CIRS Group- I’m wondering if you guys might consider doing some “how to” videos or “day in the life” videos regarding keeping your space tidy and clean, and how to tend to pets as a CIRS sufferer. Do you clean your living space daily? How often do you deep clean? Do you wash the body of your animal daily or weekly as well as daily feet cleaning? What do you use? It’s difficult to conceptualize the steps of cleaning my space adequately with so much fatigue and brain fog. I learn best through seeing someone else do their thing. Also wondering if I should stop allowing my cat who has been affected by the moldy house into my bed. I’m very conflicted about this as he doesn’t have a companion and the family that I love with don’t allow him in their room. Thanks for all the hard work you’re doing. It’s a godsend.
Interesting suggestion! I will contemplate how we can make this work for a podcast format too. Barbara's provider put in her doctor's orders to "keep loving on Rosie" so I would imagine the same goes for the kitty ❤️
@@colintracey7874No, not on the walls. I just used the dry swiffer to get the "dust" (if any). But I realize I've lived here 30yrs. NEVER dusted the walls like this. Curious if I should try the Wet version... Now...
This is perfect timing. I'm just about to start remediation. No professionals around here have ever heard of of CIRS or even have a clue how to properly do the remediation, so I'm going to have to learn all this info and direct the people to do it right. Thankfully, there doesn't seem to be massive amounts of remediation to do, but it's nice to have some ideas on the step by step process. BTW, what do you think about mold dogs? I had a mold dog come to my house and found it very interesting.
Oh, another thought about cleaning - what happens to us when we get very old and haven't the ability to do the cleaning ourselves and can't afford to pay for it?
Yes! Barbara here. I plan to pass along any tests and plans for remediation I get from local mold inspectors/contractors over to one of the experts that spoke at CIRSx for a second opinion/blessing. I think hiring one of them as a consultant on a project like remediating your home is a great insurance policy to make sure the people you hire are doing things as correctly as possible. Links to all the experts are in the show notes. We are not affiliated with them in anyway, but were just impressed with the knowledge they brought to the conference and would trust them with our own environments.
@@gailivey2015 I think part of the process of healing from CIRS is to continue to be as healthy and able bodied as we can be for as long as possible. That's why, beyond CIRS treatment, Jacie and I focus efforts on building strength and endurance for our longevity. That said, if you're working now, its always wise to save and invest for your future. Start thinking about those costs now and save for them.
@@thecirsgroup forcibly retired, unfortunately, and spending the last of my savings on remediation. After that, who knows? Might be living in my car. Guess I'd better clean that, too!
I am living in a new apartment building (I'm the first tenant) from living in a mold infested house; you could literally see it in restroom (yellow, green pink black) walls, shower, tub, and kitchen around wall and under sink. How long did you take cholestyramine? I have been taking it 6+ weeks and do feel better and can thread a needle now. But when I slow down on the dosing it seems like my symptoms start coming back.
@@thecirsgroup it's a new building so yes. I have arthritis as well. The CSM has worked but I still have mold in my urine. Did you have mold in your urine? It's different from the biotoxin (BT) BT has a negative change does mold also have the same charge or is it positive.
@@thecirsgroup No, the other side - California, where no one thinks mold is an issue and you can't find a remediation company that knows how to remove mold.
CIRS Group-
I’m wondering if you guys might consider doing some “how to” videos or “day in the life” videos regarding keeping your space tidy and clean, and how to tend to pets as a CIRS sufferer.
Do you clean your living space daily? How often do you deep clean?
Do you wash the body of your animal daily or weekly as well as daily feet cleaning? What do you use?
It’s difficult to conceptualize the steps of cleaning my space adequately with so much fatigue and brain fog. I learn best through seeing someone else do their thing.
Also wondering if I should stop allowing my cat who has been affected by the moldy house into my bed. I’m very conflicted about this as he doesn’t have a companion and the family that I love with don’t allow him in their room.
Thanks for all the hard work you’re doing. It’s a godsend.
