What to know about celiac disease and why people shouldn't self-diagnose with gluten intolerance
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- Опубліковано 20 вер 2024
- PATEL IT LIKE IT IS: ABC News medical contributor and pediatrician Dr. Alok Patel joins ABC News Live for more on what celiac disease is and why people shouldn't self-diagnose themselves with a gluten intolerance.
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If my Dr would just do their job I wouldn’t have to self diagnose.
I’m on the toilet watching this. I’m in pain. 😓😓
Hoping you have become friends with your bathroom now and sorry for your pain. Diagnosed with celiac about five years ago and have learned to thank God for indoor plumbing and hoping for healthy inside plumbing.
See if you can get a blood test via Quest or Dr
Been there
I diagnosed myself and then got all the test to confirm. I was right. Instead of it taking years to get a diagnosis it took a few months. Often we know our own body better than doctors do.
How did you diagnose yourself?
@@wrenfan You think "hmm, maybe I have celiac disease" based on symptoms then go get tested.
@@ryanfaulkes7469 I wanted to know if that person used the GF diet to diagnose their self.
@@wrenfan You don't wanna go gluten free before testing because it will mess up the results of the test, if you suspect it get tested while still eating gluten
@@ryanfaulkes7469 That makes no sense whatsoever. If you have what you think are undiagnosed Celiac Disease symptoms and you go gluten free, and those symptoms disappear only to return with the reintroduction of gluten what more proof do you need. Just stay on the diet and get on with your life. However, if you are one of those people who insist on the "official" diagnosis then go ahead and punish yourself some more. In the end if it really is Celiac then you will still end up on the diet forever. Personally, I would have gone on the diet at the onset of my symptoms and never looked back. I would rather just tell people I don't tolerate gluten and leave it at that. That is all I do now anyway. If you think that people will take your situation more seriously if you have a diagnosis, then my experience is that they might but really don't care either way.
Once a Doctor has told you that you are Ceoliac then ask what things you are alergic to and make a word up to remember . For example my word is " BROWS because im alergic to bran , rye , oat's , wheat and spelt
Holy crap, this is mad. You’re not allergic to these grains if you have coeliac disease. You have an autoimmune disease which causes you immune system to attack your intestines whenever there is gluten in you. It’s not an allergy, please go learn more about your own condition.
Isn't it auto immune?
@@michael2592 Yes it is an auto immune disease
it’s not an allergy…
@@thedumpsterman I meant to type " an autoimmune reaction " but i thought i would shorten it . . how wrong was i ? lollll
Why is the background music as loud as Patel's voice 😅
My GP sucks, she said it's not a priority and if you think it's celiac, stop eating gluten for a week and see, I have already done this, I want a damn biopsy
Hi im celiac for 30 years. And indeed your docter sucks lol. If you stop eating gluten it will not show up on your bloodtest. You need to at least eat like 2 weeks a proper amount of gluten to have a positive bloodtest for celiac.
Also there are hometests for celiac you could try. But make sure you eat a lot of gluten before the test
Late to the response, but try to get an appointment with a gastroenterologist. They will run tests and take it more seriously.
Confused with your response. What happened when you went GF? Did anything change with your symptoms or nothing happened?
It takes more than a week. Get the genetic test done. You don't need a doctor for that, but if you don't have the genes, you can't have Celiac. If you have the genes, get the blood test done. If the blood test is positive, they pretty much have to give you the biopsy. And do NOT stop eating gluten until you have had all the tests done.
Once you have Self-Diagnosed
Get a Second Opinion
A Doctor's
@@wrenfanbecause then you can get a blood test to confirm that you might have it then get a biopsy to fully confirm it. Since it could be something else.
😂
Doctors don't know what they're not taught.
@@edenmairay60 Like what else.?
How can gluten be healthy when glyphosate is used in the production of wheat products?
🤓
Hello. Gluten and glyphosate are different components. We could eat organic barley, kamut, bulgur (if not coeliac). Greetings
glyphosate is the issue, not the gluten
@@Blueyzachary No, not if you have Celiac Disease. Then it is the gluten. Of course poison on the food is bad for everyone.
Glyphosate has NOTHING to do with Gluten. It's an added herbicide. The problem is adding Herbicides, and THAT has nothing to do with Celiac.
Meals are easy , it's healthy snacks i struggle with especially when out the house . There's only so much fruit you can take lollll
Just curious. If you did not have to be GF then what healthy gluten snacks would you choose?
My 19 year old daughter today was diagnosed with celiac disease. Just here to learn all about it. Thank you
Does anyone know why I would have a positive biopsy for celiac disease and a negative blood test for celiac disease?
Do you have any symptoms?
From my experience, the same way you can have a negative thyroid test but still have hyperthyroidism. One blood test doesn't detect all markers for disease.
