I have been suffering with TN since 2018. People don't understand unless they experience it. The pain is unbearable. When I'm in a flare I just want to be left alone. Anybody that suffers with this disease I'm praying for you.
I am speechless just crying watching my wife go thru the same pain and suffering that you are I am sorry for any one exp this Thank you for your message Thank you for being brave Your not alone Anyone who is suffering from this disease I pray🙏🙏🙏
I have TN and it just like spirit and physically crushing torture its been 4 yrs and its horrible my heart breaks for any and all with this monster living in our faces/heads
Have you looked into upper cervical care? It helped me immensely they take X-rays and see if the C1 atlas bone in your neck is out of position and interfering with the brain stem. Then they do gentle corrections to fix the problem.
@@wesporter2176 I have now been getting injections from c2 to c7. And the radio frequency ablation in my face at V2 and same thing on lesser and greater occipital nerves and 1200 milligrams of gabapentin daily..it helps but I still have attacks just not horrible attacks
Hi, I suffer from T.A.C. and you have the most beautiful smile.....Your smile is how I feel after an attack, after the beast is done with me....Godspeed
I was diagnosed with Trigeminal Neuralgia on my left side of my face. It’s an awful health condition with a burning , stabbing , throbbing , pain feeling.I hope and pray for everyone having this kind of disease that they find a cure for TN. For Kristin , I just want to let you know that you are not alone. Praying for you 🙏🙏🙏
40 years, approx. 1 or 2 stabbing pains, lasting a split second, maybe once or twice a year, just here and there, and very brief. Down the track, ongoing, unrelenting, vicious, maddening, frightening, stabbing pains like lightning in my right ear, for about 3-4 months. Meds prescribed but not taken. I had relief overnight once I slept. Only ever woken by it once or twice (once only recently, 5 years later). Slowly calmed down over next 4-5 years. Had two vicious pains in my right ear a couple of days back. Have ongoing mostly milder stabbing pains (now in both ears but predominantly my right). Over the past couple of years, I have been watching the Buddhist Society of Western Australia on UA-cam and I have learnt meditation with Ajahn Brahm. If you persist, it becomes the most marvellous thing to do. When I had my most recent pains, I tried to relax after the first pain and tried not to anticipate another (which is sort of impossible). I still got one more but I think it really helps to try and relax. And Ajahn Brahm has been of huge benefit to me. The other thing I do is Wim Hof breathing (which is painful in itself) but once you get going, that, also, is a learning experience every time and of huge benefit. And I have a cold shower every day. I've only missed a few in the past 3 years, it is that beneficial. I have suffered some excruciating pain in the cold shower in my skull and once or twice it set off my ear, but I seem to have gotten over that. I swear by it. Now, I'm taking different forms of medical marihuana and I also find this to be beneficial. I just hope I never end up in the state I was in a few years back. I don't know whether I could take it again. I'm not a fan of doctors and their drugs, in general, so it is lucky I live in a very remote area and visiting a doctor is almost impossible. Don't get me wrong. I might have to take their drugs at some stage, and I would not blame anyone for taking them. But I couldn't bear the side effects of their drugs, I don't think. Thanks for this video. Just as a matter of interest, I also had cancer (in remission) just over 10 years ago, and hemithyroidectomy (Graves disease) about 8 years ago. 💜 🦘🦘🦘🦘🦘
Thank you for sharing your story it’s good to know that I’m not the only one out there. I know your pain... I have trigeminal and occipital neuralgia for 10 years now. It’s amazing to see you do these marathons. I can’t seem to exercise over 10 min without flaring up. So I just do what I can. I do hope for one day there will be a cure for us all. 🙏
Those clinics.. doctors..etc..who offers services ..therapies to help TN patients...are they willing to expend 2 hours with you in the table giving you manual .muscular..cranial..skeletal manipulation therapy?....but there is one who does it..and the result is amazing
I have trigeminal neuralgia, four years now. Dentist and endodontist have pulled my teeth and several root canals because these dentist, etc., don’t know about this condition. They should do their research when they do X-rays and can’t find anything wrong with your teeth. The pain can be so unbearable, you are afraid to leave your home in fear of a flare up. Screaming in pillows, can’t sleep, brush your teeth in fear it may trigger it. With surgery, there’s that chance you may suffer from paralysis in your face. Botox injections in the nerve are only temporary This is the worst pain a person can experience. There aren’t many of us out there with this condition, so, those around you can never understand the severity of the pain ❤😢
My heart sinks at every TN story. I am so sorry you have to go through this. Wishing you easier times 💗 Mine has been with me for some 11 years. It's hard. Really hard. I hope people watch yours and similar TN stories to maybe understand a little bit what we experience.
Have you looked into upper cervical care? It helped me immensely they take X-rays and see if the C1 atlas bone in your neck is out of position and interfering with the brain stem. Then they do gentle corrections to fix the problem.
I suffered for 21 years with this excruciating pain. And as of March 2023 I had surgery with this wonderful dr in knowledge of TN . I am still healing but thank GOD my TN is not a problem today. And yes know one understands if they have never had this.
I feel so much for her. I have it too since I was a child but only got diagnosed when I was 32. It is a fire all inside , numbness that you cant speak correctly or at all, and ice picks pains randomly through face and ears. Medication helps but doesn't take it away. I hope she finds relief soon from this.
Hi there, i am also suffering from atypical trigeminal neuralgia. I get pressure type of feeling on my face as well when i talk and laugh in addition to burning and numbing sensations. Just wondering if this pressure thing is common with you also? On my MRI scan, there is just a normal contact between cerebral artery and trigeminal nerve and no distortion is happening. This makes me bit confused that my condition is actually trigeminal neuralgia. Just wanted to confirm if your symptoms are also somewhat similar?
You are such a wonderful person. Thank you for providing this information and encouragement. I have just started having shooting pain in my jaw, teeth, eye and ear. I think this is what is happening to me too.
I had this for 3 months, and I thank god everyday that it resolved by itself. I cannot imagine living years and years, or even a life time with this horror. I have deep empathy for anyone that has it. Keep strong.
@@ronaldkrikorian4712 I am still free of TN - but I'm uneasy just thinking about it and swear I still feel phantom pains just remembering it. I truly hope I never experience it again.
@@aquicktake That’s exactly what happened to me! I never believed God answers prayers until a year ago when I almost died and he had his hands on me and by a miracle I lived! There’s more to the story because a girl I didn’t know came up to be and told me the lord said to believe in him and he would get me through with what’s about to happen to you! I said I feel great and I don’t need prayer! The next night my doctor called and said I had masses in my abdomen and I would bleed out if I didn’t have surgery! I had the surgery but the doctor burned my pancreas and it started leaking badly! I went to UCSF where they saved my life! Prayers were coming from everywhere for me! Now I know Fod answers prayers because he answered mine!
