@@shamarkyle1986 we are sorry to hear this, we would highly recommend seeing a Fertility Specialist or Specialist Gynaecologist who has experience with managing Adenomyosis within your country/home town. We hope you find assistance soon.
I’ve just recently been diagnosed with Adenomyosis, I’ve had excruciating pain every month but I’m also very tender and sore the rest of the time, this video has been very informative thank you
Hi Zoe, we are sorry to hear of your Diagnosis and hope that you manage to find some relief and help with your Gynaecologist soon for the Pain. We are happy to hear the video was informative and helpful - thanks for your feedback :-)
@@VitalabFertility Thank you so much, I've suffered from excruciating pain since I was 12 when they began, I'm 38 now and I have only just been diagnosed, I had a child when I was 23, it took me 9 months to conceive, I thought I had endometriosis. Thank you again.
@@VitalabFertility Thank you so much, trust me to have one of the lesser known things wrong with me, if I was in South Africa I would be a very grateful patient 🥰
I went through years of diagnostic testing before my doctor found it after a laparoscopic procedure. I’d never heard of it. When I finally had a diagnosis, I was relieved. I knew it wasn’t all in my head. My symptoms became almost constant and started to make it difficult to eat. I guess my uterus was so enlarged, every time I digested food, I started having painful contractions. I was happy to say goodbye to my uterus.
It is extremely painful and your periods are 10xs heavier then normal ones (I could bleed through a super tampon and overnight pad together in 2 hours) i got a partial hysterectomy and I feel a million times better. I'm over 35 and already have a child. I know this is late but I hope you find comfort 💛
Ob 10 yrs ago-No youre dramatic ER ARNP-Endometriosis Pain and This year got my iud pulled bc they suspected pid-BUT IT WASNT IT WAS THIS SO NOW AT 35 I need a hysterectomy 😢.
@@jessi8656 i have my ovaries (that's why I say partial) but ya the best thing in the world i had done, I have no pain and more energy (amazing when you stop losing large abnormal amounts of blood) .
@@ericapaquette9624 thank you I’m making an appt Monday to schedule the partial I had my tubes removed already before the exploratory laparoscopy I’m trying to keep my ovaries I’m 35. I got addicted to oxycodone from this pain . I’m in recovery now but it was never in my head! 🫂 IM SO TIRED CONSTANTLY. I am 2 months post liletta removal so still waiting IM GONNA NEED IT HAS BEEN SINCE I WAS 17 yrs old ! THANK YOU ALL FOR SHARING 🫂
Thank you for the great video! I went to my obgyn seeking a hysterectomy for my chronic period pain, and he agreed and said he thinks I might have adenomyosis. I'd never heard of it before and had previously thought I had endometriosis or PMDD but no cysts showed up in ultrasounds previously. I've tried a lot of treatments & nothing has helped enough to improve my quality of life-- I can't go to college or hold a job due to the pain, fatigue, constant bleeding, etc. It's like you said, you're aware of your uterus 24/7. I've wanted mine out since I started getting periods and I finally got a potential diagnosis and the greenlight for a hysterectomy :)
@@hildaefua6979 I have yeah, I've tried oral birth control, IUDs, birth control implants, the depo provera shot, herbal/vitamin remedies, nothing has helped. I appreciate the suggestion but a hysterectomy is what I want
Hi Sharon - we are sorry to hear of your diagnosis, but are glad to hear that you have found our video and getting the information you need to know about this disease. Wishing you well.
Wow, great vid. I wish my OBGYN had taken the time to explain this to me. I was told a hysterectomy or Ablation were the solution but I don't want that. I was never told of any estrogen blocking meds as a solution.
Very informative video. I was recently diagnosed and have been a worrying mess. It’s also suspected I have superficial endometriosis as well. I’m only young and really want to have children one day.
Thanks for your feedback and we are sorry to hear of your Diagnosis. Please ensure you consult with a Fertility Specialist regarding your way forward keeping in mind your age and wish to have children. Wishing you everything of the best.
Spiked bowling ball is what mine felt like, and even mittelschmerz knocked me down for days. The constant nausea, inability to eat or keep food down all pointed to a rebellious uterus. Great video!
I was just Diagnose with it myself and I have pain so severe that it makes me ill for days. I throw up can't gain any weight and nothing i've taken for the paid helps and I can't take NSAID
@@robinpage2184 it’s awful, and the answers don’t always help in the moment. I found a lot of relief with different therapies and also cannot take NSAIDS. There are many ways to feel better, and each person has success, or learns what doesn’t work. The basics matter - are you drinking water, warm if possible? Are you able to slowly stretch your body. Can you sleep?
I am 48 years old and I have been suffering with Adenomyosis since 2015. I still don’t want to remove my uterus; I also have anemia and I get transfusion and I have tried some of medicine. I had a UFE which it works for almost 2 years, but my menstrual bleeding is back. I don’t know what else to do. I get a lot of pain too. They have Dr in Europa, China, India, etc that do adenomyosis remover from the uterus, but they don't remove the Uterus like here in the USA. In the USA they only want to remove the Uterus and not bother helping the female to keep their Uterus which is sad. They should take classes from the others Dr who know how to remove the Adenomyosis.
So sorry you are going through this- may be an option to consider coming for treatment in South Africa with our doctors, however, our cut off age for a female for fertility specific treatment is 49 years old- that is if you would like to conceive a baby. If you are looking only for treatment for Adenomyosis then you can email us your requirements and we shall Endeavour to book you in - reception@vitalab.com
Hi Amanpreet this is exactly the reason we do this!!! Thank you for commenting and letting us know. We love hearing how our videos have provided info, help or support to patients around the world on their various Journeys.
Thank you Dr. We got the results today and my wife is in shock and stress, im trying to educate myself on the subject. Thanks again and lovely south African accent, I lived in joburg for 12 years
Hi Arashk, we are so sorry to hear of the diagnosis. We are happy to hear that you are so supporting and are researching this topic, which is so important to make educated decisions going forward. We appreciate your lovely feedback and wish you both well! 12 years in Joburg means you a Saffa (South African) at heart - hehehe.
I also recently got diagnosed with this. I am 37 and have always had heavy bleeding but with no pain. What my obgyn thought was a fibroid (and had surgery for the removal of it) pathology test stated otherwise. Now my bleeding seems to only have gotten worse since the surgery a year ago.
Hi Nathaly, Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly and cannot be answered via social media. A consultation with a reproductive medicine specialist would be of value to you to discuss these questions and answers in depth, if you are still trying to conceive. If you have completed your family then to see a specialist Gynaecologist/Obgyn.
I was diagnosed with Adenomyosis last year. After an ultra sound and a horrible night in after hours, i was given pills to deal with the pain and told that i cannot get a hysterectomy due to how full the wait lists are. Hopefully i will get my surgery in the next year or so.
Thank you was dignosed with this condition few months ago after suffering not knowing what was going on thanks for informative video still learning about it how to cope
Thank you Tanya for the feedback, and we wish you well with your new diagnosis & condition, and it is great that you are researching and learning more about it!
Thank u Dr.. 💓 I've been diagnosed with endo.. adenomyosis.. for the past 1.7years.. horrendous pain.. roughly 20 to 50painkillers per cycle.. conscious fluttering uterus.. blackish leukorrhoea after cycle.. can't walk or function normally.. I've been asked to go on medically induced menopause..stop the cycle.
We are glad you found the video helpful, but are sorry to hear of you diagnosis and pain. We hope the new treatment method will help you. Wishing you well.
I just got this DX. I started getting symptoms in February. My cycle was going crazy! There was nothing on my last ultrasound from a year ago. The pain is just starting for me. It's bad. I can't do the suggested treatments. I developed DVT from the pill after a week of being on it. I can't take ibuprofen because I have CKD. I can't take acetaminophen because I have liver disease. I'm praying for a hysterectomy
We are so sorry to hear of your diagnosis and the struggle you are experiencing with getting the pain under control. We wish you well for the future and hope that you find a solution soon.
Hi, I am 49 years old and was just diagnosed with adenomyosis. A hysterectomy is the only cure however is it recommend if I am close to menopause? Any info would be greatly appreciated.
Hi Marie, Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly and cannot be answered via social media.
This is so helpful!! I suffer in severe pain every month. The only option offered to me is progesterone or hysterectomy. I am trying to conceive for 2yrs and now luck. My uterus is three times enlarged. I wonder, which estrogen blocking medication you were describing here?
Good day- we use a number of different medications and brands- each individual case is different . The best would be to schedule an appointment so we can discuss your case .
