From Sharp Pain To RARE STAGE 4 Cancer! - Ariel | Appendix Cancer | The Patient Story

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  • Опубліковано 25 жов 2024

КОМЕНТАРІ • 178

  • @USHighway66
    @USHighway66 2 місяці тому +77

    Sadly, cancer can strike someone as fit and health conscious as you! I’m 74 years old and in pretty good health. Sometimes life can feel so unfair. Best wishes for a speedy recovery!

    • @ThePatientStory
      @ThePatientStory  2 місяці тому +4

      YES, sadly that is true. thanks for sending well wishes!

    • @fitness_by_ariel
      @fitness_by_ariel 2 місяці тому +2

      Thank you!

    • @rubytuesday1316
      @rubytuesday1316 2 місяці тому +3

      At least her medics did something! Mine just gas light saying its in my head

    • @drubber007
      @drubber007 Місяць тому

      💉

  • @b.comeau2597
    @b.comeau2597 2 місяці тому +49

    To be denied insurance for specific medical needs and treatment/trials is beyond appalling, unacceptable and can result in many cancer patients dying. So glad you and your parents persisted in fighting for the later treatments. Keep on living that beautiful life with your little child❤…you are one amazing young woman and so inspiring!

    • @Ceerads
      @Ceerads 2 місяці тому

      Thank you. It’s disgusting that health insurance companies have power over people’s health. They’re an industry that makes huge profits, raking in money and denying coverage of potentially-life-saving treatments. Outrageous.

    • @ThePatientStory
      @ThePatientStory  2 місяці тому +2

      yes she is!

    • @fitness_by_ariel
      @fitness_by_ariel 2 місяці тому +2

      Thank you so much!

    • @sandybowers5085
      @sandybowers5085 2 місяці тому +2

      @@fitness_by_ariel thanks so much for sharing your journey with us❣️I had never heard of this type of cancer before. Your outlook on life is so beautiful and inspiring❤
      I’m so sorry for what you have gone through, but amazed at the way you have turned it into something positive for you and your beautiful son. I really need to stop being afraid to ask for help when I need it. And be more grateful for the family I help and get help from. Sending you so much love and positivity❤️So glad I came across your story!!!

    • @amytucker6142
      @amytucker6142 2 місяці тому

      I did natural therapy and insurance paid 0. 5 years and $150000 later I have survived stage 4b tonsil cancer that was in lymph nodes and both lungs. God gave us cures if we look for them and have faith

  • @debbiepinks5531
    @debbiepinks5531 2 місяці тому +17

    You remind me so much of my daughter. You are very well spoken and you're so positive and strong. She has had skin cancer and breast cancer at the age of 47. Both cancers at the same time. She was a real trooper. I'm so proud of her.

  • @JA-fg7bi
    @JA-fg7bi 2 місяці тому +31

    You should have your own youtube channel. So many would love to hear more about the natural things you are doing now. You are an amazing storyteller and so real.

  • @karenann109
    @karenann109 2 місяці тому +28

    My big sister passed away from appendix cancer in 2016 . She was only 45 years old . They told her there was nothing to be done. I miss her every day. Good luck to you ❤❤❤

    • @artbysonyabadgley
      @artbysonyabadgley 2 місяці тому +5

      I'm so sorry for your great loss. My niece passed away from this, too. She was 45 as well and had a 10 year old daughter. I'm so heartbroken, especially for my great niece.

    • @ThePatientStory
      @ThePatientStory  2 місяці тому +2

      we are so sorry to hear of your sister's passing :(

    • @fitness_by_ariel
      @fitness_by_ariel 2 місяці тому +2

      So sorry to hear about your sister 🙏🏽

    • @hollymoore3621
      @hollymoore3621 2 місяці тому +3

      I lost my brother, age 52, to Stage 4 Appendix Cancer that metastasis. He had no options in his journey. I miss him. Loss is hard. I'm sorry for your loss

    • @juliebryant3968
      @juliebryant3968 Місяць тому

      ​@@hollymoore3621I thought everyone got offered chemo no matter the stage of cancer

  • @jessiedoggie1942
    @jessiedoggie1942 2 місяці тому +10

    What an intelligent woman and with a great attitude to boot. My wife had stage 3b colon cancer 11 years ago. The tumor was at the ileocecal valve and they did a "double barrel shotgun" resection of her ileum and cecum. She did FOLFOX chemo for 6 months but had to stop the oxaliplatin after 4 months due to increasing neuropathy in her extremities. There was no recurrence and the only issues have been a slight change in bowel habits and residual neuropathy in her feet.

