@@ismayilkasim7330 I used to have ocd back in childhood I struggled a lot. But it was over without any help when I was about 14 Now I'm totally normal I'm 16 If I had help back then it would have been easier.
It was always my part of life I am a dr now and these two things made me think about mental conditions, phsicology, life etc much much more. And last sentences of her is the summary of all "It made me who I am".
I have been with ocd since moving to the states. I have intrusive thoughts all day. It is rare to not have them. I feel ashame for the thoughts. I started crying and panicking while I was eating with my bf the other day. I hate the physical sensation of my panic. I try to avoid it but it makes it worse. I think I’m a horrible person for finding other ppl attractive. I have shame in a lot of things I do, even if they aren’t bad. I am happy I saw this video.
Understand your thoughts are normal, and accept that the dwelling on the thoughts are OCD. I’ve dealt with this my whole life, I have so many good things going for me now, I am an unstoppable force. I do get ROCD, I’m sure you know what that is, you should look into it. There are many outlets to get this under wraps. Much love
@@2005aryamOH DEFINITELY!!! As soon as I left my moldy house, my family’s anxiety and tics got 50% better🎉 and I don’t feel so tortured mentally and my ADHD is 50% better too!
I was one of the lucky ones too. I first got diagnosed with depression and anxiety but thanks to a second opinion, I got diagnosed with pandas which made so much more sense because of the intrusive thoughts, panic attacks, nightmares, constant peeing, etc
Thank you for sharing this. My daughter suffered with PANS since age six. My son had a mild form for a short time.But my daughterinflammationinflammation in the basal ganglia. it is treated differently from OCD and Tourettes, but many receive both psychiatric and medical treatment. it was great to have you speak on your experience with this. Much awareness continues to be needed until all hospitals and doctors treat this debilitating illness inflicting so many children.
This is my daughter for the last 7 years. First diagnosed with Hashimoto's Encephalopathy/SREAT, then thought of as PANS, then diagnosed with Autoimmune Encephalitis. Was told it's all the same. 7 years of immunosuppressants, steroid infusions, IVIG, plasmapheresis oral steroids and chemotherapy. It's a monster. God keeps us going...
Thank you for sharing your story. I struggle with mental health issues that seem to act a lot like your OCD, and I tried getting disability for my problems, but my doctors will not commit to a diagnosis... Not sure what to do. But this was interesting, and helps me know im not alone. Thanks again!
When your suffering from manic attacks and contamtly wonder why its so hard to even feel confident At 23 I see lots of attraction to feel compelled to send a comment but really i know how it is 💜thanks for the talk
Not religious but I still relate to this so much. For me, OCD mainly manifests itself in obsessive thoughts and compulsions around food and body image. I always thought my eating disorder was closely linked with my OCD diagnosis but my treatment team never seemed to connect the two.
Might explain centuries of societal issues. Post pandemic psychological issues beyond PTSD... Or even misdiagnosis of PTSD or brain trauma in returning soldiers was actually some missed diseases that were asymptomatic for some. 🤔🤔🤔🤔🤔 Anyway... Hugs and good vibes 💗🌈💗🌈💗🌈💗
What is the best treatment for this? Our 3 year old son was diagnosed with this a few months back. We went spoke to a chiropractor that specialized in holistic medicine. They got him on natural vitamins and supplements to help. Because they said he had a major infection on his brain causing these issues. A few days later we saw a huge positive difference. They told us he would need to take these supplements for 6-8 months and also do two weeks of on-site therapy at a chiropractic clinic in Tennessee. It was called Smiley Chiropractic. They charged $1,000 a day for almost two weeks of on-site therapy. It was painful because my wife had to take our son and stay at a cabin in TN while I stayed back in NC wit our 1 year old daughter. He showed some progress during the therapy but has regressed since he’s been home these past few days. He’s been home 3 days from this therapy and they said this regression was normal, but it’s so sad to watch our son hurt himself in these meltdowns. Anyone have any recommendations or any updates on treatments?
@@EM-mn3nz we are currently using Resilience Homeopathy and having wonderful results. In our research antibiotics will do more harm than good and only act as crutch to the problem which means he would have to be on them indefinitely. Also medical doctors typically do not know much about Pans/Pandas and diagnose this as autism and medicate.
