"Dear Scleroderma" Jessica's Story
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- Опубліковано 5 жов 2024
- "Dear Scleroderma" is a documentary series that portrays the physical, mental and emotional struggles of Scleroderma patients who are battling this difficult disease.
Scleroderma is a rare, incurable autoimmune disease that causes a hardening of the connective tissue and can cause a wide range of life altering symptoms such as: difficulty swallowing, painful tightening of the skin, painful changes to the muscles and joints, difficulty breathing, painful sores on finger tips, and many more. When internal organs are involved this disease can be life threatening.
Awareness is crucial on the road to finding a cure. Please share this video and help educate others and inspire support of scleroderma research!
For more information about scleroderma and to support Project Scleroderma's ongoing efforts to raise awareness please visit: www.ProjectScleroderma.com
To support scleroderma research please visit: www.srfcure.org
Scientists, please help us with our skin, the tightening, fibrosis due ti the collagen over production. Please give us hope! 👨🔬👩🔬🔬☀️🙏🏼
Prayers go out to all my fellow Sclero warriors
🙏🙏🙏
I lost my sister to this, she was 38 and left 3 young children behind. Such an awful disease. Stay strong. Prayers for you.
Hi Jessica, I'm a scleroderma patient as well... ❤
I had it from a young age but unfortunately I was diagnosed by a GP doctor that I'm very enimic, because I was fainting and collapsing anywhere and anytime... I was diagnosed later on after having double pneumonia twice and the second time I was on the brink of death and afterwards I recovered from it, because it was a battle for to recover and at my last doctor's appointment I was diagnosed..
Don't give up Jessica, I'm aware that everyday is a battle but you are not alone....
To you and all other scleroderma patients I would like to say, We all are in this together nomatter the weather 😘❤️🤗😘😘
Been dealing with this storm for 9 years 🫶🏽
I lost a cousin years ago. All I could is pray. She was so young. But we have no promise for tomorrow. Keep strong, you are God's child
I was just diagnosed definitively with scleroderma. Been dealing with physical changes now for a year a little over a year and skin has changed a lot since then. It’s scary.
Same here I have systemic scleroderma it’s very scary I’ve been dealing with it for a while not knowing exactly what was going on until I went to the Dr. I’m trying to find a way how to live everyday with this. 😢
But when do you think that your first symptoms started ?
What an inspiring story! I wish her the best.
Doctors don't even understand it a lot felled me still do til this day all I say now is IAM THE STORM ❤️ I'm with u jess had this storm for 6 years now still fighting
2009 diagnosis. I feel you sister. Youre not alone.
I have tested positive for this and they're going to do more tests to see which type of scleroderma i have. My chest lungs are clear !
Wish you all the best ❤😂😢😊🎉
I was diagnosed in 2021 and have lung involvement also. Jessica, you are brave and strong and an inspiration to me. Keep up the fight!
Keep the fight against desease!!!! Your a brave woman!!
You are beautiful and inspiring, thank you for being a role model for all of us. God bless you ❤
Jessica, thank you for using this platform to share your experiences and transparency.
You are so brave, young lady!
You have a phenomenal support group of family and friends.
Keep going, beautiful - I know you will
💪🏽🤍✨
It can be so hard to look in the mirror and not recognize yourself. It really helps to know you're not alone in this fight. That there are other people out there that truly understand and know the battles. I think I found you right when I needed to hear your story. Thank you so much for sharing. May God bless you and keep you! 🙏
God Bless Her!
Thank you for sharing your story, Jessica. You're a remarkable person with great strength and wisdom!
Thank you for your open insightful, intelligent attitude. I’m praying for strength for you and your family. You are a brave & beautiful women. ❤
I feel you, I also have this disease 😔 , feel so down and devastated.
Hi there beauty I feel you I was diagnosed in 2017 thy said I'm limited sclarderma but my hands r messed up too I love you n your not alone I subscribe we r family joined by this disease 😢❤❤❤❤
Thank you for your inspiration and your courage and strength ❤❤❤
Jessica you are beautiful inside and out💖
❤❤❤❤❤❤❤🙏🙏🙏🙏🙏🙏to u....
With are here scleroderma to be a live 💪🙏🏻♥️I have scleroderma sistemática, or we’ll life is harder but not impossible 😉❤️🙏🏻
Damn she was gorgeous!! Scleroderma sucks. I’m so sorry you’re going through this!
IS gorgeous 😊😊
Thank you for sharing your story. Prayers go out to you. I pray that you continue to be strong. You truly are a beautiful child!🌹❤️😢
🥺 my story is very similar
🙏
So inspirational ❤
You are amazing! I wish you all the best.
Thank U for that post , my hands are the same , no family that understand would love some advice please rachel
Beautiful 💙🙏🏽❤️
Thank you for this video
Jess you are amazing, you are so strong and courageous going through this debilitating illness..thankyou for sharing your story, your strength inspires me to go on with this crazy journey ❤️
My 6 year old son just got diagnosed. How fo i reach out to you?
😮 Prayers for your son
Love this ❤
Thanks you ❤
i wish you the best
Amazing
You’re beautiful! I’m 44 diagnosed with sjorgens syndrome, rheumatoid arthritis and crest syndrome, from what my rheumatologist said it can develop to scleroderma. I have really bad Raynard’s. I started a new herb and it’s helping me ❤
What herb helped you?
@@Xray858 Ginkgo biloba and fish oil… IDK why’’’ plus stoped eating eggs
I just found out that I have sceledrem
I’m so sorry ❤ I was diagnosed 1 year ago. Please stay positive
My scloraderma patient
Has any of you tried AP therapy as a treatment option?
Have you heard of Helminthic therapy. It looks very promising. There's a clinical trial in New Zealand underway now.
What is the causes for this decease, my sister is going through this she had to amputated her foot, i don't want anything to happen to her
😢😢😢😢😢😢😢
♥♥♥
I have morphea localised scleroderma, it’s taken over my body in a few months and I have no one to talk to as no one in my area has even heard about it,my stomach is unbelievably deformed and my breasts too,🙈🥲🥲it’s progressing so fast 😢😢