@@catarinavidal5329 I can confirm this, I have a brother who has schizophrenia. At times he recognizes that he is schizophrenic and that his medication is helping him but other times he swears he is not and that his medication is doing him more harm than good
@@ceciliab4746 I can also confirm this. My late mother had it and she was the exact same way. There were times where she knew that the delusions and voices she heard weren't real. But other times, no.
@@vhperches not every person is top tier schizophrenic, some can have it to the point where they can manage without medication but should probably use it
I had no idea that it wasn’t normal to have suicidal thoughts. Everyone gets sad right? Found out at age 13 that wanting to take The Longest Nap whenever I got overly upset was not good or normal. I’m at a much better place thank god
@@maame5095 yeah, it’s weird to meet “perfect people” who’ve never once thought to run away or just end it all for stupid reasons. Who don’t cry, or hurt so much from simple words
@chromophilia No, it’s not common. Most people will never have a serious thought about it, let alone ideation. Only one in five will ever have serious thoughts, and less will have ideation or planning. We’re just the unlucky few I guess
This could be a bit gross but it may help someone so, here goes. (TLDR by request: Doctors ignored my symptoms because I was fat. Turned out to be stage IV cancer.) I had always had heavy periods. Like blood clots the size of your finger heavy. They could last continuously for months at a time. Went to the doctor was told it was just menorrhagia and I was fine and it was because I was fat. Was the same through my 20’s but at 30 it was out of hand. I was still heavy (actually had noted a weight gain over the past few months.) I was bleeding through bath towels and the pain was excruciating. Went to the ER, they said I needed a DNC until they found out I didn’t have insurance then it was I really didn’t NEED one and was sent home. Told to take Tylenol for my ‘cramps’ and try a heating pad. I endured it for a few more months until my husband put his foot down. He had a job with insurance now and we started trying to go to local doctors. The first few told me I just needed to lose weight and to go to physical therapy (which I did several times.) One didn’t even bother to take my temperature. Frustrated we went to a larger city over an hour away for one more doctor. This one listened to me. Like really listened. I started bawling when he promised to find out what was wrong. One night in the middle of the myriad of tests we had planned, my pain skyrocketed. My doc just told me to meet him at the ER. It was 2 am. He didn’t hesitate. I thought I had a kidney stone as I had them before and the pain was somewhat similar. I had braced myself for poking and prodding and maybe EVEN a surgery. Scans came back. You know those extra few pounds I had put on? Tumors. My abdomen was full of tumors. My ovaries were obliterated and the size of cantaloupes. I had stage IV uterine carcinosarcoma that had spread everywhere. My reproductive system to my liver and my lung. Got a full hysterectomy and had a tumor debulking surgery. Spent my 31st birthday in the ICU. I spent the next 3 1/2 years doing chemo but I beat it. 2011 pronounced cancer free! If you feel like there is something wrong and your doctor isn’t listening, find one who does!
@@annamakaryeva1324 Unfortunately a lot of doctors treat women, especially larger ones that way. They go for the easiest solution whether it is right or not!
My turn! My grandma makes the *best* peanut butter pecan cookies ever. No contest. The best. I’ve been eating them since I was born. I thought it was natural for intense sweating, mouth itching, difficulty breathing, and mild nausea to happen when you ate pecans and cashews. Apparently, I’m very, very allergic to them. I’ve since built up some immunity against it, though
When I was young, grade 8, I had my mensuration cycle last probably two months, probably longer, with about a 5 day break of not having it before starting again. At school I would be clutching my stomach in pain, the teachers would comment on how pale I was. I took notice that large blood clots would be coming out, it’s normal to see small blood clots, but some were probably the size of my two thumbs combined. Well my now ex friend was over cuz her brother had practice and I started get really bad cramps, so I took a hot bath so it would ease the pain. It worked until about 15 minutes after I got out. The worst cramps I have ever had took place to the point where I woke up my mom, all while crying. Turns out I was anemic and I was out on birth control that stopped me from having my period all together, and I was prescribed iron and calcium supplements. 2 years later my gym teacher had the audacity to say we couldn’t skip gym because of period cramps, because he has daughters of his own and he thinks he knows that it’s like to have them.
i have yet to figure out if there’s more wrong with me than just extreme cramps (i have to go to a gynecologist). i’ll occasionally get cramps so bad i pass out multiple times and first time it happened, i went to my doctor who saw how much pain i was in and immediately checked my appendix. people who don’t have periods that feel it’s their place to assume they know how they are piss me off so bad. some people don’t have them bad, but they can be HORRIBLE.
He had pica, a fairly uncommon condition where you eat/have cravings for non-food items. some people eat glass, others metal, this dude ate nickels apparently
I was the patient. Had a tangerine-sized lump on the back of my knee. Doctor said "It's a Baker's cyst, if it's not hurting, don't worry about it, it will go away on its own." Went back to him 5 more times over the course of a year (including getting an MRI). Same thing, "don't worry, it will go away on its own". Finally saw a specialist, and within 10 minutes he was writing a referral to the National Cancer Center; it was a malignant liposarcoma (fat cancer) tumor. That was almost 20 years ago and I'm fine now, but Dr. Tsutsumi? GFY.
I could, but here in Japan reporting really does nothing unless there’s actual damage suffered, and even then not much. In the end, nothing happened that wouldn’t have happened if he’d ID’ed it properly from the start (it was still treatable with surgery, surgery was successful, insurance covered everything) so no damages to recover, really. I just made sure to warn as many people away from him and his hospital as possible. Dr. Tsutsumi is now at the Hiroo International Clinic (a private hospital that mainly caters to expats with sniffles who can’t speak Japanese and aren’t on the national insurance program).
something similar happened to me but on a much lesser scale, and i was probably a bit younger too. i was in 3rd grade suffering from a severe kidney infection (apparently it almost got in my blood and i could’ve died, who woulda thought) and the doctors told me for three months “it’s just a virus, it’ll pass” we were going to the doctor once every week before my dad finally took me to the ER. got admitted and had my first IV. screw you doctors. also it was so bad i couldn’t even walk and i was in bed everyday
I remember this one time, I was talking about fruit to my mom and I said said "I don't really like kiwi" and when asked why I said "It makes your tongue feel tingly". I was wondering why she was so confused. and that was how I found out I had an allergy to kiwi.
@@dev_sev_ace5329 THE SAME THING HAPPENED TO ME I remember saying to my mam “damn, i really love kiwi i just hate how it makes my mouth feel all tingly and sore and swollen a little” and she was horrified LMAO
Same thing for me but for me it’s apples, kiwi, and peaches, but only if they are raw, like I can eat apple pie and peach cobbler etc. it’s just eating the raw fruit makes my throat, tongue, and entire mouth get agitated, burn, and overall just hurt a fucking lot
Ever since I was 11 or so (don't remember when exactly it began) I would get aches in my chest every once in a while. While I didn't think it was normal, I thought I had some heart problem. For some reason (idk why) I never told my parents and never checked it, just living for a few years thinking I'm going to collapse at any moment and die... A few years later I saw an article on the news about anxiety- and that's how I found out I've been experiencing panic attacks for years. Seriously though, these things need to be taught at school. It could really help a lot of children to know that mental illnesses exist, and it's not just something serial killers have.
I sometimes get sharp pains too in chest. I dont have any stressful thoughts when it happens though, oor I just can't remember. Will see the next time tho...
@@pastorofmuppets9346 they cause horrible pains. It can feel like your chest is being crashed. Oftentimes people go the hospital because they think they're having a heart attack when they're actually experiencing a panic attack.
Mostly throughout elementary school and middle school, I would get tight chest pains where I felt like I couldn't breath, so I'd hyperventilate, my body would shake, my heartbeat was hella fast (or it just felt like it), I would start to tear up to the point of almost crying, and this would last for about 5-30 minutes. I thought it was normal since either no one noticed, or just never commented on it. It would also happen multiple times a day, sometimes with 1-4 hour breaks in-between. Later my doctor was like "I'm pretty sure that's anxiety..? 'Cause that ain't normal." And I was like "oh??"
I was the patient. 8 year old me: “Wanna see my cool tricks?” *bends knees 20° backward, dislocate shoulders, dislocate jaw, pulls thumb out of place* Doctor: “That’s… not supposed to happen…” Me: “Okay but LOOK HOW COOL IT IS!”
@@keatonscreations ohh hey, I also have eds. I used to do these as tricks to entertain my friends, they also loved to touch my skin because it is so smooth. No one had any idea what it was until I found a tiktok about it, researched it and saw an specialist.
Yeah. Mine was 5.3 when I got it checked a few months ago…. Turns out I’m extremely anemic and started iron treatments immediately and I’m not just lazy
I did my bloods a few weeks back and the Dr said my bloods were high for me, it was up at 50 something but am pregnant and it's low for pregnant women apparently. I have rarely had a score over 13 so was happy it was at 50 odd.
@souless the source is the World Health Organization and if you want to check your blood levels I'd recommend calling your doctor and asking for a complete blood count
Not a doctor but i am a Pharmacy Technician. A patient called in to order their insulin pens and while i was going through his account i noticed he hadn't ordered the needles to go with the pens in over a year so i asked him if he needed them filled as well and he said no he still had plenty. I informed him he should have ran out 8 months ago and his response was " Oh i change the needle once a week" 🤦♀️ i have never been so scared for someone in my entire life you're supposed to change the needle after each use. I had to get a pharmacist on the line to give the man a consultation.
@@CupcakeEternity You really don't want to pierce your skin with dirty needles. Even though it was your own bodily fluids on the needle, they could still grow bacteria in-between injections. There are ways to disinfect needles, but most needles sold today are intended to be discarded after one use. (Not a doctor)
@@CupcakeEternityshould also be worth mentioning that needles get deformed after usage (most if not all types/sizes), so this can cause dangerous punctures
As a patient, I was 21 when I found out that your throat burning during exercise isn’t normal. I always thought that it was because I was overweight and didn’t work out as much as my peers and that if I pushed myself I would get better. Turns out I have exercise induced asthma. Your throat burning and struggling to breathe during exercise is apparently not normal! Who knew?
Wait, really? I get that when I excersize sometimes, especially if it's cold. I've never really thought it was especially hard to breathe, just a little painful, I thought that's just how you expand your lung capacity.
my "oh thats not normal" was losing time for hours to days, hearing other conversations in my head, having little to no memory of childhood and extreme detachment from your body was puberty and having an imagination! it was dissociative identity disorder
@@vainblack9643 could be DID or OSDD, depending on which 2 outta 3 it is. i suggets doing research on plurality/multiplicity anyway since its pretty useful in case you come across and befriend a system so you can be a good friend. also maybe bring it up with your therapist if youre lucky enough to have one and see if you could get a diagnosis maybe
@@coffee-things I've been to a couple. Found out this year that half my diagnoses were wrong. Life's a lot better but I'm just self diagnosed right now. I married someone with a degree in abnormal psychology so I cheated the system I think, lol
TL;DR: Had severe backaches as a small child. Dad thought it was me being a brat. Got bad enough grandparents took me to the ER. Grandpa went full WWII Marine to order a doctor to test to find out the problem. Kidneys were bad. 6 years of medical followed. Tbh, I don't really remember this when it started, but my grandmother (RIP) told me that, when I was 5-6, I started getting weird backaches. She thought it was weird because I was, otherwise, a pretty normal and active kid. My father, on the odd occasion that he was present, just claimed I was being lazy or throwing a tantrum (admittedly, I was kind of a problem child from what I do remember.) One day, the backache went from 'twinging discomfort' to 'curl up on the floor bawling and screaming my lungs out' and, in a panic, her and my grandfather (RIP) took me to an ER doctor who--at first--thought it was "just a UTI". Both my grandparents wouldn't let up--my grandmother said that my grandfather went full-on "WWII Marine" (and we all know, you don't f w/ a Marine no matter how old they are)--and, finally, got the doctor to agree to do some more tests. A few tests later, turned out that, at 5-6 years old, neither one of my kidneys were functioning completely right (I don't remember anything specific about what the problems were). Cue the numerous doctor visits--and more than one hospital stay--over the next 6 years (w/ plenty of painful incidents along the way), ending in having to have surgery (something to fix my kidneys, but not replace them), another hospital stay for two weeks, and home-schooling 'til the end of the year. Much better now (was like 20 years ago), but I still worry every time I start getting a backache in my lower back.
Most doctors aren't well versed in chronic conditions if they didn't specialize. Because your training is always in a hospital, where most cases are acute, and Non-Emergency cases are usually people trying to either scam for drugs or hypochondriacs, people with legitimate long-term illnesses tend to get overlooked because that's what their docs were trained to do. Even if your focus was GI, a long-term issue that could be 20 years in the making doesn't read as an emergency and therefore may not read as something that is important. As a kid denied medical care for the excruciating pain so many foods caused me, it's hard to not minimize how much it effects me.
Probably the ones in the same line as those that don't believe a mother when they KNOW for a fact their kid is disabled, and have a nurse cheat on the tests for it just 'cause they can't be arsed lol. Brit btw, if that wasn't obvious.
@@midwestmangos2452 as someone who lives in the Midwest and has a heavily disabled sister, you are absolutely right. Her most notable diagnosis was found at age 12 at Mayo Clinic (several hours away).
My favorite personal story is my dad and I have a body temperature of 96F. My doctor didn’t know, checked my temperature, and grew worried. I always have to tell new doctors that it’s a hereditary trait in my family. Something about my ancestors coming from the Arctic circle to America less than 100 years before I was born. The trait hasn’t been bred out yet. I guess having a low body temperature would be advantageous to those living in sub zero climates. I always wondered why I got hotter and sweatier than other kids.
That story from the schizophrenic that had no idea it wasn't typical to have two other voices in your head got me hard. Obligatory I'm not schizophrenic, but I do have a mental health condition that I was only diagnosed with when I was 29. When I finally got diagnosed, it was mind-blowing, very much an "EVERYTHING MAKES SENSE NOW" moment, but what was particularly infuriating/distressing was the number of people close to me, including some of my family, that said to me rather nonchalantly words to the effect of: "How didn't you know? We thought it was obvious." Imagine living your entire life not knowing there was an answer to all the questions you had about yourself, all the wondering why everything just seemed to be inexplicably more difficult for you than everyone else despite the fact that you are, apparently, an exceptionally intelligent person, only to find out at 29 that many of the people closest to you had been sitting on the answer the entire time and never thought to mention it to you because they thought it was obvious. There are few times in my life that I've ever felt so anguished as when I had that revelation. Please understand people: when you're born with a mental health condition, there was never a time before the condition existed in your life, so there's no comparison for the individual to use as a benchmark for 'what it's like'. It *is* their normal. My condition may have been obvious to everyone else, but I was completely oblivious my entire life pre-diagnosis because no one had ever mentioned or suggested that I might have something going on upstairs that I didn't know about until my manager of 1 year very discreetly, tactfully, and while affording me my dignity, mentioned it based on her observations of me at work and her own experience being a mother of a child with a similar diagnosed mental health condition. Post-diagnosis my quality of life has vastly improved. I understand myself now so much better than ever before, I'm take regular medication, and I have support and recognition as a registered disabled person, but I still sometimes wonder what my life could have been like had I known as a child and received the support I needed in school rather than being dismissed by the majority if my teachers as simply lazy or naughty. Sorry for the essay, just wanted to get that off my chest. Thanks for reading of you made it this far. ✌️
I struggle with this too, I had such a right to know. To be taught, everyone has a right to know why their bodies act independently. Frustrating learning so late, I’m 27 without a diagnosis but finally seeing a psychiatrist beginning of next year 🤞🏻
Exactly!!! I felt stupid when I figured it out, because in retrospect, yeah okay obviously it's not normal for everybody to feel like they have these invisible EYES on them all the time that you just KNOW things about, or sometimes that there are cameras/microphones hidden that you know EXACTLY where they are and who put them there yet every time you look theyre never there (I have delusional disorder that takes the form of non-persecutory paranoia) but it's REALLY fucking hard to notice that when it's just always been your normal. It was only when I was almost 21yrs old and checking the kitchen cabinets for the nth time in a week for cameras/microphones my flatmate had hidden in them that i was like. Hold on. Wait a second....maybe there's something...not...completely...normal about that. Okay maybe I should bring that up with my therapist. I don't know whether that's rlly not normal or whether I'm crazy to think that's not normal. Lollll. And then eventually, after a long time I connected that the Eyes were part of the same delusion and also not normal, and that my paranoia about my parents having had cameras/microphones hidden around the house as a child (which never pinged my radar like the flatmates, because that felt a LOT more believable and reasonable. I know exactly what triggered the bout with my flatmate, but it still didn't really make much sense/wasn't very believable that he would hide devices in our kitchen cabinets. My parents, however, whole other story). I'm on an antipsychotic now tho, so I haven't had to deal with it for a couple years, which was more of a relief than I'd realised it would be.