@@EM-mn3nz herbal Remedies also function for some Children. Some Mommy groups shared this Other Non Traditional Medicine options. My child did recovered with a combination of Both. It takes months or years to get a Doctor to Listen to the moms n help the Child. My case insurance refused to have my child get tested n I would have to pay out of pocket Thousand of dollars I could not Afford. My kids pediatrician was Great n he prescribed antibiotics n meds for my children. Most doctors Refuse to give U kid Antibiotics. Mine agreed my children need it because they would get very sick with a simple infection n or illness their lungs. So He Would prescribed it I also didn't wait for them to get Worst but took them in to their Doctor immediately. Even a cut or anything my pediatrician was Great n treat them. My son actually had NeuroSurgery n my Pediatrician had ignored Me saying Something was so wrong. When my baby not even 3 yrs got his Head Surgery n I had his records sent to Our pediatrician He was surprised. I taken my child to the best children hospital n They were able to Treat him n He Recovered from this. My Doctor ask me why I took him to the other hospital n I said I was Tired of watching him cry n suffer n this hospital n. Even U ignored my Child's condition. I know my Kids Doctor still our doctor He is One of the Best. But he never heard of Pandas Pans. I finally found a referral n the Allergist he ran some test n he was willing to listen n help my Child. For my kids I did the Herbal Natural remedies because I couldn't get any appointments to the Right place clinic doctors. It was after my son was better that this Clinic at Stanford I found was Created. My kid is a teen n has almost no flare ups Now. I also learn to advocate for him. I learn to help ourselves when U get close doors n unwilling Doctors who refuse to listen.
@@funnyfurfamily1513 my kids do better with antibiotics n a blend of herbal n Natural remedies. He is a teen n has almost zero flare Ups. In my Culture we rely a lot on Ancestral Medical from herbs plants n things found in nature. I am Also aware Some Medicine From Schooled Doctors in our Modern times Benefits N are Important. Research in Medicine n The use of Plants Herbs to make New medicine I think We can One Day Have it be mutual cooperation to Heal the Patients. Right Now Some kids Don't do well even with Antibiotics n Other Treatments from a Doctor or Modern Medicine. There is still lots to Learn. So Yes They Should be under Treatment from Their Doctor n Go on Antibiotics. Maybe the antibiotic seem to make it worst or not work because they were not started at onset of Infection. Or they were low dose or not taken for enough time. U also cannot take them ForEver. So U have to Advocate for your Child. Children. I also read about Chiropractor New Form of Treatment that holistic. In our old Town This is a Recognized branch of Medicine that was not often accepted. But I remember walking into that hospital yrs yrs yrs Ago pregnant to get an ultrasound n I was reading some info n there was this New Wing Dedicated to Holistic n Non Traditional Medicine. Lots of Articles about the Mind Body n More Connections. I also just for the first time went to a chiropractor n I felt much Better after It. I myself can massage treat my children in our Old Ancestral ways when they are very sick. There is a spot in the spine that is important to Treat in the Child to have them Recover faster... Each Coyontura on the Body must be massaged treat to release the sickness out of the Body.. When I was at the Chiropractor some of the things were very similar like I give treatment to my sick child to help him recover. N I do this at onset of Any illness. I also make hot herbal medicinal drinks for them. Sonar. I am not a professional Sobadora but Most of our women Know this things n learn them from older generations. U do have to study a lot with someone who knows about this Things n It is said U got to be born with the Gift to Sobar. Healer Art.
My 13 yr old has been dxed with PANS. It seems she’s been suffering with it for four years and is on her 3rd psych hospital stay since January of this year. It is a horrific disease.
I watched this nightmare unfold before me with my own child! Positive strep test with no sore throat or physical symptoms but crazy behavior problems that get better with massive doses of antibiotics....long term and untreated cases only to leave the child with OCD, intrusive thoughts, irrational fears, and for some reason a sudden and serious deficit in math skills.
His physician diagnosed it as PANDAS then rebuked her statements due to pressure from her colleagues as none of them knew anything about it. Their fear of being wrong actually caused him harm because it blocked him from getting the correct treatment. He was shuffled through the mental health system and given harmful medications even though all of those professionals were completely puzzled as he didn't fit into any of their diseases either.
After years it was found that his neural pathways have been damaged so he can no longer complete thoughts and he only understands about 70% of what people are saying to him. His IQ was affected by the long term autoimmune response to an improperly treated Strep A infection. He was denied antibiotics that helped because PANDAS isn't real. If PANDAS continues to be a HYPOTHESIS then foolish doctors will keep denying children treatment that can make a huge difference in their lives.
