LIVING WITH LEWY BODY DEMENTIA | NEW* ANSWERING YOUR QUESTIONS

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  • Опубліковано 28 сер 2022
  • LIVING WITH LEWY BODY DEMENTIA | NEW* ANSWERING YOUR QUESTIONS. Thank you for your continued support as we travel this difficult journey. We truly appreciate it!
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КОМЕНТАРІ • 853

  • @betweenthepoles
    @betweenthepoles Рік тому +176

    Can’t believe there are always some jerks that have to be nasty. Insurance scam? It’s bad enough you have to go through this without dealing with that kind of stupidity. You two have such a great relationship and I hope Jason stays in the middle stage for a long time.

    • @ThePerilousTimes12
      @ThePerilousTimes12 Рік тому +10

      I agree, Mary. People who say such things show their ignorance about this disease. My husband has it too; long-term memory is the last to go. Also, it's not as if they forget everything. Robin Williams had it and began having difficulty remembering his mark and not remembering which line to say or when to say it. Yet, he was still filming. He did, however, stop doing improv. There were many symptoms that he experienced. If anyone wants to understand this disease more and is a fan of Robin, watch "Robin's Wish" on UA-cam. I applaud Leslie and Jason for being so raw and honest with us about their journey. She supports and cares for him immensely, and they encourage the community they are a part of. Well done to you both.

    • @sandraford-johnson8815
      @sandraford-johnson8815 Рік тому +8

      So sorry you have to address these ludicrous accusations. Love how you handled it beautifully.

    • @southernsass2937
      @southernsass2937 Рік тому +2

      Agree! I get to angry seeing so much stupidity & ignorance.
      Most of them haven't been through a damn thing in life.

  • @annanorth7997
    @annanorth7997 Рік тому +79

    My mom had LBD. She hallucinated little people that she called minikins. A lot of the time she was lucid and realized they were not real. Thankfully, we were all able to laugh about it. Laughter helps.

    • @deniseweber1339
      @deniseweber1339 Рік тому +6

      So common for the hallucinations to be children or smaller people. Mn y mom's hallucinations have gotten worse too.

    • @anniemac3075
      @anniemac3075 Рік тому +13

      My Mum did too, she & I called her hallucination people her Invisibles. She accepted & so did I that she could see them but I couldn't & it made it so much kinder & nicer for us both to be able to call them that.
      Nothing worse or more frightening than being told there's nothing there as it was 100% real to her.
      We used to laugh about them too & when she realised she'd said something that was a bit odd she'd burst out laughing & say 'that wasn't quite right was it?!' Very sweet.

    • @franklinstephen3268
      @franklinstephen3268 Рік тому +1

      @@deniseweber1339 Hello 👋 how are you doing? I’m sorry for your loss.

    • @annanorth7997
      @annanorth7997 Рік тому +2

      @@dnice3473 I am so very sorry you and your dad are going through this. My mom had family plus paid caregivers, but eventually had to be placed in a nursing home. It became more than we could handle. Please take care of yourself. Your children must be your priority even though I am sure you love your dad. He wouldn't want you to risk your mental and physical health while being a caregiver.

  • @imhis6384
    @imhis6384 Рік тому +85

    My dad had dementia (the long goodbye) and passed away at 72 during Covid. It was a nightmare that we couldn’t hold him during his last year. We were able to be with him in his last days, thank God. He did not believe there was anything wrong with him to the end. He never could see it like Jason does. He was a hard marine who lost his legs in Vietnam but dementia opened him up to emotions and feelings that Ive never seen before. He became so loving to me and I was able to hug him and love on him like never before. I miss u dad.

  • @sandyharrell1987
    @sandyharrell1987 Рік тому +57

    Y’all Have got to be the most loving couple I have ever seen in my life. Love both of your personalities. God bless you both!

  • @anniemac3075
    @anniemac3075 Рік тому +106

    Absolutely love it Jason, 'I defend your right to shop', you're a star!
    The film was Coming to America.
    Can't believe anyone would accuse you of insurance scamming, there are some sad people out there.
    I love seeing you together answering questions & just being yourselves with each other, you're both very special people.
    Thank you for the videos & helping so many in similar situations to yours.
    Big hugs from Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 UK. X

  • @robbiefromabq2400
    @robbiefromabq2400 Рік тому +47

    People and their comments can be soo mean. Lost my hubby to lewy body eight years ago at age 57. I miss him dearly. ❣️🌺

    • @raylenegilmore4832
      @raylenegilmore4832 Рік тому +5

      I'm so sorry you went through that people really can be mean and rude. I wish you the best 🤗❤️

    • @tracywaring3769
      @tracywaring3769 Рік тому +4

      I'm truly sorry that this is something you went through too ,god bless xx

    • @michele21auntiem
      @michele21auntiem Рік тому +5

      I am so sorry.

    • @ACharmingAbode
      @ACharmingAbode  Рік тому +4

      I"m so sorry for your loss. 💗

    • @proverbstammy
      @proverbstammy Рік тому +1

      Leslie, I watch you, and cry though your very inspiring videos, and think about how sweet, and kind you are in caring from your sweet husband. Inspiring to be more like you! In caring for my husband. But I get so tired, and angry, a lot.

