Narcolepsy - A sleep disorder with some psychiatric features
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- Опубліковано 30 січ 2017
- Dr. Douglass is a psychiatrist and also a fully-qualified specialist in sleep disorders medicine. During over 30 years of practice, he has assembled a series of patient histories showing that some patients with narcolepsy have psychiatric symptoms. Narcolepsy is a treatable but rare neurological disorder of the brain’s sleep-wake control system. The illness usually starts suddenly in boys and girls between the ages of 13 - 18 and can be mistaken for depression, attention deficit disorder, or even schizophrenia in its early stages. Fortunately, accurate laboratory diagnosis and effective medication treatment are available.
This was so valuable. I was diagnosed at about 15, and I’m 25 now. I was that honors student that began to fail when I faced the rigor of high school. Thank God my mother listened to me and got me checked out when I told her there’s no way can sleep after school, at night, and be sleep on the bus to school. Treatment literally changed my life trajectory.
My mom also listened to me and my teachers, as my symptoms started in 3rd grade. I have been on Ritalin since then and I am a pretty normal high schooler
Thank you so much for this, Dominique! It can make a world of a difference when we have family members/loved ones who listen, believe us, and can help access support
Same, man. Diagnosed at 15 now 25. Glad you were able to get it diagnosed!
My mom was worried since 8th grade but the doctors kept saying I’ll grow out of it. It took me till 8 years after symptoms stared and me falling asleep in dangerous situations for a doctor to listen.
what treatment nothings working for me
I can set an alarm for 15 minutes from now, fall asleep and dream... All within 15 minutes.
Same here
Me too
@FUTUREPAW ~narcolepsy~
Me too! And I just pieced everything together yesterday. I’ve been doing this for at least 4 years and didn’t think anything of it until yesterday morning when I slept through 12 alarms and really started thinking about my sleeping patterns. Every single night I fall asleep and dream and wake up 20 min after falling asleep, like clockwork. I fall asleep off and on throughout the day when I’m not at work and really busy and dream every time I take 15-20 min naps. I’ve had sleep paralysis off and on since 2014. I’m just starting the diagnoses process, waiting to get a call from my new sleep specialist my primary dr referred me to.
Sameee
I am so tired (in every sense) of being told people think they have narcolepsy like I do. I calmy tell them that they have to be SOBER to have all this happen...
This talk is one of the best ones I have heard. I am lucky enough to have a narcolepsy specialist, but this is such a great refresher course.
Thank you for this video. I have narcolepsy and went through a specific period in my life where I experienced frequent, disturbing hallucinations. They were truly awful, but what was worse, was family and friends believing I was telling tall tales, "made-up ghost stories". To this day, I still get labelled as a liar. It's frustrating. I've slept with a light on for the past 7 years due to developing paranoia after a particular bedroom hallucination; a distorted-looking girl crawling around my bedside, where I was sitting on top of, wanting to reach out and grab my foot. I slept on the couch for a week after visualising it because I couldn't bear to be in my room at night. I'll never forget how petrified I was at that moment. I wish I could get over it.
Rosemary, thank you so much for watching and for sharing your own personal experiences with narcolepsy. It's so difficult when we make the brave decision to confide in our loved ones about what we're experiencing, only to be shut down or accused of lying. I'm sorry this happens as often as it does. Your resilience is inspiring
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I had a similar nightmare years ago and there was a girl under my mattress and she was grabbing my arm I could never forget it just like you.
I also have Narcolepsy with cataplexy.
My son is having terrifying hallucinations when falling asleep - usually a tall man with pale skin and dark eyes. He crouches on night stand, or shuffling across room and opening window blinds quickly. It terrifies me just listening to him describe it. I don’t know if he has narcolepsy… waiting for sleep study.
Thank you for this video. You hit the nail on the head. I am narcoleptic with cataplexy and have the whole tetra. It is very real and not faked. I pray that one day a real cure or better meds can be found for this disorder. My children love me so much and I love them. It breaks my heart when I have cataplexy in the evening before bed and they think I am dead for a few minutes. I taught them I am just asleep and I let them decorate me to lighten the mood. Thank you for spreading awareness in the medical community about my chronic illness. Meds help, but it took 10 years to get diagnosed.
I just had a bad weekend with many cataplexy attacks I got one in the middle of the road unfortunatly and got myself into a lot of trubble . i guess that in my case
Could cataplexy affect your hands? I’m just starting trying to find a diagnosis for my sleep problems, and one of the biggest things that makes me so angry everyday is how often my hands just give up trying to hold things and will go limp. I think it’s cataplexy, but I have autism, adhd, my joints hyperextend, and I have other chronic pain things going on that I try my best to ignore. And I really always thought it was the adhd somehow. But now I wonder…
@@samanthadelahunt3698 cataplexy is unique to each person. Mine is triggered from digital sounds and emotions and sugary foods. It can be muscle weakness in one part of your body to complete collapse.
@@rbar3623 oh okay, everything I’ve read only mentions the face. Do you ever notice behavior changes because of it? I’ve read online that narcolepsy can mimic autistic behaviors such as emotional instability and sensory issues, but I’d like to see the perspective of someone with it rather than a researcher/reporter
@@samanthadelahunt3698 mine starts with a tingling sensation in the brain. Feels like a rubber band is around my brain, squeezes and then pulls straight up. Then my face droops like I am stroking. Speech gets slurred. This is my 5 minute warning. Then full voluntary muscle control goes. I Can hear everything-sounds are really loud and I am conscious. But no vision and paralyzed until I come out of it. Usually 5 minutes
Also, the falling asleep and dreaming during the day part. I dream every time I am asleep and vivid during the day I dream a lot as well. . I am happy that most of the time I don't have nightmares usually they are like living out movies with no plot.
I have anxiety and sleeping problems. I'm always tired! I tend to fall asleep while studying, in church, and even standing up sometimes...there's gotta be a connection!
Felipe Deihle I was told I have general anxiety and I have all the same situations, I can fall asleep standing. And doing anything that is mentally relaxing or boring. Like watching birds, or sitting in a car, but I can be wide awake before this and it comes on so quickly. I have even fallen asleep less than 10 minutes after finishing an energy drink just because I was sitting around not doing anything at the time.
Ha I fall asleep it there's something slightly boring like hearing a sermon at church. I'm going to see a doctor about getting a sleep study done. You should do the same!
@@notabigdeal7785 That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@@notabigdeal7785 4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I used to drop out every Sunday right after we finished singing.
Narcolepsy with cataplexy literally can feel like a windows computer shutting down. Like I can literally be laughing and someone says something even funnier and I’m like oh crap I’m about to go down😅😂. One time my neighbor was just asking about cataplexy and was oversimplifying it in a way that was so funny (had to be there) and I was falling over like muscles melting and all. They were so confused and asked my mom if someone was gonna call for help, she told them no it’s normal when the medicine wears off.
Oh and I’ve recently been using UA-cam delta waves sleep sounds to help me get more restful sleep. It’s definitely works but sometimes it works to well. To the point where 1. I will start thinking my phone alarm is apart of the sleep music and sleep through it. Or 2. I will have sleep paralysis and my brain will be awake wanting to get the body up but my body is to into the beat to get up.
I was 55yrs before I was diagnosed with narcolepsy. How my life would have been different had the various doctors picked up on my problem. I don’t have Cataplexy, thank God, but I do go to sleep during the day without realising it. My doctor says I have a robotic type, where I continue to do shopping, for example, but all around me would have no idea. There has been times when I didn’t wake until I got out of the shop and had no idea what I bought. I’m 65 now and I have been taking Modafinil since my diagnosis. My life is so much more manageable.
What does it do ?
@@theonyxcompass9207 - it is a non-amphetamine stimulant drug that helps a person with EDS (excessive daytime sleepiness) to stay awake. Modafinil is also known by Provigil. I am on the newer version which is called Armodafinil (Nuvigil) but the two drugs work in a very similar fashion. Some other people with narcolepsy take Ritalin and Concerta but those two drugs have higher incidences of of abuse or addiction.
lorrane hi
@@courtneymayfield3380 The drug Adderall is also used as well.
@@theonyxcompass9207 see my comment above.