This was pretty much my exact experience figuring out that i was bipolar. Fury doesn’t describe the feeling well enough. Some hellish mix of outrage, betrayal(?), jealousy/envy, grief, rage, humiliation, and pure exhaustion. Relief came slowly and weakly.
I found one about that The friend of who shared the story thought that she had mental problems because she heard a voice in her head She got checked and turns out she thought she was the only person capable of thinking
Nah that's not good. It's better to promote False positives than false negatives. Else everyone would be too scared to be treated in fear of seeming "stupid". The head director of this clinical organization I volunteer at has the best saying. "The worse questions are the ones you don't ask."
@@tuluppampam well, if that voice is excessive it could be a sign of something other than schizophrenia like OCD, autism or depression. You can actually make yourself to crazy if you spend too much time talking to yourself, I think it's called like a neural feedback loop network or something? It's what makes incels go nuts and think that women don't like them because of skull shapes.
Patient here. My parents wanted to know why I wasn't growing. They suspected it was only because my maternal grandmother was 4"11. Turns out i was in acute kidney failure. I had a week to live before ending up in a coma or dead. So that was fun... Also, apparently, you're not supposed to be able to have your ankle so flexible the side of your foot touches your leg.
I know you’ve probably been preoccupied with the kidney thing, but have you researched Ehlers-Danlos Syndrome about the flexible joints thing? You’d be surprised how many aches and pains and even stuff like heartburn connect directly to that.
when i found out i was colorblind. i thought i only was struggling to tell difference between colors close together. till my friends used an app on there phone where thier camera shows what i see and they were shocked and wondered how i functioned
not me but i remember when i was a kid, noticed one day that my mom called cyan, green. and found out that colorblind people do exist, its kinda sad to know some people don't want to except that.
My family found out I was colourblind because my mother and I argued over a backpack being blue or purple(it was, in fact, not blue) very loudly in a Walmart.
@@CertainOverlord Are you male? If you are it may be best to see if you're colorblind too. If I remember it correctly colorblindness is mostly a hereditary X-chromosome recessive trait. Which means if your mom is colorblind, she's double recessive and all her children would have the genetic mark. (All males would have the recessive X and be colorblind. And all females would be carriers with a recessive X; other X depends on father) If other people see my comment too, hope it helps you make the decision to get it checked out!
@@Anonymous-in4ed yep, my maternal grandfather and younger brother were/ are color blind. figured that out when my brother was coloring a picture in a coloring book as a kid and he used brown for the grass lol.
my mom is a plastic/reconstructive surgeon and was in my city attending a conference, so i was hanging out in her hotel. i mentioned to her that a mosquito must have bitten my bum because it was itchy and there was a very slight bump (we live in the tropics so this is super common) and she gave me some extra gauze pads to keep it from scratching against my jeans. well i completely forgot about it until the end of the day and i sat on a chair in our hotel room, and i felt a weird sticky warmness on my bottom. panicking i ran to the toilet and found out what had been a small "bite" was actually only the small entrance to a huge ass abscess. the back of my jeans was absolutely splattered in the worst gunk i'd ever seen. the bump had ruptured because of the pressure of me sitting 'twas so big in fact, mom immediately pulled out her surgery kit and had to perform minor surgery on me right on the hotel bed. came complete with painkillers shot into the bum and everything. talk about bonding activities with your parents
Turns out it’s not normal to be so afraid of bad things happening outside of your control that you force yourself to stay awake for far too long every night for weeks on end
Boy I remember a period of my life when I used to be really scared every time I went to bed cause "I may not wake up tomorrow as far as I know" Not fun In general I've always been scared of everything... People told me that it was normal to be "a little scared" of new things, but recently I've been feeling better and I've been able to meet new people more and I realized that "a little scared" wasn't what I was. I was terrified, I feared for my very life every fricking time 😥 ~anxiety sucks~
I had to read and review patients' records about a year ago. Got a lot with mental illnesses, esp. depression. That was the time I learnt that thinking about k*lling yourself multiple times a day, hating yourself and not making it through a day without crying about almost anything was Not Normal TM. I thought other people just handled/hid it better.
This really reminds me of when I was going through my old notes for a doctors visit, and I had written down “depression?”. Yeah, turned out it was depression. Big time. Not with a question mark, with an exclamation point. In hindsight, it seems ridiculous I even questioned it. I just thought I was lazy, and too emotional, and all that shit other people told me.
@@JasminMiettunen I hope you've been able to get treatment, I have since then and it has helped me so much! It's weird that our brains insist so vehemently on being healthy even though they're self destructing atm
When I was an adolescent I cried pretty much every day. It wasn't always sad crying, sometimes it was being moved emotionally, and I thought it was just my normal. In college, I finally got treatment for my depression and anxiety and now cry at a much more reasonable frequency.
@@priyanshugoel3030I think by "reasonable frequency" he means "crying only from sad" and not "crying whenever(even if it's a "void cry(as of "nothing happened, then I started thinking about smthn and now i need to cry half a hour out" cry))
I relate to the constipation one. I actually thought it was normal too to only experience a bowel movement every 2 weeks or so until I started living with my fiancé. He was going twice a day and I told him he needed to see a doctor. When I said I only had 1 movement every other week, he said I was the one who needed to see the doctor. He was right. Doctor gave me some meds that stimulated my gut to go at least once a day and I was actually pissed off by how frequently I felt I had to go to the bathroom. My doctor laughed when I told him I have no idea how people can spend so much of their life taking a dump lol.
Yeah… I have a huge issue with forgetting stuff. Basically, if it isn’t vitally important at that specific moment, imma gonna forget about it completely without fail
When I was a kid, I always had nosebleed. I thought it was normal, since my grandmum said some people are just really sensitive to heat and nosebleed all the time. Flash forward to college, where I had severe headaches 24/7 and nosebleed almost daily. My prof, who I told about my nosebleed history, told me to get checked and that he'd even pay for it. Turns out I had a tumor growing at the base of my skull, thankfully benign. I'm done with that part of my life and I don't need to carry an excess amount of tissue anymore or change of clothes wherever I go.
My mother was once diagnosed with severe (as in "how are you still alive?") iron deficiency shortly after my younger sister was born. Turned out a piece of the placenta came off and had remained in the womb. That was about 25 years ago and she's still alive and fine. But I imagine the doc was quite scared.
No joke, the shortness of breath one is real. I had shortness of breath (as in, climbing a staircase made me feel like I was going to faint) coupled with what I thought was a leg cramp that wouldn't go away. I suffered like this for over a week, thinking it would go away on its own. Then I passed out one evening and woke up in the ICU 6 days later. Turns out, I had a blood clot go into my lungs and my heart stopped. So... yeah. Get that shit checked out, because unexplainable shortness of breath and leg cramps are not normal.
for me it was a "no, it's normal" moment. I'm in my 20s, read too much about hearth diseases and started being scared since I had fast heartbeat and shortness of breath (not a severe one tho) after physical activities. Went to a doctor. Turns out, it's only the symptoms of something when you're fine and then it's bad all of the sudden, but not when you've been unfit for years. Did more exercises and it got better
My dad had a mild heart attack about a year ago and thought it was just heartburn and my stepmom knew what it was right away. He had come home from work and complained of shoulder/arm pain, then he said something to her like "ugh my chest hurts probably the pizza from work..." and then tried to get up to get some TUMS and fell back onto the couch, she immediatly called me to watch my brother so she could take him to the hospital.
Anyone else with Visual Snow/Static? I thought it was perfectly normal, since I've had it my entire life. I thought everyone saw dull TV static over everything, and dancing lights. Turns out I actually have a brain disorder that causes all the issues I've been experiencing (Visual static (and other visual artifacts), tinnitus, depersonalization, depression, and photophobia (intolerance of bright lights.)) And, suddenly, a lot more shit actually makes sense.
yes! i have had it my entire life and it's weird to know that i will never be able to see darkness like others do. and also i have tinnitus, derealization (don't know if thats part of it too), and photophobia sometimes as well! very annoying lol
A guy in my psych class has aphantasia (I hope I spelled that right). It was group work in how our brains categorise faces, like how we can tell apart our neighbour from our friends and how people who look similar can be told apart. Our lecturer was telling us how he can visualise one of his best friends in his head and we all agreed we could do that until it came to the only guy in our group. He just sat there and talked about how he's never been able to visualise anything in his mind at all. I asked him if he could think of a blue apple, and he said he just couldn't do it. He knows what an apple looks like and could probably guess what a blue apple looks like, but trying to think and imagine it in his head was impossible. Our lecturer ended up stopping the class because he was so interested in the guy, and honestly it was really cool listening to him talk about it.
I always had debilitating periods since I was 10 all the way up to 19 (I'm 20 now). So bad as in, bedsheets, pants and underwear were lost because they'd have been bled into beyond repair. Massive blood clots. Having to change thick pads at least once every hour. Surprisingly, though, the cramps weren't very bad up until when I got older. I started birth control at 10/11 with the pill. Pills would work for some time. Pills would stop working. Would go on a new pill. The cycle kept repeating. Periods became out of control again; irregular and heavy. Went on the implant when I was 15. Implant would work for only around a year out of the 3-5 that was always advertised. Not to mention it ALWAYS had my arm swollen, upset, and in pain. Implant would stop working. Got it taken out when I was 16. Considered the depo shot, but had to yell at the doctor to get her to understand that I didn't want to do it. Got the (mirena) IUD in at 16. It worked for around 2 years out of the advertised 3-5. Now, my IUD had never been misplaced. In fact, it stayed put for the ~3 years that I had it in (I had a very difficult time getting my doctor to listen when I asked her to take it out). Bleeding came back. However, when I was 19, it began to gave me the worst pain ever. Pain like no other; they weren't regular period cramps for me which can usually be solved by exercising. No, this pain only got worse if I moved around. I always felt nauseous and could literally cry from the pain. I was giving up daily activites again, but for the pain instead of the bleeding. Doc thought I had endo. Got it taken out and I was genuinely astonished it hadn't moved at all. After that, I tried to get an endometrial ablation. Apparently, though, there is in fact such a thing as a uterus too small for that procedure (as well as a uterus too large). Mine was too small, so I began pressing for a hysterectomy because I was 100% done with being medicated. She tried to press me to get an opinion from another doctor- mind you I was only 19 at the time -and I insisted on not, because I was set on this. I hated my periods and never wanted kids, so what's the big deal? Skip almost a year later- post op from a hysterectomy. Doctors found NOTHING, NO indicators for why my periods had been the way they were. I no longer bleed, nor do I run the risk of pregnancy at all. My quality of life has improved so much it's insane. I wish every doctor who insisted on keeping me medicated a very fuck you. I haven't been medicated since and I feel great.
Words cannot describe how thankful I am for this comment. I've experienced this my entire life and thought I was just overreacting. But this, this gives me such a sense of relief. This amount of pain isn't normal and now I know how to explain it to my doctor better. Thank you so so much.
As someone who herself experience the dreaded Cramps™, have friends with terrible menstrual pain and my mom too - I thought for a long time that this kind of pain was normal. As a teen you could find me pacing the hallway outside my bedroom at 4 am on day 1 of my period, wrapped in my duvet and shaking and freezing. Only to occasionally run into the bathroom in case I was going to puke from the pain. I got better over the years, but it's still a painful experience and an inconvenience to be on my period. I'm in my 30's now and just had an implant put in for the first time in my life (why it took so long to get one is on me, I was scared). And it's actually doing great for me so far. But it always makes me sad to hear stories like yours. Not that you finally got help, that is freaking awesome! But that there is. So. Little. Research. On. Womens. Health! Endometriosis is a debilitating and potentially dangerous condition and we know so little about it. This comment section is full of women who themself thought extreme pain or bleeding was normal, or worse, turned away by doctors who insisted they were overreacting. Where I live, the avarage time to get a proper endometriosis diagnose is 7 years. That seems very long.
ngl this resonated with me a lot. even though my periods aren't as extreme, I have the same problem with moving making cramps worse, needing night pads and ibuprofen always ready, and doctors not finding any cause. except I never got to get any actual treatment for it, just pain killers (not so useful when you're getting fevers and throwing up bile all night).
I am a trans man, and this happened to me. I started at 9, and had month long, several months apart periods, with extreme excruciating menstrual cramps, fainting from anemia, and vomiting. The cramps were so severe I’d be nearly screaming. I’d also have cramping in between. I had a hysterectomy last year and it’s amazing. I feel amazing. Fuck that stuff
i thought it was just a normal thing that everyone did, always run around the house for hours until i faint, sleep for more than 16 hours after being awake for days and having mood swings like there's a switch in my brain turns out i have type 2 bipolar and manic episodes are not a joke
I thought it was type 1 that was like that and type 2 was calmer. I might be wrong I myself haven't gotten diagnosed though my family believes I have bipolar which makes sense because my dad and his dad have bipolar and it can be genetic.
I was a patient like this. I thought everyone got a tickly, pins and needles feeling all over their mouth and throat whenever they ate store bought bakery desserts like cake, lemon bars etc. I called it "sugar shock". I ended up finding out in my mid twenties that I didn't have asthma or sugar shock but a deadly allergy to a preservative.
I’m pretty sure I have a mild allergy to some sort of preservative too. It only really happens with certain bakery frostings and stuff like Hostess snack cakes. Glad to know it’s not just me.
In my childhood, I had a friend who had Pica he would just eat random stuff and then say he didn't when asked he just eats it he had a serve belly ache and cramps his mom rushed him to A&E he got an X-ray he had 5 full forks, a couple of spoons and a shit load of paper got rushed straight though to surgy he got meds and mental health referral and he was petty fine after that.
@@MrCyru24 yes but, wouldn't his throat get cut, or at least get sore, and, I couldn't swallow a whole fork if I tried. you said that happened in your CHILDHOOD. that means he swallowed all that AND he was a child? how did it fit? and btw I'm not saying you're lying or anything it's just curiosity
@@3phone16 we was about 10-11 years old, he said he ate them from the non pointy end and they just slipped down, so guest it was like that magic trick where people eat swords or glass
@@MrCyru24 how is that some people can eat a whole draw of kitchen utensils and be just fine, and then there's people who try to swallow a slightly larger chunk of meat and just straight suffocate to death?
I did a sleep study once. When the doctor who discussed the results with me, which included a few pages of question, he commented that he was going to finish the list, then come back to one for more info. He asked me why I answered my quality of life on a 1-10 scale with a 4, I paused then said because I didn’t think he’d believe me if I answered 2. Asked me to expand on that. Told him I don’t know where I was before I was born, but I’d just as soon go back there. I just didn’t want to continue playing this game called life. Immediately put me on Prozac. Immediately felt levels of contentment I’d never experienced before. The change was so dramatic, he called me the poster-boy for Prozac.