  • @yvonnekneeshaw2784
    @yvonnekneeshaw2784 Рік тому +16

    I can relate to the question about the person who has dementia and NOT accepting truth about having disease. Both my parents denied, denied, denied for several years. Dad had vascular dementia and now with Lord. Mom with Alzhiemers put SO much energy into battling me as her daughter. Example: I made an appointment with homecare who was to access mom. Mom called my brother and asked him to take her out for coffee. But because I suspected this might happen, I caught them red handed ready to leave so as to avoid appointment. The homecare accessor arrived just in time and was witness to this. I went through very difficult years. Now mom is in PCH with full dementia and full care. Now there r no more battles and I can now finally be a daughter and not the bad person. It’s especially tough when relatives r in denial too. I was called to my face “the worst daughter ever”. I had to forgive that person (she didn’t ask for it) and set up healthy boundaries. Prayers for anyone going through this. 🇨🇦 SO appreciate this vlog for it is truly helpful.

  • @camilleswiontek5708
    @camilleswiontek5708 Рік тому +22

    My thoughts and prayers still with you both. My husband of 54 years passed last year and had LBD and I was his caregiver for 10 years. You are helping so many people going through this same situation. God Bless you both. 🦋💕

  • @lindathompson9334
    @lindathompson9334 Рік тому +35

    I'm so glad you mentioned the difference between Lewy Body and Alzheimers. I didn't know that the plaques on the brain meant more than regular dementia. That was what my husband had and doctor's never explained the difference. We were high school sweethearts, too, by the way...56 years together.

  • @donnamyers839
    @donnamyers839 Рік тому +26

    I love that Jason has his sense of humor. He is such a nice guy.

  • @judibaltzer2340
    @judibaltzer2340 Рік тому +51

    I’m sorry to hear about the negative feedback you receive. You both have enough on your plate without the negativity of others. Take care both of you.

  • @mariacperez-fondon543
    @mariacperez-fondon543 Рік тому +13

    It's amazing how quickly Lesley reads Jason's movements, she knows what he needs before he does. What an incredible couple, great partnership. 👍 ❤

  • @tamiz147
    @tamiz147 Рік тому +32

    My step dad (80's) is in endstages of Lewybody. It's been a long 15 years slow decline. My mom is so tired. Hardest part is he gets up in the night and falls. My mom hired a person to sleep over 2 nights a week, just to get some sleep.
    It hard, because I live so far away. They are Jim and Linda. Please pray for them.

    • @brianna094
      @brianna094 Рік тому +2

      I'm so sorry. I care for a woman who has LBD. She's bed bound and in the late stages. It's incredibly difficult to watch the decline and I pray for peace for your family. God bless

    • @LinFromMinn
      @LinFromMinn Рік тому +1

      Your mom is living what I did last year, 2021. My husband died at only age 67. I turned 60. I never had bags under my eyes but they appeared in the months prior to his passing and I believe are here to stay. I'm not blaming my husband, of course, but lack of sleep just about me in the hospital. He would wander in the night when he could still stand. Then the falls became worse. We tried everything: baby monitor, alarm for getting out of bed, a hospital bed with high railings and an ability to raise it up high. But he managed to still wander. So I'm a Linda and my heart goes out to your Mom, Linda, as well as Jim, your Dad and all in your family. Will say a prayer to give everybody strength for whatever comes and whenever it happens. Blessings.

    • @tamiz147
      @tamiz147 Рік тому +2

      Update: my step-dad, Jim, went home to Jesus, just before Thanksgiving. There is grief and relief. My mom says she has been grieving his loss for years. 🙏
      We have nothing but love and respect for you and all the caregivers out there.

    • @LinFromMinn
      @LinFromMinn Рік тому +2

      @@tamiz147 My deepest condolences. I completely understand the mixed emotions straddling relief and grief. Let your mom know that it's okay to rest and not so too much. At least for a year. Some people say staying busy helps, but my own experience is that doing so only pushes grieving away. It IS unpleasant. But there is a reason it is called a process. For what your mom went through it will take time to heal. But avoiding it only makes it worse. Some days not a thing will make sense. And that's okay. There are some wonderful booklets available from the Stephen Ministry that helps take the grief process as it comes, every day in each season. I found them comforting. They are used works wide. They aren't religious in nature. It's that the founder is a retired pastor who lost his wife. He is a great resource for grief groups in his workshops. The booklets are free, I believe. Mine were given to me. Google Stephen Ministry grief. May you and your Mom learn to be very gentle with yourselves for at least a year. Once you can give yourself permission to do so, it takes off a lot of pressure to "get over it." I will say a prayer for you. Thank you for replying. I wish you peace. Losing a loved one at holiday time is tough. ❤

  • @christinehindmarch3943
    @christinehindmarch3943 Рік тому +66

    I absolutely adore and admire you two. I lost my mother in January this year. She had Lewy body dementia too. An absolute positive for us as a family was she knew us all and never forgot our names or who we were right to the end. Thinking of you all from sunny England x

    • @glennabarmore8566
      @glennabarmore8566 Рік тому +1

      How can I begin having someone evaluate me to see if I have left body dementia? So many symptoms Jason. Has shared I have and it began with several tbis

    • @ACharmingAbode
      @ACharmingAbode  Рік тому +2

      @@glennabarmore8566 schedule an appointment with your primary doctor to discuss your concerns. A neurologist who specializes in dementia is your best course of action. Hoping all turns out well for you!

