LOL “because I’m about to lose it!” - that made me laugh out loud. I’m sure for you it’s like “omg look what she is able to do now! ….ok that’s enough...” 😂 It’s so exciting see her progress! I love seeing how she figured out how to crawl on all fours with her little lucky arm ✨
I love Freya the Tiny Tornado ❤. I know, on the one hand, Freya being a toddler is difficult, but, on the other hand, I know it makes you happy that she is growing up and becoming more independent. I'm looking forward to seeing Freya with her new transportation 🥰.
I love seeing the progress Freya continues to make, I know her being a typical toddler can get overwhelming but I know deep down it makes you scream with excitement. Thank you for sharing your beautiful family with us.
Happy Valentine’s Day to you and the family ❤. Freya is too stinkin cute 🥰. She looked like she had been crying. I sure don’t miss those toddler days at all!!
Have a great Valentine's date!! I love hearing that Freya is getting into things! Takes me back to my toddlers. Freya is a little stinker! Lol I love watching her! ❤
My family is recovering. My kids and I all managed to get both Norovirus (stomach flu) and Covid at the same time. Kicked my butt. Today, Valentine's Day, is the anniversary of my husband's death. No one should be widowed or lose their parent on Valentine's Day. Enjoy every holiday, savor every date night and grab all the couple time you can get.
Happy Valentine's Day Marci and Family!! 🤍💜💟🤍💜 Thank you Marci for sharing all your babies with us. I look forward to your videos and can't wait to watch each one !! Hugs xoxo
Reflux is the worst, I hope you are able to find a good solution. Its great to see how independent she can be. I definitely think that your idea of giving the wheelchair a go is worth it. It just seems like something she would enjoy. Hope everyone had a fun Valentine’s Day❤
It's always a good day when we see Freya's cute little smile ❤ Have fun on your date night, and by the way your makeup looks beautiful, but you are always beautiful without it too! Happy Valentine's Day to you all!!! 💗💗💗
Hi Marci you sound much better. There’s only you who knows best about wheelchair or stroller. Independence is so important, we knew my grandson wouldn’t be able to operate a wheelchair himself, but he did learn to walk. Good luck with the appointment, there’s so much to think about. The cup for Freya looks great. Good girl Freya brushing your teeth. Gosh no kids have a lovely valentines evening, it must feel like heaven having a long earned break. Have fun! Thank you Marci, I absolutely love your videos, they are so full of love and life. I hope you still enjoy making them because they are great to watch! Love to you all! X
It’s ok Marci. You are always beautiful inside and out. Have a wonderful date with your Husband. Enjoy every minute of your together time. You can see Freya growing daily. God bless her. My Valentine passed 22 years ago. I still miss him a bunch. Happy Valentines Day to you all. Love you, me 😉💋🙋🏼💗💕❤️
I'VE Been following your channel since you started 😊 I am at "AWE" with the leaps and bounds Freya has made. She's very much in tune to what's going on...learns at her own pace, and time but She's amazing ❤ I follow little Sebastián and see that each child with CDLS is different, I know that each mom wishes for that miracle, the next step, the first toddler stage.....It's wonderful She's doing as well as she is, I get so excited when I see what she does, and how she communicates what she does not want... your little Freya is a Happy little girl because she has a wonderful mother and father, and siblings that are such a help too in her development...love from Moncton NB (Canada)
The new chair is so exciting! The back and seat part of a wheelchair can be adjusted to a height/width that works best for Freya to push and if need be they always have the option for power assist wheels so she doesn't have to push as much to get around. She doesn't seem to have strength issues so that's in her favor. As far as I know, power assist wheels function independently so it's possible to have it active on one side and not the other. The only thing you might need to watch for is if her lucky arm reaches the outer rim of the wheel, otherwise she'll end up using the wheel that touches the floor. Since she likes to put her hands in her mouth I thought it was worth mentioning.
I’m sure you have this down to a science (no pun intended) but when you see all the specialists at the convention, maybe use your phone voice memo to record? I cannot imagine committing all that input to memory in a single day. Excited all the Docs will be so accessible for you and Freya. Happy ♥ Day to the whole family!
