Do You Have Long COVID? It Could Be Affecting Your Brain and Nervous System | Amanpour and Company
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- Опубліковано 2 тра 2024
- This month marks the third anniversary since coronavirus became a global pandemic and the world went into lockdown. Millions still suffer the symptoms of Long COVID-19, a condition doctors are trying urgently to understand. In a new piece for Scientific American, neuroscientist Stephani Sutherland says, “Long COVID now looks like a neurological disease." Sutherland speaks with Hari Sreenivasan alongside Tara Ghormley, a woman who is struggling with the condition.
Originally aired on March 16, 2023
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Amanpour and Company features wide-ranging, in-depth conversations with global thought leaders and cultural influencers on the issues and trends impacting the world each day, from politics, business and technology to arts, science and sports. Christiane Amanpour leads the conversation on global and domestic news from London with contributions by prominent journalists Walter Isaacson, Michel Martin, Alicia Menendez and Hari Sreenivasan from the Tisch WNET Studios at Lincoln Center in New York City.
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What doctor will listen? I been dealing with this for 3years now!! No one will listen, they say it's anxiety/ panic attacks!! It clearly isn't!
Same. I’ve been having therapy for the anxiety of dealing with the doctors more than the illness.
It might be worth checking out a functional medicine doctor. Western medicine failed me with my long covid, and I saw a naturopath. He ran bloodwork for vitamin deficiencies, and put me on B12, Vit D, NAC, Benadryl, ZMA, glutathione and creatine. I'm still sick (month 42) but I have many more better days now than bad days. He's also helped me more than any mental health provider ever has and hasn't prescribed me addictive poisons that never worked anyway. Lion's mane mushrooms help the brain fog. Chaga mushrooms are really good too. I've been foraging turkey tail mushrooms since this all began and they shut down the blood pain and the weird peaks and valleys of symptoms. Adaptogens are very powerful tools. I think I would be dead from the insomnia and neurological dysfunction by now if I did not have them. Or, I would've chosen to no longer be alive.
Me too!!! So sorry to hear you are going through this. I am too. It’s debilitating. I’ve been told it’s anxiety and I know I’m not right. But no one takes you seriously or listens
Ma’am, I am a retired doctor and I agree with you. I have had long Covid and it is the real thing and it’s about to wear me out…. I am now using nicotine patches as directed by Dr. Ardis and I’m starting to feel better.
Me too I had debilitating neurological symptoms along with other symptoms but no one understood
Millions of sufferers of post-viral disease live with these conditions. We have been waiting decades for a recognition and treatment of our various symptoms. We are disabled, but have trouble qualifying for assistance. We are called lazy, manipulative, emotionally unstable, urged to exercise and "get over it." Thanks to you for bringing this to our nation's attention.
Nothing beats having a rheumatologist tell you to your face that “you don’t look like a fibromyalgia patient”. Apparently if I’m not crawling in crying and disheveled I’m “fine”? Weird, that. I work as an educator at 80% and come home exhausted. The brain fog is so real…and my admin sadly thinks that it’s disorganization/forgetfulness…which it definitely isn’t.
Too right. I've been stuck with a degree of fatigue for 43 years - following Shingles at age 14.
That one illness totally changed my life in so many ways:
I've had a degree of fatigue ever since.
Brain fog and regular convulsions for 11 years afterwards affected my IQ. (Previously, I had been one of those brainy kids that could do any subject, everything was easy, helped anyone who wanted with their homework. I had been eagerly looking forward to a career in science. After Shingles, that all changed).
Mild depression for a few years after initial infection.
Repeated attacks of Shingles afterwards (had one a few months ago).
My skin is so sensitive and sometimes feels like it's full of lightning.
Some days it can still be very difficult to organise my thoughts, and I'm now getting forgetful.
My husband, 17 years my senior, has always been able to outrun, outwalk, outwork and stay awake longer than I ever have. I can't cycle, can't swim, can't undertake high impact exercise like doing gym workouts - as he can.
Shingles has been a life sentence.
I really wish I'd had access to Chicken Pox vaccinations when I was a kid. Things would've been so different - instead of which, I've hardly worked all my life, can't get unemployment benefit (because I haven't put enough into the system to qualify), and can't get disability allowance (because my condition isn't visible, doesn't manifest physically, and has never been taken seriously). My lack of consistent work has affected the value of my state pension, but there's nothing I can do about it.
Get yourself Artemic support. Cleared my brain fog symptoms in 3 days. Its an amazing product from Germany.
@@debbiehenri345The same for me here in Canada. I was first injured while riding my bike. It was a hit and run by teenagers.
I also had viral infections. Later I got covid. Does anyone experience swelling on your ribs that is hard and hurts?
@@debbiehenri345for what it's worth you have explained that wonderfully well and my heart just breaks for anyone who has not found help in the medical world from professionals that understand not every serious chronic ailment shows on your face, on an arm or a knee or in an x-ray or scan.
I'm sure there's nothing you haven't tried from a to z, and all I can say is God bless your spouse and damn a government that cannot understand that your suffering is as legitimate and life-changing as someone who lives in a wheelchair.
Wondering if there any medications that all you have found at all helpful. I'm sure you've tried and given so many a chance.
I know that if I had to suffer chronic pain (which I did in my twenties) and had gone through the wringer trying everything possible spending money I didn't have,... I would probably just succumb to being an opiate addict because being out of pain even for some part of everyday is better than suffering every part of everyday. But that's just me, I know there are men and women out there who are better men and women than I. At least in that regard.
All my best to you, Debbie. I hope there will be an answer
Three years into a pandemic and still no advocacy for FREE UNIVERSAL HEALTHCARE FOR ALL. Make it happen Amanpour!
Tara Ghormley was my vet for at least 5 years. She saved my pets and was the best vet. But I remember that starting in 2019 she became sick and her doctors had no idea why. The symptoms were something they couldn’t figure out. She moved and we miss her so much. She is one of the smartest people I know and so dedicated to her job as a veterinarian. ❤
My family contracted Covid in Dec 2019. We had no real idea of it we visited my parents in mid Jan when we were feeling somewhat better, still no idea it may have been Covid. Dad died with double pneumonia 1 week later. We will forever near the burden of causing Dad's demise at 100 years and 7 months of age. My sil had a long Covid diagnosis a year ago, and it's generally accepted that my then 40 year old and I have it too. I do love that my appetite has vanished bc I've shed 45 pounds in the last 2 years. Unfortunately, my sil was already too thin. I have all the vaxx I can get and mask up out of the home. Any outing exhausts me for a couple of days. But bc we couldn't get a diagnosis in late Dec. Sil can't apply for disability,, but he now works for his new LLC.
Look
I saw her last night
ua-cam.com/video/mIU2FCyE3gc/v-deo.html
Long Covid changed me forever.
After getting sick w/ an “unknown” virus in late 2020, I spent nearly a year of my life in & out of specialists’ offices, ERs, urgent care facilities, you name it. I was taken by ambulance on at least 1 occasion. I had an abnormal resting heart rate that would spike extremely high or slow down extremely low, seemingly based on nothing at all. I couldn’t digest more than one solid meal a day. I had incredibly low energy and was bedridden for an entire month when this first started happening in Jan ‘21. 6 months on, I still could not participate in any athletic activities, or I would certainly experience a flare-up of my symptoms, and felt like I could pass out at any given moment. I became even more forgetful than I already am.
Prior to getting sick, I was completely healthy, save for my genetically acquired ADHD. I am only mostly healthy today because 1 specialist I saw intervened and put me on low-dose medications to treat each of the symptoms.
I don’t wish Long Covid on anyone. It really made me start to appreciate life more.
Same here. Many who had covid with digestive issues test for SIBO bacteria. So a SIBO breath test may be worth it!
Had same symptoms, but not so bad. Last booster shot seems to have kicked Covid out of my system. Mostly recovered, but its hard getting the body back to normal.
What medications? and what dosage? how often? and which specialist? Help people by giving the details of how exactly you got better. That would be nice. Wouldnt it?
@@raybod1775 its been got covid 1st of 2020 now in 2023 after Feb and 4 boosters brain fog lifting still digestive system little off no appetite ,sometime i force myself to just eat one more bite,but thankful I can drive again and have strength to stay up till 9,:30 lol
Omg I have the same exact symptoms my heart slows down I feel like I'll pass out and then my heart will race and pound out of my chest. I'm still on o2 and never smoked in my life.
My respects to the interview for his tone of voice, phrasing & overall calm presence. Excellently done.
I see a lot of similarities between long Covid and Fibromyalgia. I have had Fibromyalgia for 30 years. At first there was very little help or even acknowledgement from the medical community. However, it has improved over the years. I found something very useful from a Neurologist on UA-cam from England. Compression of the upper legs and waist help to keep blood from rushing to your feet and therefore help a lot of the weakness and brain fog. Also, a strict routine of strength and flexibility exercises first thing in the morning, regular and nutritional meals as well as adequate sleep help a lot. I managed to live a full and meaningful life so do not give up…..keep on keeping on, life is something that happens and it is up to you to make it bearable if not downright good…..so make it good. 🤞
Thanks for the advice! of course a Doctor from England or any other country that has real doctors. Drs in the U.S. are shit. My friend was diagnosed with Fibromyalgia. I had never heard of it but when I started doing the research years ago I realized it was just a name Drs made up because they have NO IDEA what causes it. Lyme disease is what causes the same exact symptoms of Fibromyalgia. Lyme disease with multiple species of bacteria PLUS parasites which thanks to the over population of dogs, everyone has parasites. Microscopic parasite eggs are airborne from dog feces no matter if it’s picked up, once the dog defecates, they’re out in the air, infiltrating us through our eyes, nostrils, mouth. Also parasites come of of dog’s asses and enter the human’s ass hole without being seen (microscopic). Dogs are the main transmitter of disease to humans yet Doctors NEVER treat anyone for parasites. I had to buy medications from India, Moldova and Hong Kong which are over the counter. In the U.S. no physician even mentions parasites which cause all the Fibromyalgia symptoms, pain, fatigue, foggy brain, irregular heart beats. Sometimes all night insomnia, others sleep a lot. Erratic symptoms. They’re not shown in any urianalysis nor blood test. Resilient f ck rs are hard to kill so people remain ill never being cured by incompetent doctors.
