Getting the 'Idiopathic' out of Idiopathic Hypersomnia (and Narcolepsy type 2) - Rebecca King

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  • Опубліковано 4 жов 2024
  • Rebecca King presents Getting the 'Idiopathic' out of Idiopathic Hypersomnia (and Narcolepsy type 2): How our Community Funds Research.
    Rebecca King has been diagnosed with idiopathic hypersomnia/narcolepsy type 2. She is a member of the Hypersomnia Foundation Board of Directors and currently serves as the Board Secretary. Her main focus is advocating for hypersomnia research, access and affordability of medical care and prescription medications, and increasing the understanding of hypersomnias.
    If this video is helpful to you, please consider donating to HF. Your donation makes these resources possible! www.hypersomni...

КОМЕНТАРІ • 1

  • @cheeseblock89
    @cheeseblock89 2 місяці тому

    I was only technically diagnosed by having the N blood allele marker. On my MSLT (overnight and next daynap tests) one nap session j apparently did fall asleep for 8 minutes on ONE nap, it through off the whole sleep study! Ive never done a spinal tap (im chicken,) and to my understanding would be the definitive test if you have N or not. I still feel like maybe i have hypersommia, though my aunt dads sister) and grandma (my dad's mom) show(ed) major EDS symptoms though never diagnosed.