    • @julianadamico4702
      @julianadamico4702 Рік тому

      Christine------ I thought they said it rains in England a lot

    • @ACharmingAbode
      @ACharmingAbode  Рік тому

      @@julianadamico4702 they are having a very hot dry summer this year! ☀️

    • @christinehindmarch3943
      @christinehindmarch3943 Рік тому

      @@ACharmingAbode that’s correct but it’s not the norm. We are making the most of it this year x

  • @mariearmstrong9185
    @mariearmstrong9185 Рік тому +33

    I don't think you two totally realize how much help you are to us. Thank you so much for sharing your journey.

  • @christined2495
    @christined2495 Рік тому +26

    What an amazing couple you are. Jason is so positive and quick witted considering all he has on his plate.
    Jason God Bless you, Leslie you are an amazing woman, and a wonderful, supportive wife. Prayers for you both🙏

  • @lorenemann2020
    @lorenemann2020 Рік тому +18

    Thank you both so much for sharing your journey with all of us. I lost my father with Lewy Body Dementia & now I'm mom's caregiver. She has Alzheimers. I'm just thankful I have my health & can do it as she was the best mom ever. As you know some days are harder than others. Sending prayers & Big hugs your way.

  • @themoralmama3883
    @themoralmama3883 Рік тому +76

    I LOVE this content! Leslie and Jason, you two are such a light for so many. Thank you so much for sharing this content. You are blessing❤

  • @judyabernathy80
    @judyabernathy80 Рік тому +80

    That was so enlightening. I’m constantly amazed at how grounded and forthcoming with detailed information about Jason’s situation. I can tell what a wonderful, highly intelligent, man he is. And, I’ll bet he was the life of the party. He so readily accepts his fate. Amazing. I’m so glad you are his wife, Leslie. You two are perfect together! Blessings always!!♥️🙏🏼♥️

    • @Threadsandjars
      @Threadsandjars Рік тому

      Hi Judy, long time no hear LOL. I can't help but wonder, does Jason so readily accepts his fate? He's educated, which helps with the whole thought process. This has been going on for years. In my heart I think there are days when he just wants to scream his heart out. It's not easy, and it never gets better. It is what it is. I hope you have been doing well. Be healthy, stay safe and many blessings, Morgan

    • @judyabernathy80
      @judyabernathy80 Рік тому +1

      @@Threadsandjars - Hi Morgan! So nice to hear from you again. As someone with a Brain issue yourself, I often wondered how you were doing. If ever there was an example of undying faith, it is with Jason and Leslie. They are so grounded in their faith, which I feel allows them to more readily accept his situation. I’m sure at first Jason must have felt so many things. Frustration, sadness, anger, to name a few. But, somehow I feel that Jason has reached a place in his life that he is ok with what is happening to him. And, Leslie is his rock!! I’m sure they discuss everything, especially as changes occur. Morgan, I’ve seen this kind of faith before, and it’s real. God gives us peace when we trust Him. And, Jason trusts Him. I love seeing his goofey humor and watching him make Leslie laugh. I think, too, that people of different beliefs do not understand Jason’s contentment. But, truly it is coming from the God he trusts. I hope you are well, and still doing all those wonderful things you do. ♥️🙏🏼♥️

  • @margotsteane8502
    @margotsteane8502 Рік тому +42

    You both have such a positive attitude - it’s inspiring. I love your videos, and particularly your updates on Jason. My husband has dementia and does not think there is anything wrong with him. Although you are on a difficult journey, it must be so helpful that you are able to talk about Jason’s symptoms with him, and what’s going on. He obviously is a very intelligent man who has impressive communication skills, despite having lewy body disease. My husband is a very social guy so uses humour as a defensive mechanism. So I certainly understand “show time” where he is able to be ‘Mr. Personality’ for a short time. Neurological diseases are so insidious and each person’s path is so different. Thank you for sharing.

  • @leanneadams2804
    @leanneadams2804 Рік тому +34

    Jason, has a great soul. Your belief in God and his love for us is comforting. My Mom had Alzheimer’s it was so hard on her and all of his. She died at 89. Mom would always reach out to hold our hands, I felt she had a inner need to reach out and connect. Leslie you and Jason are in my prayers. 🙏

  • @julybailey4239
    @julybailey4239 Рік тому +12

    From one nurse to another nurse Leslie I can relate. My husband is diagnosed with Alzheimer's a couple years ago and he has been spending out of control. We have declined Cholesterol medication also especially statin drugs because we saw those medications making the disease worse. My husband is definitely a homebody as well. He goes to work (owns his own business) so really I think he goes to his office and watching tv or does payroll etc. I definitely think the same routine is helpful for him. He really doesn't like being around people other than myself. My husband is still driving. Some things I can't stop him from doing no matter how hard I try. He will get angry and it's always about avoiding the anger these days...

