Thank-you for posting this Julie. Coming from a PT, this is extra useful for me as a new-ish chronic pain PT in Canada...................I work in public health, so no pool access. Our approach is a team-based one consisting of PT/OT/RN to address the various areas impacted by Chronic pain. In particular we look a lot at emotion/mental health and how our feelings/beliefs/thoughts influence pain levels. So happy you had such a great recovery, although clearly it's been a long journey for you. Stay Healthy!
Very informative! I was diagnosed in October 2017. I have not heard of Aquatic PT. My RSD is in my right foot. I have lost my job and health insurance. I feel that there is no help out here for RSD patients. Great message. THank you!
I suffer with full-body rsd/crps for 16 years of hell.I have discovered some things to do and get pain relief.Its in my head,eyes,nose,mouth,throat,the entire torso with alot of rib and joint pain ,I have it so bad my face shows rsd unlike others.I have it from head to toe.Im a advocate were I live I do everything I can do to help.I hope to help many people and make a impact on them and they can do what I have done.Its not easy but it can be done.
Wow, this is truly a fantastic and informative presentation. I've been through 100+ PT sessions and only just discovered the pool last week. It is life changing, totally essential for anyone who can't walk or exercise normally due to CRPS. This should be the number one hit when searching CRPS because it has sooo much good info and practical tips for therapy. Thank you so much for giving this speech and posting this video!
I agree with the healing powers of water. I have CRPS all over my body, it started in my lower left leg and foot. Almost nothing has helped with the pain although some things have helped reduce the pain a little bit. Anyways, for me the portable hot tub I purchased has really helped me get through the day. It has to be cool outside or it doesn't work. Somehow it seems to "reset" my nervous system pain loop. It does NOT remove the pain, it does NOT remove the loop however it DOES seem to remove some of the pain in the loop. Stretching seems to be important to get the most out of your time in hot water. I've also been on medical marijuana even before it was legalized in my state, and it is the only reason I am still here with all of you. I love it!
What do you do if you have both feet, both legs, both arms, hands, stomach, back, and face and head CRPS. IT spread. It used to be both legs and feet thighs down.
Hello. I was said I might have CRPS by my doctor. It resulted from an injury I had on my foot. I don't have constant pain. But when I try to walk, I can feel blood rush in my foot and it changes in color. Is this blood pooling a common symptom in CRPS patients?
Hi if u responding to me i got a permanent fitted 12-12-19 i love it but hate it at the same time but i will grow to love it as i get more relief than i did without and i am grateful for it i really really am :') happy tears some relief is better than none right! Over the moon! Hopefully off meds and where i want and need to be soon. Babysteps but every step is a hurdle! And one more hurdle to getting where i want to be inspired by u but i dnt understand the limb but nobody will unless they endure what we have to day to day torture even without ur limb from a sufferer of crps that sounds worse! :,( imagine feeling pain that is not physically there? Even though ours show signs and symptoms must b awful i pity them
I have full body CRPS and two failed back surgeries the last being a frontal fusion of L4/5 with cage with only Tylenol as unable to take narcotics and that’s when I got CRPS 6 days later in both feet and legs. Back didn’t start hurting from fusion and cage until 6 months later and it spread to hands and arms and just 5 months ago face which includes jaws, teeth, nose, eyes, severe vision loss is happening, horrific migraines daily, and had EGD a year ago and it went inside stomach and severely nauseous everyday nonstop and bowels and bladder problems from beginning 9 years ago and leaking bile ever since and severe pain and swelling of stomach and kidney problems but my primary doesn’t know except I have a lot of blood and even more debilitating back pain which I can’t even roll over or move. I’ve been couch bound basically these 9 years but could sit 5 minutes or less at a time, that worse position, stand or walk up to 5 or 10 minutes. Laying was only position that didn’t fire off continuous. I don’t know if mirror would work since it’s everywhere. The sympathetic nerve injections helped burning pain a lot but the knives and breaking of toes and calves cramping up and knee and thighs do burn on fire and hips and starts at toes and stays but spreads and you may be trying to walk from a doctor appointment to car and longer you go more it hurts until you fall. You are screaming in pain. The pain is off the charts. You can’t use wheelchair cause no sitting. I’ve been trying to use Walker with my back as I feel it’s come apart and I move my toe and it excruciates in back. Back hurts the last 3 weeks every position. I don’t know what device to keep from falling. Lay down wheelchair but I wouldn’t be able to see and I don’t think they make that. Recliners set off nerves. I have to be flat. I have two different problems CRPS and back and world reknown back surgeon said my back it can’t be touched. Do not let anyone touch my back now. He said only thing I can do is pray for a miracle. There is a home PT coming to my house who knows nothing about me or CRPS and I am afraid he will hurt me instead of helping. What do you suggest for me. I’m in Knoxville Tennessee.
