My Pain Dr and Urologist have agreed that this is something I am a good candidate for. I had lived 29 years with severe Interstitial Cystitis. I also have met an IC Sister that actually has this implant! She is going through this journey with me! She has been PAIN FREE and off her pain meds and can do almost anything-- this looks like a HUGE BLESSING!! An answer to prayer to this "hell" for 21 years. I just basically now just only leave my apt if I have an apt or need groceries. I miss my grandchildren. I rarely spend time with them now and am so looking forward to giving this a try!! My IC Sister said she knew in 2 days the DRG would work...and it has! I have been through COUNTLESS meds, therapies, nerve blocks, etc. I am so excited!! Thank-you for all this information!!
It would have been helpful to see what the trial looks like, what the surgeries are like to place the leads and set up the trial (temporary) showing what the surgery and post-surgery experiences are like. The same for the final version and the battery implant-- what that looks like, a sneak peak view of a patient. Then, the aftermath, because we are considering a permanent addition to our bodies.
I know it’s several months later since this has aired, for some reason I have landed here. I had this done back in April of this year (2020). The pain relief I got from this was amazing 🤩 I couldn’t believe the relief I had from 30 plus years of this pain I had. It’s now December of (2020) I find it’s not hardly working anymore. I have tried to adjust the numbers but just doesn’t seem to work. I am now off all meds except one. I wonder at times if the meds were are masking all the pain I had. I am so upset that this was just a 9 month trick my body played on me. With the pain coming back I am so upset 😭. I still see my pain doctor on a monthly basis. I’m just at my wits end again. I don’t wanna go back on all the meds.
I've been fighting CRPS since 1994 and was told nothing can be done for me as I've had CRPS for too long. It's frustrating and hard to except the fact that I'll never get better. I'm sick of being told I'm faking it from ppl that doesn't understand what I'm going through. I swear work comp is trying to drive me crazy or kill me! As I don't have the strength mentally or physically to keep fighting them.
Hi Wanda! I've been symptomatic in both hands & feet for over 3 years now. My original injury was to my right wrist in 2011. I went to Mexico to visit Warren Gohl last year. I'm not cured but the dynamic stretching exercises & self massage with a tennis ball that he taught me combined with cold therapy have helped enourmously. His magic hands also worked wonders. I've not taken any pain meds since the flight to Mexico. Under normal circumstances I was swimming a lot too. I first heard of Arik through the RSDSA YT channel. This was the video: ua-cam.com/video/5GyVA5g9bns/v-deo.html www.manualligamenttherapy.com/ All the best from Scotland!
I wish I had someone to explain to work comp what I'm going through. My lawyer is trying but doesn't have the knowledge of CRPS. I go to trial in October and who knows what will happen. I wish I could feel normal and pain free. Money doesn't give me my life back!
If it works the same as a trial outside the body as it would inside the body WHY implant the devise. When you put it inside the body, this is where things go wrong. Movement of the signal is what has happened to many, including myself when I had my SCS. Also foreign body inside is not good for many also.
I much prefer having an impact to lugging around the battery on a belt all the time. Plus you have an opening in your body that is an infection risk, so the external device is not worry-free. But to each their own. (Disclosure: I have artificial implanted knee and hip joints implanted in my body as well as a DRG stimulator, so I may have a bias in regard to internal implants.)
I have both knees replaced and I have an Interstim unit which basically regulates my bladder as a pacemaker regulates the heart. I am on my 3rd Interim unit ( has been changed due to battery dying). That device is implanted in my left hip. I did 7 day trial for it 19 years ago. Having it implanted doesn't hurt and no one can tell through your clothes or swim suit. DRG will be a welcomed implant. As long as it helps, it will be a blessing!
My Pain Dr and Urologist have agreed that this is something I am a good candidate for. I had lived 29 years with severe Interstitial Cystitis. I also have met an IC Sister that actually has this implant! She is going through this journey with me! She has been PAIN FREE and off her pain meds and can do almost anything-- this looks like a HUGE BLESSING!! An answer to prayer to this "hell" for 21 years. I just basically now just only leave my apt if I have an apt or need groceries. I miss my grandchildren. I rarely spend time with them now and am so looking forward to giving this a try!! My IC Sister said she knew in 2 days the DRG would work...and it has! I have been through COUNTLESS meds, therapies, nerve blocks, etc. I am so excited!! Thank-you for all this information!!
Thank you for sharing an insight to chronic pain. I look forward to learning more about DRG treatments.
It would have been helpful to see what the trial looks like, what the surgeries are like to place the leads and set up the trial (temporary) showing what the surgery and post-surgery experiences are like. The same for the final version and the battery implant-- what that looks like, a sneak peak view of a patient. Then, the aftermath, because we are considering a permanent addition to our bodies.
I know it’s several months later since this has aired, for some reason I have landed here. I had this done back in April of this year (2020). The pain relief I got from this was amazing 🤩 I couldn’t believe the relief I had from 30 plus years of this pain I had. It’s now December of (2020) I find it’s not hardly working anymore. I have tried to adjust the numbers but just doesn’t seem to work. I am now off all meds except one. I wonder at times if the meds were are masking all the pain I had. I am so upset that this was just a 9 month trick my body played on me. With the pain coming back I am so upset 😭. I still see my pain doctor on a monthly basis. I’m just at my wits end again. I don’t wanna go back on all the meds.
I've been fighting CRPS since 1994 and was told nothing can be done for me as I've had CRPS for too long. It's frustrating and hard to except the fact that I'll never get better. I'm sick of being told I'm faking it from ppl that doesn't understand what I'm going through. I swear work comp is trying to drive me crazy or kill me! As I don't have the strength mentally or physically to keep fighting them.
They make your condition worse
Hi Wanda! I've been symptomatic in both hands & feet for over 3 years now. My original injury was to my right wrist in 2011. I went to Mexico to visit Warren Gohl last year. I'm not cured but the dynamic stretching exercises & self massage with a tennis ball that he taught me combined with cold therapy have helped enourmously. His magic hands also worked wonders. I've not taken any pain meds since the flight to Mexico. Under normal circumstances I was swimming a lot too. I first heard of Arik through the RSDSA YT channel. This was the video: ua-cam.com/video/5GyVA5g9bns/v-deo.html www.manualligamenttherapy.com/
All the best from Scotland!
I wish I had someone to explain to work comp what I'm going through. My lawyer is trying but doesn't have the knowledge of CRPS. I go to trial in October and who knows what will happen. I wish I could feel normal and pain free. Money doesn't give me my life back!
Do you need a new lawyer? If so, please email us at info@rsds.org.
If it works the same as a trial outside the body as it would inside the body WHY implant the devise. When you put it inside the body, this is where things go wrong. Movement of the signal is what has happened to many, including myself when I had my SCS. Also foreign body inside is not good for many also.
good thought, a peripheral nerve simulator is outside the body
I much prefer having an impact to lugging around the battery on a belt all the time. Plus you have an opening in your body that is an infection risk, so the external device is not worry-free. But to each their own. (Disclosure: I have artificial implanted knee and hip joints implanted in my body as well as a DRG stimulator, so I may have a bias in regard to internal implants.)
I have both knees replaced and I have an Interstim unit which basically regulates my bladder as a pacemaker regulates the heart. I am on my 3rd Interim unit ( has been changed due to battery dying). That device is implanted in my left hip. I did 7 day trial for it 19 years ago. Having it implanted doesn't hurt and no one can tell through your clothes or swim suit. DRG will be a welcomed implant. As long as it helps, it will be a blessing!