Ever since I can remember I was always tired. It got worse when I got into high school. Like really bad, I would sleep from 10 pm to 7 am, walk to school, sleep on the bench until the doors opened, started my first class, (sometimes I could make it through this one without falling asleep) went to my second class, if I didnt fall asleep in class one I would definitely pass out after 14 minutes. Then I would sleep through break, go to my next class, then my fourth, sleep through this one. Then sleep through lunch. (Anyway it keeps going like this) Basically my parents and doctors kept bouncing between “you are simply oversleeping and need to wake up more“ and “you dont get enough sleep.” One day on Saturday, I managed to stay awake all day to try not to “oversleep” I woke up Monday afternoon and missed school. No one would believe me and I knew something was wrong but they kept brushing it off. So I set up a sleep tracker/schedule and wrote down how often I slept, when I slept etc, showed it to my councillor (since no one else would take me seriously) and she was able to get permission to take me to the hospital, to a different doctor than my family doctor, and get blood work done. Turns out my thyroid was extremely under active. I feel great now. :)
Same thing happened to me my junior head of high school, I couldn’t stay awake in any of my classes. As soon as I got home I’d sleep until it was time to go to school. I was terrified of doctor visits but was worried enough about my health to ask my mom to take me. The doctor asked if I’d had a break up recently, I said no.. and then he said there was nothing else he could do because severe fatigue had ‘too many possibilities, would be impossible to narrow it down.’ Then sent me home..
5:16 - my grandma had lung emphysema and many symptoms of long term smoking. However, she didn't smoke. It was all second hand smoke: my grandpa smoked like a chimney, and her daughters who lived with her smoked too.
Going through this right now; for over 6 years I’ve been fighting for anyone to listen to me, as a wild cluster of symptoms (all over, vomit inducing body pain, low blood pressure, high heart rate, nausea, cold hands/feet, extreme brain fog, and a lot more) moved to a new town about three months ago; turns out after some simple blood test and review of my history, I definitely have some sort of autoimmune disorder and POTS. Sooooo yea it’s not just me being chubby and mental health issues 🤷🏻♀️
i’ve been suicidal on and off since i was 9, struggled with depression for as long as i can remember. first memory of symptoms was when i was 5. turns out a have a bizarre cocktail of mental illnesses with trauma mixed in for flavor. i just kinda thought it was normal lmao. a lot of my stuff is chronic but treatment helps make it manageable and i’m glad i’m not dead
My mum was having a headache, it hurt to touch the side of her head and chewing hurt like hell. Turns out she had a 4cm tumor growing through her skull. She's 9 weeks post OP now and is doing better but recovery is a long road
Damn, meanwhile I have a chronic genetic condition that was finally diagnosed at 21 and for years I’d ask about stuff like “is this normal?” And it was very clearly not but they’d be like “yeah, probably” when I was literally talking about my jaw dislocating or feeling like my organs were constantly getting squished by a steamroller. I think the most sad thing about all of this is how many AFAB patients learn to dismiss their own health concerns because of the medical field being generally pretty shitty towards female-oriented care.
This happened when I was in 5th grade: My mum had noticed I was eating less, drinking a lot more, and pissing more as well. We went to the doctor to get a blood test, I thought it was an annual thing. Turns out I have Type 1 Diabetes, and had to be taken to the ER because I could have been literally dying. I thought it was just puberty at the time. Boy, that was wrong
I found out recently that people aren't always overly paranoid about having panic attacks daily/weekly. OCD and ADHD is a killer combo especially with a bit of panic disorder on top. Apparently other kids growing up never really worried about stealing from stores by accident or having a fit when you get home thinking that something is in your pocket even though you don't have pockets. Speaking your mind is one thing but SPEAKING YOUR MIND is another entirely, speaking your scatter brain is never a good idea.
I had major anxiety and would have panic attacks almost every night, and thought it was normal. A few years later, age 11, I was having a conversation with my mom and brought it up. She explained that it was anxiety. Also turned out I also had insomnia. Anyway, she got me started on therapy and anxiety meds. Im a little mad that my mom, who worked in a mental hospital, knew I had anxiety for my entire life and didn't think to do anything about it until I talked about it.
My anxiety deadass fucked me up, I had depression, disassociation, literal manic episodes, hallucinations and a bunch of other crazy shit because I used to be IBS along with my anxiety. Thank God I can manage it better now but damn, looking back it really did get out of hand.
im pretty sure i have insomnia aswell, on the vast majority of nights all i can do is lie awake and think about my life. it always ends on the terms of death, the fact i cannot escape it, how after i die there will be nothing. no memories no thoughts, not even nothing, i will cease to exist and my conscience will fade away. it causes me alot of anxiety and i cant escape it, i try to shift my mind but i cant, it was at it's worst during my gcse's because if i failed it could affect my life going forward. i was up hours past the time i was meant to be asleep for the exams first thing in the morning thinking about how nothing will ever matter because in the end i will die and every last part of me will be forgotten the exact moment i die. the fact that i may die alone because of my orientation and the fact that i wont die at the exact time as any of my loved ones, hell those exams were only a few weeks ago and im still dealing with sleepless nights. sorry for the rant but i needed to get some stuff off my chest
my doctor had a moment like this with me just today. had my bloods done, fainted, went into shock, nearly died. this isn’t the first time it had happened to me, so I laughed once I was conscious again (as she did my blood pressure which was so low all the machines kept saying error). I said ‘damn, if this is what you have to deal with when doing blood tests, how do you deal with surgeries?’ she just smiled and said ‘this isn’t what we have to deal with when doing blood tests’ still have a killer headache from that episode now but I’d rather have a headache than be dead 😉
I have three of these stories & I'm the patient in every one of them 💀 1) I went to donate my blood at a blood donation camp. The nurse over there told me that I can only do it after a haemoglobin test. Turns out my haemoglobin level was 4.3. The doctor was so pissed because I went to donate blood when I'm the one who actually needs it lol 2) I had had a su**** attempt after which I was admitted to the hospital & started receiving compulsory counseling. They asked me if I ever heard voices in my head & I confidential said no. My mom was there so she immediately said "she says she can hear & see ghosts. She talks to them sometimes." Well, bingo! 3) I had a slight stomach ache, but I thought it was just menstrual cramps & didn't care about it. I also didn't feel hungry most of the time. My mom said this wasn't normal & insisted that I to go to see a doctor. The next thing I know, I'm being rushed into the ICU because my appendix was about to burst. I'm clearly surviving on one braincell & if not for modern science, natural selection would have wiped me out long ago.
funny thing is i had the opposite for my appendix. i had 11/10 extreme pain where my appendix was to the point of not being able to get out of the fetal position. when i went to the hospital they told me that i had almost every symptom of appendicitis, i was told to go home and wait for a checkup appointment to confirm. i get to the front door of my house and unleash a torrent of vomit and stomach bile hitherto undreamt of upon the path. im guessing that in retrospect i had alot of pressure built up in my bowels. still a very funny story in hindsight hope you are doing well though
"that's low. like, you should be dying low. but she looked perfectly fine." lmao that's my mom's whole experience with medical shit in a nutshell. she should've been fucking OUT of it, basically dying and the doctor comes in like wtf.. she's just sitting up having a chat with the nurses, feeling relatively fine if you disregard the fact that she's in the hospital. also lmao I had regular mild stomach pain and nausea basically all the time and just figured welp that's my life! my parents said I was a very colicky baby too, sensitive to Everything. turns out I'm sensitive to gluten lmfao
I am highly allergic. Like i ate chicken wings with crumbs on it and my tongue began to feel pins and needles, my chest felt tight. Still busy with tests. Celiac bloodwork came back negative. (It's not always accurate) Next test will be fun....
The same with my mum and her diabetic discover. Mum had such a high blood sugar. The doctor wasn't sure if it mesaure right or my mum just managed to have Benn able to life with little sign while she should have Ben dead.
I always assumed that everyone could hear/feel through their body their heart beating while at rest when it was quiet enough. When I went on SSRIs (antidepressants and anti-anxiety meds) for sensory processing disorder it stopped. 30 minutes after taking my first dose I couldn't hear or feel my heart beating and I thought I'd triggered some terrible side effect. Told my mom and we figured out I had just been brought down to the baseline. That was how I got diagnosised with aniexty, treatment first. Because I only ever have the physiological symptoms and not the mental ones.
Took me years til I realized this, I thought palpitations were just when it felt weird or racing... Atenolol decreased them for me but I notice it a lot still... sometimes I'm too afraid to ask others cause I don't always know whats normal or not, most of my symptoms seem vagueish...
Wait, that’s my sensory processing disorder? I figured that wasn’t normal but I didn’t know which of my assorted physical and mental conditions was causing it lol
It doesn't happen anymore, by when I was a teen, sometime, my period would case me to have vomit and diarrhoea, hot and cold sweats and the horrible sweaty shivers that come with it and passing in and out of consciousness, though I think that was from the intense, organ ripping pain. One time, I tried that hippie shit they tell you to do in 'girls becoming women' pamphlets that they give you at school and try to 'soothe the pain with a hot bath.' The water felt freezing to me to the point i thought the hot water tap had crapped up, but it burned my Mum when she tested the water out. Never got diagnosed, though.... Honest to God, listening to how the doctors on this thing actually pursued a case they couldnt solved with a feel-up and a blood-test is not something I'm used to seeing .
When I was about 14. “Oh, yeah, I’m intermittently colorblind.” I am not, in fact, intermittently colorblind. I was taking a bad mix of meds and having light “trips” that messed up my vision and the colors of things.
Suffered from year long colds for years until I was in my late teens and literally would wake up at night because I’d stop breathing. Went to a doctor and after some tests found out I had eosinophilia which developed into asthma due to being untreated for so many years. And all those years of “cold” was basically me having allergic reactions to the environment. Also at the time we discovered I had hemoglobin and vitamin D deficiency which explained why I got “lazy” the older I got. This is why parents should take these things seriously. My dad didn’t take it seriously even when I said I’d stop breathing when I was sleeping and would wake up at night. My asthma would have probably gotten worse if mom didn’t take me to the doctor then.
I have eosinophilia and asthma too (bronchitis),, I'm also allergic to the cold and I used to wake up sneezing every morning in the winter and had an itchy mouth for that period until I got warmer. I'm also allergic to dust and other stuff and can't eat ice cream or drink soda without the side effects :(((
Whenever I sit in school desks I always angle my foot outwards and my knees forwards at a close to 90 degree angle. I do it subconsciously and it doesn’t hurt but when my Spanish teacher first noticed this, he did a double take and said “oh my god, is your leg okay?” Apparently your not supposed to angle your foot that differently from the angle of your knee, who knew?
Not me until I watched this video! I did some research and consulted my mother who is a nurse. I have the same issue. It's likely that I have Adolescent Blount's Disease (it isn't serious in most cases), but I suggest you look into it too
I was in my 40s and my therapist asked me how I was feeling. I couldn’t explain it. I had been in therapy off and on since I was a little kid for Major Depressive Disorder w Psychotic Features, Panic Disorder, and Generalized Anxiety Disorder, so for me to have a feeling I couldn’t explain was pretty rare. I did my best but I was really confused. So was she. It wasn’t a bad feeling. It was actually a pretty good one, I just had no words to describe it. Then it dawned on her. She stopped writing, put her pen down, looked at me with tears in her eyes, and said, “You’re happy. That’s what happy feels like.” I just said, “Oh… I never felt this before” and then we were both sobbing for the rest of the hour.
Bro now I have the image of a guy inhaling a salad, but not through the usually inhaling food via mouth, straight up snorting lettuce stuck in my head.
Oh man i never struggled so much to understand a thread like this one, english is not my main language and i need to constantly translate these patologies and other medical terms
@@apfelkonighd3946 I assume you're a (fellow) German, judging from your name, so, here's a little thing. You're right when it comes to languages that are geographically very seperated from us and/or from distant language family trees. But interestingly, most roman languages like French or Spanish, which make up a large chunk of European languages, actually use pretty much the same expressions, as well as plenty other languages that have adopted the terms through scientific literature. German is a germanic language (duh lol), but the latter is also the case - Schuppenflechte is the same as what doctors would call Psoriasis which is identical to the English version and so on. That is because medical terms are made up of Latin words, like "Leukämie"/leukemia comes from white (leuc/o), referring to white blood cells, and ämie/emia coming from the latin word for blood, referring to the presence of something in blood. When there is no name for a common disease that has linguistically evolved in another language family for an extended period of time, we usually just adopt the ones that languages in our vicinity have been using, that being in the Germanic case mostly Latin names. So a lot of languages you're probably referring to use the exact same words that German doctors use as well, some of which we use too if they're uncommon or newly created.
I've always had an extremely low pain tolerance and been very sensitive to vestibular/gustatory stimulation. I just assumed that was how things normally were for everyone and there was nothing wrong with me. Then senior year my parents finally got me a psychiatric evaluation and the psychologist had to explain to me that my oversensitivity to basically everything wasn't normal and I've had sensory processing disorder my whole life (which means there's a slight disconnect between my CNS and my brain so I don't interpret sensory signals properly.) My parents don't always understand how this works for me (sometimes they tell me to "start acting like an adult, if other people can handle this you can") but it's been an absolute miracle figuring this out.
This is something I went through when I was younger. My chest is indented inwards but it wasn’t severe enough to have surgery so my doctor just told my parents they can leave it as is. I didn’t know this when I was younger and there was a school trip to a lake, when I took off my shirt to swim in the lake I realized nobody else had the indent and I got a ton of questions about it when others noticed. Nobody was mean about it, they were just curious, and I was very confused about it when nobody else had a chest indent
17:07 That reminds me of myself. I am transgender. Throughout my life, I had made a list of arguments why it would be good or bad for me to transition or not. One of the reasons that I shouldn't transition was that it might make me so happy that I could barely function anymore because I am not used to being happy. Yes. That was a serious concern of mine. Being too happy.
Being too happy is actually unhealthy for us as well. The ideal consistent state is calm. Mania leads people to do some really dumb stuff like spend all their money 🥲
I'm not a doctor but I'm sure my doctor was like "No that's not normal-" when this happened; Me: "Yeah my bones hurt when you touch them, but it's always been like that :)" Doctor: "That's not supposed to happen-" Me: *Internal Panic intensities*
When i was a child 3 or 4 years old my mom took me to a clinic because my leg was hit by a metal object and it started an infection the doctor said it was secondary infection my mother thought secondary infection is normal until the doctor said that secondary invection was severe
Ghost: oh hey there I believe my body is in your morgue, and I'm trapped in here. Doctor: wtf that isn't normal Ghost: I guess you could say... It's paranormal *(Both chuckles)*
For about 5 years I thought I was just extremely out of shape and really, really hated the feeling of being out of breath to the point it gave me a panic attack. Turns out I have exercise-induced bronchoconstriction and was basically experiencing asthma attacks fairly regularly. I only went to the doctor because I had to run to catch a train for maybe 5 seconds, and then spent about 15 minutes wheezing and another half hour recovering before my breathing fully normalized. Idk why it was this event, as I have had many similar events in the past, but it was at that moment I just thought "y'know? I don't think this is how people usually experience being out of breath." Needless to say, the doctor was quite surprised to hear I'd had the complaints for around 5 years and couldn't understand why I hadn't come in sooner.
I also became a legend at my pediatric dentist as a kid because one of the best dentists I've ever had took 2 hours to do a filling on one of my molars because the teeth that needed to be seperated to do the filling where shaped just right that the ring clamps wouldn't stay on. That was pretty uncomfortable though lol
i've been living my entire life with severe pain in my lower abdomen and occasionally my stomach, about 1 and a half years ago i started throwing up uncontrollably, losing 15kg in 2 weeks (the weight loss stopped after that, the throwing up didn't) and had a shitload of examinations and even diagnostic surgeries. they still haven't found anything and blamed it on my mental illnesses :) (the pain has been around much longer than my mental issues, and obviously this mysterious illness severely worsened my anxiety and depression. i also have severe food trauma now bc every time i eat i have to spend several hours afterwards trying not to throw up.) but yeah, finding out that it was not normal to live in excruciating pain every day really fucked me up as a preteen.