People know they get dehydrated in the pool because they are moving and breathing more profoundly , besides thus silly comment It is a good presentation
Thank-you for posting this Julie. Coming from a PT, this is extra useful for me as a new-ish chronic pain PT in Canada...................I work in public health, so no pool access. Our approach is a team-based one consisting of PT/OT/RN to address the various areas impacted by Chronic pain. In particular we look a lot at emotion/mental health and how our feelings/beliefs/thoughts influence pain levels. So happy you had such a great recovery, although clearly it's been a long journey for you. Stay Healthy!
Very informative! I was diagnosed in October 2017. I have not heard of Aquatic PT. My RSD is in my right foot. I have lost my job and health insurance. I feel that there is no help out here for RSD patients.
Great message. THank you!
Stacey, where do you live?
Me too ,I lost everything I NEED help Im miserable
@@isabella3025 may I call you, what is your #?
Send it to my email: info@rsds.org
@@RSDSAmy ph 7862817393
I suffer with full-body rsd/crps for 16 years of hell.I have discovered some things to do and get pain relief.Its in my head,eyes,nose,mouth,throat,the entire torso with alot of rib and joint pain ,I have it so bad my face shows rsd unlike others.I have it from head to toe.Im a advocate were I live I do everything I can do to help.I hope to help many people and make a impact on them and they can do what I have done.Its not easy but it can be done.
@Kimberly please I NEED help Im so desperate can you help me my email yosamsung@yahoo.com
@@isabella3025 I'm willing to discuss options. I'm newly diagnosed. alexisbrouillette@gmail.com
Wow, this is truly a fantastic and informative presentation. I've been through 100+ PT sessions and only just discovered the pool last week. It is life changing, totally essential for anyone who can't walk or exercise normally due to CRPS. This should be the number one hit when searching CRPS because it has sooo much good info and practical tips for therapy. Thank you so much for giving this speech and posting this video!
I forwarded you comment to Julie, glad you 're improving!
your
I agree with the healing powers of water.
I have CRPS all over my body, it started in my lower left leg and foot. Almost nothing has helped with the pain although some things have helped reduce the pain a little bit. Anyways, for me the portable hot tub I purchased has really helped me get through the day. It has to be cool outside or it doesn't work. Somehow it seems to "reset" my nervous system pain loop. It does NOT remove the pain, it does NOT remove the loop however it DOES seem to remove some of the pain in the loop. Stretching seems to be important to get the most out of your time in hot water. I've also been on medical marijuana even before it was legalized in my state, and it is the only reason I am still here with all of you.
I love it!
Hello sir ,how you use marijuana in the form of tab, or oil.Is CBD oil and marijuana same thing.
Thank you - This is great information!
Can a stellate ganglion block help with pain sensitisation.
What do you do if you have both feet, both legs, both arms, hands, stomach, back, and face and head CRPS. IT spread. It used to be both legs and feet thighs down.