It's hard for me to wake up. There's times I sleep so much that I know I'm sleeping and say bye to the people in my sleep before I wake.
I also have problems waking up
I have developed an almost parallel world, where there is a narrative and history. In some cases I have mixed up memories from real and sleep, weird and worrying.
Okay so I just found out tonight I have narcolepsy and I thought I was having hallucinations because I’ve done acid before and I thought maybe I was hallucinating because I fried my brain or some dumb shit but fr I realize now I have every fucking symptom and all of my symptoms got WAY worse after I got cancer and chemo therapy. And social security denied me twice well they def gon get a call again lol I’ve had cancer and I have fucking narcolepsy and everybody thought it was because I smoke weed and a “lazy piece of shit “ my whole life even after and during cancer .
@@Nopealicous How were you told, done Slleep Tests and or have DNA marker?. Quite a bundle to drop on you bro.
Have you got Cataplexy too, loss of muscle tone?. By the sounds of it you have had quite a ride.
First of all "breath", nothing about Narcolepsy is simple. But you may get better, could be a reaction to your chemo, all about Narcolepsy being a disease of the CNS and immune system attacking the hypocretin cells in the hypothalamus in the brain.
From when I was diagnosed treatment has moved along allot, it can be controlled by lifestyle changes and drugs.
First thing is to get as much information from your Dr or specialist and get letters confirming you have Narcolepsy and if on the Epworth Scale 'how bad" it is now. You will need that if in USA, you are lucky in one way as it is recognised as a disability.
I can't say anything more but take it day by day, tell your Dr everything that happens.
Your anger and relief at finally putting the pieces together is natural. I would recommend you do the following, if you are drinking you need to stop, eat at regular times not after 6.00pm and try powernaps during the day until a set time to go to bed and get up if possible at a set time. Cut out caffeine, you need to detox to make sure any of these stimuli are effecting you. This is so when you are assessed for treatment you know exactly how your body and mind is adapting to the condition and you may be prescribed some treatment.
Next join US Narcolepsy Association or similar, if you get any problems with getting state help they will have advisers to help you support yourself. Quicker you get on that the better, unless you are able still to work.
Your journey is just starting, give yourself a break and chances are with a little change in your lifestyle you can adapt and live with this. I have had it for most of my life but not diagnosed until I physically and mentally collapsed. I am still trying out new drugs and adapting to it, you just need time and get help. Be strong bro, rooting for you....
@@axelusul thanks so much dude fr I’m surprised I got a response this info helped a lot tbh I’ve been addicted to caffeine’s and alcoholic for 6 years from 14 to 20 I quit though when 21 came along thank god lol
As someone diagnosed with severe narcolepsy thank you for this maybe Somepeople without it will see this and understand what we go through daily
I was diagnosed very recently, at 26. Im not sure exactly when this started but all I know is it's very difficult to deal with and not many people believe my issues are real. Hearing everything laid out in easy to understand terms was super helpful, thank you!
One time...right as I was falling asleep I saw the dog walk into the room wearing clothes. I laughed out loud and say, "howd you get dressed." My wife says "what" and realizes... narcolepsy. Happens all the time...
Miss Tery erm the video discusses hallucination as a common symptom of narcolepsy but I guess you chose to comment without watching it.
Mine fade in from a shadow.. I fall asleep not long after color unless I choose to wake up
@@misstery5942 um, not necessarily
Thanks be to God that I do not have these types of problems with this disease. It is bad enough without these things you are talking about.
My episodes are always evil in nature. Humanoid intruders attacking me, demons, witches screaming in my face, beasts breathing on my neck and banging down my door. Airplanes crashing through my bedroom window. If my eyes are closed during an episode, I'll always hear something bad, like my door opening, someone walking around, evil whispers in my ear. I'm over it
I've been struggling with narcolepsy before I even knew what it was. Before I was diagnosed, I thought I was lazy and depressed. although I knew I wasn't depressed or lazy I was put on antidepressants which made it worse. I finally when to a psychiatrist 5 years ago. One month into therapy she knew that I wasn't depressed. She noticed that I would nod off during sessions and realised that she needed to referred me to a neurologist. It took most of my life thinking I was depressed and lazy and ASTRAL PROJECTING to find out all the while I was NARCOLEPTIC! Now I'm getting the right medication. THANK GOD. I feel like I'm normal. I wish I was diagnosed earlier. Better now than never.
N is not a disorder, it's the side effect of vaccines.
Status cataplecticus is another form of cataplexy with narcolepsy, which I have. S.C. is an extremely rare and severe form of rebound cataplexy. Meaning, rather than having one cataplexy attack, one which lasts from a few seconds to several minutes, and then is followed by the rapid return of normal muscle tone and function. The sufferer instead has a string of continuous overlapping cataplectic attacks, attacks that look like one considerably long attack, one that lasts for several hours. Also in the most severe of cases, if the trigger causing the attacks isn't addressed and/or removed, the paralysis of status cataplecticus may last for as long as even days too. We are all so different, and the medical community is finally discovering that not everyone’s symptoms fit so neatly into just two little narcolepsy “with or without” cataplexy boxes.
Kryptonarie Lightworker I get muscle weakness or paralysis, from experimenting I have found that the more I fight it the longer it lasts. I was teaching and would fight to stay awake and maintain tone in front of students - which was exhausting and I would be bedridden for 3-5 days after. If I let my body relax as soon as something goes numb, I can recover in seconds to a few minutes now.
I have narcolepsy and cataplexy and I have experienced over lapping when I have severe cataplectic attack but like you said it looks to be one long attack but actually I am slipping in and out of the attack but when slipping out it will last long enough for me to gasp for a breath but slip straight back into the paralysis.. (I hope that makes some sense)
Thank you for sharing your story, it is a condition I have never heard of before.
I am also Team Status Cataplecticus ;)
I spent about 1 year in bed when I was 22 yo from this
I don’t think it’s as rare as they think - just severely under-recorded. I get it for hours or days at a time, if I get enough of a window where I can grab some stims or a red bull then I can usually come out of it early. No doctor has ever asked me about this or made a record when I’ve mentioned it, and there is shockingly little literature to be found on it; yet if I bring it up in a narcolepsy forum there are plenty of people who will say ‘me too.’ I tend to refer to it as a paralysis loop.
4 vaccines at once at age 29, that night, I had the worst headache I ever had that lasted two weeks!!! my Brain was swollen inside my skull. After two weeks I'm having Cataplexy constantly. The Docs are so Brilliant after 2 years of Testing I had to talk them in to giving me a Latency test. They're so smart I had to diagnose myself .
I did, yet I still can’t get diagnosed!
Yes. N is not a disorder, it's the side effect of vaccines. Because V. contain graphene, it conducts electricity very well, which gives you head ache.
That sucks, I just got diagnosed by a narcolepsy specialist after 2 years of symptoms.
This video has helped me tremendously in understanding my Narcolepsy, that I was actually diagnosed with. The best advice I can give anyone that has been diagnosed with Narcolepsy, is watch videos like these! They are very informative, and since narcolepsy really is so rare, you will have to educate most health professionals on what our condition really is. Especially the cataplexy, it is much worse than anybody who even knows about it, can actually begin to understand. It will be important for you to learn about it so you can be your best proponent of your health and wellbeing!
That's exactly what happened to me. I've been depressed bc Narcolepsy made my life so very exhausting. Being depressed means bad sleep in addition of being narcoleptic. I tried to get myself together and behave like a grown up human for too long, which meant work at daytime, sleep at nighttime. My Narcolepsy didn't agree. So I got psychotic (not misdiagnosed, really psychotic) and had ongoing optical hallucinations. So they gave me antipsychotic and antidepressive Medication. Antipsychotics made me so so tired, I can't remember a few years. That's no surprise. I was barely awake in this years. And I gained 90 kg (90!) bc of Narcolepsy and Antipsychotics. The Antidepressants repressed cataplectic Symptoms, so they couldn't be a hint for Narcolepsy. I've been wrongly diagnosed with Schizoaffectiv Disorder. That went on until for 18 years until last year, when my Hypocretinlevel was tested to be very low and I've got diagnosed with Narcolepsy. Wouldn't recommend all this!
