I've experienced going through with the treatment for moya moya disease 8 years ago and direct bypass works out for me. However, my neurosurgeon recommended not to ignore if numbness occurs or other symptoms of stroke as this disease can be progressive. My most recent MRI 2 years ago shows negative signs of moya moya disease and the bypass is still intact. I am glad that there is a treatment for this disease. God Bless these awesome doctors!
Thank you Dr. Wang. Great presentation. Very valuable information. My husband had an operation, an EDAS and since he hasn't have any more brain stroke thank God. But he decided to have the operation late after having more than 4 brain strokes within the period of 5- 10 years and those strokes affected his vision the way to express himself in his second language, memory lose, some flexibility on his motors skills on his right hand etc. :( we thank got he is still alive though and that we could convinced him to have the surgery :)
This has been most valuable! Thank you so much for taking the time to do this and put the information out there! We appreciate your expertise, recommendations and time!
Hi, my son was diagnosed with Moyamoya but after all tests they refuse to do surgery for him. Would we be able to get his file reviewed from your hospital? We are from Melbourne Australia and would like a team that actually understands the disease and is experienced to review his file. Thanks
Come to Houston Texas if you can, my brother got all kinds of tests done this week and they told us they have here one of the best surgeons and the best hospital to do the surgery in here in the medical center
@@eliftokgoz313 how old is your son if you don’t mind me asking? My brother just was diagnosed with this disease this week after suffering a stroke 5days ago and he’s only 28! So young 😔
Yes, it's so tragic........ My deaf son collapsed in Walmart at age 41, which was later diagnosed as Moya-Moya. He had operations on both sides, and recovered somewhat but still suffers tinnitus and vision aberations and who knows what else. Doctors he goes to have no idea about Moya-Moya and likely don't have the time to research it. It's truly tragic........
I'm also a 41yrs moyamoya patient, from Japan, who had surgery(STA-MCA anastomosis) on my right brain half a year ago. How is your son, hope he's getting better. I still suffer from tinnitus but have no problem with the ear and cerebral. I have trouble remembering things, understanding other people's talk, and doing multiple tasks. My Doctor said it might be the dysfunction of my higher brain. It's truely tragic to me...
@@maree5201 ......... Yes, so very tragic. I don't know the extent of my son William's problems, but I fear his mind could possibly not be functioning well either. He has trouble communicating with doctors, and, as with his current foot problem which shows no outward injury, but pains him greatly, we ask 'could it possibly be just in his head?' Just lately I've asked him to come up here to Oak Ridge, Tn. and visit a doctor here to learn more about his problems. Both the tinnitus and headaches constantly from light sources and loud noises bother him, and he must darken the room and stay inside during very bright days. I searched the internet and so little shows up for Moya-Moya disease, I fear it will be years before they really understand it. And there are so few cases of it, not that many doctors have even heard of it. If you have any questions for Willy you can email him at williamcoryn@gmail.com and ask him...... Peace........
On July 2013 I had a stroke we didn't know what it was about they said I had eight Strokes and 2019 they realize that I have the disease m o y c and I have done the surgery and I'm still recovering
@@debramcmahon586hello ,how have you been since the operation of you don’t mind me asking? I have a brother of mine that is going to undergo the surgery in the next month and was wondering what the months thereafter are like
Great Lecture, Dr wang. So lucky to see you on youtube. I still remember the day I followed you in the neurosurgery unit of UM Hospital. You were like being chief resident in 2013 at that time?
My daughter had a TIA one afternoon while driving; she managed to park and got her to a hospital. She kept having them at least two times a week for about six months, until the final diagnosis and subsequent bypass surgery by Dr Wang.
My brother just had this happen 5 days ago and was diagnosed with this disease, yes there’s chance of survival, it also helps that he wasn’t alone and my family was there to help
My daughter, had the surgery about two year ago and still has residual symptoms, particularly when stressed. She stated last night, that she feels the symptoms are more frequent now. Could it be, because she has stopped taking her daily dose of aspirin? Is there a holistic alternative to thin the blood out?
❤❤ i also have moya moya had and craniotomy bypass surgery to put a stent in however three months later the stent closed and I have been getting more frequent headaches. I’ve been looking for a second opinions good luck.!!
Doctor. Yo sufrí un derrame cerebral en el lado izquierdo y perdí el movimiento lado izquierdo y no tengo moyamoya puedo recoperar el movimiento y me puede ayudar
Who could give this a thumbs down? This is literally life changing information and he explains it in lamens terms so well.
i feel so lucky to be your patient
I've experienced going through with the treatment for moya moya disease 8 years ago and direct bypass works out for me. However, my neurosurgeon recommended not to ignore if numbness occurs or other symptoms of stroke as this disease can be progressive. My most recent MRI 2 years ago shows negative signs of moya moya disease and the bypass is still intact. I am glad that there is a treatment for this disease. God Bless these awesome doctors!
From which doctor or clinic you got your treatment?
I nw m also experienc with this disease
Is this recover disease
My doctor told me u take 1 yr for fully recovery
My son has the disease but on the perfusion mr there is no problem with the blood flow..doctor said we should wait and observe..should we wait?
