5 Things I Wish People Knew About Cerebral Palsy
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- Опубліковано 24 чер 2024
- 5 Things I Wish People Knew About Cerebral Palsy
March was Cerebral Palsy Awareness Month but awareness about my disability is important all-year round! I get asked all the time about what I personally wish people knew about CP so watch today’s video to get into it.
To support me, and the cerebral palsy community please visit www.gogreen4cp.org to reach out to your local lawmakers to help START federal funding for cerebral palsy. @CerebralPalsyFoundation 💚
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My hero. Nothing more to say.
Isn't she amazing? I'm in love with her.
One of my dad's good friend. His son had cp. He used to shoot on trap shooting league together.
The way you move is just like how he did. It makes me see him in your movement.
I don't know what his full diagnosis was.
He was only a couple years older then me ( 46).
But he passed a couple years ago. He had a big issue with alcohol.
I wish you well and stay strong and thank you for sharing.
My wife and I have dear friend we've grown up with who has ataxic CP that affects her speech. I cannot even guess the number of times we have all been out doing X or Y when others react to her as if she is a child, mentally disabled, or not even there. One of the more common ones is when the person will ask us something instead of asking her... "What would she like to eat?"... "What can I do for her?"... And so forth. Pretty annoying and often rude, but sometimes we make a game of it to try and show them how ignorant they are being.
I know more about cerebral palsy now thanks to Chelsea , you put a positive face on your disability and power through, inspirational
thank you for the kind words and for watching!
I love her talking with a smile, its refreshing to see someone so positive.
Thank you for discussing that there isn’t much information on those of us with CP as an adult. It is extremely frustrating!!!! Like how does it effect us as we age?
Not to mention pediatric surgeons out the ears for children with cp BUT NOT ADULTS. Not many options for surgeons for ADULTS that specialize in C.P. anyone tried botox in the legs? Let me know how it worked for you if so? Thanks!
@@nicolee2649 I actually have an appointment next month in Dallas with a specialist to talk about Botox for my legs. Fingers crossed.
Do You Also Have CP?
@@eltazz760 yes I do.
@@nicolee2649(I also have cerebral palsy, mid-30s.) I’ve had Botox in my legs years ago, and it worked very well from what I remember. It really loosened my muscles. Hopefully you have a similar experience!
Yep... had to explain once to a CP Specialist what mimicked/mirrored motion was. I'm a hemi (CP in my right side), and when I do any kind of fine motor skill articulation with my CP affected right side, my good side wants to do the same thing. You would think a "specialist" would know the jargon as this concept was explained to me by a CP Specialist from my childhood. Maybe "childhood" is key here and basically proves your point. Truth be told, I haven't found a good one yet... specializing in adults. Anyway, because I'm active, the constant "torque" on my good side muscles and joints have taken it's toll. It's the ole "between a rock and a hard place" cliche'. Got to keep active to keep the CP loose and agile, but the activity is wearing me out... literally. So yeah... adult expertise would be a great resource.
Chelsea, I am extreme grateful that one of your videos came as a recommended video to me. I have Spastic Hemiplegic Cerebral Palsy. My left arm and leg are affected. I have limped my entire life due to my left leg being shorter than my right. Thank you for your kindness, your insight, and your generosity to others in the CP community! I subscribed and will catch up on your previous videos. Fun fact: My nickname is Bear!
You are spot on as to resources & medical professionals who understand adults with CP! Hope this improves for the next generations, especially for individuals with higher mobility. As a 56 YO, I have also educated caregivers for the last 38 years on my condition & needs. This was a challenge when I was pregnant with twins 👯♀️. Thankfully my OB was willing to do his research! Definitely room for improvement from the medical community, particularly as our bodies age “faster” than our peers. (You’ll understand what I mean in another 20 years 😂).
So happy to find another adult with CP 💚
The amount of times I’ve had people completely change how they speak to me (ie. Speak super slowly, speaking loudly etc.) once I say I have CP or they see me walking has always surprised me.
I may do my own “5 things I wish people knew about CP”, if that’s okay (I’ll pick different ones and link to this video).