This video was great, thanks Dr. I had an ultrasound and found out I have this and cystic overies. My blood test showed high testosterone though? My GP has put me on Metformin, but I'm waiting to see a Gyno. A hysterectomy sounds great I'm 36 and have 4 children.
Hi Kelly, firstly thank you for the comment & we are so happy you found the video great! We are sorry to hear of your diagnosis but it does sound like you are taken care of by your GP & soon to be Gynae. Atleast you are fortunate to have had your children already & that makes a hysterectomy a possibility to discuss with your Gynae. We wish you well on this journey.
Thank you Doctor 🙏🙏🙏 such informative video. I told my doctor she did lab test , Pap test and pelvic exam but never did ultrasound. During our discussion she tells me I think you have adenomyosis . Never does ultrasound or further testing . It’s so scary how some doctors in USA
Hello. Thank you for this video. It helped a lot. Is there a way I can remain physically active despite the condition? Exercise is something I would have wanted to continuously incorporate in my life, but it hurts too much. What would you recommend? Thank you kindly, doctor!
Hi There - we have found exercise which doesn't involve too much pelvic movement is best. Avoid things like jumping on a trampoline, skipping rope, fast running, etc. Slower movement exercises are best. We hope that helps.
@@VitalabFertility Thank you so much!! I think Tai Chi will be good, because with Yoga, it seems to stretch me a bit too much and get kinda painful. :)
Hello Dr. Thank you for sharing this important topic. What natural or pharmaceutical medicine would you suggest to block the estrogen? And also, since IVF involves medication containing estrogen to thicken the uterus, wouldn't it cause worsen the adenomyosis?
Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly and cannot be answered via social media. A consultation with a reproductive medicine specialist would be of value to you to discuss these questions and answers in depth.
Very helpful vedio, in this one I've just heard that the uterus will be back to its free Adenomyotic state, when estrogen block as its adenomyosis food. Im in agonizing pain and just 5 days taken dienogest as my doctor said.
We glad you found the video helpful and informative. We wish you all the luck with your doctor and getting your adenomyosis and specifically the pain under control. We do know how painful this can be.
Hello Dr..thank you for this informative video. What particular medications do I need as I still set aside hysterectomy as the solution for this?Please help. Been suffering from prolonged bleeding when I was 13 years old,been to a lot of doctors.
Hi Leslie, We are so sorry to hear of your diagnosis and how long you have been suffering with this disease. There are estrogen blocking medications which you can speak to your DOCTOR about and ask them if they would recommend for you and the length of use. Examples: a) GNRH analogs or antagonists and/or b) anti estrogens in the form of Letrazole, Tamoxifen, etc. These are scripted meds which you will need to be monitored by your doctor whilst using & to find the right medication and dosage for you. We hope you are able to find some help and relief soon.
The excruciating pain,is completely horrendous 🕯️✳️ I don't think most folks truly comprehend how much pain a denomyosis actually gives us 🌞✳️🙏To me,it is like I,m carrying a big heavy led balloon in my lower a bdomen🌞✳️🙏Plus sh@rp st@bbing pain in my lower abdo men too🌞✳️🌞✳️🌞✳️🙏
You are exactly right - the pain associated with both Adenomyosis and Endometriosis is truly significant and affects the daily life of those suffering with these diseases. We hope you find a good Dr who can help you manage the symptoms effectively.
I had this condition and my symptoms were different. Every month I was so swollen I would put cold compresses on my area. Also id have old blood a few days after my period come out on my pad . Old blood smells awful and other people could smell it too. Embarrassing.!!! I dont think docs knew much about this 30 years ago but I sure wish they had listened to me more. For years all they did use prescribe naproxen. I hope this helps someone.
We are so sorry to hear of all you have been through and it is our hope too that someone watching this video gets the correct diagnosis and help for their condition!
I always feel like I have a fist in my tummy. It hurts. All. The. Time. I have been going from gyn to gyn about it since 40. I just get told I’m perimenopausal. It will go away with menopause. I’m now 56. Still no menopause. 16 years of pain. Last year I got diagnosed with adenomyosis. Guy says oh if we had known we would have done a hysterectomy which I have been begging for for over a decade. But now, surely now, menopause is imminent. I have no more faith in doctors.
I had no problem getting pregnant w adeno. Quite the opposite. Had 4 kids without even trying really. But the pain of adeno is so friggin awful. Lots of digestive pain too.
I’m 24 and just got diagnosed with adenomyosis, is this an abnormal age to be diagnosed? And Will this impact my fertility majorly when the time comes?
Hi Ellie - we are sorry to hear of your diagnosis. Yes Adenomyosis can have an impact on fertility, it is important that you have an appointment with a Fertility Specialist to speak through this diagnosis and what options are available to you now and for the future. If you would like to consult with Vitalab - you can fill in an enquiry on our website www.vitalab.com. Otherwise we recommend finding a specialist in your area.
Thank you so much that has helped only found out 2 months ago that i have this condition after 10 miscariages in 20 years .gues i have had my fair share of pain .i am going for hysterectomy.
Wow we are truly sorry to hear of your many miscarriages and also the delay in getting your diagnosis. We hope that you have found the right doctor now providing you with treatment and care.
I was diagnose adenomyosis figo 4., just 3 weeks ago, Im 47 yrs old and never had a baby. I always have very painful menstruation and chronic pain in the pelvic
Recently been diagnosed with adenomysis then after some days I went to the dr she said I’m pregnant but the baby bag or sack is empty then I aborted I had abortion does this relate to adenomysis?
Is it known why some people are able to have healthy pregnancies with Adenomyosis, but others are infertile? I am the latter, but I also have PCOS and Endometriosis (basically every part of my body is like 🙅♀️👹NO BABY👹🙅♀️). I am curious what I can do to help create a better environment for a foetus before seeking a fertility specialist, as I am currently on medication where I can not fall pregnant without significant risk, so I feel like seeing a fertility specialist is counter productive right now.
Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly and cannot be answered via social media. If you are not ready now to see a Fertility Specialist, then we would recommend seeing your GP or Gynaecologists to discuss these questions.
Hi Dr. Thank you for the video. I'm awaiting a bilateral oophorectomy. Just wondered if it will stop the symptoms of adeno or if they should be removing my uterus too? Thanks x
Hi there - why are they removing your ovaries? - if your uterus is removed, then yes the adenomyosis symptoms will stop as the disease is in your Uterus, thus if removed then the source of the symptoms are removed. If however you have Endometriosis - that is found outside the uterus (such as how you explaining perhaps with your oophorectomy) then perhaps it will help those symptoms. But these are two different diseases (Adeno or Endo) as their locations vary - so it is important you know which one you have - or even if you have both - as then different surgeries would be needed to stop one or all of the symptoms you are experiencing, if you are no longer wanting to have children ofcourse.
I’ve just had an ultrasound of which adenomyosis is suspected but not officially diagnosed. I have been on birth control pills for years…a very low dose birth control. My periods are excruciatingly painful if I am not on birth control. Would it be recommended for me to go off of my birth control and begin estrogen blocking therapy? What happens after the therapy? Am I then “cured” of adenomyosis or will it then return? I think I need to go see a urogynocologist as my doctor is not overly helpful.
Greetings everyone+thank you so very much for this video My gynecologist yester, tried to take biopsy from me, prior to my ops ,which I,m on the waiting list for:-But it were so extreMely painful,they had 2stop before actually obtaining my biopsy:- But the hospitl didn't prepare me that they would att empt to obtain one,so I wsn,t in the right frme of mind for it, being's I were not forewarned:- I,m now wondering if I should request another 'ppointment for the biopsy so this time I will be psyched up for it, you know? 🌞✳️🙏Any guidance or experiences offered would be much appreciated 🌞✳️🙏 God bless everyone
Please ask your Gynaecologist what can be done both prior and during the procedure to make it more manageable for you. We utilize certain pain medications and injections to assist our patients with their comfort levels.
Hello Dr, I am 42, have 2 children, just got diagnosed for adenomyosis and fibroids 2.8*2.3 cm and 2.4*1.6cm. Fertility is not an issue in my case. Pain is severe during each cycle. I hv been suffering for almost 5 yrs. What is your suggestion? Please reply. Regards from India 🇮🇳🇮🇳🇮🇳
@@VitalabFertility gm dr, I got the pap smear, Hb and urine culture done, all results are fine, doc advised me to insert Mirena. But, I want a permanent solution. Do u advise hysterectomy in my case ? Regards to you, Dr 🙏 from India 🇮🇳🇮🇳🇮🇳
@@Ms-fe2bo yes, the permanent solution if you are not wanting more children of course, is to have an Abdominal Hysterectomy. Wishing you well for the journey ahead.