The blood test requires there to be gluten in your system when you take it, or else it will always come out negative from my understanding. Would definitely make sense if you’ve been gluten free for two weeks or more, the biopsy on the other hand doesn’t depend on gluten consumption. :)
That can happen if you are not eating gluten for two weeks before the blood test. The damage to the intestine takes much, much longer to heal if it ever completely does. You can also have a false positive or negative for any blood test. It doesn't happen a lot, but it does happen. The biopsy is the gold standard. If you have a positive biopsy, just forget about the blood test.
There’s a gene that makes it not show up in blood tests. im not sure what it’s called but i have the same thing and my relatives have the same thing yet they have positive biopsys. im currently waiting for a biopsy as my blood tests have been inconclusive or negative.
I mean, when I eat pasta , bread and all that I start burping constantly , feeling full as well, then I started this diet of only eating animal products and veg, started feeling pretty good until It was my birthday and had to eat cake, which resulted in lots of gases and feeling full. So I'm 99% sure its the gluten. No need for a doctor if you test it yourself. Unless you want an actual confirmation. of which involves a tube down your throat until your intestine 😂
Distended abdomen and burping were my main symptoms before a recent coeliac diagnosis. I also have daily migraines, which might be connected. A diagnosis is useful, because if positive for coeliac, then it focuses the mind on adhering strictly to a gluten free diet, because there are potential serious complications such as malabsorption, and neurological disorders (headaches, neuropathy, ataxia). Also, first degree relatives have a significantly increased chance of having coeliac disease, so they should be screened.
The problem is that if you have been avoiding gluten, then you have to go on a gluten containing diet again for around 6 weeks before being tested, otherwise you might have a false negative result.
By the way, the endoscopy/biopsy is nothing to worry about. I was given an anaesthetic throat spray and sedation, so barely have any recollection of the procedure.
@@1misago so did you test coeliac disease positive?
@@durgalamichhane-sv5rg I had positive serology (anti TTG IgA ~780 U/mL in blood test) in July this year. I was told to remain on a gluten-containing diet until my gastroscopy/biopsy in November. The biopsy confirmed that I was positive for coeliac disease. I'm now awaiting appointments with a dietician and gastroenterologist.
Ironically, I loved making bread, and eating artisan bread from craft bakeries and farmers markets. I'll have to find a new hobby! Worth it though to feel better.
It can be that because you are eating less processed foods and engaging in a healthy diet you are feeling better, but we'll never know since you're so good at diagnosing yourself. BTW, testing for coeliac requires most of the times just a blood test.
Of course you have probably diagnosed yourself. Just stay off it for good and see what happens. Would not eat cake regardless of whether or not it was your birthday. You could give yourself a proper birthday present by letting everyone else eat it instead. Best of luck.
I had to diagnose myself after 14 years,and there is no way in hell i will eat gluten to get tested,my doc told me she would have never thought of gluten-free after i told her i started the gluten-free diet,docs do not help the patients anymore i had to research myself.
The good news is that you can diagnose and treat yourself using the strict GF diet. Why would need anyone or anything else. You are fortunate that you have the insight and willingness to try it because of the time it takes to officially diagnose this condition through the medical system. Congrats to you.
Hi, could you please repost this video without the annoying background music?
I was diagnosedCeliac 6 yrs ago. And it still can be challenging to label read and make GF recipes at home (breads) I eat a balance of veggies, and lean meats and am doing better now
I was diagnosed almost an year ago ..I use gluten free food but still there is a lot of gas ,bloating and pain ..am taking a lot of medicines what should I do?
@@LaibaTahir-xw8es You need to call the manufacturer of your medications. They don't have to report gluten in their product. They are supposed to tell you if you ask, but you have to take their word for it.
@@boycott2720 thnks for this advice 💓
@@boycott2720 are u also celiac dis patient? If yes ...than what medicines or things u do ? Bcz am gassy all the time
@@LaibaTahir-xw8es I have celiac, and if you are still having symptoms, it usually means you are getting hidden gluten. Adding medications may not help. It can also take a while to heal so some have symptoms for a while after quitting gluten. If you are eating more beans and veggies, that can also cause gas. I would ask your doctor. But the most important thing is watching for cross contamination or cross contact. For example, beans are ok, but if they were processed or packaged in a facility that also packages wheat products, you could be getting enough gluten from the beans to cause a problem.
Maybe it's not just gluten but also a pesticide like glyphosate
Evidence suggests that celiac disease existed in Ancient Rome. I doubt the Romans used glyphosate.
🙄
once in awhile you can self diagnose but not all the time especially to gut issues
My main suspicion is celiac but I haven't gotten the test so it remains to be seen
@@michael2592 Why do you suspect Celiac?
@@wrenfan family history.
@@michael2592 Have you gone gluten free?
@wrenfan yes. But that's different than celiac. And if it was celiac it takes months to heal. Gonna do my test as soon as I have 2 weeks off
I mean, the good thing about making an allergy 'fashionable' is the availability of products for people who are actually living with this condition. The downside is that some people then demonise something as important as gluten for no real reason!