I have never actually been diagnosed with TN, but I firmly believe this is what I have. I have period where I can have several days in a row of the shocking pain in one side of my head and then go months without any symptoms. In 2003 and 2011, I had two separate episodes and each last about 5 weeks. They started out as the normal shocks of debilitating pain and soon morphed into pain around the eye on the affected side (2003 was left side, 2011 was right side), and caused my eye to rotate outward and double vision, with constant, unbearable, aching pain in between the shock-like pain. They were the worst pain I've ever felt in my life. Doctors have tried to diagnose it as tooth-related, ocular migraines, etc. Right now, I am in a remission state, so I haven't had any flare ups in about a year or so, aside from a very short one a few months ago. It has been within this year that I've discovered TN, and it describes what I go through and the pain I feel perfectly. Bless your heart, love. I have had five children, and I would rather go through all 5 of those births back to back than to have TN. I have never gone this long without a flare up, so I'm scared that my next one will be one like the 2 episodes that debilitated me for weeks and all I could do was sleep because it hurt too much to stay awake. Sending hugs!
Hi Kristin, i know what youre going through sweetheart, i had TN for 3 years, i live in Australia, i had an operation in 1990 ,and have been good since thankfully, you are a very brave tough woman, i hope you can get this beast of a thing sorted, all the best Kristin.
I got TN at 27 and I’m 33 now I guess I haven’t had a good night sleep in 6 Years my family thinks I have migraines this is nothing to a headache they don’t understand..
I agree nobody understands what it's like to go through this pain. I watched my mother in law suffer for yrs with it. My sister n brother in law and my husband didn't think it was that bad. Until she had her second surgery 3 yrs ago. I'll never forget it. It was heart breaking seeing her in the hospital after her surgery. She is the only person who knows what I'm going through. Even though my husband watched his mom go through this he still doesn't get it or believe how bad it hurts. Right now I'm on my worst flare up. We have a 4 yr old son. Who I take care of 24/7 I try so hard to try and push through the pain. But nothing is working. These stupid Dr's aren't truly doing anything. The new Dr I have I guess is giving me the next 2 months to decide on the surgery. But he isn't even giving me anything for the pain. My one Dr had me on lyrica but he's not wanting me to take it. Instead he writes me a script of narco 5 mg which isn't anything they don't even do anything it's like taking a tylenol which doesn't touch the pain. So when I go back to see him either in 2 months or sooner if this pain doesn't ease up. I'm going to have the first surgery. I just pray 1 is All I need but I don't think it will be. I just want to crawl into a ball please pray for me. I don't have anyone to talk to about this
Have you looked into upper cervical care? It helped me immensely they take X-rays and see if the C1 atlas bone in your neck is out of position and interfering with the brain stem. Then they do gentle corrections to fix the problem.
@@caydnlofton1858 Did you try upper cervical chiropractic to adjust your C1 atlas neck bone? Look up James Tomasi he wrote a book about how it helped him "What Time Tuesday?"
I have oral cancer, last year I lost the left side of my jaw, and mouth. They thought they got it all, but last November I notices a small bump on the.left corner of my lips, yep it came back, plus it's in my tounge. The surgeon said that I was going to lose my tounge, and two hours away from leaving my home to get my tounge removed I was contacted by a research company and was advised that I was picked for a rather new treatment. I started the treatments and because they have to put me under and prop open My mouth I have several attacks for days after. I'm a retired police officer and was retired in 2010 due to injuries, so I've had my share of surgeries and pain due to those injuries, but I've never really complained about my pain, so far TN has knocked me to my knees several times and to be honest it has made me cry like a baby twice from the pain. I do have a question, I taste a sweet taste and my right side of my tounge feels strange prior to attacks, so I pretty much can tell when it's coming and if it's going to be a really bad one. Dose anyone else taste different before an attack? Also I get hyper Slava, I mean it pours out. Anyone similar?
I’ve had TN and GN since 2016 it used to be 24/7 debilitating pain it was caused by a brain tumor, the tumor got better but nerve damage remains I deal with this almost daily it’s the suicide disease it hurts so bad.
I have TN and a brain tumor I don't know exactly how long I have had it. But symptoms started getting really bad 8 years ago. I take all different types of medications but lately it has started getting worse. My doctor's say removal of tumor is risky and could cause damage most likely. Also I could not make it at all. An other option was radiation but they are worried about compromising my immune system. Since I have other complications. So I'm stuck with the pain and the tumor that is messing with so many sensory issues. And I lost my 2 job and now have to depend on others and I hate it. I don't know what's worse dealing with the pain or the anger. Trying to let others help is hard for me!
Oh sweetie i know how hard it is my heart really goes out to all the women my neurologist appointment is tomorrow its uncomfortable My prayers are for of us Here 🙏 Going tru the same similar or Different ,we all have so many Reasons to keep pushing its so hard when the quality of life you have is so limited and you just have to lay in a dark room with the lights off couse it hurts so Bad . So yes i have an autoimmune defiency and so that can be very delicate try to build your immunity and immune system im doing that now vitamin c Fresh Ginger ,fresh or powder form tumeric powdered or the stick cinnamon Honey 🍯 Fresh lemons for theirJuice 🍋. Cloves the little sticks or powdered for & they look like little stars Anise and you may want to put a touch of organic pepper or cayenne pepper not to much . This has manny health benefits antiflamatory antibacterial exc , what i do is i the all this items put the blender and put in an ice tray and boil water and get one cube make some tea 🍵 is delicious if you like and dont have some items work with what you got then you can make the tea first ad later the cinnamon stick cloves lemon juice anise after its done .ive been doing this for 3 months To build my immune system and takeing Amla . Also immune care to repair the cells , Thanks for all your post it has all been so helpful in understanding what we are all Going tru , take care🙏
Thank you for sharing. I have also Have ATN but I am unable to do much at all. I have had many surgeries that have failed to. I am so sorry. I pray for a cure for all of us. I also have occipital Neuralgia too.
Fortunately I don't suffer from TN I had post concussion syndrome and tried NUCCA upper cervical care which helped immensely. If your C1 atlas is misaligned it can cause all kinds of neurological issues and is supposed to work for this awful one as well. Just something to check out before you try surgery or more drugs.
I completely relate to the pain of TN. I have been suffering since my early 20s with excruciating TN pain lasting for days, only been officially diagnosed this last month aged 43 along with Chiari Malformation Type 1 (7mm) via an MRI. Now on medication to see if it helps but surgery has been mentioned for both disorders. I am a Music teacher and always try to push through the pain and hide it but that's becoming impossible now. Hoping to be pain free one day, trying to stay positive but some days it's so hard. Hard too when people don't understand and say 'you look fine and don't seem to be in pain'.
