You, Me, And HAE - Alex: Finding an On-Demand HAE Treatment That Works for Me

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  • Опубліковано 10 лют 2025
  • In our third episode of You, Me, And HAE, Debbie and Alex, RUCONEST Patients, discuss how they navigate living with hereditary angioedema (HAE), including how they found an on-demand treatment that works for them. Alex shares her journey of learning how to confidently self-inject RUCONEST® (C1 esterase inhibitor [recombinant]), an on-demand HAE treatment for people over the age of 12, utilizing the resources available through RUCONEST SOLUTIONS™, a Pharming support team. Cindy is a member of this support team, and in this episode, she discusses how she provides supplemental intravenous (IV) injection training tailored to your specific needs.
    If you would like to learn more about HAE or RUCONEST, we invite you to sign up at www.ruconest.c... to receive up-to-date information from Pharming Healthcare, Inc. or any of the company affiliates.
    If you would like to learn more about RUCONEST, visit www.ruconest.com.
    The product information in this UA-cam video is intended for U.S. residents only.
    WHAT IS RUCONEST?
    RUCONEST® (C1 esterase inhibitor [recombinant]) is an injectable prescription medicine that is used to treat swelling and/or painful attacks due to hereditary angioedema (HAE) in adult and adolescent patients over the age of 12.
    IMPORTANT SAFETY INFORMATION
    Do not use RUCONEST if you have experienced life-threatening immediate hypersensitivity reactions, including anaphylaxis, to RUCONEST or to any other C1 esterase inhibitor (C1-INH) product. Call your healthcare professional or the emergency department right away if you experience: wheezing, difficulty breathing, chest tightness, turning blue (look at lips and gums), fast heartbeat, swelling, faintness, rash or hives. A serious side effect of life-threatening hypersensitivity (anaphylaxis) was reported in a clinical study.
    Do not use RUCONEST if you have a known or suspected allergy to rabbits or rabbit-derived products. Tell your healthcare provider about all your medical conditions, including if you have a known allergy to rabbits.
    Before starting RUCONEST, tell your healthcare provider about any other medications you are taking, as some medications, such as birth control pills and certain androgens, can increase risk of clotting problems. Blood clots have occurred in patients receiving plasma-derived C1-INH product. Also tell your healthcare provider if you are pregnant, breastfeeding, or planning to do so.
    The most common side effects patients experienced during clinical studies include headache, nausea and diarrhea. These are not all the possible side effects of RUCONEST. Tell your healthcare provider about any side effect that bothers you or does not go away. You can also report negative side effects to Pharming Medical Affairs at (800) 930-5221, or contact the FDA at 1-800-FDA-1088 or www.fda.gov/me....
    If symptoms persist, a second dose of RUCONEST may be taken at your recommended dose. Do not take more than two doses within 24 hours.
    For product information, adverse event reports, and product complaint reports, please contact Pharming U.S. toll-free:
    (844) 474-2764 Main corporate number
    (800) 930-5221 Adverse events, product complaints, medical information
    Please visit RUCONEST.com for the full Prescribing Information, including Patient Product Information, or visit www.ruconest.c....
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    Suite 401
    Warren NJ, 07059
    www.pharming.com
    RUC-US-2024-0078

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