Acid reflux is the worst, my boyfriend and I both have it. I hope she can outgrow it. I also hear ya on the pants, my boyfriend used to be an autobody salesman and his pockets would always end up pulling away making holes on the corners. He's now an autobody manager so hopefully they won't keep tearing up now.
I have no idea, but is it possible to get both the wheelchair and adaptive stroller? This way you would have more choice for different activities and such. What a great cup. It is sure to be a big hit! I have never seen these before. I too subscribe to Roots and Refuge. It is one of the best all around gardening channels. Hah, Freya knows her mind. ❤😊
Freya so good at brushing her teeth that’s nice that’s very good that she likes brushing her teeth. She’s growing so fast she’s so cute. Happy Valentine’s Day.❤
Hi Marci, I always go straight to Freyas channel to see her smiling,laughing and learning new things. Im happy to see her growing and gaining a little more weight. Enjoy your evening with hubby. You have a beautiful family. Your children are amazingly helpful with little sister. ♥️♥️♥️♥️💐😀
Love your makeup ❤️😊 glad you and Chris had fun on y'all's date night 😊❤ thanks for sharing 😊❤👍!! The cookies looks good 😊 HAVE A BLESS DAY TO YOU ALL 🙏❤️ thanks for the update ❤️🙏❤️🙏❤️🙏😊😊😊!!!
You should do both you never know when you will use the stroller we used one for my grandson when he was not feeling well. Could do wheel chair any other time. Stroller is also good for shopping
Hi Marci, such a sweet video ❤. Could you tell us a little bit more about Freya ... you mentioned she had scoliosis. Will she need a brace for this ?... Lovely to see you and Chris enjoy your time out.
You may check and make sure they’re not produced in a plant that makes stuff with milk or gluten cross contamination. Example Doritos are made with tomatoes in them. Fritos is produced by Doritos so we have to watch giving Fritos due to allergies
I got the biggest kick out of watching her face as you were describing all the toddler things she had been into… I hope Freya’s lucky arm is healing well so that she can continue to crawl and exasperate her Mom! 😂 I’m not sure I wouldn’t patch her pants on the inside so that she has extra padding and protection. Maybe find some coordinating fabric and fashion appliqué designs on her bum! With your sewing skills, it would be so cute! I’d make some for when you went out and use the worn ones while at home. You are so creative and it may allow you a creative outlet for some recharging for yourself? Best to you and love for you all…
I think she will walk one day....as she gets more muscle by pulling herself up . I didn't know she had scoliosis too, I was born with it, never had surgery, and now 65 , I was lucky. 40 degree curve. I walk normally,
Marcie, you are such a great seamstress, I bet you could design your own cute patches using front side or legs of a pair of britches. (If you find some time!) 🤣 Freya is so cute & active. She just keeps progressing. 💖 Could any of her new foods or formula be triggering her reflux? I have friends with children with rare syndromes. The children love being with other kids like themselves & the parents thrive on meeting other parents. What a wonderful service these specialists give to the community. Happy Valentine's Day toyour whole family. ❤🍫🍓🐹🐻🐨💐
@@Freyasluckyarm I figured so, but she's so busy & trying new things. Hopefully a medication change will get it back under control again. 🙏 💖 I've lived well with MS & reflux for nearly 30 years.
Were they by any chance talking about House of Hughes? I don't know how old Freya exactly is but their son is about 4 and just recently got a manual wheelchair. They are also in Utah
@@Freyasluckyarm Beckham from A House of Hughes, who also lives in Utah, has Cerebral Palsy, has just got his first wheelchair. He is actually using it independently quite well, considering he has a degree of brain damage, due to his extremely early birth. It could be worth communicating with her to see if it’s an option for Freya
I hope this ok to ask. If not I am sorry. I am still learning what is ok to ask. I have autism but I am learning. How old is Freya. She is super cute along with her siblings. You all are super amazing. Thank you for share it Freyas and your journey with CDLS.
