How I Manage My Primary Ciliary Dyskinesia (Tips + Advice)

Hi y'all! I know it's been a while since I last made a video, but I wanted to share today my own tips, tricks, and advice on how I manage my PCD. Also, thank you to everyone for all your kind words and support on my channel. It truly means a lot and I am so happy to know my videos have helped in any way. Please let me know if there are any future suggestions you would love to hear with regard to my PCD, jaw surgery, or anything else.

[@mikehp956]

Great video! I also use the Aerobika. Thanks for sharing your helpful tips and suggestions.

[@miguelcervantes1828]

Hey Alex I’m glad you sharing your life with PCD i have katagener syndrome PCD just checking and looking up more info to have a better Quality of life

[@alexikari6507]

I’m so glad to have helped and it makes me happy to hear!! Good luck with your journey

[@taran2582]

Hi, do you also have situs inversis totalis along with pcd ?

[@lujainaltuwary4871]

hi i have pcd and my school starts next month and i'm so worried and embarrassed to cough in class and i dont take meds and do exercises so i was hoping you could show me what the meds and the exercises that can make me cough less in my day

[@alexikari6507]

first, i wanna say that i completely relate when you say that you feel worried and embarrassed. even now i find it super hard to open up to people about my condition, let alone cough in front of them. currently, i take albuterol sulfate nebulizer. it works for me, but i’m sure everyone’s bodies are different! the medicine is a vaporizer/liquid and i take it twice a day for 10 minutes each session. in terms of exercises i used to run. i don’t as much now, because the medicine helps a lot now and im lazy. something i would say really helps is getting an Acapella too to help vibrate the chest and get the mucus up. also, a vibrator chest helps too but it’s more awk for me idk. lastly, i find laying on my back and either doing the Acapella or not helps a LOT with coughing up. i found that a few hours after the albuterol the phlegm really starts to soften and coughing whatever i can without the Acapella is normally fine, but using it helps get everything

[@miguelcervantes1828]

Why did you have jaw surgery???

[@alexikari6507]

I grew up with a bad underbite which was classified as a class III.

[@miguelcervantes1828]

Is there any way I can communicate with you?

[@miguelcervantes1828]

I always of tissue on me

[@avularajinikanth5195]

i am recently diagnosed😢 from india

[@alexikari6507]

so sorry to hear it, but good luck !! u got this

[@Indianrootsbutcanadian]

Can i connect with u, my son has it