  • @kiwi4707
    @kiwi4707 Рік тому +61

    Leslie, you are a very strong person also. It has to be the hardest thing to watch a person you love to go through this disease. It’s apparent that Jason was a very vital person before this happened. He still has his faculties, humor and smart as hell… Praying for you both and hope God has a plan for your future that is without pain. 🙏💖🥰💕😘

    • @wilmarhinehart8111
      @wilmarhinehart8111 Рік тому

      Hell is not smart! Please change your word usage!

    • @kiwi4707
      @kiwi4707 Рік тому +6

      @@wilmarhinehart8111 tomatoes, tomatos, you’re nit picking… it’s about how awesome Jason is!

    • @kiwi4707
      @kiwi4707 Рік тому +2

      @@wilmarhinehart8111 Leslie didn’t have an issue with my wordage!

    • @debbielockhart7762
      @debbielockhart7762 Рік тому

      @@wilmarhinehart8111 You need to learn what is important to pipe up about and what isn't. Your comment was not required or appreciated.

  • @mimzyriepensell1423
    @mimzyriepensell1423 Рік тому +32

    I want to thank you both for sharing such a personal experience with so many.....my sister in law has Lewy Body as well as Down Syndrome....she was also on aricept...but we discontinued it as she is further along in her journey....but watching Jason has helped me to understand what she is going through and I understand what I see in her because of you both. Jason, you are absolutely one special man....your humor and ability to see how your journey could help others is so remarkable. Thank you both

  • @maxwell2149
    @maxwell2149 Рік тому +39

    This morning my husband & I watched the new video. We paused it along the way discussing the similarities and differences he’s experiencing. Lately he’s been questioning the diagnosis and saying but I’m not sick. You and Jason are a big help in understanding what is happening and that we are not alone. You two are so kind hearted for sharing your story. You are two angels and I hope it gives you some comfort knowing you are helping so many people. I want my family to watch the video. Hopefully it will clear up some things for them about our journey. Thank you and we keep you and Jason in our prayers.

    • @ACharmingAbode
      @ACharmingAbode  Рік тому +10

      I’m so glad you two watched together ❤️ Anything we can do to help others, is a goal for us! Sending hugs and prayers 🙏🏼

    • @lyndablood3380
      @lyndablood3380 Рік тому

      ​@@ACharmingAbode

  • @MyHome7_Carla
    @MyHome7_Carla Рік тому +8

    My grandma had lewy body dementia and and Parkinson. I was honored to be able to be there for her through all stages. It was very difficult me to watch. A lady I was sitting with passed away yesterday from dementia. My heart is broken! I feel for you both! You have my prayers!

    • @daisyy99
      @daisyy99 Рік тому +1

      My sympathy to the loss of your friend. It is so difficult to deal with grief because it comes in waves. And unexpectedly at times.

  • @kathyesargent9088
    @kathyesargent9088 Рік тому +12

    Laughter is the best medicine for sure and you both have it❤️❤️❤️❤️❤️❤️❤️❤️🥰❤️❤️❤️

  • @sammyrichardson7305
    @sammyrichardson7305 Рік тому +21

    Thank you so much for answering my question. After hearing that one of your followers showed your video to her husband I feel I am now at that stage. Unfortunately,I don’t think he will be as understand or believing as Jason but I have to start somewhere.
    I Hope I can be as caring and loving towards my husband as you are with Jason. I hope my husband can be as strong as Jason
    Thank you both and God Bless. .

  • @myramiller4365
    @myramiller4365 Рік тому +54

    I totally understand because my Mother had Alzheimer’s, but her’s was different in that all her stages lasted a very long time. People need to read up before asking ridiculous statements. The part about an insurance scan is the most idiotic thing I have heard yet. Prayers for both of you, and prayers for total healing in Jesus name.

    • @teeser2436
      @teeser2436 Рік тому

      My mother was the same.

    • @roselloyd19
      @roselloyd19 Рік тому

      In Jesus name Amen!🙏🏼🙏🏼❤️❤️

  • @jenniethompson7342
    @jenniethompson7342 Рік тому +22

    What an amazing thing you guys are doing here. So many people that are going through this or will in the future and can tap into your videos so they have some knowledge and not feel alone. Thank you so much 💕

  • @feliciacardone8900
    @feliciacardone8900 Рік тому +14

    Thank you Leslie and Jason for sharing your true journey. So nice to hear "no fear, we are both born again Christians". For those who don't know- dementia is the symptom, Alzheimer's is the disease. No matter how one puts it, they are all horrible and sad for them and for the Caregiver. Leslie, stay strong and healthy. We will continue praying for both. You are both dear to us.

    • @teijaflink2226
      @teijaflink2226 Рік тому +4

      Yeah and dementia is a symptom of many different brain and genetic disorders, some even affecting little children, so dementia isn't either something that happens just because someone is getting old (Jason isn't old either) even if majority disorders with dementia affect older people but anyone at any age can get dementia, as it's just a symptom of a brain that is degenerating (or losing it's information/abilities).