Thanks for sharing!
hi evie!! yes please please feel free to make your own video, the more awareness the better!! it was hard narrowing it down to 5 for me so maybe I'll do a part 2 in the future hahah thank you for sharing with me though! the same things have happened to me too unfortunately, but I'm glad we can talk about it!
I have Cerebral Palsy and while my case isn’t too bad, I’ve struggled with my balance and speech for years, I have practiced my balance and speech for several months and it did help but after that it gradually improved overtime, was a pretty slow transition in the beginning but then it was better…. Even to current day whenever I walk places, I do occasionally wobble when I walk, and whenever I meet somebody new (mainly at work) They ask where I’m from and say that I have a really cool accent (even though I don’t) I used to get pretty annoyed when people kept on asking me if I have an accent, but now I’m just more used to it, I tell them that I don’t have an accent and that I have a speech impairment from my disability, a majority of people know exactly and immediately humbled after I tell them
My favorite is when I am with my husband and talk about me like I am not there. I always speak up and quickly answer or my husband tells them to ask me.
The same has happened / happens to me. Strangers have turned to whoever I’m with to ask them questions about me instead of directly asking me. The people who do this are just misinformed, unfortunately. Great job with this video, Chelsea!!
As a member of the cp community I love how you're representing us. ❤
thank you so much Michael!
I just found your channel! You are wonderful! Thank you for taking the time educate people about C.P. shocking how many people have no clue what that is. The worst one is "did your mom did drugs"? Thank you for pointing out over compensate your worth VERY TRUE! I loved how you pointed out that once you are an adult lack of services, surgeons specializing in C.P., P.T specializing in C.P. are a dime a dozen not to mention health insurance conflicts to go along with it! THANK YOU for bringing to light that more health options and services are needed not just children since they will one day be adults with a condition with NO CURE that throughout the years will need tunes ups and treatment throughout time! Thank you for saying it for so many to hear because it is the truth!
Chelsea, you are awesome! Your personality makes it easy to be in the audience.
How dare you bring a tear to my eye... 😁 I wish the best for you on your journey !!! 🤗
I also was born with CP but it is very mild. my story is really long but an injury i had in high school made my CP worse. i was still able to go to college and get a degree but i have very little use of my left hand and arm. I'm so glad i found this UA-cam page. you are amazing.
Chelsea hello, My name is Travis. I also have Cerebral Palsy on the right side of my body and im also a full time UA-camr that travels the country looking for new adventures. I love your content and your openness about Cerebral Palsy and how you embrace it. Thank you. Keep doing what you do, you are an inspiration and you're making a difference. Your Awesome my friend.
THE LAST ONE! Sometimes it's really awkward because people won't talk to me they will ask the person next to me.
It's really annoying because people jump to conclusions and think that the 2 always go together.
Had an old work pal who had cp, a little worse walking and couldn't use right arm, but boy he was smart..... we lost touch....love to catch up.... I'm recovering from a stroke myself and watch you for information and inspiration ........ i never see the disability, just the person and brains behind it. You're really kicking its ass and hugely helpful ❤
I've spent my whole life working alongside people with both physical and mental disabilities. I have an older brother who has downsyndrom. I love watching your videos and how you want people to understand CP. One thing I've realized is that people who don't understand and really want too but are unsure how to ask for fear of offending someone. I always tell people, I will talk to anyone for as long as needed if it will help them understand. As you said though, if you wouldn't as someone without a disability something personal, please don't ask someone with a disability that question.
Chelsea, You are a Rock Star at getting the information out! Well Done!
Happy World CP Day, Chelsea!!
Your words on adults with CP are so important. I have mild CP and have had doctors unwilling to diagnose things on my affected side that they wouldn't hesitate to diagnose on my non-affected side. I was able to see a CP specialist who gave me a correct diagnosis in (literally) 30 seconds with the same information that 2 other orthopedic MDs wouldn't diagnose. Unfortunately, CP specialists or doctors really educated in it, are not available in a lot of places.
I have CP. I'm 62. I have had 4 children. Nothing stops us unless we let it. I'm impressed with your blog.
Thank you for representing us! You are such an inspiration!😊
thank you for supporting!
You're a lovely young woman Chelsea, you show a lot of inner strength that many "able" people cannot.
