Great job Skylar. I am a 58 year old hemophiliac with hemophilia A severe (born in 1962). When I was growing up there wasn't much treatment other than whole blood or cryo. Factor8 wasn't widely available until the early 70's. I'm glad to see you have survived. Take care man.
Thank you for everybody that helps with this disorder that me and some of us others are going through. It’s not easy and getting older school can get hard to participate in things. But We are living the best we can. And thanks to you. You are the reason we are living
Your lucky I'm 38 and the treatment wasn't there for me and I have several joints with damage. Happy for you though. My mom was a nurse so I'm not to messed up.She would sneak in my room and give me physical rehab. Good Luck. Keep ur head up!!
Rasheed Ahmed I’m sorry man rip to your brother, I have it too but I have the least amount of hemophilia, so I rarely bleed a lot and this blood thing never happened to me, I never needed any blood transfusions or shots to help me I bleed normally I thank god that it never happens and never will happen to me and i know your brother is proud of you and keep your head up🙏
I guess I'm lucky though, as I have not had to have any limbs removed. However when I was really young I had a bleed in the brain, and I was going to go under brain surgery because they didn't know what was wrong and I was not expected to live, But then a nurse found out I had heamophilia, saving my life. Then when I was 3 or 4 I had another bleed in the brain but they knew what to do. I am happy and healthy now. Hope you are all ok as well.
sadly i have hemophiliaA too so sad i almost die in this kind of disease one time my teeth is near to get so i force it by using any thing so i di'dnt stop bleeding 3 days none stop of bleeding i became so dizzzy the feeling of it is it's like your just in the place that is no people you know just you when i try to walk just in 10meters away i felt i run in 30kilometers my heart beat so fast and when time my aunties my parents doint allow me to join any games at school beacause of this disease for thoes people that doint have this kind of disease you guys are very very lucky god bless you.
Oh no way exactly same happened to Me man i lose so much blood in teeth i can't even stand my head hurts like a hell and somehow i survived ,how u doing bro?
govindarajuarunraj2@gmail.com This is my mail id , drop me a mail with your what's app number, don't share your number in comment, Email me fast I will create. Thanks for response
@AK- AYAN Gaming i know having hemophilia is tough i've been through a lot of joint bleeds and it's soo painful and i hate that feeling and going to hospital is so expensive like my parents now cannot afford factor 8 when i'm having a episode again i'm sorry bro if my comment got offended i ain't mean it. have a nice day. :)
Great job Skylar. I am a 58 year old hemophiliac with hemophilia A severe (born in 1962). When I was growing up there wasn't much treatment other than whole blood or cryo. Factor8 wasn't widely available until the early 70's. I'm glad to see you have survived. Take care man.
Sorry
Hava you married
Do your kids suffer from dz
Please do reply
Thank you for everybody that helps with this disorder that me and some of us others are going through. It’s not easy and getting older school can get hard to participate in things. But
We are living the best we can. And thanks to you. You are the reason we are living
Your lucky I'm 38 and the treatment wasn't there for me and I have several joints with damage. Happy for you though. My mom was a nurse so I'm not to messed up.She would sneak in my room and give me physical rehab. Good Luck. Keep ur head up!!
God bless you
I'm 58 and you're right. Growing up back then the treatment was really lacking. Hang in there man, there is always hope.
An informative and inspiring knowledge that both parents and the victim of haemophilia should find it useful.
I have hemophilia A but I feel like I am Dead-Man.
Don't feel that way. If you need help reach out. I am a 58 year old severe hemophiliac. Grew up in the 60's with hemophilia.
@@kellyjustice404 Hemophilaia is a curse and we are all uncardly of this curse. Where are you from? I think u r from 🏴
I am also A but i feel like a normal with the help. Of proper treatment
@@kellyjustice404 can I get connected with you, my 6 month baby has been diagnosed with hemophilia A
i have hemophilia too... but i already lost legs due to swalling in them n am on wheel chair now... at my age factor was not available there...
