What a great video, David, and what wonderful insight you have! Whether you realize it or not, YOU have become a mentor to so many of us!! You have the courage to ask those hard questions, to rail against the cruelty and unfairness of this disease, and to explore, test out and then share with us, the many new products and therapies for Parkinson's disease as they become available. Just the fact that you take the time to respond to every comment and question shows how very much you care! Bless you for creating such an empathetic and caring community right here on your channel, we look forward to every new video that you make!!
Thank you so much Jeannine, your comments are always so humbling and heart warming. If I can find and recommend one thing that will ease everyone's symptoms just a little bit, I will be happy.😀😁☺
I appreciate your videos. I don't feel alone. It helps to know that there are others going through similar experiences. I know it's selfish to think like that but I find comfort in it
Hi Abel, I don't think it's selfish at all I think it's an opportunity for us to share our common experiences and lift each other up. It's good to share and I'm glad you are. 😁😃😀
We don't have a coach! Yet we were put on a team we didn't want to join. We aren't alone yet some of us are experiencing loneliness with this disease. Your channel fills a void. Fills it with insightful questions and information and with much needed humor. Keep them coming.
Hi Ann, your analogy is very good, "We don't have a coach! Yet we were put on a team we didn't want to join." It encompasses everything I meant to say in this video. Thank you for your encouragement and insight. They are valued here.😀😁😊
My dad has Parkinson's, he was diagnosed late. I've been trying to find information to help him, and you have been greatly informative. Thank you for sharing your experiences to make the journey easier for the rest of us
Hi Uber, sorry to hear about your Dad, but it's great that you are seeking out information to help him. Thank you for your kind words and for saying hello 🤗👋
Well said David! Having Parkinson’s is knowing that I will eventually lose the war, but I am going to keep fighting to win as many battles as I can - and go down swinging! I really like your thoughts on Coaching and mentoring, it is so difficult to know what to do. Thanks for taking the time and effort to create these videos!
Hi Mike, I love your attitude and spirit about willing to fight until the very end. That is inspiring! We will not go quietly into the night. Thank you for taking the time to leave a comment and to say hi. 😀😁😊
Thanks for the video Dave . Happy to be a leaf on the same tree with you . I went through same thing with the loss of a parent , should be books on what to do . Maybe there is/was . Just the alone feeling at times is the worst with the diagnosis . My Dr still has no specific answer and seems to be in no rush for the answers is troubling ( wait another 6 months ) . I am better off than so many so I will thank GOD for that .
Hi Jerry, I'm happy that we are on the same tree together as well. Loneliness is the worst feeling in the world, even I feel it at times. I'm, so sorry you have to wait ANOTHER 6 months for a diagnosis. That has got to be difficult, but I am glad you still have hope.😀😁😀
This is a fantastic video David. I am an aspiring coach for those with PD, for even though I don’t have PD I work with people like you every day and am continually inspired by your grit and perseverance
Ive heard that Paraquat (A strong weed killer used by police to kill mamajuana feilds with a small spray back in the 70s) might be the cause of mine. The parkinsons drugs are too harsh on my system. The carbadopa makes me throw up non stop for 2 weeks even after i stopped taking it. Even the smallest dose did the same, So there is absolutely nothing for me. The tremors keep me up 3 to 4 days at a time and this causes desperate madness. I dont know if I can make it through another bad round of that. I scream and pray for death. Ive known for a long time that death is the only way out
Hi Richie, I am so sorry that you have to go through this intense and painful time. I hope that you are able to reach out to your local area for help. We are here to listen and support as I know there are other viewers on this channel going through the same things as you are.
Thx for sharing buddy. Having Parkinson's for me...let's be honest. It sucks 😆😆 but what can I do?? I have to battle. Battle. Exercise like I've done before! From 170lbs yo 146! That's why I took a chance and entered a fitness contest. If I win I will donate a portion to two charities one of who is the pd society of bc. Has to be a cure one day?? Right? At the end of the day, I don't know what to say...carry on..try..get up try again..get up battle..get up again push it. Don't let it win!!❤❤❤❤❤
Hi GoPro, thanks for being willing to put yourself out there for the Parkinson's community the way you are. Entering a fitness contest the way you are is so bold and inspiring, thank you for that.😀🏋️♀️🏋️♂️💗
Great video, thank you. My experience is quite the opposite. Ever since I “came out” and got real neuro care and signed up with .Michael J. Fox and several regional groups, I feel pestered and nagged by the onslaught of tips and tricks and mindfulness n Meditation and yoga and physical therapists and cognitive test givers and surveys and DNA and singing and boxing and footwork and therapists knocking on my internet. Geesh ! It’s all good but I need to NOT read about some stuff, especially every day. Whew got that off my chest!