He is so right about living a duality, I call it my Dream World. But it’s inhabited in great detail places in of my past, including previous dreams, with multi modal sensation as he describes and is as familiar to me as my waking world. This coupled with my ability to slip in and out of rem while ostensibly awake has caused me to have delusional dreams where it takes a while to figure out if something really happened. Along side that is the way I present to the world as A grounded professional I hope.
I live in the ‘ in between”. Questioning if things are real or not.
I have this too. It’s like the dream world feels just as real as Relaity.
Thank you for making this. I'm so completely used to the hallucinations that I just accept what I see as "maybe there, probably not but could be" and move on with it. The other day I was with my band and seeing parts of a giraffe blipping in and out of the room. I laughed at this, my husband/guitarist asked why I was laughing, I said "giraffes" and he just nodded because he is also used to this.
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I seem to see birds...crows mostly. For years I thought I was in an Omen film and had no idea i was hallucinating. I can enter REM while talking to people.
This is such a wonderful talk. I totally relate to so much of what he says. Type 2 Narcolepsy here. They had enough data after 3 sleeps for my MSLT
Same here. I was asleep within 3 minutes and in REM within 3 minutes of that. The sleep tech said that normally people have to stay the whole time but I also only needed the first 3 sleeps before they had enough data on me as well.
@@courtneymayfield3380 4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I wake up every hour of the night, most of the time in a state of mind where I'm still asleep but I can see all my sorrounding but the dream in continuing. I hear bangs and people talking Right before I fall asleep. My dreams are vivid as being awake, I have a couple dreams a night which are all nightmares, or a dream where I'm someone else. I stay tired during the day, people say I'm clumsy some thought I was mentally slow from my exhaustion. It feels like everyday is a battle for energy and brain function. I used to be scared to sleep. If someone could please help me!
wow i can agree with everything you just said. clumsy stuff and everything. everyday even when i feel somewhat energized i still feel so physically exhausted and mentally drained like anything can just put me to sleep.i couldnt figure out if i was dissociating, clumsy or just careless. But someones i feel so tired its like i have to be on autopilot to even get thru anything
i used to have so many nightmares i was scared to fall asleep too... which would put me in dream sleep even longer when i did accidentally finally fall asleep. Just the sound of the fridge starting up again could send me into sleep paralysis and i kept imagining multiple nights my body was being pulled through the house out of the ceiling and it felt so real i was convinced there was a ghost or i was being abducted and didnt want to sleep ever.
months and months i faught sleep. ended up in cycles of fighting sleep and sleeping for hours or taking a million tiny naps so i didnt have to truly be "sleep" sleep.
Same here
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I was diagnosed with severe narcolepsy at age 61. It happened suddenly while I was driving to my pain doctor and started going into REM sleep, dreaming, and swerving lanes. I was so scared, I made my son finish driving even though he didn’t have a license.
I had been very, very ill for years with autoimmune diseases and sleep apnea, so I had a sleep study done and I had both, with severe narcolepsy. They almost took my license away, but I promised to take the highest dose of Nuvigil every day. I had knee buckling, and felt like I was going to fall, but never did.
I then found out about
breast implant illness and mold toxicity, both of which I didn’t know I had,
My organs started to fail from Sjogren’s, and I had 4 major operations within 10 months, and I stopped breathing during the last surgery to remove my toxic breast implants. The capsules surrounding them looked like slabs of dried up salami or bacon. No wonder I couldn’t breathe!
After the implants came out, about 80 to 90% of my symptoms frim everything went away; however I had a flare of RA last summer and now I’m tired and think I started having narcolepsy again about 4 months ago, and I’ve been extremely tired but I haven’t been falling asleep like I was at inappropriate times.
The woman who supervised my journey to detox and get my body back in order, told me she had one other woman that had this, too.
You may want to check into this being a cause if narcolepsy.
I had so many things wrong with me, I should write a book or be part of a research case study.
I never had any weird repetitive dreams or anything like that, but I had to leave places when I felt it coming on before I got my study done. Think twice about putting toxic foreign bodies into your precious body! It’s so not worth it! 💫💕💫
I have narcolepsy. It doesn’t come on as a teenager. That’s just when we get to the doctor because it’s no longer possible to hide. Elementary schools are more forgiving of you moving about and fidgety to avoid falling asleep. We are labeled hyper or adhd in elementary schoo because we are simply trying to stay awake. Or we are exhibiting behavior that makes us look “bad” or defiant when really we are just tired. When you get to a grade level that’s a more lecture style system. (Middle and high schoolers literally sit in rooms 8 hours a days under horrible halogen lighting and often times without windows)
Yes just to be clear, with Cataplexy, sometimes you can recover almost instantly, there doesn't have to be a 60 second recovery period. Also, there is no consciousness aspect. You are fully awake, problem is that you cant really talk because you lose muscle tone in your face as well.
Yeah, for me I am 100% alert. It does take a bit of time from the beginning of the episode for my muscle control to come back, usually 30-60 seconds, but just long enough for me to hit the floor or fall over in my chair.
I do pass out into narcolepsy and into rem sleep a couple times a day, but I know my triggers and usually can avert it if I'm careful.
Cataplexy is something else! I'm awake I swear! Lol As long as I detach mentally from whatever influence has contributed to the sudden emotional onset-- I can move, but it is easier said than done. As far as recovery time, I've lost all mobility and fell into water that was well over my head and regained mobility fast enough to make it back up for air. Also When I first began "collapsing" the risk of falling asleep was ever present and it took a long time to process the cataplectic episode without waking up and wondering what the heck even happened. Now I call it finding my center. Once I refrain from indulging in the emotion, the shift from looking outward to looking inward almost instantly takes place and movement is restored.
This doctor speaks so clearly. Thank you. I have the learning disorder and sleep apnea.
Sucks having narcolepsy with a night job. Always tired and falling asleep at work. I've had sleep attacks happen in front of employees out of nowhere. It definitely gets you in trouble at work with the boss but nobody but the people who have this understand it.
Yeah makes us look bad at work. I fall asleep during breaks, and still they complain. I fight back now and let them know I can do whatever with my time.
It's annoying when it happens at work and you have to explain it again and again because people can't see that you're ill on the outside. That's why it's harder for other people to understand what your problems are.
I have narcolepsy and I do much better at night jobs than daytime jobs.