Have you been tested for Pathogenic Mycoplasma Infections? Dr. Garth Nicholson is an expert on them and his scientific lectures on them and their prevalence in CFS, Fibromyalgia, Lou Gehrigs, Chronic Lyme Disease & Autism is all documented in his team’s findings.
His step daughter, had it along with her entire Fighter Pilot Squadron during the Gulf War. How do you get Gulf War Syndrome, when you’re in the Air Force and are never on the ground?
Mycoplasma contaminated vaccines was the answer he found out.
I also have Fibromyalgia. My Rheumatologist does the 18 point test where most only do the 11 point test. Fibromyalgia definitely affects Covid. Do you avoid taking extra B6? I was using Nutritional Yeast Flakes (680% B6) but stopped. I have noticed that my nerve pain isn't as bad. Can you post the link to the English Doctor?
@@user-wk2ch9sz5x doctors r the absolute f ing worst.
I used to have fibromyalgia. I did the carnivore elimination diet and found that the foods I was eating was causing it. I also discovered that food was causing my bipolar disorder, panic attacks, migraines, knee pain, high blood pressure, and vision problems. Now I don't eat any of those foods that I sometimes ate daily and I'm healthier than I've ever been. In all those years and numerous doctors and specialists, no one ever asked me what I was eating.
I got a relatively mild case of Covid in September 2020 and I’ve never been well since . I know I have long Covid. The symptoms for me are extreme fatigue which has turned my life inside out and upside down because I used to be a super active person and now I can barely get through the day. It’s hard to explain how frustrating it is because I’m used to being super healthy. Pre-Covid. I had one cold in 10 years and now I’m out of breath just waking up and walking around my apartment and, I have the severe memory problems also. Because the doctors still don’t understand what’s causing it ,There is no cure for it. And I am definitely disabled at this point and for the last 2 1/2 years.
I’m so sorry. Same situation. Doctors dont know shit in the U.S. I take herbal teas and eat very healthy, underweight, I cant seem to gain any weight and I am exhausted all the time. Are you getting Social Security Disability? I’m not old enough to retire but I’m wondering what’s going to happen when I run out of digging into my savings and retirement fund since I cant work full time now. Anything else that might have helped you? Do you do Yoga? exercise? weights?
I have fibromyalgia. I understand what it’s like to suffer from chronic fatigue and grieve the loss of who you used to be. The antidepressant
“ Mirtazipine”, which is the generic form of “ Remeron” is the miracle drug that reversed the chronic fatigue and I could once again function like I used to. My psychiatrist prescribes it but any general practitioner should be able to also. Extremely important :: Start with the LOWEST dose! You may not need to increase it at all. You will avoid the significant usual weight gain ! 15 mgs is all I need for it to be effective. I hope this helps someone reading the comments and my prayers for all those that are suffering with symptoms. 🙏
@@alisonmcguffey5896 I will look into that. Thank you for the suggestion!
I know I had it in Jan 2020 but was milder I guess. We coughed for three months. Then I had it again. I am 69 years old, un vaxxed, yet I’m sure I have some residue of long Covid
@@user-wk2ch9sz5x
Ask your dr to give you a T-3, T-4, test for a possible Hyperactive Thyroid Condition? 👍🏽
I have said this before: the worse thing about COVID will not be dying. It will be the marked disability from “Long” COVID and the socioeconomic fallout.
Both of my parents (unvaccinated) got Covid in December of 2021. My dad had just been admitted to a nursing home the week before and they caught it there. My dad died and though my mom's case was "mild", she still suffers from brain fog, memory loss, disrupted sense of taste and smell, emotional lability and fatigue. People think I'm nuts because I do everything possible to avoid Covid (fully vaxxed, always mask indoors, avoid indoor dining, avoid indoor events, etc.) but I've had CFS in the past for nearly a decade and then was diagnosed with Sjogren's (autoimmune disease) in 2019. I also have hypertension and asthma. I'm a prime candidate for Long Covid and I don't want it.
Condolences and rest in peace. Did the docs provide monoclonal antibody treatment, steroids and antiinflamatory meds or did they just use remdisivere?
There's a growing body of evidence that suggests having repeated doses of mRNA vaccines (ie Covid vaccines) actually increases one's risk factors for catching the disease it is supposed to prevent.
In a study conducted by Cleveland Clinic on members of its own workforce, it was discovered that among those who tested positive for the disease, the greater number of positive cases were those who had received multiple doses of boosters.
The UK government has moved away from extended recommendation of covid vaccination across population demographics and are now only recommending for elderly and certain, at risk members of the population.
The number of vaccine injured and adverse effects sufferers now logged, should have been enough for CDC and WHO etc, etc, to have pulled mRNA vaccines for Covid entirely from the market, until further research has been conducted on their efficacy and pharmacokinetics.
It is also apparent that as the disease has mutated and become less pathogenically intense there's likely to be less chance of becoming seriously unwell. Simultaneously, the vaccine has been shown to have a very short lasting window of efficacy against the disease but the potential to have long lasting adverse effects on the recipient, while for most people, natural immunity gained from exposure to Covid, is conferring longer lasting immunity.
I will not be getting any more doses of this type of so called vaccine.
Keep watching scientists such as the one interviewed here, and channels such as Dr John Campbell. Things are emerging that are astounding and have undermined credibility and trust in big pharma and their conflicts of interest with governments, scientists etc. This is a disturbing period in human history.
you should not be wearing masks outdoors. At best, it does nothing, at worst it affects absorption of essential UV rays, Vit D and can impede a healthy intake of oxygen... not to mention the nasty build of bacteria.
Deanna; you are not nuts; you are at amazingly high risk of a bad outcome and will need to do this for the rest of your life, as this virus is endemic.
I, for one, don't think you're nuts for trying to avoid the airborne, preventable disease. I think there're many of us, and I thank you for wearing the respirator and sharing your story.
*LONG COVID IS ASTONISHING REAL* before covid I was at the gym 6 days a week, and ran 5 miles a day with my dog - 70% of the time I now walk with a stick...
Yeah I get you. I used gym and was out all day! Now just making a meal is a big big victory
@@theancientsancients1769 - I just went to the hardware store - that will probably be all I can manage today - I may have to go to bed in a couple hours. Its ridiculous.
Nocked myself out of Long Haul Covid, that i had almost 3 years... Probiotics, 5x as many, and a lot of different kinds... My Dogs, a few months ago, were laying there about 22 hours a day, the last Mutation, was making them very weak, didn't want to go for a Walk most of the time, out of breath after a half block walk... i started giving them a lot of my Probiotics... they woke up, and took me on long walks, my 16 Shiba Inu was pulling me hard on walks and longer, than she ever had.. both, walked longer, and came home, NOT out of breath... then i found some proof of Probiotics... Dr. John Campbell, that get around a Million hit a day on UA-cam... for awhile Dr. Campbell talking about Excess Deaths, and the reason why Africa had such a low death rate, one They have talked about, they are Young in Africa... the other, he sneaked in, UA-cam likes to attack him a lot, the 2nd reason he said, was Parasites in the Stomach, up's people's Immune System... So some proof that Probiotics helps, it helps a lot... but bad News, one of the Mutation that came out a few months ago, Dr. John Campbell tried to put out, the Vaccine didn't work against this new mutation... and we learned the Hard way, me, the wife, the dogs... very weak, very weak... so i figured our immune system wasn't working against of this Mutation... but i don't know how much the Probiotics were helping against this mutation... so if you take it, with a bad mutation, and say it doesn't work... it's not the Probiotics aren't helping, if you ask me... i hate to think, if i wasn't taking the Probiotics that it could have killed one of us... a lot more to my story... but what can it hurt to take a lot of Probiotics, and a lot of different kinds... some Probiotics they sell, could be worthless... i wish i could get this info out better, but i'm not a Billionaire...etc... but we are finally getting better, took 3 months to fight off this Mutation... and the Pandemic is not over... ever... i was surprised to find out a lot of people, especially young people, don't know what Probiotics are... could write 10 pages on this... but try Probiotics!!! a lot of them, and different kinds, and foods and drinks with bacteria in it... Probiotics don't cost that much!!! let me know if it works for you...
Jabbed ??
@@pawprintsjersey5787 - NO - does that f-uk up your conspiracy theory...??? I got it in March 2020, before the was even research on a vaccination - I DESPERATELY WISH I COULD HAVE BEEN VACCINATED
Through my long COVID symptoms and a wife who works as a patient rep at an HMO I see several holes in reportage on this topic.
Our healthcare system is not recovering from the pandemic. Staff who burned out, retired early or died have not been replaced.
Our for profit healthcare system is in crisis:
No company wants to be the first penguin off the iceberg and raise wages.
Right sizing management means that we have no excess capacity to handle the surge in demand of a pandemic. This resulted in one of the highest death rates for a developed country. As long covid patients age our elder care facilities will soon be overloaded.
I see very little healthcare coverage asking "our system has broken. What do we do now?"
I’m in Canada , where we have a universal health care system funded through taxes.
But this has not prevented our Health Care system from , also , falling into crisis .
Stop blaming everything on the profit motive - it’s deeper than that .
We North Americans are a chronically sick culture ; we forego exercise, eat too much of the wrongs foods and fail at properly managing our emotions .
No Health Care system can effectively manage millions of citizens who are unnecessarily out-of-shape physically , and chronically depressed emotionally.
It’s time to get serious and become more responsible for our own health 🤷
Easier said than done , I admit .
But very possible ✌️
@@angelozachos8777this is callous. It is proven that when patients have access to good affordable (free) healthcare they are healthier. Stop blaming patients. Place the blame on profit driven healthcare, food desserts, low wages, anti-unions, anti-working-family legislation and other systems that have one goal - to drive the money up to the top.