Does all this only retrain a new case of crps or would it help me after having this for over 20 years?
Hello. I was said I might have CRPS by my doctor. It resulted from an injury I had on my foot. I don't have constant pain. But when I try to walk, I can feel blood rush in my foot and it changes in color. Is this blood pooling a common symptom in CRPS patients?
sorry that nothing has helped yet? Have you investigated a peripheral nerve stimulator which can target the specific nerve which was injured?
Hi if u responding to me i got a permanent fitted 12-12-19 i love it but hate it at the same time but i will grow to love it as i get more relief than i did without and i am grateful for it i really really am :') happy tears some relief is better than none right! Over the moon! Hopefully off meds and where i want and need to be soon. Babysteps but every step is a hurdle! And one more hurdle to getting where i want to be inspired by u but i dnt understand the limb but nobody will unless they endure what we have to day to day torture even without ur limb from a sufferer of crps that sounds worse! :,( imagine feeling pain that is not physically there? Even though ours show signs and symptoms must b awful i pity them
@@kimberleyhenderson1336 I'm glad that something is helping and that you can reduce your oral meds.
I have full body CRPS and two failed back surgeries the last being a frontal fusion of L4/5 with cage with only Tylenol as unable to take narcotics and that’s when I got CRPS 6 days later in both feet and legs. Back didn’t start hurting from fusion and cage until 6 months later and it spread to hands and arms and just 5 months ago face which includes jaws, teeth, nose, eyes, severe vision loss is happening, horrific migraines daily, and had EGD a year ago and it went inside stomach and severely nauseous everyday nonstop and bowels and bladder problems from beginning 9 years ago and leaking bile ever since and severe pain and swelling of stomach and kidney problems but my primary doesn’t know except I have a lot of blood and even more debilitating back pain which I can’t even roll over or move. I’ve been couch bound basically these 9 years but could sit 5 minutes or less at a time, that worse position, stand or walk up to 5 or 10 minutes. Laying was only position that didn’t fire off continuous. I don’t know if mirror would work since it’s everywhere. The sympathetic nerve injections helped burning pain a lot but the knives and breaking of toes and calves cramping up and knee and thighs do burn on fire and hips and starts at toes and stays but spreads and you may be trying to walk from a doctor appointment to car and longer you go more it hurts until you fall. You are screaming in pain. The pain is off the charts. You can’t use wheelchair cause no sitting. I’ve been trying to use Walker with my back as I feel it’s come apart and I move my toe and it excruciates in back. Back hurts the last 3 weeks every position. I don’t know what device to keep from falling. Lay down wheelchair but I wouldn’t be able to see and I don’t think they make that. Recliners set off nerves. I have to be flat. I have two different problems CRPS and back and world reknown back surgeon said my back it can’t be touched. Do not let anyone touch my back now. He said only thing I can do is pray for a miracle. There is a home PT coming to my house who knows nothing about me or CRPS and I am afraid he will hurt me instead of helping. What do you suggest for me. I’m in Knoxville Tennessee.
Send us an email at info@rsds.org. We can send you a list for Tennessee.
I am an aquatic instructor with CRPS and closing pools and hot tubs is making me much worse.
Hopefully, we will get a handle on this virus soon, it's unbelievable how poorly we have responded
I agree it makes me worse also,.I have tried different temp pools, 4 different temperatures everyday. I get no relief 😌
People know they get dehydrated in the pool because they are moving and breathing more profoundly , besides thus silly comment
It is a good presentation
Crps-2 was willing to try anything but i give up! Whats the point? NONE
Kimberly, feel free to email me. I am newly diagnosed. I have done some home treatment. alexisbrouillette@gmail.com
Feel free to email me. alexisbrouillette@gmail.com
I am suicidal now
@@abanaabana5757 Praying for you 🙏🙏🙏
I’m sorry but I have CRPS and there is kni
Hey Tavia! I think your comment got cut off!