  • @lisamarieharmon8585
    @lisamarieharmon8585 Рік тому +22

    I have no idea how I came across this vlog about a year ago, but since then I've followed every single post about Lewy Body Dementia. I don't know why, because I have no exposure to this in my personal life. But I am just so enamored with the two of you. I love your personalities and I love observing the bravery and vulnerability with which you are moving through this tough journey. You are inspiring to many people, I'm sure and I just want to say, great job. You two are precious!

    • @ACharmingAbode
      @ACharmingAbode  Рік тому +4

      You are just too sweet! Thank you so much 😊 we truly appreciate it! 💖

  • @terriedenna7751
    @terriedenna7751 Рік тому +12

    Leslie and Jason, you two are the sweetest couple. You can see your true love for one another. I have been a viewer/subscriber from the very beginning.
    I have worked in a LTC home for 35 years and have cared for many Residents with Dementia/Alzheimer/LBD diagnosis. Although each one of them they may have the same diagnosis, you have to care for them in their own ways. Not two people are at the same level of care, so therefore you treat them as the person they are. I'm glad that you have started the process of getting future assistance. Paperwork is ridiculous & time consuming.
    I look forward to seeing more of your Q and A videos. Jason I hope you had a great nap. Take care of yourselves and God Bless

  • @cecwintonyk8228
    @cecwintonyk8228 Рік тому +16

    Thanks for sharing. The love shines through as always. I know you are making a difference for others going through what you are. I wish I had seen these videos when my Mother-in-Law had dementia. The question about a food that Jason grew tired of brought back a memory of my Father-in-Law. He was a Quartermaster in WWII and a really large shipment of canned corned beef could not be sent overseas for some reason so it was fed to him and his colleagues here. Needless to say we were never able to convince him to eat corned beef again and he lived to age 86 despite having Parkinson's, which has some similar symptoms to Lewy Body.

  • @kathyesargent9088
    @kathyesargent9088 Рік тому +4

    I love him what a great example for all of us sick or not❤️❤️❤️❤️❤️❤️

  • @LipstickNsofrito
    @LipstickNsofrito Рік тому +11

    Thanks for sharing this with us...this was Very Heart felt...I cried a little since this reminded me of my Mom who passed away from Alzheimer's a year ago..I wish I knew about this other type of Dementia....
    This was very informative as well....God Bless you both and keep you in His Tender Care....🥰🙏

  • @idaday8915
    @idaday8915 Рік тому +13

    Such a lovely couple. So much love and care for each other. It’s gorgeous to see 💕

  • @katiedoll1
    @katiedoll1 Рік тому +10

    The unloading the dishwasher is still relatable to wives everywhere. We’ve lived in this house for like 7 years. Never changed the kitchen around. My husband still puts stuff away in the wrong spot.
    Like, do you see any other coffee cups in the vicinity? 😂

    • @pattycarosi9618
      @pattycarosi9618 Рік тому

      😂I totally agree. My children would do this. Now my husband does just to see me say that doesn't go in that cabinet!! He says it keeps me on my toes!

  • @ginaangelina8690
    @ginaangelina8690 Рік тому +6

    Attitude can make a world of difference. You two have the right attitude in my opinion. I too am born again and I would not have gotten through the last 6 years as successfully as I have if it weren’t for my faith. Prayers for both of you. ❤️❤️

  • @teijaflink2226
    @teijaflink2226 Рік тому +9

    I admire you so much Jason , your humor, your love for your family and how you explain things even if you must be struggling so much, I can't even imagine how it is living with dementia.

  • @maxsidkatt2787
    @maxsidkatt2787 Рік тому +2

    Leslie and Jason. I adore the both of you. You have faced this terminal disease with grace and love. I pray that you are surrounded by angels, and comforted by the Heavenly Father in your life. Jason do you realize how much Leslie does for you. Perhaps she has always been a giving, nuturing woman. What I mean is do you get angry or frustrated at Leslie as she is with you 24/ 7.
    💙💚💛💜💙💜💙
    I see so much love between you. You have been blessed in meeting each other. God knew that Leslie, with your beautiful aura and lovely laugh, would love, comfort and care for Jason all the days of his life. Leslie I am sure that life with Jason has always been wonderful and surprising. Love to you both. Stay strong, keep your faith strong and know that, God has a plan. You were meant to be part of each others life story. Thank God ❤❤💕💕💕

  • @in2phalanges
    @in2phalanges Рік тому +5

    Love your candid & gut real honesty. When my husband was diagnosed - his fear was overwhelming that he was not ‘saved’ - anxiety level went to all time high.
    Praying together & singing together helps.