@@Ms-fe2bo Thanks for sharing your experience. I' m also suffering with adenomyosis and looking forward to get a hysterectomy. Hope it doesnt carry a lot of post complications though😔
Hi Dr, thanks for the video. I have been trying for pregnancy and I had miscarriage last year but scan was normal during that time .when I see the scan last week my gynecologist said it seems like early adenomyosis. Will It be a problem in conceiving with this early adenomysois ?
We cannot give our advice over social media unfortunately. We do think you would benefit from having an appointment with a Fertility Specialist to discuss your options and way forward.
Estrogen blocking is at 2 levels. 1 by temporarily switching off the pituitary gland that stimulates estrogen and that is when we use GNRH analogs or antagonists. 2 you can decrease peripheral estrogren production blocked with anti estrogens in the form of Letrazole, Tamoxifen.
@@VitalabFertility Thank you for the answer doc. Do you use both Tamoxefine and Letrozole together ? For How long due you use them? Can letrozole be given for premenopausal women for adenomyosis. I have read that letrozole is used only in postmenopausal women can it cause any issues if used in premenopausal women for adenomyosis. Thank you and appreciate for taking your time to respond.
@@psychiatrist123 these are great questions and these medications are scripted and this needs to be discussed with your prescribing/treating doctor. They will need to find the right combination and dosage of medications for you and your specific scenario. This is not something "generic" we can advise on via social media. We hope that you do get help & find the right doctor to manage you going forward.
Hi doc thank you for that I've been diagnosed with adenomyosis been suFfering for 7 years I was so afraid to go to doctor and having transvaginal ultrasound is very uncomfortable for me It does hurt and after 😔
We are so sorry to hear of your diagnosis and also the discomfort. Yes unfortunately it can be painful for patients suffering with severe adenomyosis to have internal transvaginal scans, but they are imperative. We recommend finding a good specialist who can be patient with you when scanning to try make it a less painful experience for you.
I have pain when I am not bleeding. I have been diagnosed medically, I do not want an hysterectomy though. Anyone have any over the counter medicine that has helped them ? Thanks
Hi there, we are not aware of over the counter medications which work sufficiently. There are other estrogen blocking medications which you can speak to your DOCTOR about and ask them if they would recommend for you and the length of use. Examples: a) GNRH analogs or antagonists and/or b) anti estrogens in the form of Letrazole, Tamoxifen, etc. These are scripted meds which you will need to be monitored by your doctor whilst using & to find the right medication and dosage for you.
I have adenomyosis...thiers a mass at the back of my uterus..I dont have severe bleeding but severe pain before, during and after period and depending on pain relievers that sometimes even pain killer is already doent work.....operation is the last option.. I'm single but I want to have children in the future...is thier any pain during pregnancy if I choose not to be operated
Hi Bellie, thanks so much for your comment and we are sorry to hear about your diagnosis and the mass found. We are not able to give out medical advice on these platforms. You would need to have an assessment by the DR, and then the DR would let you know his opinion on falling pregnant / pregnancy with the diagnosis of Adenomyosis and the mass - then going through all the options and outcomes thereof... If you are based in RSA, you are welcome to book with one of our Specialists. Link: www.vitalab.com/doctor-appointment-form/ Wishing you the best of luck whilst TTC once you are ready in the future.
I had my first ovarian cysts surgery in 2018 and now I have been diagnosed of both Adenomyosis and endometriosis,, what are my chances of having children?? One of my Fallopian tube is blocked because of the surgery..I’m 35 years old
Hi Uduak, we are sorry to hear about this difficult journey you have travelled thus far. These conditions can certainly be treated and I would not give up on your dream of having children. You need to book an appointment with a Fertility Specialist and begin this journey. You are welcome to look at Vitalab's website and see if you wish to see one of our Specialists. Alternatively, look for one in your home town. www.vitalab.com
Shalom, I live in Israel and my doctor just informed me that I have endometriosis, adenomyosis. Are these two one in the same or two different entity? Want to try to conceive. And see what my options are. Seeing a fertility doctor mid month.
Shalom! I'm sorry to hear about your diagnosis. While similar, endometriosis and adenomyosis do differ primarily because adenomyosis involves the muscle of the uterus. The good news is that both are managed in a very similar way. Good luck with your consult with the fertility doctor! Dr Yossi
Hi There - it is impossible for us to comment on whether you could/couldnt get pregnant without assessing you & your partner. What we can say, is that we assist MANY patients who have various levels of Adenomyosis to conceive.
What issues arise with a hysterectomy down the road? A friend's wife was having issues with too many frequent UTIs and the issue was wrongly diagnosed suspecting the kidneys. A skilled doctor then determined because of the hysterectomy the organs have realigned and caused light uncontrollable urine discharged into the urethra which consequently lead to UTIs. If this is the case...whats there to protect from this Dr. ?
Thank you for the comment and question, we unfortunately cannot comment on this case and would recommend they seek help directly from a skilled healthcare professional like you mentioned to advise them. Whenever a procedure is recommend, it needs to be discussed at length including the risks between that doctor and patient.
Thank you so much doctor for this very informative vedio. I was diagnosed with adenomyosis three years back. Firstly had a mirena placed, then had to take it off because I had to undergo cone biopsy as my gynaecologist found a suspicious lesion on my cervix.(Its' histopathological diagnosis was a nabothian cyst). Then temporarily I was placed on contraceptive pills and now I wish to have a more permanent solution. I already have one child. Would you recommend hysterectomy for me?
Good morning doctor 🙏 I am infected from adinomasis ...I have no baby.. 😭😭😭 I wouldn't understand ur speech...pls 🙏🙏🙏tell me wat is best treatment for adinomasis pls reply me.....
We do discuss the treatment options available in the video for patients with adenomyosis. Importantly you need to be managed by a specialist doctor who can advise you & administer the correct treatment or options for you specifically.
Hello Sir, I have a adenomiosis cyst near the uterus and endometrium with a maximum thickness of 12 mm, to be correlated with the luteal phase after having the period 18 day... Now before going through the IVF, a doctor is telling us to remove it by hysteroscopy and another Dr. is telling us that there isn't any risk with this cyst.. You can go directly with IVF, as my AMH level is 0.23.. We're ready to go through the Ivf, but there is a huge confusion that we must go through the surgery with histeroscopy or not .. As we don't live in India, or we'd have come directly to your clinic for a suggestion.. So please, Could you suggest us something important please??? Thanks..
Definitely sounds like you need another opinion and ideally from a Fertility Specialist. We cannot comment via social media on your case unfortunately. If you would like us to review your case, we can offer a zoom appointment. Our details www.Vitalab.com
@@VitalabFertility Lost me there. There's a way in nature but I know western medicine doesn't learn, know nor like to share this if they know. Thank you for your reply anyway.
I'm so sorry to hear about this difficult journey you have travelled. These conditions can certainly be treated and I would not give up on your dream. You should see a Fertility Specialist for assistance. Dr Yossi
Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly and cannot be answered via social media.
I got diagnosed with adenomyosis a week ago and I've been bleeding for 2 months and i think i made things worse by exercising because before the bleeding i was skipping rope every day
We are sorry to hear of your Diagnosis. There is medical options for you, so it would be of value to consult with a Gynaecologist or Fertility Specialist for help with management or treatment. We do advise lower intensity exercise for patients, not skipping or trampolines etc which causes alot of movement in your pelvic area. Best of luck and we hope you find help soon to manage this disease for you going forward.
Hello sir, I have bulky uterus and adenomyosis. I am 29 years old and no baby. One miscarriage and now non stop bleeding from 2 months. Can I cure without surgery? Please suggest me.
Hi There - thanks for your question - it is important for you to have a CONSULT with a Doctor, ideally a specialist, who can then recommend MEDICATION alternatives to surgery for you. Unfortunately this is not something "generic" we can recommend via social media without evaluating your specific case. We hope you manage to find help soon.
So I just saw your video on adenomyosis. I am a 51 year old female from India and have just been diagnosed via usg the similar condition of adenomyosis. Here Doctors tell me that the only treatment for this condition is hesterectomy, since my family is complete and do not want to have children anymore. I also went through a D N C with polyectomy as there was also an indication of polymenoreaha. I want to know if I can treat my adenomyosis and avoid the hesterectomy. Pls advice Regards, Aparna Sharma
Hello Aparna, thank you for your question. The issue is that adenomyosis will require hormonal treatment as well as surgery in later life and as you are in menopause and your family is complete- if your symptoms are severe then a hysterectomy would be advised. The only way to fully stop adenomyosis is with a hysterectomy (surgery to remove the uterus). Since adenomyosis causes diffuse, often fingerlike projections of tissue to invade the uterine wall, we can’t just go in and remove the abnormal tissue like we might be able to do with fibroids. The ovaries and fallopian tubes can stay in place.