Freya is doing such a good job with brushing her teeth. She is really advancing so good. Watching Freya makes my day. Thank you for sharing . ❤
Freya is being that toddler, I love it. I'm sorry she dumped the humidifier and got water, water everywhere. I just love your children.❤❤❤❤
Thank you! 🤗
Growing and glowing…Freya is doing amazingly well. School has really advanced her and that is wonderful to see.
It's good news that Freya can make messes. I know it can be hard, but some children will never make messes and be stuck in the infant stage.
It is very good and very overwhelming all at the same time
LOL “because I’m about to lose it!” - that made me laugh out loud. I’m sure for you it’s like “omg look what she is able to do now! ….ok that’s enough...” 😂
It’s so exciting see her progress! I love seeing how she figured out how to crawl on all fours with her little lucky arm ✨
😂 I can only stand cleaning up so many messes a day
Freya always brightens my dreary day with her smile. Thanks Freya for making me smile.
Great news about the wheelchair/stroller and although it's tough to deal with - how awesome that Freya is progressing to Toddler stage. 🤗🤗
It really is!
I love Freya the Tiny Tornado ❤. I know, on the one hand, Freya being a toddler is difficult, but, on the other hand, I know it makes you happy that she is growing up and becoming more independent. I'm looking forward to seeing Freya with her new transportation 🥰.
I totally agree! Bitter sweet
I love seeing the progress Freya continues to make, I know her being a typical toddler can get overwhelming but I know deep down it makes you scream with excitement. Thank you for sharing your beautiful family with us.
It is a lot of stuff I didn’t know if she would ever do which is exciting, but also overwhelming 😂
Freya Is a Funny,Adorable and wonderful Little girl ❤.
I love to see how much Freya achieves in her own time and season! What a precious angel! Marci, your skin is so flawless, beautiful lady ❤
Thank you so much!
Happy Valentine’s Day to you and the family ❤. Freya is too stinkin cute 🥰. She looked like she had been crying. I sure don’t miss those toddler days at all!!
Thank you 🤗 she gets clogged tear ducts and gets weepy eyes.
@@Freyasluckyarm love her little heart.
Have a great Valentine's date!! I love hearing that Freya is getting into things! Takes me back to my toddlers. Freya is a little stinker! Lol I love watching her! ❤
My family is recovering. My kids and I all managed to get both Norovirus (stomach flu) and Covid at the same time. Kicked my butt. Today, Valentine's Day, is the anniversary of my husband's death. No one should be widowed or lose their parent on Valentine's Day. Enjoy every holiday, savor every date night and grab all the couple time you can get.
I am so sorry. My mom died right after Christmas and it is not ever fun to remember that. I hope he day passes with minimal pain 💜
I'm so sorry for your loss.
Happy Valentine's Day Marci and Family!! 🤍💜💟🤍💜 Thank you Marci for sharing all your babies with us. I look forward to your videos and can't wait to watch each one !! Hugs xoxo
You are so welcome
Reflux is the worst, I hope you are able to find a good solution. Its great to see how independent she can be. I definitely think that your idea of giving the wheelchair a go is worth it. It just seems like something she would enjoy. Hope everyone had a fun Valentine’s Day❤
I hope so too!
Happy Valentine’s Day! ❤🩷💜💝💘 I hope all of you have a great day!
Thanks for providing another update about the wheelchair. And Freya is just too cute even when she is naughty! ❤
Marcie, you are a natural beauty, makeup is just the cherry on top!♥ Enjoy your night out!
Thank you
It's always a good day when we see Freya's cute little smile ❤ Have fun on your date night, and by the way your makeup looks beautiful, but you are always beautiful without it too! Happy Valentine's Day to you all!!! 💗💗💗
Thank you so much!!