Hi Tena, Im a medical student with PANDAS and had to stop. In addition to the constant unrelenting terror I cannot to basic math functions either. Please look at brain integration developed by Dr Charles Krebs and please give it serious consideration. He has developed unique treatment protocols for these sorts of deficits.
Yup, my daughter went years misdiagnosed. She lost her entire childhood from this devastating disease. she is fortunate in that she is now in college and it has not appeared to have affected her learning. She spent the pandemic teaching herself Chinese and is almost fluent. I would give your son time for his brain to heel. I still get so angry how doctors are not treating this. It goes against their oath by doing so much harm to these children by neglecting them. I fought so hard in Washington Star for so many yr-ears to change this and nothing came of it. And YES, it is very real!!!
É, assim, eu não consigo ser grato por ter tido Transtorno Obsessivo Compulsivo (TOC); eu também tive depressão, tive depressão duas vezes, eu acredito que tenho TOC desde os treze anos de idade, mas só fui diagnosticado com TOC, só quando eu já estava com 22 anos de idade, e para mim, é muito difícil continuar vivendo com essa doença; e atualmente, eu estou sentindo, que estou com um pouquinho de depressão em mim.
Hello, I'm a mother of a PANS / Pandas girl. I'm helping Dr. Candelaria Greene find survivors of Pandas/pans. The goal is to find what treatment you feel helped the best in your recovery would you be willing to participate with Dr. Greene. Your story would mean a lot
Ancestral Herbal Plant Remedies n Medicines for Allergy prescribed by an Allergist only Doctor willing to test my Child. He was well research on the Pans Pandas my kids pediatrician Older Doctor never heard of it n was skeptical n Insurance refused for referral n Payment. To get tested I would have to Pay Thousand of dollars for the Panel most moms were trying to get fir Their kids. My kid recovered After an illness n Antibiotics. I was more Careful with exposure. It was a few yrs later my sister sent a message Her child had tested positive for Strep again. Apparently She was the Carrier n my child Would always get Sick n gave symptoms after going to visit them. Other kids were Fine. Herbal Natural remedies kept flare ups in control til we went to Allergist n he prescribed meds for him. These helped. He Said it was because he was getting medicated antibiotics in the nose for the congestion. I got lost There. The allergy pills suppress the autoimmune enough to Help. Huge amounts of Oregano n Canela. Cinnamon. It's antibiotic properties. We drink it when sick. Boiled. I only get the Mexican One. It has to Smell like the one From the tree my Grandma had in her Yard. I learn some cinnamon is Fake. Yeah don't use fake or powder. Use Real One. Lemongrass.. more Citrus fruits . Loads of Orange Juice. Fresh. Did more Fruits n vegetables n less Package foods. Limited Gluten. Did more Proteins but He went Vegan. I allowed it. He seem to do better less gluten less Meat. More Ancestral Cooking. Homemade
I had always had autism, but 2011 I was diagnosed with "sudden dmdd " .........it was 3 weeks after I was treated for strep. It was a bad strep too, I had it for a month before they took me to treatment 😢 my dmdd has "evolved" to bpd. I tried telling them I think I have ocd because a lot of things can't be explained by autism, cptsd ot bpd. They listened to me so litte the started to refuse to see me or sign me off for another doctor
I used to have ocd back in childhood I struggled a lot. But it was over without any help when I was about 14 Now I'm totally normal I'm 16 If I had help back then it would have been easier.
don’t want to be super negative but don’t be surprised if it comes back at around 17-18. i went through it to a less extreme condition from like 8-14/15 then it was dormant. but then at age 16 (almost 17) i was thrown into the deep end
My son is right now in a behavioral facility due what I know is caused by his obsession due to pandas. Is the blood test now available to determine if someone has Pandas?
i am just realizing that my daughter,s sudden onset of hours long rages at three after strep is PANDAS. She is 32 now and has seizures and rages and intrusive thoughts etc. I wish i had known about this when our family was falling apart and she was suffering. 13 5150's before 18 years old. i have no idea where to go to get her help for PANDAS.
