Thanks for these explanations. I wish that this kind of approach existed everywhere. I wonder if it is also efficient in the case of Long covid of ME/CFS due to virus infections/persistance.
I just posted a question on one of your shorts about having EDS and POTS, only to go to your page to find that you posted a video eight months ago about it. Thank you for the time and dedication you have put into helping educate society on these issues. Also, thank you for all the hard work you have put into your education.
I love it when you give case studies of people who were cured, and you don't share them with anyone, and you only give some clues, but don't indicate the cause! There is an entire community desperate in search of improvement and resolution of their problems, but we never succeed! We just observe success stories, one there and another there, they never objectively share the treatments used, unless we pay a large amount of money.
Did you watch the whole video? The treatment is there. The purpose of the video is to help people think about their problems in a different way. If you are looking for a way to be able to analyze and diagnose complex health conditions you may have to consider a more formal education in healthcare. There is a ton of information available on pubmed that can help you understand. It just takes time. At least it did for me. I hope the videos at least give you some ideas. I wish you the best of luck.
@@dockeiser I'm sorry, I'm hopeless and I'm from Brazil, there aren't many experts on this here. Could you tell me which Pubmed articles you read? Thank you very much anyway!
This was a very good video, I tip my hat to you Doc. Im on the fence about letting you in on my story slash history because I feel im way down the road from being helped. I like the way you look at things to help your patients. Best video to date.
I have hyper-mobility, Non Length Dependent Small Fiber Neuropathy, and POTS. I had skin biopsies to diagnose the neuropathy. Full body burning was they first symptom and developed over just a few days. I have a lot of symptoms and remember tinnitus starting in the first days. Eye symptoms have become very difficult for me. I sometimes can’t see to read. My vision simply blanks out in the middle, going grey. Recovery time after that happens is hours. My vision is very grey a lot of the time and colors very faded. I can see clearly, however, in a tiny spot, if I look through a small tube! I feel like it’s my BRAIN that can’t deal with too much information at a time. I’ve become hypersensitive to what’s in my peripheral vision and find that I often naturally held my hands to the sides of my face to shield the vision, limiting my focus to only that right in front of me. I am extremely dizzy and often weak and out of breath when I’m up. My heart rate usually just goes to 140 when I get up. The force of the heart beats are often painful when it’s that fast. I can stay up for about ten minutes on my nest days, so I make mad dashes for what I need. I get up often and sit up as much as possible, but on bad days, I can get to the bathroom then back to the bed. I’ve had milder POTS since I was a teen and thought it was normal for people to black out for a few seconds when they stood up. The severe POTS hit eight years ago and I now depend on family for all but self care, which is slipping because even with lukewarm water and a shower bench, I have only a few minutes to shower before I start blacking out. It’s really dangerous and I am afraid, so I avoid it and sponge bathe most of the time. This whole shower ordeal leaves me a heap on my bed, where I’ve staggered dripping wet and gasping, and dropped haphazardly onto. Then I’m hot and sweating, then very cold, and have to dry off and comb my hair, an activity I have to do in stages because raising my arms makes me black out…. This is a ridiculous way to live. I’m typing through a visual haze like thick smoke with one eye closed because I always have double, triple, quadruple vision. I keep moving my head because the blind spot won’t develop as easily. I adapt. Last night I was thinking again about how many new symptoms I’ve allowed into my life without adequate care from the doctors I’m able to see, and considering that I don’t really want what they might have to offer.
It absolutely is IF there is no hope. Never stop searching for answers. You are not alone. I feel your pain, going through this war fighting suicidal thoughts myself.
Can dysanatomia cause hypertension? My experience say that dysanatomia cause hypertension and hypertension can be improved by stimulating parasympathetic system. Also i know that anxiety can damage autonomyous nervous system. What is your exercise that we can do ?
In your opinion is this case inflammatory? I have the same symptoms as her and also have the head shaking thing when having an eye exam or lying on a flat surface. For me the disautonomia and POTS goes away if I catch a virus that causes high fever. It lasts only a day sadly, as if there is an immune on/off switch.
Hello so it’s retraining vestibular, eyes, body movements with the brain in a safe way till u get better, and blood flow exercises lying down and mayb sitting up too?
Thanks for these explanations. I wish that this kind of approach existed everywhere. I wonder if it is also efficient in the case of Long covid of ME/CFS due to virus infections/persistance.
I just posted a question on one of your shorts about having EDS and POTS, only to go to your page to find that you posted a video eight months ago about it. Thank you for the time and dedication you have put into helping educate society on these issues. Also, thank you for all the hard work you have put into your education.