  • @maryannchaisson6742
    @maryannchaisson6742 Рік тому +4

    Just want to send my love & support to you both. Thank you for sharing this journey with us. I was a caregiver for my beloved husband for over 20 years. ( I am now 82); Wayne died 2018 but there’s no regret, he always had a warm & loving personality, & so I see you both through this lens. Hugs & prayers, sincere best wishes from Canada, 🤗🙏💕💐🇨🇦

  • @janettewright5567
    @janettewright5567 Рік тому +4

    You two are just the sweetest couple. The love between the two of you is obvious and you both have such positive attitudes. Leslie, you are amazing and strong. Jason has an amazing sense of humor and he is so quick witted!! I love how he perks up when he talks about ya'lls grandchildren. Again, you and Jason are amazing and doing a great job with the videos.

  • @marsha8622
    @marsha8622 Рік тому +10

    Thank you for the videos on Jason's journey with Lewy Body Dementia. Jason is an amazing man and his attitude and acceptance of his disease and the fate of it is so inspiring. I am 70 years old, with fibromyalgia, a weird form of Hashimotos , allergies and asthma. Its hard some days knowing we have reached the winter of our lives. Jason inspires me to stay focused in today and live and enjoy life while we can.
    Leslie you are amazing. As a former caregiver for my father I know the anxiety and stress you deal with. I see the happy smiley woman but I know there are times it is a nervous response. You keep going g because of the love you have for Jason. I applaud you.
    As to the naysayers- I am appalled that they accused you both. You know your truth and don't need to explain anything.
    Continue the videos. Always in my prayers.
    Thank you from this KS grandma( living in Co now).

  • @melaniebrown4737
    @melaniebrown4737 Рік тому +1

    He’s still so quick witted and funny! I love his “look kids there’s Big Ben and Parliament” comment! That’s the best 😂

  • @Sedgies
    @Sedgies Рік тому +4

    I love that Jason can talk about his illness. My husband had LBD and he couldn’t talk about it. It was too hard. I was on a Facebook support group page as well and it was so so helpful. No drama and everyone helped each other with everything from day to day issues to just loving each other. I’m so glad you are doing that too Leslie.

  • @susanweiss938
    @susanweiss938 Рік тому +5

    I love your humor; "I support your need to shop" was hysterical. Love and prayers to both of you.

  • @sunshinegal4294
    @sunshinegal4294 Рік тому +5

    You two are just a delight and a beautiful couple together. I absolutely love Jason’s sense of humor. He is funny! Such as his comment about you being Irish and he loves Irish Spring. 😂 You both are truly taking all of this with such great stride even though I know it’s much worse day in and day out. But humor lightens any load. Way to go Jason. Love you both and you are in my thoughts and prayers.

  • @rebeccajones9735
    @rebeccajones9735 Рік тому +5

    I have so much love and respect for you both. Wish I could give both of you a big hug! I understand what you mean about not being afraid because you know you are going to Heaven. God is a constant comfort to his children. Bless you both!

  • @candimclane6739
    @candimclane6739 Рік тому +15

    Awesome for a baking series! I just love you guys so much! ❤️. Bless you both,and your family.Hugs from Blue Springs 💙 🙏Amen to chlorestrol meds! They make me hurt worse than my arthritis!

  • @kathyclarke5899
    @kathyclarke5899 Рік тому +8

    God is blessing you guys through this!! And He's blessing others through you and your journey. Hang in there. Many many prayers.

  • @TraditionsByTheSeasons
    @TraditionsByTheSeasons Рік тому +4

    You two are amazing - your love, your faith, your honesty, your candidness, your willingness to share the good, bad, and in between - it’s refreshing! Your story will help so many people in similar situations. May God bless you both. 🙏🏻🧡

  • @dawndexter9779
    @dawndexter9779 Рік тому +4

    Such a special couple. God bless them and their family.

  • @vickigraves2947
    @vickigraves2947 Рік тому +1

    “Coming to America “ The love of the Lord is definitely covering you both. God bless you both and your families.

  • @kathyropa6174
    @kathyropa6174 Рік тому +6

    You guys are so young at heart and fun loving. What a wonderful example you are to everyone not only those with this terrible disease. I will keep you in my prayers.

  • @traceyraybould7863
    @traceyraybould7863 Рік тому +2

    I just wanted to say I have so much respect for you both. Much love from England xx🇬🇧💖💕

  • @SCsweettea
    @SCsweettea Рік тому +13

    Jason you are a super star! Leslie so glad you are working on the veterans caregiver status. I hope it gives you options moving forward. I also hope it’s years and years away for this to progress into end stages. Jason is such a delight I want his grandchildren to get to know him. Hugs and love. Judy

  • @aksez2u
    @aksez2u Рік тому +15

    One of your biggest blessings is Jason's acceptance and insight into his disease. My mother has very late onset schizophrenia, and ZERO insight. She has the most awful paranoid delusions and says the craziest things, and thinks it's all true. She gets very angry if you even try to comfort her by denying anything she says. In some cases, you just have to make the person feel heard and give them sympathy and that's all you can do.

    • @debboyea9567
      @debboyea9567 Рік тому +1

      I'm so sorry you are going through that. My thoughts and prayers are with you.❤

    • @aksez2u
      @aksez2u Рік тому +1

      @@debboyea9567 Thank you for your kindness 🙂

    • @maryatteberry8796
      @maryatteberry8796 Рік тому

      This is so profoundly sad..I am so sorry you have to go thru this..hold onto and cherish you goid memories.