Interesting suggestion! I will contemplate how we can make this work for a podcast format too. Barbara's provider put in her doctor's orders to "keep loving on Rosie" so I would imagine the same goes for the kitty ❤️
Thanks for the conference debrief. Loved the tip relating to not making the bed for dust mites.
Right?? Like I needed any additional reason to not make my bed haha
@@thecirsgroup 😂😂facts
After swiffering my walls... I was shocked... I will do it monthly. And see how often after that. Probably a quarterly thing.
Yes! If you are particularly susceptible to actinos, you may actually want to clean weekly. But do what you can!
@kirkwolak6375 I'm assuming this is with a wet swiffer?
@@colintracey7874No, not on the walls. I just used the dry swiffer to get the "dust" (if any). But I realize I've lived here 30yrs. NEVER dusted the walls like this.
Curious if I should try the Wet version... Now...
The title is Mother Superior, btw.
Thank you!!
This is perfect timing. I'm just about to start remediation. No professionals around here have ever heard of of CIRS or even have a clue how to properly do the remediation, so I'm going to have to learn all this info and direct the people to do it right. Thankfully, there doesn't seem to be massive amounts of remediation to do, but it's nice to have some ideas on the step by step process. BTW, what do you think about mold dogs? I had a mold dog come to my house and found it very interesting.
Oh, another thought about cleaning - what happens to us when we get very old and haven't the ability to do the cleaning ourselves and can't afford to pay for it?
Yes! Barbara here. I plan to pass along any tests and plans for remediation I get from local mold inspectors/contractors over to one of the experts that spoke at CIRSx for a second opinion/blessing. I think hiring one of them as a consultant on a project like remediating your home is a great insurance policy to make sure the people you hire are doing things as correctly as possible. Links to all the experts are in the show notes. We are not affiliated with them in anyway, but were just impressed with the knowledge they brought to the conference and would trust them with our own environments.
@@gailivey2015 I think part of the process of healing from CIRS is to continue to be as healthy and able bodied as we can be for as long as possible. That's why, beyond CIRS treatment, Jacie and I focus efforts on building strength and endurance for our longevity. That said, if you're working now, its always wise to save and invest for your future. Start thinking about those costs now and save for them.
@@thecirsgroup forcibly retired, unfortunately, and spending the last of my savings on remediation. After that, who knows? Might be living in my car. Guess I'd better clean that, too!
@@thecirsgroup And, of course, that's why I'm carnivore.
I am living in a new apartment building (I'm the first tenant) from living in a mold infested house; you could literally see it in restroom (yellow, green pink black) walls, shower, tub, and kitchen around wall and under sink.
How long did you take cholestyramine? I have been taking it 6+ weeks and do feel better and can thread a needle now. But when I slow down on the dosing it seems like my symptoms start coming back.
Is your current space mold-free?
@@thecirsgroup it's a new building so yes. I have arthritis as well. The CSM has worked but I still have mold in my urine. Did you have mold in your urine? It's different from the biotoxin (BT) BT has a negative change does mold also have the same charge or is it positive.
What is the special soap for skin actinos?
Defense!
@@thecirsgroup thank you 😊
Im still unsure HOW to clean for actinos ???
Nutrition with Judy has a guide on her website! Many practitioners supply guides with their patient literature too!
It's not the actinos. It's the endotoxins.
Oh, homeowners insurance. Cannot even get it where I live, so I get to pay for everything that breaks or wears out or gets destroyed.
Do you... do you live in Florida...?
@@thecirsgroup No, the other side - California, where no one thinks mold is an issue and you can't find a remediation company that knows how to remove mold.
Did anyone have luck with a specific HEPA filter vacuum that wasn't crazy expensive?
Dr. Gruning recommends the Miele - but she is pricey! Members of our group have shared recommendations for the Shark brand
For non homeowners, remediation (as in construction) is not possible!
Typically it is easier for us renters to relocate though, so both routes have their trade offs!