X Linked Hypophosphatemia XLH

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  • Опубліковано 16 вер 2024

КОМЕНТАРІ • 7

  • @internationalxlhalliance8470
    @internationalxlhalliance8470 3 роки тому +4

    At 1:42 , the other terms listed here terribly inaccurate. "Rickets" is just one childhood symptom, XLH is life-long and affects a range of musculoskeletal comorbidities.

  • @internationalxlhalliance8470
    @internationalxlhalliance8470 3 роки тому +3

    Disappointing to see faulty information at 1:30 . For clarity, if an affected father has XLH, his daughter will always inherited the fathers mutated X chromosome. For more information on XLH, related disorders or information on patient groups around the world, please visit the International XLH Alliance xlhalliance.org

  • @SheysonSanchezSuarez
    @SheysonSanchezSuarez 4 роки тому

    excelent information

  • @alexanderrahl7034
    @alexanderrahl7034 14 днів тому

    Can the gene be found and switched off, though?
    I dont want to hear about the "ethics" of gene editing. I want to know of its possible.

  • @hazimkaric8301
    @hazimkaric8301 9 місяців тому

    I have it 😊

  • @SheysonSanchezSuarez
    @SheysonSanchezSuarez 4 роки тому

    what are the best treatments today?

    • @hormonehealthnetwork2915
      @hormonehealthnetwork2915  4 роки тому

      To find treatments for XLH, please visit our Find an Endocrinologist directory. It consists of over 6,000 doctors who are accepting new patients. The directory can be searched by concentration area, mile radius, ZIP code, state, or country. www.hormone.org/find-an-endocrinologist