    • @aksez2u
      @aksez2u Рік тому

      @@maryatteberry8796 Thank you ❤

    • @aksez2u
      @aksez2u Рік тому

      @Di's Planet Thank you. She is under the care of several doctors, but I'll ask.

  • @pamettmayer2391
    @pamettmayer2391 Рік тому +1

    Enjoy your grandkids as you are. You are one happy person. I’m proud of you.

  • @daisyy99
    @daisyy99 Рік тому +10

    Love seeing the two of you together. Your faith, positive attitude, and mostly taking things in stride. His understanding of what he is going through is a blessing at this stage. His sense of humor is a gift.

  • @annecurtin336
    @annecurtin336 Рік тому +10

    I have been watching your videos for a while now, & am always grateful to see how you are both doing. And I am so glad you have such a strong faith because that can only help!

  • @cazgalbraith8110
    @cazgalbraith8110 Рік тому +6

    You are both delightful and so genuine. Thank you for your willingness to put yourselves out there to help so many others.
    Jason, thank you for your service, and now thank you for your courage in standing up to this disease and showing it that your great character will keep fighting as long as it can. Im sure your friends and family are incredibly proud. And Leslie, your strength of character shines strong despite the heartache. You are a superstar. You deserve so much peace and comfort. Take time for yourself whenever you can.
    Thank you both. ❤️

  • @shirleyvanwieren
    @shirleyvanwieren Рік тому +8

    Thank you for sharing your updates and love that you talked about the different kinds of dementias. Each one is so different and knowledge is key to helping understand our loved ones behavior. So many people assume it’s always memory and that’s not the case. My husband has BvFTD and it’s classic in most cases that they will never believe there is anything wrong with them. His brain is not capable of accepting that he’s different than he used to be. Leslie, the money issues are the hardest for me too. I hate being in charge of everything. You are doing a great job. Prayers always for both of you as you walk this path. Thank you both for sharing.

  • @lindawitherspoon446
    @lindawitherspoon446 Рік тому +5

    Jason is a hoot. He had me laughing with his “howdy” hahahahaha.

  • @palmbergdj
    @palmbergdj Рік тому +2

    I love watching your videos. You each have darling personalities and being a fellow follower of Jesus, it gives me such joy to see how you are living this difficult life with such faith and strength… as well as wonderful humor. I’m praying for you.

  • @cherylmclemore66
    @cherylmclemore66 Рік тому +2

    Omg! Jason should’ve been a standup comedian…he’s so friggin funny! Thanks for sharing your life with us. Your love & concern for each other is so apparent. ❌⭕️

  • @psrwhite
    @psrwhite Рік тому +4

    I love you two. Your sense of humor, easy laugh, and positive outlook in how you are handling your challenges inspires me to do better in taking care of my own challenges in life. God bless you both!!

    • @dixieland.
      @dixieland. Рік тому

      That wasn't a movie it was a song.☺️

  • @sandieyule1644
    @sandieyule1644 Рік тому +1

    All I can say is I have come to love you both and will continue to pray for you both. You are both blessings from God. Love from PA !! Blessings

  • @junemcnamara9535
    @junemcnamara9535 Рік тому +1

    We all love his personality! He has this high iQ, then dementia takes over….not fair! So glad you both are helping others! Thank you !

  • @catlady7200
    @catlady7200 Рік тому +10

    I can hardly wait for the 2nd half of this video! You both always make me smile. I would love to hear about your dating years. What was Jason like? He has such a great sense of humor. Thank you for sharing your faith openly. God bless you both for that. Please keep posting these videos because they are so very uplifting! You are both such an inspiration to others!🙏☺

  • @JenJean1234
    @JenJean1234 Рік тому +4

    Awww...bless his heart, I could see Jason getting tired. Those questions are a lot to process and must be very emotional. You both are such wonderful people. God bless you!💞

  • @BarbyDailey-Rurallife40
    @BarbyDailey-Rurallife40 Рік тому +4

    I love you two so much! God knew what he was doing when he brought you together. Thank you for all of the information you give out on LBD, Alzheimers and dementia.

  • @bgirl46va81
    @bgirl46va81 Рік тому +3

    Your husband is so encouraging. Love his sense of humor

  • @patriciakinney8794
    @patriciakinney8794 Рік тому +1

    I am very pleased to see that you are covering your journey with LBD. It is very helpful to those of us who are experiencing the same issues. I am currently in the same place as you seem to be. Can no longer read, do not like leaving the house, the list is long and like you…..nothing you can do about it! Your show was mentioned on the LBDA website…again very pleased that you are giving LBD a voice. ❤

  • @ashleybergstrom8934
    @ashleybergstrom8934 Рік тому +4

    My heart is so touched, I have no words. So very helpful and so real. Thank you two.