Right...what was the need to point that out? The tone reads harshly to me. If it wasnt intended as such my apologies. I'm a bit upset Anna had to respond this utterly minor point which hopefully didnt elicit any distress. PANDAS and OCD, PANDAS and OCD, PANDAS and OCD - thats the message, thats why we are here and pointless comments detract from this. Again if you didnt mean to be overtly critical as I have interpreted then apologies but either way its PANDAS and OCD we should be focused on :)
Germs are the trigger! PANDAS by exposure to Strep. After that it is all viruses and bacteria that cause the antibodies to attack the brain, causing OCD, Tics, Eating restrictions, Eat.. Exposure to germs is the worst thing you can do.
That would be the worst thing ever for PANDAS! That is a trigger . My daughter had it for 18 years and every time she had a flare it was from a germ. Unless your a doctor who has expertise in this disease or have experienced it yourself you may not want to make suggestions that could be harmful.
@@margaret19631 Doctors Now Recommend U let kids eat dirt to expose to germs n Hecko No. Not letting the Baby eat Dirt or get Germs from others. My newborn never go out my home til after 6 months to a Year. I Limit the People coming to see them n I say when we are Ready we will go see U. Your baby's Own Immune System Kicks in at Six Months. Exposing newborns to others Germs is not Good Parenting. Humans Survived because It's Survival of the Strongest n Fittest.. But what if Your kid is the weak link are U willing to let your kid Die so we the Rest of us n our kids who do Survive can Thrive. We are supposed to be humanely Creatures N Just should not be picking n chosing our own offspring to be tested to their Autoimmune system will Keep them alive or Not. We just spent these Years hiding from Germs. Pandemic Level Germs.
I related to this so much and grateful she had the courage to share her experience.
So do you have ocd then be sure to go to hospital
I have ocd too. It is hard for me. I struggle everyday with this disease.
@@ismayilkasim7330 I used to have ocd back in childhood I struggled a lot. But it was over without any help when I was about 14
Now I'm totally normal I'm 16
If I had help back then it would have been easier.
Me suffering from ocd
As someone with experience with PANDAS I was so excited to see a video on this!
It was always my part of life I am a dr now and these two things made me think about mental conditions, phsicology, life etc much much more. And last sentences of her is the summary of all "It made me who I am".
U got ocd before ?
Weren't there any OCD relapses or didn't it tried to interrupt your studies post treatment,??
I have been with ocd since moving to the states. I have intrusive thoughts all day. It is rare to not have them. I feel ashame for the thoughts. I started crying and panicking while I was eating with my bf the other day. I hate the physical sensation of my panic. I try to avoid it but it makes it worse. I think I’m a horrible person for finding other ppl attractive. I have shame in a lot of things I do, even if they aren’t bad. I am happy I saw this video.
Im so sad you feel this way. My daughter has it to as do many people. Do you have a therapist to help you?
Understand your thoughts are normal, and accept that the dwelling on the thoughts are OCD. I’ve dealt with this my whole life, I have so many good things going for me now, I am an unstoppable force. I do get ROCD, I’m sure you know what that is, you should look into it. There are many outlets to get this under wraps. Much love
It can be mold in your house, since USA houses are moldy because they’re made of wood.
@@2005aryamOH DEFINITELY!!! As soon as I left my moldy house, my family’s anxiety and tics got 50% better🎉 and I don’t feel so tortured mentally and my ADHD is 50% better too!
this talk was so needed specifically on religious scrupulosity
I was one of the lucky ones too. I first got diagnosed with depression and anxiety but thanks to a second opinion, I got diagnosed with pandas which made so much more sense because of the intrusive thoughts, panic attacks, nightmares, constant peeing, etc
I was a lucky one as well, I was diagnosed almost right away and was able to get treatment super soon after the onset of symptoms
What did your treatment consist of? (If you don’t mind me asking) :)
@@RmakeupLove injections, azithromycin, drops, among other things
What injections May I ask. Asking for my daughter…I hope you’re doing well.
@@ShanaKorman thank you, I am well. some sort of antibiotics in the form of injections to kill off the bacteria.
Thank you for sharing this. My daughter suffered with PANS since age six. My son had a mild form for a short time.But my daughterinflammationinflammation in the basal ganglia. it is treated differently from OCD and Tourettes, but many receive both psychiatric and medical treatment. it was great to have you speak on your experience with this. Much awareness continues to be needed until all hospitals and doctors treat this debilitating illness inflicting so many children.
How did they discover it?
