How I Manage My Primary Ciliary Dyskinesia (Tips + Advice)

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  • Опубліковано 17 гру 2024

КОМЕНТАРІ • 14

  • @mikehp956
    @mikehp956 11 місяців тому +2

    Great video! I also use the Aerobika. Thanks for sharing your helpful tips and suggestions.

  • @miguelcervantes1828
    @miguelcervantes1828 Рік тому +1

    Hey Alex I’m glad you sharing your life with PCD i have katagener syndrome PCD just checking and looking up more info to have a better Quality of life

    • @alexikari6507
      @alexikari6507  Рік тому

      I’m so glad to have helped and it makes me happy to hear!! Good luck with your journey

  • @taran2582
    @taran2582 8 місяців тому

    Hi, do you also have situs inversis totalis along with pcd ?

  • @lujainaltuwary4871
    @lujainaltuwary4871 Рік тому

    hi i have pcd and my school starts next month and i'm so worried and embarrassed to cough in class and i dont take meds and do exercises so i was hoping you could show me what the meds and the exercises that can make me cough less in my day

    • @alexikari6507
      @alexikari6507  Рік тому

      first, i wanna say that i completely relate when you say that you feel worried and embarrassed. even now i find it super hard to open up to people about my condition, let alone cough in front of them. currently, i take albuterol sulfate nebulizer. it works for me, but i’m sure everyone’s bodies are different! the medicine is a vaporizer/liquid and i take it twice a day for 10 minutes each session. in terms of exercises i used to run. i don’t as much now, because the medicine helps a lot now and im lazy. something i would say really helps is getting an Acapella too to help vibrate the chest and get the mucus up. also, a vibrator chest helps too but it’s more awk for me idk. lastly, i find laying on my back and either doing the Acapella or not helps a LOT with coughing up. i found that a few hours after the albuterol the phlegm really starts to soften and coughing whatever i can without the Acapella is normally fine, but using it helps get everything

  • @miguelcervantes1828
    @miguelcervantes1828 Рік тому +1

    I always of tissue on me

  • @miguelcervantes1828
    @miguelcervantes1828 Рік тому

    Is there any way I can communicate with you?

  • @avularajinikanth5195
    @avularajinikanth5195 Рік тому

    i am recently diagnosed😢 from india

  • @miguelcervantes1828
    @miguelcervantes1828 Рік тому

    Why did you have jaw surgery???

    • @alexikari6507
      @alexikari6507  Рік тому

      I grew up with a bad underbite which was classified as a class III.