Help Democrats win elections at every level of government. The winners of Elections make the laws. All of this is fixable through good legislation. We've had crappy laws and tearing apart of our social fabric for a long long time. We must run the table and get Democrats in office at every level. Increase wages. Increase parental rights. Bodily autonomy. Healthcare. Medicaid expansion. Veterans and Medicare. Social Security. Environmental protections. Taxing the multi-millionaires MORE. Republicans don't care about anything except making rich people richer. Vote them out. Elect Democrats. Pass good laws that HELP people and the planet.
Very good points and we still don’t have the pandemic under control that say just everyone’s being gaslit about that😂 I laugh because you just can’t cry about it it’s just craziness
Those are not “holes” in this report about Long COVID, it’s simply you expressing dissatisfaction with your healthcare system.
@@angelozachos8777 at some point, you can't keep blaming the victim. There are systemic issues that cause every one of the "individual" failures you mention.
Thanks. Hari Sreenivasan, for this extended interview with Stephani Sutherland and Tara Ghormley, from a retired old Urologist. My Dad was in Allergy / Immunology, and we often discussed my Granduncle, who suffered from the concomitant disease of the last Great Pandemic, with Postencephalitic Parkinsonism, after what they called the “Sleepy Sickness” (Heine Medin) in the 1920s, to the end of his long life. I believe Long COVID also to be an (auto-)immune endovasculitis, which would explain its pleomorphic and pleochronic presentation.
I would add a tip for those afflicted: keep a diary of what goes on, particularly if the ‘brain fog’ includes difficulty in finding words, or in articulation. Doctors tend to credit what they read, more than what they hear.
Thanks Doc..good advice. I miss the old fashioned doctors. These new ones don’t listen and they don’t know how to do a differential diagnosis. Endovasculitis seems apt.
I’m curious as a fibromyalgia sufferer who experiences that exact thing…brain fog with a struggle to find words! Are you aware of a “fibromyalgia connection” to this? I just as a layperson see connectivity, that these are all autoimmune (in the case of fibromyalgia that it may be-or even is at this point?-connected to the Epstein Barr virus).
Thank you for asking about women being believed. This needs to be common knowledge.
I lost a lot of my teenage years suffering in pain, curled up with a heating pad. At age 21 I finally convinced my (4th) new doctor to actually consider it after giving him my history. At that point, two 1 1/2 hour operations were required to clean up the Endometriosis and separate my organs from each other as they were fused together by scar tissue. I had suspected that something was seriously wrong for 9 years by then, but was repeatedly told " You have a great imagination, or "That's all in your head. It can't be as bad as you describe" or "That's impossible, you are pretty theatrical, aren't you?" I was depressed by age 14 and had my first nervous breakdown at 22. Years of gaslighting will teach you to constantly question yourself, not the doctor.
They also told me there was so much scar tissue found it was likely that even if I conceived I could not carry to term, an egg would not attach to scar tissue. Unacceptable.
I then spent a couple of grand (early 1990's) taking Depro Provara & Lupron shots in an attempt to still be able to be a mom someday. Pregnancy was excruciatingly painful but my son is now 22. At 53 I'm still not listened to and feel robbed of that time as a teenager, so much unnecessary pain and mental health trouble.
Unfortunately most doctors know very little about the female body (and don't care to) because the health system is designed for serving men and their needs. So it's much easier to dismiss women as neurotic and give them a little anxiety or depression medication instead of actually listening, or considering there might actually be a problem here.
Some other symptoms of concerns have been happening for so long that it's too late to do anything but treat the symptoms. Hence it's not treatable anymore, and they've given me maybe five years left to live. I'm pretty much in chronic pain, bed bound & unable to be upright for longer than 12 minutes at a time, a couple times a day. I can no longer work to support myself, I've had to cash out my RRSPs, and disability benefit does not provide nowhere near enough to cover my expenses every month. Being able to make a meal means it was a good day.
My good doctor had to retire unexpectedly and I've been experiencing the same kind of treatment as when 14 while trying to find a new, good doc and it's been a couple of years already. Things have changed very little. I lost my Mom way too early (56) because she knew her breast cancer was back, this time in her bones but her doctors didn't believe her and did nothing till I flew back home and took her into hospital myself to get tests and have it addressed. It was too late to do anything and she was given year left to live, which she beat by nine months in order to meet and spend a little time with her first grandchild. I will not live long enough to meet mine. Both of our lives could have been saved if they'd been addressed when we presented our concerns to doctors initially. I"ll be lucky to reach 56 now, our death's were absolutely unnecessary.
My advice? Write everything down with dates & times (point form) and give it to your doc. Go with a supportive male (if possible) because they are more likely to believe what he says over what you say. Yes, I am aware of how ridiculous that sounds, but it works. If they won't read it or dismiss it as 'mental health', leave immediately and try another doctor. For me, it's been the only thing that has helped me find a good doctor. Women deserve to be treated as well as the system serves men, but that's not what we get.
@@changeshifter4852 I wish I could give you a hug right now. That's so terrible, but I have other friends with similar stories, so it's not even unusual. Just horrible.
You can't call out the men, either, because they are so fragile and get angry so easily.
And yes, bringing a man along does help. Stupid, but if you need help you can't wait for the world to get better.
I'm so sorry for all your suffering. You're truly a fighter and I hope your son is the apple of your eye. ❤️💔❤️
@@kikijewell2967 Thank you for your kind words. And yes, he is the best thing I ever made(lol) and my greatest joy in life.
Those of us with myalgic encephalomyelitis/fibromyalgia/chronic fatigue immune deficiency syndrome already had these symptoms before Covid. Some of us received "post-viral syndrome" as a diagnosis from perceptive doctors. There can be layers and often are: Lyme, mold exposure, other viral infections, all leaving behind lasting disability. I personally developed much more profound fatigue and brain fog after the innoculations and subsequent Covid infection in spite of them. I hope the new research will help us all.
Me too, I got cfs diagnosis 10 years ago. Fortunately I had really mild covid (didn't catch it until omicron) due to being vaxed and boosted but my last booster set off a chronic fatigue relapse so now I'm in the position of debating between risking a pre-winter booster or risking getting sicker when I eventually catch one of the new variants.
The difference for me after getting long covid and already living working with CFS is memory and sensitivities.. brain frontal lobe issues and lost artistic abilities organizational skills .. memory as in no concept of time unless I try really hard to think! The CFS was pain and crashing after pushing myself but I could think.. not now and it’s very scary! Meds I take to help get built up in my system and cause issues getting off as in allergy pill xyzal that was great for itching and daily headaches .. coming off causes esophageal spasms and facial swelling on one side! 🤷🏻♀️
@@joisagirlsname Please, for the love of God, don't take another one of these shots - especially if the one you got made you sick. The FLCCC has a prophylaxis (prevention) protocol. And from my personal experience I can say that it works.
@@user-nj8xf4gy1v I probably won't. But just so you know: first 2 shots didn't affect my cfs at all, it was only the 3rd one that seemed to flair it up
Then why did you get an experiment tal vaccine??? This is 1976 swine flu experimental vaccine! You're probably way old enough to remember that. Why would you think this is any different? You literally asked for it.
I really appreciate you guys covering this! Long covid can feel like he'll, especially if you aren't being listened to.
Nocked myself out of Long Haul Covid, that i had almost 3 years... Probiotics, 5x as many, and a lot of different kinds... My Dogs, a few months ago, were laying there about 22 hours a day, the last Mutation, was making them very weak, didn't want to go for a Walk most of the time, out of breath after a half block walk... i started giving them a lot of my Probiotics... they woke up, and took me on long walks, my 16 Shiba Inu was pulling me hard on walks and longer, than she ever had.. both, walked longer, and came home, NOT out of breath... then i found some proof of Probiotics... Dr. John Campbell, that get around a Million hit a day on UA-cam... for awhile Dr. Campbell talking about Excess Deaths, and the reason why Africa had such a low death rate, one They have talked about, they are Young in Africa... the other, he sneaked in, UA-cam likes to attack him a lot, the 2nd reason he said, was Parasites in the Stomach, up's people's Immune System... So some proof that Probiotics helps, it helps a lot... but bad News, one of the Mutation that came out a few months ago, Dr. John Campbell tried to put out, the Vaccine didn't work against new mutation... and we learned the Hard way, me, the wife, the dogs... very weak, very weak... so i figured our immune system wasn't working against of this Mutation... but i don't know how much the Probiotics were helping against this mutation... so if you take it, with a bad mutation, and say it doesn't work... it's not the Probiotics aren't helping, if you ask me... i hate to think, if i wasn't taking the Probiotics that it could have killed one of us... a lot more to my story... but what can it hurt to take a lot of Probiotics, and a lot of different kinds... some Probiotics they sell, could be worthless... i wish i could get this info out better, but i'm not a Billionaire...etc... but we are finally getting better, took 3 months to fight off this Mutation... and the Pandemic is not over... ever... i was surprised to find out a lot of people, especially young people, don't know what Probiotics are... could write 10 pages on this... but try Probiotics!!! a lot of them, and different kinds, and foods and drinks with bacteria in it... Let me know if it helps you... pls
@TheLoneJourney people who've had long covid have had it before the vaccine, I and other people got long covid before the vaccines came out, and I'm still not vaccinated as well.
Maybe you should watch the video before coming to comment without any proof, why try to stigmatize people who have legitimate issues due to covid.
Post viral illnesses have been around forever.
I can't hardly WALK or use my arms from CRUSHING FATIGUE and muscle weakness after having Covid with no symptoms a year ago and vaxxed 3 times NO ONE CAN TELL ME WHY after dozens of MRIs blood tests cat scans x-rays NO ONE CAN SAY WHAT CAUSED THIS AND ITS PAINFULL
See www.medicalmedium.com
For alternative healing.
Not sure if you’ve considered it’s the shots that caused your condition? There are a lot of people who have had severe reactions. FLCCC has a treatment protocol for those with residual symptoms AND from the shots. I hope you feel better soon!