I've had pains in my jaw when eating for several years it's getting worse, and with electric shock shooting pains.i can't barely eat today or drink anything even soup with a bit of bread I was in agony,I had to throw the bread away.scared of dodgy dentists scared of doctors,I'm so hungry.im in the UK got food in but can't eat it.not totally sure if I have this condition, it comes and goes then excruciating pain when talking eating and now drinking today.like someone is stabbing me in My jaw .I've had toothache but this is even worse.
Hi, thank you, Kristin, for telling your story. My name is Pari Shah, and I'm writing a paper on trigeminal neuralgia. I was wondering if I could include a quotation about TN affecting your work life in my paper. Thank you!
Hi dear, i am also suffering from trigeminal neuralgia, but atypical one. I also feel burning and numbing sensations on left side of my face. It basically gets triggered after eating something. Also i feel that my face doesn’t have any strength to smile or laugh or make expressions appropriately like other people who just do it with full energy and so easily. I also get some pressure on my face when i have to smile or talk much, just wondering if you also suffer from these things while talking or laughing? My pain usually happens after eating certain foods so i thought it could be due to allergies or histamine intolerance and not nerves! But i was taking gabapentin and i felt 10% better and when i stopped it, that 10% better feeling also gone which makes me realize that i have this atypical trigeminal neuralgia. On my MRI scan, i have got cerebral artery in contact with the trigeminal nerve which is not distorting or pressing it but just contacting which happens in healthy people too. Just wanted to confirm your symptoms if you also get any pressure sort of thing on your face while laughing and talking or it’s just burning and numbing sensations?
8 years ago started getting trigeminal neuralgia pain right side of face. I injected 0.75 ml vit B12 in my cheek (under cheek bone) subcutaneously during a bad flare up. Took 3 weeks to go into remission. Came back after a year 1/2 . I made sure I gave to myself early in cheek 2 days ago. It had subsided. Should be done by doc. I couldn't find a doctor, was ready to kill myself from pain so I did it myself.
@@sarahsmith7951 it is not a cure. It seems to help put my TN in remission. I am sure it will not work for some people with TN (like those with MS likely). But for people like me, it might help a lot. Must be done under the supervision of a Doctor.
I'm suffering with stage 4 cancer of the trigeminal nerve to the base of my brain for 2 years I had chemo radiation feeding two for about a year away 102 lb I don't like eating because it hurts My face burns my head's always stabbing tickling just a lot of weird things that drive you nuts all day and my sister had it and I used to laugh at I wonder why she used to wear hats to bed cuz she said the breeze would hurt her pain and I'm like wow now I got it and I understand what she was going through but she didn't even have cancer God bless y'all and let me on some insight what's going on cuz this seems nobody that really wants to help
I’m so sorry for your story with TN. They found what looks to be a tumor on my trigeminal nerve. Not really sure what this means. Waiting to see doc. But it is 12x5x11 cm. Any words of wisdom?
I get glossopharangeal and occipital neuralgia as well. I also get bad paresthesias as well. Thighs usually. They’re numb yet itch and give me stabbing pain. What’s wrong!? No one knows. I’m in Boston with the best docs. I’m tired. No one understands the pain unless they have it.
My 29 year old daughter has just been diagnosed with Trigeminal Neuralgia and gets the pain all over her face, we are throwing everything at this, one thing we have found that helps is Cayenne pepper mixed with hemp oil or olive oil the oil is only to make it into a paste. We put it on cotton buds and stick it up her nose for a half an hour then we put it on long strips of bandage and push it into her top gums and then her bottom gums for half an hour not together you want it to really burn as we are trying to damage the nerves and it helps we are on day 6 and the main pain starts in her nose then spreads to her sinuses she said the pain has halved not all the time but sometimes, it now has spread to her fore head and jaw I know it sounds crazy but as you know this is a disgusting disorder so please try it it may do nothing but it may do something good luck and try not to give up
I was diagnosed with renal cell carcinoma (kidney cancer) and trigeminal neuralgia disease in which I have tried all I could with medical prescription all to no avail.february 1999 and had my left kidney removed at that time. It was determined that no other treatment was needed. This was an incidental finding, seen on an ultrasound to check my gall bladder - I had no signs or symptoms from this tumor. I was followed for 6 years and was deemed cured. In April 2014, 15 years later, I noticed a lump at the top of my sternum and it turned out to be renal cell carcinoma from the tumor previously removed. I am now Stage 4 as this is a metastasis. The cancer had grown through and broke the bone - I never had any pain or symptoms. I had 10 radiation treatments and was put on oral in August 2014. I started experiencing bone pain in Feb/March 2016 and was given an additional 10 radiation treatments which eliminated the pain. A break in the bone just below the tumor was later identified when the scar tissue developed. I remain on daily oral chemotherapy, I was recently introduced to a Chinese herbalists Dr sale bashiru I contacted him and after necessary questions and forms fill out sent me herbs and oil that cured me of all this diseases within three months of trial.im now symptoms and pain free.here is my email address if you may need help. sarahsmi100@gmail.com
After forty years I have learned to deal with pain but it's. Not easy. People have no idea what this nightmare isike. Take meds. And also. Neuro mag works also. O.mega threes and litium oratate.
I was diagnosed with TN approximately 6 years ago, and mine is constant! My teeth and face are on fire, and I've had zero luck with medication. I had CyberKnife and that was a failure as well. Having constant TN (trigeminal neuropathy/ nerve damage) is no life at all. Any advice is very much appreciated.
I take L-Lysine, up to 6000 mg a day if I need it. It is the only thing to stop my pain and keep it away. If I was better at caring for myself and took it daily, I believe it might keep it away completely. Peace to You
I suffered from 2007 to 2010. I had a relapse and was pain free for a few short months. On Dec 27 2011 at 7:37 pm it returned. I suffered off and on, became addicted to prescription pain and seizure meds to point of narcolepsy. Then in 2019, I had all 22 of my teeth removed surgically. My TN was so bad, I couldn't have any dental work. I woke up after the removal of my teeth, and God willing it stays the same, have had no further pain. It saved my life.