Thank you Dr. Wang. Great presentation. Very valuable information. My husband had an operation, an EDAS and since he hasn't have any more brain stroke thank God. But he decided to have the operation late after having more than 4 brain strokes within the period of 5- 10 years and those strokes affected his vision the way to express himself in his second language, memory lose, some flexibility on his motors skills on his right hand etc. :( we thank got he is still alive though and that we could convinced him to have the surgery :)
This has been most valuable! Thank you so much for taking the time to do this and put the information out there!
We appreciate your expertise, recommendations and time!
Awesome presentation! Thank you, Dr. Wang.
Thank you Dr Wang for an elaborate explanation of moyamoya
Hi, my son was diagnosed with Moyamoya but after all tests they refuse to do surgery for him. Would we be able to get his file reviewed from your hospital? We are from Melbourne Australia and would like a team that actually understands the disease and is experienced to review his file. Thanks
What kinds of tests?my son will have an operation too
Come to Houston Texas if you can, my brother got all kinds of tests done this week and they told us they have here one of the best surgeons and the best hospital to do the surgery in here in the medical center
@@eliftokgoz313 how old is your son if you don’t mind me asking? My brother just was diagnosed with this disease this week after suffering a stroke 5days ago and he’s only 28! So young 😔
EXCELLENT PRESENTATION.
Yes, it's so tragic........ My deaf son collapsed in Walmart at age 41, which was later diagnosed as Moya-Moya. He had operations on both sides, and recovered somewhat but still suffers tinnitus and vision aberations and who knows what else. Doctors he goes to have no idea about Moya-Moya and likely don't have the time to research it. It's truly tragic........
I'm also a 41yrs moyamoya patient, from Japan, who had surgery(STA-MCA anastomosis) on my right brain half a year ago.
How is your son, hope he's getting better.
I still suffer from tinnitus but have no problem with the ear and cerebral.
I have trouble remembering things, understanding other people's talk, and doing multiple tasks. My Doctor said it might be the dysfunction of my higher brain.
It's truely tragic to me...
@@maree5201 ......... Yes, so very tragic. I don't know the extent of my son William's problems, but I fear his mind could possibly not be functioning well either. He has trouble communicating with doctors, and, as with his current foot problem which shows no outward injury, but pains him greatly, we ask 'could it possibly be just in his head?' Just lately I've asked him to come up here to Oak Ridge, Tn. and visit a doctor here to learn more about his problems. Both the tinnitus and headaches constantly from light sources and loud noises bother him, and he must darken the room and stay inside during very bright days.
I searched the internet and so little shows up for Moya-Moya disease, I fear it will be years before they really understand it. And there are so few cases of it, not that many doctors have even heard of it.
If you have any questions for Willy you can email him at williamcoryn@gmail.com and ask him......
Peace........
Thank you tremendously for sharing this video Dr. Wang!
Thank you
On July 2013 I had a stroke we didn't know what it was about they said I had eight Strokes and 2019 they realize that I have the disease m o y c and I have done the surgery and I'm still recovering
@@debramcmahon586hello ,how have you been since the operation of you don’t mind me asking? I have a brother of mine that is going to undergo the surgery in the next month and was wondering what the months thereafter are like
I was just diagnosed with moyamoya desease 🥺
Great Lecture, Dr wang. So lucky to see you on youtube. I still remember the day I followed you in the neurosurgery unit of UM Hospital. You were like being chief resident in 2013 at that time?
Dr. Wang is there any way I can contact you via email
Thank you this was informative.
Me & my brother both have it, I’m worried about my children! How can I reach out to you guys?
Do they have any medicine for Moya Moya disease? To avoid surgery
First! sofa! Nice presentation.
What are the positive outcomes of these type of surgeries?
I have Moyamoya and will go surgery Sept 20
What happens when you do have a stroke and you werent aware that you had this disease? Will be any chances of survival?
My daughter had a TIA one afternoon while driving; she managed to park and got her to a hospital. She kept having them at least two times a week for about six months, until the final diagnosis and subsequent bypass surgery by Dr Wang.
My brother just had this happen 5 days ago and was diagnosed with this disease, yes there’s chance of survival, it also helps that he wasn’t alone and my family was there to help
My son has the disease but on the perfusion mr there is no problem with the blood flow..doctor said we should wait and observe..should we wait?
I was told the same by three doctors and very concerned about it. Did you get an answer?
My daughter, had the surgery about two year ago and still has residual symptoms, particularly when stressed. She stated last night, that she feels the symptoms are more frequent now. Could it be, because she has stopped taking her daily dose of aspirin? Is there a holistic alternative to thin the blood out?
❤❤ i also have moya moya had and craniotomy bypass surgery to put a stent in however three months later the stent closed and I have been getting more frequent headaches. I’ve been looking for a second opinions good luck.!!
My daughter is doing better but as you know, it's a lifetime inheritance.
@@its.kaylakayy
How big of a surgical hole is it when the patient does surgery
Can nanobots cure the vessels of a patient
I was told that it is caused by radioactive contamination. Is this true?
Yes the chemical Agent Orange
Moye moye for those who have moya moya 😂😂
Doctor. Yo sufrí un derrame cerebral en el lado izquierdo y perdí el movimiento lado izquierdo y no tengo moyamoya puedo recoperar el movimiento y me puede ayudar