  • @clairebeever3038
    @clairebeever3038 2 місяці тому +28

    So sorry to hear this it must be so scary being a single mum too … cancer is awful I have it too first at 31 was so fit and healthy had all the treatments triple negative breast cancer and got through it but sadly it’s returned 😢awful shock …. Your doing so well and amazing for sharing your story to help other people ❤ chemo is hard I hope it all goes well sending much ❤love

    • @ThePatientStory
      @ThePatientStory  2 місяці тому +1

      we are so sorry to hear that! sending you well wishes with your treatment plan

    • @fitness_by_ariel
      @fitness_by_ariel 2 місяці тому

      Thank you!

  • @laavalus696
    @laavalus696 2 місяці тому +16

    That was the best interview in terms of descriptions of how the cancer and chemotherapy actually work. Can't even imagine what you went through. Thank God for your family and their support. I pray for your recovery and long healthy life for both you and your son.

  • @doriasalmon4790
    @doriasalmon4790 2 місяці тому +11

    You are blessed to have your son, and to have your parents. You always have the option to adopt in the future as well. Wishing you all the best for continued health

  • @kayeszymanski6945
    @kayeszymanski6945 2 місяці тому +19

    Thank you Ariel for sharing your story!! Blessings to you and your family!! ❤

  • @brooks6348
    @brooks6348 2 місяці тому +25

    I’m so sorry you had to go through this. A friend has low grade mucinous appendix cancer. She has had HIPEC twice. I will certainly tell her about City of Hope. Best wishes for a cancer free life!

  • @denise6397
    @denise6397 Місяць тому +4

    I was just Diagnosed on August 2024 I have another biopsy on September 19th in 2 weeks praying for a miracle of low grade and or benign. Your video gives me so much hope and natural healing remedy is a huge boost I believe in and I am inspired by you! Thank you Please do more videos on the whole body healing ❤️‍🩹 God bless you !!!! 🌹

    • @boeing787thebest1
      @boeing787thebest1 Місяць тому

      Please keep us updated, praying for you!!!🙏🏻

  • @cinemaparadiso1991
    @cinemaparadiso1991 2 місяці тому +6

    I love when she talks about gratittude. That, to me, is essential, uplifting and wise.🎉❤

  • @ShakiraG9339
    @ShakiraG9339 2 місяці тому +3

    I was diagnosed with stage 4 colon cancer. Had surgery, and now on my third round of chemotherapy. Chemo comes with many side effects. But I would rather go through this grueling process for more years. Being told you have cancer is a difficult thing. There are physical and mental challenges. Nobody prepares you for what cancer can do and how much changes come about to your life. However, I am very grateful 🙏 to have all of the medical support. And to family and friends. I wish for you continuous healing and lots of love for you and your son.

  • @cj9667
    @cj9667 2 місяці тому +8

    Never heard of appendix cancer….until an emergency appendectomy pathology test came back! Like you mentioned, often misdiagnosed as other female issues. Thank you for sharing your story. The incidents are rising through awareness. Earlier detection is so important. Best wishes to you and your son.

  • @haposapi3776
    @haposapi3776 2 місяці тому +24

    God bless you, your story gives me hope. I am stage 4 gastric cancer patient and chemo is working well, have HIPEC and gastrectomy lined up later in the year. I hope it can work for me too god willing 🙏

  • @anglophils645
    @anglophils645 2 місяці тому +7

    Ariel, so glad to hear that you are NED (No Evidence of Disease). You have expressed yourself very well here in this video. The only mistake you made was to say that "if one cancer cell is left after surgery, it can take off and grow a new tumor." The truth is, we all have atypical cells circulating within our bodies, at all times. We count on our immune systems to catch and kill them. If you have a good de-bulking surgery, as you did, you probably do still have some atypical cells remaining, but reduced to a smaller amount that your immune system can handle for you. My brother is a radiation oncologist, and this is what he says.