I think you've already answered your own question.
Polysorbate 80 allows the female monkey kidney cell, enveloped in Graphene HYDROXIDE to enter your brain and splice into your RNA, under the pineal gland.
Look into NAC and Bromelin as a combination - plenty of info if look hard enough...
OMG...tysvm for sharing this. I have been feeling 'guilty 'for months now explaining to doctors some of the EXACT issues you described. I've been made to feel like these symptoms are 'in my head' or not real. I have been covid positive twice. first in 2020 and again in 2022. I have ''adapted' my life to compensate for the symptoms as well. This last visit with the pulmonologist she caught the high blood pressure spike but called it a misread and repeated it until the reading became more normalized! You have no idea what a RELIEF you've given me validating what I am experiencing is REAL!!!
That’s normal to be gaslit by the medical community. They were doing that after people got the special magic bullet that didn’t do crud.
Always, trust yourself
No one can “make you believe” anything, it’s a matter of self-confidence. I felt the same way when I was legitimately ill and can be confusing, and infuriating, to have a medical professional question your perception. When going to the doctor, the first BP check is frequently high. It’s known in the medical community as white coat syndrome. That’s why they give you a little bit of time to get settled and then recheck it. I like the idea of keeping a daily record of your symptoms, including your vital signs. Automatic B/P cuffs are relatively inexpensive and often read your pulse.
I was in an ambulance when my heart shot to 250 and dove to 50 again and again. The new paramedic thought it was the ruts on the Alaska Hwy. My regular paramedic told her something like that is Cindy's heart.
In 1989 I was diagnosed with CFS. My medical records were so good they were able to say I had it since I was 13. In November 2022 I had a *very mild* case of Covid. Now I have Long Covid. My brain fog is significantly worse.
That blows chunks, gurl, I'm sorry😢
You’ve been through a long road of caregiver, doubt and characterization. As a health worker, I am sorry for your treatment. You aren’t alone.
I so feel for you
amazing you got any feedback
You need your booster
I strongly believed,daily exercise, eat variety of fruits and vegetables,Good hydration is important for overall good health.Making sure you get fresh air, sunshine(vitamin D) and enough sleep are the best method to maintain strong immune system especially to the elderly.This is an immune booster fits all.
I'm dizzy all of the time, have memory loss and terrible brain fog with fatigue. ive never had these problems before.
How many shots did you get?
Same here and I got 3 shots due to the government program.. I live in the Netherlands by the way but our leaders don't want the data to be released..
@@xyzxyz8811 More than that is how many MRNA shots were there?
Please believe your patients. ❤️
WE are here. ALL of us😒 Hitting 3 years......Hang in there Tara! And thank you!
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!
If the CDC would stop downplaying long covid case numbers, NIH would be much more likely to get their act together and make progress on treatment
There are tons of researchers focused on Long covid! Sadly, research tasks time. They have to gather data, separate types of long covid, test theories, invent a mouse model (if you don't have mice that are the right kind of sick, you can't try to cure it), and gather people for clinical trials. It's a truly massive undertaking.
It also doesn't help that we could use more physicians with the right specialties!
I guess my point is that I don't think long covid is forgotten by the medical community. I think many people are concerned and working for better outcomes. Generally, we could have better general public understanding and there will always be a need for funding!
@@michellekaiser-eo6lg many of the studies happening are completely garbage though. I was a part of the RECOVER study and they were recommending graded exercise even though ME patients have been warning against that for years now. Just super basic things they’re just now learning. I withdrew from the study for concern for my health. I don’t have a ton of confidence in RECOVER. LISTEN from Yale is a much more equipped study, and they are also studying a sister cohort of vax injured patients with the same symptoms. I’m also enrolled in this study, but it’s not getting the same level of funding as RECOVER by a long shot.
Doctors need to be checking for liver damage or liver function from the inflammation, also.
Life expectancy is going to go down.
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!
I was diagnosed with Fibromyalgia in 2007 during a yearly physical at a hospital. I have met doctors who told me that they "didn't believe in it" I've read all I could and recall the idea that Fibromyalgia was caused by a virus. But since we didn't come from a pandemic all at once, very little was done, except to try to change the name to ME/CFS. It is insulting that *NONE* of these "experts" even mentions that the symptoms are the _SAME_ and I have to say, in the early stages there are remissions, but it never actually gets better only worse.
I had hope that now having proof that these symptoms are caused by a virus that Fibromyalgia sufferers might get some help, but after watching this I can see it will probably never happen.
_Tom's wife Pam_
Read my comment to Sharon B. above
@@user-wk2ch9sz5x Did those de-worming meds cure your friend?
Tom's wife Pam, I completely understand your frustration!! Bcuz of fibro, I don't get vaxed for anything, anything, my hubby & I both got very ill,he's fine now but I have even weirder body issues post covid January 22.my dr was the only group treating, not sure we would have made it otherwise..now just more stuff to learn to live with.
Fibromyalgia is real, You catch it after getting glandular fever
@@mdow1716 I'm almost 75,mine started at age 40 after a hysterectomy...although I've hurt from a young age,I was told it's just growing pains..I have 3daughters 2 have it BAD..my Mom died at 59 from MS my Dad and his Mom were crippled with arthritis...I quit hunting for "the " cure,ie.stopped being a guinea pig as I'm tired of all pills with massive side effects Lyrica almost did me in...it is what it is...
Got the same thing in July of 2017, way before covid. People have been dealing with this for decades. Time for the medical system to step up! The doctor hit the nail on the head when she described it as a “neural immune syndrome “. I hope this will result in a treatment for all of us out there.
My once healthy active adult Son niw has heart problems and brain fog. Short term memory loss. Fatigue. He is unable to work with heart problems and rapid heart rate and going into v tac. This us 2 years out.
Lidia, I am not a doctor but from personal experience with others who had covid, including long term side affects, dietary changes made a huge difference. Watch any reaction to any food (stomach upset, headache, itching, pain, etc.) and eliminate that food. Eat non-processed, organic if you can. Good quality multi vitamins, especially D3; and vitamins that support the nervous system. Lion's Mane mushroom supplement by Host Defence helps with brain fog. Sit in the sun if you can. I'm sure you are doing many of these things. Just know you are not alone and we will be holding your son in our prayers.
@lidiawalters6126. Was he vaxxed?
vaxxed or not vaxxed?
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!!!🙏🏼
Your video really surprises me. I have suffered from Long COVID since early 2022, and my symptoms are all neurological. Back then, most news organizations denied that Long COVID existed, and doctors told Long COVID patients that they were suffering from emotional problems. Glad we are finally able to discuss this rationally.
The NIH website has information on long covid. Also
Good luck and good health
I am absolutely positive that I came down with COVID before it was so identified. In January of 2020 I was the sickest I had ever been in my life....on January 5th, 2021 I decided I was going to die during the night and apologized to whoever found me dead, dirty, nasty, being unable to take care of myself. I made it thanks to an aggressive antibiotic schedule. But I've never been the same and I have had some very very serious health events in my life. Brain fog, constant fatigue, cannot focus, food tastes like metal....God help us all. My retirement plans fell through this black hole after I had invested much in those plans and barely scratch by. I would keep swimming, dancing, exploring, but I don't have any energy to do so and that causes deep depression.....
📣We got it AUGUST 2019 ☎️NOW ON OUR 15 the Variant ZERO COVID PROTOCOL IN TEXAS. DO NOT COME HERE📜🇺🇸🗽🦅⏳
did you have the plizfer vaccines?
I have said this from the beginning. When I got out of the hospital it was evident that all of my symptoms were nervous system related. Flight and fight was activated before infection and the infection really inflamed my nervous system. My heart rate also shoots up but I believe it has to do to to the nervous system failing to give signals to my heart. I told my drs I thought it was related to the vagus nerve and when they didn’t have answers for me I took it in my self to work my nervous system. Yoga, acupuncture and anti inflammatory diet has helped. I’m happy to see progress being made. We are not depressed this is real.
The first comment I've seen about fight or flight - thank you for sharing. I had the same experience and have a long struggle to get it under control. Initially felt like extreme anxiety with uncontrollable palpitations.
You know, I had gotten a VERY bad case of the flu at the end of Jan 2020, I had to go to the ER & my state didn't even have Covids tests at that time but the doc said I had *A VIRUS* & it was not the regular flu strains. This was my only known possible time of potential Covid. I already have non Hodgkins follicular lymphoma. I don't know if I would consider myself having "long Covid" per se but I for sure have memory & cognitive processing decline, and word finding problems are very noticeable. Very significant brain fog for the first few hours after waking also noticeable. I already know about my ADHD but those symptoms also increased. And fatigue? Horrible! I also have CNS dysfunction and fortunately I don't notice a notable change.
Thank you for this informative segment!
It sounds like you really did have Covid but because it was just emerging and there were no Covid test yet your doctor couldn't come up with a definitive diagnosis. Now you have developed long Covid symptoms piled on top of your existing problem with lymphoma and ADHD. The problem for you now will be to find a physician that acknowledges that long Covid exists and will consider that its what is causing your new and increasing symptoms.
I've had the main 2 vax's and one booster and I've had nasal congestion and fatigue ever since. In Dec 2020 I had a similar experience as described in comment above and also af5er 3rd shot, I had drop foot and feared I was developing MS, but after months it went away. Still I have a clumbsier gate and nonstop congestion and get tired easily, plus brain fog and achy joints. Makes me wonder...
I hear you. I have ADHD too and have had same symptoms (not lymphoma) and fear as yourself for over 6 yrs now. In past I have had both drop foot and Bell's Palsy twice along with Epstein Barr virus in early twenties (30+ yrs ago). Finally diagnosed with ME/CFS & Fibromyalgia last year, I know now that I will remain pretty much bed bound permanently. Because I have refused to take opiates or nerve blocks yet, the only break from pain is due to occasional dry needling/deep tissue stimulation, which is painful for 3ish days but will give me 3-4 days _almost_ pain free. It doesn't really improve mobility, energy & brain fog tho, just the pain.