Had a similar thing, went years stressing about my food because I knew it'd give me nausea and I never knew what the safest food in the moment was and spent three years of being told by doctors I was just anxious. It even got to the point of rectal bleeding (which I often assumed was either a weird period or something that would just fix itself) and they STILL claimed it was anxiety. What kind of messed up anxiety gives you rectal bleeding?!? Turns out it was ulcerative colitis. Went into hospital, tested out a series of increasingly powerful medications that I was seemingly immune to, got told "hey you might need surgery soon, we're not sure how soon though", found out they meant TOMORROW soon, and now I don't have a colon. (Unless you count the multiple plush colon toys I've been given since.) So idk if they've checked for that, but if they haven't maybe ask them to give it a try?
When I was younger, pretty much a teen, I was used to listening voices in my head and would constantly have mental arguments over not commiting suicide. Turns out it was a pretty moderated depression mixed with PTSD, got the medication and stopped listening to these voices
I learned this year that not everyone is in constant and continuous pain. I mentioned to my therapist how I didn't have "any more pain than the usual, baseline pain everyone has." Still reeling from 26 years of thinking this was normal.
AH good old endometriosis... Period: Hello Endo Sufferers: Oh hi...? Period: ... Period: You should probably just call in sick now before you cant even functon. Endo Sufferers: Yeah... I'll get on that Period: Good, because I'm early this month and I'm staying two weeks if you dont mind, cool thanks I do not miss those days
I was over 3 years old. I sat in the room of my aunt and played with stones. IDK WHY but I put one of these stones into my nose. I ran to my mother and said:" Mum, there's a stone in my nose!" My mother drove me to the hospital immediately and the doctor said if he can't correct this with his pincer, they have to cut my nose open. I'm glad he fixed it with the pincer
For context, my parents always shrugged off anything I thought might be wrong unless I was literally unable to get out of bed. 1) Sometimes I have sudden chest pains. It's been happening since I was three or four. Not sure what it is still, I figure it hasn't killed me yet and it's been nearly 2 decades. 2) I had massive pain after eating, like curl up in a ball kind of pain after eating, I was always exhausted, always pretty weak, and a bunch of other miscellaneous systems that individually sucked but I didn't think it was a big deal. I didn't eat a lot because I knew the pain happened after eating. Finally broke down and went to the doctors after literal years of this. Got diagnosed with Celiac's right before I turned 18. 3) I was unfortunately born with a uterus, despite being very much a guy deep down. The monthly demon week is hell. The amount of pain I'm in every month is astounding. It's so bad that there's been times I was nearly sick in the middle of class or work, and have almost passed out from it. My dad mentioned how little people talk about what can go wrong with periods, even saying that some people go through their whole lives not realising they weren't supposed to be near incapacitated by the pain and I, 20 at the time, said "Wait, that's not normal?" Still not sure what exactly is wrong.
When I was about 13 or 14 I did a front flip into my aunts apartments pool and hit my neck on the concrete edge. I hit it so hard that when I came back up, my aunt immediately pulled me out of the pool to check my neck. I don't remember if there was bruising or not. But, I've had the most intense headaches/migraines ever since. Which I always explained away with I must've slept wrong. I've also woken up with stiff necks that where so painful to move, to point I was in tears. I get headaches and feel nauseous and dizzy when holding my neck in certain positions, just thought that's what happens. I've thought these where due to my neck injury, but never looked into it. I did today. And yes, neck injuries can cause headaches. They are called cervicogenic headaches and no I'm not saying I have this. But, it's something I should bring up to my doctor. If not that, at least the headaches part.
Hope you've found help, both my mother and grandmother had neck injuries that caused intense headaches and migraines. My mom one had one so bad she fainted in a friend's garage and hit her head on the cement floor, not pretty.
I, and everyone around me, thought it was completely normal for me to be able to touch my fingertips to the back of my hands, and my thumb to my wrists and be able to just- do estrange movements with my body, everyone said it was because I was very young and flexible and it would go away by the time I turn 20 Well, turns out I have HEDS (Ehlers danlos) and have dislocated my right knee 5 times in a span of 3 years (4 of those were in 2 years, every 6 months I would dislocate my knee in some form), along with not being able to limit myself to "normal" conditions (when I do a thumbs up, the last bit of my thumb does a 90° degree turn to the back and it hurts to try to make it look normal because I'm technically forcing myself to do so). I'm also more likely to get bruises, scars last longer and just touching my skin a little harder makes a small bruise that lasts for like, a minute. I have HEDS type 3. I'm lucky I don't have 5 or 6, because OH BOY (my veins, arteries and everything in my body would be so sensitive that the blood flowing or digesting would hurt, bruise and leave scars on every bit of it, there are people who have to stop EATING because it will cause them to collapse completely)
Went to the doctor once because I had a mosquito bite on my lower back/upper butt and had scratched it so much it had started getting a bit hot (suspected the scratching had infected it, no big deal, nothing some antibiotics can’t handle, right?). The doc told me to pull my skirt down a bit and face the wall and then opened the curtain to the exam area, took a look at me and said “oh my god!” I wish I had figured out from that reaction that I needed some more attention…but even after the ED doc at the hospital said I’d have to be admitted overnight I STILL asked if I should get my other half to bring my work clothes in so I could go to work in the morning. What a muppet.
Unfortunately most of my situations have been “Yes, that’s normal” when I would bring something up and something was actually wrong. My brother and I both kept telling people we felt like our mental health was declining but our parents and doctors and teachers dismissed it as off days or less serious problems up until our lives fell apart. There’s nothing more frustrating than knowing if people listened to you that consequences could have been prevented, especially as it pertains to your own life. I’m begging all of you, no matter what problem it is, if you know something is wrong, please push for help. Don’t let people ignore your well-being until it becomes an emergency situation.
Yes, spend all you have left in you to find help. If you know something is wrong, it’s better being dismissed and having to find a different doctor than being dead. Find help. I can’t even imagine my life if I got the help I needed 10 years ago.
Also, all the folks who went to multiple doctors who essentially blew them off, I wonder how many have thought of or actually take test results, surgery reports, etc. to those doctors and loudly call them out, dress them down, and question their ability, in the lobby of their practice when it is full of patients.
In 3rd grade, sometimes my eyes would go out of focus, but I thought I was “looking at the air molecules in front of my face”. I thought it was normal but then when I went to the eye doctor they gave me a prescription for glasses ;-;
SAME! What about the squiggly lines that are darker spots that you can make go up or down and eventually they float away? I always pretended they were birds based on their wavy shape and I’d make them fly when my vision went out of focus
@@scarletpanther2513 wait this isnt normal?!? i can focus and unfocus my eyes on command and sometimes i see circles with smaller circles inside doing the same things your squigly lines are doing
The squiggly things are in your vitreous jelly (the clear goop in the middle of your eye that keeps it inflated so to speak)! I THINK it’s normal to have a couple of them occasionally. But my mom had them really badly, turned out her vitreous jelly was drying out to the point it ended up detaching her retina.
for me, the "thats not normal" moment was when i was talking about my POTS symptoms like they were universal (because i though they were) and my therapist asked why i hadnt gone to the doctor. looking back its kinda funny that i thought everyone else was also in excruciating pain when standing for extended periods of time and i thought i was just dramatic
Me: *casually "pops" my shoulder while telling my new physical therapist about my back pain* PT: 0.0 *nearly drops his notebook* Me: *stops talking* "Um, you okay?" PT: "Sorry, I'm just... trying to figure out what that was." Me: ... "Oh, the shoulder thing? Sorry, it's not usually that loud." PT: "It wasn't just loud. I've never seen anybody do that, before. Didn't that hurt?" Me: "Not when I do it on purpose. My whole family is double jointed. Sometimes one of the joints gets stuck, and I just kind of shift it to a more comfortable position. Sucks when it happens on accident, though, cuz it's hard to figure out which way to twist it back." Yeah, turns out "double jointedness" is not actually a thing, being able to partially dislocate and relocate your own shoulders/hips/knees is not normal, and my back pain is caused by all of my muscles making panicked attempts to keep my body from literally falling apart while I walk. My mom and I have both since been diagnosed with EDS. My sisters probably have it too, but they haven't reached a breaking point, yet.
My mother didn’t have her cycle for about 3 months (no she wasn’t pregnant, they haven’t been trying for years) and when she got it back she had her cycle for about a month. Her doctor was very concerned.
Here’s mine -.- no symptoms other than being tired. Blood test showed EXTREMELY high liver enzymes, doc was worried, turned out I have stage 4 fibrosis/cirrhosis at 26. (I don’t drink alcohol at all, it’s dem damn genes)
Re:Prozac I found out, after taking it for a couple weeks, that no! Having a Constant underlying feeling of threat is Not normal! And constantly being on edge and feeling worried is, in fact, not the natural state of the human body!
I know it's a joke, but that's probably what I would feel if I waa finally told why I am this way. Finally having a label for my struggles? Finally! Finally having a label for my struggles? Finally...
I was absolutely unaware that being in constant pain was unusual. Sure, I had heard of chronic pain, and even had friends who had it, but theirs were all so localized or so bad it was generally debilitating on a fairly regular basis, but I assumed everyone was always under some amount of pain, right? bodies are weird like that, and we’re all adults now, everything is weird. I only found out when I was on a voice call for dnd, and I had a flare up, in which i got a pain in my upper shoulder and it rippled down into my hand so bad it left me gasping, and I asked my group if we could take a break. they asked if I was okay, I said yeah, this happened every now and then, y’know, and the two ppl in the call with chronic pain went, “that sounds like chronic pain,” and I went, “but it fades and goes away sometimes and isn’t always this bad” and they said, “Yeah, *it can do that.*” A while later, I finally saw an acupuncturist and it helped a lot. I still get episodes, but they’re fewer and far between, and I have some stretches that can help ^^;
the absence seizure one whew…. i witnessed a diabetic seizure once at a starbucks and the only reason i could tell it was a seizure was from that glossy blank stare before she began sliding…… absolutely terrifying
“Turns out I’m schizophrenic. Who tf knew ay?”
This dude says this so nonchalantly, and I have respect for that.
@@vhperches That's during the acute periods. In times they are feeling 'better' they are aware they have a disorder.
@@catarinavidal5329 I can confirm this, I have a brother who has schizophrenia. At times he recognizes that he is schizophrenic and that his medication is helping him but other times he swears he is not and that his medication is doing him more harm than good
I’m on the other side, I have Aphantasia meaning I can’t imagine things and don’t hear any voice in my head.
@@ceciliab4746 I can also confirm this. My late mother had it and she was the exact same way. There were times where she knew that the delusions and voices she heard weren't real. But other times, no.
@@vhperches not every person is top tier schizophrenic, some can have it to the point where they can manage without medication but should probably use it
I had no idea that it wasn’t normal to have suicidal thoughts. Everyone gets sad right? Found out at age 13 that wanting to take The Longest Nap whenever I got overly upset was not good or normal. I’m at a much better place thank god
Wait it’s not normal? Not trying to be edgy but there are people out there that haven’t thought about it once? Damn that’s food for though
@@maame5095
yeah, it’s weird to meet “perfect people” who’ve never once thought to run away or just end it all for stupid reasons. Who don’t cry, or hurt so much from simple words
wait wait wait what? i thought that was normal at least every now and then
@chromophilia
No, it’s not common. Most people will never have a serious thought about it, let alone ideation. Only one in five will ever have serious thoughts, and less will have ideation or planning. We’re just the unlucky few I guess
@@beanboy5963 uh oh
This could be a bit gross but it may help someone so, here goes.
(TLDR by request: Doctors ignored my symptoms because I was fat. Turned out to be stage IV cancer.)
I had always had heavy periods. Like blood clots the size of your finger heavy. They could last continuously for months at a time. Went to the doctor was told it was just menorrhagia and I was fine and it was because I was fat. Was the same through my 20’s but at 30 it was out of hand. I was still heavy (actually had noted a weight gain over the past few months.) I was bleeding through bath towels and the pain was excruciating. Went to the ER, they said I needed a DNC until they found out I didn’t have insurance then it was I really didn’t NEED one and was sent home. Told to take Tylenol for my ‘cramps’ and try a heating pad.
I endured it for a few more months until my husband put his foot down. He had a job with insurance now and we started trying to go to local doctors. The first few told me I just needed to lose weight and to go to physical therapy (which I did several times.) One didn’t even bother to take my temperature. Frustrated we went to a larger city over an hour away for one more doctor. This one listened to me. Like really listened. I started bawling when he promised to find out what was wrong. One night in the middle of the myriad of tests we had planned, my pain skyrocketed. My doc just told me to meet him at the ER. It was 2 am. He didn’t hesitate. I thought I had a kidney stone as I had them before and the pain was somewhat similar. I had braced myself for poking and prodding and maybe EVEN a surgery. Scans came back. You know those extra few pounds I had put on? Tumors. My abdomen was full of tumors. My ovaries were obliterated and the size of cantaloupes. I had stage IV uterine carcinosarcoma that had spread everywhere. My reproductive system to my liver and my lung. Got a full hysterectomy and had a tumor debulking surgery. Spent my 31st birthday in the ICU. I spent the next 3 1/2 years doing chemo but I beat it. 2011 pronounced cancer free!
If you feel like there is something wrong and your doctor isn’t listening, find one who does!
the way those doctors treated you is absolutely horrifying. I'm so glad your story has a happy ending!!
@@annamakaryeva1324 Unfortunately a lot of doctors treat women, especially larger ones that way. They go for the easiest solution whether it is right or not!
@@TheApoohneicie people who do this can kindly go sit on a cactus :)
Holy shit. Mad respect for you pulling through and not giving up
@@banane2279 Thanks. I just finished doing chemo for a second unrelated cancer this year. I’m a tough old bird.
Who tf out here shitting blood and just being like "yeah this is totally normal"
Alcoholics.
*shits out entire digestive system*
"Live do be like that"
@@Cheezymuffin. Some ancient Greek dude was assassinated that way.
I got freaked out that i was shitting blood, once...
Turns out my poop was being dyed red by all the watermelon i'd been eating.
@@birkinsmith88 hmm yes watermelon shit
My turn!
My grandma makes the *best* peanut butter pecan cookies ever. No contest. The best. I’ve been eating them since I was born. I thought it was natural for intense sweating, mouth itching, difficulty breathing, and mild nausea to happen when you ate pecans and cashews. Apparently, I’m very, very allergic to them. I’ve since built up some immunity against it, though
If you're allergic, can you share some around? :)?
Hell no. Those cookies. Are. Mine.
@@dsi2867 but sharing is caring11111
There’s no way Grandma would ever tell us the recipe. She guards that shit with her life.
Same with dog allergies I used to be very allergic to it but now that I'm older I barely have any just some sneezes and that's all
When I was young, grade 8, I had my mensuration cycle last probably two months, probably longer, with about a 5 day break of not having it before starting again. At school I would be clutching my stomach in pain, the teachers would comment on how pale I was. I took notice that large blood clots would be coming out, it’s normal to see small blood clots, but some were probably the size of my two thumbs combined. Well my now ex friend was over cuz her brother had practice and I started get really bad cramps, so I took a hot bath so it would ease the pain. It worked until about 15 minutes after I got out. The worst cramps I have ever had took place to the point where I woke up my mom, all while crying. Turns out I was anemic and I was out on birth control that stopped me from having my period all together, and I was prescribed iron and calcium supplements. 2 years later my gym teacher had the audacity to say we couldn’t skip gym because of period cramps, because he has daughters of his own and he thinks he knows that it’s like to have them.