Hi Marci you sound much better. There’s only you who knows best about wheelchair or stroller. Independence is so important, we knew my grandson wouldn’t be able to operate a wheelchair himself, but he did learn to walk. Good luck with the appointment, there’s so much to think about. The cup for Freya looks great. Good girl Freya brushing your teeth. Gosh no kids have a lovely valentines evening, it must feel like heaven having a long earned break. Have fun! Thank you Marci, I absolutely love your videos, they are so full of love and life. I hope you still enjoy making them because they are great to watch! Love to you all! X
Thank you so much. We had a great night
It’s ok Marci. You are always beautiful inside and out. Have a wonderful date with your Husband. Enjoy every minute of your together time. You can see Freya growing daily. God bless her. My Valentine passed 22 years ago. I still miss him a bunch. Happy Valentines Day to you all. Love you, me 😉💋🙋🏼💗💕❤️
I'VE Been following your channel since you started 😊 I am at "AWE" with the leaps and bounds Freya has made. She's very much in tune to what's going on...learns at her own pace, and time but She's amazing ❤ I follow little Sebastián and see that each child with CDLS is different, I know that each mom wishes for that miracle, the next step, the first toddler stage.....It's wonderful She's doing as well as she is, I get so excited when I see what she does, and how she communicates what she does not want... your little Freya is a Happy little girl because she has a wonderful mother and father, and siblings that are such a help too in her development...love from Moncton NB (Canada)
The new chair is so exciting! The back and seat part of a wheelchair can be adjusted to a height/width that works best for Freya to push and if need be they always have the option for power assist wheels so she doesn't have to push as much to get around. She doesn't seem to have strength issues so that's in her favor. As far as I know, power assist wheels function independently so it's possible to have it active on one side and not the other. The only thing you might need to watch for is if her lucky arm reaches the outer rim of the wheel, otherwise she'll end up using the wheel that touches the floor. Since she likes to put her hands in her mouth I thought it was worth mentioning.
I love her independence. Such a big girl! ❤
Just a little tip, when applying mascara don't pump the brush up and down as it will dry out quicker . I live your family xxx🎉
I’m sure you have this down to a science (no pun intended) but when you see all the specialists at the convention, maybe use your phone voice memo to record? I cannot imagine committing all that input to memory in a single day. Excited all the Docs will be so accessible for you and Freya. Happy ♥ Day to the whole family!
I have a book that I write things down in. It is a lifesaver!
She is such a a blessing....love and hugs to all ❤️❤️❤️❤️❤️❤️🥰🥰🥰🥰🥰🥰
Baby girl had a very busy day 😂❤ Happy Valentines Day to you all❤
Acid reflux is the worst, my boyfriend and I both have it. I hope she can outgrow it. I also hear ya on the pants, my boyfriend used to be an autobody salesman and his pockets would always end up pulling away making holes on the corners. He's now an autobody manager so hopefully they won't keep tearing up now.
Freya soo happy to hear you are being a typical toddler and getting into everything! 🩷😂 Take it easy on your mom tho! Lol! 😂
Thank you!!
I have no idea, but is it possible to get both the wheelchair and adaptive stroller? This way you would have more choice for different activities and such. What a great cup. It is sure to be a big hit! I have never seen these before. I too subscribe to Roots and Refuge. It is one of the best all around gardening channels. Hah, Freya knows her mind. ❤😊
Unfortunately not you get one every 5 years.
Your makeup always looks so put together...enjoy your date..
Thank you!!
Freya so good at brushing her teeth that’s nice that’s very good that she likes brushing her teeth. She’s growing so fast she’s so cute. Happy Valentine’s Day.❤
Hi Marci, I always go straight to Freyas channel to see her smiling,laughing and learning new things. Im happy to see her growing and gaining a little more weight. Enjoy your evening with hubby. You have a beautiful family. Your children are amazingly helpful with little sister. ♥️♥️♥️♥️💐😀
Thank you so much!
Hello adorable Freya!❤
Yaaay! I hope you will meet Steph and Sebastian ❤
I hope so too!
Love your makeup ❤️😊 glad you and Chris had fun on y'all's date night 😊❤ thanks for sharing 😊❤👍!! The cookies looks good 😊 HAVE A BLESS DAY TO YOU ALL 🙏❤️ thanks for the update ❤️🙏❤️🙏❤️🙏😊😊😊!!!
Thank you so much 🤗
My sister and I use to sneak sweetarts in bed at bed time when we were at the cottage😂
They are so yummy
Always fun hanging out!