Hello doctor,i have 7 days period in every month and after recovered my period 5 days later i have again dark red discharge and it continues 3 to 4 days.the first two days of my period i have too much pelvis pain and lower back pain which can bear extremely painful..what can be solution for it???
We cannot give out medical opinions without assessing your case. If you would like an opinion from Vitalab you can fill out our form on www.vitalab.com otherwise find a local specialist near to you to assist you.
Hello I am 42 and I have been diagnosed with adenomyosis a year ago and I also had undergone a biopsy .. but the problem has sort of come back .. is merina loop look helpful or should I get hysterectomy… please help me !! 🙏
Hi I just got this diagnosis due to a enlarged uterus and very heavy bleeding . They put me on birth control but I am wondering is there any other way to shrink my uterus other then hysterectomy? I don’t want to take it out
Hi There - firstly we sorry to hear of your diagnosis. Yes, there are other estrogen blocking medications which you can speak to your DOCTOR about and ask them if they would recommend for you and the length of use. Examples: a) GNRH analogs or antagonists and/or b) anti estrogens in the form of Letrazole, Tamoxifen, etc. These are scripted meds which you will need to be monitored by your doctor whilst using & to find the right medication and dosage for you.
I was diagnosed with endometriosis 21 years ago. And later on with fibroids, and then endometriosis followed by adenomyosis and uterine polyps . I was advised to do a hysterectomy 5 years ago but never wanted to lose my uterus. Now my body can’t take the suffering anymore and I’m forced to get rid of the reproductive organs. I probably could have saved the ovaries if I had the surgery sooner!!! Don’t delay if it’s bad for you….
Hi Dr Yossi.. I suffer from this and it is so painful for me every month.. I exercise frequently and try to eat clean and healthy. But it is still so painful. I don’t know what to do. Will inserting IUD mirena help? Or what treatment do you suggest? Also, may I take this supplement (DIM - Diindolylmethane)? Please please help.. and I look forward to your reply.. 🙏🏻
HI there - we are sorry to hear of your diagnosis and ongoing pain. Unfortunately we cannot advise you to specific treatment and way forward such as using an IUD or particular supplements etc. You need to consult with a DR, have them assess you in person, then prescribe the best way forward for you. We are not allowed to give out medical advise without assessing you and your case. Wishing you the very best ahead and sincerely hope you find some relief. If you are in SA, you are welcome to look up our services and assistance, www.vitalab.com
I have adenomysis for four years main problem is sevre back pain and abdominal pain and I am taking mental spasm even l can not go anywhere l suggested histerectmy tell ing that don't remove uterus because age is 41 so suggest any medications cure the disease
Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly (via consultation) and cannot be answered via social media. We would recommend you see a specialist Gynaecologist if you have completed your family and you are considering a hysterectomy.
Vitalab Fertility Clinic - Sandton and Umhlanga I’m the winner 🥰😂 tell them to let me make a video.... no but all jokes aside I just learned that at the doctors office 😁
@@justbeencouraged2495 hehe! we wish all our patients were this well informed. keep up the research and learning, it will help you ask all the right questions from your Doctors about your treatment and journey ahead.
I was diagnosed in 2018 with both endometriosis and andenomyosis 2weeks ago i had the endometriosis removed and was told my only tube was blocked and that nothing can be done. I have 1 8year old son but I really want to fall pregnant again what are my chances?
I m 32 yr old,I have bulky uterus and adino...two ivf failed with my own egg and one donor egg..but I really don't want to give up to have a child. Can I try another ivf .
We would recommend you getting a second opinion. If you would like it from Vitalab, feel free to complete the enquiry form on our website www.vitalab.com. We do offer consults via Zoom/Video calls. With your history it is important to get the right options on next steps.
Ofcourse, there are other estrogen blocking medications which you can speak to your DOCTOR about and ask them if they would recommend for you and the length of use. Examples: a) GNRH analogs or antagonists and/or b) anti estrogens in the form of Letrazole, Tamoxifen, etc. These are scripted meds which you will need to be monitored by your doctor whilst using & to find the right medication and dosage for you.
@@onoshiovibes3802 yes the meds help reduce the disease which in turns means the size of the uterus, as typically the uterus is enlarged because of the disease.
Hi there, If not contraindicated I would suggest using Dienogest either on its own or in combination with some estrogen like a pill called Qlaira. Dr Yossi
@@VitalabFertility but sir i was taking estrogen n progesterone from 2011... so my dr.s said that u have taken too many OCPs so they didn't gave me any such hormones...
@@elisharoyal6990 it is important to follow the advice of your DR or if you are concerned to get a 2nd opinion from a DR who can evaluate your case thoroughly. Wishing you well and hope you find the right DR to look after you in your home town.
As a post menopausal woman with adenomyosis would it be not beneficial then to be on a estradiol patch because it feeds off of estrogen? I was using the patch and continued to bleed off and on for months. As soon as I stopped the patch the bleeding ceased.
Let us know what topic you think Dr Yossi should explain to us next?!
Hello, I am diagnosed with adenomyosis doctor. Ive been to many doctors and still has the same problem
@@shamarkyle1986 we are sorry to hear this, we would highly recommend seeing a Fertility Specialist or Specialist Gynaecologist who has experience with managing Adenomyosis within your country/home town. We hope you find assistance soon.
Please what medication can I take , have recently been diagnosed adenomyosis
Hii
This condition can cause cancer
I’ve just recently been diagnosed with Adenomyosis, I’ve had excruciating pain every month but I’m also very tender and sore the rest of the time, this video has been very informative thank you
Hi Zoe, we are sorry to hear of your Diagnosis and hope that you manage to find some relief and help with your Gynaecologist soon for the Pain. We are happy to hear the video was informative and helpful - thanks for your feedback :-)
@@VitalabFertility Thank you so much, I've suffered from excruciating pain since I was 12 when they began, I'm 38 now and I have only just been diagnosed, I had a child when I was 23, it took me 9 months to conceive, I thought I had endometriosis. Thank you again.
@@DefLepRock83 wow that is such a long time and long journey! we wish you everything of the best going forward.
@@VitalabFertility Thank you so much, trust me to have one of the lesser known things wrong with me, if I was in South Africa I would be a very grateful patient 🥰
@@DefLepRock83 that is awesome to hear! we try to treat each one of our patients individually and as family to ensure they feel well cared for.
I was diagnosed with adenomyosis and it was extremely painful which led me to get a total hysterectomy Feb 20 2023 I have never felt better
I’m dying from daily pain but getting a total hysterectomy next week
@@purpletoronto1881 you will feel a lot better afterwards and after your hysterectomy you might experience some discomfort atleast I did
I went through years of diagnostic testing before my doctor found it after a laparoscopic procedure. I’d never heard of it. When I finally had a diagnosis, I was relieved. I knew it wasn’t all in my head. My symptoms became almost constant and started to make it difficult to eat. I guess my uterus was so enlarged, every time I digested food, I started having painful contractions. I was happy to say goodbye to my uterus.
As someone who is diagnosed with Adenomyosis it's extremely painful , that's how I knew something was wrong.
That is correct, unfortunately pain is a common symptom, we are sorry to hear of your diagnosis and hope you enjoyed watching this video on the topic.
It is extremely painful and your periods are 10xs heavier then normal ones (I could bleed through a super tampon and overnight pad together in 2 hours) i got a partial hysterectomy and I feel a million times better. I'm over 35 and already have a child. I know this is late but I hope you find comfort 💛
Ob 10 yrs ago-No youre dramatic ER ARNP-Endometriosis
Pain and This year got my iud pulled bc they suspected pid-BUT IT WASNT IT WAS THIS SO NOW AT 35 I need a hysterectomy 😢.
@@jessi8656 i have my ovaries (that's why I say partial) but ya the best thing in the world i had done, I have no pain and more energy (amazing when you stop losing large abnormal amounts of blood) .