@@toughtimes6596 wow, I have considered doing this, removal of all teeth. Amazing you are out of pain that’s so wonderful. I am curious did you have typical TN or atypical TN? I have a typical the pain is there all the time I feel like my tooth is being drilled on 24 7 . This occurred after dental surgery trying to fix my TMJ and the slight pain I had in my tooth from a bad root canal many years prior. Wondering if this would work for me looking forward to hearing for it from you
@@lindapelle8738 I had atypical as well, and was one of the few that it would switch sides. I sufferred 2 types of pain. Mostly 24/7 it felt like my cheek was in a vice. The worst was what I called "lightning strikes". I would tell everyone to imagine a live electrical cord on your face. These would last 45 secs to 2 minutes, 25- 200 a day. They came in waves usually 2-7 days or so and then I would get some relief for a bit. I had to avoid fans, shower, rain, hair brush, tooth brush, metal utensils, wind, cold, heat, any sensation would trigger it. I was on a pile of meds - seizure (they "cushion" nerves), narcotics, muscle relaxers, transquilizers, nerve meds, blood pressure meds (no high b.p., to keep vessels dilating) and more. I was a walking zombie lol. Doctors and dentists warned me regular dentures would most likely irritate the nerves but implants may work. I have neither, I won't take the chance and can't afford them anyway. I don't mind. No pain since 4 days after surgery and even surgery pain was mild compared to previously. 14 years off and on (I did get relapse of pain for a couple years in between) of agony. No teeth is a small worry when you compare it. I feel for you my friend, and pray you find a solution. There was a doctor in Florida who had a 67% recovery rate, not sure if he is still around. I did not have resources to try him. I explored teflon wrap but was told it would have to be done on both sides and wouldn't work. Gamma ray was another option. Blessings and hang in there! It made me a stronger person and helped me have more compassion for others. I learned many lessons in my Trigeminal journey. I also learned meditation, pain dissociation, guided imagery and other mental techniques. Always look for positive and remember you are not alone💞💞💞
I really feel for you I suffer to alls we can do is have hope I practice qigong and tIji.not enough at home meds the pain robs your energy .i use pressure pionts massage that takes time on instagram there’s a Chinese master dressed in white I’ve been diong not enough pressure pionts on face .ive even bought tanszinte earrings good for brain.and collectors items .trying to follow a vegan diet .ill try send you vidoe of pressure points asap.its hard I have soon to b a fourty year old disabelled son lots of love and light
The WORST THING for Me Is that the THING Tricked my Brain into Telling me I had Tooth infections likeca Domino Affect. Causing me to Panic after the 5th & have a Full Clearance. Consequently MY chimdren are Wholly embarrassed by my old before my time Face. In fact I sm CONSTANTLY PROFILED as Stupid or Nefarious with my Gradpa Face + Rollator. I so Tired of Telling shopkeepers That I AM NOT A THEIF. I have undeed declared all my Shopping for you & I have Everlovin' FINNISH🇫🇮💙 DNA. Therefore By default, I NEVER Steal as I have Circle of Trust Built into my Natural Normal. Most are Perplexed when Ibthen use Big Erudite words like ERUDITE and think I have Finish® Dishwashing Detergent on my Mind. YES Self prescribed Humour Helps in this Vexatious Fractious Dichotomous World full of Dubious Humans with the HUMAN CONDITION®
I guess I am a lucky one, my TN started in January of 2020 then went away within a month. It then came back with a vengeance in December of 2020. By January of 2021 I diagnosed with TN and put on medication (oxcarbazepine 1800 mg per day) that completely controls it. I see a neurosurgeon tomorrow to discuss surgery to permanently fix it. I suppose having good medical helps.
Yes i got mine last year too, when I was 18. Now 19 and still suffer with it. I was diagnosed immediately when I told my neurologist (I was his patient already due to my epilepsy). He has prescribed me with gabapentin and the pain was gone for about 3 months but came back. I was then prescribed with tegretol, nothing was working. So I had the gamma knife surgery. Which then only lasted from October to December. So then I was prescribed baclofen. It even had came back to then my left side lower jaw, previously being ony my right side lower jaw. Now I am just going to consider MVD. Medication just arent working.
I don't know how long it's been, mine seems to have gone into remission. I'm so afraid that it will come back and I'm not sure when to expect it back. It's frightful. That makes me a lucky one too but makes me so sad for all of us who have ever suffered from it.
@@iballslide7604 Well I have now been told twice I am not a good candidate for MVD, so I am not able to get it done. I have to rely on medication. Isnt ablation a nerve damaging type of process like gamma knife is? I never want to do any type of surgeries as such since gamme knife had upped the pain on a whole new level
Clearly this Awful ANARCHIC THING has Defined your Life. I have TOTAL 100% EMPATHY & wish i coukd give you a Hug and Say I LOVE YOUR HAIRCUT as It reveals how Divinely Beautiful your Face is. Notwithstanding the Horrors we both Face.
I have been suffering with TN since 2018. People don't understand unless they experience it. The pain is unbearable. When I'm in a flare I just want to be left alone. Anybody that suffers with this disease I'm praying for you.
Pleasure try centeno Schultz clinic in Colorado for blood plasma stem cell therapy
aabhi kese h 😌aapka pain
I am speechless just crying watching my wife go thru the same pain and suffering that you are
I am sorry for any one exp this
Thank you for your message
Thank you for being brave
Your not alone
Anyone who is suffering from this disease
I pray🙏🙏🙏
How’s she doing today?
I see my own pain in your face. Peace and Mercy to all who suffer from this monster.
I have TN and it just like spirit and physically crushing torture its been 4 yrs and its horrible my heart breaks for any and all with this monster living in our faces/heads
Have you looked into upper cervical care? It helped me immensely they take X-rays and see if the C1 atlas bone in your neck is out of position and interfering with the brain stem. Then they do gentle corrections to fix the problem.
@@wesporter2176 I have now been getting injections from c2 to c7. And the radio frequency ablation in my face at V2 and same thing on lesser and greater occipital nerves and 1200 milligrams of gabapentin daily..it helps but I still have attacks just not horrible attacks
@@mrdunbar6758 Prolotherapy? Yes that's another option to correct your neck glad you found something that's working!
Hi, I suffer from T.A.C. and you have the most beautiful smile.....Your smile is how I feel after an attack, after the beast is done with me....Godspeed
It’s been 13 years and the most difficult thing I could have imagined. I’m just so tired. All you can do is keep going no matter what.
This story breaks my heart. I’m going through the same pain.Bless you🙏🏻❤️
I was diagnosed with Trigeminal Neuralgia on my left side of my face. It’s an awful health condition with a burning , stabbing , throbbing , pain feeling.I hope and pray for everyone having this kind of disease that they find a cure for TN. For Kristin , I just want to let you know that you are not alone. Praying for you 🙏🙏🙏
Thank you for sharing. Learn about our work at www.facingfacialpain.org
How are you doing today?
You are so brave. It's not only TN but cancer. You are a soldier thanks for sharing your story. It has been 6 years to my TN.
