Miss Olga, I am so sorry you are not feeling well today. What are your symptoms today. Do you feel like you have a bad flu. Pain in muscles, joints, exhausted, barely can move, foggy , sleeping doesn’t help, anxiety, feeling of hopelessness. I can understand completely. It’s like your mourning your healthy self too. You talk so well with explaining how it is living with this. You are so articulate. When I listen to you, you say how exactly I feel too. Thank you so much. It makes me feel much better. 🥰
Your brave well done I couldn't even talk or sit there when I have a flare currently severe depression also due to illness it's great to hear fellow sufferers talking ... you inspire me
Thank you for this, I know you posted this a while ago now but I completely understand you when you discuss fighting vs working with your illness. I finally am getting some treatment for my fibromyalgia symptoms and have been trying to understand how to look at life now. Loved this video!
Thank you for this video, I feel less alone now. I like how you said about working with your fibromyalgia instead of against it, I feel like I need to start doing this. I hope your flare doesn't last too long ❤️
I'm so happy it helped. It can so often feel like we are the only ones going through this, but we're not. Thank you for being here too! My flare got a little better, and now it's much worse. But I'll feel better eventually. Gentle hugs 🤗
I am 23years old. I have fibromyalgia from past 2years. It is worse some days. I wish there was a drug for this disease. I had severe depression and look I am here now. Mental stress can destroy your life. Just being optimistic that one day we all will recover or maybe there will be a medicine.
It definitely makes life with fibro harder when you have mental health issues. I hope more information is found so we can find proper treatments, too. That's why advocating for the condition is so important!
Im gonna have to watch this again Some great points that you hit right on the head. love the warrior thing im totally with you. Its hard to explain its not fighting against and its not giving in i think of it as doing a dance or walking the tight rope. I feel shocking today ive been manic while ive been off work first few days i slept and rested caught up on u tube and tv i was totally worn out was really ready for rest like you said sometimes you welcome the rest/bedtime. But since ive been running around ive met myself backwards a few times i should have Stopped but i felt so energetic still had aches pains but i was running on ten and now im not. My brain has been in overdrive wanting to catch up on chores, have a few days out and about, tinker stuff and sorting for my second shop sometimes its hard to stop. But im in bed now shattered feeling gross. Been a long time since I've had that much energy i think i panicked wanting to get ahead with everything, guess ill have to chill and wait it out.
I am so with you with the energy thing! When you get an energy spike you almost don't know what to do with yourself. I find that when I'm like that it's the hardest to pace myself, but also probably when I should do it the most! It's such a hard balancing act, like you said. I hope you feel better soon :)
@@olgachronics3273 i don't often get that spike so i didn't notice it. Now im resting i can see how really manic ive been i think work usually does me in only normally off when really poorly and holiday wise i normally just have a week off ive ended up with two and a half weeks off so i was able to rest for four full days. I love how your videos pop up when I need them
.....I agree.............good/bad mostly..... Extra coronavirus caution.....I miss outdoor stretching, exercise........in general!........ yardwork...flaring and extra issues with.... harassment...... hanging in there!!!!!
I'm so sorry to hear that Terron. I'm glad you have a good doctor on your side, that can often make a very significant difference in our treatment. I hope you find something that helps alleviate your symptoms soon, and that the diagnosis comes quickly 'cause that can also make a big difference. Sending you gentle hugs and positive thoughts :)
Miss Olga,
I am so sorry you are not feeling well today. What are your symptoms today. Do you feel like you have a bad flu. Pain in muscles, joints, exhausted, barely can move, foggy , sleeping doesn’t help, anxiety, feeling of hopelessness. I can understand completely. It’s like your mourning your healthy self too.
You talk so well with explaining how it is living with this. You are so articulate. When I listen to you, you say how exactly I feel too. Thank you so much. It makes me feel much better. 🥰
I was feeling fatigue, pain, foggy and sleepy, and generally uncomfortable. I am glad you appreciate it :)
Thank you, I'm having a massive flare right now and it really helps to hear you and feel less alone. The weather affects me so bad.