But but how would he know
@@missmichelle1290 for real, it doesn't matter if you are a boy or a girl you shouldn't have to do something if your in pain
@@ihutaylor9438 isn't weird that is actual demand for stating seemingly obvious thing like this?
i have yet to figure out if there’s more wrong with me than just extreme cramps (i have to go to a gynecologist). i’ll occasionally get cramps so bad i pass out multiple times and first time it happened, i went to my doctor who saw how much pain i was in and immediately checked my appendix. people who don’t have periods that feel it’s their place to assume they know how they are piss me off so bad. some people don’t have them bad, but they can be HORRIBLE.
so you bleed for more than 2 months and didn't die?wow
I love how the dude who eats nickels had no further explanation. Good joke too lmao
He had pica, a fairly uncommon condition where you eat/have cravings for non-food items. some people eat glass, others metal, this dude ate nickels apparently
@@PrincessAshley972 but EVERYONE in his family. I think it's more than pica
Guess he should.... change
Like Peter Griffin in that one episode where he is blind from nickel poisoning
@@vivimannequin fun fact: nickels aren't actually made of nickel anymore. too expensive
I was the patient. Had a tangerine-sized lump on the back of my knee. Doctor said "It's a Baker's cyst, if it's not hurting, don't worry about it, it will go away on its own." Went back to him 5 more times over the course of a year (including getting an MRI). Same thing, "don't worry, it will go away on its own". Finally saw a specialist, and within 10 minutes he was writing a referral to the National Cancer Center; it was a malignant liposarcoma (fat cancer) tumor. That was almost 20 years ago and I'm fine now, but Dr. Tsutsumi? GFY.
Can you report him? That's terrible, you couldve died from it spreading.
You should report that doctor.
I could, but here in Japan reporting really does nothing unless there’s actual damage suffered, and even then not much. In the end, nothing happened that wouldn’t have happened if he’d ID’ed it properly from the start (it was still treatable with surgery, surgery was successful, insurance covered everything) so no damages to recover, really. I just made sure to warn as many people away from him and his hospital as possible.
Dr. Tsutsumi is now at the Hiroo International Clinic (a private hospital that mainly caters to expats with sniffles who can’t speak Japanese and aren’t on the national insurance program).
something similar happened to me but on a much lesser scale, and i was probably a bit younger too. i was in 3rd grade suffering from a severe kidney infection (apparently it almost got in my blood and i could’ve died, who woulda thought) and the doctors told me for three months “it’s just a virus, it’ll pass” we were going to the doctor once every week before my dad finally took me to the ER. got admitted and had my first IV. screw you doctors.
also it was so bad i couldn’t even walk and i was in bed everyday
Tsutsumi? Yeah, you should sue-sue-him!
Not my story, but:
"So, smoking makes your lungs close up"
"Like when you eat an apple. right?"
"What?"
I remember this one time, I was talking about fruit to my mom and I said said "I don't really like kiwi" and when asked why I said "It makes your tongue feel tingly". I was wondering why she was so confused.
and that was how I found out I had an allergy to kiwi.
@@dev_sev_ace5329 I had this exact same conversation with my mom took me 14 while years of my life to find out I'm allergic to kiwi
Whaaat?! The same thing happens to me but I thought it was just like that thing that happens when you eat too much pineapple! 🤯
@@dev_sev_ace5329 THE SAME THING HAPPENED TO ME I remember saying to my mam “damn, i really love kiwi i just hate how it makes my mouth feel all tingly and sore and swollen a little” and she was horrified LMAO
Same thing for me but for me it’s apples, kiwi, and peaches, but only if they are raw, like I can eat apple pie and peach cobbler etc. it’s just eating the raw fruit makes my throat, tongue, and entire mouth get agitated, burn, and overall just hurt a fucking lot
Ever since I was 11 or so (don't remember when exactly it began) I would get aches in my chest every once in a while. While I didn't think it was normal, I thought I had some heart problem. For some reason (idk why) I never told my parents and never checked it, just living for a few years thinking I'm going to collapse at any moment and die...
A few years later I saw an article on the news about anxiety- and that's how I found out I've been experiencing panic attacks for years.
Seriously though, these things need to be taught at school. It could really help a lot of children to know that mental illnesses exist, and it's not just something serial killers have.
Oh crap. I get that sometimes.
I sometimes get sharp pains too in chest. I dont have any stressful thoughts when it happens though, oor I just can't remember. Will see the next time tho...
random chest aches are normal, often nothing, sometimes angina, rarely worse. never knew panic attacks can actually cause pain tho
@@pastorofmuppets9346 they cause horrible pains. It can feel like your chest is being crashed.
Oftentimes people go the hospital because they think they're having a heart attack when they're actually experiencing a panic attack.
Mostly throughout elementary school and middle school, I would get tight chest pains where I felt like I couldn't breath, so I'd hyperventilate, my body would shake, my heartbeat was hella fast (or it just felt like it), I would start to tear up to the point of almost crying, and this would last for about 5-30 minutes. I thought it was normal since either no one noticed, or just never commented on it. It would also happen multiple times a day, sometimes with 1-4 hour breaks in-between. Later my doctor was like "I'm pretty sure that's anxiety..? 'Cause that ain't normal." And I was like "oh??"
I was the patient.
8 year old me: “Wanna see my cool tricks?”
*bends knees 20° backward, dislocate shoulders, dislocate jaw, pulls thumb out of place*
Doctor: “That’s… not supposed to happen…”
Me: “Okay but LOOK HOW COOL IT IS!”
every kid at school whose double jointed did this lol
That sounds like ehlers danlos syndrome
@@quakxy_dukx you’re correct! I wasn’t diagnosed until I was 19. Do you have EDS?
@@keatonscreations yeah. Was diagnosed at 15
@@keatonscreations ohh hey, I also have eds. I used to do these as tricks to entertain my friends, they also loved to touch my skin because it is so smooth. No one had any idea what it was until I found a tiktok about it, researched it and saw an specialist.
3.9 hemoglobin? For context, anything below 12 for women is anemia
thanks for that vital context, that really IS low wow
Yeah. Mine was 5.3 when I got it checked a few months ago…. Turns out I’m extremely anemic and started iron treatments immediately and I’m not just lazy
I did my bloods a few weeks back and the Dr said my bloods were high for me, it was up at 50 something but am pregnant and it's low for pregnant women apparently. I have rarely had a score over 13 so was happy it was at 50 odd.
Omg I thought you said homo goblin and I was wondering what the heck you were saying.
@souless the source is the World Health Organization and if you want to check your blood levels I'd recommend calling your doctor and asking for a complete blood count
Imagine going to a fancy restaurant and seeing a guy sniff up a FIlet Mignon
I've been laughing at this comment for a whole 10 minutes now
@Moonjelly I CAN'T 😭
Me and the bois snorting cheesecake at 3am
I laughed waaay too loud AHAHAH 🤣
well, its better than the south park episode where they stuff food up their asses and ''poop'' out their mouth
Not a doctor but i am a Pharmacy Technician. A patient called in to order their insulin pens and while i was going through his account i noticed he hadn't ordered the needles to go with the pens in over a year so i asked him if he needed them filled as well and he said no he still had plenty. I informed him he should have ran out 8 months ago and his response was " Oh i change the needle once a week" 🤦♀️ i have never been so scared for someone in my entire life you're supposed to change the needle after each use. I had to get a pharmacist on the line to give the man a consultation.
I switched to a pump this year, but... After each use? Really? So for 12 years I've been doing it wrong lol. Never had any issues though
@@CupcakeEternity You really don't want to pierce your skin with dirty needles. Even though it was your own bodily fluids on the needle, they could still grow bacteria in-between injections. There are ways to disinfect needles, but most needles sold today are intended to be discarded after one use. (Not a doctor)
@@CupcakeEternityshould also be worth mentioning that needles get deformed after usage (most if not all types/sizes), so this can cause dangerous punctures
As a patient, I was 21 when I found out that your throat burning during exercise isn’t normal. I always thought that it was because I was overweight and didn’t work out as much as my peers and that if I pushed myself I would get better. Turns out I have exercise induced asthma. Your throat burning and struggling to breathe during exercise is apparently not normal! Who knew?
Wait, really? I get that when I excersize sometimes, especially if it's cold. I've never really thought it was especially hard to breathe, just a little painful, I thought that's just how you expand your lung capacity.
Srsly???
bro are you fr
wait WHAT??? THATS NOT NORMAL?? i thought I was expanding my lung capacity or smth idk.. dang, the more you know
I knew! I had that since I was like 5 and they told me I had asthma
If I was on a plane and a teenage girl threw up so much that she passed out, I'd be calling her an ambulance when we landed
my "oh thats not normal" was losing time for hours to days, hearing other conversations in my head, having little to no memory of childhood and extreme detachment from your body was puberty and having an imagination! it was dissociative identity disorder
SAME, EXCEPT ALSO I FELT LIKE I WAS FUCKING KINNING DIFFERENT CHARACTERS DEPENDING ON THE TIME OF DAY BUT NOOOO THAT WAS FICTIVES
I got 2 out of 3, what do I win?
@@vainblack9643 could be DID or OSDD, depending on which 2 outta 3 it is. i suggets doing research on plurality/multiplicity anyway since its pretty useful in case you come across and befriend a system so you can be a good friend. also maybe bring it up with your therapist if youre lucky enough to have one and see if you could get a diagnosis maybe
@@coffee-things I've been to a couple. Found out this year that half my diagnoses were wrong. Life's a lot better but I'm just self diagnosed right now. I married someone with a degree in abnormal psychology so I cheated the system I think, lol
Ah, yep. Remember that. (It’s a joke. I don’t remember that. I don’t remember much of anything)
TL;DR: Had severe backaches as a small child. Dad thought it was me being a brat. Got bad enough grandparents took me to the ER. Grandpa went full WWII Marine to order a doctor to test to find out the problem. Kidneys were bad. 6 years of medical followed.
Tbh, I don't really remember this when it started, but my grandmother (RIP) told me that, when I was 5-6, I started getting weird backaches. She thought it was weird because I was, otherwise, a pretty normal and active kid. My father, on the odd occasion that he was present, just claimed I was being lazy or throwing a tantrum (admittedly, I was kind of a problem child from what I do remember.)
One day, the backache went from 'twinging discomfort' to 'curl up on the floor bawling and screaming my lungs out' and, in a panic, her and my grandfather (RIP) took me to an ER doctor who--at first--thought it was "just a UTI". Both my grandparents wouldn't let up--my grandmother said that my grandfather went full-on "WWII Marine" (and we all know, you don't f w/ a Marine no matter how old they are)--and, finally, got the doctor to agree to do some more tests. A few tests later, turned out that, at 5-6 years old, neither one of my kidneys were functioning completely right (I don't remember anything specific about what the problems were).
Cue the numerous doctor visits--and more than one hospital stay--over the next 6 years (w/ plenty of painful incidents along the way), ending in having to have surgery (something to fix my kidneys, but not replace them), another hospital stay for two weeks, and home-schooling 'til the end of the year.
Much better now (was like 20 years ago), but I still worry every time I start getting a backache in my lower back.
What kind of doctors can't figure out lactose intolerance?
The worst kinds
Most doctors aren't well versed in chronic conditions if they didn't specialize. Because your training is always in a hospital, where most cases are acute, and Non-Emergency cases are usually people trying to either scam for drugs or hypochondriacs, people with legitimate long-term illnesses tend to get overlooked because that's what their docs were trained to do.
Even if your focus was GI, a long-term issue that could be 20 years in the making doesn't read as an emergency and therefore may not read as something that is important.
As a kid denied medical care for the excruciating pain so many foods caused me, it's hard to not minimize how much it effects me.
Probably the ones in the same line as those that don't believe a mother when they KNOW for a fact their kid is disabled, and have a nurse cheat on the tests for it just 'cause they can't be arsed lol.
Brit btw, if that wasn't obvious.
Midwest doctors.
@@midwestmangos2452 as someone who lives in the Midwest and has a heavily disabled sister, you are absolutely right. Her most notable diagnosis was found at age 12 at Mayo Clinic (several hours away).
My favorite personal story is my dad and I have a body temperature of 96F. My doctor didn’t know, checked my temperature, and grew worried. I always have to tell new doctors that it’s a hereditary trait in my family. Something about my ancestors coming from the Arctic circle to America less than 100 years before I was born. The trait hasn’t been bred out yet. I guess having a low body temperature would be advantageous to those living in sub zero climates. I always wondered why I got hotter and sweatier than other kids.
Likely you're a RH- blood type...
I’m the same way!
@@piperjoseph8207 are you RH- blood type?
my dad has a terribly low body temperature too! 35 C is just his normal, 36 C (the average normal) is already a fever for him lmao
@@darkacadpresenceinblood ...Rh negative???
"Doctor my pee isn't red anymore"
Shit
Oh
Oh no
doctor: i can prescribe you some red food coloring that should fix that problem.
Its white
@Rat Boy you're peeing the blood of Satan
That story from the schizophrenic that had no idea it wasn't typical to have two other voices in your head got me hard. Obligatory I'm not schizophrenic, but I do have a mental health condition that I was only diagnosed with when I was 29. When I finally got diagnosed, it was mind-blowing, very much an "EVERYTHING MAKES SENSE NOW" moment, but what was particularly infuriating/distressing was the number of people close to me, including some of my family, that said to me rather nonchalantly words to the effect of: "How didn't you know? We thought it was obvious." Imagine living your entire life not knowing there was an answer to all the questions you had about yourself, all the wondering why everything just seemed to be inexplicably more difficult for you than everyone else despite the fact that you are, apparently, an exceptionally intelligent person, only to find out at 29 that many of the people closest to you had been sitting on the answer the entire time and never thought to mention it to you because they thought it was obvious. There are few times in my life that I've ever felt so anguished as when I had that revelation.
Please understand people: when you're born with a mental health condition, there was never a time before the condition existed in your life, so there's no comparison for the individual to use as a benchmark for 'what it's like'. It *is* their normal. My condition may have been obvious to everyone else, but I was completely oblivious my entire life pre-diagnosis because no one had ever mentioned or suggested that I might have something going on upstairs that I didn't know about until my manager of 1 year very discreetly, tactfully, and while affording me my dignity, mentioned it based on her observations of me at work and her own experience being a mother of a child with a similar diagnosed mental health condition.
Post-diagnosis my quality of life has vastly improved. I understand myself now so much better than ever before, I'm take regular medication, and I have support and recognition as a registered disabled person, but I still sometimes wonder what my life could have been like had I known as a child and received the support I needed in school rather than being dismissed by the majority if my teachers as simply lazy or naughty.
Sorry for the essay, just wanted to get that off my chest. Thanks for reading of you made it this far. ✌️
I struggle with this too, I had such a right to know. To be taught, everyone has a right to know why their bodies act independently. Frustrating learning so late, I’m 27 without a diagnosis but finally seeing a psychiatrist beginning of next year 🤞🏻
Exactly!!! I felt stupid when I figured it out, because in retrospect, yeah okay obviously it's not normal for everybody to feel like they have these invisible EYES on them all the time that you just KNOW things about, or sometimes that there are cameras/microphones hidden that you know EXACTLY where they are and who put them there yet every time you look theyre never there (I have delusional disorder that takes the form of non-persecutory paranoia) but it's REALLY fucking hard to notice that when it's just always been your normal.
It was only when I was almost 21yrs old and checking the kitchen cabinets for the nth time in a week for cameras/microphones my flatmate had hidden in them that i was like. Hold on. Wait a second....maybe there's something...not...completely...normal about that. Okay maybe I should bring that up with my therapist. I don't know whether that's rlly not normal or whether I'm crazy to think that's not normal. Lollll. And then eventually, after a long time I connected that the Eyes were part of the same delusion and also not normal, and that my paranoia about my parents having had cameras/microphones hidden around the house as a child (which never pinged my radar like the flatmates, because that felt a LOT more believable and reasonable. I know exactly what triggered the bout with my flatmate, but it still didn't really make much sense/wasn't very believable that he would hide devices in our kitchen cabinets. My parents, however, whole other story). I'm on an antipsychotic now tho, so I haven't had to deal with it for a couple years, which was more of a relief than I'd realised it would be.
it got you what
This was pretty much my exact experience figuring out that i was bipolar. Fury doesn’t describe the feeling well enough. Some hellish mix of outrage, betrayal(?), jealousy/envy, grief, rage, humiliation, and pure exhaustion. Relief came slowly and weakly.