Bless this young lady!
Panda Babu , where are you ???
Oh my her is exactly how i feel!! I felt crazy till this!
My son is dealing with pandas undiagnosed for 6 years. Seeing you give this talk gives me hope
I have PANDAS I was diagnosed with it when I was 4 years old and now I’m 13 and I’ve Ben doing better I got lots of treatments
I’m glad.❤️ I have pandas too.
What has helped you the most?
Well that's me you're describing Anna! I'm just relieved if not glad to know that I'm not alone.We'll get there guys.Thanks so much for this!
This is my daughter for the last 7 years. First diagnosed with Hashimoto's Encephalopathy/SREAT, then thought of as PANS, then diagnosed with Autoimmune Encephalitis. Was told it's all the same. 7 years of immunosuppressants, steroid infusions, IVIG, plasmapheresis oral steroids and chemotherapy. It's a monster. God keeps us going...
My daughter first symptoms at age six. She is now 23 and doing great. know that it will get better and all those treatments will help in the long run!
How were you diagnosed?
Antibiotics, high doses of ibuprofen, regular therapist, and an OCD therapist who specializes in PANDAS. Exposure therapy for OCD.
Thank you for sharing your story. I struggle with mental health issues that seem to act a lot like your OCD, and I tried getting disability for my problems, but my doctors will not commit to a diagnosis...
Not sure what to do. But this was interesting, and helps me know im not alone. Thanks again!
When your suffering from manic attacks and contamtly wonder why its so hard to even feel confident
At 23 I see lots of attraction to feel compelled to send a comment but really i know how it is 💜thanks for the talk
Thanks for sharing Anna!
Thanks for sharing. Can understand ur each and every thing related to ocd.
There are some loose studies on psilocybin (psychedelic drugs) that re-grow or grow new neuro pathways. I wonder if this could treat similar trauma.
Tried it don’t work it helps with the depression for sure part but it’s not like pathway it’s where ur brain like get swollen
Great...very courageous person
Not religious but I still relate to this so much. For me, OCD mainly manifests itself in obsessive thoughts and compulsions around food and body image. I always thought my eating disorder was closely linked with my OCD diagnosis but my treatment team never seemed to connect the two.
I notice my OCD gets worse when i eat sugar anybody else?
Gluten
hi my OCD gets worse when am stressed or depressed
the last i treated my ocd was in 2007 ..upto date...i thnk if i start treatment it ill get better
At hour 29 of a water fast is the best time for me, OCD starts to come back after 32. IDK about anyone else, that's just me.
@@АлисаАлиса-р2д I stopped eating gluten a month ago n feel a lot better ( I have pans)
I have a more advanced version of PANDAS, tics, tremurs and my body locks up. This was cool to see that some people doesn't have it as advanced
My ocd seems to be, bad, after a while I get used to that stage, worsens overnight for seemingly no reason.
I looked up PANDAS. What a mouthful!
I can sooooo identify. But church is a wonderful place. I will go there. Who knows who is there who needs me, that day.
Thank you
Best on OCD .
I relate to so much of this!
I got pandas when i was 8 and it was the worst thing i could go through
I have pans now i have lots of breakdown of clothes and other stuff get well soon freind.
I have pandas now bad I’m struggling with it but I just think we need to share what it is and get the message out there
It will get better. My daughter is doing really well now. Just takes time for healing and you need to take care of yourself.
As someone who had it, you’re doing amazing I promise, it’s incredibly difficult. It’s life altering, but you can do this!
I have all those simptems
Hmmmm my son..
Omfg it all makes sense now.
My daughter has this
Might explain centuries of societal issues.
Post pandemic psychological issues beyond PTSD...
Or even misdiagnosis of PTSD or brain trauma in returning soldiers was actually some missed diseases that were asymptomatic for some.
🤔🤔🤔🤔🤔
Anyway...
Hugs and good vibes
💗🌈💗🌈💗🌈💗
What is the best treatment for this? Our 3 year old son was diagnosed with this a few months back. We went spoke to a chiropractor that specialized in holistic medicine. They got him on natural vitamins and supplements to help. Because they said he had a major infection on his brain causing these issues. A few days later we saw a huge positive difference. They told us he would need to take these supplements for 6-8 months and also do two weeks of on-site therapy at a chiropractic clinic in Tennessee. It was called Smiley Chiropractic. They charged $1,000 a day for almost two weeks of on-site therapy. It was painful because my wife had to take our son and stay at a cabin in TN while I stayed back in NC wit our 1 year old daughter. He showed some progress during the therapy but has regressed since he’s been home these past few days. He’s been home 3 days from this therapy and they said this regression was normal, but it’s so sad to watch our son hurt himself in these meltdowns. Anyone have any recommendations or any updates on treatments?