I met and had an online relationship with someone who had CP, and honestly I would never have known if she hadn't told me. It made more difference to her through her frustrations with daily life than it did to me, but I tried to be empathetic. Basically I ignored it other than asking how PT went and how she was feeling, some days were better than others. Regardless, whether it was an online relationship or personal face-to-face, it would have made no difference.
There are a lot of people out there who ask inappropriate things as you indicate (about more than CP, too!), but there are also a lot who take it in stride; it's part of who you are and it's what's inside that counts most. As an intelligent, literate, attractive young woman, I would think there should be someone out there that would be your soulmate and I hope you can find them.
Take care.
It's so nice to find someone who's advocating for the CP community. You are absolutely right about CP having a spectrum. I'm glad to have found your channel.
O wow I love how she is sharing this im 47 and I CP too!! I have been living alone since I was 26 :) Chelsea you so right CP will not change! My mine advice to help, never stop moving and exercising :) Im wheelchair bound in a manual wheelchair!
I worked with a man with severe CP, 5 days a week for 13 years. Best job I ever had!
Although my case of cerebral palsy is mild (right side hemiplegia), I still have people ask me questions that I thought was none of their business. For years, I had people ask me "what's wrong with your leg" or "why do you walk like that?". I got so tired of answering questions like that, that now I say, "there's nothing wrong with my leg", simply because this is the way that I always have been. The only way that I knew that i walked differently (a noticeable limp), is because people always pointed it out.
A lot of people with CP do have higher IQs (even those who have more serious cases of CP) and are well educated. I have a Doctor of Chiropractic degree as well as a Master of Public Health degree.
Your a trooper!! It's good bringing awareness!
thanks for supporting!
Don’t worry when you go down the child bearing path… don’t worry I have Cp and I was able to have 2 beautiful healthy children. Their ages are 25 and 31. I agree with you that there is not a lot of info on Cp and Aging. I wish there were programs out there. It’s much needed.
Let’s be honest, when the representative is as cute as you, there are several reasons that motivate to learn! Thanks for sharing!!! I’ve learned a lot through your instagram and now here 🙂
One of my boyfriend lived about cp and ask questions. My ex co workers have asked questions
Yep if you send in an ugly representative could get nothing.
I can relate to what you're saying Chelsea. Nothing burns my feathers like entering a room and because they see that I have CP on my left side they start to talk very loud and slow. Now that I'm older and have a little more spunk, I will say why are you talking loud I'm not deaf . You are so right ,don't judge a book by its cover . Thank you for being able to inform more of the public about what CP really is
I have CP too 💚 I always like watching your videos
Chelsea, thanks so much for taking the time out to give us 5 things you wanted us
to know and the courage to talk about it with that award winning smile and positive
attitude..... I just thought of this and I have no filter lol at me!
Have you given any thought to running for an office, either local or state? I think
you would be a great voice speaking for others and you deserve a even greater
platform... you are articulate, pretty and have a great grasp on explaining ideas
you want to speak about..... Please consider, this may be your calling: what
the Father has you doing/becoming... You can be a great voice have a good day.
I had bells palsy on the left side of my face for a year. It gradually happened within 5 days. I was 17. My grandparents rushed me to the ER thinking it was a stroke. After dozens of tests the doctors determined it was bells palsy. We still don't know why it happened or how long it would last. It gave me a new found respect to people with disabilities and how much stronger they are than able bodied people! ❤❤❤
Hey thanks for sharing your experience with people. I have CP and I just want to add that we can do everything but it might take us longer than normal people
Thank you for continuing to share the CP Story 🙏
You are awesome! I love all of our your videos. I also am a woman with CP and appreciate you educating others about the disability. I especially enjoyed your humorous video on accessible restroom stalls.
What I wonder is why someone as beautiful as you isn't married.
I just recently came across your videos and I would like to praise you on what your doing. You are a very brave woman to trust that the people that watch your videos are fair. May God bless you I would be proud to know you.your great
So true, it cant be outran but can be improved through ways of life as you mentioned. Its a neuro issue that cant be undone, the impact stays with you for life. But what youve done with your videos and just getting after it to improve yourself is beyond incredible, its not easy. I love what you are doing here, much respect!
