I'm almost 40/f, just went to the Dr recently for breathing issues, never had asthma, I've always felt I've had breathing issues due to CMT weakness so they're doing a chest xray and looking into it. This presentation really clarified a lot and is very helpful and just validating to the issues I've had. Thank you for the great work!
CMT2CC struggling tonight. newly diagnosed at age 67. i have left vocal cord paralysis which is symptomatic and OsSA. this presentation is spot on for my situation.thank you! i wish i could share with my pulmonologist
I have CMT does it affect my lungs and heart and stomach because I have Lupus , and pulmonary Fibrosis and heart failure and also pancreatitis and stomach problems such as gastroparesis does CMT play a part in these situations?
Well you can add me to the list of women with cmtx who have always had breathing issues and which are getting worse as I age. I also have ITP and wish there was more research into the connection between CMT and autoimmune disorders (and edema, weight gain, arthritis, migraines, skin conditions, etc etc etc.). I'm happy to donate blood and participate in studies if you need someone.
I'm almost 40/f, just went to the Dr recently for breathing issues, never had asthma, I've always felt I've had breathing issues due to CMT weakness so they're doing a chest xray and looking into it. This presentation really clarified a lot and is very helpful and just validating to the issues I've had. Thank you for the great work!
I am 70 & just diagnosed with CMT. Now I know why I have always been a toe walker!
CMT2CC struggling tonight. newly diagnosed at age 67. i have left vocal cord paralysis which is symptomatic and OsSA. this presentation is spot on for my situation.thank you! i wish i could share with my pulmonologist
I have CMT I have hemiphlegia of the diaphragm I use a bipap machine and a cough assist machine
I have CMT2 and cannot find a dr in my area that is knowledgeable. Very frustrating.
I have CMT does it affect my lungs and heart and stomach because I have Lupus , and pulmonary Fibrosis and heart failure and also pancreatitis and stomach problems such as gastroparesis does CMT play a part in these situations?
Well you can add me to the list of women with cmtx who have always had breathing issues and which are getting worse as I age. I also have ITP and wish there was more research into the connection between CMT and autoimmune disorders (and edema, weight gain, arthritis, migraines, skin conditions, etc etc etc.). I'm happy to donate blood and participate in studies if you need someone.
Me too. CMTX. Breathing issues just aren't that rare