  • @cdub1934
    @cdub1934 Рік тому +1

    I just love the two of you!!! So thankful in my heart to know you are believers❤️🙏🏻

  • @Living_Your_Best_For_Less
    @Living_Your_Best_For_Less Рік тому +1

    I know you both are dealing with more than we are aware. We are only getting a snippet. I think people think they are being encouraging or kind when they say “Jason looks like he’s doing so good.” I see how that can actually hurt or be irritating. I think you are truly helping so many people with your posts. Even in the darkness, there is light. You both are a light to so many. I love ya both and send hugs! Praying for you both!

  • @robinanderson3933
    @robinanderson3933 Рік тому +5

    Appreciate you sharing so much of your lives with us. Hugs and prayers!!!

  • @cynthiamedford2880
    @cynthiamedford2880 Рік тому +1

    I’m so much more than just impressed with you two! My Sweet Husband of 50 1/2 years also has this disease. We’re a little further down the road than you guys, but we’re also stinking old! My sweet man is 75. We’ve been walking this journey for 3 years now. And, Leslie, like you, I have to say that if I have to go through this, I’m so very thankful it’s with my guy! He’s a sweet soul! We also are Christian and I know without a doubt that we couldn’t get through each day without the mercy and Grace of God. You’re on my prayer list! It’s the only thing we can do, but it’s the most important thing we can do! Thank you for sharing this part of your life with us. I know it has to help those new to our situation. ❤️🙏🏻
    Isaiah 43:2

  • @charitizzle6028
    @charitizzle6028 Рік тому +11

    I appreciate you both for putting yourselves out there to help others. Bonus with Leslie's decorating, finding your daughter's channel and looking forward to those baking vids Jason! Much love to you both!💗🙏

  • @sarahwood3888
    @sarahwood3888 Рік тому +5

    Lots of prayers will continue to be sent, as you both deal with this disease! You are so positive and so dedicated to each other. Your wanting to help others in similar situations is so unselfish and should be applauded!! 👏🏼👏🏼👏🏼👏🏼👏🏼❤️🙏🏼❤️

  • @jo-annewilson3670
    @jo-annewilson3670 Рік тому +4

    I love how you both are so upbeat while you are going through this very difficult time in your lives. I am sure that you inspire and touch the lives of many people. Your faith is so evident, Lord bless you both and thank you for your videos.

  • @paulasmith3179
    @paulasmith3179 Рік тому +1

    Jasen is such a kind sincere man i wish the very best for both of you.

  • @pattycarosi9618
    @pattycarosi9618 Рік тому +4

    Hi Jason and Leslie Thank you for this up date on Jason. Love seeing you both! Jason I love your funny personality!! Prayer's for you both🙏🙏❤❤

  • @30dayride67
    @30dayride67 Рік тому +2

    I just want to say that I just love the two of you! Your love for each other brings me to tears as that's something that many people never get in this life. You set a wonderful example for the rest of us! Keep on getting on until all is made right after this life.

  • @lisaowings867
    @lisaowings867 Рік тому +2

    God bless you both!!! 🙏

  • @suzannetaylor9110
    @suzannetaylor9110 Рік тому

    Praying for you guys ❤️

  • @terrytipton3568
    @terrytipton3568 Рік тому +2

    Bless you both. Thank you for all the info and honesty.

  • @BarnQuiltsbyMountainVisions
    @BarnQuiltsbyMountainVisions Рік тому +2

    Praying for you and Jason and your family. You guys are amazing to share your journey with others who need encouragement.

  • @hollyerickson6364
    @hollyerickson6364 Рік тому +1

    You are an amazing couple. I have a friend whose husband is going through this disease. It is so helpful to know what others are going through - Thank you so much for sharing. Blessings and love to you both!

  • @kaygilligan4911
    @kaygilligan4911 Рік тому +2

    Thank you so much for sharing your journey, it’s such a help for those of us on similar paths. 💚

  • @JeanStAubin-nl9uo
    @JeanStAubin-nl9uo Рік тому

    Love, love Jason's sense of humor!

  • @MegaCj65
    @MegaCj65 Рік тому +3

    Love these videos! So many prayers going up for you and this journey!

  • @sharonsteelman6330
    @sharonsteelman6330 Рік тому

    My heart goes out to both of you. You are in my prayers. 🙏🙏

  • @maryyoung1737
    @maryyoung1737 Рік тому +2

    Loved the ending! Keeping it real! God bless you guys! So can relate to what your going through on every level.

  • @sananselmospacescienceodys7308

    Thank you for posting. I realize how difficult this must be to share such personal matters with such a large audience. But it's very helpful. So many people want to sweep these matters under the rug and pretend that they don't exist. These are issues we need to discuss and be aware of.

  • @susietincknellsmith653
    @susietincknellsmith653 Рік тому +5

    Both of you are amazing people. Your faith and strength and positivity are awe inspiring. Keeping you both in prayer.

  • @quil10it
    @quil10it Рік тому

    Thank you both….you’re so kind to share with us.

  • @dabailey1000
    @dabailey1000 Рік тому +2

    I just love and respect the two of you So dang much. You both are so brave for sharing your life with us. Bless you both and sending hugs. Jason, your sense of humor has me in stitches. ❤️