you YT feeds, but hang on there. I just listen to music, and watch various TV streaming services.
Thank you for sharing your experiences

[@2003johnson2]

I'm also living with POTS and trying to access social services. I've had an equipment assessment from my local authority who have given me a shower stool and a trolley to use in the kitchen (I have a seat that I use in there already) and I'm waiting for their OT team to assess me for a stair lift and a ramp (I'm now a wheelchair user). My husband cooks my meals and cleans and is there when I shower in case I faint. They won't put a 'care' package in place because I have my husband but I have a number to ring if he's ever hospitalised to discuss and implement emergency care in that scenario. I was only referred to them because I was recently diagnosed with autism and the lady who did that was an OT who recognised my physical needs and went above and beyond her station to recommend it for me. My main point to social services is asking them to treat me like someone with a lung condition because I don't get enough oxygen to my brain when I'm upright and my lips go blue from lack of blood reaching my head. I hope you get everything sorted soon! Take care.