Kristin is AMAZING www.facingfacialpain.org
40 years, approx. 1 or 2 stabbing pains, lasting a split second, maybe once or twice a year, just here and there, and very brief. Down the track, ongoing, unrelenting, vicious, maddening, frightening, stabbing pains like lightning in my right ear, for about 3-4 months. Meds prescribed but not taken. I had relief overnight once I slept. Only ever woken by it once or twice (once only recently, 5 years later). Slowly calmed down over next 4-5 years. Had two vicious pains in my right ear a couple of days back. Have ongoing mostly milder stabbing pains (now in both ears but predominantly my right). Over the past couple of years, I have been watching the Buddhist Society of Western Australia on UA-cam and I have learnt meditation with Ajahn Brahm. If you persist, it becomes the most marvellous thing to do. When I had my most recent pains, I tried to relax after the first pain and tried not to anticipate another (which is sort of impossible). I still got one more but I think it really helps to try and relax. And Ajahn Brahm has been of huge benefit to me. The other thing I do is Wim Hof breathing (which is painful in itself) but once you get going, that, also, is a learning experience every time and of huge benefit. And I have a cold shower every day. I've only missed a few in the past 3 years, it is that beneficial. I have suffered some excruciating pain in the cold shower in my skull and once or twice it set off my ear, but I seem to have gotten over that. I swear by it. Now, I'm taking different forms of medical marihuana and I also find this to be beneficial. I just hope I never end up in the state I was in a few years back. I don't know whether I could take it again. I'm not a fan of doctors and their drugs, in general, so it is lucky I live in a very remote area and visiting a doctor is almost impossible. Don't get me wrong. I might have to take their drugs at some stage, and I would not blame anyone for taking them. But I couldn't bear the side effects of their drugs, I don't think. Thanks for this video. Just as a matter of interest, I also had cancer (in remission) just over 10 years ago, and hemithyroidectomy (Graves disease) about 8 years ago. 💜 🦘🦘🦘🦘🦘
Thank you for sharing your story it’s good to know that I’m not the only one out there. I know your pain... I have trigeminal and occipital neuralgia for 10 years now. It’s amazing to see you do these marathons. I can’t seem to exercise over 10 min without flaring up. So I just do what I can. I do hope for one day there will be a cure for us all. 🙏
Kristin is amazing. Please visit our website at www.facingfacialpain.org
Those clinics.. doctors..etc..who offers services ..therapies to help TN patients...are they willing to expend 2 hours with you in the table giving you manual .muscular..cranial..skeletal manipulation therapy?....but there is one who does it..and the result is amazing
I have trigeminal neuralgia, four years now. Dentist and endodontist have pulled my teeth and several root canals because these dentist, etc., don’t know about this condition. They should do their research when they do X-rays and can’t find anything wrong with your teeth.
The pain can be so unbearable, you are afraid to leave your home in fear of a flare up. Screaming in pillows, can’t sleep, brush your teeth in fear it may trigger it.
With surgery, there’s that chance you may suffer from paralysis in your face. Botox injections in the nerve are only temporary
This is the worst pain a person can experience.
There aren’t many of us out there with this condition, so, those around you can never understand the severity of the pain ❤😢
I know the fear brushing teeth even yawning ❤
Buna sper sa fie o vindecare am si eu e greu ❤❤❤
My heart sinks at every TN story. I am so sorry you have to go through this. Wishing you easier times 💗
Mine has been with me for some 11 years. It's hard. Really hard.
I hope people watch yours and similar TN stories to maybe understand a little bit what we experience.
Thank you so much for sharing your story Kristen, it's people like you who constantly inspire to push on despite it all 👏👏👏💪👍👍
“Fire from the inside out”..... yes!!!! That’s how I feel!
Me too
same here
Have you looked into upper cervical care? It helped me immensely they take X-rays and see if the C1 atlas bone in your neck is out of position and interfering with the brain stem. Then they do gentle corrections to fix the problem.
I suffered for 21 years with this excruciating pain. And as of March 2023 I had surgery with this wonderful dr in knowledge of TN . I am still healing but thank GOD my TN is not a problem today. And yes know one understands if they have never had this.
What surgery did u have?
I feel so much for her. I have it too since I was a child but only got diagnosed when I was 32. It is a fire all inside , numbness that you cant speak correctly or at all, and ice picks pains randomly through face and ears. Medication helps but doesn't take it away. I hope she finds relief soon from this.
We're so sorry to hear you've been struggling so. www.facingfacialpain.org
Hi there, i am also suffering from atypical trigeminal neuralgia. I get pressure type of feeling on my face as well when i talk and laugh in addition to burning and numbing sensations. Just wondering if this pressure thing is common with you also? On my MRI scan, there is just a normal contact between cerebral artery and trigeminal nerve and no distortion is happening. This makes me bit confused that my condition is actually trigeminal neuralgia. Just wanted to confirm if your symptoms are also somewhat similar?
@@jash2199 normal contact is very common among asymptomatic people so there should be some other things that are added into this condition i think so
You are such a wonderful person. Thank you for providing this information and encouragement. I have just started having shooting pain in my jaw, teeth, eye and ear. I think this is what is happening to me too.
We're so sorry you are in pain. We are working hard on a cure and encourage you to learn more about our work at www.facingfacialpain.org
I had this for 3 months, and I thank god everyday that it resolved by itself. I cannot imagine living years and years, or even a life time with this horror. I have deep empathy for anyone that has it. Keep strong.
We're so glad for you. Please visit our website at www.facingfacialpain.org
You are very fortunate you got diagnosed with TM and suffered for such a short time. I hope it never returns, it really is the pits.
How are you doing today?
@@ronaldkrikorian4712 I am still free of TN - but I'm uneasy just thinking about it and swear I still feel phantom pains just remembering it. I truly hope I never experience it again.
@@aquicktake That’s exactly what happened to me! I never believed God answers prayers until a year ago when I almost died and he had his hands on me and by a miracle I lived! There’s more to the story because a girl I didn’t know came up to be and told me the lord said to believe in him and he would get me through with what’s about to happen to you! I said I feel great and I don’t need prayer! The next night my doctor called and said I had masses in my abdomen and I would bleed out if I didn’t have surgery! I had the surgery but the doctor burned my pancreas and it started leaking badly! I went to UCSF where they saved my life! Prayers were coming from everywhere for me! Now I know Fod answers prayers because he answered mine!
Kristin, you have been through so much. I too have TN and it's a long difficult journey. I wish you better days and less bad.
This really hurts to watch. Ive been battling it since 2014 and its absolutely horrendous. Its complete agony.
