Just got diagnosed Rheumatologist been leaning toward it it's confirmed systemic sclerosis diffuse it's a slap across the face very challenging stay strong one day at a time iam learning new information
Why there's no a cure? But Why there aren't yet better treatments!??? Why do we have to suffer tooo much? From this terrible, crazy, horrible, killing, limitating disease. 😞😢 Please scientifics, pharmaceuticals, support us, we want to live instead suffering. 🙏🏼🙏🏼
"Taking shower and pulling out chunks of my hair" and "tired all the time". Yes. 😢 You are so strong and so inspirational. 💪 When I got my Scleroderma diagnosis, I tried to do everything to disprove it. Be anything else, I thought. As a single parent with two kids, I begged..." Please be anything else." I understand that depression that comes with having the diagnosis...you are a really inspirational person. Your words inspired me and give me hope (not hope to heal, but hope that I can be happy and live with this).
I too have MCTD with the same diseases. … it attacked my lungs and now I have pulmonary fibrosis… the hardest part is ppl are uncaring because you don’t look sick
It's a horrible sickness suffering it's not nice I hate that word of that sickness as a Mother I went through that it's horrible with my daughter suffering no cure
It looks like you are in Seattle area. I am also and I have limited scleroderma. With fibromyalgia. I am always looking for a good rheumatologist. I’ve seen someone at UW but wasn’t pleased.
Please scientists, createe a medication for our skin!! We could remain active despite the disease. A medication that controls the collagen over production. Please 🙏🏼🕯️🕯️🕯️🙏🏼
Just got diagnosed Rheumatologist been leaning toward it it's confirmed systemic sclerosis diffuse it's a slap across the face very challenging stay strong one day at a time iam learning new information
I feel very honored to have heard this story and to learn about this condition and its brave victims.
My mother lived and died with Scleroderma. No one ever knew what I was talking about
Why there's no a cure? But Why there aren't yet better treatments!??? Why do we have to suffer tooo much? From this terrible, crazy, horrible, killing, limitating disease.
😞😢
Please scientifics, pharmaceuticals, support us, we want to live instead suffering. 🙏🏼🙏🏼
"Taking shower and pulling out chunks of my hair" and "tired all the time". Yes. 😢
You are so strong and so inspirational. 💪
When I got my Scleroderma diagnosis, I tried to do everything to disprove it. Be anything else, I thought. As a single parent with two kids, I begged..." Please be anything else." I understand that depression that comes with having the diagnosis...you are a really inspirational person. Your words inspired me and give me hope (not hope to heal, but hope that I can be happy and live with this).
Please scientists find a cure or better treatments! 🙏🕯️ There are more and more people each time with this terrible disease.
My mother had Sclerodema. She died and now I wish they would discover a cure for it. No one should ever have to experience it.
Keep your head up u r beautiful in strong I also have scleroderma im 37 with five children
I too have MCTD with the same diseases. … it attacked my lungs and now I have pulmonary fibrosis… the hardest part is ppl are uncaring because you don’t look sick
It really is cruel that they don’t believe you or think we exaggerate
Yes so true e😢
It’s sad.
Is hard to see à loved one .sick😥🙏🌺🌻
Just watched your video and I'm inspired by your approach to this disease...keep pushing, keep sharing and keep empowering ❤
Yay Chanel. Such a nice person.
It's a horrible sickness suffering it's not nice I hate that word of that sickness as a Mother I went through that it's horrible with my daughter suffering no cure
Love love love
I remember reading her blog when I first was diagnosed with MCTD. It definitely helped me through.
What's her blog? Do you have Scleroderma too?
Warm regards. I have limited Scleroderma.
It looks like you are in Seattle area. I am also and I have limited scleroderma. With fibromyalgia. I am always looking for a good rheumatologist. I’ve seen someone at UW but wasn’t pleased.
Please scientists, createe a medication for our skin!! We could remain active despite the disease. A medication that controls the collagen over production. Please 🙏🏼🕯️🕯️🕯️🙏🏼
How is Chanel today November 2024
I wonder about that also. Diagnosed just this year with diffuse systemic sclerosis/progressive scleroderma in May 2024. Anyone know how she is?
As soon as I saw you, I knew you were the tube -fed wife. You're so beautiful and I followed you for a long time ❤
How bad were your levels?
how old are you? can you walk us through your journey how you found out? im nervous
There’s no treatment. It’s a complete joke. But she’s amazing. I’d like an update! How do I find her channel
It's not a joke there is no cure for it. My wife is also suffering from sceloderma
@@ganeshnasina7291 I think she meant that it’s a joke that the doctors haven’t figured this out when there should be more focus on finding what works
Steem cell transplant
@@manyaofficial684 can you tell me more please. What country do that therapy?
I am from Greece I diagnosed 2020. I didn't hear that here in Greece
I wonder if a bone marrow transplant could fix that?
Edited to add: She got the transplant. Did she make it?
What is the treatment?
Incurable
I understand autoimmune disease sucks!
Chanel you are beautiful. Beautiful eyes
When the body says no - gabor mate and neurofeedback
♥♥♥
So what the heck is IT? smh
Pᵣₒmₒˢᵐ