If your Doc hasn't already ruled ME/CFS out, I'd suggest asking him to make sure that's not it either. I am not a doctor but your symptoms sure sounds similar. Good luck to you on your search for answers as I know it long it can take and how frustrating it is. I really hope for you that it ends up being something that there's a cure/treatment for and not ME/CFS or fibromyalgia.
I know it's hard, but be as patient and kind to yourself as you would be to your best friend. You bloody well deserve it!
That is almost exactly my symptoms and time line. They didn't have COVID testing then even though I went into the emergency room. My doctor said I don't know that I had COVID. What makes it worse for me is that no one wants to hear about your symptoms including my doctor, S.O. or family. They have their own family issues & work issues. Now I live alone and I spend more time in bed than out. I have run marathons and now to walk to the top of my road is an exhausting endeavor.
I can't read more than 15 min. Before I have headaches, dizziness and disorientation. I wake up with brain fog and go to bed with brain fog.🤕😤
@@mikepriverguy I understand completely what you are going thru because you are describing my life now. I didn't run marathons, I loved to hike (the 7-14 day kind) and now can barely walk around my house. It has been devastating and traumatic, and people that I did tell responded with, "Well, everyone gets tired/fatigued" (?!), so I no longer bother unless asked directly. 🙄
My family still does not understand or respect my current condition, thinking that I am making it up, so I get only anger back when I can't join them all at BDays/Holidays. You are not alone here, my friend, and my journey to diagnosis took 6 years. Hopefully yours won't be as long. Ask if it could even be a B12 deficiency, which has similar symptoms, but I have found that medical doctors are not trained to recognize it (shocking, I know). I am still extremely frustrated, but I am slowly learning to adapt and be patient with myself. You still matter and can still contribute something that matters to the world, so don't give up. Sent with love & understanding from 🇨🇦
Thank you for this coverage. Coming up on three years disabled as a survivor with long COVID.
sorry bro my moms had it for a long time too, really hard to watch her, she can barely fking walk and was denied long term disability, insurance company says shes fine cause all the tests dont show anythings wrong with her! fking disgusting reptiles. but her doctor says she can't work so shes off with out pay after working a government job for 25 years.. sick world good luck youll get better eventually they say
Survivor of W.HAT??????
It seems he had the original Wuhan virus from 2020 then developed long COVID
@@larsgsanger3105 A Survivor of COVID- 19 .
I feel like it's trying to.put me in the ground every day.
@@larsgsanger3105YOU should be ashamed. On here harassing people. YOU are what's wrong with this world.
Just STOP IT
Try long Lyme and long Covid and you will understand how related the two syndromes are.
Also how utterly unprepared our mainstream medical systems of training, practice, and insurance are.
Crowd-sourced data may be your best informants.
Indeed
yes it seems also similar to reactivated ebv...
What about long cancer
Absolutely. A consultant from Birmingham childrens hospital said that my 4 yo son was a good actor.....
Great coverage thank you. Hari is so great ❤️
I had Covid over Christmas. I tested negative 1 January 2023. However afterwards, I suffered from killer headaches, tiredness, fog, cognitive challenges, muscle pain, and hearing and sight problems. I just thought I had long Covid.
Turns out I have just been diagnosed with three brain tumors. So don’t put it all down to long Covid
Hearing and sight problems definitely not COVID related.
🙏😢
@@Starfish2145 tendinitis is a hearing issue and that is caused from long C
@@Portia620 Tendinitis has nothing to do with hearing! Look it up!
I'm sorry to hear that! Hope you recover God willing. Yes people should test for everything before assuming it's long covid
Yessss finally!!! I found a dr who believe me this past January. I was a working healthy almost 36 year old female when I got covid Nov 2020. Never have I been the same!!!! 😒😒😡 the dr I found that listened in January 2023 thinks I have pots. We did a heart monitor for 2 weeks which showed my average hr to be 80 but my heart rate shot up to 188 with normal adls! I am sure that was during or after my shower cause that is one of the hardest things for me to do now. I get tired/fatigued so easily. I get short of breath, dizzy and can barely walk around my house without feeling pooped! I used to work out 2 hrs daily before this mess. I am so upset over our healthcare system we need to do better! We have failed our own people. Two drs I saw post covid would rather tell me it was in my head than they say we don’t know. I was so depressed (currently working on this). I pray we will all be ourselves soon
I knew more about my own doctor on this. she said "get some fresh air!" So dismissive of my suffering!!
it's the tiredness that gets you and feeling of flu symptoms continue
I am fortunate to have a post-COVID clinic in my area and have finally gotten the help and reassurance that I need. One of the diagnostic indicators is an abnormal orthostatic blood pressure. They are also doing a sleep study because they have found a drop in oxygen to the brain at night to be a possible cause of the brain fog. Also, speech therapy to identify cognitive deficits. I am on 600 mg of N-Acetyl Cysteine (NAC), which is an over the counter anti-inflammatory supplement. I was also prescribed 200 mg of Modafanil, which is an anti-narcolepsy drug that helps me focus. I still get tired, but it is a lot more manageable. I also take 6000IU of vitamin D every day. I still have alarms on my phone to remind me of everyday routine stuff, because Reminders are not enough. This has been my go-to accommodation. I hope that helps❤. One thing to remember is that there are a lot of people walking around out there who are suffering from this. You are not alone! I hope everyone will be able to get the care that they need. This is no fun.
How have you been feeling?
What Research Study & Where?📜🇺🇸🗽🦅⏳
@@naturespleasantriesI am finally feeling better! It has been over a year of this, so it’s about time😅
Hi. The study itself was very simple. They had me wear a pulse oximeter overnight that was connected to a data recording device. It showed my oxygen falling to 80%. Since then I have been sleeping with supplemental O2 via a condenser and that has really been helpful.
I had my third bout of Covid in February this year. I had it when it was first discovered in January 2020, then again in March, 2021 and again in February, 2023. The first time was so bad, I thought I would die. The second was the worst because I was hallucinating and went into fits where I tore my clothing and bedsheets. This last time was much milder, but no picnic. Now, I'm left with impaired memory, vision alterations that have made my glasses useless, and serious sleep issues. For a month, I lost my sense of balance and nearly killed myself falling to the pavement when stepping of a curb downtown. I'm still foggy, can't do arithmetic, suffer from bouts of severe depression and anxiety, and just feel like I'm half the man I used to be. Long Covid is not a fantasy. It does exist, but my doctors can't give me any treatment because they know so little about it.
We need top doctors to get behind this because it does exist. I don’t know why it’s so hard to see how someone like myself when from being super fit with only asthma as a pre existing and then to now have chronic fatigue, MCAS, bone and muscle pain, Arthritis, neuropathy, brain fog, the list goes on.
I had a bad flu 40 years ago and it never went away. After 4 years of no relief I went to Mayo Clinic and was diagnosed with Fibromyalgia/Chronic Fatigue. My symptoms sound just like long covid and was definitely post viral.
I have been suffering from long covid for a few years now. I contracted covid after I attended my Sister in laws funerals. Two funerals in 2 days. My family & I came from out of town & I've always been careful so during covid 19 & traveling with my family we thought we were being even more careful for instance not touching the gas pumps with our bare hands, cleaning the hotel rooms with my cleaners & not hugging as many family members, wearing a mask, etc. When we returned home it hit my husband and I at the same time (Covid) We thought we were going to die. It took us 2 to 3 weeks to recover. Thank God we did. My husband is doing well. Me, not so much. I have muscle pain & weakness, headaches, fever, chills, brain fog, sleepless nights, irritability, mood swings, the Dr's diagnosed me with asthma, I have a hard time breathing, walking long distance & overall just not feeling like myself. The medication I take give me suicidal thoughts but I keep praying & persevering. Covid has given me a new perspective on life. I'm not as joyful as I use to be due to the headaches & constant pain which affect my mood. Pray for those of us who are dealing with long covid & other issues. I really wish I had someone who could listen to me while I'm going through this. Sorry it's so long but thank you for listening to my story.
And yet you thanked God, and keep praying? wish and you'll get better results. if you eat only veggies and nuts, No animal meat. No carbs. Exercise, run even inside the house and you'll see how much better you'll feel. Your body will heal itself with water and vegetables. No sugar at all. Tha'ts what gets me strong to go to the gym and even dancing sometimes.
Have you had your vit d levels checked ?
and i bet you took the vaccine as well
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I had a presumed case of Covid in March 2020. It triggered POTS and my life is drastically changed and deteriorating. It’s frustrating because we were SO CAREFUL in the last 3 years but I got LC before I even had a chance to be careful
What is POTS? Also, since it was a presumed case of covid and not a confirmed case, could there have been another factor or other infection that triggered POTS? Also, did you eventually take the vaxxx or later on got a confirmed sars cov2 infection?
My story is very similar to yours, diagnosed with pots mid 2020 , FLCCC protocol’s for antihistamine Zyrtec/Pepcid , also organic Oil of Oregano has really helped with systemic inflammation.
@@soccersprint So when i got tested, i was sick enough to actually GET a test, which tells you something, but it came back negative. However the infection was just so clear cut covid, the cough lasting weeks, the fever months, no other viral profile matched. I've since had covid and also tested negative like 8 times. Its weird but I honestly think my body doesn't test well for that. I know it sounds weird. I did get the vaxx, 3 of them.
@@greenthumb8266 good to know! thank you!
"hold fast"!
I had 2 grandmothers who survived the 1918+ Spanish flu..
Both of them had Parkinson’s as they got older..
My greatgrandmother had Parkinson. No one else in the family has ever had it. I find your statement interesting.
Did they have post viral syndrome too similar to long COVID?
Not all Parkinsons symptoms are actually Parkinsons disease. Autopsy will tell if the substantia nigrans is affected. If it's not then what seems like Parkinsons is not the actual diagnosis.