Hi Teresa, thank you for your comment and for shinning your light on the other side of my perspective. I didn't realize that you could sign up for all the things that you are pointing out, and while they are all good in a sense, too much information, like you say, can bring a person down, as well as be incredibly confusing. Thanks for watching and for giving me the chance to see things from your perspective.
I was looking for some practical Solutions and I appreciate you telling you about the situation ..... However do you know where I can go to get some more practical coaching or methods to better my situation?
Hello Harry, my channel has many practical solutions. Please check out my website as a starter place. What are your needs at the moment? www.lifewithparkinsons.ca/ Also, I have made several playlists on the channel for solutions. Please check it out. Anymore questions you can email me at info@lifewithparkinsons.ca Many thanks for reaching out! 😊😁😀
Hi David! I watched your redlight therapy update video and it is encouraging to see it is working for you. It appears from this video too that your symptoms are lessening, unless you are heavily editing it? Your speech seems smoother in general. I look forward to watching more of your updates. Are you focusing on redlight therapy only or are you also using vibration therapy too?
Hi Owen, yes my symptoms are becoming more manageable since I started the red light therapy, and have continued to improve since I am doing the maximum recommended daily treatment. I have stopped taking most of my supplements, but have not been able to decrease my medication further, I would like to speak to my mds first. I'm not sure what you mean "It appears from this video too that your symptoms are lessening, unless you are heavily editing it?" Are you asking if I am fudging the results? If you are I am not offended, that is a fair question. I would never do that, especially since it would ruin my entire reputation and destroy this channel. It's not worth the chance of a few affiliate sales to ruin my future on any social platform. I see the chance to share my Parkinson's journey with so many others as a privilege, not a right. I value my audience greatly .Thank you for asking and giving me the opportunity to respond.(if that's what you meant😀😀😀) At this time I am only using the red light, and would not use the vibration therapy at this time as I would not want to skewer the results. I am going away near the end of May for about a week and will not use the red light during that time to see what happens when I stop. Next update likely first week of June. I am going to try some vibration therapy soon, as I will be constructing a set of Parkinson's Gloves as a project with a friend. Thank you Owen. Have a great day and thank you for asking questions. Feel free to ask more.😀😁😊 You can always contact me via email info@lifewithparkinsons.ca if you have further concerns.
@@LifewithParkinsons Hi David! TY for your response back! I did not mean to imply you were fudging results. I thought maybe the way you edited your videos it just may have appeared that your symptoms were lessened. Thus the question...it is good to know that the red light therapy is really helping. Are there any negative side effects of red light therapy? Any redness or sun burn like effects if exposure is too long?
@@owenhas9029 Hi Owen, no worries, sounds like I misunderstood, but I wanted to answer the question of fudging anyhow. The red light therapy is helping, and I feel more relaxed lately because something is actually helping, and it can help anyone. That is a comfort to me, to bring to the channel something that CAN help all with Parkinson's. As to bad side affects I believe there are none. Please check this article. www.redlighthelp.com/can-you-overdo-red-light-therapy Please check the Rouge site also - rougecare.ca/pages/how-red-light-therapy-works Affiliate link - rougecare.ca/?ref=LifewithParkinsons
Hi Ellen. This is a surprise Originally on my version 2 gloves I had each hand on a different controller which ran out of sync. I noticed almost no change until I synched them up. Could you please send me the link to the video you were watching? Thanks 😊😀😀
Have you tried testosterone for purpose if energy, healing, improved strength? Haven’t seen anything online on this but it seems the PD community is trying a lot of the same things as the body building community.
Hi Photoshop no I have not tried testosterone. I do use creatine from time to time for water retention and muscle repair but I probably wouldn't go into the testosterone. I know what you mean the PD community is trying bodybuilding stuff, I'll try almost anything to ease my symptoms. I would only bring something to the channel though if there was undeniable evidence it did help.
What a great video, David, and what wonderful insight you have! Whether you realize it or not, YOU have become a mentor to so many of us!! You have the courage to ask those hard questions, to rail against the cruelty and unfairness of this disease, and to explore, test out and then share with us, the many new products and therapies for Parkinson's disease as they become available. Just the fact that you take the time to respond to every comment and question shows how very much you care! Bless you for creating such an empathetic and caring community right here on your channel, we look forward to every new video that you make!!
Thank you so much Jeannine, your comments are always so humbling and heart warming. If I can find and recommend one thing that will ease everyone's symptoms just a little bit, I will be happy.😀😁☺
I appreciate your videos. I don't feel alone. It helps to know that there are others going through similar experiences. I know it's selfish to think like that but I find comfort in it
Hi Abel, I don't think it's selfish at all I think it's an opportunity for us to share our common experiences and lift each other up. It's good to share and I'm glad you are. 😁😃😀
I like your coach analogy. Great perspective.