Bro I lost my brother in hemophilia
Rasheed Ahmed I’m sorry man rip to your brother, I have it too but I have the least amount of hemophilia, so I rarely bleed a lot and this blood thing never happened to me, I never needed any blood transfusions or shots to help me I bleed normally I thank god that it never happens and never will happen to me and i know your brother is proud of you and keep your head up🙏
I have severe hemophilia A...
I guess I'm lucky though, as I have not had to have any limbs removed. However when I was really young I had a bleed in the brain, and I was going to go under brain surgery because they didn't know what was wrong and I was not expected to live, But then a nurse found out I had heamophilia, saving my life. Then when I was 3 or 4 I had another bleed in the brain but they knew what to do. I am happy and healthy now. Hope you are all ok as well.
Hyper Doge man that’s good to hear, I’ll keep you y’all in my prayers and good luck bro, just keep your head up and follow up with visits
nice to see a positive video instead of reading articles that put the fear of god into parents with newly diagnosed babies.
I had a brother, had, he died at a very young age from hemophilia. Now it is much easier and safer to control.
He is a brave young man.
I also have hemophilia, only person in my city that has it
Funk Grizz same I have B severe
In aus I’m part off the 2000 that have it
same
@@thedumbdog1512 yes b
I have hemophilia A severe and take Hemlibra where I inject it into the skin and only have to inject 1 a week
U feel like normal
Me take 2 in a week
But i feel like normal when we will take proper treatment then we can live like a normal
Hi Hemophiliacs
Im a PWH too
Im from Philippines
We Have A group of PWH
Called Hemophilia Advocates Philippines
God Bless! Amen!
how is the genetic code of someone with hemophilia different than a healthy person
sadly i have hemophiliaA too so sad i almost die in this kind of disease one time my teeth is near to get so i force it by using any thing so i di'dnt stop bleeding 3 days none stop of bleeding i became so dizzzy the feeling of it is it's like your just in the place that is no people you know just you when i try to walk just in 10meters away i felt i run in 30kilometers my heart beat so fast and when time my aunties my parents doint allow me to join any games at school beacause of this disease for thoes people that doint have this kind of disease you guys are very very lucky god bless you.
Oh no way exactly same happened to Me man i lose so much blood in teeth i can't even stand my head hurts like a hell and somehow i survived ,how u doing bro?
I have hemophilia A factor 8
guys why dont we create a whatsapp group
Hi Juschill
I totally agree with U 🖒🖒
I have a Hemophilia A
govindarajuarunraj2@gmail.com
This is my mail id , drop me a mail with your what's app number, don't share your number in comment,
Email me fast I will create.
Thanks for response
Cool! I have severe hemophilia A 8
@@EvvyBevvyx A 8???????????, nvr heard about 8
The more you know
Does factor 8 is the better treatment for hemophilia A?
Yes I have hem A and my physician recommended me factor viii it is really effective
Yes I have hem A and my physician recommended me factor viii it is really effective
By the way I am from West Bengal, India
Dipto kumar Chakrabarty I would shoot up factor 8 about 3 times a week but now I shoot up hemlibra once a week
Factor 8 in the Philippines is so expensive.
same foctor 8 from pakistan
@AK- AYAN Gaming very inspiring comment bro. hehehe
@AK- AYAN Gaming bruh i ain't laughing im actually inspired by your comment
@AK- AYAN Gaming i know having hemophilia is tough i've been through a lot of joint bleeds and it's soo painful and i hate that feeling and going to hospital is so expensive like my parents now cannot afford factor 8 when i'm having a episode again i'm sorry bro if my comment got offended i ain't mean it. have a nice day. :)
Can you get braces if you have hemophilia?
Yes
Yep I have braces and have hemophilia
i have hemophilia B and O - blood type
Skylar you are so awesome!!
I have hemophilia
I have severe a(that’s the most severe kind) they are way over exaggerating everything.
Thank you man, agree. I was looking for a comment like this one. Same here, severe a
Life is in the blood; and urine.
my name is skyler and i have it
As a PWH you can only maintain a healthy lifestyle if youre rich.
Count me in.. I'm hemophiliac
Me 2
Who’s here from science class
Mashallah
Sorry man ; l do not know the matter; then time i comment this matter; SORRY