I’ve reread this and I sound like a know-it-all and I sure don’t but I know one thing that can probably help everyone with a chronic illness or disability so please take this as an offering. I have a severe neuropathy from 2015 so I’ve been through this. Do get treatment from physicians for any symptoms they can identify in any organ, system or body part but also accept that some of what’s wrong can’t be fixed with medicine. Because symptoms can vary so much between and within people, you will be surprised, scared and sad as your body does new weird things. It’s going to be critical to be able to separate those reactions to your symptoms from the actual events in your body, and from what’s happening around you that have physical, cognitive and emotional consequences. Mindfulness training lets you calm yourself and look around and in to check on what your body is doing, what your thoughts are and and your emotional response. All those are valid, but if you feel scared and are thinking that you’ll never be able play tennis again, it’s important to separate them so you can examine what your body is doing and saying, without interference. If lack of input from my leg to my brain has caused my brain to send an alert that something is wrong by making my leg feel like it’s on fire, being frightened by the sudden severe but inexplicable pain won’t help, and will cause additional physical reactions like rapid pulse and adrenaline bursts. Getting in my head quickly and shutting some of that down allows me to recognize that I have meaningless pain, there’s nothing to respond to, and I’ll just have to ride out the pain. It’s not good but it’s much better, and over time periods of relief can get longer. I’m always going to be disabled and I can’t predict how I’ll be on Tuesday but I have a good independent life. May you all have good fortune in your healthcare team and the people around you ❤
considering autopsies of covid patients have revealed lungs that full of clots. Why doesn't someone do an autopsy of the brain of a long covid patient and see if there are any clots in the brain? I understand this would be really difficult considering most people with long covid are still alive, but the topic of clots was never brought up.
Saw a video where they were telling that during autopsy they examined brain tissue and it looked like a sponge- damaged by spike proteins. The deceased was super vaxxed.
Good point!
@joe that can be shown on a mri/ ct brain.
I have brain fog and had both done and everything was normal
I have a close friend with it. He did everything right. He took all the vaccines and isolated and wore masks. The only thing he didn't do was get treatment when he finally got COVID. It's so sad and hard that he is so exhausted so easily and suffers so much from other symptoms.
Treatment for covid🙂?? Death☠️⚠️
There is no treatment. The doctor will just tell you to sit this one out. Maybe the jab caused his symptoms?
@@samanthalake5011 U bet! God bless❤️
If you read that slowly back to yourself you will have your answer.
Maybe he didn’t do everything right… The govt should have provided early treatment packs-Ivermectin, HCQ, Vit D, etc…-from the get-go. THAT would have saved lives.
Hari has ben going above & beyond for a couple of days now
Long COVID changed my life for the worse, I have all the symptoms she mentions in the video and I have several more issues from my chronic illnesses. My husband now has fatigue, My poor daughter didn't get long COVID, but now has Fibromuscular dysplasia which she was born with but never presented itself until she had COVID.
Apparently, Covid finds the "weak spot" and attacks there, in many cases.
I wish you and your family a complete recovery.
🤢I caught it in December and yes still suffer with😵💫 brain fog and heart pains shortness of breath and no I do not smoke never have. I also find that I am losing my 🧓hair at alarming amounts since then. Both my husband and I still have side effects from this Virus.🤒
I had Covid last Oct. And have the astonishing hair loss, terrible fatigue, and brain fog/word loss.
Same I had hair loss 2-3 months after. 😢 it’s grown baxk now but seeing it come off the brush in that amount is pretty scary
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!
My husband and I definitely have memory loss, but I think he has it worse than I do. We had COVID 2x, at the beginning of the pandemic and the end of last year.
@TheLoneJourney They are not trolls! Tens of millions have long COVID! Before this was even known early on in 2020 I noticed something was not right
@@thelonejourneyyou are a despicable person for saying that!! Disgusting.
Thank you so much for this segment. Millions of us are trying to get a voice for this destructive condition.
Had it in Jan 2022 (a week after my second Moderna booster). Since then, I smell smoke everywhere I go, and certain foods I used to love now taste weird. The worst thing for me though is how incredibly tired I am all day. It takes everything in me to get through work, then I come home and collapse. It’s dreadfully depressing.**I’m editing this to add that I realize my symptoms are far less extreme than others. Even so, it has changed how I view life. I sometimes even feel sort of passively suicidal. Like I’m so tired I wouldn’t mind if I never woke up 😢
Omg smelling smoke! Same with me and i quit smoking after 49 yrs! Cannot smell or taste, exhausted all the time, and when i tell my doc she just shrugs. This has been 3 years. I am very depressed and find solace only in my bong!
@@aribencanaan26 me too, cannabis helps alot!!! The bad smell thing has vanished for me after a year and a half my nose is a lot better. My back and head feel bad. Anyone else?
Ah now, I know. It is so God damned depressing, especially when so few people believe you. One of my friends told me to work my quads more! And another said maybe I was just depressed. So back to my bong I go. Don't despair, please. It can't last forever. I feel for you because you have to work. I'm retired, so I just brood and sulk, waiting for my lost taste and smell. Please keep your chin up.
I know! it's so hard!! I had that very thought tonight! I have palpitations, chest pain, FATIGUE!!!, nausea and I thought "what if tonight was my last night," and thought "I don't care." SHOCKING!! THAT IS NOT ME!!!!
It's attacking my kidneys and intestines
I WILL ISOLATE AND WEAR A MASK FOREVER......Life is worth it....people laugh at me...I don't laugh at them as I am watching their sickness...There is peace in solitude....good luck everyone.
I've already got several severe medical conditions at the age of 57 that make my life hell.
I don't want or need even a 3% reduction in any of my faculties, stamina, taste...
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!!!🙏🏼
This is my life now...
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!!!🙏🏼
I have long Covid and I am not interested in drug treatment. Nutritional improvement is imperative and I have had some difficulty with that. Of course sometimes it’s difficult to do the exercise because of exhaustion… But nutrition and vitamin supplements, and abstinence from coffee and junk food and alcohol are important. Also meditation and engagement and something that is truly interesting. Sleep is a big factor and I do take an over-the-counter sleep aid periodically but I’m not interested in getting pharmaceuticals. I don’t think they are really necessary, having worked in the pharmaceutical industry for my entire adult life - for this particular syndrome, nutrition, supplements, and lifestyle changes are probably better than any kind of drug. Walks when possible, massages if you can afford it, Healing music, meditation.
Pharmaceuticals yes but manufactured in other countries like Peru, Switzerland, Germany and India. All the medications from the U.S. are from American Pharmceutical companies only who have a MONOPOLY and full control of the congress since their lobbyiests write the laws and pay their bribes of over $1.5 million dollars so they feed us POISON called Prescription medicines. Never buy here. Go to other countries, even little islands in Panama, Costa Rica have excellent medications and medical care. Everyone is ill with chronic illness in the U.S.
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!
I join 24 hr fitness. Whirlpool ,swimming and wet steam helps my lungs and my breathing a lot. And yes meditation s been helping me in many ways.
my mom got it in may 2022, she had 3 vaccines, was EXTREMELY sick with it for the first 2 weeks, extremely extremely sick... but then just never got better, she was bed ridden for like 5 months through the summer super depressed. now its been 10 months and she can still barely walk, its like shes crippled, her balance is all off, she gets crazy heart palpitations and has gone for heart tests but everythings showing normal. sickest part is she was denied long term disability and isnt getting paid anything, she can't do ANYTHING, i gotta pour her fking cereal in a bowl... fking goverment paying people on stress leave or who knows what but wont pay her, making her fill out all these forms and telling her shes fine... fking hate covid. im 26 i got it too and was off work 2 months fked up! but nothing comparaed to her
The U.S. government has to give 20 billion dollars to the Oil companies, and to the banks and the pharmaceutical companies. They dont give a f .ckk about us americans even though our tax money from working so many years, keep going to the big rich corporations so their CEO’s and congressmen buy more yachts, but somehow they keep getting elected. We should all have healthcare because we pay taxes everywhere, and benefits like in Europe. Sorry for your mom. I truly am sorry. We should all be angry and divest ourselves from those corporations feeding the evil Govt. decision makers who screw us all.
It doesn't matter what's wrong with a person and how truly disabled you/they are, the only way to get SSDI is by hiring a disability lawyer. Trust me, I was/am too ill to work, I also had letters from multiple specialists verifying my disability, and I had/have narcolepsy with cataplexy, severe multiple chemical sensitivity, Sjogren's syndrome, fibromyalgia, congenital cataracts/visually impaired, and ect., and I was still denied SSDI multiple times. It took three long years and after I hired a lawyer I was finally granted disability.
My son also suffered from symptoms of Covid in late November of 2019. When he thought it was the flu but it just would not go away. He still suffers from symptoms long after.
Long covid is chronic fatigue syndrome which I've had 23 years. I deal with it with nutrition, supplements and I've had ozone therapy which helps but is expensive.
I also have mold, lymes dz, various viruses, dysautonomia, food sensitivities. I even had neurological problems after eating raw celery and I'm afraid to eat it now.
Only holistic practitioners have helped me but insurance doesn't pay for them. I also help myself.
Celery is strangely high in oxalates
Yes, I am aware of the oxalate content and the other thought was that this particular celery was not organic so maybe it was the pesticides or a combo of both.
Only one of the GPs at the community clinic I go to believed me when I said what symptoms I was having. We had a frank and honest conversation of what was happening and how much was still unknown, evolving and affecting everyone who became infected with COVID-19, so differently. This was Dec 2020. And since, I've been unable to be seen by him for one reason or another. I think I was flagged by my clinic. Anyway, I have been consistently pursuing better treatment and holding my assigned GP accountable for my health, to a certain extent. I'm much better now but do require meds to function + some holistic additives. So glad for this acknowledgement and report.
I do not have long COVID, but have long term effects from Lyme disease that seem to be similar. And just the same there seems to be no treatment and some physicians do not even take it seriously. I hate to say it, but I am thankful that now other diseases that have lasting effects may finally be taken seriously as well. I hope they find a solution for everyone suffering from these long term conditions.