Why would you go to ta chiropractor for this? He needs antibiotics and MEDICAL doctors.
@@EM-mn3nz we are currently using Resilience Homeopathy and having wonderful results. In our research antibiotics will do more harm than good and only act as crutch to the problem which means he would have to be on them indefinitely. Also medical doctors typically do not know much about Pans/Pandas and diagnose this as autism and medicate.
@@EM-mn3nz herbal Remedies also function for some Children. Some Mommy groups shared this Other Non Traditional Medicine options. My child did recovered with a combination of Both.
It takes months or years to get a Doctor to Listen to the moms n help the Child.
My case insurance refused to have my child get tested n I would have to pay out of pocket Thousand of dollars I could not Afford. My kids pediatrician was Great n he prescribed antibiotics n meds for my children. Most doctors Refuse to give U kid Antibiotics.
Mine agreed my children need it because they would get very sick with a simple infection n or illness their lungs. So He Would prescribed it I also didn't wait for them to get Worst but took them in to their Doctor immediately. Even a cut or anything my pediatrician was Great n treat them.
My son actually had NeuroSurgery n my Pediatrician had ignored Me saying Something was so wrong. When my baby not even 3 yrs got his Head Surgery n I had his records sent to Our pediatrician He was surprised. I taken my child to the best children hospital n They were able to Treat him n He Recovered from this.
My Doctor ask me why I took him to the other hospital n I said I was Tired of watching him cry n suffer n this hospital n. Even U ignored my Child's condition.
I know my Kids Doctor still our doctor He is One of the Best. But he never heard of Pandas Pans. I finally found a referral n the Allergist he ran some test n he was willing to listen n help my Child. For my kids I did the Herbal Natural remedies because I couldn't get any appointments to the Right place clinic doctors.
It was after my son was better that this Clinic at Stanford I found was Created.
My kid is a teen n has almost no flare ups Now.
I also learn to advocate for him.
I learn to help ourselves when U get close doors n unwilling Doctors who refuse to listen.
@@funnyfurfamily1513 my kids do better with antibiotics n a blend of herbal n Natural remedies. He is a teen n has almost zero flare Ups.
In my Culture we rely a lot on Ancestral Medical from herbs plants n things found in nature. I am Also aware Some Medicine From Schooled Doctors in our Modern times Benefits N are Important.
Research in Medicine n The use of Plants Herbs to make New medicine I think We can One Day Have it be mutual cooperation to Heal the Patients.
Right Now Some kids Don't do well even with Antibiotics n Other Treatments from a Doctor or Modern Medicine.
There is still lots to Learn.
So Yes They Should be under Treatment from Their Doctor n Go on Antibiotics.
Maybe the antibiotic seem to make it worst or not work because they were not started at onset of Infection. Or they were low dose or not taken for enough time. U also cannot take them ForEver. So U have to Advocate for your Child. Children.
I also read about Chiropractor New Form of Treatment that holistic.
In our old Town This is a Recognized branch of Medicine that was not often accepted.
But I remember walking into that hospital yrs yrs yrs Ago pregnant to get an ultrasound n I was reading some info n there was this New Wing Dedicated to Holistic n Non Traditional Medicine.
Lots of Articles about the Mind Body n More Connections.
I also just for the first time went to a chiropractor n I felt much Better after It.
I myself can massage treat my children in our Old Ancestral ways when they are very sick. There is a spot in the spine that is important to Treat in the Child to have them Recover faster... Each Coyontura on the Body must be massaged treat to release the sickness out of the Body..
When I was at the Chiropractor some of the things were very similar like I give treatment to my sick child to help him recover.
N I do this at onset of Any illness. I also make hot herbal medicinal drinks for them.
Sonar. I am not a professional Sobadora but Most of our women Know this things n learn them from older generations.
U do have to study a lot with someone who knows about this Things n It is said U got to be born with the Gift to Sobar. Healer Art.