Thanks Michele😆😉😌
We don't have a coach! Yet we were put on a team we didn't want to join. We aren't alone yet some of us are experiencing loneliness with this disease. Your channel fills a void. Fills it with insightful questions and information and with much needed humor. Keep them coming.
Hi Ann, your analogy is very good, "We don't have a coach! Yet we were put on a team we didn't want to join." It encompasses everything I meant to say in this video. Thank you for your encouragement and insight. They are valued here.😀😁😊
My dad has Parkinson's, he was diagnosed late. I've been trying to find information to help him, and you have been greatly informative. Thank you for sharing your experiences to make the journey easier for the rest of us
Hi Uber, sorry to hear about your Dad, but it's great that you are seeking out information to help him. Thank you for your kind words and for saying hello 🤗👋
Well said David! Having Parkinson’s is knowing that I will eventually lose the war, but I am going to keep fighting to win as many battles as I can - and go down swinging! I really like your thoughts on Coaching and mentoring, it is so difficult to know what to do. Thanks for taking the time and effort to create these videos!
Hi Mike, I love your attitude and spirit about willing to fight until the very end. That is inspiring! We will not go quietly into the night. Thank you for taking the time to leave a comment and to say hi. 😀😁😊
I feel proud to be a member of this group, and learn so much from everyone. Thank you.
Thank you so much Debby, we are grateful for you and Dashi as well.😀🐕😊
Love this video David. Thanks for your inspiration
Thank you Michael! It's good to know what people connect with.😀😁😊
Thanks for the video Dave . Happy to be a leaf on the same tree with you . I went through same thing with the loss of a parent , should be books on what to do . Maybe there is/was .
Just the alone feeling at times is the worst with the diagnosis . My Dr still has no specific answer and seems to be in no rush for the answers is troubling ( wait another 6 months ) . I am better off than so many so I will thank GOD for that .
Hi Jerry, I'm happy that we are on the same tree together as well. Loneliness is the worst feeling in the world, even I feel it at times. I'm, so sorry you have to wait ANOTHER 6 months for a diagnosis. That has got to be difficult, but I am glad you still have hope.😀😁😀
This is a fantastic video David. I am an aspiring coach for those with PD, for even though I don’t have PD I work with people like you every day and am continually inspired by your grit and perseverance
Thank you for taking on that coaching role, there is room for many more.😀😊
Ive heard that Paraquat (A strong weed killer used by police to kill mamajuana feilds with a small spray back in the 70s) might be the cause of mine. The parkinsons drugs are too harsh on my system. The carbadopa makes me throw up non stop for 2 weeks even after i stopped taking it. Even the smallest dose did the same, So there is absolutely nothing for me. The tremors keep me up 3 to 4 days at a time and this causes desperate madness. I dont know if I can make it through another bad round of that. I scream and pray for death. Ive known for a long time that death is the only way out
Hi Richie, I am so sorry that you have to go through this intense and painful time. I hope that you are able to reach out to your local area for help. We are here to listen and support as I know there are other viewers on this channel going through the same things as you are.
I LOVE Tolkien! Great analogy. Thx, David
Thanks Jeremy. I have always wanted to read the entire history of middle earth. It's on my bucket list.😀😁😀
You are doing a great job with your videos David.
Thank you so much Richard😀😁💗
A great video David. I like the elf metaphor. I also like your coach story.
I'm so glad the story and metaphor were helpful😀😁😊
Thx for sharing buddy. Having Parkinson's for me...let's be honest. It sucks 😆😆 but what can I do?? I have to battle. Battle. Exercise like I've done before! From 170lbs yo 146! That's why I took a chance and entered a fitness contest. If I win I will donate a portion to two charities one of who is the pd society of bc. Has to be a cure one day?? Right? At the end of the day, I don't know what to say...carry on..try..get up try again..get up battle..get up again push it. Don't let it win!!❤❤❤❤❤
Hi GoPro, thanks for being willing to put yourself out there for the Parkinson's community the way you are. Entering a fitness contest the way you are is so bold and inspiring, thank you for that.😀🏋️♀️🏋️♂️💗
Great video, thank you. My experience is quite the opposite. Ever since I “came out” and got real neuro care and signed up with .Michael J. Fox and several regional groups, I feel pestered and nagged by the onslaught of tips and tricks and mindfulness n
Meditation and yoga and physical therapists and cognitive test givers and surveys and DNA and singing and boxing and footwork and therapists knocking on my internet. Geesh ! It’s all good but I need to NOT read about some stuff, especially every day. Whew got that off my chest!