I love it when you give case studies of people who were cured, and you don't share them with anyone, and you only give some clues, but don't indicate the cause! There is an entire community desperate in search of improvement and resolution of their problems, but we never succeed! We just observe success stories, one there and another there, they never objectively share the treatments used, unless we pay a large amount of money.
Did you watch the whole video? The treatment is there.
The purpose of the video is to help people think about their problems in a different way.
If you are looking for a way to be able to analyze and diagnose complex health conditions you may have to consider a more formal education in healthcare. There is a ton of information available on pubmed that can help you understand. It just takes time. At least it did for me.
I hope the videos at least give you some ideas.
I wish you the best of luck.
@@dockeiser I'm sorry, I'm hopeless and I'm from Brazil, there aren't many experts on this here. Could you tell me which Pubmed articles you read? Thank you very much anyway!
can you share some of the exercises for tjose of us who dont have access to dorctors or to you. Thank you
This was a very good video, I tip my hat to you Doc. Im on the fence about letting you in on my story slash history because I feel im way down the road from being helped. I like the way you look at things to help your patients. Best video to date.
I have hyper-mobility, Non Length Dependent Small Fiber Neuropathy, and POTS. I had skin biopsies to diagnose the neuropathy. Full body burning was they first symptom and developed over just a few days.
I have a lot of symptoms and remember tinnitus starting in the first days. Eye symptoms have become very difficult for me. I sometimes can’t see to read. My vision simply blanks out in the middle, going grey. Recovery time after that happens is hours. My vision is very grey a lot of the time and colors very faded.
I can see clearly, however, in a tiny spot, if I look through a small tube! I feel like it’s my BRAIN that can’t deal with too much information at a time. I’ve become hypersensitive to what’s in my peripheral vision and find that I often naturally held my hands to the sides of my face to shield the vision, limiting my focus to only that right in front of me.
I am extremely dizzy and often weak and out of breath when I’m up. My heart rate usually just goes to 140 when I get up. The force of the heart beats are often painful when it’s that fast. I can stay up for about ten minutes on my nest days, so I make mad dashes for what I need. I get up often and sit up as much as possible, but on bad days, I can get to the bathroom then back to the bed.
I’ve had milder POTS since I was a teen and thought it was normal for people to black out for a few seconds when they stood up. The severe POTS hit eight years ago and I now depend on family for all but self care, which is slipping because even with lukewarm water and a shower bench, I have only a few minutes to shower before I start blacking out. It’s really dangerous and I am afraid, so I avoid it and sponge bathe most of the time.
This whole shower ordeal leaves me a heap on my bed, where I’ve staggered dripping wet and gasping, and dropped haphazardly onto. Then I’m hot and sweating, then very cold, and have to dry off and comb my hair, an activity I have to do in stages because raising my arms makes me black out…. This is a ridiculous way to live.
I’m typing through a visual haze like thick smoke with one eye closed because I always have double, triple, quadruple vision. I keep moving my head because the blind spot won’t develop as easily. I adapt. Last night I was thinking again about how many new symptoms I’ve allowed into my life without adequate care from the doctors I’m able to see, and considering that I don’t really want what they might have to offer.
Thank you for reframing this to a strengths based approach ❤
Suffering from any chronic illness is harder than death.
This is not the way the world should be. I understand your comment.
It absolutely is IF there is no hope. Never stop searching for answers. You are not alone. I feel your pain, going through this war fighting suicidal thoughts myself.
I don't want to die. I just want the pain to stop.
Thank you very much Nathan, for sharing your knowledge 🙏🩵🙌🏽 God bless you, greetings from Hamburg Germany
Can dysanatomia cause hypertension? My experience say that dysanatomia cause hypertension and hypertension can be improved by stimulating parasympathetic system. Also i know that anxiety can damage autonomyous nervous system. What is your exercise that we can do ?
Look into mega dosing vitamin B1 for POTS and Dysautonomia
Bro that didn’t work for me this is much complex then you may think
In your opinion is this case inflammatory? I have the same symptoms as her and also have the head shaking thing when having an eye exam or lying on a flat surface. For me the disautonomia and POTS goes away if I catch a virus that causes high fever. It lasts only a day sadly, as if there is an immune on/off switch.
Hello so it’s retraining vestibular, eyes, body movements with the brain in a safe way till u get better, and blood flow exercises lying down and mayb sitting up too?
Really want to come see you guys but it’s pricey. So I can’t come right now.