  • @chrisfinan9427
    @chrisfinan9427 2 місяці тому +6

    Thank you for sharing your experience and wisdom. It’s a great gift for those willing to listen. Best of health and life in the future.

  • @alljets4
    @alljets4 7 днів тому +1

    wishing you a great outcome. You are a beautiful and engaged person with a child to take care of. I am wishing you the absolute best. !!!! Hang tough!!!

  • @Mia444
    @Mia444 2 місяці тому +2

    You described this all very well. I learned a lot, thank you. I totally agree with your assessment that chemo is like the worst hangover without the fun of the night before. It's just awful. I wish you many decades of healthy living.

  • @thomashugus5686
    @thomashugus5686 2 місяці тому +10

    You look great😊 the best of luck to you and your family. Stay strong!

  • @michellethaler1832
    @michellethaler1832 2 місяці тому +12

    Your son has you - he is so lucky!

  • @alisonl7250
    @alisonl7250 7 днів тому +1

    ARIEL, THAT WAS BEAUTIFUL! I found out I had appendix cancer two weeks ago after having surgery for a ruptured appendix. It is stage 2A so I am just in the research stage of determining how to handle it. Because this is a rare cancer there is not a lot of concrete data. Seems like cancer hospitals want to take out the big guns and shoot with surgery and or chemo. I do have an appointment with an oncologist, but any suggestions on exploring the less traditional route?

  • @terischy334
    @terischy334 2 місяці тому +6

    I appreciate your vulnerability and candidness as all individuals are on this forum. So grateful for your recovery and good health.
    Thankfully, the disease didn’t rob you of not having a child at all.
    I won’t disclose my situation at the moment. It’s not necessary but right off the bed I wonder what kind of health insurance do you have that would even allow you to interview different doctors as they all charge for a consult? And what exactly did your parents do to get you into a clinical trial? Stay healthy. Enjoy life.

    • @ThePatientStory
      @ThePatientStory  2 місяці тому +1

      you can find her on instagram @fitness_by_ariel

    • @fitness_by_ariel
      @fitness_by_ariel 2 місяці тому

      We had to pay out of pocket for additional consults outside of what was in network. I recommend the book insurance warrior if you are going through any sort of insurance battle for any reason!

    • @terischy334
      @terischy334 2 місяці тому

      @@fitness_by_ariel…. Thank you for taking the time to let me know this. I will absolutely do this and I’m heading over to Instagram to see what you!🧚

  • @KolibriB
    @KolibriB 2 місяці тому

    You are amazing! So articulate, thoughtful and intelligent. I am so impressed with how you persevered through all this pain and sickness and insurance woes! Wishing you all the very best!

  • @jello12345
    @jello12345 2 місяці тому +3

    Avastin doesn't do any of the things it claims to do. But I'm glad you're doing all the treatments necessary to save your life !! I wish you and your little boy well ❤

  • @jah0524
    @jah0524 2 місяці тому +3

    Of all the symptoms I had, none of them pointed to or even suggested a problem with my appendix. I went in for a CT scan for a different issue. In fact, I was going to cancel my appointment for the CT scan because I was feeling better. I expected a completely normal CT scan. I was surprised when the CT result came back with an appendiceal neoplasm. I went misdiagnosed for four years.

  • @ruthsebastian4760
    @ruthsebastian4760 2 місяці тому +4

    Praying for your complete healing and recovery 😘🤗🙏

  • @MarieRutledge-x8v
    @MarieRutledge-x8v 2 місяці тому +5

    Thank you for raining on our emotional and spiritual health they both hold energy I the body bad an good. Always remember holding onto bad feelings from a divorce, break up, death, job loss, abuse will only end up harming and in many times killing us in the end. Remember to forgive people and things that happen to you it's all for YOURSELF.

  • @آزیتاشادکام
    @آزیتاشادکام Місяць тому

    I'm happy u made a right decision, u still is a beautiful. strong woman and a mom, u being healthy again is a blessing my dear.
    Thanks for sharing your story with us, God bless. Be grateful u have your mom and dad to support u, I went through this
    road, without my parents and my siblings, since they live in a another country far-away from me, I hold on to faith...and my strength as a mom to be with my boys. Be happy and enjoy life❤

  • @BinkyTheElf1
    @BinkyTheElf1 2 місяці тому +21

    What about chronically ill people who also have chronic pain? It makes it difficult to distinguish a regular pain from a cancerous pain.