We're working hard on finding a cure. Learn more at www.facingfacialpain.org
I have never actually been diagnosed with TN, but I firmly believe this is what I have. I have period where I can have several days in a row of the shocking pain in one side of my head and then go months without any symptoms. In 2003 and 2011, I had two separate episodes and each last about 5 weeks. They started out as the normal shocks of debilitating pain and soon morphed into pain around the eye on the affected side (2003 was left side, 2011 was right side), and caused my eye to rotate outward and double vision, with constant, unbearable, aching pain in between the shock-like pain. They were the worst pain I've ever felt in my life. Doctors have tried to diagnose it as tooth-related, ocular migraines, etc. Right now, I am in a remission state, so I haven't had any flare ups in about a year or so, aside from a very short one a few months ago. It has been within this year that I've discovered TN, and it describes what I go through and the pain I feel perfectly. Bless your heart, love. I have had five children, and I would rather go through all 5 of those births back to back than to have TN. I have never gone this long without a flare up, so I'm scared that my next one will be one like the 2 episodes that debilitated me for weeks and all I could do was sleep because it hurt too much to stay awake. Sending hugs!
We're so sorry to hear you're in pain. We are working hard on a cure- visit www.facingfacialpain.org
I am currently suffering from another episode of TN.
Nearly four weeks of indescribable pain. No-one seems to understand how it feels.
We do. Stay strong. www.facingfacialpain.org
Kerry Sparks I totally understand you. I have TN for 5years it's terrible sydom no one can see you inside how you fill it's disorganised everything...
Hi Kristin, i know what youre going through sweetheart, i had TN for 3 years, i live in Australia, i had an operation in 1990 ,and have been good since thankfully, you are a very brave tough woman, i hope you can get this beast of a thing sorted, all the best Kristin.
I got TN at 27 and I’m 33 now I guess I haven’t had a good night sleep in 6 Years my family thinks I have migraines this is nothing to a headache they don’t understand..
I agree nobody understands what it's like to go through this pain. I watched my mother in law suffer for yrs with it. My sister n brother in law and my husband didn't think it was that bad. Until she had her second surgery 3 yrs ago. I'll never forget it. It was heart breaking seeing her in the hospital after her surgery. She is the only person who knows what I'm going through. Even though my husband watched his mom go through this he still doesn't get it or believe how bad it hurts. Right now I'm on my worst flare up. We have a 4 yr old son. Who I take care of 24/7 I try so hard to try and push through the pain. But nothing is working. These stupid Dr's aren't truly doing anything. The new Dr I have I guess is giving me the next 2 months to decide on the surgery. But he isn't even giving me anything for the pain. My one Dr had me on lyrica but he's not wanting me to take it. Instead he writes me a script of narco 5 mg which isn't anything they don't even do anything it's like taking a tylenol which doesn't touch the pain. So when I go back to see him either in 2 months or sooner if this pain doesn't ease up. I'm going to have the first surgery. I just pray 1 is All I need but I don't think it will be. I just want to crawl into a ball please pray for me. I don't have anyone to talk to about this
We do, and we're working hard on a cure. Learn about our work at www.facingfacialpain.org
Have you looked into upper cervical care? It helped me immensely they take X-rays and see if the C1 atlas bone in your neck is out of position and interfering with the brain stem. Then they do gentle corrections to fix the problem.
I got TN at 5yo. 25 now. Havent had a good night's sleep since I was 16. Gnarly condition to deal with.
@@caydnlofton1858 Did you try upper cervical chiropractic to adjust your C1 atlas neck bone? Look up James Tomasi he wrote a book about how it helped him "What Time Tuesday?"
yes I also have that too I hope you can make the awareness
I have oral cancer, last year I lost the left side of my jaw, and mouth. They thought they got it all, but last November I notices a small bump on the.left corner of my lips, yep it came back, plus it's in my tounge. The surgeon said that I was going to lose my tounge, and two hours away from leaving my home to get my tounge removed I was contacted by a research company and was advised that I was picked for a rather new treatment.
I started the treatments and because they have to put me under and prop open My mouth I have several attacks for days after.
I'm a retired police officer and was retired in 2010 due to injuries, so I've had my share of surgeries and pain due to those injuries, but I've never really complained about my pain, so far TN has knocked me to my knees several times and to be honest it has made me cry like a baby twice from the pain.
I do have a question, I taste a sweet taste and my right side of my tounge feels strange prior to attacks, so I pretty much can tell when it's coming and if it's going to be a really bad one. Dose anyone else taste different before an attack? Also I get hyper Slava, I mean it pours out. Anyone similar?
I’ve had TN and GN since 2016 it used to be 24/7 debilitating pain it was caused by a brain tumor, the tumor got better but nerve damage remains I deal with this almost daily it’s the suicide disease it hurts so bad.
I have TN and a brain tumor I don't know exactly how long I have had it. But symptoms started getting really bad 8 years ago. I take all different types of medications but lately it has started getting worse. My doctor's say removal of tumor is risky and could cause damage most likely. Also I could not make it at all. An other option was radiation but they are worried about compromising my immune system. Since I have other complications. So I'm stuck with the pain and the tumor that is messing with so many sensory issues. And I lost my 2 job and now have to depend on others and I hate it. I don't know what's worse dealing with the pain or the anger. Trying to let others help is hard for me!
Oh sweetie i know how hard it is my heart really goes out to all the women my neurologist appointment is tomorrow its uncomfortable My prayers are for of us Here 🙏 Going tru the same similar or Different ,we all have so many Reasons to keep pushing its so hard when the quality of life you have is so limited and you just have to lay in a dark room with the lights off couse it hurts so Bad . So yes i have an autoimmune defiency and so that can be very delicate try to build your immunity and immune system im doing that now vitamin c Fresh Ginger ,fresh or powder form tumeric powdered or the stick cinnamon Honey 🍯 Fresh lemons for theirJuice 🍋. Cloves the little sticks or powdered for & they look like little stars Anise and you may want to put a touch of organic pepper or cayenne pepper not to much . This has manny health benefits antiflamatory antibacterial exc , what i do is i the all this items put the blender and put in an ice tray and boil water and get one cube make some tea 🍵 is delicious if you like and dont have some items work with what you got then you can make the tea first ad later the cinnamon stick cloves lemon juice anise after its done .ive been doing this for 3 months To build my immune system and takeing Amla . Also immune care to repair the cells , Thanks for all your post it has all been so helpful in understanding what we are all Going tru , take care🙏
I'm so sorry girl I feel your pain!!!! God bless I'll keep you in my prayers
Ugggg TN sucks! I feel you girl. 💔 I’m only 4 months in my journey and it feels like 2 years
We’re you diagnosed with it? If so, are you in remission now?
I’m going on to my neurosurgeon for a consultation soon
Thank you for sharing. I have also Have ATN but I am unable to do much at all. I have had many surgeries that have failed to. I am so sorry. I pray for a cure for all of us. I also have occipital Neuralgia too.