@@ericapaquette9624 thank you I’m making an appt Monday to schedule the partial I had my tubes removed already before the exploratory laparoscopy I’m trying to keep my ovaries I’m 35. I got addicted to oxycodone from this pain . I’m in recovery now but it was never in my head! 🫂 IM SO TIRED CONSTANTLY. I am 2 months post liletta removal so still waiting IM GONNA NEED IT HAS BEEN SINCE I WAS 17 yrs old ! THANK YOU ALL FOR SHARING 🫂
Thank you for the great video! I went to my obgyn seeking a hysterectomy for my chronic period pain, and he agreed and said he thinks I might have adenomyosis. I'd never heard of it before and had previously thought I had endometriosis or PMDD but no cysts showed up in ultrasounds previously. I've tried a lot of treatments & nothing has helped enough to improve my quality of life-- I can't go to college or hold a job due to the pain, fatigue, constant bleeding, etc. It's like you said, you're aware of your uterus 24/7. I've wanted mine out since I started getting periods and I finally got a potential diagnosis and the greenlight for a hysterectomy :)
@@hildaefua6979 I have yeah, I've tried oral birth control, IUDs, birth control implants, the depo provera shot, herbal/vitamin remedies, nothing has helped. I appreciate the suggestion but a hysterectomy is what I want
@@hildaefua6979 I'll be having my hysterectomy in 4 days, that's a great resource for other people but not me.
@@lucastaylor1103 I had my hysterectomy on Nov 15th :) I'm much happier this way
How is your recovery going and did you have it removed laparoscopically? I was just diagnosed with this nightmare. 🤦♀️
@@Erinselysion , are you satisfied with the result of the surgery? My mother will also have hysterectomy.
I was just diagnosed with this last month. Now I'm watching videos and getting more information
Hi Sharon - we are sorry to hear of your diagnosis, but are glad to hear that you have found our video and getting the information you need to know about this disease. Wishing you well.
Wow, great vid. I wish my OBGYN had taken the time to explain this to me. I was told a hysterectomy or Ablation were the solution but I don't want that. I was never told of any estrogen blocking meds as a solution.
I wasn't diagnosed until I was over 40. I went from weak irregular periods to really heavy, long painful ones.
Very informative video. I was recently diagnosed and have been a worrying mess. It’s also suspected I have superficial endometriosis as well. I’m only young and really want to have children one day.
Thanks for your feedback and we are sorry to hear of your Diagnosis. Please ensure you consult with a Fertility Specialist regarding your way forward keeping in mind your age and wish to have children. Wishing you everything of the best.
Spiked bowling ball is what mine felt like, and even mittelschmerz knocked me down for days. The constant nausea, inability to eat or keep food down all pointed to a rebellious uterus. Great video!
WOW - we are so sorry to hear of your pain with this disease. Thanks for your comment about our video.
I was just Diagnose with it myself and I have pain so severe that it makes me ill for days. I throw up can't gain any weight and nothing i've taken for the paid helps and I can't take NSAID
@@robinpage2184 it’s awful, and the answers don’t always help in the moment. I found a lot of relief with different therapies and also cannot take NSAIDS. There are many ways to feel better, and each person has success, or learns what doesn’t work. The basics matter - are you drinking water, warm if possible? Are you able to slowly stretch your body. Can you sleep?
Thanks Dr Yossi! What a relief to hear that the condition is treatable 🌷
I am 48 years old and I have been suffering with Adenomyosis since 2015. I still don’t want to remove my uterus; I also have anemia and I get transfusion and I have tried some of medicine. I had a UFE which it works for almost 2 years, but my menstrual bleeding is back. I don’t know what else to do. I get a lot of pain too.
They have Dr in Europa, China, India, etc that do adenomyosis remover from the uterus, but they don't remove the Uterus like here in the USA. In the USA they only want to remove the Uterus and not bother helping the female to keep their Uterus which is sad. They should take classes from the others Dr who know how to remove the Adenomyosis.
So sorry you are going through this- may be an option to consider coming for treatment in South Africa with our doctors, however, our cut off age for a female for fertility specific treatment is 49 years old- that is if you would like to conceive a baby.
If you are looking only for treatment for Adenomyosis then you can email us your requirements and we shall Endeavour to book you in - reception@vitalab.com
I have adenomayosis but conceived naturally at the age of 41 . Now 46 waiting for menopause
That is wonderful, unfortunately this is not the case for all patients with adenomyosis.
Did you have any miscarriages? Im 41 and going through IVF with adeno, two miscarriages in the past...
@@fritzhagen123 no never .
Thank you for this video - greatly informative. Recently been diagnosed with adenomyosis so this has been hugely insightful!
Hi Amanpreet this is exactly the reason we do this!!! Thank you for commenting and letting us know. We love hearing how our videos have provided info, help or support to patients around the world on their various Journeys.
What about the side affects of the hormone suppression medication?
The side effects vary per patient and depends on their unique requirements for medication
Thank you Dr. We got the results today and my wife is in shock and stress, im trying to educate myself on the subject. Thanks again and lovely south African accent, I lived in joburg for 12 years
Hi Arashk, we are so sorry to hear of the diagnosis. We are happy to hear that you are so supporting and are researching this topic, which is so important to make educated decisions going forward. We appreciate your lovely feedback and wish you both well! 12 years in Joburg means you a Saffa (South African) at heart - hehehe.
Thanks a lot , you made my day easy , understandable and also convertible
thank you, we love hearing this feedback!
I also recently got diagnosed with this. I am 37 and have always had heavy bleeding but with no pain. What my obgyn thought was a fibroid (and had surgery for the removal of it) pathology test stated otherwise. Now my bleeding seems to only have gotten worse since the surgery a year ago.
Hi Nathaly, Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly and cannot be answered via social media. A consultation with a reproductive medicine specialist would be of value to you to discuss these questions and answers in depth, if you are still trying to conceive. If you have completed your family then to see a specialist Gynaecologist/Obgyn.
What surgery did you have
I was diagnosed with adenonmyosis, endometriosis, fibroids and endometriomas!!! Scheduled hysterectomy
We are so sorry to hear this. We wish you well for the hysterectomy and a speedy recovery.
I was diagnosed with Adenomyosis last year. After an ultra sound and a horrible night in after hours, i was given pills to deal with the pain and told that i cannot get a hysterectomy due to how full the wait lists are. Hopefully i will get my surgery in the next year or so.
Can Adenomyosis pain be intermittent in its severity, and be painful not only during menstration ?
Yes- it is mostly painful during periods but it can hurt when not on the cycle as well
It took 10 years to get answers and a diagnosis of this
Thank you was dignosed with this condition few months ago after suffering not knowing what was going on thanks for informative video still learning about it how to cope
Thank you Tanya for the feedback, and we wish you well with your new diagnosis & condition, and it is great that you are researching and learning more about it!
Thank u Dr.. 💓
I've been diagnosed with endo.. adenomyosis.. for the past 1.7years.. horrendous pain.. roughly 20 to 50painkillers per cycle.. conscious fluttering uterus.. blackish leukorrhoea after cycle.. can't walk or function normally.. I've been asked to go on medically induced menopause..stop the cycle.
We are glad you found the video helpful, but are sorry to hear of you diagnosis and pain. We hope the new treatment method will help you. Wishing you well.
how are you maam after induced menopause?
Im also diagnosed with Adenomyosis. Every month is so painful and i have spotting in betweens… Im already frustrated cause we are working for a baby.
We are sorry to hear this and hope you will see a Fertility Specialist for help.
I just got this DX. I started getting symptoms in February. My cycle was going crazy! There was nothing on my last ultrasound from a year ago. The pain is just starting for me. It's bad. I can't do the suggested treatments. I developed DVT from the pill after a week of being on it. I can't take ibuprofen because I have CKD. I can't take acetaminophen because I have liver disease. I'm praying for a hysterectomy
We are so sorry to hear of your diagnosis and the struggle you are experiencing with getting the pain under control. We wish you well for the future and hope that you find a solution soon.
Wish I could afford treatment at this clinic.
Wishing you well for your treatment and journey.
Hi, I am 49 years old and was just diagnosed with adenomyosis. A hysterectomy is the only cure however is it recommend if I am close to menopause? Any info would be greatly appreciated.
Hi Marie, Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly and cannot be answered via social media.
This is so helpful!! I suffer in severe pain every month. The only option offered to me is progesterone or hysterectomy. I am trying to conceive for 2yrs and now luck. My uterus is three times enlarged. I wonder, which estrogen blocking medication you were describing here?
Good day- we use a number of different medications and brands- each individual case is different . The best would be to schedule an appointment so we can discuss your case .
This video was great, thanks Dr. I had an ultrasound and found out I have this and cystic overies. My blood test showed high testosterone though? My GP has put me on Metformin, but I'm waiting to see a Gyno. A hysterectomy sounds great I'm 36 and have 4 children.