A lot of these symptoms sound like fibromyalgia. Perhaps some therapies for this will develop into treatments for fibromyalgia and certain other less common diseases.
Or, CRPS even!
Dr's are seeing an increase in thyroid conditions after patients are vaccinated which mimic symptoms of fibermyalgia
I really do not think vaccines can cause what you allude to @FeralLove. The Vaccines do not have chunks of virus in them, or anything like what some think they have. They are MRNA vaccines, not killed virus or attenuated virus vaccines.
Exactly my thoughts but Drs hesitate to diagnose because they don't know about a new blood test that can detect it I've yet to get a Dr to actually BELIEVE ME and give me the damn test
Memory isn't my issue so much as mobility and muscle fatigue CRUSHING LIFE ALTERING FATIGUE
I am still having difficulty with finding words but it is not as bad as it was in the last two and a half years.
I am also getting my taste buds back but food tastes are not equal in that they don't always taste as they should.
Processed food still smells like chemicals.
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!
Thanks for the update on long covid. There’s still a lot of misinformation out there, or just a plain lack of information which makes it hard for both doctors and patients.
The best information on these bio weapons is on the Jimmy Dore show
Endothelial damage causes similar symptoms to POTS but is not POTS. I wonder if you have looked into research being done by Pretorius and Kells, and treatment by Dr Laubscher in SA?
Also in Mulheim in Germany.
Seems like whatever specialist you ask will say it is related to their speciality, not because they know the cause or action of the spike protein but because there are so many symptoms it goes into every or many specialist areas.
What's working for me is Nattokinase and Serrapeptase. Enzyme supplements. Really liberating in reduction of fatigue and brain fog. After 3 years of severe Long Covid.... thanks to the SA research. May not be the only solution or long term but great while it works.
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!!!🙏🏼
I’ve had COVID twice. First time was the absolute worst, this was before the vaccines. Despite double masking everywhere I still got it in December 2020 I was down for three solid weeks. Got it again last December. This time only in bed for five days, not nearly as bad, but I still suffer from some fatigue and a fib. I’m self-employed have no disability insurance though thank God I’m capable of working.
If you rest from work and stay in bed longer if you feel fatigued after then you have long COVID ! Long hates long rest , but likes short-term rest
I also had Covid Christmas 2020. For 3 weeks. I was so tired no appetite and head ache I had all the required Covid shots it seems the symptom I have now in 2023 is severe cold tired no appetite . So fortunate to have the Covid test when I get these colds or allergies .
Thank you for posting this!!! I had covid in April 2020 and I am still not myself. I actually relocated to Arizona, which has helped my breathing. I cannot find a doctor to help me. It’s like they’re brushing it under the carpet without addressing my questions. Yes, some days I do feel like it’s all in my head.😢
It's NOT in your head. Have you seen what's happened to the UA-camr, PhysicsGirl? Unbelievable! She cut off her long flowing beautiful hair because washing it was too exhausting.
There must be more reasearch on Long Covid. I agree with sensitivity to noise and headaches. Just notice how the mental health of society has gotten much worse. Health care system is all about money, don't expect any changes. Eating Mushrooms helps boost immune system.
Thank you for sharing this!
Great interview ❤
We want full programmes on a live streaming format at 11 pm ET every weeknight. Very interesting content. #AmanpourPBS #PBSNEWS
The first time I had COVID was in January of 2021. Long COVID was bad - brain fog, short-term memory problems, forgetting the simplest words (like car or ball) and names, depression (which I have never had before COVID), insomnia, and I would get irritated or overwhelmed very quickly, a recurring rash on my right index finger and blurry vision. Exactly a year after my first infection (to the day), and after full vaccinations, I got COVID again. It wasn't as severe, though, and the strangest thing was that about 2 months after the second infection, the long COVID flare-ups became less frequent; but I still have them, and they still interfere with my job. Luckily, I have a very patient employer who understands that I'm not functioning the way I used to. To this day, I have not seen a doctor about my long COVID. I feel that there is not much that they can do about it anyway.
Smart I not seeing a doctor. They aren't helpful in the COVID problem
I have tried acupuncture and it has helped
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!
I cured my Covid brain with fasting. I was desperate and tried it. It worked. Beautifully. Thank God.
Good for you! I’m going to do a 🌸Spring Cleanse🌸 via fasting too!
I’m desperate and going to try it since I saw this. What kind of fast are you doing? Eat once a day? Thanks
When you fast it allows the body to just work on healing without the task of digesting. I have also had great results with my Huntington's Disease.
Praise God ❤
@@debbielunsford3116 It’s all on you what kind of fast you feel you can do. I started fasting 7 months ago. But I only fast for 24 to 26 hours once or twice a month. The rest of the days I intermittent fast from 12 to 20 hours a day. It all depends on what I feel like doing. But I’ve had Covid 19 twice and the 1st two Covid shots and I’m living great. But I just don’t fast daily. I eat a plant based diet and sometimes I’ll switch to eating some eggs with my diet to help with my bones and joints.
As a long time ms sufferer, this story sounds like me. I never had COVID 19 but, ms yes! The symptoms she mentioned, I have had during the pre and post COVID 19 time period. Neuro logical problem, I think on both diseases.
Agreed! Have you looked into nattokinase! And lions mane which does neurogenesis
Exactly as my comment above. Fibromyalgia is actually Lyme disease. Doctors dont know shit in the U.S. Only greed, that’s all they know.
No one talks about how 400 to 500 people are dieing every day from covid shameful !!!!!!!!!!
@davidgrochmal. And no one is talking about proliferation of cancers, autoimmune diseases, blood clots, and cardiovascular damage these injections are giving either, it's deplorable!!
Or the US as world leader in Covid deaths.
My mom died of Covid the end of January. People are shocked when I tell them.
@@danacaro-herman3530YOU are deplorable.
I had this chronic tiredness for 5-6 years after I got sick in london when the swine flu was spreading in 2009. I could sleep for over 12 hours and I still felt tired. I also had skin problems just before my period. I never had issue in my whole life until then. So I thought as a result of the illness, my hormones was out of wreck. I did got some bio identical progesterone and it made a huge difference and now I am more back to myself. But menopause started a few years ago. 😅 that’s a different ball game. I am an IT professional from a top university. I was so scared that I couldn’t function as I need to be!
Thank you. We seem to be in the middle of this affliction in our family. The brain fog seems to be advancing.
Sadly the medication given to people with Long Covid only treat the symptoms not the damage caused by the virus. Scientists are still working to understand the causes, but have yet to develop to develop anything to repair the damage. If you are suffering from gastric symptoms look into low histamine diet and the use of antihistamines. 🙂👍
I highly suggest somatic therapy for gaining control over your nervous system. It helps to learn to bring regulation and awareness into your system and gain much more control over your mind/body to get to a better window of tolerance for what your body can handle. This in turn gives some ease to very slowly build your system back up and heal.
We only have one nervous system and no matter the cause (thoughts, medical trauma, grief, virus attack, infection, mold, food/allergy inflammation) it has to be built back up and be in shape to heal itself. It takes massive patience and empathy but it can be done.
I couldn't agree more. Somatic Experiencing therapy has helped me more than anything else, and I've tried a lot. I've had POTS, ME/CFS & everything else that comes with that for over 2 decades and after doing SE therapy I no longer need my wheelchair, cane or my home health nurse.
I still get flare ups/crashes but not as frequently and am no longer bed bound. I just need to keep reminding myself to listen to my body, avoid stress/toxic people & places as much as possible, take it slow/baby steps and have tons of grace/compassion on myself. I'm definitely still a work in progress but have made drastic improvements which I'm so incredibly grateful for. Wishing healing to everyone affected by post viral illnesses. ❤
I developed thick blood that slowed oxygen to the brain and was hospitalized for a week in 2021. No clots, thank God but I do have problems with memory like names and shopping for items. I am also very tired and lack energy.
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!
Have had diagnosis of Chronic Fatigue Syndrome since 1988. Millions of us have this and I have the belief that if we were listened to thru the many years instead of ridiculed and made fun of with the same symptoms, I think we would be much further along with help for those who now have post covid problems. The main problem with CFS was that most people who had diagnosis of CFS were and still are women.
I believe I have long Covid. This sounds overly simplistic, but I started doing light therapy ASAP after Covid hit me during Thanksgiving 2022. I was doing better energy wise & thought maybe I was getting better with so much to do for Christmas. That was a big mistake as my energy hit a brick wall suddenly (so tired I could hardly breathe ). I started doing the light therapy again & it’s like a miracle. If I don’t do it everyday I will crash the next day. I shine the near infrared light in my ears & on my abdomen. I also take tons of vitamins & minerals. & supplements. I believe our bodies are able to heal ourselves, we just need to give it the tools to do so.
Are you doing red light or what color?
@@araycocoa I shine the near infrared light in my ears and on my abdomen.
@@GrandmaMaeCorporation gotcha thank you I’m going to start tonight
Women, younger adults - and ATHLETES have definitely been affected.
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!!!🙏🏼
Tara I can sympathize with you. I got covid babysitting my granddaughter. I realized that I was not the same person after a few months. I had to return to work and it was difficult to treat my patients. I would go to rooms twice, forget things, and live in a fog. My colleagues would look at me like I was an idiot. I was scared shitless and had no idea what was happening to me. management gave me an ultimatum and terminated me. Since then, I lost my job, have no income, and have not been able to return to work nor have I been able to procure employment. I was always on my game, always the one to answer codes, figure out difficult patients, and was the code princess for years. It's all gone now.
❤
Important update which I have not seen elsewhere.
Sounds like more than neurological. Seems like immune dysfunction and autoimmune condition that triggers neorological, vascular, muscular and phsyiological problems
agree . What I have gone through I think is the neuromuscular synapse as Mestinon has really helped me. My immune system defies understanding...antibodies come and go when textbooks say they are either positive or negative. I don't fit a neat diagnositc profile.
Yes.
Dr Pierre Kory, Dr Paul Marik and Dr Peter McCullough have said that long c-vid and post injection long c-vid is the most complex disease they've ever treated.