@@mattiasff9296 I slept during my lunch break. Which my boss said was fine. But someone from the company didn't like me and got me fired. 🙄 This is a old story. Anyhow wasn't diagnosed back then, might have changed something. It's on my channel if ever 😊
I'm pretty sure my narcolepsy emerged in the final year of high school. And peaked when I was 22. In high school, I remember I was publically humiliated by the principal under suspicion of being on drugs. I would do things like go and put the milk in the toilet thinking it was the fridge and someone would later find it... I spent 1 yr in bed at age 23. I recall the beginning of this. I was walking out the front door of the building I lived in. I remember the sun hit my face then I and just collapsed and had some sort of fit, which felt like I blew a fuse. I was carried back to my room where I stayed catatonic for 3 months. After about 8 months I was diagnosed with chronic fatigue. I spent years looking into the world as if I were stuck in an endless corridor with doors on both sides. If you've seen the opening sequence of Jacques Tati's film, Playtime (or is it Mon Oncle), then you'll get a feeling of the dreamy drunken endless blurry corridor metaphoric state filled with pixalated echoes if memory I experience. Though it wasn't until I was 39 yrs old that i finally had a gp suggest I have a sleep test. Over the years, I went to countless doctors and tried a million options trying to fix my malaise. Though pretty much everyone including myself had no idea what was wrong or how to fix it. I spent a few years on disability benefits because I simply couldn't work. I wasn't depressed. I was just tired. I would wake up in the morning feeling like I hadnt slept for a week. I remember I managed to ride a bike to see a matinee movie. Insomnia Robin Williams and Al Pacino. I feel like Pacino's character who goes up to Alaska in the summer and obviously couldn't sleep. In the morning, I couldn't summon the power to move or lift the blankets, as they were too heavy. I couldn't call out for help and would lay awake for some time, paralyzed. I would, and still do, fall asleep mid sentence with my eyes open. This has happened at job interviews or checking into a hotel I reserved, only to be told I couldn't stay, simply because I would present as some sort of weirdo, i suppose...I would fall asleep at work. People would think o was just lazy. Worked too slow. Im not cut out for customer service. Intimate Relationships never worked. My wife has a photo album of all the places and ways I've fallen asleep. The sleep I finally had came after another round of feeling completely frustrated by my lust for life throttled by this feeling like I was a bottle of sparkling water that had the top not screwed on properly, so all the bubbles had rushed out...when I'm going down, it feels like all the bubbles are rushing to the top of my head. I get dizzy and disoriented. I have a short window to find some place to rest. I might nap for 20 mins but I'm not asleep. This could happen anywhere. I can hear everything that people might be asking my wife. "Is he okay? Did he drink too much?" I often yawn non stop the entire time I'm "asleep". To the point my jaw hurts and my face is covered in "tears". Though I'm not crying or sad, it is the tear ducts expressing thru the strength of the yawning. The sleep test confirmed all aspects of the tetrad, plus being a super taster. The 2x tests I've done revealed I enter REM 400x per minute while awake. These microsleeps are imperceptible, though I never realized the hallucinations were hallucinations. I thought they were real. It took maybe 12 months after the sleep specialist asking me, that I came to realize thru self reflection the unreality of half my impressions. I managed to finish high school and get 5 degrees, including a Phd - without medication or coffee. Though, during my first BA, I picked up pretty decent meth habit. I never really drank coffee till i was into my 30s and have since stopped drinking it as I realised it doesnt help. Though the final 2 months of my phd I abused the coffee machine in the staff room. It actually broke. I was having 4-5 double shot lattes with 10+ extra shots... and would still fall asleep. In fact, it makes it worse. Coffee makes me not alert but nauseous. It's an empty promise. Though I like the ritual, taste, and social aspect of grabbing a coffee with someone. I spent 20 yrs just not really living before getting diagnosed. Even now, on 400mg of modafinil or 250mg of armodafinil, my life is not significantly improved. I've dabbled with stacking neurotropics. I cant afford them though. The cost of modafinil is already enough. It's just rearranged and compressed things. I still fall asleep all the time. I think though the attacks are stronger on modafinil than off. The trade off is it helps more to be on it than not. It took 18 months to regulate my irritability and aggression. Not physically violent but rhetorically. Starting modafinil stripped my filter and removed my fuse. Anything could detonate me. I'd see it rising and had no way to stop the tsunami. I'm ashamed of some of the things ive said. The feeling of modifinil is similar to amphetamines. Though perhaps it's more ephedra, which I used to chew the leaves, sort of like coco or khaat leaves. I dont not like not being on it. I might as well not get out of bed. I'll otherwise be asleep within an hour. I'm most sleepy a teen 3-4:30 and 7-8:30. And most awake between 24-02.00. My breakfasts are super light these days and I eat 1hr after taking pills. I have even less tolerance for people and disruptions. Modafinil makes me super focused. It helps with writing, which I have to do to get the ideas out of my head. I sleep walk thru life. People asking for my attention is simply too much. I still fall asleep walking. I fall asleep in an instant, innumerable times a day. As soon as I stop moving. I try to get up early. Take my meds and go, go, go till I collapse, basically. I'm never fully awake or asleep. I fall asleep at dinner parties. This could be flat out, face on plate, or a short moment, a little sort of short circuit where I reset. It feels like a phasing in and out, like having some NO3, and just being numb. Maybe that's why people perceive me as lacking empathy. It's not that I don't but that I have to conserve energy. I've dropped many things or collapsed at cocktail parties because I laughed too hard at a joke. I've laughed into unconsciousness many times. I've fallen asleep scuba diving. I no longer feel safe driving a vehicle, even though the doctor thinks its okay. Even cycling, which I love more than anything. It affects every aspect and dimension of my life. Especially interpersonally. I sleep talk. Apparently I talk too much...I know im doing it but am more of a passenger. I used to have this recurring dream as a child that I was in a room with family and friends. I would walk behind the curtains. I would be able to see everything but no one could see me. I would become trapped behind the curtain and no one would notice. This is in some way how I feel. When the attacks come on it feels as if I'm melting into the floor and though I might be able to fight it for a few rounds it will always win. I eventually just feel like I get to the point that I feel and look really drunk. It could be 11am on a Tuesday. I start slurring and swaying, especially when I'm walking. To the point I'll just at some point maybe fall asleep, even while riding a bicycle. I dont know the difference between dreams and objective reality a lot of the time, which I think is where the schizophrenia likely kicks in. Its probably why my phd is on epistemology and the sociology of knowledge. Though I've not been diagnosed with schizophrenia, I know what that boundary feels like.
Anyways...
36:10
THIS HAPPENED TO ME.
Kids literally thought I was doing drugs because I couldn't stay awake!
Luckily, I'm pretty smart. So, I finished assignments and tests fast and teachers didn't really care if I fell asleep.
I have had this since I was 3 from a tonsillitis infection. My first grade teacher tried to tell Mom that I seemed tired all the time, but she never took me to a doctor. I'm 59 now, and I just found out what has been wrong with me all my life. I also have insomnia because of my thyroid. I pray there's an afterlife because my human life was screwed!!
Sending love to you, friend! ❤️ God bless you. May you find joy!
@@AnysieIshimwe Thanks!
@@applesoranges8015 That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@@MrBeigns This is hard to believe. There is NO cure for this. You can only manage and reduce the symptoms. I have two herbalist siblings, and they've never healed anyone. They're just two narcissists that believe they know more than doctors.
@@applesoranges8015 yeah that's what i thought at the first time, i even thought that it won't gonna work for me but see now am now free
I started having symptoms after I went into puberty at 11 and was diagnosed via sleep study at 19. 8 years later and I’m still trying to better understand this massive part of my life! Thank you for the detailed talk!!
This is by far the best description of narcolepsy and its treatment options I've ever seen. I first had lucid dreaming in my late teens, sporadic narcoleptic "visitations" in my thirties and later extreme sleep issues of all kinds after developing a generalised autoimmune condition (probably triggered by Epstein Barr). The worst of it self-remitted but now I have catalepsy problems in response to both food and stress that make it very hard to function - eg stay awake at work. Not once in the 50 years I have had this condition have I ever been diagnosed or treated. Almost all doctors are completely ignorant of it. They shoud all be tied to chairs and forced to watch this video on repeat for a week.
When I was younger, I believed our house was possessed because I would hallucinate demons. It was terrifying. And because of cataplexy, I was tested for epilepsy (I actually fell asleep during the test). It felt like nobody could figure out what was going on. Finally got my narcolepsy diagnosis and things began to make sense.
What did you do for treatment?
@@hanklipsey I take Xywav to make me sleep through the night and Adderall to keep me awake during the day. I also try to stick to a routine that includes exercise and a short nap.
I'm 34 next month and still not fully diagnosed. I have spent most of my life fighting to stay awake or trying to fall asleep because I also have insomnia at nigh. It's been oh so much fun😒
I've been diagnosed for years, so I knew that I dream a lot.
But I did NOT know that dreaming during the day (like, a nap) wasn't... like, y'all normal sleepers don't dream all the time...?
Also, I had no idea that sleep paralysis wasn't common till sometime after my diagnosis. Wild.
I didn’t know that either! I always dream during the day!
What an amazing knowledgeable man. I've never seen this seminar before but I was diagnosed Nw/oC about 5 yrs ago I'm now 39, I've had it since I was a young child and first complained of symptoms mid teens! This just explains everything perfectly
I have narcolepsy with cataplexy, all of the symptoms are horrible, but the worst one for me is the weight gain :(
I feel you.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
Me too! 😢
@@taylorscott7402 Who? The herbalist?!
Had a combination of hallucinations and sleep paralysis when i was sitting in the car with my dad. I dreamed that my dad drove through a red trafficlight and we got hit by a truck from the right. Then I woke up and I sat frozen with my eyes open for something like 40 seconds my dad got spooked and asked me if i was oke. The traffic light became green and the truck that I saw in my dream was waiting for the traffic light at the right. That's the only time that I can remember that I had a hallucination.