    • @tieiatalks
      @tieiatalks 2 місяці тому +5

      If you have more intense pain, new area of pain, anything that’s outside of your current pain, talk to your doctor.

    • @ThePatientStory
      @ThePatientStory  2 місяці тому +1

      always consult a doctor if something doesn't feel right

    • @fitness_by_ariel
      @fitness_by_ariel 2 місяці тому +1

      Cancer blood work will show if there is a likelihood of cancer versus chronic pain.

    • @louiseswell2044
      @louiseswell2044 2 місяці тому +2

      ​@@fitness_by_arielwhat blood work is there? I didn't think there was any blood test specifically to show cancer cells

  • @7passionstar
    @7passionstar 2 місяці тому +2

    Thank you for sharing your story. Wishing you the best of health! ❤

  • @moniqueleger-qn2wm
    @moniqueleger-qn2wm 2 місяці тому +7

    Thank you for your video and take care. Your son is cool.

    • @ThePatientStory
      @ThePatientStory  2 місяці тому

      thankful she was willing to share her story :)

  • @l.alexandra5871
    @l.alexandra5871 2 місяці тому

    You’re extremely intelligent, obviously. Thank you for your clear, cogent, and organized way of presenting your case. You’re truly an inspiration - despite the fact that I’m not too keen on Eastern medicine. (Each to her own. Good luck to you. The world needs an incredibly intelligent person willing to share.

  • @jimmywarren6685
    @jimmywarren6685 2 місяці тому +1

    Prayers for you, my friend!

  • @splash6427
    @splash6427 2 місяці тому +6

    🙏 ❤️ 🙏
    For You
    Always & Forever

  • @TheWhateverMan420
    @TheWhateverMan420 2 місяці тому +2

    I am so sorry life chose this for you. Its not fair. Praying for your health

  • @rachaelpreddey7837
    @rachaelpreddey7837 2 місяці тому +3

    You are an incredible lady

  • @barneyclancy4312
    @barneyclancy4312 2 місяці тому +9

    Hope u staying, that little one needs u , Tell God your staying.❤

  • @susanmagalas3074
    @susanmagalas3074 2 місяці тому +4

    TYou for sharing this. It just seems to unfair - but I am very impressed by your perspective of gratitude for the one child you do have. As a cancer survivor, I understand your giving /receiving dilemma but honestly people want to give and sometimes making you a blanket or socks etc is the only comfortable way for them to offer you sympathy and love without being a blubbering idiot and making it worse!! Be the receiver - the givers get a lot of pleasure too!

  • @TJbriante
    @TJbriante 2 місяці тому +5

    Wow! Your story is amazing! I had the same cancer in 2008. I never did IV chemo, I tried to get into Dr Sugerbaker without any luck but I did get into Dr Martin Goodman at Tuffs in Boston. He was absolutely amazing!! He performed the HIPEC in June and I ran a marathon in January!!
    Unfortunately, like you, I had bowel issues later down the road. I now have an ileostomy but I’m still here!!
    Keep the positive energy and good things will happen!

    • @ThePatientStory
      @ThePatientStory  2 місяці тому +1

      if you ever feel inclined to share your story head to our website :)

    • @fitness_by_ariel
      @fitness_by_ariel 2 місяці тому

      Amazing. Thank you for sharing. So inspiring!

  • @diannehortonpong1388
    @diannehortonpong1388 2 місяці тому +2

    Ariel-is your appendix cancer PMP (PseudomyoxiaPeritonial)? Many don't know that there are two types of appendeceal cancer; PMP and Neuroendocrine (NET). I am a 7-year survivor of NET of the appendix (diagnosed 3/24/17). As I listened to more of your video, I discovered that signet/ring cell is PMP. I am part of both a Facebook group for both PMP and NET. Appendeceal cancer is really quite rare. I pray for your continued recovery....