Hi Teresa, thank you for your comment and for shinning your light on the other side of my perspective. I didn't realize that you could sign up for all the things that you are pointing out, and while they are all good in a sense, too much information, like you say, can bring a person down, as well as be incredibly confusing. Thanks for watching and for giving me the chance to see things from your perspective.
Wow... Thank you. 🙂
Hi Javier, you're welcome and thank you for your feedback. It is much appreciated,😀😁☺
Excellent
Hi Nick, thank you!😀😊
I was looking for some practical Solutions and I appreciate you telling you about the situation ..... However do you know where I can go to get some more practical coaching or methods to better my situation?
Hello Harry, my channel has many practical solutions. Please check out my website as a starter place. What are your needs at the moment?
www.lifewithparkinsons.ca/
Also, I have made several playlists on the channel for solutions. Please check it out.
Anymore questions you can email me at info@lifewithparkinsons.ca
Many thanks for reaching out! 😊😁😀
Hi David! I watched your redlight therapy update video and it is encouraging to see it is working for you. It appears from this video too that your symptoms are lessening, unless you are heavily editing it? Your speech seems smoother in general. I look forward to watching more of your updates.
Are you focusing on redlight therapy only or are you also using vibration therapy too?
Hi Owen, yes my symptoms are becoming more manageable since I started the red light therapy, and have continued to improve since I am doing the maximum recommended daily treatment. I have stopped taking most of my supplements, but have not been able to decrease my medication further, I would like to speak to my mds first.
I'm not sure what you mean "It appears from this video too that your symptoms are lessening, unless you are heavily editing it?"
Are you asking if I am fudging the results? If you are I am not offended, that is a fair question. I would never do that, especially since it would ruin my entire reputation and destroy this channel. It's not worth the chance of a few affiliate sales to ruin my future on any social platform. I see the chance to share my Parkinson's journey with so many others as a privilege, not a right. I value my audience greatly .Thank you for asking and giving me the opportunity to respond.(if that's what you meant😀😀😀)
At this time I am only using the red light, and would not use the vibration therapy at this time as I would not want to skewer the results. I am going away near the end of May for about a week and will not use the red light during that time to see what happens when I stop. Next update likely first week of June.
I am going to try some vibration therapy soon, as I will be constructing a set of Parkinson's Gloves as a project with a friend.
Thank you Owen. Have a great day and thank you for asking questions. Feel free to ask more.😀😁😊 You can always contact me via email info@lifewithparkinsons.ca if you have further concerns.
@@LifewithParkinsons Hi David! TY for your response back! I did not mean to imply you were fudging results. I thought maybe the way you edited your videos it just may have appeared that your symptoms were lessened. Thus the question...it is good to know that the red light therapy is really helping.
Are there any negative side effects of red light therapy? Any redness or sun burn like effects if exposure is too long?
@@owenhas9029 Hi Owen, no worries, sounds like I misunderstood, but I wanted to answer the question of fudging anyhow. The red light therapy is helping, and I feel more relaxed lately because something is actually helping, and it can help anyone. That is a comfort to me, to bring to the channel something that CAN help all with Parkinson's. As to bad side affects I believe there are none. Please check this article. www.redlighthelp.com/can-you-overdo-red-light-therapy
Please check the Rouge site also - rougecare.ca/pages/how-red-light-therapy-works
Affiliate link - rougecare.ca/?ref=LifewithParkinsons
Omg I found Tass presentation stating vibes not supposed to mirror in sync each finger should vibe random pattern listen to Tass on no silver bullet
Hi Ellen. This is a surprise Originally on my version 2 gloves I had each hand on a different controller which ran out of sync. I noticed almost no change until I synched them up. Could you please send me the link to the video you were watching? Thanks 😊😀😀
Tell me did u get results from the gloves ???
Hi Ellen, yes the results have been positive. Will be recording an update video soon.😀😁😊
👍
Thank you so much for watching Tony!😀👍
Have you tried testosterone for purpose if energy, healing, improved strength? Haven’t seen anything online on this but it seems the PD community is trying a lot of the same things as the body building community.
Hi Photoshop no I have not tried testosterone. I do use creatine from time to time for water retention and muscle repair but I probably wouldn't go into the testosterone. I know what you mean the PD community is trying bodybuilding stuff, I'll try almost anything to ease my symptoms. I would only bring something to the channel though if there was undeniable evidence it did help.
Have you ever Had Any past head trauma ?
Hello, no not really. A mild concussion one time playing basketball as a teenager.