I was fourteen when I was diagnosed with Narcolepsy and Kataplexy. My kataplexy comes forward with laughing. When I laugh than I fell on the ground because my leggs are getting weak and I can't do anything about it. After starting taking xyrem I got more control about my kataplexy by forcing myself to don't laugh. So if you make a joke I smile but I'm forcing the emotion that you get while laughing. First it was a choise to feel the emotion or not but now it's hard to laugh like a normal person. Hope that someone has some experience like this. For me staying awake I use dexamfetamine and for night I use Xyrem. When I try to explain people what it does for me it's like taking medicinal speed to functional normally through the day and medicinal GHB to get my sleep at night just like the doc said in the video.
I think that I'm depressed about 8 months. It took me like 4 months to realise it because I have to deal with more stress and other factors. But trying other sleeping rhythms took time to recover and paused work and school didn't help. My work, social life and education is a mess also my thoughts are most of the time happy but I'm feeling fucked up because I won't laugh and I never got the time to process the fact that I have narcolepsy and I just had to deal.with it. I really need help to get out of the depression and to deal with my feelings but I'm just tired of fighting and my life is getting a mess.
Also my sleep is not as good as before the depression and I'm not getting hallucinations but sometimes I get anctions feelings, it feels like I forgot something importent or that I have to do something otherwise something bad happens. I'm 21 and I live in the Netherlands, I wish I could talk with someone that has the same experiences that I'm experiencing now. My study is not going that well at the moment. Maybe I have to stop with my education after 3 of the four years.
Does someone has experience with these situations or could you help me or give me some advice to what I have to do than don't hesitate to reply.
I have narcolepsy with cataplexy but I only experience cataplexy when I am laughing as well. I am living in the US and I fortunately was diagnosed at age 9, but ive never met anyone with narcolepsy and I'm now a junior in HS.
I was diagnosed almost thirty years ago I'm 56 now, and my mother, aunt, daughter, and youngest son all have varying degrees of narcolepsy with cataplexy (only my aunt doesn't have cataplexy). I've been through it all and my narcolepsy and cataplexy is rather severe, so if you still want to talk with someone let me know here, because this is a difficult disease and depression is part of it, and maybe I'll know some things that could help you.
@James McHarg yes I did first I practiced ice skating (I'm dutch so it's more commen here). I did it on a high level and eventuality I trained four days a week. Nowadays I only walk an jog a few times a week. It helps against everyday struggles.
@@laureng6412 I don't have it that much anymore. I'm done with my education now. I'm 22 and started working fulltime this year it's hard for me but I can manage.
@@kryptonarie6367 Actually I'm a lot better now. My sleep is great and I almost stopped with all my medication. When I quitted taking xyrem last year november and when I started anti depression medication I was feeling better in 2 months or something. So im a lot better now but tnx for the offer too talk. When I have questions or struggles I will ask because I have actually no one to talk about the narcolepsy.
My mslt was 15 sec into rem sleep 4 times. They didn’t even bother with all the naps since I hit every marker.
it's sad so little people still, to this day, don't know much about narcolepsy.
Teachers still think a student just was up too late, gamed too long or something like that when they sleep all day long, every single day
The amount of times I hallucinate as I’m falling asleep, dream very quickly or dream during day naps is all too common for me.
I've been diagnosed with borderline, psychotic vulnerability and depression. I've been in a mental hospital for almost 3 years now. I started abusing amfetamines because it was the only thing that would make me feel awake, calm and reduced the hallucinations. So eventually they just labeled me an addict. And off to a mental hospital I was again. They prescribed me lots of medication, tried all anti psychotics. Dokters never understand that my hallucinations are only when I fall asleep and they just label it as psychosis. Now finally after a lot of research I did myself. I am sure I'm narcolepsic. I don't say I'm not mentally ill. I probably also have ptss or so. I don't experience cataplexie that often. But there was one time that I'll never forget, because I got raped during the attack... I Had given consent and two minutes in action I got a cataplexie attack. I panicked and cried but couldn't move or speek. And he didn't stop. I told my caregivers end they all thought he must've put something in my drink... Now I finally know what's really going on. I'm just not sure how my neurologist and psych are going to know if certain symptoms are psychological or because of the narcolepsy. I didn't finish school and never worked a day in my life. I had a lot of suicide attempts. My life is already ruined and I'm only 22. I this diagnoses changes it all. I just wish my caregivers in mental health knew about the existence of narcolepsy... They would never listen and blame my sleepiness on my depression. I hope everything is going the right way now. Maybe I'm not that crazy after all. Thanks for the video. Although not every narcolepsic falls asleep while giving a speech or so. Some cases are even less obvious.
Stay strong. I was very bad depressed tired and always just falling asleep. A time came where I couldn't sleep I would stay up in bed trying to sleep. Morning came and I would be tired ready to do nothing but lay in bed. Anyways methamphetamines was the only way to feel energized. Long story short suicide seemed like a good option and I was ready. Luckily I decided to move out of state to Oklahoma landed a roofing job and did wonders for me. The reason I believe I healed is for the simple fact that I was out in the sun all day. I soon was waking up early and going to sleep at an adequate time. Sun exposure and exercise worked like magic. If possible make your way to a tropical sunny place.
My story is very similar to yours. I hope you got your diagnosis and correct treatment and can live a good life now!
Hey ... you may feel like your life is ruined at your young age but don't forget how far you have come... you have been threw hell and here you are telling your story... I have narcolepsy+cataplexy and I have had some low times ...I used to self harm etc...no matter how hard it gets just remember how far you have come so far.. be kind to yourself...
some days I see just getting dressed as something positive.. it isn't much but if it is the only thing I do all day then it is an achievement. I wish you the best ... stay strong girl xx
I’m only 15 and ive always been told it’s my overactive imagination and that it’s just sleep talking/almost like a chanting apparently and my sleep hallucinations and somewhat-abnormally-often-nightmares are normal, I do have minor ocd and anxiety but not enough to be written on paper ig. I don’t think I have anything tbh i do think that it’s just a really overactive imagination bc it’s usually brief and my hallucinations do make me sound delusional and most of the time I do remember it although if it’s the weird abnormal sleep talking then I never remember it and it’s not that often... Im still curious though but at least my parents always check on me and make sure im okay during and afterwards in the morning they don’t think I need any sort of therapy though bc it’s never been to a concerning point and even so it’s not in the budget or schedule rn ...idk it’s just nice to talk about it sometimes
In my opinion, your life isn't "ruined". I believe we are all here to experience and learn different things. It's great that you are researching - you very well could have narcolepsy or other complex health issues - or something simple like vitamin and mineral deficiencies or be ingesting toxins that are having big effects on how you feel. Keep researching and believe things can get better! For a year all my hair started falling out, and my period stopped. No doctor could fix it. They knew I had anemia, but iron and vitamin C alone didn't solve it. I kept researching and trying one new thing at a time - (using the scientific method). Eventually, I read someone who sounded like me, took Lysine, Iron, and Vitamin C. I tried it (along with not drinking milk or coffee as these inhibit absorption) and it worked! My period came back and my hair grew back. It was amazing - and I figured it out on my own. Granted I was also a health major in college, but the point is, while doctors are great and needed, we can and must do our own research too. Maybe you could start studying and taking some health and science classes - whatever interests you - you could have a great future ahead and help other people, get a job, have friends, travel, etc. There is hope. Give us an update if you can.
Thank you, very informative. Better than most doctors I have seen, for my day time sleepy ness, and why I can't sleep at night.
this is really well done and informative, thank you
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Good video about narcolepsy. I have been diagnosed for 9 years and have learned a lot about it. I learned a few new things from this. By "psychiatric features" he means hypnogogic and hypnopompic hallucinations, visual or tactile or auditory hallucinations that may occur as you fall asleep or as you wake up. His description at 14:40 of this is right on the money. I got pretty emotional hearing him describe a HH. Btw they aren't always negative emotionally (the hallucinations).
