Robert's Story | Pudendal Neuralgia
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- Опубліковано 18 тра 2021
- Following prostate cancer treatment, Robert experienced chronic pain that many doctors couldn't pinpoint. He shares his emotional story which led him to find Dr. Andrew Elkwood, who performed the life-changing nerve surgery that finally provided him pain relief.
For more information on Dr. Andrew Elkwood visit www.advancedreconstruction.co...
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#prostate #cancertreatment #nervesurgery - Наука та технологія
I have this condition and I'm suicidal because of it. I just don't think this is something that I can accept as part of my life forever. It's been on entire year with this and I will try to get this cured but if it isn't then it's just not going to work. This is way more shit than I'm willing to put up with every day.
Same here man, going to my first PT session tomorrow and hoping it can at least relieve this somewhat... this condition is a nightmare and sucks every last bit of happiness out of my life.
Same
@Jéssica Ferrari I have had phases of it getting better and then flaring up again. It is very difficult to get rid of it completely but I am hopeful because I got rid of a less extreme version of it once for a a number of years like 3-4 years ago. The moments when it gets better come after long periods of no sitting + smooth bowel movements thanks to osmotic laxatives. However, it still gets irritated for no reason sometimes but I guess you have to have persistence... Some PT exercises aggravate the symptoms but some are ok.
Hey!! I'm suffering with this as well those suicidal thoughts do come but hang in there we will beat this in the name of JESUS just believe please.....
I am suicidale as well becouse of the pains.
My sister Hung her seøf two yesrs ago.
I live in a country where you camt get help for most bouth private and offical but we are paying a lot to have fancy hospitals with drs who dont have time for åatients as they het paid anywell and dont have nrw knowledge than from the 60s.
Robert, like you I have prostate cancer
my only treatment are the Lupron shots. However, I have horrible pain diagnosed with PN. Can you please explain his procedure that freed your pain? Thank you!
Hi Robert or Dr. Ellkwood. What is the name of the actual procedure called?
Hi, I am looking for some help. I have been suffering from pelvic pain or pudendal neuralgia for over 7 months, I got many symptoms : burning, aching paing and many others. If I am located in Colombia can you help me ? or I should fly in to your city ? Thank you so much in advanced.
We treat patients from all over the world and are able to connect with you via Zoom for your first initial visit. Please feel free to contact us! www.advancedreconstruction.com/
Mostly it's not the nerve it's tight pelvic muscles
@sessamy seasoning yeah terrible everything in this life is exploits for money
@sessamy seasoning yeah they all say diffarant to.mri found it did it are you ok now no pain effects
@sessamy seasoning yes they say mine is central sensitisation but all doctors say diffarant I've worked out I've got TMS
Hi Robert, thank you for your bravery. I had 5 children and vaginal hysterectomy. I have now suffered with Pudendal Neuralgia for just over 7 years, only diagnosed for 4 of those years. I live in the UK and I have been unable to find any consultant to help me regarding treatments aside from blocks, which I have now had 3. One was diagnostic, injected into the Alcocks Canal. This took all the pain away for 48 hours. The other two were steroid injections around the lumbar region and both caused me dreadful flares and no relief. I am desperate for help, my pain score is high and I know that you understand what that means. I wish more was known about this condition and that treatments were at least explored as a daily medication schedule is far from ideal.
Hi Nicole-
We treat patients from all around the world!
For more information on our practice and our program please visit our website- www.advancedreconstruction.com/nerve-surgery/pudendal-neuralgia/
You will be able to fill out a request more info form and someone will be in touch with you. You could also give us a call 1.855.980.6981.
@@theplasticsurgerycenternj Thank you very much, I live in the UK is this something that you can help me with? Thank you
@@nicolehayward7151 please fill out a contact form online and we will get In touch with you and discuss options.
Hi ime UK had pudendal neuralgia 25 years I have lot of information been to hell and back also have fybro 5 years from the stress no need pelvic muscle stretch internal or do it yourself.diagram on Google also take lots of vitamins now starting gluten diet then check out TMS Dr Sarno ime here because if my family stretch the pelvis legs apart knees to chest the pelvic muscles are grabbing the nerve where in UK are you
@@nicolehayward7151 before you operate please try what I advice check out Dan pain free you
Can workd PNE surgery of this problem sir?
Hello! Thank you for your comment. Please call our patient care team at 833-598-2419 who are happy to provide you with further information about the conditions we treat and whether we can assist you. Alternatively, you can fill out our contact form here: www.advancedreconstruction.com/about/contact-us. We look forward to hearing from you and discussing how we can be of help.
please tell me, does this cause scrotal sagging and penis swelling?
No it shouldn't cause swelling
hey brother how you now
Hey Robert, did you lose any bowel or bladder function with the nerve ablation or nerve release surgery? I’m 39 and have severe pudendal neuralgia. I’m desperate for help. No doctors have been able to help me.
Enjoy PN is nothing try..
One day.Because that's psychosomatic problem.seek psychetric help.
I recomended psychetric drug but doc. guidence important.
1.Nortipan-M(pregabalin75mg,nortryptiline10mg,mecobalamin vit.b-12 1500mcg)
2.mirtazapine 15mg
3.duloxitine 30mg-30mg(60mg) gastroresitant sustain release
4.stalopram(esitalopram10mg+clonazapine5mg)
After pain go away reduce the dose.
Meditation+excercise eliminated that problem(Mentally not physically remember)
@James Carroll i also suffering that problem at and i'm finally entirely heal.eliminated own
@James Carroll sorry to hear you but surgery not good choose.this problem is mentally not related to physically so may be surgery not right direction to heal.divert you mind another thing like study,teaching, you interested game,cycling,exercise meditation with pychiatric drugs(given comment section by me).real helpful for you and i hope as soon as your healing journey complete.
@James Carroll
I have had left pudendal entrapment at the dorsal branch of the nerve from scar tissue , after yrs of dr to dr I finally got my old mri re reads and it led to getting a MRI neurography or MRN with contrast to finally diagnose the entrapment ant it’s location, I found a plastic surgeon to perform the release. 3T MRN is the best way to visualize the pudedendal nerve
Most mri Machines are 1.5t, you need a 3t or 3 Tesla power. I had mine done In Houston
Folks, my pudendal nerve was entrapped for 13 years. Anyone who says this isn’t “suicide-level pain” has never had it before.
Dr. Hibner in Scottsdale performed a transgluteal decompression/debridement procedure two years ago, and essentially saved my life (I didn’t have the courage to kill myself, but every single night, I wished I would die in my sleep).
This doesn’t work for everyone, and he doesn’t take insurance. Write me if you need help - be as specific and detailed as possible.