I've had so many symptoms in my mid 30s. The doctors contributed all my symptoms to my multiple injuries in MVA and Domestic violence, and was given multiple epidurals and trigger points injections and was even sent to a psychiatrist. Many of my complaints were overlooked because I worked in the healthcare and very active in general. Not until I started to have difficulties with prolinged walking, standing, and sitting that I had to take the initiative and see the Rheumatologist who ordered multiple blood tests. I was finally diagnosed with PMR and now I can focus on getting better instead of pleasing the doctors who brushed off my concerns. And yes, I quit the medical field... I'm my own therapist and patient now.
I had PR starting in June 2021.It affected mostly my ankles and hands/wrists. I also had swelling on my lower legs,my palms and wrists and on my face around my mouth. By far my ankles were the most painful area. I went to my doctor and he took blood,but didn't diagnose it properly. I waited 2 weeks to go to another doctor and the pain hadn't eased up. She took blood for testing,and the next day gave me a proper diagnosis. I got steroid treatment and anti-inflammatory medication.
I've been diagnosed with PMR, the pain was almost unbearable, couldn't get out of bed, nor shower, nor brush my hair or teeth. I was prescribed Prednisone, at 3 5mg tablets a day. when it was reduced to 2 tablets a day, I went back to square one! so I'mm now back on 3 tablets a day. Hopefully will be able to reduce it gradually.
Unfortunately, for a proportion of people, long term steroid therapy is required. Hopefully, you are being reviewed by your physician regularly. Thanks for sharing.
I have a burning in my muscles that will only go away if i stop an activity. It can be as little as 30 seconds and i get an unbearable burn in my arms if im working the only thing that i find helps is lots of breaks an tylenol but even then its still there everyday. For example if im shoveling or raking or any manual labour with my arms. My doctor thought it was this condition.
The symptoms you describe are not reflective of polymyalgia rheumatica. It is possible that it is more reflective of other conditions, perhaps myositis. However, it is not appropriate to diagnose over this platform, so I would suggest seeing a rheumatologist if you are able to access one. Good luck with it.
Personally, I have polymyalgia and have not had any vaccines, our immune systems are quite strong, I felt the risk of a flare up or allergic reaction worse than the risk of catching covid. So far I have been fine, not as much as a sniffle
I have not seen any large studies on this but there are anecdotal cases where there appeared to a temporal relationship between a COVID-19 vaccine and onset of PMR
I've had so many symptoms in my mid 30s. The doctors contributed all my symptoms to my multiple injuries in MVA and Domestic violence, and was given multiple epidurals and trigger points injections and was even sent to a psychiatrist. Many of my complaints were overlooked because I worked in the healthcare and very active in general. Not until I started to have difficulties with prolinged walking, standing, and sitting that I had to take the initiative and see the Rheumatologist who ordered multiple blood tests. I was finally diagnosed with PMR and now I can focus on getting better instead of pleasing the doctors who brushed off my concerns. And yes, I quit the medical field... I'm my own therapist and patient now.
I had PR starting in June 2021.It affected mostly my ankles and hands/wrists. I also had swelling on my lower legs,my palms and wrists and on my face around my mouth. By far my ankles were the most painful area. I went to my doctor and he took blood,but didn't diagnose it properly. I waited 2 weeks to go to another doctor and the pain hadn't eased up. She took blood for testing,and the next day gave me a proper diagnosis. I got steroid treatment and anti-inflammatory medication.
Thanks for sharing your story. Hopefully that will help many others.
As bad as the physical effects are, the depression that follows is devastating.
Very well explained! More clear than when I learned it in class. Thank you so much!
I've been diagnosed with PMR, the pain was almost unbearable, couldn't get out of bed, nor shower, nor brush my hair or teeth. I was prescribed Prednisone, at 3 5mg tablets a day. when it was reduced to 2 tablets a day, I went back to square one! so I'mm now back on 3 tablets a day. Hopefully will be able to reduce it gradually.
Thanks for sharing your story. I'm sure this will help others.
My ex daughter in law with same description. Doctor is trying to get her off prednisone gradually.
Five years later and still have PMR. I go down on steroids then flare up back to 15mg. I think it’s more long lasting then I was told.
Unfortunately, for a proportion of people, long term steroid therapy is required. Hopefully, you are being reviewed by your physician regularly. Thanks for sharing.
I have a burning in my muscles that will only go away if i stop an activity. It can be as little as 30 seconds and i get an unbearable burn in my arms if im working the only thing that i find helps is lots of breaks an tylenol but even then its still there everyday. For example if im shoveling or raking or any manual labour with my arms. My doctor thought it was this condition.
The symptoms you describe are not reflective of polymyalgia rheumatica. It is possible that it is more reflective of other conditions, perhaps myositis. However, it is not appropriate to diagnose over this platform, so I would suggest seeing a rheumatologist if you are able to access one. Good luck with it.
Has anyone got the 3rd covid vaccine shot? I'm afraid of another PR flare-up if I get the shot.
Personally, I have polymyalgia and have not had any vaccines, our immune systems are quite strong, I felt the risk of a flare up or allergic reaction worse than the risk of catching covid. So far I have been fine, not as much as a sniffle
Is it possible for COVID Vaccine to trigger Polymyalgia Rhumatica?
I have not seen any large studies on this but there are anecdotal cases where there appeared to a temporal relationship between a COVID-19 vaccine and onset of PMR
Waiting for a diagnosis but I think I have it. It started after the second dose of the vaccine.
Mine stated two weeks after receiving first dose of AstraZeneca
If you think that's bad,wait until the depression hits you.
I may have developed this, awaiting blood tests, ironically a couple of weeks after astral zenica second dose?????
inflammation isn’t a driver of disease its a side effect of the cause. most likely a infection.
but we “experts” dont treat the cause do we 🙄