Rachelle Gray l have HH, but don't think they are "psychiatric" at all. It seems (to me) that it's a matter of sleep stages getting crossed, if that makes sense. I don't have any tactile implications, but HH (dreams) that definitely mix in with what's going on around me in wakefulness. Not only are dream stages crossing, but awake and sleep boundaries crossing, as well. Nothing psychiatric about it! Be well!
Marcy RP I agree HH are not psychiatric. I was stating what the speaker was describing. Also later in the video he does go on to talk about people with narcolepsy with co-existing psychiatric disabilities.
I always seem to get emotional when I hear other people's stories or someone talking about narcolepsy... even tho when I come to think of myself I don't feel the same even tho I suffer with the same disorder.
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Yeah.. sometimes they are a bit emotional, but most of the time they are just strange. Only time I freak out is if I see spiders because those are terrifying, real or not.
This was so fascinating. Thank U!
I’m currently getting diagnosed with narcolepsy after years of not understanding of what was wrong with me. Currently in the Navy, to this day I’m still known as Sleepy V. Standing watch, I know when I won’t be able to stop the sleepiness. I usually as to use the head, and I would run over and put a timer on my phone for 10 min and I’d be good to go for the next 2 hours. Same goes for driving, I refuse to drive unless I take a 10-20 min nap before and even then I might even pull over to take another nap. I found myself not socializing with a lot of people anymore, and going to parties due to cataplexy. I’d hate it if I were to crack a joke and wouldn’t even be able to finish a joke without losing muscle tone, eventually collapsing. Never met anyone else with narcolepsy, and it’s cool to see others with the same thing wrong with me. I’ve been active duty for 4 years now, and it’s happened ever since I joined. It’s impacted my life so much, my wife fully understands what’s wrong with me and is super helpful when she knows my symptoms are happening. I’d hate it when I’d be in a conversation with my wife and I’d be so sleepy but try and fight it, but while fighting it I’d start to dream and mid conversation I’d start replying and talking about what I’m dreaming about!!! Watching TV, reading a book, playing a video game, can’t even do things like this anymore. God forbid I had to stand in formation, I’d be sleep the whole time😂 no one would even know
Btw you killed me when you said “lay them horizontally, and they’ll be out cold”
This is so helpful Dr. Douglas. Thank you.
My narcolepsy and cataplexy symptoms started at 13 years old. I am nearly 29 now and it took me 11 years for my diagnosis. This is one of the best videos on narcolepsy I have ever seen. Thank you for sharing this. I have never experienced such understanding from a person that does not have narcolepsy themselves. I believe my narcolepsy was a result of me being exposed to a carbon monoxide leak when I was 3 years old. I was exposed for aprox 2 years. Most nights I would cough and choke until I was sick but when my mum would take me to the doctors the coughing would stop bcz I left the house where the leak was. So my mum was kind of fobbed off as a young mother worrying too much.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Thank you Dr Douglas for your time and research. Have you come across a world wide study using subjects who have been vaccinated versus subjects who have not been vaccinated. I find the onset age interesting and wondered what variables were considered. If a simple IT guy can use computer algorithms on social media platforms to map the happiest people on the entire earth just by finding who uses the most happy words, you would think a medical platform for finding similarities in symptoms would be much more constructive. let's face it, doctors wouldn't be doctors if patients didn't have symtoms. the trick is to record symtoms digitally without infringement of privacy. no need to use a patients name just a numbered link for follow through study and research.
That’s how mine started. Was forced to take the Anthrax Vaccine when in the Marines March 2003. Then after people had horrible side effects the FDA didn’t approve them and they were pulled. A year later it was ruled in court that it was illegal what the military made “forced” us to accept with threat of imprisonment. Owell, took 15 years later to get diagnosed.
Poor woman with the hypnagogic disorder... Hope they could help her.
Thank you for this video. My narcolepsy began at age 15. I am 76 now and had to learn to deal with it. I always dream as soon as I fall asleep and never sleep for more than 30 mins to 2 hrs at a time. I was diagnosed sometime is my 30’s. I was given zyrem (sp) at one point but it didn’t work for me. So I have just learned to cope with the cataplexy, the hallucinations and the sleep paralysis. I often wonder how different my life would have been without narcolepsy.
IV known for as long as I can remember that my sleepiness was way not normal, and I was sensitive as an introvert, growing up it made me feel suicidal even in grade 1 that I would fall asleep in class and my memory would basical reset, I still feel that way and my brain is 25 years of age, if my brain didn't need to reset so sporadically I may have been successful in relationships, it's also in my family line. Quite a disability of you ask me
Does anyone here feel guilty that they've slept, either a sleep attack or a scheduled one?
I have narcolepsy and it just doesn't seem like I have enough time in the day to do much at all.
I have two younger kids and I'm a single mom... Currently going back to college... There just seems to be no balance.
If any one has felt guilty, do you have any advice on how to get past that mind set?
I was probably 5 minutes into this video when I passed out, and immedietly went into a very vivid dream, like my usual 5 minutes afternoon naps...but of course the video was never paused, so throughout my dream I went into a lab and was trying to tell the doctor in it to shut up and stop distracting me becausr I like doing what I wanna do in my dreams, and he just blankly looked at me and kept reciting the audio frok the video....it was weird, but kinda cool as usual. As someone who has had a crazy amount of lucid dreams, and even a few astral projections...I've grown to make very consiously unconscious decisions throught my vivid dreams regardless of length, and have also learned to ask questions to people and things I meet in my dreams. A good question to ask about narcolepsy, in my opinion, would be: Do psychedelic drugs such as mushrooms or even DMT have a more potent effect because of the instant entering of REM sleep?
Ugh, I have these kinds of dreams all the time with my alarm clocks and when I fall asleep in lectures. Sometimes, I'll get a extremely detailed and completely made up math lecture.
I'm 56 years old and I have narcolepsy, cataplexy, and all the other fun symptoms too. I don't do any street drugs, I only take my prescribed medications as directed by my physician, and I'm telling you this, because I did try/do DMT several months ago, for the first, and the only time. Yes, it was done properly, etc., because the person who shared it is training as a shaman, so he is someone who's quite knowledgeable and experienced. I don't know if I'm an anomaly, but it didn't really affect me much at all, and he even gave me a second dose/hit and still I hardly had any sensation. I was so hoping to have an experience like many people were describing in the researching I did, and I hope to try it once more, but it isn't something I'm actively seeking out, so I probably won't ever have another opportunity. It was disappointing though...
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I’ve done shrooms a few times and all my experiences were similar. They did affect me more than my friends ( I believe I have type 2 narcolepsy) and I very often experience the hallucinations upon falling asleep and the shrooms just made me suuuuper tired every time, I was basically awake but asleep the whole time having one big hallucination in my own world and I don’t even eat that much
This is so interesting! My Dr thinks I have Narcolepsy due to my vivid hallucinations when I fall asleep (often they cause a panic response that completely wakes me) could happen many times a night. Also vivid dreams that don't end when I wake up. Weird stuff. Been having these hallucinations since I was a child!
Thank you, it was very informative.
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Many doctors don't mention traumatic brain injuries causing narcolepsy
Im 21 years old and i firgued out through watching several videos like these and research that i have Narcolepsy with the Cataplexy. Seems that the Cataplexy didnt it start until after highschool. Feeling weak to where i have to catch myself from falling when laughing or getting excited. This is beginning to effect my life more and more as I begin to get older and time seems to fly by faster. I sleep at least 10 hours every night but miss out on a few hours due to the restless sleep. Seems like a 5 min nap does me better than a full nights sleep. So i take several of those a day to try avoid falling asleep at the wrong time. I often do fall asleep at the wrong times like in class , while driving, and even working. Wish i could go throughout my day without falling asleep. Im now in college and falling asleep in every class. It’s affecting my grades like it has my whole early years & i miss out on alot because of it. I thought falling asleep like this was normal along with the hallucinations before bed and frequent vivid dreams. If i go to a sleep study will they think im faking it and think that I dont know what im talking about is my concern...