Oh no, I'm sorry! I hope it eases up soon, but glad if my com0any helps :)
Your brave well done I couldn't even talk or sit there when I have a flare currently severe depression also due to illness it's great to hear fellow sufferers talking ... you inspire me
thank you for your comment. I hope you have a low pain day at least, and that the depression eases up soon
Thank you for this, I know you posted this a while ago now but I completely understand you when you discuss fighting vs working with your illness. I finally am getting some treatment for my fibromyalgia symptoms and have been trying to understand how to look at life now. Loved this video!
Great video. It really helped me to feel less alone during a current flare! Thank you so much.
Aw thank you! I hope your flare doesn't last long :)
Thank you for this video, I feel less alone now. I like how you said about working with your fibromyalgia instead of against it, I feel like I need to start doing this. I hope your flare doesn't last too long ❤️
I'm so happy it helped. It can so often feel like we are the only ones going through this, but we're not. Thank you for being here too! My flare got a little better, and now it's much worse. But I'll feel better eventually. Gentle hugs 🤗
Olga Chronics Gentle hugs back ❤️
I am 23years old. I have fibromyalgia from past 2years. It is worse some days. I wish there was a drug for this disease.
I had severe depression and look I am here now. Mental stress can destroy your life.
Just being optimistic that one day we all will recover or maybe there will be a medicine.
It definitely makes life with fibro harder when you have mental health issues. I hope more information is found so we can find proper treatments, too. That's why advocating for the condition is so important!
Thank you for sharing how it is. Hope you feel better soon 💜
Thank you! I'm glad it helped :)
I understand, I've been having a lot of flares lately too.
Lots of gentle hugs 🤗
Im gonna have to watch this again
Some great points that you hit right on the head. love the warrior thing im totally with you. Its hard to explain its not fighting against and its not giving in i think of it as doing a dance or walking the tight rope. I feel shocking today ive been manic while ive been off work first few days i slept and rested caught up on u tube and tv i was totally worn out was really ready for rest like you said sometimes you welcome the rest/bedtime. But since ive been running around ive met myself backwards a few times i should have Stopped but i felt so energetic still had aches pains but i was running on ten and now im not. My brain has been in overdrive wanting to catch up on chores, have a few days out and about, tinker stuff and sorting for my second shop sometimes its hard to stop. But im in bed now shattered feeling gross. Been a long time since I've had that much energy i think i panicked wanting to get ahead with everything, guess ill have to chill and wait it out.
Tinker Treasure
I love to read you wise advice too. Please feel better soon.
I am so with you with the energy thing! When you get an energy spike you almost don't know what to do with yourself. I find that when I'm like that it's the hardest to pace myself, but also probably when I should do it the most! It's such a hard balancing act, like you said. I hope you feel better soon :)
@@nancysweeney2160 thank you very kind to say. I hope you are doing well
@@olgachronics3273 i don't often get that spike so i didn't notice it. Now im resting i can see how really manic ive been i think work usually does me in only normally off when really poorly and holiday wise i normally just have a week off ive ended up with two and a half weeks off so i was able to rest for four full days. I love how your videos pop up when I need them
Hm, I get those spikes a lot, like random energy, and then I crash. Fibro is just so much balancing, it's exhausting .
.....I agree.............good/bad mostly..... Extra coronavirus caution.....I miss outdoor stretching, exercise........in general!........ yardwork...flaring and extra issues with.... harassment...... hanging in there!!!!!
Definitely not a great time to be chronically ill, for sure
Right now I’m working through one
I hope it goes away quick. Gentle hugs to you 💞
Olga Chronics thank you I so appreciate it gentle hug back
Been a difficult 2 years for me now...and I'm in the diagnosing protocol. My physician has been good to me. But I feel terrible
consistently
I'm so sorry to hear that Terron. I'm glad you have a good doctor on your side, that can often make a very significant difference in our treatment. I hope you find something that helps alleviate your symptoms soon, and that the diagnosis comes quickly 'cause that can also make a big difference. Sending you gentle hugs and positive thoughts :)
@@olgachronics3273 Thank you Olga
I’ve been flaring for about 3 days as of now. Trying to do laundry and pick up the house but...ugh
I feel you. When I'm flaring I have to take it easy and just make peace with the limitations. It's not easy though. I hope the pain eases up soon.