Hi Kelly, firstly thank you for the comment & we are so happy you found the video great! We are sorry to hear of your diagnosis but it does sound like you are taken care of by your GP & soon to be Gynae. Atleast you are fortunate to have had your children already & that makes a hysterectomy a possibility to discuss with your Gynae. We wish you well on this journey.
Thank you Doctor 🙏🙏🙏 such informative video. I told my doctor she did lab test , Pap test and pelvic exam but never did ultrasound. During our discussion she tells me I think you have adenomyosis . Never does ultrasound or further testing . It’s so scary how some doctors in USA
Hello. Thank you for this video. It helped a lot.
Is there a way I can remain physically active despite the condition? Exercise is something I would have wanted to continuously incorporate in my life, but it hurts too much. What would you recommend? Thank you kindly, doctor!
Hi There - we have found exercise which doesn't involve too much pelvic movement is best. Avoid things like jumping on a trampoline, skipping rope, fast running, etc. Slower movement exercises are best. We hope that helps.
@@VitalabFertility Thank you so much!! I think Tai Chi will be good, because with Yoga, it seems to stretch me a bit too much and get kinda painful. :)
Hello Dr. Thank you for sharing this important topic. What natural or pharmaceutical medicine would you suggest to block the estrogen? And also, since IVF involves medication containing estrogen to thicken the uterus, wouldn't it cause worsen the adenomyosis?
Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly and cannot be answered via social media. A consultation with a reproductive medicine specialist would be of value to you to discuss these questions and answers in depth.
I think I have this due to my c section.
Thank you. Can you please advise which food to avoid when having adenomyosis?
That is a great question and we have recommended this to the Doctor to consider as another Video Topic. Thanks for commenting.
I was told All sugar in every form.
I've heard that it's good to avoid sugar, refined carbs and milk.
Very helpful vedio, in this one I've just heard that the uterus will be back to its free Adenomyotic state, when estrogen block as its adenomyosis food. Im in agonizing pain and just 5 days taken dienogest as my doctor said.
We glad you found the video helpful and informative. We wish you all the luck with your doctor and getting your adenomyosis and specifically the pain under control. We do know how painful this can be.
Please doctor you can help le
Hello Dr..thank you for this informative video. What particular medications do I need as I still set aside hysterectomy as the solution for this?Please help. Been suffering from prolonged bleeding when I was 13 years old,been to a lot of doctors.
Hi Leslie, We are so sorry to hear of your diagnosis and how long you have been suffering with this disease.
There are estrogen blocking medications which you can speak to your DOCTOR about and ask them if they would recommend for you and the length of use. Examples: a) GNRH analogs or antagonists and/or b) anti estrogens in the form of Letrazole, Tamoxifen, etc.
These are scripted meds which you will need to be monitored by your doctor whilst using & to find the right medication and dosage for you.
We hope you are able to find some help and relief soon.
The excruciating pain,is completely horrendous 🕯️✳️ I don't think most folks truly comprehend how much pain a denomyosis actually gives us 🌞✳️🙏To me,it is like I,m carrying a big heavy led balloon in my lower a
bdomen🌞✳️🙏Plus sh@rp st@bbing pain in my lower abdo
men too🌞✳️🌞✳️🌞✳️🙏
You are exactly right - the pain associated with both Adenomyosis and Endometriosis is truly significant and affects the daily life of those suffering with these diseases. We hope you find a good Dr who can help you manage the symptoms effectively.
I had this condition and my symptoms were different. Every month I was so swollen I would put cold compresses on my area. Also id have old blood a few days after my period come out on my pad . Old blood smells awful and other people could smell it too. Embarrassing.!!! I dont think docs knew much about this 30 years ago but I sure wish they had listened to me more. For years all they did use prescribe naproxen. I hope this helps someone.
We are so sorry to hear of all you have been through and it is our hope too that someone watching this video gets the correct diagnosis and help for their condition!
I always feel like I have a fist in my tummy. It hurts. All. The. Time. I have been going from gyn to gyn about it since 40. I just get told I’m perimenopausal. It will go away with menopause. I’m now 56. Still no menopause. 16 years of pain. Last year I got diagnosed with adenomyosis. Guy says oh if we had known we would have done a hysterectomy which I have been begging for for over a decade. But now, surely now, menopause is imminent. I have no more faith in doctors.
That is so sad, this is why we create this type of content- to help spread the word and educated patients and other practitioners
Keep educating! If it saves someone else from this, it would be awesome! Thank you.
I had no problem getting pregnant w adeno. Quite the opposite. Had 4 kids without even trying really. But the pain of adeno is so friggin awful. Lots of digestive pain too.
I’m 24 and just got diagnosed with adenomyosis, is this an abnormal age to be diagnosed? And Will this impact my fertility majorly when the time comes?
Hi Ellie - we are sorry to hear of your diagnosis. Yes Adenomyosis can have an impact on fertility, it is important that you have an appointment with a Fertility Specialist to speak through this diagnosis and what options are available to you now and for the future. If you would like to consult with Vitalab - you can fill in an enquiry on our website www.vitalab.com. Otherwise we recommend finding a specialist in your area.
IT took 20 years to diagnosed the adenomyosis nothing was done now just started my menopause
Thank you very much for sharing, very informative I never knew this existed ♥️
Such a pleasure, thank you for commenting!
Thank you so much that has helped only found out 2 months ago that i have this condition after 10 miscariages in 20 years .gues i have had my fair share of pain .i am going for hysterectomy.
Wow we are truly sorry to hear of your many miscarriages and also the delay in getting your diagnosis. We hope that you have found the right doctor now providing you with treatment and care.
I was diagnose adenomyosis figo 4., just 3 weeks ago, Im 47 yrs old and never had a baby. I always have very painful menstruation and chronic pain in the pelvic
Due to adenomyosis there is a blood in sex and also in urine?? Plz sir reply
Recently been diagnosed with adenomysis then after some days I went to the dr she said I’m pregnant but the baby bag or sack is empty then I aborted I had abortion does this relate to adenomysis?
This is definitely something you need to ask the doctor who was managing your pregnancy. Not something we can comment on unfortunately.
Is it known why some people are able to have healthy pregnancies with Adenomyosis, but others are infertile?
I am the latter, but I also have PCOS and Endometriosis (basically every part of my body is like 🙅♀️👹NO BABY👹🙅♀️).
I am curious what I can do to help create a better environment for a foetus before seeking a fertility specialist, as I am currently on medication where I can not fall pregnant without significant risk, so I feel like seeing a fertility specialist is counter productive right now.
Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly and cannot be answered via social media. If you are not ready now to see a Fertility Specialist, then we would recommend seeing your GP or Gynaecologists to discuss these questions.
Hi Dr. Thank you for the video. I'm awaiting a bilateral oophorectomy. Just wondered if it will stop the symptoms of adeno or if they should be removing my uterus too?
Thanks x
Hi there - why are they removing your ovaries?
- if your uterus is removed, then yes the adenomyosis symptoms will stop as the disease is in your Uterus, thus if removed then the source of the symptoms are removed.
If however you have Endometriosis - that is found outside the uterus (such as how you explaining perhaps with your oophorectomy) then perhaps it will help those symptoms.
But these are two different diseases (Adeno or Endo) as their locations vary - so it is important you know which one you have - or even if you have both - as then different surgeries would be needed to stop one or all of the symptoms you are experiencing, if you are no longer wanting to have children ofcourse.
I’ve just had an ultrasound of which adenomyosis is suspected but not officially diagnosed. I have been on birth control pills for years…a very low dose birth control. My periods are excruciatingly painful if I am not on birth control. Would it be recommended for me to go off of my birth control and begin estrogen blocking therapy? What happens after the therapy? Am I then “cured” of adenomyosis or will it then return? I think I need to go see a urogynocologist as my doctor is not overly helpful.
Greetings everyone+thank you so very much for this video
My gynecologist yester, tried to take biopsy from me, prior to my ops ,which I,m on the waiting list for:-But it were so extreMely painful,they had 2stop before actually obtaining my biopsy:- But the hospitl didn't prepare me that they would att empt to obtain one,so I wsn,t in the right frme of mind for it, being's I were not forewarned:-
I,m now wondering if I should request another 'ppointment for the biopsy so this time I will be psyched up for it, you know? 🌞✳️🙏Any guidance or experiences offered would be much appreciated 🌞✳️🙏 God bless everyone
Please ask your Gynaecologist what can be done both prior and during the procedure to make it more manageable for you. We utilize certain pain medications and injections to assist our patients with their comfort levels.
Does it need to be treated if you don't plan any more pregnancies?