You should make a reverse of this like doctors are like "bruh, that normal"
I found one about that
The friend of who shared the story thought that she had mental problems because she heard a voice in her head
She got checked and turns out she thought she was the only person capable of thinking
@@tuluppampam Let me guess 14, white, female and American
@@jiggly_josh4826 I saw that one too, it was a young child and the parents were worried when she mentioned the "voice" in her head.
Nah that's not good.
It's better to promote False positives than false negatives. Else everyone would be too scared to be treated in fear of seeming "stupid".
The head director of this clinical organization I volunteer at has the best saying. "The worse questions are the ones you don't ask."
@@tuluppampam well, if that voice is excessive it could be a sign of something other than schizophrenia like OCD, autism or depression. You can actually make yourself to crazy if you spend too much time talking to yourself, I think it's called like a neural feedback loop network or something? It's what makes incels go nuts and think that women don't like them because of skull shapes.
Patient here. My parents wanted to know why I wasn't growing. They suspected it was only because my maternal grandmother was 4"11. Turns out i was in acute kidney failure. I had a week to live before ending up in a coma or dead. So that was fun...
Also, apparently, you're not supposed to be able to have your ankle so flexible the side of your foot touches your leg.
Are you okay?? How are you doing??
@@jamssy3409 Thanks for asking! I'm doing great! My father gave me a kidney 2004 :)
@@pwms11 I'm so happy for you!
@@jamssy3409 thank you so much ❤️
I know you’ve probably been preoccupied with the kidney thing, but have you researched Ehlers-Danlos Syndrome about the flexible joints thing? You’d be surprised how many aches and pains and even stuff like heartburn connect directly to that.
when i found out i was colorblind. i thought i only was struggling to tell difference between colors close together. till my friends used an app on there phone where thier camera shows what i see and they were shocked and wondered how i functioned
not me but i remember when i was a kid, noticed one day that my mom called cyan, green. and found out that colorblind people do exist, its kinda sad to know some people don't want to except that.
@@CertainOverlord wait, some people don't believe colourblind people exist. All i can say is just, bruh
My family found out I was colourblind because my mother and I argued over a backpack being blue or purple(it was, in fact, not blue) very loudly in a Walmart.
@@CertainOverlord Are you male? If you are it may be best to see if you're colorblind too.
If I remember it correctly colorblindness is mostly a hereditary X-chromosome recessive trait. Which means if your mom is colorblind, she's double recessive and all her children would have the genetic mark. (All males would have the recessive X and be colorblind. And all females would be carriers with a recessive X; other X depends on father)
If other people see my comment too, hope it helps you make the decision to get it checked out!
@@Anonymous-in4ed yep, my maternal grandfather and younger brother were/ are color blind. figured that out when my brother was coloring a picture in a coloring book as a kid and he used brown for the grass lol.
my mom is a plastic/reconstructive surgeon and was in my city attending a conference, so i was hanging out in her hotel. i mentioned to her that a mosquito must have bitten my bum because it was itchy and there was a very slight bump (we live in the tropics so this is super common) and she gave me some extra gauze pads to keep it from scratching against my jeans. well i completely forgot about it until the end of the day and i sat on a chair in our hotel room, and i felt a weird sticky warmness on my bottom.
panicking i ran to the toilet and found out what had been a small "bite" was actually only the small entrance to a huge ass abscess. the back of my jeans was absolutely splattered in the worst gunk i'd ever seen. the bump had ruptured because of the pressure of me sitting
'twas so big in fact, mom immediately pulled out her surgery kit and had to perform minor surgery on me right on the hotel bed. came complete with painkillers shot into the bum and everything. talk about bonding activities with your parents
Mom why are you reaching for the needles 😰
Turns out it’s not normal to be so afraid of bad things happening outside of your control that you force yourself to stay awake for far too long every night for weeks on end
Boy I remember a period of my life when I used to be really scared every time I went to bed cause "I may not wake up tomorrow as far as I know"
Not fun
In general I've always been scared of everything... People told me that it was normal to be "a little scared" of new things, but recently I've been feeling better and I've been able to meet new people more and I realized that "a little scared" wasn't what I was. I was terrified, I feared for my very life every fricking time 😥
~anxiety sucks~
I feel called out
It's not normal to force yourself not to sleep so you can avoid the anxiety of the next morning and avoid experiencing whatever happens tomorrow?
@@jamssy3409 APPARENTLY NOT
@@ParanoidParamour damn..
I had to read and review patients' records about a year ago. Got a lot with mental illnesses, esp. depression. That was the time I learnt that thinking about k*lling yourself multiple times a day, hating yourself and not making it through a day without crying about almost anything was Not Normal TM. I thought other people just handled/hid it better.
This really reminds me of when I was going through my old notes for a doctors visit, and I had written down “depression?”. Yeah, turned out it was depression. Big time. Not with a question mark, with an exclamation point.
In hindsight, it seems ridiculous I even questioned it. I just thought I was lazy, and too emotional, and all that shit other people told me.
@@JasminMiettunen I hope you've been able to get treatment, I have since then and it has helped me so much!
It's weird that our brains insist so vehemently on being healthy even though they're self destructing atm
When I was an adolescent I cried pretty much every day. It wasn't always sad crying, sometimes it was being moved emotionally, and I thought it was just my normal. In college, I finally got treatment for my depression and anxiety and now cry at a much more reasonable frequency.
What is a reasonable frequency though.
I’m depressed and anxious and my medication almost completely inhibits my ability to cry
It’s hell
@@priyanshugoel3030I think by "reasonable frequency" he means "crying only from sad" and not "crying whenever(even if it's a "void cry(as of "nothing happened, then I started thinking about smthn and now i need to cry half a hour out" cry))
I relate to the constipation one. I actually thought it was normal too to only experience a bowel movement every 2 weeks or so until I started living with my fiancé. He was going twice a day and I told him he needed to see a doctor. When I said I only had 1 movement every other week, he said I was the one who needed to see the doctor. He was right. Doctor gave me some meds that stimulated my gut to go at least once a day and I was actually pissed off by how frequently I felt I had to go to the bathroom. My doctor laughed when I told him I have no idea how people can spend so much of their life taking a dump lol.
It’s a lifetime commitment I’m afraid
I’m the patient but I always thought everyone talked to themselves, was absent minded, and forgot things easily-
Mfer I have adhd? That’s NOT normal?!
Same. I am like a walking file of complications.
I'm not diagnosed with ADHD, but I thought all of what you said was normal?? I-
Wait... What? Like talking out loud or om their mind? Like having conversations? Because im absent minded and forget things easily
Yeah… I have a huge issue with forgetting stuff. Basically, if it isn’t vitally important at that specific moment, imma gonna forget about it completely without fail
That's been me with ADHD and Autism, I was diagnosed aged 16 and just thought everyone worked this way...
When I was a kid, I always had nosebleed. I thought it was normal, since my grandmum said some people are just really sensitive to heat and nosebleed all the time. Flash forward to college, where I had severe headaches 24/7 and nosebleed almost daily. My prof, who I told about my nosebleed history, told me to get checked and that he'd even pay for it. Turns out I had a tumor growing at the base of my skull, thankfully benign. I'm done with that part of my life and I don't need to carry an excess amount of tissue anymore or change of clothes wherever I go.
glad to hear you are healthy now.
how do i even imagine your thoughts when you hear that news...
holy crap, your professor is a hero. glad to hear you're doing okay and i wish him the best as well!
My mother was once diagnosed with severe (as in "how are you still alive?") iron deficiency shortly after my younger sister was born. Turned out a piece of the placenta came off and had remained in the womb. That was about 25 years ago and she's still alive and fine. But I imagine the doc was quite scared.
No joke, the shortness of breath one is real. I had shortness of breath (as in, climbing a staircase made me feel like I was going to faint) coupled with what I thought was a leg cramp that wouldn't go away. I suffered like this for over a week, thinking it would go away on its own. Then I passed out one evening and woke up in the ICU 6 days later. Turns out, I had a blood clot go into my lungs and my heart stopped. So... yeah. Get that shit checked out, because unexplainable shortness of breath and leg cramps are not normal.
for me it was a "no, it's normal" moment. I'm in my 20s, read too much about hearth diseases and started being scared since I had fast heartbeat and shortness of breath (not a severe one tho) after physical activities. Went to a doctor. Turns out, it's only the symptoms of something when you're fine and then it's bad all of the sudden, but not when you've been unfit for years. Did more exercises and it got better
I've had this for years
My dad had a mild heart attack about a year ago and thought it was just heartburn and my stepmom knew what it was right away. He had come home from work and complained of shoulder/arm pain, then he said something to her like "ugh my chest hurts probably the pizza from work..." and then tried to get up to get some TUMS and fell back onto the couch, she immediatly called me to watch my brother so she could take him to the hospital.
@@j.pnewcomer1069 couple goals
Anyone else with Visual Snow/Static?
I thought it was perfectly normal, since I've had it my entire life. I thought everyone saw dull TV static over everything, and dancing lights.
Turns out I actually have a brain disorder that causes all the issues I've been experiencing (Visual static (and other visual artifacts), tinnitus, depersonalization, depression, and photophobia (intolerance of bright lights.))
And, suddenly, a lot more shit actually makes sense.
Is that not normal? I always see staticy things
@@herrforehead Nope, not normal at all hahah
@Neverhate Yourhome Google it :^)
Edit ; I realised you asked what it's called, it's called visual snow, I don't know the medical name.
@@autumn5592 ah
yes! i have had it my entire life and it's weird to know that i will never be able to see darkness like others do. and also i have tinnitus, derealization (don't know if thats part of it too), and photophobia sometimes as well! very annoying lol
A guy in my psych class has aphantasia (I hope I spelled that right).
It was group work in how our brains categorise faces, like how we can tell apart our neighbour from our friends and how people who look similar can be told apart. Our lecturer was telling us how he can visualise one of his best friends in his head and we all agreed we could do that until it came to the only guy in our group. He just sat there and talked about how he's never been able to visualise anything in his mind at all.
I asked him if he could think of a blue apple, and he said he just couldn't do it. He knows what an apple looks like and could probably guess what a blue apple looks like, but trying to think and imagine it in his head was impossible.
Our lecturer ended up stopping the class because he was so interested in the guy, and honestly it was really cool listening to him talk about it.
I always had debilitating periods since I was 10 all the way up to 19 (I'm 20 now). So bad as in, bedsheets, pants and underwear were lost because they'd have been bled into beyond repair. Massive blood clots. Having to change thick pads at least once every hour. Surprisingly, though, the cramps weren't very bad up until when I got older.
I started birth control at 10/11 with the pill. Pills would work for some time. Pills would stop working. Would go on a new pill. The cycle kept repeating. Periods became out of control again; irregular and heavy.
Went on the implant when I was 15. Implant would work for only around a year out of the 3-5 that was always advertised. Not to mention it ALWAYS had my arm swollen, upset, and in pain. Implant would stop working. Got it taken out when I was 16. Considered the depo shot, but had to yell at the doctor to get her to understand that I didn't want to do it.
Got the (mirena) IUD in at 16. It worked for around 2 years out of the advertised 3-5. Now, my IUD had never been misplaced. In fact, it stayed put for the ~3 years that I had it in (I had a very difficult time getting my doctor to listen when I asked her to take it out). Bleeding came back. However, when I was 19, it began to gave me the worst pain ever. Pain like no other; they weren't regular period cramps for me which can usually be solved by exercising. No, this pain only got worse if I moved around. I always felt nauseous and could literally cry from the pain. I was giving up daily activites again, but for the pain instead of the bleeding. Doc thought I had endo. Got it taken out and I was genuinely astonished it hadn't moved at all.
After that, I tried to get an endometrial ablation. Apparently, though, there is in fact such a thing as a uterus too small for that procedure (as well as a uterus too large). Mine was too small, so I began pressing for a hysterectomy because I was 100% done with being medicated. She tried to press me to get an opinion from another doctor- mind you I was only 19 at the time -and I insisted on not, because I was set on this. I hated my periods and never wanted kids, so what's the big deal?
Skip almost a year later- post op from a hysterectomy. Doctors found NOTHING, NO indicators for why my periods had been the way they were. I no longer bleed, nor do I run the risk of pregnancy at all. My quality of life has improved so much it's insane.
I wish every doctor who insisted on keeping me medicated a very fuck you. I haven't been medicated since and I feel great.
Words cannot describe how thankful I am for this comment. I've experienced this my entire life and thought I was just overreacting. But this, this gives me such a sense of relief. This amount of pain isn't normal and now I know how to explain it to my doctor better. Thank you so so much.
As someone who herself experience the dreaded Cramps™, have friends with terrible menstrual pain and my mom too - I thought for a long time that this kind of pain was normal. As a teen you could find me pacing the hallway outside my bedroom at 4 am on day 1 of my period, wrapped in my duvet and shaking and freezing. Only to occasionally run into the bathroom in case I was going to puke from the pain.
I got better over the years, but it's still a painful experience and an inconvenience to be on my period.
I'm in my 30's now and just had an implant put in for the first time in my life (why it took so long to get one is on me, I was scared). And it's actually doing great for me so far.
But it always makes me sad to hear stories like yours. Not that you finally got help, that is freaking awesome! But that there is. So. Little. Research. On. Womens. Health!
Endometriosis is a debilitating and potentially dangerous condition and we know so little about it. This comment section is full of women who themself thought extreme pain or bleeding was normal, or worse, turned away by doctors who insisted they were overreacting. Where I live, the avarage time to get a proper endometriosis diagnose is 7 years. That seems very long.
ngl this resonated with me a lot. even though my periods aren't as extreme, I have the same problem with moving making cramps worse, needing night pads and ibuprofen always ready, and doctors not finding any cause. except I never got to get any actual treatment for it, just pain killers (not so useful when you're getting fevers and throwing up bile all night).
I am a trans man, and this happened to me. I started at 9, and had month long, several months apart periods, with extreme excruciating menstrual cramps, fainting from anemia, and vomiting. The cramps were so severe I’d be nearly screaming. I’d also have cramping in between. I had a hysterectomy last year and it’s amazing. I feel amazing. Fuck that stuff
Hold up you just got that surgery within a year and didn't cost like all the money ever and they let you do it?
Apparently you can weaken your mind's eye from sharing your imagination with other people as a child and being shamed for it. Neat.
rip bro aughhh
im way too empathetic for these stories/comments
@@Sasparilla_ mood as well
@@Sasparilla_ aeugh
Also, I personally dont mind people shaming me for my imagination. I know I have crazy thoughts.
Also, if you're left on your own too much and isolated as a young child, you can learn to utilize it to a much larger degree than most people.
@@hungrydragonvsfrightendhob7799 how was my childhood both my original comment AND this reply at the same time?
i thought it was just a normal thing that everyone did, always run around the house for hours until i faint, sleep for more than 16 hours after being awake for days and having mood swings like there's a switch in my brain
turns out i have type 2 bipolar and manic episodes are not a joke
@Dart Bro you have SOMETHING
I thought it was type 1 that was like that and type 2 was calmer. I might be wrong I myself haven't gotten diagnosed though my family believes I have bipolar which makes sense because my dad and his dad have bipolar and it can be genetic.
an ex gf of mine had bipolar personality disorder too, along with cptsd, borderline, manic episodes, and being mildly schizophrenic
I was a patient like this. I thought everyone got a tickly, pins and needles feeling all over their mouth and throat whenever they ate store bought bakery desserts like cake, lemon bars etc. I called it "sugar shock". I ended up finding out in my mid twenties that I didn't have asthma or sugar shock but a deadly allergy to a preservative.