Thank you Chelsea. You've explained CP very well. I have muscle pains / tension. That's a subject that people don't know about. I have pains in my back (especially the lower back). I've listened to other people with CP and they have issues with muscle pain too. When the person reaches their 20's, they'll experience pains. That's what happened to me, and I still have pains to this day. We tend to age quicker than others. I hope this helps. You're doing great with your videos. 😊
Thanks for an informative and well done presentation!
Chelsea is a legend! ❤
Its not unlike having MS. I know 4 people with MS and they all present differently. Very educational regarding CP and CP awareness, you are a very confident and impressive women.
I own a business called Colorado wheelchair and I've been in the industry for decades and work with wonderful people like yourself for years. Here is one thing that most people with no knowledge don't identify. And I don't think there's really any medical reason behind it but it has been the case with every one of my clients I've worked with that has your condition. People with cerebral palsy on their worst day are having emotionally a better day than anyone else. Who knows why?
Hi Chelsea, first your an inspiration to all, with or without disabilities. My daughter has CP. spastic hemiplegia. She is very motivated in life. A lot like you. I enjoy watching your content. As a father of a
Honestly, I always associated cerebral palsy to a mental and physical disability. I never knew there are different types or levels. Thank you for educating us❤
Hello I'm Heather and I'm 38 with Cerebral Palsy too. I so wish there was adult studying/testing.
Hi wonderful. Just peaceful listening to you. Thank you
Hi Chelsea! Monica here. Excellent little video education regarding CP from your POV. When I was much younger, I took care of young people with CP as a nurse. I've been on disability now about 21 years with a number of health issues. One of the main ones is MS. I love PT when I can get it & it certainly helps 😊
my daughter met with aspiring medical students during their rotation to share her story and experience. Her disability and medical issues were not apparent but the same "please listen...my body works this way " experience was there. It also surprises me that autism spectrum is not #1 based on the attention that diagnosis gets. The events my wife organized for families of folks with all disabilities were inclusive and I helped as did my daughter with meal prep and fishing activities. It was awesome to see everyone having fun without stares or stigma. Keep it up.
So glad to have found another UA-camr with CP. And can relate to some many points in this video
I have a closed head injury and it has one thing in common with what you have it will never go away. No matter how fatal the task on the boats I worked on, in a pinch I volunteered every time, because I have a head injury and the rest of these people don't and there's no way they can stand in and fill my shoes. This took me a long ways until I met an engineering professor and she told me that if you can't fix it feature it.
As a father of a young girl with CP, I just want to give you a comment for the sake of the algorithm, and improve your YT stats. I also must be watching a lot of videos with teens commenting cause I halfway expected to see comments like this down here: "This content is fire!!! fr fr 🙏🔥🔥🔥"
Beautifully done.. I commend you..
Sending Love and heartfelt thoughts. ♥️
Thank you for raising awareness.
I love your content , you're so open and certainly opened my eyes about people living with CP and their daily challenges and you answered questions that never ever popped into my head . i have learned so much keep up with the great videos .
Chelsea 1st off we all love you and we are very proud of you by bringing the C P to a modern platform of light. For all to see,You are the BOMB gurl ❤. Please stay strong and i already love you and would be your man ,i would be there just to be with you if you would be there with me and my disabilities.may god keep blessing you .muah!!!❤
You are awesome!! Truly an inspiration!
Thanks for this! 😍
I have never commented on a video before. However my wife Leslie told me about your video's and I have been watching them. It is good to be able to relate to people. I have CP as well I am 43 now the picture you see is a old one my Daughter is 13 now. I have a lot of gray hair now and even less then is in this picture. I am a Life and Health Insurance agent in Strasburg, Va. I also lost my mind in November and ran for Town Council and won. I am used to the private sector, Government is new to me.
I watched your dating video and related to it very much it took me till I was 29 to meet my wife we have been married 14 years now. My CP only effects my legs as well. You will find your person. Thank you once again for sharing your video's.
