how our daughters with CDG go to school & feel included

Hi guys! In this episode, we answered questions about how our girls with Congenital Disorders of Glycosylation (CDG) go to school. You guys asked us on Instagram about how that works, how it's affected them and what our plan is moving forward so we dove right in! Raising awareness about CDG is important to us and we are happy to talk about it. Let us know in the comments if there are any other questions you have!
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[@user-mo6gn3jo7e]

I know that's hard, i wish you to stay strong

[@janyrianichole6406]

Thanks for posting 🫶🏽🫶🏽

[@adeladel.]

Hi👍🌟💎🎉🔥🐼🐿️🦄🦄👏

[@Beirut27]

I wish she wouldn't make gestures as if she were an actor in a silent movie and had not met Dr Scalpel and Mr Botox.