I’m pretty sure I have a mild allergy to some sort of preservative too. It only really happens with certain bakery frostings and stuff like Hostess snack cakes. Glad to know it’s not just me.
I like how it went from sugar shock to deadly allergic reaction
Not that deadly if it didnt kill you in 20 years
In my childhood, I had a friend who had Pica he would just eat random stuff and then say he didn't when asked he just eats it he had a serve belly ache and cramps his mom rushed him to A&E he got an X-ray he had 5 full forks, a couple of spoons and a shit load of paper got rushed straight though to surgy he got meds and mental health referral and he was petty fine after that.
how did he eat the forks???
@@3phone16 he ate them whole, he would eat other non edible stuff like buttons, paper, paper clips
@@MrCyru24 yes but, wouldn't his throat get cut, or at least get sore, and, I couldn't swallow a whole fork if I tried. you said that happened in your CHILDHOOD. that means he swallowed all that AND he was a child? how did it fit? and btw I'm not saying you're lying or anything it's just curiosity
@@3phone16 we was about 10-11 years old, he said he ate them from the non pointy end and they just slipped down, so guest it was like that magic trick where people eat swords or glass
@@MrCyru24 how is that some people can eat a whole draw of kitchen utensils and be just fine, and then there's people who try to swallow a slightly larger chunk of meat and just straight suffocate to death?
I did a sleep study once. When the doctor who discussed the results with me, which included a few pages of question, he commented that he was going to finish the list, then come back to one for more info. He asked me why I answered my quality of life on a 1-10 scale with a 4, I paused then said because I didn’t think he’d believe me if I answered 2. Asked me to expand on that. Told him I don’t know where I was before I was born, but I’d just as soon go back there. I just didn’t want to continue playing this game called life. Immediately put me on Prozac. Immediately felt levels of contentment I’d never experienced before. The change was so dramatic, he called me the poster-boy for Prozac.
Ever since I can remember I was always tired. It got worse when I got into high school. Like really bad, I would sleep from 10 pm to 7 am, walk to school, sleep on the bench until the doors opened, started my first class, (sometimes I could make it through this one without falling asleep) went to my second class, if I didnt fall asleep in class one I would definitely pass out after 14 minutes. Then I would sleep through break, go to my next class, then my fourth, sleep through this one. Then sleep through lunch. (Anyway it keeps going like this)
Basically my parents and doctors kept bouncing between “you are simply oversleeping and need to wake up more“ and “you dont get enough sleep.” One day on Saturday, I managed to stay awake all day to try not to “oversleep” I woke up Monday afternoon and missed school. No one would believe me and I knew something was wrong but they kept brushing it off.
So I set up a sleep tracker/schedule and wrote down how often I slept, when I slept etc, showed it to my councillor (since no one else would take me seriously) and she was able to get permission to take me to the hospital, to a different doctor than my family doctor, and get blood work done. Turns out my thyroid was extremely under active. I feel great now. :)
Same thing happened to me my junior head of high school, I couldn’t stay awake in any of my classes. As soon as I got home I’d sleep until it was time to go to school. I was terrified of doctor visits but was worried enough about my health to ask my mom to take me. The doctor asked if I’d had a break up recently, I said no.. and then he said there was nothing else he could do because severe fatigue had ‘too many possibilities, would be impossible to narrow it down.’ Then sent me home..
5:16 - my grandma had lung emphysema and many symptoms of long term smoking. However, she didn't smoke. It was all second hand smoke: my grandpa smoked like a chimney, and her daughters who lived with her smoked too.
Secondhand smoke. I have issues with my lungs for the same reason. My parents and grandmother were chain smokers.
Going through this right now; for over 6 years I’ve been fighting for anyone to listen to me, as a wild cluster of symptoms (all over, vomit inducing body pain, low blood pressure, high heart rate, nausea, cold hands/feet, extreme brain fog, and a lot more) moved to a new town about three months ago; turns out after some simple blood test and review of my history, I definitely have some sort of autoimmune disorder and POTS. Sooooo yea it’s not just me being chubby and mental health issues 🤷🏻♀️
Whats POTS I only know of PTOS
@@wilfredwackstache8115 it stands for postural orthostatic tachycardia syndrome
i’ve been suicidal on and off since i was 9, struggled with depression for as long as i can remember. first memory of symptoms was when i was 5. turns out a have a bizarre cocktail of mental illnesses with trauma mixed in for flavor. i just kinda thought it was normal lmao. a lot of my stuff is chronic but treatment helps make it manageable and i’m glad i’m not dead
I relate to the cocktail with a dash of trauma, but mine isn’t that bizarre, seems like a pretty popular recipe
My mum was having a headache, it hurt to touch the side of her head and chewing hurt like hell. Turns out she had a 4cm tumor growing through her skull. She's 9 weeks post OP now and is doing better but recovery is a long road
Hope your mom is okay! Wish her a fast recovery ♡
You know this video is actually kind of wholesome; lots of the stories start with depression or terrible life and end happy!
Damn, meanwhile I have a chronic genetic condition that was finally diagnosed at 21 and for years I’d ask about stuff like “is this normal?” And it was very clearly not but they’d be like “yeah, probably” when I was literally talking about my jaw dislocating or feeling like my organs were constantly getting squished by a steamroller. I think the most sad thing about all of this is how many AFAB patients learn to dismiss their own health concerns because of the medical field being generally pretty shitty towards female-oriented care.
EDS?
How would the doctors insist that feeling like your organs are being squished by a steam roller is normal
@@L1239-z8l “periods”
my bf has something similar
This happened when I was in 5th grade:
My mum had noticed I was eating less, drinking a lot more, and pissing more as well. We went to the doctor to get a blood test, I thought it was an annual thing. Turns out I have Type 1 Diabetes, and had to be taken to the ER because I could have been literally dying. I thought it was just puberty at the time. Boy, that was wrong
I found out recently that people aren't always overly paranoid about having panic attacks daily/weekly. OCD and ADHD is a killer combo especially with a bit of panic disorder on top. Apparently other kids growing up never really worried about stealing from stores by accident or having a fit when you get home thinking that something is in your pocket even though you don't have pockets. Speaking your mind is one thing but SPEAKING YOUR MIND is another entirely, speaking your scatter brain is never a good idea.
I had major anxiety and would have panic attacks almost every night, and thought it was normal. A few years later, age 11, I was having a conversation with my mom and brought it up. She explained that it was anxiety. Also turned out I also had insomnia. Anyway, she got me started on therapy and anxiety meds. Im a little mad that my mom, who worked in a mental hospital, knew I had anxiety for my entire life and didn't think to do anything about it until I talked about it.
My anxiety deadass fucked me up, I had depression, disassociation, literal manic episodes, hallucinations and a bunch of other crazy shit because I used to be IBS along with my anxiety. Thank God I can manage it better now but damn, looking back it really did get out of hand.
Why do I see you everywhere???
im pretty sure i have insomnia aswell, on the vast majority of nights all i can do is lie awake and think about my life. it always ends on the terms of death, the fact i cannot escape it, how after i die there will be nothing. no memories no thoughts, not even nothing, i will cease to exist and my conscience will fade away. it causes me alot of anxiety and i cant escape it, i try to shift my mind but i cant, it was at it's worst during my gcse's because if i failed it could affect my life going forward. i was up hours past the time i was meant to be asleep for the exams first thing in the morning thinking about how nothing will ever matter because in the end i will die and every last part of me will be forgotten the exact moment i die. the fact that i may die alone because of my orientation and the fact that i wont die at the exact time as any of my loved ones, hell those exams were only a few weeks ago and im still dealing with sleepless nights.
sorry for the rant but i needed to get some stuff off my chest
my doctor had a moment like this with me just today. had my bloods done, fainted, went into shock, nearly died. this isn’t the first time it had happened to me, so I laughed once I was conscious again (as she did my blood pressure which was so low all the machines kept saying error). I said ‘damn, if this is what you have to deal with when doing blood tests, how do you deal with surgeries?’
she just smiled and said ‘this isn’t what we have to deal with when doing blood tests’
still have a killer headache from that episode now but I’d rather have a headache than be dead 😉
I have three of these stories & I'm the patient in every one of them 💀
1) I went to donate my blood at a blood donation camp. The nurse over there told me that I can only do it after a haemoglobin test. Turns out my haemoglobin level was 4.3. The doctor was so pissed because I went to donate blood when I'm the one who actually needs it lol
2) I had had a su**** attempt after which I was admitted to the hospital & started receiving compulsory counseling. They asked me if I ever heard voices in my head & I confidential said no. My mom was there so she immediately said "she says she can hear & see ghosts. She talks to them sometimes." Well, bingo!
3) I had a slight stomach ache, but I thought it was just menstrual cramps & didn't care about it. I also didn't feel hungry most of the time. My mom said this wasn't normal & insisted that I to go to see a doctor. The next thing I know, I'm being rushed into the ICU because my appendix was about to burst.
I'm clearly surviving on one braincell & if not for modern science, natural selection would have wiped me out long ago.
funny thing is i had the opposite for my appendix. i had 11/10 extreme pain where my appendix was to the point of not being able to get out of the fetal position. when i went to the hospital they told me that i had almost every symptom of appendicitis, i was told to go home and wait for a checkup appointment to confirm. i get to the front door of my house and unleash a torrent of vomit and stomach bile hitherto undreamt of upon the path. im guessing that in retrospect i had alot of pressure built up in my bowels. still a very funny story in hindsight
hope you are doing well though
"that's low. like, you should be dying low. but she looked perfectly fine." lmao that's my mom's whole experience with medical shit in a nutshell.
she should've been fucking OUT of it, basically dying and the doctor comes in like wtf.. she's just sitting up having a chat with the nurses, feeling relatively fine if you disregard the fact that she's in the hospital.
also lmao I had regular mild stomach pain and nausea basically all the time and just figured welp that's my life! my parents said I was a very colicky baby too, sensitive to Everything. turns out I'm sensitive to gluten lmfao
I am highly allergic. Like i ate chicken wings with crumbs on it and my tongue began to feel pins and needles, my chest felt tight.
Still busy with tests. Celiac bloodwork came back negative. (It's not always accurate)
Next test will be fun....
@@organicblack6057 :(( Damn that sucks. Good luck 💕
The same with my mum and her diabetic discover. Mum had such a high blood sugar. The doctor wasn't sure if it mesaure right or my mum just managed to have Benn able to life with little sign while she should have Ben dead.
I always assumed that everyone could hear/feel through their body their heart beating while at rest when it was quiet enough. When I went on SSRIs (antidepressants and anti-anxiety meds) for sensory processing disorder it stopped. 30 minutes after taking my first dose I couldn't hear or feel my heart beating and I thought I'd triggered some terrible side effect. Told my mom and we figured out I had just been brought down to the baseline. That was how I got diagnosised with aniexty, treatment first. Because I only ever have the physiological symptoms and not the mental ones.
I thought this was a totally normal thing too, guess not
Wait, that’s not normal…?
Took me years til I realized this, I thought palpitations were just when it felt weird or racing... Atenolol decreased them for me but I notice it a lot still... sometimes I'm too afraid to ask others cause I don't always know whats normal or not, most of my symptoms seem vagueish...
Wait, that’s my sensory processing disorder? I figured that wasn’t normal but I didn’t know which of my assorted physical and mental conditions was causing it lol
Its not normal?? Damn bruh
I can imagine that 50-something man whistling to his wife on bed
Blow my whistle baby whistle baby here we go
@@KoffingOnion 😂😂
It doesn't happen anymore, by when I was a teen, sometime, my period would case me to have vomit and diarrhoea, hot and cold sweats and the horrible sweaty shivers that come with it and passing in and out of consciousness, though I think that was from the intense, organ ripping pain.
One time, I tried that hippie shit they tell you to do in 'girls becoming women' pamphlets that they give you at school and try to 'soothe the pain with a hot bath.' The water felt freezing to me to the point i thought the hot water tap had crapped up, but it burned my Mum when she tested the water out.
Never got diagnosed, though.... Honest to God, listening to how the doctors on this thing actually pursued a case they couldnt solved with a feel-up and a blood-test is not something I'm used to seeing .
When I was about 14. “Oh, yeah, I’m intermittently colorblind.”
I am not, in fact, intermittently colorblind. I was taking a bad mix of meds and having light “trips” that messed up my vision and the colors of things.
Suffered from year long colds for years until I was in my late teens and literally would wake up at night because I’d stop breathing. Went to a doctor and after some tests found out I had eosinophilia which developed into asthma due to being untreated for so many years. And all those years of “cold” was basically me having allergic reactions to the environment. Also at the time we discovered I had hemoglobin and vitamin D deficiency which explained why I got “lazy” the older I got. This is why parents should take these things seriously. My dad didn’t take it seriously even when I said I’d stop breathing when I was sleeping and would wake up at night. My asthma would have probably gotten worse if mom didn’t take me to the doctor then.
I have eosinophilia and asthma too (bronchitis),, I'm also allergic to the cold and I used to wake up sneezing every morning in the winter and had an itchy mouth for that period until I got warmer. I'm also allergic to dust and other stuff and can't eat ice cream or drink soda without the side effects :(((
"Sneezing is never normal. I never sneeze."
Dr. Never-sneezer Scrooge
i cant believe i laughed at that
It's probably not normal that I never sneeze
@@multifandom7168 I'll swap you, I have a mysterious allergy that kicks in every fortnight. 5 bouts of loud sneezing for 3 days XD
Whenever I sit in school desks I always angle my foot outwards and my knees forwards at a close to 90 degree angle. I do it subconsciously and it doesn’t hurt but when my Spanish teacher first noticed this, he did a double take and said “oh my god, is your leg okay?”
Apparently your not supposed to angle your foot that differently from the angle of your knee, who knew?
Not me until I watched this video! I did some research and consulted my mother who is a nurse. I have the same issue. It's likely that I have Adolescent Blount's Disease (it isn't serious in most cases), but I suggest you look into it too
Could also be Ehlers-Danlos Syndrome like I have!
I was in my 40s and my therapist asked me how I was feeling. I couldn’t explain it. I had been in therapy off and on since I was a little kid for Major Depressive Disorder w Psychotic Features, Panic Disorder, and Generalized Anxiety Disorder, so for me to have a feeling I couldn’t explain was pretty rare. I did my best but I was really confused. So was she. It wasn’t a bad feeling. It was actually a pretty good one, I just had no words to describe it.
Then it dawned on her. She stopped writing, put her pen down, looked at me with tears in her eyes, and said, “You’re happy. That’s what happy feels like.” I just said, “Oh… I never felt this before” and then we were both sobbing for the rest of the hour.
Bro now I have the image of a guy inhaling a salad, but not through the usually inhaling food via mouth, straight up snorting lettuce stuck in my head.
Oh man i never struggled so much to understand a thread like this one, english is not my main language and i need to constantly translate these patologies and other medical terms
I fell you my friend xD
These kind of topics are hard to understand cause like every Medical term has a different name in every Language
must be so annoying
to be honest us english main languagers (thats not a word but whatever) dont know some of these medical terms too
@@zhankazest ummm native speakers you mean? lol
@@apfelkonighd3946 I assume you're a (fellow) German, judging from your name, so, here's a little thing. You're right when it comes to languages that are geographically very seperated from us and/or from distant language family trees. But interestingly, most roman languages like French or Spanish, which make up a large chunk of European languages, actually use pretty much the same expressions, as well as plenty other languages that have adopted the terms through scientific literature. German is a germanic language (duh lol), but the latter is also the case - Schuppenflechte is the same as what doctors would call Psoriasis which is identical to the English version and so on.
That is because medical terms are made up of Latin words, like "Leukämie"/leukemia comes from white (leuc/o), referring to white blood cells, and ämie/emia coming from the latin word for blood, referring to the presence of something in blood.