You should do both you never know when you will use the stroller we used one for my grandson when he was not feeling well. Could do wheel chair any other time. Stroller is also good for shopping
We can only get one covered through our insurance
Good morning, although it's 4 pm here! It's ❤to see you happy valentines
❤❤❤❤I LOVE YOU PRINCESS FREYAAA ❤️💝💌
We
Love to see your videos I am happy divorced but my own reason. a
Hi Marci I have seen one of those mugs very cool
Happy Valentines Day Marcie and to your family ❤😊❤
Hi Marci, such a sweet video ❤. Could you tell us a little bit more about Freya ... you mentioned she had scoliosis. Will she need a brace for this ?... Lovely to see you and Chris enjoy your time out.
So far her scoliosis has not gotten any worse so no brace needed but that is why we keep an eye on it
You may check and make sure they’re not produced in a plant that makes stuff with milk or gluten cross contamination.
Example Doritos are made with tomatoes in them. Fritos is produced by Doritos so we have to watch giving Fritos due to allergies
I got the biggest kick out of watching her face as you were describing all the toddler things she had been into… I hope Freya’s lucky arm is healing well so that she can continue to crawl and exasperate her Mom! 😂 I’m not sure I wouldn’t patch her pants on the inside so that she has extra padding and protection. Maybe find some coordinating fabric and fashion appliqué designs on her bum! With your sewing skills, it would be so cute! I’d make some for when you went out and use the worn ones while at home. You are so creative and it may allow you a creative outlet for some recharging for yourself? Best to you and love for you all…
You are so pretty, you don't need that much make-up!
Oh thank you!
I think she will walk one day....as she gets more muscle by pulling herself up . I didn't know she had scoliosis too, I was born with it, never had surgery, and now 65 , I was lucky. 40 degree curve. I walk normally,
Wow. I think Freya’s is 12 percent. Well it was the last time we checked.
Oh Marcie. I have Celiacs too! ) : i am so sorry! ) :
It’s pretty awful. Easier now after about 15 years, but still crave those donuts and cinnamon rolls
😂 she is so cute
Marcie, you are such a great seamstress, I bet you could design your own cute patches using front side or legs of a pair of britches. (If you find some time!) 🤣
Freya is so cute & active. She just keeps progressing. 💖 Could any of her new foods or formula be triggering her reflux?
I have friends with children with rare syndromes. The children love being with other kids like themselves & the parents thrive on meeting other parents. What a wonderful service these specialists give to the community.
Happy Valentine's Day toyour whole family. ❤🍫🍓🐹🐻🐨💐
I’m not sure. I thought we had isolated what we as causing her reflux. But it is a common symptom of cdls so it might just be apart of our life.
@@Freyasluckyarm I figured so, but she's so busy & trying new things. Hopefully a medication change will get it back under control again. 🙏 💖
I've lived well with MS & reflux for nearly 30 years.
Happy happy Valentine's Day
Have you seen Cog Hill Family Farm? If she likes farm animals, Freya might like it.
I haven’t.
❤
Were they by any chance talking about House of Hughes? I don't know how old Freya exactly is but their son is about 4 and just recently got a manual wheelchair. They are also in Utah
It was not house of Hughes. It is someone on Instagram I follow 💜
@@Freyasluckyarm oh
💜🌻
2:18 I do too
11:18 ❤❤
❤❤❤❤❤❤❤❤😊
❤❤❤❤❤
What did the Children Hospital Test show
I did a live video about this today that I saved
💕💕🙏🙏💕💕
Would an electric wheelchair be an option because of her lucky arm?
I think k the only issue would be if she could understand how to use it.
@@Freyasluckyarm Beckham from A House of Hughes, who also lives in Utah, has Cerebral Palsy, has just got his first wheelchair. He is actually using it independently quite well, considering he has a degree of brain damage, due to his extremely early birth. It could be worth communicating with her to see if it’s an option for Freya
I hope this ok to ask. If not I am sorry. I am still learning what is ok to ask. I have autism but I am learning. How old is Freya. She is super cute along with her siblings. You all are super amazing. Thank you for share it Freyas and your journey with CDLS.
She is 4 and a half
😊❤x
Hi Freia❤
❤