Self-diagnosis is the future of this condition. Telling someone to avoid the very thing that can identify and treat it successfully makes absolutely no sense at all. Just my logical opinion.
Any word about the medication that is about to come out?
Gluten free labeling is not FDA approved or regulated. It makes me sick.
It was like end of the world when I found my 7 years old daughter might have Celiac disease. I don't know how to tell her in her future birthday parties or trips that she can not eat this and that. Basically 90% of the stuffs out there she can not eat. It's so sad... I m depressed just thinking of that
I only realised how annoying the background music was when it stopped
Dr. said to try avoiding it, and I will be going back for more info, but I got so sick eating it accidentally. Whether you eat gluten or not, eat the rainbow; your body will thank you. Idthink I need to be a Dr to say eat your veggies, since it’s publicly available on myplate.
My gi doctor just informed me that my colon/endoscopy revealed possible celiac disease 😅
Patel.. he’s a good man
Yeah what they fail to say is that doctors do not listen anymore and unfortunately you are your only savior when it comes to your health and wellbeing.
Couldn’t follow because of your fast delivery and pointless irritating music. It sounds like it might have been interesting.
Good
Your a little behind the times in the US my son was diagnosed with celiac disease back in 1983.
Celiac was know by the ancient Greeks. Your son was diagnosed really, really late.
Just saw the comment about your son. How long did it take back then to get him diagnosed and do you recall the steps taken in the diagnosing process? A co-worker of mine was unofficially diagnosed in the mid 1970's by his primary care doctor. His instructions at that time were to give up bread and see if it helped. I think the doctor suspected it could be related to something he was eating. It worked and he was effectively on a GF diet without any official diagnosis. Fast forward to 2006 a year after I was diagnosed via biopsy only. We met at a Celiac support meeting. He commented that he finally had a name for his condition. I have read in the local newspaper archives of instances as far back as the 1920's where infants were put on a diet of bananas to treat quote "Celiac Disease". The article appeared in the local newspaper on August 20, 1928. This confirms that knowledge of this condition has been around for a long time but thought to be so rare as to not suspect or spend a lot of time and money getting the word out about its frequency of occurring.
I don't want this thing. I miss Gluten. Not fair.
Oh I accidently dropped my vitamins in a pale full of gasoline... better not let it go to waste and drink it to get my nutrients. His logic is ass backwards
Why America 🇺🇸 food have gluten I don't know
Food outside America have gluten in it too you ain't special
My friend has Coeliac Disease Wheat Sensitivity, after consulting an online Biotheraphy treatment, he is able to consume gluten in recommended quantity on daily basis....
Yikes! He's putting himself at risk of cancer...please tell him to see a gastroenterologist.
@@lychee-dj9qo Can you explain it briefly?
@@MuhammadIrshad1 I have Celiac disease. It's a genetic uncurable autoimmune disease that causes gluten to trigger an autoimmune response in your intestine. The autoimmune response doesn't attack the gluten but my own body, flattening the villi in my intestine, which are like hairs that allow me to absorb nutrients from food. People have different severity in symptoms but untreated Celiac disease can cause other autoimmune diseases and the inflammation can cause stomach and intestinal cancer..I wish it could be cured, but there is no treatment besides a lifelong gluten free diet
@@lychee-dj9qo By Biotheraphy treatment as he told us he is 90% cured. I think you should consult his doctor.
@@MuhammadIrshad1There is no curing Celiac disease, it’s a genetic condition you are born with and literally has no cure. Some gluten allergies are not so bad and “cheat days” where you can have a gluten meal, but Celiac is not that allergy, it’s always 100% bad.
I see a gastrointologist in person (not online, lab tests and everything) and upon diagnosis he told me told me immediately to stop eating gluten and that it is a lifelong thing since there is explicitly no cure. If your friend is being told he’s being cured he is definitely getting scammed. And if he truly has Celiac he is getting scammed and could get serious chronic gut pains or cancer later in life because he was told it’s okay to eat gluten. Maybe you meant something other than cure or Celiac disease?
GM wheat by Monsanto created this disaster!
All crop plants are genetically modified. Every single one.
Monsanto didn't exist in Ancient Rome.
white bread is a villain
Brown bread has gluten too.
Abc is a clownhouse
Propaganda as usual
Just imagine having such a weak body you cant handle a wheat protein.
It's got nothing to do with how much you can lift
Like most things
Imagine being so stupid you don't understand the disease.
Yeah it sucks but it's not from being weak. I weightlift, run, work hard etc but a piece of bread will take me down 😂
You have Twitter don't you
i’m not weak. i eat more meat than you could imagine. my muscles have only gained since i quit eating wheat.
i had bell’s palsy 2 times and and horrible rash i scratch raw for the last 5 yrs that won’t go away unless given prednisone by my dr. after i stop taking it it comes right back he says it’s eczema and the bell’s palsy isn’t related to it