P3P customs I was officially diagnosed once I realized I had narcolepsy symptoms, I found a doctor in my area who specialized in narcolepsy and went to him directly. He ordered the sleep study. If anyone at a sleep study or any doctor says that they think you are Faking It, when you have these symptoms, then don't see that doctor see someone else. Some people it can take them awhile to find a good doctor. But it's worth it.
if you’re falling asleep behind the wheel you’re putting yourself and others in dangers, there’s no way to fake the MSLT, you either go into so-rem or not, get checked out, help yourself and those around you
Paige Pauley: They will know your not faking because your head will be all wired up with wires that let them know what’s going on.......at that time.
@Paige Pauley I have the same problems. I'm 21 one years old and I'm taking medications for almost 7 years now. Especially Xyrem works for me to get control over the Kataplexy and the falling while laughing. It feels that I have more control over my muscles in my leggs.
I struggle with the same problems in life that you have. Time is going really fast and it's making me feel powerless or losing control on work, school, social life, etc. Even with medication it's sometimes hard to focus.on school or work. But it's just that you can't do anything about it if you're already taking medications. But it's still way better then before i took medications.
I hope you'll find the courage to take a sleeping test to get diagnosed and get the help and medication you need to keep everyting on track in you're life. b
Before you realise it's to late and you get regrets. I had also the sleeping tests. I'm from the Netherlands so I didn't had to take much effort to get the test because the health system is well organised. But I think that more and more doctors all around the world are taking narcolepsy more seriously than a few years back. So just try it and if you have any questions how i dealt with the narcolepsy and kataplexy in my life, feel free to ask.
Grtz,
Dylan
You described my high school and early college life. Unfortunately I didn't realize that I had a problem until many years later. I now take modafinil and eat keto and exercise regularly as well as the continued naps like you so. Life is manageable. Find yourself a loving and supportive partner and things will be okay!
When he went through the list, I have had all of it. 😢
The worst is being woken up thinking something is in my face, a man, a bug, white haze over my face.
Luckily sleep paralysis hasn't come back since I was a kid. I taught myself how not to do it because it is the most scariest sleep problem.
Starting to dream before you are sleeping is the weirdest. Was worse and most prominent when I was pregnant.
Controlling my dreams every night just leaves me tired every day. I believe I started doing it as a child because I believe I had very vivid nightmares. My mother said I would sleep walk and also scream in my sleep. I have tried to tell myself to not to do it but the dreams get so bad.
Can't fall asleep at night at all because my brain is off solving issues. Goes down a worm hole of solving problems.
Sometimes I have to turn on my phone with someone talking, like a podcast so I fall asleep. I think it distracts my brain from doing other things. It keeps me trying to listen. I really need help.
I have been told for years that I am lazy, if it was hurtful, I was labeled with it. I am 63 and have lost so many years of my life because of this. I can't get those years back but I can live a happier life ...... I am not lazy.
Wonderful talk. The link between Narcolepsy and ADHD is still not considered.
Two books from Germany about Narcolepsy have no mention at all.
Great Speach. Very descriptively and thorough in all aspects with diagnosis.
I was diagnosed with ADHD as a child and treated I believe overtreated with ritalin.. I always felt spaced out like I was in a bubble and couldn't get out. I still couldn't concentrate. As I grew older & middle school and high school I will go to the bathroom and sleep sitting on the toilet because I was so tired. I couldn't stay awake and was always diagnosed with a sleep disorder. As an adult I turned to drugs and the gym to stay awake at jobs and it helped me become active. I think my mom had narcolepsy because she became addicted to caffeine. I didn't realize I had it until I started blacking out. I would fall asleep and wake up hours later with my phone's spread out all over the room and the lights on. I would fall asleep during dinner and on the toilet. Once I'm on the toilet for four hours. Sometimes when I was sitting in a chair I would fall over face first. How come no one mentions blacking out. I fall asleep and don't remember a thing like last night I made a bowl of cereal that set on the table and I don't remember sitting it there but I woke up close to 7 a.m. which I never do wake up that late and I didn't know if it was morning or night. The lights were on phones off the chargers. I usually fall asleep sitting up and I can hear things are going on but I can't move. I also full of sleep standing up or sitting down and end up falling on my face. I lose feelings in my hands and I drop my phone all the time, causing me to wake up. I could be standing, laying down or sitting. This is very annoying and it's getting worse. I fall asleep during conversations & movies or reading. I Had a sleep study done but they didn't see it severe as it is because they didn't let me do the same things I normally do. I have sleep apnea slightly and they said I fall asleep like six times in an hour. I fall asleep real fast. I have restless legs really bad. I also have migraines. Curious to why no one mentions blackouts. I am very forgetful with a short-term since my older years but this shouldn't cause the blackouts. I had a car accident once and drove over two work site Lanes, waking up once (looking at at the workers once then falling back asleep) and an oncoming traffic lane lending on all four tires. The workers told me about it because I drove to the first fast food restaurant and sat. My tires were flat. I can sleep drive. I did it many times. I could drive for an hour and not remember. Once I got to the place I was going and wake up, I wouldn't remember driving there.I am Pretty good at sleep driving but that's what I mean about blacking out. When I start to swerve, I wake. I could say, one night, I passed my road like 10 times, trying to get and kept going back around but every time I got close to my road, I fell asleep. I don't know how that is. When, I Took another route, I made it home. Strange. Sometimes just a change helps. This is all what I mean about blacking out. Sometimes I don't sleep for days. I do like doze off for a few minutes off and on. During my sleep study my first nap to sleep latency was 2.5min, my second & 3rd was 0.5, 4th was 4, 5th wa1 min they said my leg started during sleep. I have sleep apnea, restless legs, and narcolepsy.
I grew up with ADHD and over dosed on Ritalin because I felt so out of it and couldn't focus.
Thank you for the detailed explanation. I have watched many documentaries on narcolepsy but failed to recognise that I might be suffering from narcolepsy and that my child may have a form of it too. I am going to ask my doctor to refer us for the relevant tests now.
It had been life changing for us. Thanks for the info.
Fast diagnose is critical for adaptation, I developed narcolepsy when I was about 9-10 years old, I was diagnosed about 1 year later and immediately began treating it, it was fundamental to me because I got used to it and now I live an almost normal life, a lot of people that I interact with don't even know I have it
I’ve had the same hallucinations of rats and snakes. Only difference was I knew I was asleep.
I am autistic and i take a sleep test just waiting for the rests wol.jw.org/en/wol/binav/r1/lp-e hope and a future
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
BTW the 35% is only those who are diagnosed. The REAL NUMBER is about 3 times that because most cases are very very mild in those who are not Diagnosed because they have n0 idea they have a sleep disorder.
I was finally diagnosed at 40. My mom has known since I was a baby and no one listened to her. 😢
Thank u for this . Much needed info. Stay blessed
I have narcolepsy, severe restless, slim disorder ADHD sleep, paralysis. It was tough.
i have fallen asleep riding my bike. also while walking, eating ,taking a shower. i am told i fall out and within five seconds show rapid eye movement and i dream intensly. cant move. ears ring. i thought i was dying.
Ya know, I ended up watching this all the way through and think it was a pretty good documentary about narcolepsy. Ive got both narcolepsy and cataplexy. I wasn't diagnosed with it or shall I say I never showed symptons of it until I was 35. But when it came on it came on strong. I can relate to everything you mentioned and more. But cant say that ive ever heard other voices inside of my head trying to control my actions.
I'm glad you enjoyed the video. Symptoms can vary from person to person, so it's not unusual to experience some of the symptoms but not others. Thanks for sharing as well about your own personal journey with narcolepsy and cataplexy!
If you have severe narcolepsy and cataplexy, I would highly recommend Xyrem (its a sodium oxybate). This medication completely cured me of cataplexy and pairing it with modafinil helps me to stay awake most of the day with only 1-2 naps a day. I had severe cataplexy to the point that my tongue started hanging out and my speech would be slurred due to my body being so used to cataplectic attacks. I would have had to live with my parents the rest of my life as I would not be able to function/take care of myself due to the severity of my disability. Luckily, through Xyrem, I was able to get a drivers license, work a 9-5 job and just bought a house recently.
It would be so nice if my autism was misdiagnosed and is actually narcolepsy. Like there might be meds that can help me. That’s crazy. My appointment with a sleep specialist is the first week of march
Oh ya and Ive been mostly untreated. Ill also add that I went back and forth to and from having cataplexy despite my neurologists insistance that this is not possible. I was dx in 99.