Hello Dr, I am 42, have 2 children, just got diagnosed for adenomyosis and fibroids 2.8*2.3 cm and 2.4*1.6cm. Fertility is not an issue in my case. Pain is severe during each cycle. I hv been suffering for almost 5 yrs. What is your suggestion? Please reply. Regards from India 🇮🇳🇮🇳🇮🇳
Hi there, If there are no contraindications I would advise the use of Dienogest to manage your pain. Good luck! Dr Yossi
@@VitalabFertility gm dr, I got the pap smear, Hb and urine culture done, all results are fine, doc advised me to insert Mirena. But, I want a permanent solution. Do u advise hysterectomy in my case ? Regards to you, Dr 🙏 from India 🇮🇳🇮🇳🇮🇳
@@Ms-fe2bo yes, the permanent solution if you are not wanting more children of course, is to have an Abdominal Hysterectomy. Wishing you well for the journey ahead.
@@VitalabFertility thnx a lot doc for your valuable advice. Regards from India 🇮🇳🇮🇳🇮🇳
@@Ms-fe2bo Thanks for sharing your experience. I' m also suffering with adenomyosis and looking forward to get a hysterectomy. Hope it doesnt carry a lot of post complications though😔
Can the pockets of internal bleeding result in anemia? I’ve been diagnosed with Adenomyosis & I have chronic anemia.
Hi Dr, thanks for the video. I have been trying for pregnancy and I had miscarriage last year but scan was normal during that time .when I see the scan last week my gynecologist said it seems like early adenomyosis. Will It be a problem in conceiving with this early adenomysois ?
We cannot give our advice over social media unfortunately. We do think you would benefit from having an appointment with a Fertility Specialist to discuss your options and way forward.
I wan show you my result of irm😢😢😢
thank you
You're welcome
What are the estrogen blocking medication that is used for adenomyosis ? Is it raloxifine?
Estrogen blocking is at 2 levels. 1 by temporarily switching off the pituitary gland that stimulates estrogen and that is when we use GNRH analogs or antagonists. 2 you can decrease peripheral estrogren production blocked with anti estrogens in the form of Letrazole, Tamoxifen.
@@VitalabFertility Thank you for the answer doc. Do you use both Tamoxefine and Letrozole together ? For
How long due you use them? Can letrozole be given for premenopausal women for adenomyosis. I have read that letrozole is used only in postmenopausal women can it cause any issues if used in premenopausal women for adenomyosis.
Thank you and appreciate for taking your time to respond.
@@psychiatrist123 these are great questions and these medications are scripted and this needs to be discussed with your prescribing/treating doctor. They will need to find the right combination and dosage of medications for you and your specific scenario. This is not something "generic" we can advise on via social media.
We hope that you do get help & find the right doctor to manage you going forward.
Hi doc thank you for that I've been diagnosed with adenomyosis been suFfering for 7 years I was so afraid to go to doctor and having transvaginal ultrasound is very uncomfortable for me
It does hurt and after 😔
We are so sorry to hear of your diagnosis and also the discomfort.
Yes unfortunately it can be painful for patients suffering with severe adenomyosis to have internal transvaginal scans, but they are imperative. We recommend finding a good specialist who can be patient with you when scanning to try make it a less painful experience for you.
I have pain when I am not bleeding. I have been diagnosed medically, I do not want an hysterectomy though. Anyone have any over the counter medicine that has helped them ? Thanks
Hi there, we are not aware of over the counter medications which work sufficiently. There are other estrogen blocking medications which you can speak to your DOCTOR about and ask them if they would recommend for you and the length of use.
Examples: a) GNRH analogs or antagonists and/or b) anti estrogens in the form of Letrazole, Tamoxifen, etc.
These are scripted meds which you will need to be monitored by your doctor whilst using & to find the right medication and dosage for you.
I have adenomyosis...thiers a mass at the back of my uterus..I dont have severe bleeding but severe pain before, during and after period and depending on pain relievers that sometimes even pain killer is already doent work.....operation is the last option.. I'm single but I want to have children in the future...is thier any pain during pregnancy if I choose not to be operated
Hi Bellie, thanks so much for your comment and we are sorry to hear about your diagnosis and the mass found. We are not able to give out medical advice on these platforms. You would need to have an assessment by the DR, and then the DR would let you know his opinion on falling pregnant / pregnancy with the diagnosis of Adenomyosis and the mass - then going through all the options and outcomes thereof... If you are based in RSA, you are welcome to book with one of our Specialists. Link: www.vitalab.com/doctor-appointment-form/ Wishing you the best of luck whilst TTC once you are ready in the future.
How about low back pain as a symptom?
Yes it does cause lower back pain
Can organic soy milk help to reduce or level estrogen levels?
Thanks for the question - no it does not.
I had my first ovarian cysts surgery in 2018 and now I have been diagnosed of both Adenomyosis and endometriosis,, what are my chances of having children?? One of my Fallopian tube is blocked because of the surgery..I’m 35 years old
Hi Uduak, we are sorry to hear about this difficult journey you have travelled thus far. These conditions can certainly be treated and I would not give up on your dream of having children. You need to book an appointment with a Fertility Specialist and begin this journey. You are welcome to look at Vitalab's website and see if you wish to see one of our Specialists. Alternatively, look for one in your home town. www.vitalab.com
Shalom, I live in Israel and my doctor just informed me that I have endometriosis, adenomyosis. Are these two one in the same or two different entity? Want to try to conceive. And see what my options are. Seeing a fertility doctor mid month.
Shalom!
I'm sorry to hear about your diagnosis. While similar, endometriosis and adenomyosis do differ primarily because adenomyosis involves the muscle of the uterus. The good news is that both are managed in a very similar way. Good luck with your consult with the fertility doctor! Dr Yossi
Can youget pregnant with diffuse Adenomyosis
Hi There - it is impossible for us to comment on whether you could/couldnt get pregnant without assessing you & your partner. What we can say, is that we assist MANY patients who have various levels of Adenomyosis to conceive.
Thank you that gives me hope !!!!!
Hello, does adenomyosis affect the bladder?
Yes
What issues arise with a hysterectomy down the road?
A friend's wife was having issues with too many frequent UTIs and the issue was wrongly diagnosed suspecting the kidneys.
A skilled doctor then determined because of the hysterectomy the organs have realigned and caused light uncontrollable urine discharged into the urethra which consequently lead to UTIs. If this is the case...whats there to protect from this Dr. ?
Thank you for the comment and question, we unfortunately cannot comment on this case and would recommend they seek help directly from a skilled healthcare professional like you mentioned to advise them.
Whenever a procedure is recommend, it needs to be discussed at length including the risks between that doctor and patient.
Thank you so much doctor for this very informative vedio. I was diagnosed with adenomyosis three years back. Firstly had a mirena placed, then had to take it off because I had to undergo cone biopsy as my gynaecologist found a suspicious lesion on my cervix.(Its' histopathological diagnosis was a nabothian cyst). Then temporarily I was placed on contraceptive pills and now I wish to have a more permanent solution. I already have one child. Would you recommend hysterectomy for me?
NO!!! Please don't let doctors remove your Uterus. It's other alternatives out there okay.
Good morning doctor 🙏 I am infected from adinomasis ...I have no baby.. 😭😭😭 I wouldn't understand ur speech...pls 🙏🙏🙏tell me wat is best treatment for adinomasis pls reply me.....
We do discuss the treatment options available in the video for patients with adenomyosis. Importantly you need to be managed by a specialist doctor who can advise you & administer the correct treatment or options for you specifically.
Hello Sir, I have a adenomiosis cyst near the uterus and endometrium with a maximum thickness of 12 mm, to be correlated with the luteal phase after having the period 18 day...
Now before going through the IVF, a doctor is telling us to remove it by hysteroscopy and another Dr. is telling us that there isn't any risk with this cyst.. You can go directly with IVF, as my AMH level is 0.23.. We're ready to go through the Ivf, but there is a huge confusion that we must go through the surgery with histeroscopy or not .. As we don't live in India, or we'd have come directly to your clinic for a suggestion.. So please, Could you suggest us something important please???
Thanks..
Definitely sounds like you need another opinion and ideally from a Fertility Specialist. We cannot comment via social media on your case unfortunately. If you would like us to review your case, we can offer a zoom appointment. Our details www.Vitalab.com
How do you switch off the estrogen?
This is something which will need to be managed by your Doctor and with various medications.
@@VitalabFertility Lost me there. There's a way in nature but I know western medicine doesn't learn, know nor like to share this if they know. Thank you for your reply anyway.