Last thing I do not want you to think of me as a politician because I am not. I am just trying to serve my hometown. I am a Christian first and foremost. My life Verses are Proverbs 3:5-6 Trust in the Lord with all your heart, lean not on your own understanding: in all your ways acknowledge him and He Shall direct your Paths. Have a Blessed Day!!! Brad Stover Strasburg, Va.
Thank you for sharing your story 👍🏿
Thank you for sharing your story. I learned a couple of things. You are definitely one of my heroes.
I just came across your channel, my brother had a stroke when he was a baby and he has cerebral palsy. Physically, he is 16 years old but mentally, his brain is that of a 5 year old. He requires around the clock care. He’s the best tho. I love my little bro!!
Great explanation. Take care and have a blessed and safe week and I'll see you on your next video
You are awesome, keep up the good fight!
It’s awesome that you told the community about cp. I have mild case of cp it affects my left side hand and leg.
This is all very interesting, thanks for sharing ! You are quite the woman !!
Thank you for the information
Had an old family friend with CP. She was confined to a wheel chair and had some trouble with one hand. But she got a masters in speech therapy.
Keep up the great work!!! Love the video
thank you!
Thank you beautiful, you are such a wonderful human to be so caring and willing to share your life experience with the world. Im positive that you have made many others remain hopeful and happy to live the life they were handed. I really respect you for not falling into the "poor me" attitude and living your life the best you can, keep grounded and stay smiling !! ❤🤗
New to the channel, I had only seen your UA-cam shorts. Amazing to see you in a longer format
thank you for watching!
Just a suggestion as I read through the comments… would you be willing to host a zoom get together? It might help us all in this Cp community to discuss with one another the different things that go along with Cp and aging . As you have said there isn’t much as far as resources for adults.
Thank you for the information👌👍👍👍
Your awesome and thank you for educating ME.
Chelsea, you are incredibly amazing. 🙏
Awesome video!
Hi Chelsea! I love your content!
You are a wonderful person! Way better than myself!! Thanks for sharing your story!!!
You're a very brave woman and one can only admire you not to mention you always have that beautiful smile. You stay strong young lady
Chelsea I know alot about Cerebral Palsey because I had a few friends in school that had your type of Cerebral Palsey and I read up on it and know alot about Cerebral Palsey and and I am always like watching you talk about it and I would never be afraid of you if I met you in person I would treat you for who you are. I will say this as a complement to those who see your pretty won't see your disability right now I am having trouble getting girls to notice me it stinks I am lonely but not depressed sometimes discouraged but that it . Have a good day beautiful ❤❤❤❤oxoxoxoxo
I just found your channel, and I just wanted to say how great it is. I have a mild form of CP that affects my right side. I walk with a slight limp due to a leg length discrepancy and have some fine motor difficulty in my right hand. I’m 34 and relate to a lot of what you are talking about. I’m curious, have you ever thought about starting a Facebook group for people with CP?
Hello friends, just wanted to say that I have the same kind of CP that you have the only thing I have is on my left side. I don't know if you have the same thing but when I get tired through the day my limp seems to increase.
Nice and eyeopening video! You should be a doctor. Please tell us about your future plans. ❤
I wish people would be more aware that people who have speech impairments due to CP need to be heard. In my experience, people are so quick to not respond when I say something because they didn't understand me. I rather be asked to repeat myself than to be ignored. It is about time and effort in my opinion.
You know, I'm glad to hear when people don't reduce themselves to the level of unironically telling people "I'm not responsible for educating you on *_!_* " That mindset has always puzzled me. Mainly because of the implications.
You're almost guaranteed to be more well-informed on an issue that affects you, and doesn't affect the person being scolded. So, abdicating the role of educator (or rather "self-advocate") means that person will:
A.) Not pursue any further becoming knowledgeable on their own;
B.) Follow the *wrong rabbit hole* to some alarming conclusions.
Also, when you inform someone enough that the ailment impacting you is no longer an abstract concept and becomes tangible, by and large they are now more empathetic of your struggles
It's fascinating just how ubiquitous many behavioral traits are among medical professionals, irrespective of their chosen discipline. In much the same vein, there's so much problematic "knowledge" floating around the zeitgeist, grossly misinforming the public at large about any number of clinical conditions...