When there is no name for a common disease that has linguistically evolved in another language family for an extended period of time, we usually just adopt the ones that languages in our vicinity have been using, that being in the Germanic case mostly Latin names.
So a lot of languages you're probably referring to use the exact same words that German doctors use as well, some of which we use too if they're uncommon or newly created.
I've always had an extremely low pain tolerance and been very sensitive to vestibular/gustatory stimulation. I just assumed that was how things normally were for everyone and there was nothing wrong with me. Then senior year my parents finally got me a psychiatric evaluation and the psychologist had to explain to me that my oversensitivity to basically everything wasn't normal and I've had sensory processing disorder my whole life (which means there's a slight disconnect between my CNS and my brain so I don't interpret sensory signals properly.) My parents don't always understand how this works for me (sometimes they tell me to "start acting like an adult, if other people can handle this you can") but it's been an absolute miracle figuring this out.
This is something I went through when I was younger. My chest is indented inwards but it wasn’t severe enough to have surgery so my doctor just told my parents they can leave it as is. I didn’t know this when I was younger and there was a school trip to a lake, when I took off my shirt to swim in the lake I realized nobody else had the indent and I got a ton of questions about it when others noticed. Nobody was mean about it, they were just curious, and I was very confused about it when nobody else had a chest indent
17:07 That reminds me of myself.
I am transgender.
Throughout my life, I had made a list of arguments why it would be good or bad for me to transition or not. One of the reasons that I shouldn't transition was that it might make me so happy that I could barely function anymore because I am not used to being happy. Yes. That was a serious concern of mine. Being too happy.
Being too happy is actually unhealthy for us as well. The ideal consistent state is calm. Mania leads people to do some really dumb stuff like spend all their money 🥲
Agree
Turns out its not normal to have random urges to do certain things with the threat of harm to you or people around you if you dont.
Its OCD.
I do this all the time, like ‘if you don’t get this right, you have to stab yourself’, I’m pretty certain it’s a mixed of my adhd and depression
I'm not a doctor but I'm sure my doctor was like "No that's not normal-" when this happened;
Me: "Yeah my bones hurt when you touch them, but it's always been like that :)"
Doctor: "That's not supposed to happen-"
Me: *Internal Panic intensities*
When i was a child 3 or 4 years old my mom took me to a clinic because my leg was hit by a metal object and it started an infection the doctor said it was secondary infection my mother thought secondary infection is normal until the doctor said that secondary invection was severe
Ghost: oh hey there I believe my body is in your morgue, and I'm trapped in here.
Doctor: wtf that isn't normal
Ghost: I guess you could say... It's paranormal
*(Both chuckles)*
For about 5 years I thought I was just extremely out of shape and really, really hated the feeling of being out of breath to the point it gave me a panic attack. Turns out I have exercise-induced bronchoconstriction and was basically experiencing asthma attacks fairly regularly. I only went to the doctor because I had to run to catch a train for maybe 5 seconds, and then spent about 15 minutes wheezing and another half hour recovering before my breathing fully normalized. Idk why it was this event, as I have had many similar events in the past, but it was at that moment I just thought "y'know? I don't think this is how people usually experience being out of breath."
Needless to say, the doctor was quite surprised to hear I'd had the complaints for around 5 years and couldn't understand why I hadn't come in sooner.
"Do you know how much your legs moved all night?"
*Plays clip*
"IT'S OVER NINE THOOOOOUSAAAAAND!"
I also became a legend at my pediatric dentist as a kid because one of the best dentists I've ever had took 2 hours to do a filling on one of my molars because the teeth that needed to be seperated to do the filling where shaped just right that the ring clamps wouldn't stay on. That was pretty uncomfortable though lol
i've been living my entire life with severe pain in my lower abdomen and occasionally my stomach, about 1 and a half years ago i started throwing up uncontrollably, losing 15kg in 2 weeks (the weight loss stopped after that, the throwing up didn't) and had a shitload of examinations and even diagnostic surgeries. they still haven't found anything and blamed it on my mental illnesses :) (the pain has been around much longer than my mental issues, and obviously this mysterious illness severely worsened my anxiety and depression. i also have severe food trauma now bc every time i eat i have to spend several hours afterwards trying not to throw up.)
but yeah, finding out that it was not normal to live in excruciating pain every day really fucked me up as a preteen.
NAD but have you ever heard of cyclical vomiting syndrome?
@@catoverlords9560 yeah, but as long as they can't cure it that sadly doesn't really help...
I feel your pain. Minus the vomiting
Had a similar thing, went years stressing about my food because I knew it'd give me nausea and I never knew what the safest food in the moment was and spent three years of being told by doctors I was just anxious. It even got to the point of rectal bleeding (which I often assumed was either a weird period or something that would just fix itself) and they STILL claimed it was anxiety. What kind of messed up anxiety gives you rectal bleeding?!?
Turns out it was ulcerative colitis. Went into hospital, tested out a series of increasingly powerful medications that I was seemingly immune to, got told "hey you might need surgery soon, we're not sure how soon though", found out they meant TOMORROW soon, and now I don't have a colon. (Unless you count the multiple plush colon toys I've been given since.)
So idk if they've checked for that, but if they haven't maybe ask them to give it a try?
When I was younger, pretty much a teen, I was used to listening voices in my head and would constantly have mental arguments over not commiting suicide. Turns out it was a pretty moderated depression mixed with PTSD, got the medication and stopped listening to these voices
I learned this year that not everyone is in constant and continuous pain. I mentioned to my therapist how I didn't have "any more pain than the usual, baseline pain everyone has." Still reeling from 26 years of thinking this was normal.
AH good old endometriosis...
Period: Hello
Endo Sufferers: Oh hi...?
Period: ...
Period: You should probably just call in sick now before you cant even functon.
Endo Sufferers: Yeah... I'll get on that
Period: Good, because I'm early this month and I'm staying two weeks if you dont mind, cool thanks
I do not miss those days
I was over 3 years old. I sat in the room of my aunt and played with stones. IDK WHY but I put one of these stones into my nose. I ran to my mother and said:" Mum, there's a stone in my nose!" My mother drove me to the hospital immediately and the doctor said if he can't correct this with his pincer, they have to cut my nose open. I'm glad he fixed it with the pincer
For context, my parents always shrugged off anything I thought might be wrong unless I was literally unable to get out of bed.
1) Sometimes I have sudden chest pains. It's been happening since I was three or four. Not sure what it is still, I figure it hasn't killed me yet and it's been nearly 2 decades.
2) I had massive pain after eating, like curl up in a ball kind of pain after eating, I was always exhausted, always pretty weak, and a bunch of other miscellaneous systems that individually sucked but I didn't think it was a big deal. I didn't eat a lot because I knew the pain happened after eating. Finally broke down and went to the doctors after literal years of this. Got diagnosed with Celiac's right before I turned 18.
3) I was unfortunately born with a uterus, despite being very much a guy deep down. The monthly demon week is hell. The amount of pain I'm in every month is astounding. It's so bad that there's been times I was nearly sick in the middle of class or work, and have almost passed out from it. My dad mentioned how little people talk about what can go wrong with periods, even saying that some people go through their whole lives not realising they weren't supposed to be near incapacitated by the pain and I, 20 at the time, said "Wait, that's not normal?" Still not sure what exactly is wrong.
Dude being afab trans on your period is the WORST all on it’s own, cause like the feeling of “I’m not supposed to even have this!” Is super strong
When I was about 13 or 14 I did a front flip into my aunts apartments pool and hit my neck on the concrete edge. I hit it so hard that when I came back up, my aunt immediately pulled me out of the pool to check my neck. I don't remember if there was bruising or not.
But, I've had the most intense headaches/migraines ever since. Which I always explained away with I must've slept wrong. I've also woken up with stiff necks that where so painful to move, to point I was in tears. I get headaches and feel nauseous and dizzy when holding my neck in certain positions, just thought that's what happens.
I've thought these where due to my neck injury, but never looked into it. I did today. And yes, neck injuries can cause headaches. They are called cervicogenic headaches and no I'm not saying I have this. But, it's something I should bring up to my doctor. If not that, at least the headaches part.
Hope you've found help, both my mother and grandmother had neck injuries that caused intense headaches and migraines. My mom one had one so bad she fainted in a friend's garage and hit her head on the cement floor, not pretty.
Yes advocate for yourself!
Doctor : Who’s that Pokémon?
Patient : It’s normal!!
Doctor : it’s a serious illness
Patient : FUUUCK-
I, and everyone around me, thought it was completely normal for me to be able to touch my fingertips to the back of my hands, and my thumb to my wrists and be able to just- do estrange movements with my body, everyone said it was because I was very young and flexible and it would go away by the time I turn 20
Well, turns out I have HEDS (Ehlers danlos) and have dislocated my right knee 5 times in a span of 3 years (4 of those were in 2 years, every 6 months I would dislocate my knee in some form), along with not being able to limit myself to "normal" conditions (when I do a thumbs up, the last bit of my thumb does a 90° degree turn to the back and it hurts to try to make it look normal because I'm technically forcing myself to do so). I'm also more likely to get bruises, scars last longer and just touching my skin a little harder makes a small bruise that lasts for like, a minute. I have HEDS type 3. I'm lucky I don't have 5 or 6, because OH BOY (my veins, arteries and everything in my body would be so sensitive that the blood flowing or digesting would hurt, bruise and leave scars on every bit of it, there are people who have to stop EATING because it will cause them to collapse completely)
Dude wtf?
HEDS gang!!!! Not sure what type I have. I haven’t gotten any proper dislocations that I know of, but I live with chronic pain and fatigue.
Also! Your thumb thing isn’t even the EDS! That’s just a minor physical difference some people have called “hitchhiker’s thumb”!
Went to the doctor once because I had a mosquito bite on my lower back/upper butt and had scratched it so much it had started getting a bit hot (suspected the scratching had infected it, no big deal, nothing some antibiotics can’t handle, right?). The doc told me to pull my skirt down a bit and face the wall and then opened the curtain to the exam area, took a look at me and said “oh my god!” I wish I had figured out from that reaction that I needed some more attention…but even after the ED doc at the hospital said I’d have to be admitted overnight I STILL asked if I should get my other half to bring my work clothes in so I could go to work in the morning.
What a muppet.
Unfortunately most of my situations have been “Yes, that’s normal” when I would bring something up and something was actually wrong. My brother and I both kept telling people we felt like our mental health was declining but our parents and doctors and teachers dismissed it as off days or less serious problems up until our lives fell apart.
There’s nothing more frustrating than knowing if people listened to you that consequences could have been prevented, especially as it pertains to your own life.
I’m begging all of you, no matter what problem it is, if you know something is wrong, please push for help. Don’t let people ignore your well-being until it becomes an emergency situation.
Yes, spend all you have left in you to find help. If you know something is wrong, it’s better being dismissed and having to find a different doctor than being dead. Find help.
I can’t even imagine my life if I got the help I needed 10 years ago.
Also, all the folks who went to multiple doctors who essentially blew them off, I wonder how many have thought of or actually take test results, surgery reports, etc. to those doctors and loudly call them out, dress them down, and question their ability, in the lobby of their practice when it is full of patients.
In 3rd grade, sometimes my eyes would go out of focus, but I thought I was “looking at the air molecules in front of my face”. I thought it was normal but then when I went to the eye doctor they gave me a prescription for glasses ;-;
SAME! What about the squiggly lines that are darker spots that you can make go up or down and eventually they float away? I always pretended they were birds based on their wavy shape and I’d make them fly when my vision went out of focus
@@scarletpanther2513 wait this isnt normal?!? i can focus and unfocus my eyes on command and sometimes i see circles with smaller circles inside doing the same things your squigly lines are doing
The squiggly things are in your vitreous jelly (the clear goop in the middle of your eye that keeps it inflated so to speak)! I THINK it’s normal to have a couple of them occasionally. But my mom had them really badly, turned out her vitreous jelly was drying out to the point it ended up detaching her retina.
@@mildlymarvelous yeah it's normal when you are looking at something of one color (like blue sky or white snow)
for me, the "thats not normal" moment was when i was talking about my POTS symptoms like they were universal (because i though they were) and my therapist asked why i hadnt gone to the doctor. looking back its kinda funny that i thought everyone else was also in excruciating pain when standing for extended periods of time and i thought i was just dramatic
16:36 that’s the truest shit ever. i’m on prozac now and it’s startling how much less angry i am and how much i can handle better now
Me: *casually "pops" my shoulder while telling my new physical therapist about my back pain*
PT: 0.0 *nearly drops his notebook*
Me: *stops talking* "Um, you okay?"
PT: "Sorry, I'm just... trying to figure out what that was."
Me: ... "Oh, the shoulder thing? Sorry, it's not usually that loud."
PT: "It wasn't just loud. I've never seen anybody do that, before. Didn't that hurt?"
Me: "Not when I do it on purpose. My whole family is double jointed. Sometimes one of the joints gets stuck, and I just kind of shift it to a more comfortable position. Sucks when it happens on accident, though, cuz it's hard to figure out which way to twist it back."
Yeah, turns out "double jointedness" is not actually a thing, being able to partially dislocate and relocate your own shoulders/hips/knees is not normal, and my back pain is caused by all of my muscles making panicked attempts to keep my body from literally falling apart while I walk. My mom and I have both since been diagnosed with EDS. My sisters probably have it too, but they haven't reached a breaking point, yet.
10:02 Since when has "Rx" meant _recipe???_
Earliest mentions are from 16th century manuscripts.
Welcome to the world of medical abbreviations
@@Jess-ih9bv"it's been like this since 16th century and nobody cared enough to change it"
imagine hearing a story, that you can relate to, and now you start thinking if you should visit a doctor-
My mother didn’t have her cycle for about 3 months (no she wasn’t pregnant, they haven’t been trying for years) and when she got it back she had her cycle for about a month. Her doctor was very concerned.
Here’s mine -.- no symptoms other than being tired. Blood test showed EXTREMELY high liver enzymes, doc was worried, turned out I have stage 4 fibrosis/cirrhosis at 26. (I don’t drink alcohol at all, it’s dem damn genes)
Re:Prozac
I found out, after taking it for a couple weeks, that no! Having a Constant underlying feeling of threat is Not normal! And constantly being on edge and feeling worried is, in fact, not the natural state of the human body!
When I went to the GP and got diagnosed with bipolar disorder, I didn't know whether to laugh or cry.
I- Are you making the joke I think ur making? bc if so, It's pretty damn funny.
I know it's a joke, but that's probably what I would feel if I waa finally told why I am this way. Finally having a label for my struggles? Finally! Finally having a label for my struggles? Finally...
I really relate to the anxiety one, certain normal sounds make my anxiety skyrocket for no reason and I thought that was normal for years
I was absolutely unaware that being in constant pain was unusual. Sure, I had heard of chronic pain, and even had friends who had it, but theirs were all so localized or so bad it was generally debilitating on a fairly regular basis, but I assumed everyone was always under some amount of pain, right? bodies are weird like that, and we’re all adults now, everything is weird.
I only found out when I was on a voice call for dnd, and I had a flare up, in which i got a pain in my upper shoulder and it rippled down into my hand so bad it left me gasping, and I asked my group if we could take a break. they asked if I was okay, I said yeah, this happened every now and then, y’know, and the two ppl in the call with chronic pain went, “that sounds like chronic pain,” and I went, “but it fades and goes away sometimes and isn’t always this bad” and they said, “Yeah, *it can do that.*”
A while later, I finally saw an acupuncturist and it helped a lot. I still get episodes, but they’re fewer and far between, and I have some stretches that can help ^^;
the absence seizure one whew…. i witnessed a diabetic seizure once at a starbucks and the only reason i could tell it was a seizure was from that glossy blank stare before she began sliding…… absolutely terrifying
i remember being scolded for having absence seizures in school. USA! USA!