We're working hard on a cure. Visit www.facingfacialpain.org
Fortunately I don't suffer from TN I had post concussion syndrome and tried NUCCA upper cervical care which helped immensely. If your C1 atlas is misaligned it can cause all kinds of neurological issues and is supposed to work for this awful one as well. Just something to check out before you try surgery or more drugs.
I completely relate to the pain of TN. I have been suffering since my early 20s with excruciating TN pain lasting for days, only been officially diagnosed this last month aged 43 along with Chiari Malformation Type 1 (7mm) via an MRI. Now on medication to see if it helps but surgery has been mentioned for both disorders. I am a Music teacher and always try to push through the pain and hide it but that's becoming impossible now. Hoping to be pain free one day, trying to stay positive but some days it's so hard. Hard too when people don't understand and say 'you look fine and don't seem to be in pain'.
Bit surgery is risky i think and specially Brian one , did not other options works like ablation, gamma knife
I have TN and I go to see a neurosurgeon tomorrow. Possibly for MVD surgery. I’m scared to death. I hope you are doing well❤
Hi, how are you doing now?
Please make videos without music. The music is so painful I am not able to listen to the videos.
I've had pains in my jaw when eating for several years it's getting worse, and with electric shock shooting pains.i can't barely eat today or drink anything even soup with a bit of bread I was in agony,I had to throw the bread away.scared of dodgy dentists scared of doctors,I'm so hungry.im in the UK got food in but can't eat it.not totally sure if I have this condition, it comes and goes then excruciating pain when talking eating and now drinking today.like someone is stabbing me in My jaw .I've had toothache but this is even worse.
GOD BLESS YOU
Hi, thank you, Kristin, for telling your story. My name is Pari Shah, and I'm writing a paper on trigeminal neuralgia. I was wondering if I could include a quotation about TN affecting your work life in my paper. Thank you!
Hi dear, i am also suffering from trigeminal neuralgia, but atypical one. I also feel burning and numbing sensations on left side of my face. It basically gets triggered after eating something. Also i feel that my face doesn’t have any strength to smile or laugh or make expressions appropriately like other people who just do it with full energy and so easily. I also get some pressure on my face when i have to smile or talk much, just wondering if you also suffer from these things while talking or laughing? My pain usually happens after eating certain foods so i thought it could be due to allergies or histamine intolerance and not nerves! But i was taking gabapentin and i felt 10% better and when i stopped it, that 10% better feeling also gone which makes me realize that i have this atypical trigeminal neuralgia. On my MRI scan, i have got cerebral artery in contact with the trigeminal nerve which is not distorting or pressing it but just contacting which happens in healthy people too. Just wanted to confirm your symptoms if you also get any pressure sort of thing on your face while laughing and talking or it’s just burning and numbing sensations?
8 years ago started getting trigeminal neuralgia pain right side of face. I injected 0.75 ml vit B12 in my cheek (under cheek bone) subcutaneously during a bad flare up. Took 3 weeks to go into remission. Came back after a year 1/2 . I made sure I gave to myself early in cheek 2 days ago. It had subsided. Should be done by doc. I couldn't find a doctor, was ready to kill myself from pain so I did it myself.
Have you gotten a cure
@@sarahsmith7951 it is not a cure. It seems to help put my TN in remission. I am sure it will not work for some people with TN (like those with MS likely). But for people like me, it might help a lot. Must be done under the supervision of a Doctor.
@@sabinecohen8369 Vitamin B12 helps a lot...Please try L-Lysine. I take up to 6000 mg a day if needed. Helps almost instantly. Peace to you
@@sinmore11 Wow, thank you!
I'm suffering with stage 4 cancer of the trigeminal nerve to the base of my brain for 2 years I had chemo radiation feeding two for about a year away 102 lb I don't like eating because it hurts My face burns my head's always stabbing tickling just a lot of weird things that drive you nuts all day and my sister had it and I used to laugh at I wonder why she used to wear hats to bed cuz she said the breeze would hurt her pain and I'm like wow now I got it and I understand what she was going through but she didn't even have cancer God bless y'all and let me on some insight what's going on cuz this seems nobody that really wants to help
I’m so sorry for your story with TN. They found what looks to be a tumor on my trigeminal nerve. Not really sure what this means. Waiting to see doc. But it is 12x5x11 cm. Any words of wisdom?
I wouldn't wish this on anyone. 😪
I get it. Can’t do this pain much longer. I’m tired.
Please read my post here how I control TN condition/pain.
I get glossopharangeal and occipital neuralgia as well. I also get bad paresthesias as well. Thighs usually. They’re numb yet itch and give me stabbing pain. What’s wrong!? No one knows. I’m in Boston with the best docs. I’m tired. No one understands the pain unless they have it.
@@tracymcgrath1192 have you gotten a cure yet
I Can help you out
Awwwe I understand. It is horrible. When I started on the oxycarbine I had some good relief within 4 hours.
My 29 year old daughter has just been diagnosed with Trigeminal Neuralgia and gets the pain all over her face, we are throwing everything at this, one thing we have found that helps is Cayenne pepper mixed with hemp oil or olive oil the oil is only to make it into a paste. We put it on cotton buds and stick it up her nose for a half an hour then we put it on long strips of bandage and push it into her top gums and then her bottom gums for half an hour not together you want it to really burn as we are trying to damage the nerves and it helps we are on day 6 and the main pain starts in her nose then spreads to her sinuses she said the pain has halved not all the time but sometimes, it now has spread to her fore head and jaw I know it sounds crazy but as you know this is a disgusting disorder so please try it it may do nothing but it may do something good luck and try not to give up
I was diagnosed with renal cell carcinoma (kidney cancer) and trigeminal neuralgia disease in which I have tried all I could with medical prescription all to no avail.february 1999 and had my left kidney removed at that time. It was determined that no other treatment was needed. This was an incidental finding, seen on an ultrasound to check my gall bladder - I had no signs or symptoms from this tumor. I was followed for 6 years and was deemed cured.
In April 2014, 15 years later, I noticed a lump at the top of my sternum and it turned out to be renal cell carcinoma from the tumor previously removed. I am now Stage 4 as this is a metastasis. The cancer had grown through and broke the bone - I never had any pain or symptoms. I had 10 radiation treatments and was put on oral in August 2014. I started experiencing bone pain in Feb/March 2016 and was given an additional 10 radiation treatments which eliminated the pain. A break in the bone just below the tumor was later identified when the scar tissue developed. I remain on daily oral chemotherapy, I was recently introduced to a Chinese herbalists Dr sale bashiru I contacted him and after necessary questions and forms fill out sent me herbs and oil that cured me of all this diseases within three months of trial.im now symptoms and pain free.here is my email address if you may need help. sarahsmi100@gmail.com
I have bilateral TN too
@@lovefamlia8880 Do you need cure?