    • @nermeenkhattab2570
      @nermeenkhattab2570 15 днів тому

      iam so sorry for you 🥺🥺
      can you explain which stage of the cancer and what surgery approach provided to you?
      thank you alot

  • @DCLearningtoLive
    @DCLearningtoLive 2 місяці тому

    it's a shock when you think you are doing everything right, yet get a diagnosis of being stage 4. I was fit, lean and a strength coach. then I was stage 4 twice in 2 yrs. Good luck on your journey, I wish you all the best

  • @Sm-fi1dq
    @Sm-fi1dq 2 місяці тому

    Very positive and inspiring wish you luck 🍀 and congratulations

  • @worldview730
    @worldview730 Місяць тому

    One word : Wow x 100 🙏🙏

  • @Doesntmatter20
    @Doesntmatter20 2 місяці тому

    Cannot believe I am listening to a patient story and my small intestinale tumor (they suspect Neuro endocriene tumor) has grown from 1 cm to 1,6 cm and I have an appointment with the oncologist on the 12th of September 😅. It is an out of the body experience: I was a listener and now a patient I guess 😅? Really benefit a lot from these stories! So so brave; like no choice

  • @ivi122
    @ivi122 Місяць тому

    I’m glad you’re doing better. Instead of being mad at God for now allowing you to finish breastfeeding, thank Him for allowing you to still be here raising your son and the blessing to see him grow up.

  • @patlauenstein6824
    @patlauenstein6824 2 місяці тому

    Blessings to you.

  • @praguhbis
    @praguhbis Місяць тому +1

    Don't worry, you will have many kids to love and cherish when your son become a dad.

  • @dawnkidd1567
    @dawnkidd1567 2 місяці тому +3

    Ariel i thank you from the bottom of my heart to you for sharing your experience. I am praying for you and to remain healthy and for you and your son to have all the joy your hearts can hold. I have Lupus and some other health issues and since stress affects so many conditions i agree that it only makes sense that holding traumas/isdues/emotions in could cause health problems. Thanks again and God bless you

  • @Serenitynow958
    @Serenitynow958 2 місяці тому +3

    This sharp pain that went away was exactly like my 22 yr old niece had. The ultrasound tech found a 7cm tumour in her liver. She was misdiagnosed with a benign adenoma. It ended up being metastatic angiosarcoma . Tragically we lost her at 23 when it travelled to her lungs. She never received any treatment. Always PUSH for more answers . Is this the same type of cancer that Paul in Perth has?

    • @ThePatientStory
      @ThePatientStory  2 місяці тому +1

      we are so sorry to hear about your niece!

    • @fitness_by_ariel
      @fitness_by_ariel 2 місяці тому +1

      So sorry to hear of your niece

    • @diannehortonpong1388
      @diannehortonpong1388 2 місяці тому +1

      Yes, it is....

    • @Serenitynow958
      @Serenitynow958 2 місяці тому

      @@diannehortonpong1388 That’s interesting. Paul is wonderful! He just did a second HIPPEC.

  • @annagarza7299
    @annagarza7299 Місяць тому +1

    You are young and Fit but cancer can hit anyone at any age our 7 yr old son was diagnosed with cancer osteosarcoma we were rushed to a university hospital in California 🌴 I think we were both still in shock but we walked around the pediatric cancer floor and I completely lost it and I passed out luckily my husband caught me and they checked me to make sure that I was okay but truly I never recovered from watching a 7 yr old getting chemo 😞 all the kids on that floor were SUFFERING 😩😭💔 we hope all goes well for you ❤️ your son needs you 💙

    • @commonsense6967
      @commonsense6967 Місяць тому

      I'm sorry for your family. I hope all goes well for your son.

    • @annagarza7299
      @annagarza7299 Місяць тому

      @@commonsense6967 Thank you ❤️ Our son was 10 yrs old when he passed away in my arms at home 😭💔 We had to bounce back we had a 9 yr old daughter that needed us and she had lost her best friend 😭💔 The 3 of us will never recover from this if I could send you a picture I would and you would see what he was like

  • @Ceerads
    @Ceerads 2 місяці тому +2

    What a lovely video and young woman! You have given us a great deal to think about. Thank you and The Patient Story for this.
    Your clarity and narrative gift will help many.
    I especially like what you said about seeing your cancer as part of you, not as “the enemy” (I know you didn’t say exactly that). As a breast cancer survivor forty years older than you, I always dislike when people say, “Fk cancer.” I think that cancer is, unfortunately, part of our body - a horrible, destructive part, but a part nonetheless. It’s silly to say “Fk” a part of one’s body. Just do one’s best to excise that part. Cursing a tumor or malignant blood, etc., doesn’t mean anything (though I understand why people do so). Btw, I love the F-word but am not writing it out here out of consideration for those who’d be offended (and YT’s rules).
    I wish you good health from now on.