My 13 yr old has been dxed with PANS. It seems she’s been suffering with it for four years and is on her 3rd psych hospital stay since January of this year. It is a horrific disease.
I watched this nightmare unfold before me with my own child! Positive strep test with no sore throat or physical symptoms but crazy behavior problems that get better with massive doses of antibiotics....long term and untreated cases only to leave the child with OCD, intrusive thoughts, irrational fears, and for some reason a sudden and serious deficit in math skills.
His physician diagnosed it as PANDAS then rebuked her statements due to pressure from her colleagues as none of them knew anything about it. Their fear of being wrong actually caused him harm because it blocked him from getting the correct treatment. He was shuffled through the mental health system and given harmful medications even though all of those professionals were completely puzzled as he didn't fit into any of their diseases either.
After years it was found that his neural pathways have been damaged so he can no longer complete thoughts and he only understands about 70% of what people are saying to him. His IQ was affected by the long term autoimmune response to an improperly treated Strep A infection. He was denied antibiotics that helped because PANDAS isn't real.
If PANDAS continues to be a HYPOTHESIS then foolish doctors will keep denying children treatment that can make a huge difference in their lives.
Tena can I ask if you were able to do any tests on the brain to pinpoint the neurological damage ? Would app any info..
Hi Tena, Im a medical student with PANDAS and had to stop. In addition to the constant unrelenting terror I cannot to basic math functions either. Please look at brain integration developed by Dr Charles Krebs and please give it serious consideration. He has developed unique treatment protocols for these sorts of deficits.
@@jamesbronson9173 Oh my, I feel for you! Thank you for the info~ I will for sure look into it!
I am so sorry this happened to your child.
Yup, my daughter went years misdiagnosed. She lost her entire childhood from this devastating disease. she is fortunate in that she is now in college and it has not appeared to have affected her learning. She spent the pandemic teaching herself Chinese and is almost fluent. I would give your son time for his brain to heel. I still get so angry how doctors are not treating this. It goes against their oath by doing so much harm to these children by neglecting them. I fought so hard in Washington Star for so many yr-ears to change this and nothing came of it. And YES, it is very real!!!
É, assim, eu não consigo ser grato por ter tido Transtorno Obsessivo Compulsivo (TOC); eu também tive depressão, tive depressão duas vezes, eu acredito que tenho TOC desde os treze anos de idade, mas só fui diagnosticado com TOC, só quando eu já estava com 22 anos de idade, e para mim, é muito difícil continuar vivendo com essa doença; e atualmente, eu estou sentindo, que estou com um pouquinho de depressão em mim.
Hello, I'm a mother of a PANS / Pandas girl. I'm helping Dr. Candelaria Greene find survivors of Pandas/pans. The goal is to find what treatment you feel helped the best in your recovery would you be willing to participate with Dr. Greene. Your story would mean a lot
Antibiotics, high doses of ibuprofen, regular therapist, and an OCD therapist who specializes in PANDAS. Exposure therapy for OCD.
Ancestral Herbal Plant Remedies n Medicines for Allergy prescribed by an Allergist only Doctor willing to test my Child.
He was well research on the Pans Pandas my kids pediatrician Older Doctor never heard of it n was skeptical n Insurance refused for referral n Payment. To get tested I would have to Pay Thousand of dollars for the Panel most moms were trying to get fir Their kids.
My kid recovered After an illness n Antibiotics. I was more Careful with exposure. It was a few yrs later my sister sent a message Her child had tested positive for Strep again. Apparently She was the Carrier n my child Would always get Sick n gave symptoms after going to visit them. Other kids were Fine.
Herbal Natural remedies kept flare ups in control til we went to Allergist n he prescribed meds for him. These helped. He Said it was because he was getting medicated antibiotics in the nose for the congestion. I got lost There. The allergy pills suppress the autoimmune enough to Help.
Huge amounts of Oregano n Canela. Cinnamon. It's antibiotic properties.
We drink it when sick. Boiled. I only get the Mexican One. It has to Smell like the one From the tree my Grandma had in her Yard.
I learn some cinnamon is Fake. Yeah don't use fake or powder. Use Real One.
Lemongrass.. more Citrus fruits . Loads of Orange Juice. Fresh. Did more Fruits n vegetables n less Package foods.
Limited Gluten. Did more Proteins but He went Vegan. I allowed it. He seem to do better less gluten less Meat.