1) There doesn't even appear to be a consensus online whether Cerebral Palsy only happens during embryonic development, or could result from a TBI or something...
2) I would say, one of *the most common sources of ignorance* in society at large, is that *_"No group is a monolith."_* However, understanding nuance requires at least a rudimentary of the subject being nuanced.
Quite literally, EVERYTHING which can be measured actually falls somewhere along a spectrum. Absolutely everything.
3) It's frankly absurd just how many conditions have been systemically labeled as "adolescent", effectively locking any of us that survive into adulthood into some kind of diagnostic greyspace... My own experience with this is with Autism and ADHD. But I mean, experts in a field of medicine are just as brown too their own biases as any other human. Just look at all the medical conditions that present differently in women than they do in men. The majority of women aren't even aware that the warning signs of a heart attack *_ARE NOT THE SAME_* as with men, and since "Man" appears to be considered the default state according to clinical academia, a surprising amount of cardiologists are oblivious to this... 🫣
4) I've gotta say, that's pretty damn presumptuous if these guys too casually inquire about that.
"Can you *_"do it"_* ?" is such a comedically immature method for them to frame that question...
😂🤣
5) The average American's relation to health care (or lack thereof), and what might affect that health care, is so tangential... Things only matter to them or are worth their knowing once they're directly impacted...
I forget which number you mentioned having to do research for your doctor, so I'll just put it here. As sad as it probably sounds, I feel like, for those of us who are disabled, "being disabled" has become shorthand for being forced to be the only person we can trust will advocate for us...
In the back of my mind, I wonder this:
*_"If you don't regularly hit your doctor/therapist with your doctoral thesis listing all your symptoms, comorbidities, contraindications, potential misdiagnoses, etc. Are you really receiving the best care..."_*
You have so much class.
God bless you !
Young lady, you are a true gem. Your attitude and personality put you so far ahead of many that do not have any challenges.
As far as marriage and children, I believe that you are truly smart enough and realistic enough to make the right decisions, and I am certain of that.
If you have not been approached to be a national spokesperson for CP, they should take a serious look at you. You are smart, articulate and have an easy, pleasing personality. You should be a national model of positive attitude for anyone with CP.
Good luck in the future, young lady. Really like your videos and listening to you tell about your challenges.
I don't think I would ever call you disabled, not with your attitude.
God bless and good luck.
I have ALS and I go to a neuromuscular physical therapist I believe they would be great for you too. I go see them at a University Hospital in the Neuro-rehabilitation clinic.
Hi from New Zealand. You are awesome!
Hey, here's the deal. Your a person just like the rest of us and we all have disabilities. they may just not be as outwardly apparent at somebody with cerebral palsy. 1 I love the work you do and how you do it. I wish I was as good as what I do as you are at what you do.
My Husband has mild right sided Cp and he was born in 1971 and he says he understands that the struggle is real. Everyone in life Cp or not we all have our own issues he has a brother that has cp and is wheelchair bound his best friend ( I call his best friend his boy friend lol ) has cp from the waist down and walks with 2 canes he wanted you to know that he found your videos yesterday keep up the good work and keep those videos oh and he wants you to know that he can drive without hand controls
Hello Lovely Happy Monday God bless you Dear Girly Girl
I don't see a disability!!! I see an amazing, beautiful, sweet person!!!!
Great video!
thank you for watching!
@@realchelseabear I just left another comment about a physical therapist I hope you see it
awesome channel! read your blog entry on your website about your birthright trip. would you mind making a video on how you can managed the hikes? my dad has Parkinsons (different from CP, but he primarily has difficulties with gait and balance) and uses a walker and totally wish I could go hiking with him!
You're right tho as you get older the help for kinda ten to go away.
And I'm want to let you know as sexual Questions.
I always get asked sexual Questions I'm sixty four years old.
As man it's been hard having relationships.
So I'm glad you're you're representing people with CP God bless you young lady!❤
I came here after seeing the short of You parking to the Rihanna song.
You have the most beautiful smile I think I’ve ever seen
Insanely beautiful
God Bless
You are you girl. Just be who you are. Ignore the naysayers. You just do you babe.
Wish you the best