22 & Suddenly Disabled: My Story
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- Опубліковано 18 кві 2024
- 22 & Suddenly Disabled: My Story
In honor of FND Awareness month, here I share my story being diagnosed with Functional Neurological Disorder. FND is a problem with how the brain and nervous system fails to send or receive signals properly.
Through raw honesty, I share the moments when I first realized something was wrong, the emotional turmoil of receiving a diagnosis and how my mindset has changed moving forward.
This video isn't just about my story; it's about shedding light on a condition that often goes misunderstood and misdiagnosed. My hope is that by sharing my experiences, others going through similar struggles can find solace, understanding and even validation.
Let's raise awareness and support for those fighting invisible battles every day ❤️
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Support FND Research and Awareness
If you'd like to learn more about Functional Neurological Disorder (FND) or support ongoing research and advocacy efforts, consider reaching out to these organizations:
FND Guide: neurosymptoms.org/en/
FND Society: www.fndsociety.org/
FND Research: www.fnd-research.org/
FND Hope: fndhope.org/
FND Action: www.fndaction.org.uk/
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Join our email list for Letters of Clarity: claritys-newsletter.beehiiv.com/
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Instagram: / claritymromero
Tiktok: / claritymromero
Facebook: / 100090229904500
not only was this beautiful but also a jarring perspective of what it’s like to live with such a disorder. thank you for sharing this with the world, you are very strong ❤️❤️
Thank you so much for the kind words ❤️❤️❤️
beautifully filmed. Thank you for the reminder that life can change in an instant and our concept of 'control' is just a construct we have invented. (I was hit by a car and the life that I had before just evaporated - so I write with empathy and kindness.) thank you - you are far from alone.
I’m so sorry to hear 🤍 its such a difficult process to navigate huge changes but knowing that we don’t have to go through this alone has been my guiding light. Thank you for the support ❤️
Thank you for sharing your story. This was a beautiful film. I also suffer from FND and its so difficult. It's hard watching your peers move forward while you feel left behind. It's hard grieving your past self and all you were capable of. I'm glad you've found freedom in using mobility aids, I might have to consider getting one.
Thank you for the support 🤍 and yes, it’s so difficult watching the world move forward while you’re trying to manage each day but it slowly gets easier. It also took some time to accept mobility aids but it did help bring back my independence and reduce my symptom flare ups. I hope the mobility aids help you too ❤️❤️
I learned recently that I am not only ADHD but also autistic, and accepting the limitations that come with those disorders. For a long time, I just thought I... sucked. I was normal, but weird. And I was fussy, picky, particular, emotional, quirky, lazy... etc. Now I have a name for my problems. However, accepting that there's just certain things I can't do, and the fact that most people in my life don't understand that I can't do certain things, and get upset with me, and judge me badly, because they think I CAN do anything I put my mind to.... it's so ... heartbreaking.
I've got a different life experience than you, and we have different struggles, but I am here with you, beside you. We are sisters and we can lift each other up when the world or our bodies/brains push us down. I love you and I hope you will continue to cope easier and easier and life flows a little more smoothly. 💙
Thank you so much ❤️🥺
I choked up reading this because i relate in so many ways. It’s so challenging when people don’t understand what you’re going through, all the more when they don’t believe it. But i’m so glad to know that there are people out there who understand so thank you for taking time out of your day to leave such a heartfelt message. I love you too, sis🥺🫶
Can I just say that this was beautifully filmed. I would love to follow your progress mentally as well as physically! I wish you all the best and keep in mind that grieving the body you once had as well as accepting and learning about the body you now have both have a place in the healing process.
Thank you 🥺❤️ And yes, you’re so right. I suppressed a lot at the beginning but now i’ve realised that its okay to grieve every aspect of this process❤ I do share a lot of my progress on insta (@claritymromero) as well but i’ll also continue to post more videos regarding my progress on YT. Thank you for the kind words 💕💕💕
nice video give me a heart
Here you go 🫶
This video is so underrated, I don't have fnd but I am neurodivergent and I understand what it feels like to be dismissed, ignored, and misunderstood.
You got this :)
Thank you for the support ❤️❤️❤️
Send prayers and virtual huggsss my cousin. Fight fight fight...🙏🙏🙏😘😘😘
Thank you! ❤❤
Commenting to help the algo and spread your story! Keep fighting and be kind to yourself!
Thank you so much 💕💕
No matter what illness you have, I would like to motivate you to cleanse your whole body. The body has self-healing powers, but these can be limited by toxins. This may also have been one of the reasons why you developed this illness. Detoxify through daily alkaline baths, vegan raw food, physical activity as much as possible, daily enemas and regular colon hydrotherapy to keep the intestines clean and prevent re-intoxication. No use of synthetic perfumes, fabric softeners, aggressive detergents and washing-up liquids, too chemical shampoo, no conditioner. Only eat when you are hungry and only enough to make the hunger disappear (don't feel full). Hypnosis to eliminate mental toxins. No new vaccinations that cause new deposits in your system or cross your brain-blood barrier and cause problems in the brain. Only drink fresh spring water, or better still distilled water and mainly water from freshly squeezed vegetable juices. Depending on your condition, take as little medication as possible (preferably none at all, of course). Of course, it will restrict your life even more and it will be exhausting. But the main reason for illness is our way of life, which is not suitable for humans. And depending on where "toxins" are located or which detoxification organs are overloaded, different diseases/symptoms appear. Incidentally, I am now also on this path. When you do it, you realise how poisoned you were. Do the test and eat nothing but water for 1 day. Your tongue will be coated, your mouth will stink, it will feel funny. These are some of the detox symptoms. Do a lot of research on the internet about the things I wrote. This is important. Doctors don't learn that. But ask your doctor if you can fast for a day to try it out. It's not a walk in the park and will take a long time, but look forward to the quality of life afterwards. I wish you all the best! And more viewers, which you definitely deserve!
what are you on 💀
@@juliannazajda8883 Much love to you ✨🍇
Please don't preach this pseudoscience online, especially under a video of someone struggling with medical issues that need to be addressed by doctors.
I’ve heard about a full body cleanse but i’ve never tried it nor researched much about it. I think it’ll be interesting to give it a try and document the process! It definitely sounds challenging though haha but i’m always open to learn new things. Thank you for the support 😊💕💕
@@clarityromero With pleasure! And if you have any questions during the process, feel free to write to me. The most important thing with water is the conductivity, it should be at least below 90 microsiemens (uS/cm), preferably below 10. Water above 130 has a dehydrating effect and below 130 has a hydrating effect. The lower the value, the better the cell supply and removal of unnecessary substances. Minerals in water cannot be utilised by humans (only 10%) as they are inorganic. The rest accumulates as waste in the body. Humans need organic minerals from vegetables, fruit and nuts. Lots of new information, but you can do it! 💪
Well, if nothing else, the algorithm brought me here, front page.
As someone with disassociative episodes, I can only sympathise deeply, but never truly understand. I just hope. For you. For everyone who experiences anything adjacent to this.
Despite the all-encompassing loneliness... that's one thing you aren't alone in 🫂 alone together
I got all teary haha 😢 thank you for the kind words❤️ having an illness is difficult but knowing that you’re not alone makes a world of a difference. Thank you so much 💕💕💕
Were you ever tested properly by a holistic practitioner for Lyme disease Bara Bartonella? the lab that’s trustworthy is vibrant. Please look into. I hope you’re feeling better soon soon.
I havent! I’ve actually never worked with a holistic practitioner before but i’m interested to try. Thank you for the support ❤