Emily B Talks About VHL
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- Опубліковано 28 січ 2016
- Emily B is a professional singer/songwriter who was a contestant on The Voice. She has VHL. In this video, she talks about having VHL and about May Awareness Month.
What is VHL? VHL (von Hippel-Lindau) is a genetic condition involving the abnormal growth of blood vessels in up to 10 parts of the body. Patients battle a series of tumors throughout their life. The VHL Alliance is the leading funder of VHL research, identifying new treatments for VHL and related cancers.
Please give to the VHL Alliance vhl.org/give/donate.
all the best wishes to all VHL Warriors! you guys rock! 🌟✨👋
Not an easy thing to live with. My mother has it, as well as 2 aunts and 2 cousins (and didn't get to know my grand-father who died of a brain tumor). Luckily, I got spared but it isn't easy to watch relatives struggle with it. Kinda sad that so many people have no idea it exists.
my 2 son have VHL,and also my grand daughter,not easy
Please feel to reach out to the VHL Alliance for support. info@vhl.org
I have VHL, we do not suffer with this disease we live with it and manage it
I have some serious question cap you please reply?? thank you
I have vhl disease
Bu videoyu izleyen Türk vhl hastası var mı?