More Ancestral Cooking. Homemade
I had always had autism, but 2011 I was diagnosed with "sudden dmdd " .........it was 3 weeks after I was treated for strep. It was a bad strep too, I had it for a month before they took me to treatment 😢 my dmdd has "evolved" to bpd. I tried telling them I think I have ocd because a lot of things can't be explained by autism, cptsd ot bpd. They listened to me so litte the started to refuse to see me or sign me off for another doctor
I used to have ocd back in childhood I struggled a lot. But it was over without any help when I was about 14
Now I'm totally normal I'm 16
If I had help back then it would have been easier.
don’t want to be super negative but don’t be surprised if it comes back at around 17-18. i went through it to a less extreme condition from like 8-14/15 then it was dormant. but then at age 16 (almost 17) i was thrown into the deep end
My son is right now in a behavioral facility due what I know is caused by his obsession due to pandas. Is the blood test now available to determine if someone has Pandas?
i am just realizing that my daughter,s sudden onset of hours long rages at three after strep is PANDAS. She is 32 now and has seizures and rages and intrusive thoughts etc. I wish i had known about this when our family was falling apart and she was suffering. 13 5150's before 18 years old. i have no idea where to go to get her help for PANDAS.
Where are you located? My daughter is being treated in NJ
California, the central valley. We are very under served here medically.
Please research anti parasite for this condition
I've been trying it for someone with schizophrenia
Calms them down
Not yet cured but almost normal
0:16 - "bracelet's"?
There shouldn't be an apostrophe there.
@@annawurzer6185 Those things happen.
Right...what was the need to point that out? The tone reads harshly to me. If it wasnt intended as such my apologies. I'm a bit upset Anna had to respond this utterly minor point which hopefully didnt elicit any distress. PANDAS and OCD, PANDAS and OCD, PANDAS and OCD - thats the message, thats why we are here and pointless comments detract from this.
Again if you didnt mean to be overtly critical as I have interpreted then apologies but either way its PANDAS and OCD we should be focused on :)
@@jamesbronson9173 No harm was meant. I tend to be really pedantic when it comes to things like that.
@@vickielawson3114 No worries, I also wanted to make sure it wasnt because you had OCD too. Have a great day :)
I must use auto subtitle cuz i can't understand what she talking about. Hard while learn language and learn about ocd in the same time
What
Cunningham Panel! Look it up
So deadly
Church is a wonderful place and can helps a lot.
God made you and hopefully you will return to church one day.. . .it can be freeing.
The “criss cross apple sauce” part was pretty gey
:)
F
9 hours ago just 802 view and 25m sub its not real 😒😁
TED talks has thousands of videos, not just this one. That's why there are so many subs. I subscribed over a year ago
sorry i cant very well undrstant couse am kurd✌🏻❤️
expose your kids to germs so the immune system has something to attack, rather than looking at the brain as an enemy. train your immune system.
Germs are the trigger! PANDAS by exposure to Strep. After that it is all viruses and bacteria that cause the antibodies to attack the brain, causing OCD, Tics, Eating restrictions, Eat.. Exposure to germs is the worst thing you can do.
That would be the worst thing ever for PANDAS! That is a trigger . My daughter had it for 18 years and every time she had a flare it was from a germ. Unless your a doctor who has expertise in this disease or have experienced it yourself you may not want to make suggestions that could be harmful.
@@margaret19631 argue for your limitation and you get to keep them.
@@margaret19631 Doctors Now Recommend U let kids eat dirt to expose to germs n Hecko No. Not letting the Baby eat Dirt or get Germs from others.
My newborn never go out my home til after 6 months to a Year. I Limit the People coming to see them n I say when we are Ready we will go see U. Your baby's Own Immune System Kicks in at Six Months.
Exposing newborns to others Germs is not Good Parenting.
Humans Survived because It's Survival of the Strongest n Fittest..
But what if Your kid is the weak link are U willing to let your kid Die so we the Rest of us n our kids who do Survive can Thrive.
We are supposed to be humanely Creatures N Just should not be picking n chosing our own offspring to be tested to their Autoimmune system will Keep them alive or Not.
We just spent these Years hiding from Germs. Pandemic Level Germs.
Pandas? What did you do to pandas? 🤦🏻
The content is interesting, but I get angry, if someone talks with that scratchy low voice. Why do you do it? 😬
Pretty sure it was caused by pandas