Neurological disorders can affect any and every system and organ because - they all have nerves telling your brain what’s happening and then carrying messages from the brain to systems and organs it thinks can address whatever problem was identified. Your nerves are the data acquisition system so if they’re not working properly and are collecting and transmitting bad information to your brain, your brain will send less helpful messages back. I have a severe neuropathy unrelated to Covid-19 and one leg just sends a very weak signal, sometimes essentially nothing. The brain is getting no input from a large body part and sometimes it panics and decides something terrible must be happening so it warns me of danger by sending the sensation of my leg being on fire, for example. That’s extremely unpleasant but I can see that I’m not on fire. Mindfulness training makes a big difference. If I can calm myself and understand that the pain is a meaningless message, just garbage in garbage out, the psychosomatic consequences of fear - rapid pulse, adrenaline rush etc - are stopped. I have to ride out the pain but I’m not afraid or angry or worrying so it’s just pain; there’s no extra suffering. Lots of things around me can trigger a flare up and when systems go down, they tend to all go down. Again, I just have to go to bed and wait for it to pass. It can be hours or weeks but it’s just doing what’s needed to get by. Being patient with myself has been the hardest lesson to learn, so be kind to yourself and listen to your body.
Sounds like people immunes systems are weakened....🤔
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!!!🙏🏼
I have long covid pneumonia and can not take meds due to allergies but when I walk on the beach or neighborhood, it's so good for lungs.
Brain fog I got rid of by reading and researching, went back to work as trauma therapist.
I've also been exposed again and have not caught it. Just contracted a bad cough from clients but never had anything more than a cough. Vitamin d3 and good multi vitamin plus the beet gummies! I'm turning 70 this year and I was determined not to die from covid. My husband was dying of cancer when I got covid, and he had to get vaccinated and boosted 2x before going to the hospital, and he went down fast.
Covid was created in a lab, it's a biological weapon and can have devastating consequences. I truly believe this was created to target neuro function.
I am unable to gain weight back but feel good. I do get fatigued, but it doesn't last.
I had to get off of Adderall for ADHD because it was causing more fatigue.
Also my sense of taste is limited. I am a very picky eater, and more so after covid pneumonia. I also developed scoliosis due to not being able to stand up straight and got down to 93lbs @5'9. I prayed a lot! Once I started to exercise a little more each day it made such a difference. This was a very interesting discussion and there have been others that are coming to similar conclusions.
Stop your lieess
Wow 93 lbs at 5’9? I went down from 114 to 95 lbs at 5’5’ and have only been able to gain up to 105, cant seem to gain no matter how much I work out with weights. Do you really waste your time praying? isn’t god (which ever god of the 75,000 gods invented by men ) you believe in, is the one who decided what illnesses we get? what shitty life or good life you get? Doesn’t “he” have a plan for everyone? if so why pray to make him change his plan? for you? lol... Yoga and medication are real. We are real.
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!
I'm so skinny and tried fasting but was not able to complete the fast. I am unable to gain weight and doctors put anorexia on my chart. The fatigue is overwhelming after hours of physical work.
Happy Anniversary!!!!
I haven’t tasted or smelled well in 16 months. I’m still waiting for it to come back.
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you
My senior husband, got covid after getting the vac and the second booster. Although he survived it, he is now having trouble 'finding his words', or brain fog. He is tired all the time, which is unusual for him. He doesn't sleep well. And there is nothing doctors can do to help.
I was diagnosed with mononucleosis in 1971, long before the virus was identified, and before CFS. I had to make my own path. I suffered from excruciating headaches for 13 years before finding out through allergy testing that I was allergic to cereal grains. That took of the headaches and much of the overt brain fog. So try skin challenges in allergy testing. Secondly, decided to avoid soy as it seemed to be causing a lot of bloating and inflammation in my gut after eating tofu. That made sense, as soy is a common allergen. Years later, I realized that it was just a soy allergy (or peanuts, as they are legumes also), I couldn't eat green beans or chick peas...all legumes caused inflammation and bloating. Next doctor's exam, my cholesterol, which had always been high, dropped 150 points. But then, my father had gout, he couldn't eat beans, maybe it was a genetic thing for me. So if you have a family history of inflammatory arthritis, see if avoiding anything that's in the bean family helps. This includes a lot of thickeners like guar gum and locust bean gum. Read all labels. Also, I want to point out that the gluten free diet is sometimes recommended for gout and RA, so again, maybe there is a link between viral aftermath and the genetics of inflammatory arthritis.
In my 60's, I was diagnosed with that thyroid problem involving kale and cole crops. This is an understudied and under-diagnosed condition that absolutely needs to be understood better, in only to follow long enough to know what health problems are associated with it. For me, three years later, I developed pancreatitis. By this time, I had been gluten free for 30 years, and bean-aware for 7 years. Medical problems always came down to diet. So, with the pancreatitis, I realized that I couldn't tolerate coffee anymore. The cruciferous vegetables are rich in sulfur. A quick google search showed that coffee is rich in sulfur. With another search, I found a list of foods that a chemist had put together that were high in thiols. On that list of foods to avoid were coffee, all legumes, chocolate, onions, dairy...all foods I knew I couldn't eat. With this diet, my pancreatic enzyme levels dropped. I can still trigger an attack if I'm stupid, but I'm been largely symptom free for almost five years. I regret that I was not referred to a gastro practice that was affiliated with a med school. I live in a rural county, and there's only one gastroenterologist. He more or less fired me for being symptom free.
I struggled with having both a thyroid that was sensitive to sulfurous foods and a pancreas with more or less the same problem. They are both glands. My take-away was that the pancreas is dependent on the thyroid hormones, and when the thyroid gland is besieged by too many thiocyanates, it can't secrete enough activated thyroid hormone. And why would I have too many thiocyanates from sulfur-rich foods? 1). diet, and 2). my body isn't metabolizing sulfur compounds fast enough. I am a poor metabolizer of sulfur compounds. I am not breaking them down to sulfate, which is a necessary form of sulfur.
This is why when I explored the COVID virus I became very intrigued to see that it replicated in a matrix of sulfur and iron. It exploits sulfur as a way to invade the cells. This is why people like myself, who are poor metabolizers of sulfur, and whose thyroid gland can make the hormone but can't activate it with iodine, (because thiocyanates compete with the hormone for iodine) are the people who are at risk.
Wow, revelatory!
You probably have parasites. Also read about Lyme disease. Get rid of your dog, stay away from dogs/ fleas, mosquitos. Read my comment above.
@@user-wk2ch9sz5x No don't get rid of your dog, for Godssake. Every creature, poster included, has or can have parasites. Treat them if you find you have them, treat your dog if he has them, and be safe. Treat your partner too if they have them. There's no shelter to dump your partner in so you're stuck with them.(that's sarcasm since getting rid of the poor dog was an immediate yes for you)
Geeze......
@@maureenobrien9815 True. Birds and other animals have parasites but people dont sleep with them nor bring them into their home like dog lovers do. To treat a dog, you would have to give it deworming medication twice a day every day forever, or 2 weeks and keep them inside your home forever. As long as they come outside, they will continue to contract parasites from other dog's shit on the grass. Parasites have 5 live stages, meaning the medication only kills the adults and young adults, not the larvae, puppa nor egg. Dogs are dirty and nasty. They're not people. Fleas and ticks love dogs, so they latch on to their skin (dog's skin always stinks because of the mites' feces eating their dead skin cells constantly) dogs dont lick themselves daily as cats do, so their mites' feces go airborne and us humans breathe that as well as the parasites' eggs. Microscopic, you dont even see it. Fleas ad ticks bite the dogs which are always infected with pathogens and parasites and then bite us, without us noticing. Hence millions of people are very ill in the U.S. unlike in other countries where they dont think of their dogs as "children" no no. Dogs are the MAIN TRANSMITTER OF DISEASE to humans. People who have dogs and then have a baby are criminals making their kids vulnerable to Autism and many more illnesses, brain damage, irreversible damage because of their dogs living in close proximity to the baby. Disgusting people that dont realize a dog is an animal, not a human child. Parasites are so resilient and smart, they make you obsessed with your dog thereby making sure of their survival, the parasites' survival.
My experience has been vision loss and photo sensitivity. My vision is not blurry or foggy but just dark as if i am outside at midnight on a moonless night. The odd part is that a sunrise or sunset will explode in my head with light and blind me completely. My smell has not returned other than an occasional whiff of a strong smell. At first, I could see almost normally for a few minutes when I first woke up but that stopped for the last year or so.
Been dealing with myalgic encephalomylitis and dysautonomia x 25 yearits about time it is taken seriously. Far to many have committed suicide and lost lives and livelihood being dismissed by the.medical profession.
I know I completely lost my smell for half of 2021.
Only gained party of it back. Still can't smell certain things at all. And most others smells are not the same.
Same! I have lucid days where I can smell bacon and coffee but more days I cannot.
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins!!!! I have more supplements that will help, comment back and I will tell you!!!🙏🏼
You need to treat inflammation. I had terrible fatigue, brain fog, memory cognitive issues after covid. I'm Still recuperating. New doctor treated me with I meg solumedrol IV steroid. Within hours of treatment the pressure I felt on top of my head lifted. Several days later I could think clearer my short term memory lapses improving. My fatigue also is much better. I nap once or twice a week once a day. Not every day twice or three times. Why do doctors ignore treating brain inflammation. It is documented on MRI scans. They know it's there but don't treat it. I thank God I finally found a doctor who treated it. Look for doctors who will give corticosteroids to treat long term covid inflammation. This is what causes long covid!
I had long covid. I went through so many different medicines several times, like Paxlovid. And I had been vexed. I was just shocked at how long it lasted and how much of my life it affected.
How did you have it?
Why is it past tense? I thought we were talking about long- covid?
Then I guess its not long covid anymore woot!🎉
It's called long covid, not eternal covid.
@@michellemooresings heard!
I can't imagine anything being done to help people. That's not the American way.
America has changed .... It's survival of the fittest