CDC Webinar: Joint Guidelines on the Diagnosis and Management of von Willebrand Disease
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- Опубліковано 24 гру 2024
- The Center for Disease Control and Prevention Division of Blood Disorders hosted presents Joint Guidelines on the Diagnosis and Management of Von Willebrand Disease.
von Willebrand Disease is the most common
inherited bleeding disorder. Approximately 1 in 1,000
people experience symptomatic bleeding from VWD;
however, many patients go years without an accurate
diagnosis while living with untreated bleeding. Because
vWD is clinically complex and technically challenging
to diagnose, a need for updated clinical guidelines was
identified by people with vWD and clinicians around
the world.
The American Society of Hematology (ASH), International
Society on Thrombosis and Hemostasis (ISTH), National
Hemophilia Foundation (NHF), and World Federation of
Hemophilia (WFH) came together to respond to this
need and develop updated clinical practice guidelines
on the diagnosis and management of vWD. The product
of unparalleled international collaboration and patient
involvement, these guidelines provide evidence-based
recommendations that address clinical questions
prioritized by stakeholders and identify key areas for
further research.
In this webinar, three of the guideline development
panelists, Jean Grow, Ph.D., Nathan Connell, MD, MPH, and
Angela Weyand, M.D., will present key recommendations
from the guidelines, the process through which they were
developed, and implications for the improved diagnosis
and management of people with vWD.