Omg!! Im losing my hair too, I wonder if its the TN
Raw vinegar baths 4 big cups per tube 3 times a week head to toe don't wash off vinegar after bath. how I cured my Trigeminal Neuralgia pain.
How does this work?
After forty years
I have learned to deal with pain but it's. Not easy. People have no idea what this nightmare isike. Take meds. And also. Neuro mag works also. O.mega threes and litium oratate.
How you tackled with 40 years??
I was diagnosed with TN approximately 6 years ago, and mine is constant! My teeth and face are on fire, and I've had zero luck with medication. I had CyberKnife and that was a failure as well. Having constant TN (trigeminal neuropathy/ nerve damage) is no life at all. Any advice is very much appreciated.
I take L-Lysine, up to 6000 mg a day if I need it. It is the only thing to stop my pain and keep it away. If I was better at caring for myself and took it daily, I believe it might keep it away completely. Peace to You
Does it really help? My wife has this and we are looking for solutions.
I suffered from 2007 to 2010. I had a relapse and was pain free for a few short months. On Dec 27 2011 at 7:37 pm it returned. I suffered off and on, became addicted to prescription pain and seizure meds to point of narcolepsy. Then in 2019, I had all 22 of my teeth removed surgically. My TN was so bad, I couldn't have any dental work. I woke up after the removal of my teeth, and God willing it stays the same, have had no further pain. It saved my life.
@@toughtimes6596 wow, I have considered doing this, removal of all teeth. Amazing you are out of pain that’s so wonderful. I am curious did you have typical TN or atypical TN? I have a typical the pain is there all the time I feel like my tooth is being drilled on 24 7 . This occurred after dental surgery trying to fix my TMJ and the slight pain I had in my tooth from a bad root canal many years prior. Wondering if this would work for me looking forward to hearing for it from you
@@lindapelle8738 I had atypical as well, and was one of the few that it would switch sides. I sufferred 2 types of pain. Mostly 24/7 it felt like my cheek was in a vice. The worst was what I called "lightning strikes". I would tell everyone to imagine a live electrical cord on your face. These would last 45 secs to 2 minutes, 25- 200 a day. They came in waves usually 2-7 days or so and then I would get some relief for a bit. I had to avoid fans, shower, rain, hair brush, tooth brush, metal utensils, wind, cold, heat, any sensation would trigger it. I was on a pile of meds - seizure (they "cushion" nerves), narcotics, muscle relaxers, transquilizers, nerve meds, blood pressure meds (no high b.p., to keep vessels dilating) and more. I was a walking zombie lol. Doctors and dentists warned me regular dentures would most likely irritate the nerves but implants may work. I have neither, I won't take the chance and can't afford them anyway. I don't mind. No pain since 4 days after surgery and even surgery pain was mild compared to previously. 14 years off and on (I did get relapse of pain for a couple years in between) of agony. No teeth is a small worry when you compare it. I feel for you my friend, and pray you find a solution. There was a doctor in Florida who had a 67% recovery rate, not sure if he is still around. I did not have resources to try him. I explored teflon wrap but was told it would have to be done on both sides and wouldn't work. Gamma ray was another option. Blessings and hang in there! It made me a stronger person and helped me have more compassion for others. I learned many lessons in my Trigeminal journey. I also learned meditation, pain dissociation, guided imagery and other mental techniques. Always look for positive and remember you are not alone💞💞💞
I have TN
I really feel for you I suffer to alls we can do is have hope I practice qigong and tIji.not enough at home meds the pain robs your energy .i use pressure pionts massage that takes time on instagram there’s a Chinese master dressed in white I’ve been diong not enough pressure pionts on face .ive even bought tanszinte earrings good for brain.and collectors items .trying to follow a vegan diet .ill try send you vidoe of pressure points asap.its hard I have soon to b a fourty year old disabelled son lots of love and light
How are you doing now? Stable?
#IHopeYouAreDoingOk
The WORST THING for Me Is that the THING Tricked my Brain into Telling me I had Tooth infections likeca Domino Affect. Causing me to Panic after the 5th & have a Full Clearance. Consequently MY chimdren are Wholly embarrassed by my old before my time Face. In fact I sm CONSTANTLY PROFILED as Stupid or Nefarious with my Gradpa Face + Rollator. I so Tired of Telling shopkeepers That I AM NOT A THEIF. I have undeed declared all my Shopping for you & I have Everlovin' FINNISH🇫🇮💙 DNA. Therefore By default, I NEVER Steal as I have Circle of Trust Built into my Natural Normal. Most are Perplexed when Ibthen use Big Erudite words like ERUDITE and think I have Finish® Dishwashing Detergent on my Mind. YES Self prescribed Humour Helps in this Vexatious Fractious Dichotomous World full of Dubious Humans with the HUMAN CONDITION®
Please all with it try lyrica high dose at least 150, it's all that helps me and I couldn't go on without it. X
All i do is use hot balm on my cheek and neck 3, 4 times a day.........
I guess I am a lucky one, my TN started in January of 2020 then went away within a month. It then came back with a vengeance in December of 2020. By January of 2021 I diagnosed with TN and put on medication (oxcarbazepine 1800 mg per day) that completely controls it. I see a neurosurgeon tomorrow to discuss surgery to permanently fix it. I suppose having good medical helps.
Yes i got mine last year too, when I was 18. Now 19 and still suffer with it. I was diagnosed immediately when I told my neurologist (I was his patient already due to my epilepsy). He has prescribed me with gabapentin and the pain was gone for about 3 months but came back. I was then prescribed with tegretol, nothing was working. So I had the gamma knife surgery. Which then only lasted from October to December. So then I was prescribed baclofen. It even had came back to then my left side lower jaw, previously being ony my right side lower jaw. Now I am just going to consider MVD. Medication just arent working.
I don't know how long it's been, mine seems to have gone into remission. I'm so afraid that it will come back and I'm not sure when to expect it back. It's frightful. That makes me a lucky one too but makes me so sad for all of us who have ever suffered from it.
@@tiffanybarnes8286 mvd is not safe try ablation it will last for long time
@@iballslide7604 Well I have now been told twice I am not a good candidate for MVD, so I am not able to get it done. I have to rely on medication. Isnt ablation a nerve damaging type of process like gamma knife is? I never want to do any type of surgeries as such since gamme knife had upped the pain on a whole new level
Clearly this Awful ANARCHIC THING has Defined your Life. I have TOTAL 100% EMPATHY & wish i coukd give you a Hug and Say I LOVE YOUR HAIRCUT as It reveals how Divinely Beautiful your Face is. Notwithstanding the Horrors we both Face.
We are working hard to find a CURE. Learn about our research and join our fight by visiting www.facingfacialpain.org