    • @ThePatientStory
      @ThePatientStory  2 місяці тому +1

      thank you for the wonderful comment :)

    • @fitness_by_ariel
      @fitness_by_ariel 2 місяці тому +1

      Agreed!

    • @Ceerads
      @Ceerads 2 місяці тому

      @@ThePatientStory You’re very welcome! 💙

    • @Ceerads
      @Ceerads 2 місяці тому

      @@ThePatientStory Thank you!

  • @jacksonjackson4787
    @jacksonjackson4787 2 місяці тому +1

    I have stage 4 appendix cancer. 😢 I was diagnosed 03/01/2024.. I would like to know how you are getting through this. Im sad😢

  • @ScottsdaleSushi
    @ScottsdaleSushi 2 місяці тому +1

    Why were you sent to Arizona from Ogden? Jon Huntsman Cancer Center is in SLC - I would think they could treat you there.

    • @ThePatientStory
      @ThePatientStory  2 місяці тому

      she chose to get several opinions :)

    • @fitness_by_ariel
      @fitness_by_ariel 2 місяці тому

      I was living in Flagstaff at the time. I had the first half of my treatment done in Arizona before moving to Ogden in order to be treated at the Huntsman Cancer Institute.

  • @joycetrenholme687
    @joycetrenholme687 2 місяці тому +1

    Was Pi-Pac(spelling) something you research prior or was that mentioned in your trials research?

    • @ThePatientStory
      @ThePatientStory  2 місяці тому

      she had a doctor bring it up and then went home to do more research :)

    • @fitness_by_ariel
      @fitness_by_ariel 2 місяці тому +1

      We researched clinical trials for appendix cancer patients

  • @imveryhungry112
    @imveryhungry112 2 місяці тому

    If someone as fit and young as her can get sick, i truly fear for myelf and others. 😢

  • @jimtiedje3868
    @jimtiedje3868 Місяць тому

    Did anyone suggest harvesting your eggs?

  • @ElanaMccullum
    @ElanaMccullum 2 місяці тому +3

    STEVE JOBS WENT NATURAL, AND DIED AND HE HAD ALL THE MONEY IN THE WORLD.

    • @ThePatientStory
      @ThePatientStory  2 місяці тому +4

      may he rest in peace!

    • @maodanz1672
      @maodanz1672 2 місяці тому

      Point chemo and drugs fail 92% of the time its just for profit you are a disposable Customer

  • @marijanavidovic3755
    @marijanavidovic3755 2 місяці тому +1

  • @michellemcneill5313
    @michellemcneill5313 2 місяці тому

    🙏❤

  • @isaiah5896
    @isaiah5896 Місяць тому

    Did you get the jabby?

  • @jodeeblue9663
    @jodeeblue9663 2 місяці тому

    🙏🙏🙏

  • @poll2dock
    @poll2dock 2 місяці тому

    Why didn’t they harvest your eggs before the surgery??

  • @ClareLeamore
    @ClareLeamore 2 місяці тому +1

    ❤🧡💛💚💙💜🤍

  • @DeboraVMiranda
    @DeboraVMiranda 2 місяці тому +2

    I can´t believe how you as such a young woman can´t see what´s going on with the medical system.

    • @ThePatientStory
      @ThePatientStory  2 місяці тому

      her family and her sought out several opinions :)

  • @johnjarvis2168
    @johnjarvis2168 Місяць тому

    You need cannabis oil treatment. I can help

  • @Nook747
    @Nook747 2 місяці тому +2

    C. Vaccines ?

    • @wintergirl8
      @wintergirl8 Місяць тому +2

      Stop

    • @ivi122
      @ivi122 Місяць тому

      Stop with the ridiculous conspiracy theories. Like there was no cancer before the vaccine. Let’s wish her the best instead of this bs

  • @lorraineamico42
    @lorraineamico42 2 місяці тому +1

    God bless you 😢😊😮@lorraineamicothemakeupartist