I'm 36 4 misscarg and now no kids I have endometriosis and adenomyosis may I get pregnant with typ of sickness
I'm so sorry to hear about this difficult journey you have travelled. These conditions can certainly be treated and I would not give up on your dream. You should see a Fertility Specialist for assistance. Dr Yossi
Dr. would a low iron count make this any worse?
Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly and cannot be answered via social media.
I got diagnosed with adenomyosis a week ago and I've been bleeding for 2 months and i think i made things worse by exercising because before the bleeding i was skipping rope every day
We are sorry to hear of your Diagnosis. There is medical options for you, so it would be of value to consult with a Gynaecologist or Fertility Specialist for help with management or treatment. We do advise lower intensity exercise for patients, not skipping or trampolines etc which causes alot of movement in your pelvic area. Best of luck and we hope you find help soon to manage this disease for you going forward.
@@VitalabFertility thank you 🤗
Hello sir, I have bulky uterus and adenomyosis. I am 29 years old and no baby. One miscarriage and now non stop bleeding from 2 months. Can I cure without surgery? Please suggest me.
Hi There - thanks for your question - it is important for you to have a CONSULT with a Doctor, ideally a specialist, who can then recommend MEDICATION alternatives to surgery for you. Unfortunately this is not something "generic" we can recommend via social media without evaluating your specific case. We hope you manage to find help soon.
I am your age and going through the same thing it's affecting every aspect of my life
So I just saw your video on adenomyosis. I am a 51 year old female from India and have just been diagnosed via usg the similar condition of adenomyosis. Here Doctors tell me that the only treatment for this condition is hesterectomy, since my family is complete and do not want to have children anymore. I also went through a D N C with polyectomy as there was also an indication of polymenoreaha. I want to know if I can treat my adenomyosis and avoid the hesterectomy. Pls advice
Regards,
Aparna Sharma
I had no pain no fever no symptoms only heavy menstrual bleeding
Hello Aparna, thank you for your question. The issue is that adenomyosis will require hormonal treatment as well as surgery in later life and as you are in menopause and your family is complete- if your symptoms are severe then a hysterectomy would be advised. The only way to fully stop adenomyosis is with a hysterectomy (surgery to remove the uterus). Since adenomyosis causes diffuse, often fingerlike projections of tissue to invade the uterine wall, we can’t just go in and remove the abnormal tissue like we might be able to do with fibroids. The ovaries and fallopian tubes can stay in place.
Hello doctor,i have 7 days period in every month and after recovered my period 5 days later i have again dark red discharge and it continues 3 to 4 days.the first two days of my period i have too much pelvis pain and lower back pain which can bear extremely painful..what can be solution for it???
We cannot give out medical opinions without assessing your case. If you would like an opinion from Vitalab you can fill out our form on www.vitalab.com otherwise find a local specialist near to you to assist you.
Hello
I am 42 and I have been diagnosed with adenomyosis a year ago and I also had undergone a biopsy .. but the problem has sort of come back .. is merina loop look helpful or should I get hysterectomy… please help me !! 🙏
Hi There - we have replied on your other comment :-)
@@VitalabFertility
Thank you so much 😊🙏
Hi I just got this diagnosis due to a enlarged uterus and very heavy bleeding . They put me on birth control but I am wondering is there any other way to shrink my uterus other then hysterectomy? I don’t want to take it out
Hi There - firstly we sorry to hear of your diagnosis. Yes, there are other estrogen blocking medications which you can speak to your DOCTOR about and ask them if they would recommend for you and the length of use.
Examples: a) GNRH analogs or antagonists and/or b) anti estrogens in the form of Letrazole, Tamoxifen, etc.
These are scripted meds which you will need to be monitored by your doctor whilst using & to find the right medication and dosage for you.
I was diagnosed with endometriosis 21 years ago. And later on with fibroids, and then endometriosis followed by adenomyosis and uterine polyps . I was advised to do a hysterectomy 5 years ago but never wanted to lose my uterus. Now my body can’t take the suffering anymore and I’m forced to get rid of the reproductive organs. I probably could have saved the ovaries if I had the surgery sooner!!! Don’t delay if it’s bad for you….
I haven't had my period sincr 08/05/2021.an I was just diagnosed with adenomyosis....
We are so sorry to hear this Corine. We hope you have found a good doctor to help you manage this diagnosis and your way forward.
Hi Dr Yossi.. I suffer from this and it is so painful for me every month.. I exercise frequently and try to eat clean and healthy. But it is still so painful. I don’t know what to do. Will inserting IUD mirena help? Or what treatment do you suggest? Also, may I take this supplement (DIM - Diindolylmethane)?
Please please help.. and I look forward to your reply.. 🙏🏻
HI there - we are sorry to hear of your diagnosis and ongoing pain. Unfortunately we cannot advise you to specific treatment and way forward such as using an IUD or particular supplements etc. You need to consult with a DR, have them assess you in person, then prescribe the best way forward for you. We are not allowed to give out medical advise without assessing you and your case. Wishing you the very best ahead and sincerely hope you find some relief. If you are in SA, you are welcome to look up our services and assistance, www.vitalab.com
I have adenomysis for four years main problem is sevre back pain and abdominal pain and I am taking mental spasm even l can not go anywhere l suggested histerectmy tell ing that don't remove uterus because age is 41 so suggest any medications cure the disease
Thank you for your comment and question, unfortunately clinical questions need to be addressed to your Healthcare Professional directly (via consultation) and cannot be answered via social media. We would recommend you see a specialist Gynaecologist if you have completed your family and you are considering a hysterectomy.
Endometriosis is outside the uterus adenomyosis is inside
Absolutely correct!
Vitalab Fertility Clinic - Sandton and Umhlanga I’m the winner 🥰😂 tell them to let me make a video.... no but all jokes aside I just learned that at the doctors office 😁
@@justbeencouraged2495 hehe! we wish all our patients were this well informed. keep up the research and learning, it will help you ask all the right questions from your Doctors about your treatment and journey ahead.
Vitalab Fertility Clinic - Sandton and Umhlanga I’m hopeful for a baby soon thanks for the video
@@justbeencouraged2495 we hope that too!
I was diagnosed in 2018 with both endometriosis and andenomyosis 2weeks ago i had the endometriosis removed and was told my only tube was blocked and that nothing can be done. I have 1 8year old son but I really want to fall pregnant again what are my chances?
You would benefit greatly by having an appointment with a Fertility Specialist to discuss your options for conceiving.
I m 32 yr old,I have bulky uterus and adino...two ivf failed with my own egg and one donor egg..but I really don't want to give up to have a child. Can I try another ivf .
We would recommend you getting a second opinion. If you would like it from Vitalab, feel free to complete the enquiry form on our website www.vitalab.com. We do offer consults via Zoom/Video calls. With your history it is important to get the right options on next steps.
May I know what medication is given to people with adenomyosis?
Ofcourse, there are other estrogen blocking medications which you can speak to your DOCTOR about and ask them if they would recommend for you and the length of use. Examples: a) GNRH analogs or antagonists and/or b) anti estrogens in the form of Letrazole, Tamoxifen, etc. These are scripted meds which you will need to be monitored by your doctor whilst using & to find the right medication and dosage for you.
Will these meds reduce the size of the uterus Doc?
@@onoshiovibes3802 yes the meds help reduce the disease which in turns means the size of the uterus, as typically the uterus is enlarged because of the disease.
Hello sir... sir i m 27yrs old n unmarried n suffering from pcod+ adenomyosis... what treatment would be convenient for me... kindly help
Hi there, If not contraindicated I would suggest using Dienogest either on its own or in combination with some estrogen like a pill called Qlaira. Dr Yossi
@@VitalabFertility thnx for ur suggestion...🙂
@@VitalabFertility but sir i was taking estrogen n progesterone from 2011... so my dr.s said that u have taken too many OCPs so they didn't gave me any such hormones...
@@elisharoyal6990 it is important to follow the advice of your DR or if you are concerned to get a 2nd opinion from a DR who can evaluate your case thoroughly. Wishing you well and hope you find the right DR to look after you in your home town.
@@VitalabFertility thnx.....
I was told i have adenomyosis today 😭😭😭
We are sorry to hear of your diagnosis and wish you well.
Kj
Hi Penny - do you have a question or comment for us?
I just diagnosed last week 😞I requested to take out my ovaries n my uterus already because they found cyst also in my right ovaries 🥲
As a post menopausal woman with adenomyosis would it be not beneficial then to be on a estradiol patch because it feeds off of estrogen? I was using the patch and continued to bleed off and on for months. As soon as I stopped the patch the bleeding ceased.