This information was very enlightening. I have narcolepsy with cataplexy, RLS/PLM, and then developed sleep Apnea (central, obstructive, and mixed). I also struggle from PTSD from childhood abuse. The interesting issue is I also have been diagnosed with DID. I can see how my hypnagogic hallucinations and sleep attacks could easily explain the sense of losing time and that alters are calling or talking. I can see now why my past psychiatrist only made me worse by adding antipsychotic medications which just made me worse. As well as possibly inducing a continuous cataplexy attack in the Dr office in which the Dr called 911 believing I had committed suicide just to regain my muscle tone in the Ambulance and be fine upon arrival at the Ed. The Psychiatrist never believed me when He asked what was that and I said a cataplexy attack.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
DID is another listed, though less common, misdiagnosis of narcolepsy, alongside others mentioned here like ADHD, bipolar, schizophrenia, etc. I had a well-meaning but off the mark therapist once suggest my narcolepsy symptoms might be a dissociative response, and this doctor mentioned in his talk about a patient’s hallucinations looking almost fake because they were so exaggerated. I think it’s a real shame that specialists in their fields aren’t required to rule out other causes before making a diagnosis, as confirmation bias leads to so many misdiagnoses that either never get corrected, get corrected much later, or create false statistics of comorbidities that don’t exist. The sciences of neurology and psychology are still so new, I hope we continue to have more doctors like this one studying and raising awareness of the distinctions and correlations between them.
My husband would start dreaming before he fell asleep. He would tell me all the weird things he was seeing.
I will say the dreams are always very real, full color surround sound. I get used to the feeling of not being able to move as I go to sleep. My dreams are often so real I have to think about if it actually happened. I have had this since childhood and I'm over 50 now. Modafinil has been good but doesn't completely take away the moments of sleep just makes it less. The insomnia sucks and always have.
I don't know a lot of narcoleptics that can stay awake for a 50 minute video. This make take me days to watch.
The narcoleptic people I know had mothers that hang blockout curtains in their children’s rooms and force them to sleep every afternoon as toddlers right through primary school
This was so helpful hank you. My son just ot diagnosed at 4 and we are having a hard time with how little information and research there is. He feel asleep at all 5 naps on the MSLT and REM started within 2 minutes in all 6 naps. His overnight REM also started at 2 minutes after he fell asleep and he is jot sleep deprived (sleeps an consistent 11-12 hours a night). He has sings of cateplexy and sleep paralysis. Are there resources for kids under 5 or a doctor you know of that can give us a consult? We are in Toronto Canada. Thank you again for such an informative video!
WHere's my Honorary Doctorates degree? I'm an Expert, I live with this BS!!!
Are you out of your FN mind?! People like myself and everyone else in the comments here actually live with narcolepsy and cataplexy. It is absolutely terrible. Everyone tells you, even in the medical community to just "try harder," because it is so rare that they just don't understand the symptoms, most narcoleptics don't.
I would be going to my GP for recommendation to test me for narcolepsy. I know I have it. Just not diagnosed yet. It’s becoming more concerning now and a lot of my coworkers have been noticing it about me.
There was a period in my life (college) where the paralysis and hallucination were frequent to the point where I wouldn’t sleep without somebody there. I had this hallucination before where I hear small people saying tie her up before she could wake again. It terrified me.
Thank you soo much, my mother me and my daughter we have it, my daughter she’s still in school and it attacks her and teachers don’t understand they think my daughter is lazy, she even started dropping in her class because of this disorder, we are from Kenya and I think it’s not easy to find all this treatment there
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I have the EXACT OPPOSITE. severe insomnia. I've gone 4 days without sleep. By the 4th day, I'm seeing rainbow auras around my eyes. And when I finally crash, I sleep for 2 days straight and wake up very dehydrated and I have to drink alot of electrolytes to get going again. No prescription sleeping pill works.
Me too
Very interesting, I've been suspecting I have have a type of narcolepsy. It started during 9th grade after I had severe case of mono. For first few months thought the sleeping all the time was just me recovering but I have had it for many years. Told my GP and he thought it was just depression, and prescribed effexor an snri and I noticed I wasnt randomly falling asleep during the day nearly as often, only problem is I still feel perpetually tired, like I got woken up right after falling asleep. I have sleep paralysis at minimum 3 times a week. Plenty of vivid hallucinations falling asleep and when waking up, like being somewhere completely different, commonly having lucid dreaming, where I'm 100% aware I'm in a dream and can control a large amount of it. Most my life has been like this, and I thought it was normal for being a highschool and working adult who required endless cups of coffee to keep from falling asleep anytime on breaks or when sitting quietly. I think I need to go back to my GP and get a referral for sleep study or something.
I actually had mono in 2014 and shortly after that sleep paralysis started and not long after that I started dreaming as soon as I fell asleep and still do now. Can you get narcolepsy from mono? I had no idea! But I just put the pieces together yesterday and connected all the dots so I’m new to all of this
I have Narcolepsy type 1 (with cataplexy) My younger sister has Narcolepsy type 2 (w/out cataplexy) and my mother has ideopathic hypersomnia.
I only discovered Narcolepsy today. I've always been told I have sleep apnea, because I've always had trouble sleeping during the night. Even after I was checked in overnight at a Sleep Clinic, I was never diagnosed with Narcolepsy. I also have adult Dyspraxia, so I'm wondering if the two conditions are linked ? Watching from London UK.
ive been diagnosed with narcolepsy as well as sleep apnea, DID and bi polar 1.
The reason why I search for these videos is that 2 years ago my elder sister gave me her sleeping. Child to. Handle and I felt asleep and my balance of holding the child fails and thank God luckily nothing happened to the child,and today I felt asleep while I'm sitting and I'm.cooking the oil and till 40 minutes the oil had been cooked there and a lot of smoke comes out and the House is full of smoke that comes from the oil.Luckily my aunt saw all these things and she thought the house is burning,but there a small burning of fire in the house and my aunt wake me up from outside and I quickly wake up I was shocked I couldn't breathe and then quickly I came outside and took some water to pour into the burning of fire in the house I cried alot today because I'm about to die.and all these years I've never taken my sleep illness so serious. I'm very upset today
I get some of this, but not all of it. wondered about it the more I read about the Hashimoto's thyroiditis I've got and some of the other issues tied to it. Auto-immunity seems to have governed my life. Never thought about some of my issues going to sleep as hallucinations. I just figured I slept quick and sometimes suddenly awoke with weird dreams. But I know sometimes I'd wake up and ask or tell the wife something and she'd look at me like I had two heads cause it was totally nonsensical what I was saying ot her. And she'd be "you were asleep, didn't you know that?"
My Grandmother was diagnosed in her 60s Then my mother my youngest sister then me. It was in the late 90s I was told by my Sleep doctor that its a disorder that not much is known about. That is all the info he gave me.
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
What are your thoughts on an upcoming once nightly sodium oxybate?
I have it . With this drug shortage I've been taking the least amount of medicine. Well I pee'd in my bed last night at 43 yrs old with narcolepsy. FML!
Don't like how he said "and we fixed them," to say it like that comes off so bad. I agree with much of what he says though like with most doctors they don't recognize the fact, that not all persons can tolerate the medications and that means that not all people with Narcolepsy can live that 'normal life' they say as well as think they provide. For me, I've only been, literally, harmed by the medications I've tried for the disease, that may be due to the comorbidities I have, but I know that I am not alone and I can't stand the attitude of the current medical realm which is only breaking more and more by the day. My bad, I digress.
Pretty sure if I didn’t have narcolepsy before listening to this gentleman talk, I do now.
Do you have an treatment of kleine Levin syndrome
The same kids are put to sleep every time after screaming at them and they cry themselves to sleep
HH is not Psychosis. It's being caught in between Conciousness and Unconsciousness. It's very Real, But I'm not wasting my breath on this guy.
I would also hesitate to say that someone with narcolepsy is just as likely to be awake in the day as they are at night. MAYBE that could be stretched to people that aren't treated?